How to Diagnose Multiple Sclerosis [In 5 steps]
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- เผยแพร่เมื่อ 4 ส.ค. 2024
- In this video I explain how to diagnose Multiple Sclerosis, in 5 steps. Want to understand how MS Neurologists confirm a diagnosis? Then start watching this video right now!
How to Diagnose Multiple Sclerosis [In 5 steps]
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
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Thank you for the clear precise information on MS ex’s!!! 👍🏽
You're quite welcome! TY for the kind comment! #WeHaveMS
I suspect a csf leak via sinus, I've had MRI of head an neck with nothing (I'm not entirely convinced there's nothing) all lab testing (standard) came perfect and better, I injured my neck (which hasn't shown on MRI) and have poor cranial blood flow, I've also had multiple concussions. My dad died at 63 due to complications of ms and had it beginning on the brain stem, was diagnosed when rushed to the ICU with stroke symptoms, not being able to stop vomitting, not noticing he had no use of half his body and by arrival status epilepticus that almost (or did I was in grade 2) required an inducing a coma to stop.
He , around a similar age to me, and I share so far chronic painful migraines, (possible) siezures, severe memory and cognition issues (preventing me from working), trouble speaking, trouble with balance, dizziness. I also have muscle weakness, nerve damage, I've had different weird vision phenomenon (tracers, blurry, each eye sees different temp colours, varying vision) I've been treated for and almost committed for psychotic episodes, also I believe I'm having light triggered focal siezures, I'll slur and stumble over words and recalling them randomly. I could go on. I'm 26, oh and have horrible working memory Ive completely forgotten some I worked with daily and even my work schedule, details about my partner of 6 years as well. emotional symptoms and mood and affect too.
It'll be 5 or so years before I'll see any neurologist, my primary practitioner has referred me to neurology and internal medicine. What do I do? What do you think? I used to work up to 15hr nights 5 days a week now I have a hard time working part time.
Thanks I appreciate a response
"How do you know it's not Lyme?"
"He checked... SHUT UP!!!"
You truly have a gift when it comes to relaying MS information in layman’s terms. Empowering, educational, entertaining, enlightening! With MS generals like you leading the charge, MS doesn’t stand a chance. Rockin’ the MS world one informative video at a time! #WeHaveMS
TYVM! #WeHaveMS
Rockin the alliteration Mamma JoJo! ❤ You put it perfectly and speak for us all. Dr B is leading the charge and we're grateful for him. #WeHaveMS
#WeHaveMS
I wish I could find a Dr like you because let me tell you, I'm exhausted. I had a very tough pregnancy at 25 and that's when it started. Diagnosed with carpal tunnel in both wrists (that would come and go interchangeably), drop foot in my left leg that vanished after a few weeks, interstitial cystitis, failed nerve conductor tests, electric shock type pains down my neck. I didnt know any better.. some of these issues were dealt with by my ob/gyn, some my old pcp, some ER... for the most part they would prescribe pain meds, none of these issues were linked, I was always told either it'll go away, maybe physical therapy, maybe chiropractor. And then forget it, once I'd been prescribed so many pain meds no one took me seriously even when I said I didn't want any pain meds. I was even told "you're too young to be in pain"... so I kind of gave up and now I'm 41 and my right thigh is completely numb and just functioning is a struggle. I dont have records and I don't know where to start and I don't have the energy for another doctor to not take me seriously. When just having the energy to get through work is a monumental task the idea of that is so exhausting. I guess I've just had the misfortune of not finding the right doctor but i wish I knew how you find that.
Feel for you ! I’m going trough similar things ! Wish you nothing but the best !
I’ve taken a deep dive into MS recently too. My right thigh is also completely numb, and it has been for 4 years. I lost feeling when I was around 21, which is when I also started to realize I no longer had 20/20 vision. My determining factor to go to an eye doctor for glasses was a near death experience of running a red light at night. My double vision was so split, I thought the red light was someone’s tail lights. I’ve suffered from years of migraines directly behind my eyes too. And then the cluster migraines 🫠 it feels like someone’s taking an ice pick through my tear duct down to the base of the back of my head. My one time trying to go to a doctor, I was told to loose 20 pounds (was only 180 5’8 at the time) and to try physical therapy simply because they were “worried” my insurance wouldn’t cover an MRI without weight loss and therapy first. BUT my insurance didn’t cover enough of the PT for me to afford it, so I gave up and started researching information myself.
I've been trying to get diagnosed for years now, my doctor suspects MS and I did the research and 100% agree with her. I'm getting my eyes checked and I'm getting an MRI this year after years of absolutely nothing coming up on the other tests having nothing to do with my nerves. It's so frustrating but insurance requires certain things that have nothing to do with anything. Watching this helped a lot. 😊
This is the best explanation of diagnosing MS I have ever heard. The doctors and PA's my wife had just went through the motions and never fully explained the diagnosis in such simple terms. They also used lumber punctures too often instead of using the MRI. When it appeared obvious that the three primary conditions existed, that they used the MRI as confirmation of the MS diagnosis. Also, on onset of the illness, she did not have an MS doctor until several years into her illness. My wife had a preliminary diagnoses in June 1996. She passed away 16 June 2018 with one of the two forms of PMS. A horrible death as she lost most of her memory.
Sorry for your loss. I didn’t know memory could be tied to ms my mom has MS and it looks like I may. MRI test tomorrow
I had all the first three, but still needed to get an LP to confirm my MS diagnosis. Sadly, I've been left with a chronic CSF leak, now over 1.5 years, despite numerous interventions. It has absolutely taken away my life, I am bedridden 95% of the time. I haven't even been able to process my MS diagnosis, due to how debilitating the leak has been. A part of me wishes I had never sought out a diagnosis, because at least then I would have still retained some function. I am so glad to hear that you are being conservative with your use of lumbar punctures.
I just LOVE the opening/closing branding you utilize. Cool beans!
TY! #WeHaveMS
5 years, 4 doctors, rule out everything else then an MRI after hospitalization. It's hard to diagnose. It's rare and neurologists are as close as we are getting to wizards on earth. Very thankful when I finally got an explanation.
I really love listening to to you at the min I have all the signs off MS but my doc said oh no your mri was clear 😡😡wish you were my doctor . ❤️x
I’m only now finding this video and I wish I took the time to find it before. I am in such denial about my diagnosis and by watching the totality of the these videos I am understanding the surety my diagnosis. The 5 is understandable and I’m now just going to believe my neurologist and start DMT’s Thank you
Thanks for your informative videos. My doctor ruled out MS, and hasn’t done all the tests! He hasn’t done the MRI of my brain or thoracic spine. He did a MRI without contrast of my cervical and lumbar spine, and said no lesions. He seems to want nothing to do with MS.
I was diagnosed with a single brain MRI because there were so many lesions and the pattern and location of them "was consistent with multiple sclerosis". That's all it took for me. My MRI was ordered by a general practitioner at a walk-in clinic that I went to for frontal thigh numbness. I had mentioned a few other different symptoms that occurred in the past, and together with the MRI a diagnosis was made.
TY for sharing you're experience Kelly
Wow your video production value is getting very good. Love how concise you are.
Wow .. this is just excellent . Thank you ! I've had an MRI and have two lesions that the neuro said were indicative of MS . When I saw my neurologist and when he asked me to tell him about my symptoms .. i only told him what I was feeling now.. Throughout the last 20 years I have had situations and bad symptoms like one VERY scary episode(s) of Vertigo that lasted about three weeks off and on .. it was AWFUL ! and at the same time my lower back was so bad I started seeing a chiro for a year ... I put that down to my job etc... I work on the ocean for the last 25 years .. in the big time ocean! .. I was a gymnast and I had terrible nutrition before the age of 5 ... long story ! ) So I never thought to tell him about that. I only told him what just happened. Will this have effected the way he would have done my exam and my possible diagnosis ? Going for VEP in five days,.. had blood tests - rocked those ! , having thoracic spine mri in next month and then he said if he wasn't able to do a diag. after that then he would do a lumbar puncture. Not sure if I should tell him about my prior symptoms. Oh sheesh I type alot ! sorry
I'm a Cancer survivor, 48 yr old male in relatively good health. Nonsmoker and non-drinker. Tests show I do in fact have a genetic predisposition to MS. I definitely have a serious Carpel Tunnel situation on both hands. I have really bad numbness in my hands. Especially my right hand, with inflammation in my middle and ring fingers particularly bad. The tips of my fingers feel like they're getting hard. Sleeping is extremely difficult.
Going for tests soon. I'm very concerned. This video was helpful.
Dr. Boster. Thank-you. I don't think you can truly appreciate how valuable this type of information sharing is for patients.
Great explanation of initial diagnosing of MS
This was very helpful. I am on #4&5. What you said in ref to 1-3 made sense. TY
Thank you for clear, important information.
These videos are interesting and full of information that help me understand
THANK YOU DOCTOR BOSTER
Thank you Doc!!! I love sharing this type of MS Education!!
Please share, share, share!
Thank you for all of your videos! They are very informative and the only thing I would like better about your channel is that you were in Dallas, TX or close. I think I learn more from your videos than I have from 13 years with my neurologists.
You make MS seems so easy and I thank you for that.
High Five
Dr. Boster, first off I want to say THANK YOU! Thank you so very much for sharing your knowledge though your TH-cam channel. Your compassion for all MS or possibly MS patients should be a REQUIREMENT for every neurologist. Sadly most it seems have a horrible bed side manner. You’re so loved in this community❤️.
My question is this, in March 2020 I felt my first symptom (altho looking back had others for years but they were easily dismissed). It was strong internal tremors. At that time I had no idea how to explain it even to my primary doctor. Fast forward to fall, I now had hand & finger tremors so bad I couldn’t accurately type or use a mouse and I started noticing speech issues. Saw a neurologist, he totally misdiagnosed me and sent me to the Mayo Clinic in Jacksonville, Fl. Four days of testing. MRI’s of brain, C- spine and T-spine, several hour long neurological cognitive testing which found I had mild to moderate short term memory loss and thinking etc with my cognitive testing. Speech pathology, neuro psych test. I have nearly all MS symptoms I have come across in my almost 3 yr long “free time studying”. I have times of “calmer” symptoms and then they will start firing off and get so bad. Symptoms that have become constant 24/7 now are hand/finger tremors, balance and coordination are a JOKE at this point… and my memory and thinking ability has gotten worse. But Mayo wouldn’t diagnose because of one thing… I *ONLY* have one lesion. A “ Dawsons Finger “ lesion on the top right pariatrial area. I’ve researched this lesion a lot too and seems it’s a classic MS lesion. But just having one isn’t good enough. Have to have 2 or more according to McDonald Criteria, a criteria I learned neurologists CHOOSE to use, and that neurologists can use other criteria’s or even no set criteria at all. I’ve also had my areas best rheumatologist test me for Lyme, Lupus and all other autoimmune diseases which all results came back negative. So I’ve been without a neurologist for over a year and a half. I’ve gotten progressively worse with new symptoms every year since my nightmare started. I even had to stop working. But I have NO ONE who’s helped me in all this time. I know MS is a game of elimination, and it seems that’s been done in my case. So what do I do now? I can’t continue on like this. It’s taking a huge toll on me, my husband, my mom who’s worried to death about me and mad that NOT ONE SINGLE DOCTOR has helped me.
What now, Dr. Boster?😪…
Thank you for posting this. I am going through quite a bit of symptoms. I have been asking my primary care doctor to test me for years and she laughed it off and says I don’t have MS. I have two or three spinal lesions. They found them several years ago. My neurologist did an MRI this last week to check the status of my seizures and found brain lesions. I have asked that they pursue MS diagnosis. I hope they take me seriously.
Always a treat to visit your channel Dr.B! Great information for those of us diagnosed and some on the fence abour diagnosis. Great vlog!!
TY AJ's HR!
Wow wish I would have seen this like a week ago. Either way this is helpful. I am on the MS Healthline app and it seemed on there like most people got a lumbar puncture. I couldn’t understand and was annoyed about why my doctor was saying it wasn’t necessary for me to do. I went to see a second doctor and she said the same thing. Good to know that actually less than 10% of people get one. Doctor said I could get one if I reallyyy wanted to for my own peace of mind but after my second appointment and seeing this I’m feeling better about not getting one done.
I love how informative your videos are and i really love how you can make me laugh too! Ty Dr. B!
You're very welcome Kristy!
Thank you so much for putting together videos like this. I do not have an MS diagnosis, but it hasn't yet been ruled out by my doctors. (I'm an OhioHealth patient, so perhaps we'll cross paths someday). Your videos have been a really great resource for explaining to my family what MS is and how it's treated, which takes a fair amount of stress off of me while I wait around for the appointment dates and health insurance coverage to line up.
right on Whitney!! Hang in there, you're not alone!
right on Whitney!! Hang in there, you're not alone!
Thank you Dr. B. You continue to explain things that my own neurologist didn’t explain to me. I really appreciate the time and care you take for all of us. ♥️🇨🇦
You are very welcome
Thank you so much for an informative video as always😊
My pleasure Sravani!
Thanks for explanation of me diagnoses.. good job..
Awsome video Dr. As always! Just wanted to say I'm going on my 6th neurologist going on 3 years in June .tried to get into cleaveland but they say I need to see more doctors in my state first, Um OK.This is very frustrating. So for people out there in limbo land I'm praying for you ! You are not alone for sure and don't give up.
Amen Shannon!
Shannon, look at you go! Keep rockin’ it. You’re an MS Warrior. This is YOUR health, YOUR disease, and YOU are giving your MS “what for” all while encouraging others. You’re amazing. Don’t let anyone tell you otherwise. Feeling your frustration with you (as a mom of an MS patient). I don’t claim to know how you feel but as part of this ever growing MS community I am so proud of you for hanging tough!
Hi Aaron as allways very informative a honest answer when we diagnose ms symptoms thanks again Aaron until next time thank you regards from derby ENGLAND!
YW Mario!! I hope you and yours are warm and well! Until the next video friend!
Awesome as always dr b.
I was dx without lumbar puncture (thankfully) I always watch your videos as it’s great to get REAL answers that are understandable.
TY Craig! #WeHaveMs
Thank you!
Thanks So Much for this informational video! I wish I had of had you as my doctor 18yrs ago. It was a very confusing time for me and the doctor didn't help, but further added to my confusion and stress! So Happy to be privileged to have you as my physician!!🍻 Together you and I are 👢💥kicking🥊🥊 my MS in the 🐎...⚰🗑!!!
We got this Linda!
Yes, my neurologist made the diagnosis of aggressive and advanced RRMS from my history and everything you've shared. Just not LP. A slam dunk, as you've put it. The latest MRI showed mild cerebral and cerebellar atrophy, which I've read is normal in MS. Thanks for the sharing!
YW Syazwani! #WeHaveMS
Thank you. Please explain more about MS
I’m so relived this is the first video I found! I am going in for my MRI results next week and would love to know what questions I should be asking? How do I find the doctor that’s a right fit for me?
Love your videos, dr B! Thank you!
Let me tell you my story. I had a leg sprain that left me limping even after the sprain should have healed. A year later, the sports medicine doc was puzzled and checked me and noticed I had nystagmus and very quick reflexes. He sent me to the neuro with a note .. he did a basic examination and sent me to an MRI right away.. there my 30 brain lesions screamed MS!
Howdy Franciir! TY for sharing your experience with us here. #WeHaveMS
I remember back then when my neurologist sent me to get a lumbar puncture I was like "dang" but yeah the more tests the better to have a much better results in the end...thanks Dr. Aaron Boster
right on Damian6Robin!
Thanks for the clear explanation of how MS is diagnosed. Since being diagnosed in 2014 many people have asked me about whether their symptoms are MS and now instead of going into an explanation of diagnosis criteria I can point them to this video.
About lumber punctures, that's interesting that it's only 10%. I didn't know it was that low. I was wondering, if someone has already had one, can a lumbar puncture help you decide the best DMT for a patient?
Getting my brain and spine mri soon. Thank you for the videos.
Turns out I have bulging disks and foraminal stenosis on cervical lumbar and thoracic spine. Not MS. I am 28.
Hi I am happy for you it is not MS. Just got my MRI of brain and spine. Everything clear. But I am looking to do a virtual consult with Dr. Boster for second opinion because I live in California. And I want to ask him if he thinks I should get spinal tap after he reviews my mri.
I strongly feel I have MS. I've been diagnosed with one legion. But its three years later and my new MRI test results are in. I just want treatment so I can live again whatever this is. I have all the symptoms. It's just taking so long. I'm very unhappy these days cause of limited mobility, pain, and fatigue. Thank you for your help.
I've had two lumbar punctures and MRI's galore. It took almost a year to diagnose me with MS. I didn't know what was going on. I still have depression, foggy thinking, problems with my speech and fatigue. But I'm fighting through everything.
You're not alone Anthony! Don't give up, we're rooting for you man!
Anthony, Dr. B is right. You’re not alone. This whole online community fights with you. A very wise Dr. once taught my son, who like you has MS, to tell MS: “I have MS and I choose to fight it.” You’re an MS Warrior. You’ve got this!
"he checked, shut up" 😸😸 - I should have been diagnosed in 1998 after my second bout of optic neuritis ..At that time, I'd seen a Neuro-Ophthalmologist, had an MRI and was given a "low possibility of MS" I had 11 years without any obvious activity and in 2009 the left half of my body went numb....it took until 2012 to get a for-sure diagnosis. I started with strange goosebumps and tingling in my legs all the way back in 1986.
I have watched the majority of your videos since my neurosurgeon found spots on my cervical x-rays and sent me back for brain cervical and thoracic. He said I had MS, but I needed to see a specialist to have it formally diagnosed. I can't believe how hard its living in a big city to find a MS doctor who is taking new patients, especially when said patient is 55. Do you have any recommendations for MS specialist in the greater Houston area? I have probably watched 90% of your videos and doctor Thrower from Atlanta. Thank you for the information you share here.
7:43 PST. I've suffered with "spells" much of my life... now they've grown more frequent and intense. I've suspected MS. My doctor seems to be on the right path. Thank you.
Thank you! Love the coffe break voice over lol. I'd like to know if an episode of Transient Global Amnesia could be considered an isolated initial manifestation of MS?
Thank you for this info! My doctor suspects MS. I have all of the criteria except the banding in the CSF so no diagnosis still. Very frustrating to experience decline in your health without a reason.
Hi Dr. Boster, Thank You for your videos they are extremely helpful! I am currently in the CIS stage at the moment and wanted to know if NAFLD is common comorbidity seen in MS patients? Other things have been ruled out and diagnosis is leaning more towards ME/CFS or MS (though history includes electric shock-like pain with headaches and intermittent ms hug like symptoms). Thank You!
Again, THANK YOU for creating videos in your spare time to help those of us who, due to geography, are not your patients! Now onto my question. I missed your last few Q&A's and can't wait to ask this question which is off topic now (sorry) : Is there a ballpark time for lesions to form and for black holes to form?
it's hard to make a comment the exact timing Meloney
Thank you. I figured if anyone would know, it would be Aaron Boster MD!
Hi Dr Boster. I really appreciate your videos. Could you talk about Tumafactive Ms and what is the diagnosis criteria and treatment. Thank you in advance and keep up the good work!
Howdy Kevin, I'll add it to my list of topics! TY
👋🏻 student doctor here. Thank you for your awesome video.
I also have an interesting set of symptoms myself, but here in the UK the wait list to see a neurologist is at least 12 months then the wait time for an MRI after that... so it'll be a long time before I have any idea what I have. I paid a private neurologist to assess my proximal upper limb paresthesia & deltoid wasting, and it appears to be indicative of C5 cervical radiculopathy in terms of the dermatomes affected but without an MRI it's hard to pin down the cause ... plus Raynauds + cold intolerance + a messed up menstrual cycle... but the interesting part is that I'm 32 with no trauma and a negative ANA. My ADHD medication is a vasoconstrictor, but I can only conclude that I must have something cool since neither I nor anybody else has any idea what it is 😂 MS is but one of many things still on the table, so it's interesting to learn about and hopefully will help my future patients ❤
Another wonderful video. I had three lumbar punctures in my lifetime. The first two ruled out MS. The third said I had it. Could you explain that for me?
Excellent as always, Dr. B. By watching this video and pressing the link to the video on diagnosing ppms, my ppms that's been dragging on since 2010 or so is now as clear as day. Up for a second ocrevus treatment and a follow-up brain mri soon, wish me luck. Best greetings from Jerusalem!! ❤
awesome sauce!
@@AaronBosterMD what?
sorry! Silly slang! That's wonderful
@@AaronBosterMD 40 years in Israel, not updated on my American jargon! Thanks! ❤
This is a great list. I have a recent diagnosis that I'm still trying to confirm, mainly for myself as I have Degenerative disc disease and a family history of arthritis in the spine, a 3 spinal cord lesions but no brain lesions. The spinal cord lesions are near or at locations where I either have a herniated disc, bulging disc or as in the case of L5/S1 no disc height left and what disc there is is herniated to the left - and of course I have some left leg difficulties. In other words it all confounds. I get occasional tingling from my jaw to both hands but my C4/C5 is herniated and is flattening the ventral surface of the cord. Two other cervical discs bulge as well. I'm asking for a lumbar puncture as my 'history' really only has bad back symptoms.
Continuing To WOW me. 😇🤔
high five!
Hey there! I have been watching your videos to try to get a better understanding. In December a lesion was found in my cervical spinal cord. My doctors have been going back and forth with wether or not I have MS because of my age. Is age really that big of a factor? I’m 21.
😂 Thank you! More from you than anyone. sent you rather long message on FB
Thanks alot
I wish you were our professor
I would appreciate it if you record some videos more detailed for medicine students
I used to be an assistant professor of Neurology my friend, some time ago. These videos are intended to empower, educate and energize folks impacted by MS, and I hope you find them helpful.
@@AaronBosterMD
Thanks for replying, Sir.
Your videos are so practical.
Two Questions:
How do you DX and monitor a person who has metal from previous surgeries and cannot have an MRI? Or can they?
How do you do a LP with a person that has an internal spinal bracing and cannot curve their spine?
Hello Dr. Bolster,
Thank you for posting these videos, as they have been very helpful & empowering to watch.
My team of doctors are currently going through the MS diagnosis process, and believe that it is very likely I have it. However, I have had severe Crohn’s Disease & CRPS for 5+ years. I received remicade for 2 years, but the results of my colonoscopies have showed that the remicade has failed & was unable to improve and/or alter the progression of my IBD. Therefore, they switched my immunosuppressants & are currently waiting for my next scope to see if the new medicine has worked or if it has failed. My next scope is in 2.5 months.
With this said, how does the MS diagnosis process differ when there are existing autoimmune diseases that are known and clinically diagnosed. I have CRPS, severe active Crohn’s Disease, and have a severe TBI that I acquired 6 years ago and had a stroke as a result of my head going through a windshield at high speeds.
My immune response as of right now is hyperactive in my GI tract, and my CRPS is also flaring up off and on. Thus, do these specific conditions or related situations impact the MS diagnosis in a significant way in terms of making the process easier or causing it to be a more complex process?
One more, thank you for the time you spend making these videos & taking the time to interact with your viewers.
Sincerely,
-Laura
You are more than welcome Laura!
Nice
Thanks
Dr. Boster, I am 70 years old and grew up in NY. In my 40's I began having bouts of fatigue and muscle soreness that would come and go. as I aged they seem to come more often and last a little longer. Ar one point my doctor found I had very high Epstien Barr levels but unfortunartley he passed away shortly after and I kind of dropped it. Fast forward to now. I have fallen several times, legs and arms are clumbsey, stiff, and painful, I stumble and have blurred vision with pressure headaches. I have shrugged these things off as getting older bur now
This is great Dr. B! How do you figure out if we’re having a bad few days or having a flare requiring steroids?
new neurological symptoms lasting >24hours in absence of a fever = need to be seen by your MS team
I’m scheduled to see a Rheumatologist soon. Do they do any testing that might lead in the direction of finding MS? Or will they just refer me on to a neurologist if they suspect MS?
I’m having several suspicious symptoms, but my Dr is sending me to a Rheumatologist first.
Just found your channel today i really hope you see this. I have many health problems some of which are subaortic stenosis, copd with over lapping asthma. Sleep apnea with hypersomia always have had. perfect 20/20 vision up till 2 yrs ago in a matter of a few mo of having issues with eyes ended up with bifocals. I have horrible migraines on right side of my head and get prisms in right eye quite often as well as floaters Then started to drop things from right hand and would trip with right leg. The past yr have fallen 6 times. I started to use a cane at my daughters insistents but my pcp said i didnt need it that i am just using it for no reason and its become crutch needless to say another fall in feb that put me in a walking boot for 6 wks After my right side issues started i was sent to my neurologist i have had mri but no lessions. I hurt so bad in the right between shoulder blades. I mix up words say one word when im not even close to the word i want or forget what i was doing to turn off stove or water I even forgot my address when asked before My mind was a total blank. I have been mixing up colors green is yellow and yellow is green.i go to physical therapy because i no longer have control of bladder and bowels had tube put down my nose and was discovered that my esophagus constricts to where it is hard at times to swallow i am always dizzy mostly when i go to bed that i throw up. I get a spasm on the right side from the top of my head and it travels down my face to right arm then to my leg. I get chronic muscle cramps under my right bottom rib and right leg as well as restless legs and i have hyper reflex reaction in right leg My neurologist wanted me to see a neuropsychologist to be tested for function but ins would not pay for it. And to make matters worse i no longer have ins. But with all these symptoms i still have not been diagnosed as to if it is MS. ? I don know what is wrong with me I need answers desperately
TY for watching mammy7! Hang in there!
Hello Aaron, this was so informative and easy to understand language! Thanks so much!
MY primary care doctor sent me to a neurologist and after some bad experiences with terrible guys I found a neurologist who really cares.
She did a lot of neurological exams, including my eyes (chess board test) , ordered MRIs of brain and spinal cord and after seeing several white spots on MS relating locations she sent me to a neurological clinic for the lumbar puncture. THen the diagnosis was clear. But it took me more than 4 years to get it.
Have a wonderful day! Britta
Howdy Britta!! Thank you for sharing your experience here with us. The checkerboard test is called a Visual Evoked Potential (VEP). I hope that you are well and staying warm! Cheers!
Thanks for asking,Aaron, yes I am ok. I had a terrible week last week helping my 83 year old Mom move out her life long home to a senior apartment complex in the village my daughter is living in. It was hell, as you can imagine, mentally and physically exhausting. But we managed and now she is unpacking her 50 boxes and getting settled somehow. My son-in-law and my daughter are really taking good care of her. this calms my mind and worries.
I am going to visit her for her birthday midth of Mrach. Hope to hear from you soon, Britta
I have not heard you talk about Celiac as a possible diagnosis instead of MS. Do they show up in the MRI in the same pattern?
thank you for your videos.
I’m going for a second opinion with a new doc soon , can you suggest questions to ask
A new doctor ?
Also , if you had optic neuritis in the past , is that only limited to having MS? Or can it be the likes of Lupus or one of the other illnesses you mentioned in this video ? Thank u
Here you go: th-cam.com/video/-P5om5oOLJI/w-d-xo.html
I am so glad that I listen to this video . My doctor was very thorough, when looking for MS. A complete health history was done. An MRI of my brain, one of my spine, and 22 vials of blood. The 22 vials of blood, drawn first to eliminate all the other possible suspects . The neurological assessment and such was then done . Then the MRI of my spine and the MRI of my brain . But after all of this I was then told that there was a need for a spinal tap to verify the suspected MS . But this was brought to me after I sat and looked at the MRI of my brain with her . In that conversation it was discussed with me what the massive amount of white fluff and the black hole that I was seeing meant. I was told that she had no doubt that MS was my diagnosis . And when I inquired about not having the spinal tap , personally feeling like it was unnecessary and for me too invasive . And then continuing to resist having it done . It was insisted on as a necessity to have a final diagnosis . Listening to this video I realize that I was right . After 15 years of the repeated on-again off-again symptoms . The array of neurological issues . The relapsing events that kept occurring over those years. And all that was found in those 1st 4 steps. I now know I should followed my gut instinct and maintain my reluctance to have the spinal tap .
I am in the UK, when I was diagnosed my DR did 2 MRIs and an LP. I had 2 lesions on MRI and a high cell count and oligoclonal bands on the LP so the neuro siad it was MS. He never checked for any other diagnosis though as far as I am aware.
TY for sharing your experience Sheila!
I’m so glad I didn’t need a lumbar puncture 😬 they sound unpleasant
Hi, do you think the Vitamin E has a role in MS therapy?
Had an MRI and the results said significant progression of lesions but the lesions could be due to my age(61), depression, trauma or dementia in addition to MS. I was referred to a neurologist but no openings until May. I asked for an out of network referral and they will not give it to me until after I have a Lumbar puncture next week. I had Epstein Barr in my 40’s and have not been the same since. My hands and shoulders fall asleep and wake me up every night. Walking hurts. I now am having cog issues. It is so frustrating.
My story: In 2016. i had an ON attract, ophthalmologist asked for MRI. It showed leasions on brain and spine. But at the moment I didn't know a thing about MS. Saw neurologist, once she saw MRI result, she said, oh it MS, we will do a little bit of vitamins, all good. I was terrified. They did LP, oligoclonal bands were found. In meantime I switched neurologist, he gave me some comforting words, we talked about CIS. I felt a bit better, but then, new attack, just 6 months later, I could barely walk. I had an episode of trigeminal neuralgia, that, thank god, only lasted for few weeks. Then another one, and once again ON attack that made me almost completely blind. After that ON attack they (neurologists that monitor me) started thinking it may not be an MS, but rather an NMO. 9 months later, new ON attack. Finally just few weeks ago I had new attack, but this time, my right hand was all but normal, I couldn't control it properly. I lost feeling sensations on right side of my head (not just face) and I had trouble breathing (MS hug first time activated) plus I had trouble swallowing food. Also, I had trouble walking, I walked like drunk. After Pulse therapy, lets say I am coming back to normal. I guess. And I still don't know what I actually have, I am waiting for AQP4 results. So, there you go, my diag MS/NMO story.
TY for sharing with us Sasa!
I've had 6 or 7 MRIs over the years (severe chronic migraines). Now that we can get copies of our tests, I got a copy of my MRI from a month ago, and then 2 MRIs from 5 and 6 years ago. 5 years ago they brushed off my symptoms and said they were just because I had so many migraines
My latest MRI shows a large increase in the number of white matter hyperintensiries. I finally got a tentative diagnosis of MS 2 days ago.
I'm so frustrated! I've been asking about blurry vision, asymmetric hearing loss and paresthesias for 2 years and trying to get answers to my other health issues for 10 years!
I know this video is old but I woke up one day with a serve neck pain couldn’t move at all ! It’s been a week still pain isn’t gone I’m having headaches and feeling tingling and even face numbness
Aaron, I’m in going trough a relapse. My main symptom was optic neuritis, but now it has affected my both eyes. What could it be?
One of the criteria they used to diagnose me other than just the mri way that I walk and that I was falling frequently and unable to Explain those falls as being clumsy or a wet floor
TY for sharing Debbie
Thank you for this channel. My wife has a father with MS, how probable is it that my wife develop MS or my children?
Hi my name is KATHY..IVE BEEN TRYING FOR YEARS TO GET AN MS diagnosis…when I was a teenager I began with bladder issues.. my legs would change color with cold weather become spotty..I tripped over everything..at the age of 20 I could not urinate..wore maternity clothes to the er after not going for 24 hours.. they made incisions in the urethra.. now I can not stop wetting myself said I needed an interstem..I have several thyroid type issues..my fatigue is so bad I sleep all night plus 3-4 hours everyday..I lost my eyesight in my left eye for thirty minutes.. it came back slowly like double vision.. my eye hurst constantly like behind my eyeball..diagnosed with dry eye, and mouth..I’ve been sickly most of my life.. if confirmed with ms this would be my final answer to years of illnesses..
I have low vitamin d for years and I a folate an B1 deficiency. I was B6 and VitaminD deficient 3 years ago as well after I had my first bout of Trigeminal Neuralgia. Then my TN became bilateral, then Atypical. My new neurologist thinks I was falsely diagnosed with Lyme disease because the diagnosis was from an LLMD who used Igenex to test me. Right now I have to have a leg biopsy for CNS disorder. I have one 3mm lesion on my left frontal lobe but was told the lesion was not typical for MS 3 years ago. Predominantly my left side is weaker and when I saw the neurologist 3 weeks ago the cold instrument that was put on my foot I could not feel. I feel very alone in this and don't know what to believe since the neurologist is doubting my Lyme diagnosis. I get numbness and tingling in my ledt fingertips and left leg and foot. I also get it in my face as well pricking sensations. My aunt has Multiple sclerosis, I just want answers.
What do you look for in the LP? Is it one thing or multiple things?
I one point a neurologist did a needle test on me. I couldn't feel any pain on my left side but she never diagnosed this. Could it be a symptom of MS?
Is it possible to have a diagnosis of MS with only one visible lesion? Is this a case where a lumbar puncture may help solidify the diagnosis?
My Neurologist made the DX. Said that the positive Lyme test is not important.
Dr. Boster you didn’t mention Evoked potential studies do you use this in your practice for dx? I’m having this done tomorrow in the process of being tested for MS so far MRI of brain, cervical spine are negative lumbar spine shows a lot of degenerative changes and bulging discs they didn’t do mri of thoracic spine so you think I should request that to be done? Spinal tap being done after Evoked potential if they’re unable to diagnose from that. I have classic MS sx I’m a nurse but was hoping to avoid the spinal tap 🤣 thanks for your videos, so informative 😀
I went to the dr yesterday thinking it’s a pinched nerve in my neck, but he mentioned MS and wants me to get an MRI. It’s my 4th “episode” of feeling vibrations, vertigo, shaky left hand, brain fog, and off balance. I’m quite scared honestly. :(
What if you can't have an mri and all other tests are normal (lumbar puncture, CT scan, bloodwork). Can you still have ms with all those tests being normal?
Do you think that Ms can be brought on by having Lyme disease? I had it 7 years ago and now my dr suspects that I might have Ms. I am finding a bunch of interesting theories on Google.
**"Dr. Erin. Super , SUPERB video, this specifically calls to my dignosis,and my life, as i am the sjrogens + m.s. patient. .."***
Im always hopeful to give back one disease. At minimum...
Your video at least gives hope, sadly I wasent saved from not having to do a spinal tap.but nice to hear others are.
~Divine🐥💞🐤
P.s.~ I'd like to share ur link with another m.s. channel if that's ok. I think they need some proper guidance (.I wanted to appoligize I should just ignore anytime there's a negative thumbs vs bringing attention to it. All though my intentions were true and honorable. I will choose this path in the future.)
Howdy Divine! Share, share share!
@@AaronBosterMD thx u. ,but first morning groog, and Rheumatologist... this morning🙄 Then share share share.
~divine 🐤
P.s. still waiting on some 🐤🐥🐤🐥🐤🐥in upcoming videos :*)
I have a known B12 deficiency. However, after a month and a half of supplementation, I still have no relief from symptoms. I also have had recent vision concerns including pain with eye movement in just left eye. Upon exam by my eye doctor, he found inflammation of my optic nerve. How often do individuals with MS also have B12 deficiency. Should I continue on current course of supplementation with B12 or further seek care related to continued symptoms?
Can a bad neck or something cause multiple repetitive glossopharyngeal, occipital and trigeminal neuralgias to occur at the same time? Large numb patches and then all over body pain like a walking talking bruise? I’m about at the end of my road. The constant steroids are helping until it tapers off then it can come right back or sometimes be gone for months.
Dr Boster, when doing your clinic diagnosis does it require you to be having an episode or can you tell when I'm feeling ok that I may still be sick I recently had a neurologist dismiss my concerns after scrolling over my MRI twice and reading the image report, he did not consider anything in context ( multiple episodes if intractable vomiting and dimming vision in one eye,) confusion and fatigue.He did a quick strokr test and tossed me out after I told him to not dare say "You're FINE"
The report noted a WMH in my right posterior frontal region. he did not associate it with any symptoms. I am still waiting for another neurologist to review it but I can't even get a call back. March was the next appointment. Also,Is treatment, while you're in remission ,time sensitive. I'm worried
What about several scattered punctiform WMH in the brain? I fail the heel-shin testing (jerky movements), lose balance with my eyes closed, have a tremor in my legs and a bit of knee buckling. I also have dysautonomia/POTS and lupus-like disease. They dont know whats wrong with me.