Chronic pain stop me from doing my schoolwork or learning to drive or staying in touch with people, but even sadder is no more writing. Even reading is a chore. I can’t even rest with my hands in my lap without pain radiating into my hands and up my body 😔 everything makes it worse. Passion is a thing of the past. It lives in my head now, with all my characters. I stare at the walls for more hours than they deserve. Sorry to hear about what’s happening with you 😔 stay strong xx
I'm really sorry to hear that. I'm fortunate that my chronic pain isn't bad enough to prevent me from enjoying some things, but you are absolutely valid in your experience, and I hope you can come to a point where your pain is at least manageable enough for you to enjoy your passions again. I do hope it's alright if I ask something though. Since you struggle with reading, do you find it helps to listen to stories in audio form instead? I ask because I create podfic of my work for vision-impaired readers, and I'm now curious to know if it might be helpful for other disabilities such as chronic pain too. Are there perhaps other accessibility measures that you'd like to see in the writing/fanfic world? I do plan on making some videos in the future on how we can make our fanfics more accessible to people with disabilities, so any insight you're willing to share would be appreciated 💖 but I also understand if you don't feel like telling me 👍
Hey sorry took me a while to get back to you 🧡 I had 1 billion exams. Honestly? I don't think I could ever listen to a story. I don't listen to podfics… I've never really had a chance either, because all my fandoms have been quite small. There's nothing quite like Reading it and hearing the characters voices in your own head. But I can imagine that for m any other people, having stories red by real human voices instead of bad text to speech generators it's a blessing. I don't think there's anything anyone can do to help me right now, honestly. If anything I can help myself more by picking myself up and finding ways to cope. In terms of accessibility though, I know there are some simple things people can do. Like not justifying their stories because I've heard that it can make it harder to read for some illnesses, but I can't remember which ones. Thank you for your lovely response 💝
I clicked on this because I'm also in chronic pain, and interested in various alternative fashions. I love sewing, and it's been hard to sew clothes while in pain, but I like having the freedom to make things with fabrics that keep me cooler, and comfortable. I miss going to different meetups and stuff, but they've been too much for me. I have to lay down with heat and/or cold packs and an electrolyte drink after spending time at events. I love sci-fi and anime conventions, but I find I can only go for one day instead of the whole weekend like I used to. I still have fun and can do work from home. The hardest thing but most important is just to remind myself that it's okay to take longer to do things (ex, I did my degree in 6 years including summers instead of 3-4), and that having supportive friends and family is key. I have a partner who helps me with things when I need it, and my mom lives closeby, so it's difficult, but not impossible.
Thank you for being so transparent and open with both the chronic pain and your intentions with the channel. I hope everything goes well for you with it, and I’m happy to follow you on your journey no matter the content. ❤️
Hey Cora! its great to have you back! Please take your time and look after yourself! we will understand and look forward to whatever you have for us! Its great you are still trying live your life to the fullest! its really inspiring. So from a fellow aussie, take care of yourself!
Hi Cora, I’m currently studying occupational therapy and I found it really insightful to hear about your experience of chronic pain and how it impacts your day to day life. Thank you for sharing and I wish you all the best 😊
Nice to see you in my sub box Cora! I hope me explaining this doesn't come off as accusatory in anyway, apologies in advance if it does. I'm not sure what the Covid situation is like in AU or what the rates of vaccination are in your city, but going to indoor dining unmasked seems a bit... cognitively dissonant? As a fellow disabled person and chronic pain haver it sucks to have the focus of the video seem to be about navigating disability, while negatively impacting other members of the disabled community (like those of us that are immune compromised). I hope you interpret what I say as more of a call in than a call out, and take some of what I said into consideration. At the very least maybe consider cutting out activities like going to restaurants/having indoor gatherings unmasked from the video, especially from one that focuses on disability. I do genuinely hope things are better for you over there and that any risks taken were minimal. I'm also very proud and happy that you got out of your abusive relationship. Sending lots of healing/good energy your way
No worries! I appreciate your message. Australia has been very cautious when it comes to Covid-19 (though restrictions have become more lax lately). I am fully vaccinated and so are most people, and we are typically very diligent about testing if we show any symptoms. The organisers also made it very clear that anyone experiencing symptoms should refrain from attending the event, and I also only took off the mask to eat and drink. Since I'm still new to navigating chronic conditions, I'll admit that I'm still on the learning curve on how to be a good ally to people with similar struggles. In the making of this video, I was more worried about being sensitive of how Australia's healthcare system differs from places like the US that I forgot to consider things like what living in the midst of a covid pandemic is like in other countries. Especially those who are immune-compromised. Thank-you for raising your concerns with such kindness and empathy. I'll think about cutting out the restaurant parts, but I don't know what I'd replace them with since I am out of footage and photos. At the very least, I can take this as an opportunity to educate myself and carry your feedback with me into future content I create and put on my channel. I know it's not a perfect solution, but I hope it helps.
@@CoraMaria Thank you for taking the time to respond! I know that it's something most folks have stopped thinking about these days, I'm glad Australia is in a better scenario than we are! As long as its something you think about going forward that's all I ask
Upload Cora here: Yep, still in pain 🙃
Chronic pain stop me from doing my schoolwork or learning to drive or staying in touch with people, but even sadder is no more writing. Even reading is a chore. I can’t even rest with my hands in my lap without pain radiating into my hands and up my body 😔 everything makes it worse. Passion is a thing of the past. It lives in my head now, with all my characters. I stare at the walls for more hours than they deserve. Sorry to hear about what’s happening with you 😔 stay strong xx
I'm really sorry to hear that. I'm fortunate that my chronic pain isn't bad enough to prevent me from enjoying some things, but you are absolutely valid in your experience, and I hope you can come to a point where your pain is at least manageable enough for you to enjoy your passions again.
I do hope it's alright if I ask something though. Since you struggle with reading, do you find it helps to listen to stories in audio form instead? I ask because I create podfic of my work for vision-impaired readers, and I'm now curious to know if it might be helpful for other disabilities such as chronic pain too. Are there perhaps other accessibility measures that you'd like to see in the writing/fanfic world? I do plan on making some videos in the future on how we can make our fanfics more accessible to people with disabilities, so any insight you're willing to share would be appreciated 💖 but I also understand if you don't feel like telling me 👍
Hey sorry took me a while to get back to you 🧡 I had 1 billion exams.
Honestly? I don't think I could ever listen to a story. I don't listen to podfics… I've never really had a chance either, because all my fandoms have been quite small. There's nothing quite like Reading it and hearing the characters voices in your own head. But I can imagine that for m any other people, having stories red by real human voices instead of bad text to speech generators it's a blessing. I don't think there's anything anyone can do to help me right now, honestly. If anything I can help myself more by picking myself up and finding ways to cope. In terms of accessibility though, I know there are some simple things people can do. Like not justifying their stories because I've heard that it can make it harder to read for some illnesses, but I can't remember which ones.
Thank you for your lovely response 💝
I clicked on this because I'm also in chronic pain, and interested in various alternative fashions. I love sewing, and it's been hard to sew clothes while in pain, but I like having the freedom to make things with fabrics that keep me cooler, and comfortable. I miss going to different meetups and stuff, but they've been too much for me. I have to lay down with heat and/or cold packs and an electrolyte drink after spending time at events. I love sci-fi and anime conventions, but I find I can only go for one day instead of the whole weekend like I used to. I still have fun and can do work from home. The hardest thing but most important is just to remind myself that it's okay to take longer to do things (ex, I did my degree in 6 years including summers instead of 3-4), and that having supportive friends and family is key. I have a partner who helps me with things when I need it, and my mom lives closeby, so it's difficult, but not impossible.
Thanks for sharing your experiences. I'm glad you've found a way to live your life in a way that works for you 💖
Thank you for being so transparent and open with both the chronic pain and your intentions with the channel. I hope everything goes well for you with it, and I’m happy to follow you on your journey no matter the content. ❤️
Thank-you for the support 💖
Chronic pain gang it’s difficult out there remember to take time for yourself and be kind to yourself
Thanks for the encouragement 🙏 and I hope you're taking care of yourself too 💖
Hey Cora! its great to have you back! Please take your time and look after yourself! we will understand and look forward to whatever you have for us! Its great you are still trying live your life to the fullest! its really inspiring. So from a fellow aussie, take care of yourself!
Thanks so much 💞
I recently subbed to your channel and so far love your content, colors, and vibe. I hope things work out for you in the long run! ❤🧡💛💚💙
Thank-you! I did get a job recently so that helps
Hi Cora, I’m currently studying occupational therapy and I found it really insightful to hear about your experience of chronic pain and how it impacts your day to day life. Thank you for sharing and I wish you all the best 😊
Thanks so much! Glad to have helped and it sounds like you're going to help a lot of people someday 💖
Commenting as second kudos.
You know the culture well 💖
@@CoraMaria I learned it from watching you. Best wishes for your pain management.
@@ScottRawlings1138 Thank-you 💖
Nice to see you in my sub box Cora! I hope me explaining this doesn't come off as accusatory in anyway, apologies in advance if it does. I'm not sure what the Covid situation is like in AU or what the rates of vaccination are in your city, but going to indoor dining unmasked seems a bit... cognitively dissonant? As a fellow disabled person and chronic pain haver it sucks to have the focus of the video seem to be about navigating disability, while negatively impacting other members of the disabled community (like those of us that are immune compromised).
I hope you interpret what I say as more of a call in than a call out, and take some of what I said into consideration. At the very least maybe consider cutting out activities like going to restaurants/having indoor gatherings unmasked from the video, especially from one that focuses on disability. I do genuinely hope things are better for you over there and that any risks taken were minimal. I'm also very proud and happy that you got out of your abusive relationship. Sending lots of healing/good energy your way
No worries! I appreciate your message. Australia has been very cautious when it comes to Covid-19 (though restrictions have become more lax lately). I am fully vaccinated and so are most people, and we are typically very diligent about testing if we show any symptoms. The organisers also made it very clear that anyone experiencing symptoms should refrain from attending the event, and I also only took off the mask to eat and drink.
Since I'm still new to navigating chronic conditions, I'll admit that I'm still on the learning curve on how to be a good ally to people with similar struggles. In the making of this video, I was more worried about being sensitive of how Australia's healthcare system differs from places like the US that I forgot to consider things like what living in the midst of a covid pandemic is like in other countries. Especially those who are immune-compromised.
Thank-you for raising your concerns with such kindness and empathy. I'll think about cutting out the restaurant parts, but I don't know what I'd replace them with since I am out of footage and photos. At the very least, I can take this as an opportunity to educate myself and carry your feedback with me into future content I create and put on my channel. I know it's not a perfect solution, but I hope it helps.
@@CoraMaria Thank you for taking the time to respond! I know that it's something most folks have stopped thinking about these days, I'm glad Australia is in a better scenario than we are! As long as its something you think about going forward that's all I ask