Mastering Life with an Ostomy: Part 3 of 3

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  • เผยแพร่เมื่อ 25 พ.ย. 2024

ความคิดเห็น • 101

  • @darrenward7355
    @darrenward7355 5 ปีที่แล้ว +3

    Hello Eric. I just wanted to say thank you for all your hard work you have put into your channel educating about ostamy. I am new to this. I have been watching your videos and they have helped me very much. I feel like I have control over my life again. It is so awesome that you are willing to take the time and help others. Thank you sir.

    • @VeganOstomy
      @VeganOstomy  5 ปีที่แล้ว

      Thanks as lot, Darren. I hope that things continue to get better for you - it really does get easier, so stay on track and you'll be fine.

  • @manymusicians3743
    @manymusicians3743 หลายเดือนก่อน

    I’m a 22 year old male who just got their Ostomy. I left the ER with no instructions or a clue about anything ostomy. I got home and had a lot of lessons to learn. As soon as I found your videos they answered every question I had. I couldn’t thank you enough. I’m sad to see you havnt uploaded in awhile and was curious why you stopped.

    • @VeganOstomy
      @VeganOstomy  หลายเดือนก่อน +1

      I'm sorry to hear that you received no instructions from the hospital. It really is a shame that in 2024 patients are still left to figure it out on their own. But I'm glad that the videos help (my website covers even more topics). Most of the videos I've uploaded address the major points. I wish i had more time to make more videos, but when I do, I'll start uploading again 😉

  • @TheFabricTeapot1
    @TheFabricTeapot1 6 ปีที่แล้ว +3

    I'm just coming up to 4 weeks post op and I have a permanent ileostomy and settling down well with things.
    This is all like a minefield for me.
    After living with ulcerative colitis for the past 42 years I'm happy with my surgery, I don't have any psychological issues about it. It's just having to learn what products are needed and what aren't.
    Thank you for your videos. I find them really helpful.

    • @VeganOstomy
      @VeganOstomy  6 ปีที่แล้ว +2

      Thanks for watching, Lorraine! After 42 years of what I'm sure weren't easy times for you, I hope that your ileostomy brings you happiness and opportunities.

  • @johndifrancisco3642
    @johndifrancisco3642 6 ปีที่แล้ว +1

    Yea! I thought I missed part three and couldn't find it. The travel video threw me. Very helpful information, Eric, as usual. Especially what you said about having confidence or insecurity reflected back on to you. I kind of knew that in my head but never had talked about it to anyone. When I heard you say that, it lifted a lot of weight off my shoulders because I have always battled with self confidence. I faked it till I made it but my colostomy gave me a real blow. Thanks again for all you do.

    • @VeganOstomy
      @VeganOstomy  6 ปีที่แล้ว

      Ha! I didn't want to post the trip video too far after the trip was over, but I'm glad the series is finally complete!

  • @amitdogra6945
    @amitdogra6945 3 ปีที่แล้ว

    Hi Eric, I've been into 10 weeks post-op ileostomy. Your videos helped a lot to understand living life with stoma. Thanks!
    God bless

    • @VeganOstomy
      @VeganOstomy  3 ปีที่แล้ว

      Thanks for watching, Amit. All the best to you! 😀

  • @dawndaly409
    @dawndaly409 2 ปีที่แล้ว

    Hello Eric, Just had my ileostomy about 3 weeks ago. I am just listening to you saying people shouldn't say they are sorry for you. So true. But what I want to share with you and hope it may help someone else. No one new for 60 years what was causing my chronic constipation. My surgeon " Found the cause" Her words " Dawn, you have a very very rare rare rare rare disease" yes that many rares. Hirschsprung. Amazing after 60 years. Of course I am not going to even try to explain it. But it very interesting. I hope that just by bringing this disease up. And being that it is so rare that nobody in 60 years ever even thought to look for it. I am hoping that maybe even one person will be helped by this. Anyone with chronic constipation should bring it up and if their doctor doesn't want to hear it and put time into it they need to go to another doctor and another doctor and another doctor until some doctor looks it up. They may have it and they may not but doesn't hurt to fight trying. And I am very thankful for my ileostomy after all these years yes I am very thankful.

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว

      Thank you so much for sharing, Dawn. I looked up Hirschsprung, and it's quite an interesting disease. I'm glad that you have a surgeon who was good enough to identify it; you've waiting far too long for answers.
      I wish you all the best.

  • @barbcobbett7206
    @barbcobbett7206 6 ปีที่แล้ว +2

    That was amazing all the info you gave was so on point! I just had to have more surgery, it was emergency surgery n it was on my bday last month, a stint put in my throat made it a way to my sm bowel and the doc couldn't get it with a scope so I lost another half a foot of my sm bowel! Not fun especially not on my bday I'm pretty much good now, I think haven't had a follow up yet but feeling much better! The stint also caused two blockages he had to remove but it explains all the trouble I'd been having for months but thankfully it didn't perferate anywhere along it's way thru!!!! So I'm lucky that way but my gastro is pissed at the whole situation! The stint should've been taken out at most 8weeks later but it was almost 2yrs it was in there so hes not happy plus I should've been sent to him but sent me to Toronto instead!!! But anyway great video and very helpful to the ppl you were speaking to! Thanks! Much love from the same town as you! Lol! Normally I say much love from oshawa ont Canada but..... lol

    • @VeganOstomy
      @VeganOstomy  6 ปีที่แล้ว +1

      Happy belated birthday, Barb! What an ordeal! I do hope that things get better for you.

    • @barbcobbett7206
      @barbcobbett7206 6 ปีที่แล้ว +2

      @@VeganOstomy thank you so much! It's getting there I was about 83lbs before surgery n they weighed me just before remicade n I'm up to 106lbs so it's looking good but again thank you!!!!!

  • @daviahumphrey3249
    @daviahumphrey3249 6 ปีที่แล้ว +1

    Great video as usual .

  • @ysammo214
    @ysammo214 4 ปีที่แล้ว +1

    your videos are so amazing and useful, i just came across your channel not too long ago and subbed

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว +1

      I really appreciate that! Thanks for watching 😁

  • @mrswilliam9674
    @mrswilliam9674 6 ปีที่แล้ว +1

    Great information

  • @garylafontaine
    @garylafontaine 2 ปีที่แล้ว

    Have you any thoughts as to what I can do for a prolapse that I can push back in but it will come back out slowly. Is there anything that I can wear that will keep it in its place?
    Thanks
    Gary

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว

      I'd speak to a stoma nurse and/or your sugeon. I get prolapsed when I strain heavily, but it only happens rarely. If you have constant prolapses, it may need to be investigated. Convex appliances and support bands can make prolapses worse/more common as they put pressure around your stoma.

  • @richardbasso1329
    @richardbasso1329 6 ปีที่แล้ว

    God bless you. You are so great! Thank you for sharing your knowledge with us!

    • @VeganOstomy
      @VeganOstomy  6 ปีที่แล้ว

      Thanks for watching.

  • @sosashiesty7741
    @sosashiesty7741 17 วันที่ผ่านมา

    I have a ileostomy for about 4 years this month. My skin is weeping , wet , not holding a bag etc. I use the brava protective sheet and hollister bag and flange with a ring. I use tegaderm tape around the flange to hold it in place but my skin is releasing like a mucus , puss looking type of fluid which collects under the sheet and tape. What do you suspect it might be? I use stoma powder with barrier wipes too but they don’t hold the fluid anymore. I’m asking because I see you still answer peoples questions and I’m just throwing a hailmary and hope you answer my question. Thank you so much for the help, been watching your vids for 4 years

    • @VeganOstomy
      @VeganOstomy  14 วันที่ผ่านมา +1

      My suggestion would be to speak with a stoma nurse to rule out an allergy to the appliance. If you have a fungal or yeast infection, then it would need to be treated.
      In the meantime, I can share what I've done when I've had really weepy skin. When it comes time to change my appliance, i always hang a bag over my pant waist in order to catch output. When my skin is angry, I'll leave my appliance off, often for hours, to let the skin breathe. This will also help to dry some of the skin. Ideally, you'll want to do this while having some topical treatment on the skin (whatever is appropriate for your situation).
      I hope you find some relief. That sounds like a challenging situation.
      On a side note, my skin developed a sensitivity to Hollister bags after wearing them for years without issues. My skin became very weepy, wet, and irritated, even after a day or two of wearing them. This only resolved once I switched to a different brand.

    • @sosashiesty7741
      @sosashiesty7741 14 วันที่ผ่านมา

      @ thank you !

  • @amitdogra6945
    @amitdogra6945 3 ปีที่แล้ว

    Its been quite a while u posted a video. Looking for one

  • @jackbuck3814
    @jackbuck3814 6 ปีที่แล้ว

    Can you remove convatec 2 piece bag and wash it out and reapply it to the wafer, only 3 weeks since operation all this is confusing any help would be appreciated thx

  • @Janito53
    @Janito53 2 ปีที่แล้ว

    My. Friend I have a question, to you know of anyone cutter that has changeable sizes? Or I have to by each size by itself? I appreciate your info. John

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว +1

      Most brands offer precut sizes for their ostomy products, but you can find special cutters to cut the hole. I do it with a special pair of scissors to get the best fit and I highly suggest waiting until your stoma stabilizes in size before you purchase precut products or cutting devices ( other than ostomy scissors )

  • @infinite_crew95
    @infinite_crew95 2 ปีที่แล้ว

    Hello Eric. Thank you for all you've shared. Are you available to answer a question?

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว

      Of course 😀 You can ask here, email me, or post a question on my forum at www.veganostomy.ca/community

    • @infinite_crew95
      @infinite_crew95 2 ปีที่แล้ว

      @@VeganOstomy thanks. Have you ever seen stoma get puffy and colored on top but not bottom

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว

      Puffy, as in swollen? I've had that happen to me a few times, in particular when I'm over exerting myself and/or my wafer hole is cut too tight. But if you think there may be a problem, I'd consult with a stoma nurse to be safe.

    • @infinite_crew95
      @infinite_crew95 2 ปีที่แล้ว

      Thanks so much.

  • @sharonboswell2257
    @sharonboswell2257 5 ปีที่แล้ว

    Hey Eric! I am wondering if you can recommend a really potent non-sting adhesive remover spray. I use the Eakin seals, and to say it’s hard to get that adhesive off is an understatement. I currently use the Brava spray, but I have to spray it over and over and over again to get all the ‘goop’ off my skin, before applying anew!

    • @VeganOstomy
      @VeganOstomy  5 ปีที่แล้ว

      Unfortunately, barrier rings seem to have a different type of adhesive in them, so they don't tend to come off as easily with adhesive remover. I've peeled them off the best I could then used adhesive remover wiped (not spray) to clean up the residue. I will caution against scrubbing every last bit off as you may just end up irritating your skin. Good luck!

  • @Amy-he6wf
    @Amy-he6wf 6 ปีที่แล้ว

    Hi Eric it’s Amy from UK Liverpool me and my husband had this when my husband had emergency surgery for vasculitus I think I told you about it anyway it was about 3 months after his surgery he suffered with leaks almost everyday he has a
    Condition that things just don’t stick to him plasters (band aids) bags anything! Anyway he was that nervous he wouldn’t even let me see him with no clothes on he had to come to terms with that himself first anyway we passed that stage then we got on the massages just hugging and kissing in bed just to boost his confidence and it really did take months but it is what it is if you love someone things do find a way! You get your ups and downs in all works of life it’s until you and your loved one and as a couple witness this first hand and I just want to say you personally got us through them times!!! I have told you before but I swear my hand on heart I can’t tell you how much you helped us and our marriage thankyou! Your videos are absolutely inspirational and thankyou for taking the time to do so! All my love Amy xx

    • @VeganOstomy
      @VeganOstomy  6 ปีที่แล้ว

      Thank you so much for sharing that, Amy. I'm glad that you and your husband finally made it to a better place - it was both of your hard work and love for each other that got you there.

  • @sharonboswell2257
    @sharonboswell2257 6 ปีที่แล้ว

    Hey Eric, off topic from this specific video, but do you by chance happen to know how to cut out the pre-filter from a ONE piece Coloplast pouch? I’ve seen another person’s technique of getting rid of it in a two piece, but not a one piece!

    • @VeganOstomy
      @VeganOstomy  6 ปีที่แล้ว

      That would be very challenging as you'd need a hole cut wide enough to access the pre-filter - but that might make the hole too big for your stoma. Have you checked to see if they offer a non filtered version?

    • @sharonboswell2257
      @sharonboswell2257 6 ปีที่แล้ว

      Coloplast doesn’t! Oh well

    • @sharonboswell2257
      @sharonboswell2257 6 ปีที่แล้ว

      T

  • @LucysLifeInTheBabyAliveWorld
    @LucysLifeInTheBabyAliveWorld 3 ปีที่แล้ว

    As it turns out my little brother is having very severe problems with fecal impaction like I did several years ago, it hasn't yet been suggested by a doctor but there has been discussions with my mom that he may get an ostomy in the future, being severely autistic and almost nonverbal and also much younger than me I want to be able to help, but I wouldn't know how to as 1 I'm not the greatest with kids.... And 2, I'm not even 100% independent with my ostomy so I probably wouldn't know how to help or explain the situation to my brother.... Luckily my younger sister has a vague understanding of what my stoma is and what it does.

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว

      Fecal impaction and constipation are pretty common in people with autism, so perhaps a plan needs to be developed with the help of his doctor to get things better controlled. Even using a mild stool softener would be far better than surgery.

    • @LucysLifeInTheBabyAliveWorld
      @LucysLifeInTheBabyAliveWorld 2 ปีที่แล้ว

      @@VeganOstomy Thank you for the advice, also would you be interested and able to help me stand up to Urban Dictionary's offensive *"definitions"* of ostomates?

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว

      What would you be doing?

    • @LucysLifeInTheBabyAliveWorld
      @LucysLifeInTheBabyAliveWorld 2 ปีที่แล้ว

      @@VeganOstomy basically raising awareness on social media about these hurtful remarks, as well as just bullying and misconceptions towards people with ostomies in general.

    • @VeganOstomy
      @VeganOstomy  2 ปีที่แล้ว

      I don't think the urban dictionary is supposed to be taken seriously, or at least that's how I've always viewed it. It's almost like a meme site.

  • @rizzatandoy3486
    @rizzatandoy3486 ปีที่แล้ว

    hi eric new on your channel thank you for these videos just want to check on you how was going on.?

    • @VeganOstomy
      @VeganOstomy  ปีที่แล้ว

      Welcome, Rizza! I've been busy with family/work life, but I'm active on my community forum www.veganostomy.ca/community/ I'm hoping to make more videos, but my time isn't nearly as available now as it was years ago. Best to you!

  • @maryreynolds5310
    @maryreynolds5310 4 ปีที่แล้ว

    Oh no, where are you..I need to talk to you about my Ostomy!! Hope your ok!!

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว +1

      Hi Mary! Thank you for asking. I've been busy so no new videos. Please, join my online support forum if you need to connect. It's www.veganostomy.ca/community/

    • @maryreynolds5310
      @maryreynolds5310 3 ปีที่แล้ว

      @@VeganOstomy WOW…I’m just seeing this. I’m so disappointed I didn’t see you left this message. I will check to see if you are still have the online support.

  • @game4alaughman
    @game4alaughman 4 ปีที่แล้ว

    Are u not posting videos these days ?

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว +1

      My time has been very limited these days, unfortunately. I do plan to record more videos, but not sure when. I have been quite active on my support forum and get a lot of email/private messages on a daily basis so I haven't gone anywhere :) Thanks for watching.

    • @game4alaughman
      @game4alaughman 4 ปีที่แล้ว

      Vegan Ostomy cheers for reply, I've not been great for last 2 weeks, bed ridden, and looking thr TH-cam for new videos. Hope to see more of your videos soon, cheers mark

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว +1

      @@game4alaughman I'm sorry to hear that, Mark. Is there any particular content or topic that you're looking for?

    • @game4alaughman
      @game4alaughman 4 ปีที่แล้ว

      Vegan Ostomy Thanks Eric, just drained ATM, hopefully get sum energy for somewhere soon. No topics, but always nice to watch your videos or reviews and seen that 1 year has passed since your last video

  • @patriciadavis1393
    @patriciadavis1393 ปีที่แล้ว

    Also right at the moment I just figured out because I'm an anal retentive retired bookkeeper exactly what the cost is for every change of a two-piece coloplast system and its approximately 19.00 and that is excluding any extras that is just the flange and the bag I saw on Amazon yesterday 20 pieces of a one-piece product for $40 oh my God that's $2 each I will let you know how it goes and with the extend tabs anyway I it really find it helps hold the Flash in place even if it is not 100% stuck❤❤ I have learned more in the last year and a half off of TH-cam about my ostomy then I have in almost 15 years from doctors and the product providers excluding one great ostomy nurse😢😢😢😢😊

    • @VeganOstomy
      @VeganOstomy  ปีที่แล้ว +1

      Yes, $19 sounds about right. Too expensive of you're chanting them every other day. The 1pc is half that, and they tend to last longer.
      I'd love to find something cheaper. I may have to experiment with some Amazon brands, too 😂

    • @patriciadavis1393
      @patriciadavis1393 11 หลายเดือนก่อน

      ​@@VeganOstomyhi Eric it's Patricia from Toronto I just wanted to say Happy New Year to you and your loved ones and the products from Amazon are going amazing❤❤❤❤❤

    • @VeganOstomy
      @VeganOstomy  10 หลายเดือนก่อน +1

      Happy New Year! Glad to hear that those Amazon products are still working well for you 🤗

    • @patriciadavis1393
      @patriciadavis1393 10 หลายเดือนก่อน

      @@VeganOstomy yes Eric you can't imagine what a load it is off my mind did you decide to try any of them because honestly they even stick during IBS attacks which the others don't anyway all the best for 2024

    • @VeganOstomy
      @VeganOstomy  10 หลายเดือนก่อน +1

      @@patriciadavis1393 No, I haven't tried any as I don't have a need to, but I do have them in mind if/when something changes :)

  • @wsk5742
    @wsk5742 4 ปีที่แล้ว

    Hi i know my comment isnt about the video content but im worried as hell. I have stoma due to crohns and i have my rectum still in me but i have lot of mucus mixed with blood from anal, i have no other symptoms and i cant see a doctor right now but im scarred what it can be?

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว

      How long since your surgery? Rectal discharge is actually pretty normal, even if you have a stoma. I had it for months before my rectum was finally removed following my ostomy surgery. If you have a lot of blood, I would suggest speaking with your surgery just in case, but a little is generally nothing to worry about. Best of luck.

    • @wsk5742
      @wsk5742 4 ปีที่แล้ว

      Vegan Ostomy 4 months having stoma and I will have another surgery in next two months to takedown the stoma. Regarding to the blood yes its not that much so im gussing its as you said normal. Thank you so much i really apreciate what you do for the stoma community ❤️ have a nice day

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว

      @@wsk5742 Good luck with everything! Looks like you'll be on track to recover from your reversal just in time for the new year =)

  • @arayaaraya7779
    @arayaaraya7779 ปีที่แล้ว

    Are you ok?🙂

  • @jcoolshockr1
    @jcoolshockr1 4 ปีที่แล้ว

    Hey have you ever heard of putting sugar on your stoma to reduce its swelling?

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว +1

      That's actually a trick to get a prolapsed stoma to retract back to normal again. Pretty cool, but it works!

    • @jcoolshockr1
      @jcoolshockr1 4 ปีที่แล้ว

      @@VeganOstomy how exactly? Do you know?

    • @VeganOstomy
      @VeganOstomy  4 ปีที่แล้ว

      I have a friend who had to do it, but it's been in the literature for years.

    • @jcoolshockr1
      @jcoolshockr1 4 ปีที่แล้ว

      @@VeganOstomy i will try it and let you know