AFOs: Final Adjustments & Why I Use Them With My Wheelchair ♿🤔 (3/22/18)
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- เผยแพร่เมื่อ 4 ต.ค. 2024
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Most men would run a million miles from these health problems Judd is that one in a million man who stays
kaydee1959 I agree. He just looks exhausted at times... i should show guys some of her videos so maybe they won’t think of my mild epilepsy as a big deal.
Kaydee 1954....you got that right! I suffer from a lot of Chronic illnesses and my first DH passed away in 2002. I met another man a few years later, became engaged to him, and we have been married for 4 yrs now. There's a lot of awesome men out there, you just have to "weed" through all the bad ones LOL !
#Juddisakeeper!
That's what is called true love....Judd truly cares, it's amazing. There are men out there that really only care about their GF's or wife....and can take the good with the bad.
Today is National Puppy Day!!! Happy Puppy Day Harlow!!😘❤️
Watching you walk with the AFO’s is amazing! A night and day difference!
Happy National Puppy Day, Hippo!
Not too long ago you were seriously contemplating throwing your AFO's in the lake 😂
I’m so excited this video is up! Some serious insomnia + painsomnia right now (I’m in Australia) and your videos always perk me up!
Isn’t it wonderful when the tools work properly? I’m so glad for you, Jaquie! xxxx
Yes! :D
So great to see your AFOs helping you after such a rough start! My dog is camera shy too, she’ll stop everything and walk away if she notices you pointing a camera at her 😂 makes it hard to get pictures of her doing cute things though
Yay your AFO are better fitting! Looked like a productive trip to the mall. So funny Harlow gets shy when camera comes out! You and Judd are looking great. Give Harlow lots of pets and kisses.
I love Harlow's little wigglebutt when she walks :-)
I love when people ask why you have your service dog do things you could do, when they're trained to do it. It's not about if you can or can't do it in that moment. It's about making your life as easy as possible with your obstacles. And besides, the more Harlow uses her skills the more cemented they will be, so it's mutually beneficial.
thanks for explaining the AFOs, I'm back to regularly watching your vlogs and was curious about them. So glad to hear they're helping!
4:33 that swagger 😍😍😍
I love Harlow’s happy little waddle when she entered the elevator. You two make a wonderful team! Two thumbs up!😁
Harlow is camera shy? OMG, can she be more adorable? 😍😍😍😍
I am so happy you got the adjustments! I hope you don’t need to get them adjusted again. I need to get some running shoes…I would say my converse shoes do not help me knees/ankle pain lol. Harlow is doing so well with her tasks! 💖
I feel happy to see Jaquie walking. YOU GO GIRL! 😄😊
Im so inpress by Harlow, She is so good and smart 🐶🐾
Hi jaquie. Idk if anyone already suggested this but maybe it's smart to get elastic shoe lashes. With those you don't have to untie your shoes as much so it's easier to tie them. Especially if your hands are hurting.
AutismAlex she usually slips her foot in like at the doctor I’d assume
Háłłïē B yeah but she has to tie her shoe laces everytime she puts them on. With elastic ones you can keep the shoe laces tied.
So glad you look and feel better to some degree. I had an interesting morning. Went to my doctors apt went great. Went to the gym, got on a treadmill.. went slow and apparently forgot to turn it off and fell:( ( I'm ok) just got woozy.
I love Judd's commentary. He did a great job. Hippo is too adorable.
I LOVE your car...I love the color.....I love the car period....lol....I wanted to get that get and test drove them but my husband ended up surprising on my birthday last year actually in a week (my birthday isn’t until April 6th) with a 2017 a Subaru Crosstrek....I actually really love it but I just recently found out that I am not allowed to drive anymore because I have severe neuropathy in both legs and I have had issues where I was driving and think I am pressing the gas petal and I am not...god forbid it was for the stop petal...but it’s still a good passenger car....loved Judd’s commentary of nascar because this girl LOVE NASCAR...lol sending love always from a still cold New York!!!❤️💋
So great that The afo Are working out I am so Happy for You
It’s awesome that your doctors have helped you get all these tools to be more independent and mobile! I wish I could find some like that, my eds causes my tibia to slip out from under my femur and they just keep saying they don’t know what to do and have never seen anything like this 🙄
kaylin fitzpatrick ouch!
You got Judd back! Hahaha cute! Harlow is adorable as ever and so glad the AFOs are fitted better for you now. My mom is getting an AFO (I'm gonna try to talk them into two AFOs...cause she trips over her feet and ankles ALL the time and breaks them often... =( ) thanks for this info! Its helped me understand a lot more of what I'll be helping my ma with! Thanks!
So glad you have these tools!!
Cookie (black lab), my hearing service dog, when she came home to me after a year of training at Can Do Canines in Minnesota,she was trained to “jump up, and press” the HC door button. I don’t need it, but I do it for her so she can be excited to be working. She does pick up items if I drop it. She’s smart. I’m working on doing some more fun tricks with her.
Glad you had a good day!
You are just an awesome lady.
You should do a reaction to your old videos or a then and now to everything you’ve had done
You got a chance to pay back Judd with your hand blocking HIS face this time! LOL!
Judd's commentary was hilarious
Great video, Jaquie. I was confused at first because you said good Friday morning. Hugs:)
😀💕🐾👍🙏🙏 Awsome you have the tools you need. Jacquie 👍❤
Love you guys!
Hey Jacquie, I don't see you using your neck brace at all in the car. I know you needed some adjustments on that did you ever get that? Looks like you had a wonderful day. Many more to come
It's only meant to be used when I absolutely need it, so it's not a matter of getting in the car and putting it on automatically. I only use when needed on longer car rides. My rheum doesn't want me using them frequently.
Chronically Jaquie - got cha! You looked really happy today! Love seeing you that way.
So happy for you!!!!!!! 🎉🎉🎉🎉🎉🎉
Hanger should offer to sponsor your blog! Love your blogs!!!
Love Harlow 😘
Argh I had an episode last week where my heart rate was 151 and I just got up to use the bathroom! My heart rate can easily go to 135 normally even on meds :/
I wanted to ask Judd a question: what’s it like for you having a partner who is sometimes in a wheelchair? When you are walking beside Jacquie, do you miss having her standing and walking with you? Is it hard to have conversations and feel like you are together with that difference in height, and the distance between the two of you, or are you just used to it by now? Thanks. Glad you are doing so well, Jacquie!
I wear my AFOs at all waking times. Walking or in wheelchair. My spasms make my feet turn ways they shouldn’t. Afos keep my feet where they should be.
You missed Vera Bradley? 😱 lol Glad you're doing better. Last week my gastroparesis was bad. I control mine using diet.
Jaquie, what was the name of of the service dog organization that you recommended? We are looking into getting a service dog for my father who is a veteran and needs one for his loss of hearing, eye sight and stability. We are trying to go through the VA, but I recall you initial problems when you were first seeking a service dog. I just want to make sure we go through a legitimate organization. Thank so much for any help you can give me!!
Healing for heros
I get distracted at my job several times a day. Harlow does much better focusing than most humans. 🙄
When judd yawned i yawned 😂
You go girl block that face!! Haha too funny.
fun fact for judds shoes: asics (the brand name) stands for "Anima Sana In Corpore Sano" wich means, a healthy mind in a healthy body :D
Did you ever get the hip braces
Shelbey DeBlieck-King I
Do you prefer the masks with or without the valve? My son has a lung condition and we are looking into options for masks. Thanks!! Love your channel!!
Ascics are my favorite shoes!
Lol, at least Harlow is consistent
I am just curious-why do you sometimes use a wheelchair and sometimes not?
Hey jaquie💕
omg I clicked away for ONE SECOND and when you said they gave you extra shin pads I heard " sh*t pads" like wtf?
Was today good Thursday morning cause where I live it’s Friday 😂😂😂
Can anyone tell me how she can pay all the medical things. I'm from Germany and don't know how the health care works in Florida. Thanks in advance.
I have health insurance
Hey I'm from Luxembourg and our system is similar as the one in Germany!, there's health insurance (Krankenversicherung/Krankenkasse) that covers most of her stuff. Jacquie pays a monthly or annual fee for her health insurance and in return, they help paying for her medical suplies! If you have any questions, you can ask me (also in German, if that's easier for you :) )
Chronically Jaquie thank you :)
SnowAlec thanks for the explanation :)
My goldy was camera shy too..she would actually turn her back on me and refuse to look at me lol
Can I ask how much the AFO weighs?
Unfortunately Jackie passed away hun, such sad news R.I.P
Harlow is ricking at his training
I wear AFO's too!
6:43 This reminds me of this scene in Chris Pirillo's vlog 112: th-cam.com/video/EMVesWa8caY/w-d-xo.htmlm45s
9:35 Payback time! Good on you, Jaquie!
Happy National Dog day to sweet Hippo!
I have a question for all service dog handlers. What is your proffered style of vest/harness for your dog. I have a standard poodle and his main task is going to be mobility.
What are your suggestions
look up purple poodles harness on fb or ig. They make amazing affordable momentum pull and counterbalance harnesses. Just make sure your pup is old enough and cleared by a vet for mobility before starting mobility tasks.
Asher Kaufman thank you so much!
I have a gear video with everything I love, my fave is what Har is wearing now
Chronically Jaquie thank you!!!
Where do you get your leggings from😍😍😍😍😍😍 pleeeeaaaase I would love to know 😢
Selena Roz I don’t know about these ones specifically but she has mentioned more than once that she loves the ones from Walmart, and that’s where she seems to get most of them from!
Ooo Thank you! I will def search for them there.. they are just so cutee to resist !
Where did you get your leggings from? They are so cute ❤️❤️
Hi to juqie girl and jude and pup hardlow
Hannah Marie llewellyn Llewellyn marie its jacquie, judd and harlow
Nora Beard *Jaquie
Jacquie I hope you answer this how do you attach hippo to your wheelchair I’m asking cause I have a son who is in a chair and we want to find a way that he can walk the dog
It is by Bold Lead Designs
Just a quick question.... What happens if you are having issues and Judd is working? I have a son that's a police officer and it seems as though he is always gone! I just wondered what you do when you need help and he isn't home Jacquie???
My mom or 911. That is why I have the medical alert system at home and I wear it when he is gone (nights).
Jaquie....thanks! If you hadn't mentioned the Medic Alert that you have, I was going to suggest it. My DH (he passed away in 2002) had a medic alert system as well. IT really helped out, because I could go down to the corner store(which wasn't far from our house at the time) and feel pretty sure that if anything happened to DH the kids could push the Alert button and get help.
Take care...and thanks for answering my question ! :)
When I realize I was at the mall at the same time and somehow missed seeing you. XD Would have loved to say hello!
I'll be tagging you in a doodle on Instagram soon hopefully. I am drawing you.
Did you ever take them brownies?
hey jaquie ive noticed that harlow under eyes are no longer red like a blood hound, could this be because of prolonged raw food diet? either way glad its gone! :)
I think the raw diet helps (although we are doing Sojo dehydrated raw right now) but it also has to do with her seasonal allergies.
I love your videos!!! Also can you answer my question on insta when you have a chance?? Also I love how strong you are when you go through hard times.
just wondering why you got bright pink ones? wouldn’t you want white or neutral so they aren’t so noticeable? just like how you like the button feeding tube so when you’re not connected it’s smaller. just wondering!
Honestly, if someone looks at my feet these are going to be noticeable no matter what color you choose. I love the color pink. There was a brighter, more "hot" pink option too, but I liked the lighter tone. Since I need this equipment, I like it personalized when possible.
Chronically Jaquie I understand! I guess if you have to have it might as well make it cute.
Is that a different mask then usual?
I have the same Nike’s as you
Unless it’s a myth couldn’t you have squeezed out another 8 seconds for this vlog to be 10 minutes (= more money) 😛?
I wish I could get my heart rate up to the 130’s - you are getting cardio in at least! :)
Hi Jacquie I just bought my nephew the Guinness world book of records (2018), and wanted your reaction to their representation of Ehlers-Danlos syndrome. Garry Turner (UK) was compared to a superhero because he can pull the skin of his torso out 15 cm. Is it good that awareness is being raised? Will pm you the image of the page. If it isn't too personal, can you also pull out your skin further than most? I love following you thanks for another great video. Xxxx
Can't PM you. this is what it says; 'Elastic Man. Who better to mimic Mr Fantastic's extreme plasticity than Garry Turner (UK), the man with the stretchiest skin? Garry can pull the skin of his stomach out to 15.8cm (6.22in) owing to Ehlers-Danlos syndrome - a disorder of the connective tissues affecting the skin, ligaments and internal organs. It results in a loosening of the skin and "hypermobility" of the joints.'
Love the leggings!!!
As a foreigner i understand your speech clearly, you have good pronunciation and slow tempo. But when Jud speaks it's like "you know brulbulrurl wheelchair brurbrul you know brbrbr walking around bururulbrbr the mall you know" :D Also i don't know if you noticed, but you speak two times faster in your very first videos, why is that?
Hello
I LOVE ASICS!
Vlogs lol auto correct 🙂
Is what u have like Lou Gehrig's disease
FadedPegasus h no not at all. She has a very detailed video where she discusses each illness
Watch her chronic illness play list it will explain all she has to deal with
I asked if it like.. Not her list of videos I all ready seen
Not quite, it has similar effects in terms of overall impact, but Elhers-Danlos has more to do with collagen deficiency rather than muscle deficiency
So are you using the Smart Drive only part of the time when you were in the mall with Judd and Harlow
I can't vlog and SmartDrive without being a hazard to myself and others :P But no I mostly wheel myself