I'm so glad you asked Harlow what she thought about your wheelchair. She was hovering and wanted attention,. Sweet puppy. I'm not as big of a fan of pink like you are, but I think the pink and purple on your wheelchair looks AWESOME! I'm glad there are accessories that allow you to have some fun and color.
I don’t comment on videos I watch very often. I just don’t feel the need to at times because not many youtubers reply to the comments if you take the time to type a comment, so I guess that’s just why I don’t comment. But I have been subscribed for you for a few months... and I absolutely love your videos so much because it shows that your not fake, you don’t sugarcoat things, etc. I’m 16, but I have a shunt in my head because I had hydrocephalus as a baby, which caused me to have Cerebal Palsy. I don’t have it as bad as others, even though I’m 90% independent there are a few things I cannot do. I love to watch your videos because it gives me inspiration that I can do anything! Even though I do understand what it’s like to have a disability and have your “off” days!! I get headaches when the weather changes to fast, I get super nauseous often, etc I still struggle sometimes and want to give up but your one of the vloggers that give me motivation ❤️❤️
OfficiallySavannah I had Hydrocephalus as a baby, never got a shunt so doctors still say I have Hydrocephalus! Last time I got super bad headache doctor put a 💉 into my spine to drain out fluid while I was awake!
I just got home from a trip to Tampa. I missed this video because it was posted on my birthday and I was out all day on the beach. Just wanted to let you know, you are my inspiration. I have had terrible stomach aches for about a year now. I’ve lost 15-20 pounds from appetite loss and finally told my doctor about it. I never would’ve done it if u hadn’t watched your videos. Thank you ❤️
My wheelchair colors are black and red. My chair is black, and my wheels are SPOX, with red spokes. My push rims are getting scratched and nicked so I was happy you shared links to the rubber push rim covers and I ordered red covers and a red watch band for my push tracker. I haven't received the push rim covers yet, but did receive the watch band and it was super easy to install. Thanks for all the links. '
I’m new to your channel, it breaks my heart to see you hurting, but I also see you’re a fight, I have a transgender daughter whom is in a wheelchair and you are definitely an inspiration. I just want to let you know that you are greatly appreciated and loved by many people, myself included. I will be following you and I will tell my daughter about your channel. May God continue to bless you and your family.
Wow I did not know these accessories existed! That would save me spending lots on fancy wheels. I'm in Europe too so it's good to know I don't necessarily have to order from America which could cost lots in postage and taxes!
How do u go about getting one? Did ur Insurance cover it? I have Medicare and I think they only cover standard sizes and i need it custom to fit me and my home
Your wheelchair looks so very cool. Gives me inspiration to decorate my walker. So glad you hopefully got your Smartdrive fixed & the new bracket works a lot better. I really hope the 100k live show is earlier than later, then I will be able to see it. If it’s 2pm there, it’s 3.30am here. I’m usually still awake by then & finally fall asleep between 4-6am.
I think it's a great idea to personalize our medical tools if it will make us happy! We have not yet determined the start time but the stream will be saved so you may rewatch it (:
Chronically Jaquie I agree, it takes away the “metal” look. I also think it changes the way other people look at them & hopefully changes their perception of who is using those tools. That’s good about the live stream.
I LOVE your videos sooooo much. I have a rare disease called Friedreichs Ataxia and it isn't easy. But you inspired me to live...And start my own TH-cam channel. Thank you Jaquie xoxo
Yea for the colour pink. It’s cool those spoke things are so easy to take off and put on, if you get bored with the colour you can swap or mix them up. Putting the grip thing on reminds me of washing my steering wheel cover for my car. Took me like 15 minutes to get it back on. Lol.
I love the wheelchair!!! This whole week has been a bad P.O.Ts week for me and I have passed out too many times😭 but your videos cheer me up and remind me that all of us P.O.Tsies fight together!
I'm a 33 y/o man and my daughters picked me this lovely hot sparkle pink color that I'm now rocking and I really like it lol went with green anodizing on the casters and now looking for pink tires lol also got the smart drive with this chair and love it!
Hey there, thank you so much for being there! I got connected because of your smart drive vlog, and also your service dog Harlow! You go girl, keep it going!
I ordered the exact same ones yep we had to sign for the package from Lithuania lol. They are awesome but get grey from grime quickly. So a quick wash helps
I wanted to let you know how much I’ve used your wheelchair videos. My mobility specialist and I even referred to your videos when making my own choices. Unfortunately the VA won’t pay for the smartdrive, but they are getting the twion wheels like you originally had. Thank you fellow zebra, hope you’re doing better.
I have chronic pain and have not been able to walk for 4 years. I went to my pain management dr. There finally going to help me. I’m going to get a stimulator and a pain pump. I’m hoping it will let me walk again. My husband pushes me in a manual wheelchair which doesn’t get me much life because I have to depend on him to take me places. I think a power wheelchair would be better so I can go where I want when we go shopping. But there quite expensive. It would be good if my wheelchair could expand to reach the counter where I could help cook. I miss doing things like that. But it’s not easy when you constantly hurt. Just hoping in the next few months I get some quality of life back.
Simply love your wheelchair. I was pleased to find out your Smartdrive and tracker is available in my country, Australia. You will like this, the custom built wheelchair which is the T5 Ultra, is called The Jaq, downunder. I don't think that is a coincidence. I have currently got an offer enquiry in for pricing. Unlike the States, it will probably be all on us for the cost, even though we have private health and to date, I have never claimed any assistance for mobility devices. Thank you so much for sharing the information on your chair. Without you, I wouldn't have known it existed.
Your wheelchair looks so cute! As someone considering a wheelchair for the future, I was wondering why you chose smartdrive on a manual chair instead of a power chair with a joystick? Was it an insurance problem? Sending love and prayers your way while you recover after your G Tube nightmare!
I wanted to remain as active as possible, so I wanted manual. But could not propel well, so power assist was a great compromise. We also had no vehicle to accommodate the electric WC plus I feel more flexible with travel with a manual. Personal reasons, and everyone is different (:
Chronically Jaquie Oh, that makes a lot of sense! I guess I forget to remind myself that everyone is different. My team and I talked about electric chairs because my shoulders so frequently sublux and dislocate but they're expensive. So I guess I got a little caught up in "Well if other people can, why can't i..." but we have to listen to our bodies! I do think that was a good compromise, thanks so much for the very helpful response! I'm so happy your chair works for you! Another tool in the tool belt :D
That is what I want because I am too weak to get a power chair out of my car and I cannot accommodate a lift on my Prius. I hope to get one like yours. I have the service dog organization coming for my home check today and I am overdoing it and know I will regret it tomorrow!
If you have trouble with nausea you might consider trying candied ginger. I know it works for motion sickness, and my wife has frequent nausea due to medications she is on and sometimes her anti-nausea meds don't work but ginger does.
I don’t know if u can do it with the wheels you have, but have you looked at “natural fit”/“natural fit Lt” rims? These are ergonomic push rims-they are brilliant for us that fatigue, but also most importantly, those of us that have hand issues-it makes it easier to push, cause the rims fit the hand better-more motion from each push! Highly recommended!!!!
I have just found your videos and I found this one enlightening because I have Cerebral palsy and my left hand has a hard time gripping the wheel so I ordered rim covers from a different place though so I am just letting you know that this video was informative to me because of that really but I am now a subscriber to your channel And I find these videos informative and entertaining as well
Hey, the same thing was happening to my smart drive. Tighten the screw but also check the rubber ring on the inside of the mount. Replacing that fixed the problem :)
Jacquie i love your Wheelchair I wish my Wheelchair was pink , but know make my better & add helpful tools to make more helpful & pink Thank you for Teaching us & i like all show us Goodnight Love Prayers God Bless 💪👍🌸💕🐾🙏🙏🙏
Hi Jacquie, we really appreciate the honesty that your videos provide but if you don't feel well enough to film, please don't push yourself too much or overdo it! By the way, I have my rental chair this weekend (TiLite w/ Smart Drive) and had my home assessment on Friday! My chair will be ocean blue metallic with blue spokes!
Just got watch this on way to Jehovah kindom hall to Atlanta ga watching this can be live I miss this video yesterday I just saw it on my TH-cam hi to u hope you get feeling better soon keep moving forward hi juqie and jude and pup hardlow I will try to upload a video today
From a curious point of view, have you considered doing gastric drainage/venting via an NG tube and bag. It might help with the 'stomach acid build up/exit swiftly issue' until you get to the point where you are healed enough to the point where you could reconsider whether to redo the gastric button thing or not. Apparently this is something you could do yourself at home without medical intervention (potentially and theoretically!).
I think it is awesome that Hippo knows when u r having a extra rough day, so can't stand to be any distance from you. I often can tell how u r doing b4 u say anything based on how she is acting with u.
I love the new wheel some covers and group bar cover. They look sooo good and definitely will look awesome after you get the replacement string of lights for the other wheel. Btw that food looks so good. Your coming always makes me hungry which is a rare thing for me lol
![♿️WHEELCHAIR PUSH-RIM COVERS! ARE THEY WORTH IT?🤔 Gripoz [CC]](http://i.ytimg.com/vi/vy5rg46R4Ak/mqdefault.jpg)
I'm so glad you asked Harlow what she thought about your wheelchair. She was hovering and wanted attention,. Sweet puppy. I'm not as big of a fan of pink like you are, but I think the pink and purple on your wheelchair looks AWESOME! I'm glad there are accessories that allow you to have some fun and color.
Pink spokes !! Made the chair look so different ! Love it
I absolutely LOVE all of your wheelchair accessories!! ♡
FunsizedStyle That is a bright wheelchair she'll never get lost in the fog or crowd.
Cool wheelchair stuff I,m a wheelchair break-dancer
instablaster
Loving the personalization you've done to your wheelchair!
I don’t comment on videos I watch very often. I just don’t feel the need to at times because not many youtubers reply to the comments if you take the time to type a comment, so I guess that’s just why I don’t comment. But I have been subscribed for you for a few months... and I absolutely love your videos so much because it shows that your not fake, you don’t sugarcoat things, etc. I’m 16, but I have a shunt in my head because I had hydrocephalus as a baby, which caused me to have Cerebal Palsy. I don’t have it as bad as others, even though I’m 90% independent there are a few things I cannot do. I love to watch your videos because it gives me inspiration that I can do anything! Even though I do understand what it’s like to have a disability and have your “off” days!! I get headaches when the weather changes to fast, I get super nauseous often, etc I still struggle sometimes and want to give up but your one of the vloggers that give me motivation ❤️❤️
I'm so happy to have your support here! I also try to get back to comments but some days it is tricky. Keep being awesome!
I had hydrocephalus as a baby too. I actually still have a drain behind my left ear.
Chronically Jaquie ❤️❤️ I completely understand it is very hard at times!!
My shunt is behind my right ear.
OfficiallySavannah I had Hydrocephalus as a baby, never got a shunt so doctors still say I have Hydrocephalus! Last time I got super bad headache doctor put a 💉 into my spine to drain out fluid while I was awake!
I just got home from a trip to Tampa. I missed this video because it was posted on my birthday and I was out all day on the beach. Just wanted to let you know, you are my inspiration. I have had terrible stomach aches for about a year now. I’ve lost 15-20 pounds from appetite loss and finally told my doctor about it. I never would’ve done it if u hadn’t watched your videos. Thank you ❤️
I like that you leave your mistakes in. It makes you seem more human!! Hope you feel better.
My wheelchair colors are black and red. My chair is black, and my wheels are SPOX, with red spokes. My push rims are getting scratched and nicked so I was happy you shared links to the rubber push rim covers and I ordered red covers and a red watch band for my push tracker. I haven't received the push rim covers yet, but did receive the watch band and it was super easy to install. Thanks for all the links.
'
I’m new to your channel, it breaks my heart to see you hurting, but I also see you’re a fight, I have a transgender daughter whom is in a wheelchair and you are definitely an inspiration. I just want to let you know that you are greatly appreciated and loved by many people, myself included. I will be following you and I will tell my daughter about your channel. May God continue to bless you and your family.
You’re so strong! Love you and Harlow! { p.s You have AMAZING new accessories for your wheelchair! }
Wow I did not know these accessories existed! That would save me spending lots on fancy wheels. I'm in Europe too so it's good to know I don't necessarily have to order from America which could cost lots in postage and taxes!
I'm in a wheelchair also and I use straws from the dollar store instead of spoke skins. It's just a cheaper way to decorate.
Mcz Bows that's super smart!! Might use that
I am in love with ur new wheelchair gadgets Jaquie!! It really adds a pop to ur chair that shows ur personality ☺️
I'm starting the process to get a custom wheelchair and I am so excited! I know it'll take a while, but I know it will be well worth the wait! :)
I'll have to look into getting wheel covers as well!
Best of luck to you!
Thanks Jaquie!
That is so cool getting a custom wheelchair! Good luck Tori!
How do u go about getting one? Did ur Insurance cover it? I have Medicare and I think they only cover standard sizes and i need it custom to fit me and my home
Your wheelchair is looking pretty snazzy now I love it
Your wheelchair looks so very cool. Gives me inspiration to decorate my walker.
So glad you hopefully got your Smartdrive fixed & the new bracket works a lot better.
I really hope the 100k live show is earlier than later, then I will be able to see it. If it’s 2pm there, it’s 3.30am here. I’m usually still awake by then & finally fall asleep between 4-6am.
I think it's a great idea to personalize our medical tools if it will make us happy! We have not yet determined the start time but the stream will be saved so you may rewatch it (:
Chronically Jaquie I agree, it takes away the “metal” look. I also think it changes the way other people look at them & hopefully changes their perception of who is using those tools.
That’s good about the live stream.
My gosh, you were very productive even though you weren’t feeling well! Good job, Jacquie.
I LOVE your videos sooooo much. I have a rare disease called Friedreichs Ataxia and it isn't easy. But you inspired me to live...And start my own TH-cam channel. Thank you Jaquie xoxo
Yea for the colour pink. It’s cool those spoke things are so easy to take off and put on, if you get bored with the colour you can swap or mix them up. Putting the grip thing on reminds me of washing my steering wheel cover for my car. Took me like 15 minutes to get it back on. Lol.
Miss you Jaquie 💔
congrats on 100,000 subscribers!!! so happy that i can say i was here when you only had 1,000. love you!!
I love the wheelchair!!! This whole week has been a bad P.O.Ts week for me and I have passed out too many times😭 but your videos cheer me up and remind me that all of us P.O.Tsies fight together!
I'm a 33 y/o man and my daughters picked me this lovely hot sparkle pink color that I'm now rocking and I really like it lol went with green anodizing on the casters and now looking for pink tires lol also got the smart drive with this chair and love it!
Put blue led lights under mine from the battery operated Christmas lights at Walmart lol
She died in 2019
Thank you for your channel I am a new wheelchair user and I found lots of useful information.
I love that your dog is trying to sooth your rough spots!!
She died in 2019
Hey there, thank you so much for being there! I got connected because of your smart drive vlog, and also your service dog Harlow! You go girl, keep it going!
She sadly passed away in 2019. Miss her dearly.
Your chair looks amaizing. I am praying for you as always and hope you get to feeling better soom.
some lime green would look amazing with both the pink and purple, and black!
I ordered the exact same ones yep we had to sign for the package from Lithuania lol. They are awesome but get grey from grime quickly. So a quick wash helps
Hello from Lithuania 🇱🇹 your wheelchair looks amazing love you ❤️
Thanks for the links to the gadgets. You helped me find stuff I didn't know I wanted. :)
Jacque have you looked at flex rims. I love mine and it’s not only easier to push but less finger dislocations.
Your wheelchair looks cool, with the colour 👍🫶
Keep staying strong jaquie. Love your chair so much
Your wheelchair looks awesome. Once again congrats on 100k subscribers. Can't wait for your live stream.
I wanted to let you know how much I’ve used your wheelchair videos. My mobility specialist and I even referred to your videos when making my own choices. Unfortunately the VA won’t pay for the smartdrive, but they are getting the twion wheels like you originally had. Thank you fellow zebra, hope you’re doing better.
I have chronic pain and have not been able to walk for 4 years. I went to my pain management dr. There finally going to help me. I’m going to get a stimulator and a pain pump. I’m hoping it will let me walk again. My husband pushes me in a manual wheelchair which doesn’t get me much life because I have to depend on him to take me places.
I think a power wheelchair would be better so I can go where I want when we go shopping. But there quite expensive. It would be good if my wheelchair could expand to reach the counter where I could help cook. I miss doing things like that. But it’s not easy when you constantly hurt. Just hoping in the next few months I get some quality of life back.
I have a question, how does Harlow react when he sees that you're not feeling well such as vomiting?
You could see how much you picked up in this vlog. You are great keep up the amazing work if you can x
That chair stuff is so cute! I hope they can fix your SmartDrive!
Your chair looks so happy and colorful! 💖
Love how your chair worked out
Simply love your wheelchair. I was pleased to find out your Smartdrive and tracker is available in my country, Australia. You will like this, the custom built wheelchair which is the T5 Ultra, is called The Jaq, downunder. I don't think that is a coincidence. I have currently got an offer enquiry in for pricing. Unlike the States, it will probably be all on us for the cost, even though we have private health and to date, I have never claimed any assistance for mobility devices. Thank you so much for sharing the information on your chair. Without you, I wouldn't have known it existed.
Your wheelchair looks so cute! As someone considering a wheelchair for the future, I was wondering why you chose smartdrive on a manual chair instead of a power chair with a joystick? Was it an insurance problem? Sending love and prayers your way while you recover after your G Tube nightmare!
I wanted to remain as active as possible, so I wanted manual. But could not propel well, so power assist was a great compromise. We also had no vehicle to accommodate the electric WC plus I feel more flexible with travel with a manual. Personal reasons, and everyone is different (:
Chronically Jaquie Oh, that makes a lot of sense! I guess I forget to remind myself that everyone is different. My team and I talked about electric chairs because my shoulders so frequently sublux and dislocate but they're expensive. So I guess I got a little caught up in "Well if other people can, why can't i..." but we have to listen to our bodies! I do think that was a good compromise, thanks so much for the very helpful response! I'm so happy your chair works for you! Another tool in the tool belt :D
That is what I want because I am too weak to get a power chair out of my car and I cannot accommodate a lift on my Prius. I hope to get one like yours. I have the service dog organization coming for my home check today and I am overdoing it and know I will regret it tomorrow!
I am considering wheelchair too, so I am glad you asked this. Thank you!
Yvonne Kass good luck with your home check!!
Oohhh by the way love the pink and purple on the wheel chair !!!! 🍇
You look good on this video hun and your pup is very sweet..
I've missed you Jackie!!!!I have been in the Hospital for 3 weeks, oddly enough i started to have medical issues.
Love the wheelchair gadgets, the wheels look cool. Great job on the meals for Judd they certainly look tasty
Jaquie, you are such a strong person. I found your channel a few weeks ago and now I watch your videos every day. Keep up the good work!
The wheel chair covers look great! So much more color (And my favorite colors, too)
Thank you! These are my favorite colors too :D
If you have trouble with nausea you might consider trying candied ginger. I know it works for motion sickness, and my wife has frequent nausea due to medications she is on and sometimes her anti-nausea meds don't work but ginger does.
I don’t know if u can do it with the wheels you have, but have you looked at “natural fit”/“natural fit Lt” rims? These are ergonomic push rims-they are brilliant for us that fatigue, but also most importantly, those of us that have hand issues-it makes it easier to push, cause the rims fit the hand better-more motion from each push! Highly recommended!!!!
is that the neon pink colour from tilite? I am considering getting it if that's it.
Hippo is soooo cute when she's near u and her face is too adorably cute
I have just found your videos and I found this one enlightening because I have Cerebral palsy and my left hand has a hard time gripping the wheel so I ordered rim covers from a different place though so I am just letting you know that this video was informative to me because of that really but I am now a subscriber to your channel And I find these videos informative and entertaining as well
I really like how your wheelchair looks now! 😁
Beautiful wheelchair!!! 😍 Of course you need a decked out wheelchair!
Omg Jaquie you're so inspirational! Keep moving forward! 🤛👍💪
Rip jaquie sleep tight warrior
angels _up_in_heavenxx I’m literally crying rn I miss her videos and her 😢🥺
You're a trooper! I hope your wheelchair works well now 😄
The live stream is one of the best bday presents ever
I dream of having a wheelchair like yours 😍😍it was great
She died in 2019
With Harlow standing behind...Harlow looks about the way you describe the way you feel! Poor babies!
Hey, the same thing was happening to my smart drive. Tighten the screw but also check the rubber ring on the inside of the mount. Replacing that fixed the problem :)
Jacquie i love your Wheelchair I wish my Wheelchair was pink , but know make my better & add helpful tools to make more helpful & pink Thank you for Teaching us & i like all show us Goodnight Love Prayers God Bless 💪👍🌸💕🐾🙏🙏🙏
It's so cool right?! I wish mine was too!
I’m so sorry that you had such a rough Friday xxxxx
Hi Jacquie, we really appreciate the honesty that your videos provide but if you don't feel well enough to film, please don't push yourself too much or overdo it! By the way, I have my rental chair this weekend (TiLite w/ Smart Drive) and had my home assessment on Friday! My chair will be ocean blue metallic with blue spokes!
What size are your wheels not sure what size to get my pushrim covers ?
Look like 24 inch wheels
I LOVE your wheel chair! Omg I’m jelly!!!!!
Just got watch this on way to Jehovah kindom hall to Atlanta ga watching this can be live I miss this video yesterday I just saw it on my TH-cam hi to u hope you get feeling better soon keep moving forward hi juqie and jude and pup hardlow I will try to upload a video today
Glad I saw this instead of spray painting.
Did you hand paint the frame in your wheelchair or was it already pink and purple?
She can’t answer she died ☹️
the wheelchair looks really cool!
Thank you! :D
Hi am thinking of getting a new chair. Can you tell me do your arm rests flip up or just swing out?
She can't answer you anymore hun.
Jaquie is no longer with us.
Fantasy Girl Studio sooooo sorry xxx
@@tracymaddocks80 She died back in Apirl 2019
Wheelchair looks awesome
Never heard of the honey thing. I’ll have to try it. Thanks!
I love Teal and purple together or Teal and Pink!
pink is the best color!!
I love you and your dog you are the best TH-cam I really want to meet you
Ever thought putting a camera on Harlow. Puppy cam 🐶📹🐶
From a curious point of view, have you considered doing gastric drainage/venting via an NG tube and bag. It might help with the 'stomach acid build up/exit swiftly issue' until you get to the point where you are healed enough to the point where you could reconsider whether to redo the gastric button thing or not. Apparently this is something you could do yourself at home without medical intervention (potentially and theoretically!).
Can I ask do you have a link for The spoke guards? I know you said Amazon but wondering Is it a specific company
Harlow is so cute!
🐶🐶🐶
What is your friend channel who’s traveled with you before?
What size band do I need with the Smart Drive bracelet? Your amazon listing has a few and I don’t know which mm I need. Thank you!
She states the size in one of her other videos in the wheelchair playlist (I forget which one, but it's there) - it's 18mm.
I think it is awesome that Hippo knows when u r having a extra rough day, so can't stand to be any distance from you. I often can tell how u r doing b4 u say anything based on how she is acting with u.
The wheelchair shelf looks pretty handy. It looks like it would be a great place for my 9mm protector. I clicked the link but there's nothing there.
Pimp My Ride! LoL It looks FABULOUS!!!
I was wondering what the name of the wheelchair shelf was called and where you purchased it from, I've been looking online but unfortunately no luck.
Hi Jacque, can you let me know what make is your wheelchair? It looks cool!
Its a Quickie (either a quickie 2 or 7) and it's made by Sunrise Medical
It's a TiLite ZRA
Love your videos!
I love the wheelchair accessories I am buying everyone of them
Are you still using the dehydrated raw for Harlow? Do you like it? ☺️
Do those grips help? I kinda want to get some for myself
Thank you for inspiring me everyday. Could you tell me if you got your smartdrive with the wheelchair or buy it separately?
Insurance covered the SmartDrive, but we needed justification. My ATP evaluated me and saw I could not self propel without help
I love the new wheel some covers and group bar cover. They look sooo good and definitely will look awesome after you get the replacement string of lights for the other wheel. Btw that food looks so good. Your coming always makes me hungry which is a rare thing for me lol
Hey jaquie what do u use to edit and upload your viedos?
Hope you feel better soon
What do u us your wheelchair for
I'M SO EXCITED FOR YOUR LIVESTREAMMMMM AHHHH 😁😍😁🤓