16 Months Post HSCT

[@atypocrat1779]

You look well and sound well too. I am in Chicago and on Day -2. I’m get my stem cells back Monday.

[@AnnavsMS]

Thank you for always being so kind and keeping up with me journey! I am very excited for you to be so close to having your life changed for the better. I wish you an uneventful stem cell transplantation and a speedy isolation :) I would love to hear more about your recovery after the transplant! Wish you all the best during this life-changing journey of yours! :)

[@iss8258]

Hello,could you be so kind and share how are you doing now? Trying to gather real peoples insights and experiance not just reading paper studies so i have faith in the decision this diagnosis is hard to cope with i have been "living" for years now but was so broken inside its borderline crazy,really want to do this procedure but literally everyone is against and calling me crazy...
now trying to get real peoples experiances,would love to hear your thoughts now 5 years later.
please and thank you

[@atypocrat1779]

@@iss8258 It seems to stop the progression. I recommend it. It's an expensive procedure without insurance covering as part of a clinical trial. Without the Obamacare rules forcing my insurance to pay, I would not have been able to participate in the clinical trial. However, you only live once and there are less expensive places to have the procedure done. Mexico for instance. You have to be your own advocate when it come to your health. Nobody is going to look out for you by yourself. There was no Bing AI or ChatGPT or Perplexity to help me do research on all the different treatment options and insurance rules. It was a challenge to do my daily job and search for my cure. You can do it. Good luck.