My sister has had Parkinsons for approx 8 years. I discovered a book on using B1 as a therapy on Amazon and she agreed to take it. It has helped a lot with falling asleep, dyskenesia and apathy. She is has tried once to increase but found no difference (50mg increase on 200 dose) so is reluctant to increase, but has only been taking it since Christmas.
Too little thiamine gives muscle cramps in the leg but too much thiamine also gives muscle cramps in the leg! It's just easier to take the precursor to thiamine and then your body can make what it needs. L-theanine typically works well at 50 mg per day. Benfotamine also works well and it does cross the blood brain barrier.
I think to most of us with POTS it sounds like its too good to be true! If something this simple helps POTS so much we think surely our doctors would know about it but sadly they don’t
I think I am having SIBO and I am still working on it. One symptom so prominent was fatigue. After researching and learning a lot online, I took Magnesium glycinate and B1 in Benfotiamine. It was so amazing my fatigue was gone!! B1 and Mg are such game changers!
Thanks for your kind sharing. B1 helped me a lot with my SIBO and fatigue. I took it for almost 20 days. I did find some paradoxical reactions like fatigue and indigestion when I went up my dosage. My current way is 900mg/day Benfothiamine + 1000mg/day of other low bioavailability B1.
Elliot Overton, Chandler Marrs, yourself Dr. Ruscio, several others... Derreck Lonsdale for decades. Do you have any one sentence answer for why everyone with minor but confusing symptoms doesn't just try a few bottle of B1 and take a "bunch". This high dose thiamine approach just seems to easy (even though the explanations are complicated). So refreshing, thankyou for your TH-cam channel.
Thank you for your compliments! As far as I know, doses of up to 600 mg/daily have been studied and are shown to be safe/efficacious, so, if you want to dial up your dose, should be okay. B1 isn’t toxic so side effects aren’t likely, but some people are more sensitive than others
Far sharper execution on the 20:00 mark discussion/deduction. I hope Overton takes note or gets funding to investigate those potentials in short order.
My personal experience after 25 years of constipation, loose stools and SIBO. I’ll have Breakfast with whole oats soaked overnight and cooked for 40 minutes, at each meal I take 100mg (the low dosage was the best) of benfotothiamine and a milk thistle tablet, this brought me back to regular and compact stools. I take other supplements but these have made a difference. I’m also on a fodmap diet but still have some symptoms. I never thought I would achieve this result after so many years of suffering. You need to know your body and do one test at the time.
It looks to me that mycoplasma loves thiamine, so mycoplasma infection may be "stealing" people's thiamine, causing deficiency symptoms. Thiamine mononitrate seems to inhibit or even kill mycoplasma . This provides a subject worthy of research.
Excellent. Thank you for spreading the word on this issue. I suffered for decades, and doctors did not recognize my symptoms. I hope you’ve read Lonsdale’s work
I tried B1 (thiamine) twice in the passed (two different brands) and each time it gave me crippling anxiety and shivers for a few hours. Same with 5HTP. Nothing else has ever done this. I do not deal with anxiety normally. I am perplexed. I do have issues in the relm of autoimmune, chronic inflammation, thyroid, candida, histamine, allergies which I'm sure has correlation. (No bowel issues but a lot of food intolerances).
I have Hashis and PsA, Found a large dose (250) also caused anxiety and wide awakeness at bedtime going past midnight. I can tolerate a quarter tablet in the morning which lessons the afternoon fatique I get with Hashi
@@juliefrancis2642 thanks for sharing. I’m sorry to hear this causes side effects for you too. Could be as simple as dosing - a recent study suggested up to 600 mg was appropriate for Hashimoto’s patients and helped improve fatigue, but not everyone has the same level of tolerance or sensitivity of course. I’m glad the smaller dose seems to help.
Thank you doctor, my son was diagnosed with gastropharesis and doctors didn't know the cause. I am going to give him thiamine, I'll let you know what happens.
Thank you for this information, I've done the histamine intolerance food elimination diet and there has been improvement but now I notice my body needs something more. I am going to try a Vit B1 supplement. I appreciate your time and making these videos! ~Phyllis
Thank you doc. Ruscio! I had a acute pancreatitis and since then I've had and Sibo and IMO. How is something like that possible? Could it be because the digestion was in shock due to the severe inflammation and therefore everything stopped and the bacteria in the small intestine multiplied? Before the acute pancreatitis I had no digestive problems at all.
I’m so sorry that happened to you. I’m not sure what the direct cause would be in your case, but the pancreas is, of course, involved in digestive processes, and inflammation/disease could potentially disrupt its function - namely, enzyme production. Have you been able to resolve your pancreatitis, or has to become chronic? Has anything helped your SIBO/IMO? Hang in there.
@@DrRuscioDC Thank you for your answer Dr.! My cause was taking a fluoroquinolone antibiotic. Luckily it was just an inflammation and I didn't get chronic pancreatitis or any damage. But my digestion definitely went into shock. I think that's why Sibo and IMO came about.
@@joanneurbanowicz4994 No, I don't have these symptoms. I just had pain for many months until the inflammation subsided. Did you also suffer from acute pancreatitis?
Lol, I think I can guess, I’ve heard some real horror stories from our community on here. We always advise doing things under medical supervision for safety and because legally I can’t offer that outside of our clinic. Granted, it does depend a bit on the quality of your doctor!
8:26 You go by this really quickly , but the symptoms of low thiamine seem to be the same as taking ozempic or other weightloss Rx. Isn’t that curious….
I find this very interesting. I would like to know how to adjust b vitamins for MTHFR people. I recently add B Compete and it made me sooo tired. Confused…
Thank you for all the information. I have read a lot about thiamine deficiency and Benfotiamine supplement and have wondered if Magnesium plays a role in the deficiency. Magnesium is required to transform thiamine into its active form. Therefore, I would think if Mg is low, B1 would be too. My husband has taken PPI drugs for a long time and I've read they can potentially cause Mg deficiency. He often feels tired and nauseous so I wonder if he's experiencing low Mg and B1. Do you have any information on this?
PPIs can definitely cause vitamin and mineral deficiencies if taken long term. There’s no harm in supplementing both thiamine and magnesium. If he’s on the sensitive side, might be worth introducing them one at a time to ensure tolerance
Why is benfotiamine so hard to buy? Can only be found on amazon. Most of the time not available. In our ‘health’ stores it’s not sold. And normal thiamin only in a very low dose. Even elliot doesn’t sell benfotiamine in a high dose anymore
I take one or two flat teaspoons nut.yeast as well, but be aware of high purine content (gout..). I have tried 75mg benfothiamine/d years ago but it did nothing for me (no unwanted effects either). May try the disulfur thiamine now, somehow hadn't heard of it!
Also try giving him Reuteri yogurt (have to make your own according to Dr William Davis recipe). I read many comments, people saying their kids with gut issues or behaviour/mood disorders get better. Gut health and healthy microbiome is essential. It directly affects the brain. I also struggled with severe anxiety during pandemic, one supplement that helped me was L-theonine, not sure if it’s ok to give to kids. Research herbal adaptogens too. My anxiety was triggered by medications. So worth reviewing all the meds he takes or took in the past. Good luck ❤
@ yeah I know. Ive had low spo2 and low hrv also. I had to heal it myself! Its insane. Im still working on it but I think this is some of my life mission too! I do not need a doctor- they just prescribe you medications so they themselves can continue to live their fake lifes and people NEED to have a HARD time to awaken also.
Hello. Where can i locate and research a food elimination diet for hydrogen sibo? I have eliminated sugar but need a good source for diet. I saw your excellent interview with Elliot Overton. Thank you.
How to give this to my daughter….. I give my son nutritional yeast he doesnt mind, but my daughter is more picky. Ive ordered b1 in gummies but its only thiamine HCL and that is not good enough is it with 100 mg of that daily with magnesium glycinate in gummies …. i feel stressed because my non awakened sister has my daughter some days and I feel stressed when I cannot give my girl some gummies and more healthy foods. Its stressfull situation so I struggle with my health too because Ive lacked b1 for years myself…..
I’m sorry, that sounds tricky. Could she swallow capsules? Encapsulated thiamine supplements tend to have the fewest additives/fillers so there’s that extra benefit too
It’s great - and optimal - to get vitamins, minerals, etc from whole foods/diet, but it isn’t always possible. Supplements can be tricky but there are clean and reliable brands out there that produce helpful products
Food-based sources of B vitamins are great! Definitely important. They don’t typically provide as much B1 as you’d get supplementing, so may still be worth the supplementation route
My sister has had Parkinsons for approx 8 years. I discovered a book on using B1 as a therapy on Amazon and she agreed to take it. It has helped a lot with falling asleep, dyskenesia and apathy. She is has tried once to increase but found no difference (50mg increase on 200 dose) so is reluctant to increase, but has only been taking it since Christmas.
Too little thiamine gives muscle cramps in the leg but too much thiamine also gives muscle cramps in the leg! It's just easier to take the precursor to thiamine and then your body can make what it needs. L-theanine typically works well at 50 mg per day. Benfotamine also works well and it does cross the blood brain barrier.
Did you take the benphotamine type one or the usual thiamine?
That’s incredible. What type is she taking? And it’s a dose of 200 mg? I’m so glad it’s been helping her
Man you are a rockstar, im so glad i found you
Thank you!!
Me too Dr. Ruscio! So much so that I became a patient.
I have POTS and found out about B1 and it was life changing! I wish I could convince other POTS patients to try it
I’m so glad it helped you. Why do you think they’re resistant to it?
@@DrRuscioDC That's because these people only pay attention when the advice comes from a good doctor like you.
I think to most of us with POTS it sounds like its too good to be true! If something this simple helps POTS so much we think surely our doctors would know about it but sadly they don’t
I think I am having SIBO and I am still working on it. One symptom so prominent was fatigue. After researching and learning a lot online, I took Magnesium glycinate and B1 in Benfotiamine. It was so amazing my fatigue was gone!! B1 and Mg are such game changers!
Thanks for your kind sharing. B1 helped me a lot with my SIBO and fatigue. I took it for almost 20 days. I did find some paradoxical reactions like fatigue and indigestion when I went up my dosage. My current way is 900mg/day Benfothiamine + 1000mg/day of other low bioavailability B1.
Elliot Overton, Chandler Marrs, yourself Dr. Ruscio, several others... Derreck Lonsdale for decades.
Do you have any one sentence answer for why everyone with minor but confusing symptoms doesn't just try a few bottle of B1 and take a "bunch". This high dose thiamine approach just seems to easy (even though the explanations are complicated).
So refreshing, thankyou for your TH-cam channel.
Thank you for your compliments! As far as I know, doses of up to 600 mg/daily have been studied and are shown to be safe/efficacious, so, if you want to dial up your dose, should be okay. B1 isn’t toxic so side effects aren’t likely, but some people are more sensitive than others
Far sharper execution on the 20:00 mark discussion/deduction. I hope Overton takes note or gets funding to investigate those potentials in short order.
Fingers crossed!
My personal experience after 25 years of constipation, loose stools and SIBO.
I’ll have Breakfast with whole oats soaked overnight and cooked for 40 minutes, at each meal I take 100mg (the low dosage was the best) of benfotothiamine and a milk thistle tablet, this brought me back to regular and compact stools. I take other supplements but these have made a difference. I’m also on a fodmap diet but still have some symptoms. I never thought I would achieve this result after so many years of suffering. You need to know your body and do one test at the time.
Correct! Feeling so much better with Benfothiamine! Thank you
I’m so glad to hear it!
@@DrRuscioDCcan I take benfothiamine and b complex together
Never Felt any effects from B vitamins..
Until getting the Paradise brand.. B Complex.
Has Thiamine AND Benfotiamine!😁✅✅
Herbally based...
perfect timing for this video
Great when things match up like that :)
It looks to me that mycoplasma loves thiamine, so mycoplasma infection may be "stealing" people's thiamine, causing deficiency symptoms. Thiamine mononitrate seems to inhibit or even kill mycoplasma . This provides a subject worthy of research.
Excellent. Thank you for spreading the word on this issue. I suffered for decades, and doctors did not recognize my symptoms. I hope you’ve read Lonsdale’s work
I am so sorry you suffered for so long. Hopefully we can raise some awareness and change the tide
I tried B1 (thiamine) twice in the passed (two different brands) and each time it gave me crippling anxiety and shivers for a few hours. Same with 5HTP.
Nothing else has ever done this. I do not deal with anxiety normally. I am perplexed.
I do have issues in the relm of autoimmune, chronic inflammation, thyroid, candida, histamine, allergies which I'm sure has correlation. (No bowel issues but a lot of food intolerances).
I’m so sorry it doesn’t work for you. Could be an intolerance, or the dosage?
I have Hashis and PsA, Found a large dose (250) also caused anxiety and wide awakeness at bedtime going past midnight. I can tolerate a quarter tablet in the morning which lessons the afternoon fatique I get with Hashi
@@juliefrancis2642 thanks for sharing. I’m sorry to hear this causes side effects for you too. Could be as simple as dosing - a recent study suggested up to 600 mg was appropriate for Hashimoto’s patients and helped improve fatigue, but not everyone has the same level of tolerance or sensitivity of course. I’m glad the smaller dose seems to help.
Could be a Rebellion of Parasites or others pathogens inside you... I use Oregano Oil as an natural Antibiotic and CDS sometimes...
See Elliot Overton work it will explain everything
Thank you doctor, my son was diagnosed with gastropharesis and doctors didn't know the cause. I am going to give him thiamine, I'll let you know what happens.
I’m so sorry. Please do keep me posted! I hope it helps!
Thank you so much, very valuable information, watching from Northern Italy.
Thank you for being here!
Thank you for this information, I've done the histamine intolerance food elimination diet and there has been improvement but now I notice my body needs something more. I am going to try a Vit B1 supplement. I appreciate your time and making these videos! ~Phyllis
Of course, appreciate you being here! Let me know how it goes. I hope it helps!
take ttfd or benfothiamine
@@unknwn7724I take 100mg and I feel it’s not helping. I’m scared to increase it
Idk, I just had my blood panels drawn and my B6 came back high-
3x's the upper limit and I don't take B supplements
Awesome! Thanks! 🎉
Thank you!
Hi, what other supplements should be taken with thiamine?
Thank you doc. Ruscio! I had a acute pancreatitis and since then I've had and Sibo and IMO. How is something like that possible? Could it be because the digestion was in shock due to the severe inflammation and therefore everything stopped and the bacteria in the small intestine multiplied? Before the acute pancreatitis I had no digestive problems at all.
I’m so sorry that happened to you. I’m not sure what the direct cause would be in your case, but the pancreas is, of course, involved in digestive processes, and inflammation/disease could potentially disrupt its function - namely, enzyme production. Have you been able to resolve your pancreatitis, or has to become chronic? Has anything helped your SIBO/IMO? Hang in there.
I have a cyst in pancreas do you have that also I have burning / itching in part s of my body 😊
@@DrRuscioDC Thank you for your answer Dr.! My cause was taking a fluoroquinolone antibiotic. Luckily it was just an inflammation and I didn't get chronic pancreatitis or any damage. But my digestion definitely went into shock. I think that's why Sibo and IMO came about.
@@joanneurbanowicz4994 No, I don't have these symptoms. I just had pain for many months until the inflammation subsided. Did you also suffer from acute pancreatitis?
25.35 - Oh is it ALWAYS the case, that checking in with your doctor is ALWAYS a good idea? You haven't met the "doctors" I have met it seems :D
Lol, I think I can guess, I’ve heard some real horror stories from our community on here. We always advise doing things under medical supervision for safety and because legally I can’t offer that outside of our clinic. Granted, it does depend a bit on the quality of your doctor!
8:26 You go by this really quickly , but the symptoms of low thiamine seem to be the same as taking ozempic or other weightloss Rx. Isn’t that curious….
Absolutely right❤
Thank you!
I find this very interesting. I would like to know how to adjust b vitamins for MTHFR people. I recently add B Compete and it made me sooo tired. Confused…
Thank you for all the information. I have read a lot about thiamine deficiency and Benfotiamine supplement and have wondered if Magnesium plays a role in the deficiency. Magnesium is required to transform thiamine into its active form. Therefore, I would think if Mg is low, B1 would be too. My husband has taken PPI drugs for a long time and I've read they can potentially cause Mg deficiency. He often feels tired and nauseous so I wonder if he's experiencing low Mg and B1. Do you have any information on this?
PPIs can definitely cause vitamin and mineral deficiencies if taken long term. There’s no harm in supplementing both thiamine and magnesium. If he’s on the sensitive side, might be worth introducing them one at a time to ensure tolerance
Why is benfotiamine so hard to buy? Can only be found on amazon. Most of the time not available. In our ‘health’ stores it’s not sold. And normal thiamin only in a very low dose. Even elliot doesn’t sell benfotiamine in a high dose anymore
Just do a Google search, it will come up in shopping. There's loads of it for sale!
I’m not sure. Luckily there are reputable supplement companies online but would be great to be able to pick things up locally!
Lots of it on iherb. Amazon sucks.
Swanson vitamins
What part of North America are you in?
Nutritional yeast is full of B vitamins
Can be a great source, especially for vegetarians/vegans
I have itchy skin eruptions from that.
I'll give it a go again. I noticed increase in tingling of H.F.M. But D3 has helped that. Too much D3 makes my eyesight blur.
Delicate system.
I take one or two flat teaspoons nut.yeast as well, but be aware of high purine content (gout..). I have tried 75mg benfothiamine/d years ago but it did nothing for me (no unwanted effects either). May try the disulfur thiamine now, somehow hadn't heard of it!
I wonder if I can find a chewable form for my super anxious boy , he is very picky eating, and I’m sure he would benefit from this vitamin
Also try giving him Reuteri yogurt (have to make your own according to Dr William Davis recipe). I read many comments, people saying their kids with gut issues or behaviour/mood disorders get better. Gut health and healthy microbiome is essential. It directly affects the brain. I also struggled with severe anxiety during pandemic, one supplement that helped me was L-theonine, not sure if it’s ok to give to kids. Research herbal adaptogens too. My anxiety was triggered by medications. So worth reviewing all the meds he takes or took in the past. Good luck ❤
Most forms I’ve seen are encapsulated, but looks like there’s a gummy version on Amazon. Might be worth a try
Why do you remove my comments with information wich could help valentina….
@@ainahaga it’s TH-cam’s censorship. All of my comments get removed. That’s their stupid policy. No one is allowed to know the truth.
@ yeah I know. Ive had low spo2 and low hrv also. I had to heal it myself! Its insane. Im still working on it but I think this is some of my life mission too! I do not need a doctor- they just prescribe you medications so they themselves can continue to live their fake lifes and people NEED to have a HARD time to awaken also.
Hello. Where can i locate and research a food elimination diet for hydrogen sibo? I have eliminated sugar but need a good source for diet.
I saw your excellent interview with Elliot Overton. Thank you.
Have you tried low FODMAP or SCD? Here’s more on that: drruscio.com/sibo-diet/
Thiamine in general causes lot of acidity
Is that something you experienced personally? Thanks for sharing
@@DrRuscioDCyes
Acidity in the GI tract or where?
Is it pointless to supplement with Thiamine as I have SIBO?
No, it isn’t pointless - it can still help with things like reducing fatigue, improving sleep, etc
Can I take benfothiamine and b complex together
I’ve tried low dose Thiamine HCL but it gave me heartburn. Do you think a different form of thiamine would be better to try?
I’m so sorry to hear that. Might be worth trying a different form just to see if you don’t have the same side effects.
You should take liposomal benfotiamine
How to give this to my daughter….. I give my son nutritional yeast he doesnt mind, but my daughter is more picky. Ive ordered b1 in gummies but its only thiamine HCL and that is not good enough is it with 100 mg of that daily with magnesium glycinate in gummies …. i feel stressed because my non awakened sister has my daughter some days and I feel stressed when I cannot give my girl some gummies and more healthy foods. Its stressfull situation so I struggle with my health too because Ive lacked b1 for years myself…..
Did you read that before you posted it? It's very difficult to read lol
I’m sorry, that sounds tricky. Could she swallow capsules? Encapsulated thiamine supplements tend to have the fewest additives/fillers so there’s that extra benefit too
Whats your view on food grown supplementation v synthetic?
It’s great - and optimal - to get vitamins, minerals, etc from whole foods/diet, but it isn’t always possible. Supplements can be tricky but there are clean and reliable brands out there that produce helpful products
Teeth and gum infections 20:11
Interesting, didn’t know this.
Muito bom parabéns 👏👏👏🇧🇷
Thank you!
Foods rich in B vitamins, therefore thyamine, spirulina, chlorella, wheat germ, nutritional yeast. To be taken every day.
Food-based sources of B vitamins are great! Definitely important. They don’t typically provide as much B1 as you’d get supplementing, so may still be worth the supplementation route
Please translate in Hindi language
I can help you
Thanks for this suggestion - I’ll see what options we have for providing translations
@@DrRuscioDC You can provide them with the transcript, and later they can use ChatGPT to translate it into their preferred language.
Translate true Goggle yourself😊
Recommends a supplement instead of a diet. Thus it's not a root cause solution
Literally included a list of foods, try actually watching the video before leaving a snarky comment
22:40
@@DrRuscioDC 😂
Do you think thiamine deficiency is involved even if the symptoms include ibs-diarrhea instead of constipation?
It is everything ans everywhere 😊
It’s certainly possible
@@DrRuscioDC thanks!