Full video available here (FREE): kikoxp.com/posts/12953 WSI digital slides for this case: kikoxp.com/posts/12967 MPNST 101 video: kikoxp.com/posts/4092 Neurofibroma 101 video: kikoxp.com/posts/4091 A complete organized library of all my videos, digital slides, pics, & sample pathology reports is available here: kikoxp.com/posts/5084 (dermpath) & kikoxp.com/posts/5083 (bone/soft tissue sarcoma pathology).
Just at the hospital after my biopsy for this tumor! I have NF1 Prognosis is worrying! Please if you are reading this - please pray for me that it’s curable! This would be my 3rd battle with cancer! 1: Soft tissue sarcoma 2002 2: Breast Cancer 2020 3: peripheral nerve sheath Tumor biopsy 04-01-2024 Please keep me in your prayers ❤
Hello, i hope in Jesus that you're already cured, and i hope you have a sucessfull recovery. If you can talk more about your jorney with MPNST...please answer this question, this is happening in my family now and i need to know more about this disease.
My 30 year old Son passed away May the 1st this year, he was diagnosed with MPNST in his chest he had NF1. I was told nothing about this while he was growing up so I feel so guilty. He had pain in his side for months and was going to a physio when he finally went to the doctor it had been 12 months. He had chemo for 3 months his tumour was 15cm by 10cm and with chemo shrunk 2cm, within 6 weeks it was growing again so he had 25 sessions of radiation. Three weeks later I rushed him to emergency and he died 8 weeks later. Could I have done anything different to have saved my Son. My Son allowed the specialist to send the biopsy pieces of tumour for research, i hope it saves lives. My beautiful Son gone 💔
I’m so very sorry for your loss. It is very common for delayed diagnosis of this and other sarcomas because they often present with non specific symptoms (like pain) at first, symptoms that are often caused by other benign conditions. Even when these are detected early, they still often have aggressive behavior and bad outcomes. Please don’t blame yourself for this. You did NOT cause his cancer or his death. Sending my very best wishes for health, healing, and peace to you and your family. ❤️🩹
@@JMGardnerMD thank you so much for taking the time to respond, just taking one day at a time at the moment, when I am stronger I need to get this information out to others. We were told not to worry about NF1 as one in 3 thousand are born with it and it’s not a problematic disease. Thank you again for your kindness.
Can a schwannoma be an actual rare variant of areas malignant Necrosis areas of mitotic cells hyper vascular and hypo cellular areas High Positive rare cells seen and restained High Positive for Sox 10, S100 Vimentin, P 63, CD56, Pax 8 weak ?
help me please, my mother also had this tumor. Surgery had done and it's was successful but we get know after surgery that it was cancer tumor, PET scan is normal. Doctor said for radiation treatment. It's so costly Please tell what to do
Full video available here (FREE): kikoxp.com/posts/12953
WSI digital slides for this case: kikoxp.com/posts/12967
MPNST 101 video: kikoxp.com/posts/4092
Neurofibroma 101 video: kikoxp.com/posts/4091
A complete organized library of all my videos, digital slides, pics, & sample pathology reports is available here: kikoxp.com/posts/5084 (dermpath) & kikoxp.com/posts/5083 (bone/soft tissue sarcoma pathology).
Just at the hospital after my biopsy for this tumor! I have NF1
Prognosis is worrying!
Please if you are reading this - please pray for me that it’s curable!
This would be my 3rd battle with cancer!
1: Soft tissue sarcoma 2002
2: Breast Cancer 2020
3: peripheral nerve sheath Tumor biopsy 04-01-2024
Please keep me in your prayers ❤
I’m so very sorry you are going through this. Prayers for healing and peace.
What happened?
Hello, i hope in Jesus that you're already cured, and i hope you have a sucessfull recovery. If you can talk more about your jorney with MPNST...please answer this question, this is happening in my family now and i need to know more about this disease.
What specific nerves are you talking about in this video?
My 30 year old Son passed away May the 1st this year, he was diagnosed with MPNST in his chest he had NF1. I was told nothing about this while he was growing up so I feel so guilty. He had pain in his side for months and was going to a physio when he finally went to the doctor it had been 12 months. He had chemo for 3 months his tumour was 15cm by 10cm and with chemo shrunk 2cm, within 6 weeks it was growing again so he had 25 sessions of radiation. Three weeks later I rushed him to emergency and he died 8 weeks later. Could I have done anything different to have saved my Son. My Son allowed the specialist to send the biopsy pieces of tumour for research, i hope it saves lives. My beautiful Son gone 💔
I’m so very sorry for your loss. It is very common for delayed diagnosis of this and other sarcomas because they often present with non specific symptoms (like pain) at first, symptoms that are often caused by other benign conditions. Even when these are detected early, they still often have aggressive behavior and bad outcomes. Please don’t blame yourself for this. You did NOT cause his cancer or his death. Sending my very best wishes for health, healing, and peace to you and your family. ❤️🩹
@@JMGardnerMD thank you so much for taking the time to respond, just taking one day at a time at the moment, when I am stronger I need to get this information out to others. We were told not to worry about NF1 as one in 3 thousand are born with it and it’s not a problematic disease. Thank you again for your kindness.
WOW ! I’ve never seen such a humongous nerve.
May I know if any medicine has been tried in the world to control or cure this disease? Can I hope for a cure? Can you hope for a medicine?
Can a schwannoma be an actual rare variant of areas malignant Necrosis areas of mitotic cells hyper vascular and hypo cellular areas High Positive rare cells seen and restained High Positive for
Sox 10, S100 Vimentin, P 63, CD56, Pax 8 weak ?
What stain is good to differentiate ? All other stains were negative
Or could it be an actual sarcoma being under called a schwanomma
Yes epithelioid areas but bland spindle cells
help me please, my mother also had this tumor. Surgery had done and it's was successful but we get know after surgery that it was cancer tumor, PET scan is normal. Doctor said for radiation treatment. It's so costly Please tell what to do
How are things going with that?
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