♿ New Wheelchair Gadgets & SmartDrive Repair! 🔧 (3/23/18)

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  • เผยแพร่เมื่อ 7 ก.พ. 2025
  • LINKS:
    Spokes Skins - www.amazon.com...
    Push Rim Covers - rehadesign.com/...
    Wheel Lights - www.amazon.com...
    Wheelchair Shelf - www.advantageb...
    Pink Band - www.amazon.com...
    Wheelchair Leash - boldleaddesign...
    Wheelchair Gloves - www.amazon.com...
    NEW TO CHRONICALLY JAQUIE? START HERE!
    All About My Chronic Illnesses - • Video
    All About Harlow - • All About Harlow! 🐶
    All About My Port - • All About My Port! ♌
    All About My Infusions - • All About My Infusions! 💦
    Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
    --- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
    “New Here” Playlist - • New to Chronically Jaq...
    YESTERDAY’S VLOG - • AFOs: Final Adjustment...
    MY PATREON PAGE - / chronicallyjaquie
    LIKE WHAT YOU SEE?
    VogMask - www.vogmask.com/
    --- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs. Learn more in my “All About My Chronic Illnesses” video!
    Infusion/Feeding Tube Backpack (Use the code “Chronically Jaquie” for 10% off. I had mine professionally tailored by a seamstress to accommodate my feeding tube.) - vibedration.com/
    For more info on raw diets visit Janiece’s Channel - / @therawlife1
    Primary Camera (Canon G7 X Mark II) - shop.usa.canon...
    Secondary Camera (Canon SX620) - shop.usa.canon...
    My Editing Software (Filmora) - filmora.wonder...
    NEED MORE CHRONIC ILLNESS OR SERVICE DOG INFO?
    Chronic Illness Support Playlist - • Packing For the Hospit...
    Service Dog Support Playlist - • Service Dog Support
    Training Tutorial Playlist - • Training Tutorials
    Feeding Tube Playlist - • Feeding Tube/Gastropar...
    Custom Wheelchair Playlist - • Custom Wheelchair Play...
    Pain Management Playlist - • New Adjustable Bed for...
    Other Helpful Playlists - / @chronicallyjaquie
    CONTRIBUTE CLOSED CAPTIONING/TRANSLATIONS!
    Help me make my videos more accessible by contributing closed captioning or translations! www.youtube.com...
    FOLLOW US!
    My Instagram - / chronically_jaquie
    Harlow's Instagram - / helper_dog_harlow
    My Patron Executive Producers: Karen Ratcliff, Elizabeth Smith & Phillip Casey!

ความคิดเห็น • 253

  • @catherinel2288
    @catherinel2288 6 ปีที่แล้ว +2

    I'm so glad you asked Harlow what she thought about your wheelchair. She was hovering and wanted attention,. Sweet puppy. I'm not as big of a fan of pink like you are, but I think the pink and purple on your wheelchair looks AWESOME! I'm glad there are accessories that allow you to have some fun and color.

  • @izzyelias1063
    @izzyelias1063 6 ปีที่แล้ว

    I just got home from a trip to Tampa. I missed this video because it was posted on my birthday and I was out all day on the beach. Just wanted to let you know, you are my inspiration. I have had terrible stomach aches for about a year now. I’ve lost 15-20 pounds from appetite loss and finally told my doctor about it. I never would’ve done it if u hadn’t watched your videos. Thank you ❤️

  • @emma_in_mn
    @emma_in_mn 6 ปีที่แล้ว +39

    Pink spokes !! Made the chair look so different ! Love it

  • @FunsizedStyle
    @FunsizedStyle 6 ปีที่แล้ว +72

    I absolutely LOVE all of your wheelchair accessories!! ♡

    • @gordenwood7853
      @gordenwood7853 6 ปีที่แล้ว +3

      FunsizedStyle That is a bright wheelchair she'll never get lost in the fog or crowd.

    • @williamodonovan5490
      @williamodonovan5490 6 ปีที่แล้ว

      Cool wheelchair stuff I,m a wheelchair break-dancer

    • @marlonwatson3588
      @marlonwatson3588 3 ปีที่แล้ว

      instablaster

  • @rayofsunshine091
    @rayofsunshine091 6 ปีที่แล้ว +16

    Loving the personalization you've done to your wheelchair!

  • @savannahmarano4552
    @savannahmarano4552 6 ปีที่แล้ว +84

    I don’t comment on videos I watch very often. I just don’t feel the need to at times because not many youtubers reply to the comments if you take the time to type a comment, so I guess that’s just why I don’t comment. But I have been subscribed for you for a few months... and I absolutely love your videos so much because it shows that your not fake, you don’t sugarcoat things, etc. I’m 16, but I have a shunt in my head because I had hydrocephalus as a baby, which caused me to have Cerebal Palsy. I don’t have it as bad as others, even though I’m 90% independent there are a few things I cannot do. I love to watch your videos because it gives me inspiration that I can do anything! Even though I do understand what it’s like to have a disability and have your “off” days!! I get headaches when the weather changes to fast, I get super nauseous often, etc I still struggle sometimes and want to give up but your one of the vloggers that give me motivation ❤️❤️

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว +15

      I'm so happy to have your support here! I also try to get back to comments but some days it is tricky. Keep being awesome!

    • @VulcanOnWheels
      @VulcanOnWheels 6 ปีที่แล้ว +3

      I had hydrocephalus as a baby too. I actually still have a drain behind my left ear.

    • @savannahmarano4552
      @savannahmarano4552 6 ปีที่แล้ว +3

      Chronically Jaquie ❤️❤️ I completely understand it is very hard at times!!

    • @Bananas904
      @Bananas904 6 ปีที่แล้ว +3

      My shunt is behind my right ear.

    • @fridab1952
      @fridab1952 6 ปีที่แล้ว +3

      OfficiallySavannah I had Hydrocephalus as a baby, never got a shunt so doctors still say I have Hydrocephalus! Last time I got super bad headache doctor put a 💉 into my spine to drain out fluid while I was awake!

  • @bethanypascoe8182
    @bethanypascoe8182 6 ปีที่แล้ว +2

    I like that you leave your mistakes in. It makes you seem more human!! Hope you feel better.

  • @yvetteharvey2474
    @yvetteharvey2474 5 ปีที่แล้ว +3

    I’m new to your channel, it breaks my heart to see you hurting, but I also see you’re a fight, I have a transgender daughter whom is in a wheelchair and you are definitely an inspiration. I just want to let you know that you are greatly appreciated and loved by many people, myself included. I will be following you and I will tell my daughter about your channel. May God continue to bless you and your family.

  • @wheeliegirl1630
    @wheeliegirl1630 6 ปีที่แล้ว

    My wheelchair colors are black and red. My chair is black, and my wheels are SPOX, with red spokes. My push rims are getting scratched and nicked so I was happy you shared links to the rubber push rim covers and I ordered red covers and a red watch band for my push tracker. I haven't received the push rim covers yet, but did receive the watch band and it was super easy to install. Thanks for all the links.
    '

  • @berglettemom6045
    @berglettemom6045 6 ปีที่แล้ว

    My gosh, you were very productive even though you weren’t feeling well! Good job, Jacquie.

  • @allie4680
    @allie4680 6 ปีที่แล้ว

    I am in love with ur new wheelchair gadgets Jaquie!! It really adds a pop to ur chair that shows ur personality ☺️

  • @LilMissEmo24
    @LilMissEmo24 6 ปีที่แล้ว +8

    Your wheelchair is looking pretty snazzy now I love it

  • @deesmith4549
    @deesmith4549 6 ปีที่แล้ว

    I LOVE your videos sooooo much. I have a rare disease called Friedreichs Ataxia and it isn't easy. But you inspired me to live...And start my own TH-cam channel. Thank you Jaquie xoxo

  • @Todd_G_FPV
    @Todd_G_FPV 4 ปีที่แล้ว

    I'm a 33 y/o man and my daughters picked me this lovely hot sparkle pink color that I'm now rocking and I really like it lol went with green anodizing on the casters and now looking for pink tires lol also got the smart drive with this chair and love it!

    • @Todd_G_FPV
      @Todd_G_FPV 4 ปีที่แล้ว

      Put blue led lights under mine from the battery operated Christmas lights at Walmart lol

    • @Thatclimbingirl
      @Thatclimbingirl 2 ปีที่แล้ว

      She died in 2019

  • @p0pRouge
    @p0pRouge 6 ปีที่แล้ว

    I wanted to let you know how much I’ve used your wheelchair videos. My mobility specialist and I even referred to your videos when making my own choices. Unfortunately the VA won’t pay for the smartdrive, but they are getting the twion wheels like you originally had. Thank you fellow zebra, hope you’re doing better.

  • @TORITHEGUMMYBEAR
    @TORITHEGUMMYBEAR 6 ปีที่แล้ว +8

    I'm starting the process to get a custom wheelchair and I am so excited! I know it'll take a while, but I know it will be well worth the wait! :)

    • @TORITHEGUMMYBEAR
      @TORITHEGUMMYBEAR 6 ปีที่แล้ว

      I'll have to look into getting wheel covers as well!

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว +1

      Best of luck to you!

    • @TORITHEGUMMYBEAR
      @TORITHEGUMMYBEAR 6 ปีที่แล้ว +2

      Thanks Jaquie!

    • @ZoshaFaithVlogs
      @ZoshaFaithVlogs 6 ปีที่แล้ว +1

      That is so cool getting a custom wheelchair! Good luck Tori!

    • @sabrinanicolesanez
      @sabrinanicolesanez 6 ปีที่แล้ว

      How do u go about getting one? Did ur Insurance cover it? I have Medicare and I think they only cover standard sizes and i need it custom to fit me and my home

  • @behappy1266
    @behappy1266 6 ปีที่แล้ว +1

    You’re so strong! Love you and Harlow! { p.s You have AMAZING new accessories for your wheelchair! }

  • @Angie-in1tt
    @Angie-in1tt 6 ปีที่แล้ว +9

    Your wheelchair looks so very cool. Gives me inspiration to decorate my walker.
    So glad you hopefully got your Smartdrive fixed & the new bracket works a lot better.
    I really hope the 100k live show is earlier than later, then I will be able to see it. If it’s 2pm there, it’s 3.30am here. I’m usually still awake by then & finally fall asleep between 4-6am.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว +2

      I think it's a great idea to personalize our medical tools if it will make us happy! We have not yet determined the start time but the stream will be saved so you may rewatch it (:

    • @Angie-in1tt
      @Angie-in1tt 6 ปีที่แล้ว

      Chronically Jaquie I agree, it takes away the “metal” look. I also think it changes the way other people look at them & hopefully changes their perception of who is using those tools.
      That’s good about the live stream.

  • @harlantisms
    @harlantisms 2 ปีที่แล้ว +3

    Miss you Jaquie 💔

  • @pinkmagicali
    @pinkmagicali 5 ปีที่แล้ว

    Yea for the colour pink. It’s cool those spoke things are so easy to take off and put on, if you get bored with the colour you can swap or mix them up. Putting the grip thing on reminds me of washing my steering wheel cover for my car. Took me like 15 minutes to get it back on. Lol.

  • @mczbows5783
    @mczbows5783 6 ปีที่แล้ว +2

    I'm in a wheelchair also and I use straws from the dollar store instead of spoke skins. It's just a cheaper way to decorate.

    • @ameliabediliaa
      @ameliabediliaa 5 ปีที่แล้ว +1

      Mcz Bows that's super smart!! Might use that

  • @lexieb2446
    @lexieb2446 6 ปีที่แล้ว +5

    congrats on 100,000 subscribers!!! so happy that i can say i was here when you only had 1,000. love you!!

  • @jessthehorsehorse6619
    @jessthehorsehorse6619 6 ปีที่แล้ว +1

    I love the wheelchair!!! This whole week has been a bad P.O.Ts week for me and I have passed out too many times😭 but your videos cheer me up and remind me that all of us P.O.Tsies fight together!

  • @ohdopeyme
    @ohdopeyme 4 ปีที่แล้ว

    I love that your dog is trying to sooth your rough spots!!

  • @user-xh1wb1my3r
    @user-xh1wb1my3r 6 ปีที่แล้ว

    Thank you for your channel I am a new wheelchair user and I found lots of useful information.

  • @joanmcgilton5148
    @joanmcgilton5148 5 ปีที่แล้ว +1

    I have chronic pain and have not been able to walk for 4 years. I went to my pain management dr. There finally going to help me. I’m going to get a stimulator and a pain pump. I’m hoping it will let me walk again. My husband pushes me in a manual wheelchair which doesn’t get me much life because I have to depend on him to take me places.
    I think a power wheelchair would be better so I can go where I want when we go shopping. But there quite expensive. It would be good if my wheelchair could expand to reach the counter where I could help cook. I miss doing things like that. But it’s not easy when you constantly hurt. Just hoping in the next few months I get some quality of life back.

  • @MrRichard1280
    @MrRichard1280 6 ปีที่แล้ว

    Thanks for the links to the gadgets. You helped me find stuff I didn't know I wanted. :)

  • @sorchaoreilly2633
    @sorchaoreilly2633 6 ปีที่แล้ว +1

    Wow I did not know these accessories existed! That would save me spending lots on fancy wheels. I'm in Europe too so it's good to know I don't necessarily have to order from America which could cost lots in postage and taxes!

  • @babyb0nes.x
    @babyb0nes.x 6 ปีที่แล้ว +1

    Keep staying strong jaquie. Love your chair so much

  • @crystalmcmurray9181
    @crystalmcmurray9181 6 ปีที่แล้ว +2

    Your chair looks amaizing. I am praying for you as always and hope you get to feeling better soom.

  • @MrJimludwig
    @MrJimludwig 3 ปีที่แล้ว

    Hey there, thank you so much for being there! I got connected because of your smart drive vlog, and also your service dog Harlow! You go girl, keep it going!

    • @Ishdue
      @Ishdue 2 ปีที่แล้ว +2

      She sadly passed away in 2019. Miss her dearly.

  • @taramason2
    @taramason2 6 ปีที่แล้ว

    Your wheelchair looks awesome. Once again congrats on 100k subscribers. Can't wait for your live stream.

  • @ugneneverdauskaite4581
    @ugneneverdauskaite4581 6 ปีที่แล้ว +3

    Hello from Lithuania 🇱🇹 your wheelchair looks amazing love you ❤️

  • @FiMilton
    @FiMilton 6 ปีที่แล้ว

    Your chair looks so happy and colorful! 💖

  • @jaclyn.jenkins
    @jaclyn.jenkins 6 ปีที่แล้ว

    some lime green would look amazing with both the pink and purple, and black!

  • @purpleangelwings6579
    @purpleangelwings6579 6 ปีที่แล้ว +10

    Oohhh by the way love the pink and purple on the wheel chair !!!! 🍇

  • @Zoawesomeshowjumper
    @Zoawesomeshowjumper 6 ปีที่แล้ว +3

    The live stream is one of the best bday presents ever

  • @Kez_abi
    @Kez_abi 6 ปีที่แล้ว +2

    You could see how much you picked up in this vlog. You are great keep up the amazing work if you can x

  • @jillyoro
    @jillyoro 6 ปีที่แล้ว +1

    Love how your chair worked out

  • @Lyn4817
    @Lyn4817 6 ปีที่แล้ว

    Simply love your wheelchair. I was pleased to find out your Smartdrive and tracker is available in my country, Australia. You will like this, the custom built wheelchair which is the T5 Ultra, is called The Jaq, downunder. I don't think that is a coincidence. I have currently got an offer enquiry in for pricing. Unlike the States, it will probably be all on us for the cost, even though we have private health and to date, I have never claimed any assistance for mobility devices. Thank you so much for sharing the information on your chair. Without you, I wouldn't have known it existed.

  • @angels_up_in_heavenxx8365
    @angels_up_in_heavenxx8365 5 ปีที่แล้ว +24

    Rip jaquie sleep tight warrior

    • @Youtube08T
      @Youtube08T 4 ปีที่แล้ว +1

      angels _up_in_heavenxx I’m literally crying rn I miss her videos and her 😢🥺

  • @CrystalMouse1
    @CrystalMouse1 6 ปีที่แล้ว +1

    I ordered the exact same ones yep we had to sign for the package from Lithuania lol. They are awesome but get grey from grime quickly. So a quick wash helps

  • @claireelizabethblake8911
    @claireelizabethblake8911 6 ปีที่แล้ว

    That chair stuff is so cute! I hope they can fix your SmartDrive!

  • @honeypotsandstripes6910
    @honeypotsandstripes6910 6 ปีที่แล้ว +14

    Your wheelchair looks so cute! As someone considering a wheelchair for the future, I was wondering why you chose smartdrive on a manual chair instead of a power chair with a joystick? Was it an insurance problem? Sending love and prayers your way while you recover after your G Tube nightmare!

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว +22

      I wanted to remain as active as possible, so I wanted manual. But could not propel well, so power assist was a great compromise. We also had no vehicle to accommodate the electric WC plus I feel more flexible with travel with a manual. Personal reasons, and everyone is different (:

    • @honeypotsandstripes6910
      @honeypotsandstripes6910 6 ปีที่แล้ว +7

      Chronically Jaquie Oh, that makes a lot of sense! I guess I forget to remind myself that everyone is different. My team and I talked about electric chairs because my shoulders so frequently sublux and dislocate but they're expensive. So I guess I got a little caught up in "Well if other people can, why can't i..." but we have to listen to our bodies! I do think that was a good compromise, thanks so much for the very helpful response! I'm so happy your chair works for you! Another tool in the tool belt :D

    • @TuggerAbbey
      @TuggerAbbey 6 ปีที่แล้ว +4

      That is what I want because I am too weak to get a power chair out of my car and I cannot accommodate a lift on my Prius. I hope to get one like yours. I have the service dog organization coming for my home check today and I am overdoing it and know I will regret it tomorrow!

    • @ZoshaFaithVlogs
      @ZoshaFaithVlogs 6 ปีที่แล้ว +2

      I am considering wheelchair too, so I am glad you asked this. Thank you!

    • @honeypotsandstripes6910
      @honeypotsandstripes6910 6 ปีที่แล้ว +1

      Yvonne Kass good luck with your home check!!

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 6 ปีที่แล้ว

    I’m so sorry that you had such a rough Friday xxxxx

  • @martsy9522
    @martsy9522 6 ปีที่แล้ว +1

    Omg Jaquie you're so inspirational! Keep moving forward! 🤛👍💪

  • @francesd2913
    @francesd2913 6 ปีที่แล้ว

    Love the wheelchair gadgets, the wheels look cool. Great job on the meals for Judd they certainly look tasty

  • @selenaroz9318
    @selenaroz9318 6 ปีที่แล้ว +15

    I have a question, how does Harlow react when he sees that you're not feeling well such as vomiting?

  • @lazydays7470
    @lazydays7470 6 ปีที่แล้ว

    If you have trouble with nausea you might consider trying candied ginger. I know it works for motion sickness, and my wife has frequent nausea due to medications she is on and sometimes her anti-nausea meds don't work but ginger does.

  • @dellacooper7060
    @dellacooper7060 2 ปีที่แล้ว

    Your wheelchair looks cool, with the colour 👍🫶

  • @hollygambin8073
    @hollygambin8073 6 ปีที่แล้ว +1

    Jaquie, you are such a strong person. I found your channel a few weeks ago and now I watch your videos every day. Keep up the good work!

  • @annazakrzewska3125
    @annazakrzewska3125 6 ปีที่แล้ว +1

    I really like how your wheelchair looks now! 😁

  • @kristyndecker2400
    @kristyndecker2400 6 ปีที่แล้ว

    I have just found your videos and I found this one enlightening because I have Cerebral palsy and my left hand has a hard time gripping the wheel so I ordered rim covers from a different place though so I am just letting you know that this video was informative to me because of that really but I am now a subscriber to your channel And I find these videos informative and entertaining as well

  • @karendixon2250
    @karendixon2250 6 ปีที่แล้ว

    The wheel chair covers look great! So much more color (And my favorite colors, too)

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว

      Thank you! These are my favorite colors too :D

  • @zenomr2720
    @zenomr2720 3 ปีที่แล้ว

    I dream of having a wheelchair like yours 😍😍it was great

  • @cleoh666
    @cleoh666 6 ปีที่แล้ว

    You're a trooper! I hope your wheelchair works well now 😄

  • @Mystery001001
    @Mystery001001 6 ปีที่แล้ว

    I've missed you Jackie!!!!I have been in the Hospital for 3 weeks, oddly enough i started to have medical issues.

  • @MSnikkydreamsbig
    @MSnikkydreamsbig 6 ปีที่แล้ว

    Hey, the same thing was happening to my smart drive. Tighten the screw but also check the rubber ring on the inside of the mount. Replacing that fixed the problem :)

  • @gordenwood7853
    @gordenwood7853 6 ปีที่แล้ว

    You look good on this video hun and your pup is very sweet..

  • @bethanyd2046
    @bethanyd2046 6 ปีที่แล้ว

    Hi Jacquie, we really appreciate the honesty that your videos provide but if you don't feel well enough to film, please don't push yourself too much or overdo it! By the way, I have my rental chair this weekend (TiLite w/ Smart Drive) and had my home assessment on Friday! My chair will be ocean blue metallic with blue spokes!

  • @amandawroten
    @amandawroten 6 ปีที่แล้ว

    Jacque have you looked at flex rims. I love mine and it’s not only easier to push but less finger dislocations.

  • @rmjames83
    @rmjames83 6 ปีที่แล้ว

    I don’t know if u can do it with the wheels you have, but have you looked at “natural fit”/“natural fit Lt” rims? These are ergonomic push rims-they are brilliant for us that fatigue, but also most importantly, those of us that have hand issues-it makes it easier to push, cause the rims fit the hand better-more motion from each push! Highly recommended!!!!

  • @monicauyeno7368
    @monicauyeno7368 6 ปีที่แล้ว +2

    the wheelchair looks really cool!

  • @wt0416
    @wt0416 6 ปีที่แล้ว +1

    Hippo is soooo cute when she's near u and her face is too adorably cute

  • @cutepumpkin4744
    @cutepumpkin4744 6 ปีที่แล้ว +2

    Wheelchair looks awesome

  • @kara3756
    @kara3756 6 ปีที่แล้ว

    I LOVE your wheel chair! Omg I’m jelly!!!!!

  • @rebekahbridges-tervydis5054
    @rebekahbridges-tervydis5054 6 ปีที่แล้ว

    With Harlow standing behind...Harlow looks about the way you describe the way you feel! Poor babies!

  • @sketch__5972
    @sketch__5972 6 ปีที่แล้ว

    Glad I saw this instead of spray painting.

  • @hannahmariellewellynllewel7128
    @hannahmariellewellynllewel7128 6 ปีที่แล้ว

    Just got watch this on way to Jehovah kindom hall to Atlanta ga watching this can be live I miss this video yesterday I just saw it on my TH-cam hi to u hope you get feeling better soon keep moving forward hi juqie and jude and pup hardlow I will try to upload a video today

  • @LittlewolfyM
    @LittlewolfyM 6 ปีที่แล้ว

    I love you and your dog you are the best TH-cam I really want to meet you

  • @helenea2231
    @helenea2231 6 ปีที่แล้ว +2

    Jacquie i love your Wheelchair I wish my Wheelchair was pink , but know make my better & add helpful tools to make more helpful & pink Thank you for Teaching us & i like all show us Goodnight Love Prayers God Bless 💪👍🌸💕🐾🙏🙏🙏

    • @ZoshaFaithVlogs
      @ZoshaFaithVlogs 6 ปีที่แล้ว

      It's so cool right?! I wish mine was too!

  • @bethl4634
    @bethl4634 6 ปีที่แล้ว

    I think it is awesome that Hippo knows when u r having a extra rough day, so can't stand to be any distance from you. I often can tell how u r doing b4 u say anything based on how she is acting with u.

  • @mamabear8565
    @mamabear8565 6 ปีที่แล้ว

    Pimp My Ride! LoL It looks FABULOUS!!!

  • @dancing.with.adagio
    @dancing.with.adagio 6 ปีที่แล้ว

    Beautiful wheelchair!!! 😍 Of course you need a decked out wheelchair!

  • @lexparishactingadventures5448
    @lexparishactingadventures5448 5 ปีที่แล้ว

    Love your videos!

  • @tracymaddocks80
    @tracymaddocks80 3 ปีที่แล้ว +1

    Hi am thinking of getting a new chair. Can you tell me do your arm rests flip up or just swing out?

    • @fantasygirlstudio4659
      @fantasygirlstudio4659 3 ปีที่แล้ว +1

      She can't answer you anymore hun.
      Jaquie is no longer with us.

    • @tracymaddocks80
      @tracymaddocks80 3 ปีที่แล้ว

      Fantasy Girl Studio sooooo sorry xxx

    • @fantasygirlstudio4659
      @fantasygirlstudio4659 3 ปีที่แล้ว

      @@tracymaddocks80 She died back in Apirl 2019

  • @mayrabojorquez5687
    @mayrabojorquez5687 6 ปีที่แล้ว +1

    What size are your wheels not sure what size to get my pushrim covers ?

    • @Cosmicsurfpro
      @Cosmicsurfpro 5 ปีที่แล้ว

      Look like 24 inch wheels

  • @CandyRox3000
    @CandyRox3000 6 ปีที่แล้ว +1

    pink is the best color!!

  • @TuggerAbbey
    @TuggerAbbey 6 ปีที่แล้ว +1

    I love Teal and purple together or Teal and Pink!

  • @Littlenavi
    @Littlenavi 4 ปีที่แล้ว +1

    is that the neon pink colour from tilite? I am considering getting it if that's it.

  • @tayansophie635
    @tayansophie635 6 ปีที่แล้ว +29

    Harlow is so cute!
    🐶🐶🐶

  • @PrismYuuzuki
    @PrismYuuzuki 3 ปีที่แล้ว +1

    Did you hand paint the frame in your wheelchair or was it already pink and purple?

  • @papayaflavoredair
    @papayaflavoredair 6 ปีที่แล้ว +2

    I'M SO EXCITED FOR YOUR LIVESTREAMMMMM AHHHH 😁😍😁🤓

  • @phoenixmoon5580
    @phoenixmoon5580 6 ปีที่แล้ว

    From a curious point of view, have you considered doing gastric drainage/venting via an NG tube and bag. It might help with the 'stomach acid build up/exit swiftly issue' until you get to the point where you are healed enough to the point where you could reconsider whether to redo the gastric button thing or not. Apparently this is something you could do yourself at home without medical intervention (potentially and theoretically!).

  • @tatyanakenney9897
    @tatyanakenney9897 5 ปีที่แล้ว

    I love the wheelchair accessories I am buying everyone of them

  • @darveystrozier4780
    @darveystrozier4780 3 ปีที่แล้ว

    Cool wheelchair

  • @kimharris328
    @kimharris328 6 ปีที่แล้ว

    Never heard of the honey thing. I’ll have to try it. Thanks!

  • @JasmineAlderton
    @JasmineAlderton 6 ปีที่แล้ว

    Oh yum those meals look awesome!

  • @Ozzie4Para
    @Ozzie4Para 5 ปีที่แล้ว

    The wheelchair shelf looks pretty handy. It looks like it would be a great place for my 9mm protector. I clicked the link but there's nothing there.

  • @sara_2535
    @sara_2535 6 ปีที่แล้ว +4

    I have a wheel chair cause my legs are parilized and it's only blue so thanks to you I can decerate my wheel chair yay I'm going to tell my mom to bye them

  • @amukimg
    @amukimg 6 ปีที่แล้ว

    Dear Jaquie, i don't usually comment on videos but i had a question. Do you have any tips of being an advocate for yourself? I recently when to the doctors and i feel like she was very dismissive of my pain. And im having a hard time telling the the difference between trusting the doctor vs knowing when to advocate for myself. Anyways any advice would be appreciated. Also side note i love your videos i look forward to watching them everyday.

    • @RebeccaBeckery
      @RebeccaBeckery 6 ปีที่แล้ว +1

      amukimg I went through this too, I changed doctors and felt so much better! (Which ended up being my old doctors daughter, which I found kind of funny). I know it’s difficult to find a good doctor that you’re comfortable with, and one that will not be so dismissive. I hope you find one soon! 🖤

    • @amukimg
      @amukimg 6 ปีที่แล้ว +1

      Thank you i was thinking of doing this. When i was talking to my doctor one of the first things she asked was if i was just trying to get attention or imaging my pain. It was definitely a red flag went off in my brain once she said that.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว +1

      "Not all doctors are created equally" is something I had to learn. I have a video called "How to Get Answers When You're Chronically Ill" and that will give you good info on advocacy and finding a good team! (:

  • @meganb4646
    @meganb4646 6 ปีที่แล้ว

    You mentioned the honey for cutting the acidic taste in your mouth. In that vein I would like to suggest citrus for the nausea. Don't eat it, but I've found that when my nausea is a problem sniffing/smelling citrus helps a lot to curb the dry heaving and general nausea. Really bright smelling citrus works for me (lime doesn't, though). Just cut it into quarters or eigths and leave the skin on. If you opt for lemon or lime, with some pressure roll the whole fruit on ther counter a few times to release the oils. You can do it to oranges and grapefruit, too.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว +1

      I actually smell alcohol swabs or lavender! I prefer the lavender obviously lol. We do not have citrus in the home because the texture bothers my SPD a lot... But smelling lavender helps me a tiny bit (:

  • @annabailey2206
    @annabailey2206 4 ปีที่แล้ว +1

    Miss her

  • @VulcanOnWheels
    @VulcanOnWheels 6 ปีที่แล้ว +2

    2:21 Sounds like a good thing to keep in mind.
    4:28 I've never heard of them.
    4:37 Nothing new there. :)

  • @EmilysLifeOnWheels
    @EmilysLifeOnWheels 6 ปีที่แล้ว +2

    This is my favorite thumbnail ever 💘💘💘💘💘

  • @MarcusBlau
    @MarcusBlau 6 ปีที่แล้ว

    nice video, thx for it

  • @dellacooper7060
    @dellacooper7060 2 ปีที่แล้ว

    Hope you feel better soon

  • @purpleangelwings6579
    @purpleangelwings6579 6 ปีที่แล้ว +10

    So sorry your having a rough day .... Just a random thought ... Have you ever considered getting your hair cut shoulder length ...sort of a change for yourself and something new ....🌹 .... Praying tomorrow is a better day .

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 ปีที่แล้ว +15

      I actually really like my long hair (: Don't like it short

    • @purpleangelwings6579
      @purpleangelwings6579 6 ปีที่แล้ว +3

      Chronically Jaquie .... I do too ... It was just a random thought 😉

    • @mamabear8565
      @mamabear8565 6 ปีที่แล้ว +2

      For my hair type, the shorter it is, the harder it is to manage. I'm letting mine go to all natural. :)

  • @Todd_G_FPV
    @Todd_G_FPV 4 ปีที่แล้ว

    How long has your smart drive lasted? I got mine dec 3rd last year

  • @cortleighluxenberg6175
    @cortleighluxenberg6175 3 ปีที่แล้ว +1

    What is your friend channel who’s traveled with you before?