Living with Agoraphobia

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  • เผยแพร่เมื่อ 1 ม.ค. 2025

ความคิดเห็น • 53

  • @silly_pau
    @silly_pau  8 หลายเดือนก่อน +116

    hi sleepyheads, this is a very personal video to me, and has a vey different tone from all my other videos,, i urge you to not watch it you know it'll be triggering as i discuss heavy topics,, i hope that the message of this video is positive and gives off hope, which is the only reason why i went through publishing it.
    I didn't really go into detail of what agoraphobia really did to me because this was just meant to be a short video, i do feel inclined to mention that this is a disorder that can really mess up your life forever,, it robs you from living. if you need help,, please ask for it,, it's the first step toward getting your life back,, take care ♥

    • @unknownentity7964
      @unknownentity7964 หลายเดือนก่อน +2

      @silly_pau thank you so much for making this video! I never thought I would find someone else who is anything like me. My family makes fun of me for needing to wear my my headphones so much (always in full active noice cancelling mode), day and night, even when I sleep. It's one of the few things that I can use in order to even halfway cope with life and the outside world.
      My family don't understand how much I desperately need that buffer of headphones between me and the outside world. I think they forgot just how bad my meltdowns use to be (sometimes hours long...) and how often I had them when I didn't have any coping tools like my headphones to mitigate them. I've gotten very good at avoiding *any* possible meltdown triggers these days, so as a result they very very rarely happen anymore! (yay! I'm very proud of myself for being able to reduce my meltdowns like this! But I don't really have anyone who I can celebrate this achievement with).
      This reduction in meltdowns started a few years ago, which lines up with when I began to avoid the outside world as much as possible. The idea was, that I would get away from as much negative stimulus as possible, avoiding the major meltdown triggers. Then, in the meantime I'd have therapy to develop coping mechanisms in order to cope without needing to hide from the world and without triggering a meltdown. Then gradually I could reintroduce things back into my life, until I was ready to 'rejoin' society again, without having a meltdown.
      This plan did sort of work... Well, I've developed much better coping strategies, but it isn't enough yet to enable me to be able to (random example) go out to the shop to buy grocieres etkwithout utterly freaking out. But I can do a bit more than before, with no meltdowns. I also have physical issues that go outside, let alone leave my bed and get up into my wheelchair. It's even more limiting than my agoraphobia, curirently.
      Even at home, I'um still not able to relax and be on my own, because my disy90y9] 🎉i🎉ability means I need full time caregivers who are always there. This is as well as nurses who come twice a day to manage my daily IV treatments, plus various other medical people and/or different speciality nurses who come visit me for other medical reasons/treatments. Often, they don't tell me even a vague estimate of when they'll arrive. At best, they may say something like "I'll be there any time after 11am"...which isn't exactly precise! I struggle so much with this aspect of the nurse visits, because it means my mind can never relax. I need things to be exact and to know as much as I can in advance. My nervous system is therefore constantly 'on guard', as it is preparing itself for them arriving at any second. It's something I'm also workin*[1y1on in therapy, but the progress is very slow :(
      Totally different topic now though - So much of what you said in your video, is as if you had looked into my mind and were writing about what you saw in there! For years, I've felt so utterly alone with the way my brain works, feeling like I'm totally different to everyone else but unsure of how to make myself more like them. I look at others and I don't know how they are able to cope with all the daily life 'stuff' as well as a job and friends and family and hobbies and more... where I'm here struggling with even the basics...urgh...
      I'll try not to write too much in this comment. Apparently (according to my brother) I have a habit of doing that (writing too much), and he says it'll put people off wanting to read anything I write. I don't know if that is true, because when I see other people have written long comments, I really like it because then I can get more of an insight into them end their thoughts if they've written lots. But my brother often has to remind me that other people do not think like me, and that I'm the unusual one not them. So maybe he is right.
      Another thing my brother told me is that I include far too many personal details. I don't understand this though, because the point of commenting is to give your own opinions and experience about things, isn't it? As well, I don't know how I'm supposed to know how much is too much. Other people seem to have some internal sensor that automatically tells them what is right or wrong. But I never had that sensor installed in my brain, it seems haha!
      So I'm sorry if this comment is too long or TMI, I just don't know when/if what I'm writing is socially 'wrong' for whatever reason, that I'm not aware of...
      As I mentioned at the beginning of my comment, I want to discuss friendship with you. I don't know if this is weird also, but I would very much like to be friends with you. If you find it too strange or scary, that I (a stranger) wants to be friends then that's fine, I understand. I know that I am weird in general, so adding in me being an online total stranger to you means that I completely understand if you are freaked out by me and have no interest in being friends.
      I am very shy and I've never before had the confidence to go up to someone (in person or online) and simply ask them if they want to be friends. But something about your video gave me the courage to write this comment to you and see if you'd like to chat a bit to find out if we could be friends! I think that I felt brave enough to ask, because I finally found someone else who is like me in certain ways that I've always felt isolated over.
      But again, no worries at all if you're not interested! Though if you're not sure about saying yes or no because I am a total stranger to you, then I can tell you a little more about myself so you can use that extra info decide if you're interested in a friendship with me or not (and so I'm less of a stranger, as I know you from your video but you don't know me in return). I hope that makes sense?
      Regardless of if you'd like to chat with me with the hope of that chat turning into friendship, I still appreciate you reading my comment and getting this far! So thank you for making me feel like I'm not alone and I hope your life and your agoraphobia improves :) and I apologise if I've been too weird, if I've written too much or if I've made any other social etiquette related mistake without realising. If I did, then please let me know what I did wrong so that I can do my best to avoid making that mistake again!! Thanks again and I can't wait to see more of your videos :)

    • @retroplayer4610
      @retroplayer4610 26 วันที่ผ่านมา

      Many people can become a shut-in because of inner struggles, traumas and even fear: the fear of getting hurt, the fear of being deceived, everything. As a boy who suffers with epilepsy and fighting against bad thoughts everyday; I know how it feels to have a world inside of your mind and about the fictional characters, i can relate to OMORI/Sunny sometimes and even makoto yuki from persona 3. But still, it's a good video who made me understand how agoraphobia can make someone fall slowly to a reclusive and painful state. that was a great video and i will tell you. Take care you too. your videos can bring hope and even put a smile in people. Thank you

  • @Strikertheshwrk164
    @Strikertheshwrk164 หลายเดือนก่อน +69

    I’ve had derealization for so long now especially after I tried to commit it’s really nice to see someone talk/mention it some times it gets so bad I have to ask someone to make sure that we are all real thank you for sharing your story

  • @Joshua2444-d3b
    @Joshua2444-d3b หลายเดือนก่อน +38

    Love how you used the OMORI headspace music. Thank you for sharing your experience with agoraphobia and I hope it will get better over time. I hope the best for you.

  • @MidoseitoAkage
    @MidoseitoAkage 8 หลายเดือนก่อน +64

    Man, who cut the onions here?
    In serious matter, that's sound terrifying to suffer this. I learned that everyone have his own fight and I bet this kind of fight is quite hard. On that, I can say that you can do it. I'm glad that you have at least some friends to helping you. You can do it and show that this anxiety is no match against you! Thank you for sharing your story, Pau.

  • @EarphonePretzel
    @EarphonePretzel 8 หลายเดือนก่อน +36

    All of this sounds really terrifying to experience. Hearing your story not only shows me what other people with other conditions see the world and how they live but I think it's inspiring and admirable to see people like you put in the effort to overcome your struggles and keep being your very best.
    Another thing: Fiction really is a treasure. Sayori is one of my favourites too. When it comes to relatability, personality, struggles and so much more, you're essentially limitless with how you or just anyone, would like to make a character, and there will always be something very special to you about certain characters that you look at and feel connected towards in one way or another.

  • @VENOMIIIIIII
    @VENOMIIIIIII 28 วันที่ผ่านมา +7

    For those who are confused about what it feels like:
    It's like when your being bullied and you start getting scared to go to school.

  • @BeastWarzIII
    @BeastWarzIII 8 หลายเดือนก่อน +28

    I’m so sorry that you had to go all through that, I do know that kind of pain.

  • @PieDivide
    @PieDivide 8 หลายเดือนก่อน +40

    thank you for sharing your stories and experiences, it must have been a lot being vocal and vulnerable about it in the form of a video but doing it to not only better your own understanding, but to also try to help others is a really wonderful thing!!

  • @LukasLuke2
    @LukasLuke2 4 หลายเดือนก่อน +18

    I can’t stress enough not only on how much Futaba Sakura means to me, but also why she is my favorite fictional character. She was the first character where I truly related to.
    You see, I’m autistic, and Futaba was such a big influence on my self esteem. Even though her being autistic isn’t canon to my understanding, seeing someone with autistic traits go through her own personal struggles and learn to love herself, not by “curing” or “fixing” her autism, but by getting help from people who treat her like a human being, was so impactful to me. I rarely saw any autistic characters like this, and me coming to the that realization, “oh dang, this character is like me,” brought so much joy to me.
    And I know very well I’m not the only one. A lot of other autistic people feel the same way, alongside other characters. And seeing others share why she means so much to them, create fan art, or even just doing the same for other autistic characters, head canon or not, is so heartwarming to me.

  • @larval_nema
    @larval_nema 8 หลายเดือนก่อน +20

    sleepyheads is really cute... i'm happy that you ended up going with that

  • @randomkid6236
    @randomkid6236 8 หลายเดือนก่อน +11

    This video deserves to be seen by so many more people

  • @prettylionadoll
    @prettylionadoll หลายเดือนก่อน +11

    i used to struggle very very badly with agoraphobia . i was super lucky - my family never let me get to a point of no return. i seriously am stressing this : IT GETS BETTER 💗 don't give up.

  • @StrawberrySteam
    @StrawberrySteam หลายเดือนก่อน +4

    I hope I don't sound generic or ungenuine when I say this, but this video really resonated with me. I also have Autism as well as ADHD, and a lot of the experiences you mentioned in this video align with the ways I've felt throughout my life. I've been very reclusive and a shut-in since I was a child, and it'll be a long road until I fully recover from it all, but this video truly helped me understand myself better, and helped me hold onto hope, I believe we can get through this 💙

  • @riv2457
    @riv2457 8 หลายเดือนก่อน +23

    Oh my goodness do I get that character line up haha, futaba also was great moment for me when dealing with the worse of my depression. She made me feel seen and i felt my issues were valid for once. And thank you for sharing your story, its always good for me having reminders that things can get better.

    • @riv2457
      @riv2457 8 หลายเดือนก่อน +2

      I'm also curious who is that character holding the book between Maya and Bianca? If you don't mind answering

    • @silly_pau
      @silly_pau  8 หลายเดือนก่อน +2

      ​@@riv2457Vera from Apollo Justice: Ace Attorney ^^

  • @Rain_pawz
    @Rain_pawz หลายเดือนก่อน +4

    I’m so sorry that you had to go through that, but just remember that we’re here for you and we want you to be ok

  • @aperson2739
    @aperson2739 8 หลายเดือนก่อน +9

    Thank you for shareing your story and your drawings are buetiful

  • @Кира-е2ы3г
    @Кира-е2ы3г 5 หลายเดือนก่อน +8

    thank you, truly

  • @blvshh
    @blvshh 8 หลายเดือนก่อน +9

    im so sorry that you've had to go through all of this, but im so happy to hear that you have improved! i personally havent went through any of this but i know that this video and many others like this will help people in your same situation, thank you for this video and i really hope it gets more attention!

  • @nookynooky
    @nookynooky หลายเดือนก่อน +3

    your so underrated, you need more likes and love

  • @Axmed-wali
    @Axmed-wali 8 หลายเดือนก่อน +12

    Thank you for shaing pau❤
    I'm also struggling at the moment

  • @URMOM140-v4k
    @URMOM140-v4k 4 หลายเดือนก่อน +7

    I SAW SAYORI!! SHE IS MY FAVORITE!! also, I hope things are better, now... :(

  • @ItsAllNunya
    @ItsAllNunya 22 วันที่ผ่านมา +1

    Ive struggled with agoraphobia for many years as well. I hope we can both find more safe spaces.

  • @therealdeal680
    @therealdeal680 23 วันที่ผ่านมา +1

    Any improvement is good improvement: even a single step towards a goal leaves you one step further.

  • @C0PRSE
    @C0PRSE 23 วันที่ผ่านมา +1

    This really touches something deeply in me. I suffer a lot of traumatic things that made me develop a lot of fears, and even my my meds and counseling, it doesn't hide it like you've mentioned it. I also grew an attachment with my headphones and become overwhelmed if i dont have something covering my ears too.
    Thanks for bring it up, this inspired me to create something

  • @mekiryu
    @mekiryu 8 หลายเดือนก่อน +4

    I believe you can do this! You are strong and you are amazing you are such a strong person for facing such a big fear like this, you are a hero to yourself for making this big of a change, going to a psych ward and going outside is already alot! Just remember you are powerful for doing this you are amazing! Try forgetting the past even if it was too traumatic and start focusing on your future! I know it's another big step but you can do it! I seriously wish for you the best! You are UNSTOPPABLE! you can do it!!

  • @aleckinsella2805
    @aleckinsella2805 8 หลายเดือนก่อน +6

    Pau im so sorry you had to go through all of that pain and I really hope it can improve ill never know how it feels but I hope you know that things will get better :)
    also we have been called sleepy heads :)
    Also thank you for sharing this :D

  • @yumeshapiro3653
    @yumeshapiro3653 หลายเดือนก่อน +2

    this is so cute i love u sm

  • @blytheist
    @blytheist 28 วันที่ผ่านมา

    I've suffered from agoraphobia for roughly 2 years now, I struggle just to go 15 minutes away from my home. It's kind of crazy this isn't as well known as it is, because it truly is a debilitating disorder, I wish people in my life understood just a little bit more. It truly is depressing, especially when you want to go places without bringing a bunch of safety items or fearing a panic attack. I feel trapped in a prison while I watched others live their life in envy. I'm glad you were able to overcome it, because it gives me some sort of hope.

  • @AlmightyScorchy
    @AlmightyScorchy 6 หลายเดือนก่อน +2

    Hope it’s better now!

  • @Knackiboy
    @Knackiboy หลายเดือนก่อน

    Well, this is heart-warming to hear, I really like your videos, I hope everything is getting a bit better for you, but don't give up, you're doing well.

  • @mizusaki_alienalien
    @mizusaki_alienalien 8 หลายเดือนก่อน +12

    ❤️

  • @pedroba76
    @pedroba76 28 วันที่ผ่านมา +1

    I watched this video and remembered your psych ward video too, and while watching this, I feel like crying, and at the same time, I really feel like giving you a hug. I feel tears in the eyes even though I can't understand the fullness of your experience or what you went through.
    It's good to see that you're feeling much more comfortable with yourself and sharing this, on your channel.
    I just wanted to ask a thing: You said in the video that the psych ward was terrible but at the same time a necessary step: Why exactly? Sounds horrible.

    • @pedroba76
      @pedroba76 28 วันที่ผ่านมา

      To clarify, I asked that last question because I have not wanting to have therapy, both because I mostly feel it being useless, or feel misunderstood there, or when it works, it comes at the cost of crying.
      So I have wondered if going slow and steady on self-overcoming would be better, than having intense "painful experiences for long-term results".

    • @silly_pau
      @silly_pau  27 วันที่ผ่านมา

      as much as it hurt, they did actually treat me like in a hospital for my physical injuries, and started much needed treatment for my bulimia, my sleeping disorder, my recurring psychosis, and a bunch of delibitating stuff..
      the 'conditions' i was released in, were that i continued said treatments and kept tabs with multiple doctors, as well as mandated therapy.
      was it worth going through all of that to start actually getting treated, and have people around me drastically shift how they view me and suddenly everyone loves me so much and wants me to stay alive?
      that really conflicts with me...
      i think its unfair... that people had to see me in those conditions,, and i had to go through that... for anything to change...
      and what a change it was...
      but,, was there any other way?
      which is why i can't ever deny that the psych ward, even with their ghoulish treatment, was the only path in the crossroads where all other roads lead to me dying...
      whether i was better or worse after it is a different story,, ^^

    • @silly_pau
      @silly_pau  27 วันที่ผ่านมา +1

      in a better world, i would've gone to a psych ward with better conditions and quality of life, and all of this would happen minus the cruelty,, but because it was decided in the midst of chaos by police and paramedics, i was truly left powerless

  • @yutsox_x
    @yutsox_x หลายเดือนก่อน +1

    Thanks, you help me.

  • @my-name-is-celeste
    @my-name-is-celeste 8 หลายเดือนก่อน +5

    💖💖💖

  • @Caprisunorsomething
    @Caprisunorsomething หลายเดือนก่อน +4

    I'm sorry:(

  • @mistthermite7791
    @mistthermite7791 หลายเดือนก่อน +1

    the omori music is rather fitting

  • @gapiyuustdgf98YOUISFJY
    @gapiyuustdgf98YOUISFJY หลายเดือนก่อน

    did i just spot a refrence to milk inside a bag of milk inside a bag of milk

  • @godemperormeow8591
    @godemperormeow8591 21 วันที่ผ่านมา

    My agoraphobia is severely crippling. I have extreme fear of exhaustion, dehydration, starvation, and the weather giving me an early retirement. All of this due to having an overactive thyroid that makes me feel like I am literally on fire but doesn't show up on blood tests but definitely hurts once I consume iodine. Severe panic attacks as well. My US state reaches 100 degrees in summer so that's not helping. It rough. 😟

  • @NahuelPereira-o9b
    @NahuelPereira-o9b หลายเดือนก่อน

    2:23 i heard the DDLC music and the word "sucide", i think i can see where this is going

  • @RealAcelin
    @RealAcelin หลายเดือนก่อน +3

    1:49 song?

    • @riii-x1h
      @riii-x1h หลายเดือนก่อน +2

      @@RealAcelin Lost At A Sleepover from OMORIS OST

  • @Jeffandonutsbutbi
    @Jeffandonutsbutbi วันที่ผ่านมา

    I also have a weird phobia, molluscophobia. Its the fear of snails and slugs. I also have the fear of shots and vaccines (kinda embarrasing)

    • @Jeffandonutsbutbi
      @Jeffandonutsbutbi วันที่ผ่านมา

      I also dont like any invertabrates like worms, larvae, anenomes, caterpillars, etc. i dont like to imagine the feeling of touching them

  • @Daviz_zin
    @Daviz_zin หลายเดือนก่อน +2

    👍🏻

  • @RustShyRabbit.
    @RustShyRabbit. 8 หลายเดือนก่อน +6

    🫂