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Thanks for this information. I’m having mine done in a few days. My question is how long do I stay away from hydropool spa…etc.? Thanks.

What was the medicine he put you on?

Thanks for sharing. I wish it was this easy to apply when it came to chronic illness for malnutrition and chronic pain. If you can eat you weak and body shuts down u basically can’t do anything it makes it hard to make goals etc. TPN (nutritikn through the vein) is short term but I did it for over 2 in half years but got 9 DVT (blood clots) because of it! Feeding tubes you say yes yes 19 of those and infection remember I am sick in my stomach bleeding ulcers. Do to stress. Of course show me how to not be stressed lol I try but very difficult because sometimes I stress within myself and don’t realize. Anyways live the video❤ keep them coming

Hi, I am in love with a guy who has EDS and mitochondrial disease as an adult. I met him through a dating app. I want to know the chances of this disease being passed down cause he is rejecting my love due to his anxiety

With EDS its helpful to keep the nervous system very strong and healthy.

one of the first vids i watched years back while researching, now i’m returning before my surgery. thanks so much

Name of doctor with adress plz

Great, practical tips. Thank you.

Does anyone know how IC is diagnosed?

Its my 3 rd day of recovery of lapa csn i drink coffee

Thank you so much for this video. It encapsulates everything I have kept in my throat because I have felt "what will change? Who will listen?"

Thanks for this. I wash I had seen this before my surgery but I feel validated in my experiences. I had no guidance whatsoever and I didn't know what was coming.

Can you suggest a good urologist in Mumbai for painful bladder syndrome which helped you

Hi ...i am suffering form this since last 5 years and i don't know how long it will go ...how to get red of it how to manage it and i always have one question and i couldn't found answer...and i am seeking this answer from you...if you can answer me out of your research on interstitial cystitis ( IC) What cause this disease?

After endometriosis surgery r u taken dinogest tablets

I have all symptom hyper mobile eds but genetic say I haven't please help me

Amazing information

Did you do any Cystoscopy?

Thanks to Doctor.I am so happy to come across the great doctor Isibor TH-cam channel. I am now completely cured from pcos with his pure herbal product.🎉❤

Thanks to Doctor.I am so happy to come across the great doctor Isibor TH-cam channel. I am now completely cured from pcos with his pure herbal product.😊❤

I’m getting the surgery and have hEDS too! How are you feeling now?

Thank you 🙏 ❤

Your voice is soothing 😍

Thank you for your video. Very explicative on your story. My situation is exactly the same, without endometriosis and fibromialgia, but together with the bladder (it all started 7 years ago) I have blurred vision. Is there any blood teste that could indicate the MCAS syndrome? Also do you mind to share the last medication your reumatologist put you on? I'm asking because I followed anything relatable to IC and EmbeddedUTI but nothing worked.

Look into Mast Cell dysregulation (could be due to a suppressed immune system that is overreactive). This may play into the issue with the IC pain. Check out Mast Cell 360. Antihistamine and many other things like quercetin, luteolin, bromelain and many other things may help. Also, Anti-inflammatories, could be considered. Things like Boswellia Serata, SPM (pro resolving mediators), Black Cumin seed oil.

Hey hope you are keeping well I can get your doctor’s details who treated you in mumbai

Hi there ! After having surgery everything will be fine ? actually i m going for surgery soon

Fix your gut, rebalance it with various potent good bacteria not just any old thing you find in the shop. Take boulardii, get rid of candida and take rhodiola. It all comes from the gut

Ty. I'll see if this works for fingers.

Thank you so much for these tips and informations! I had no idea about many of those things! I'm going to have the same surgery in less than two weeks and I'm starting to become a little bit nervous. This helped, I like to know what to expect. I also love how organised this video is. Thank you!

Hi I am wondering if you had the endometriosis on your bladder? I had a full hysterectomy 12 years back and had the endometriosis on my bladder, that I had several operations to remove it including laser treatment to remove it, now.I am experiencing sharp pains in my mid lower abdomen, in the bladder area, and groin pain, as well.as.other symptoms. It's a nightmare with docs.who.just.want to address one area.one symptom, when I think.they are all connected. Most docs don't listen.

Thank you for sharing. I just had my second surgery and my healing is slow and hard. I am glad that there are other people out there that are young through the same thing. This has been very draining both physically and emotionally and I feel like no one around me understands what I am going through.

My biggest trouble has been dealing with the guilt that comes with being upset/sad when plans change suddenly, and then I am informed it’s due to my partner’s chronic illness. I’ve been getting better, both with being more understanding but also allowing myself to feel emotions :))

Thanks for Sharing great vid x

I got it too but i don't know what caused it but power of prayer

I feel u

What medications are you are on?

I was diagnosed with PCOS at 10yrs old. I have suffered with this for 28+ years. I take medication to lessen body hair but the face is hormonal. I do the best I can to take care of it but its played a huge part of self conscious/self worth my whole life. I even cringe if my kids touch my face 😢

Thank you!

I have ehlers danlos syndrome and every minimal pimple on my face transforms on a huge atrophic scar, sometimes I feel down bc even if I only have like 5 pimples each year I get 5 new scars

This was so incredibly helpful. After hearing your story, I thought, ‘gosh I can relate in so many ways.’ And as a woman with a history of autoimmune disease, this makes perfect sense. I will continue to educate myself and follow your videos. Thanks!

This was extremely helpful I had my surgery in June and now everything is worse tenfold.

Hi what medication did your doctor give you for IC?

Hi my beautiful ❤ first thank you so so so much for your video All what you have said is sooo truue ❤ I have a question and I really need you to respond me _ for women with hurshitism who have hight level of testosterone ,, can laser be a definitive solution for hair growth ?? ( After many sessions ??) Because I have found that for women with hight level of testosterone even if she do laser ,but testosterone will cause hair regrowth 😢 I really don't konw what to do

I think main role is in your healing journet of rheumatology

I had my first at age 78. I had flank pain in my leg. Has anyone else had that ?

Are you a dr? I was diagnosed with adenomyosis. I have hormonal imbalances and was treated for endometrial hyperplasia with atypia. It was an ordeal years of treatment which later led to my breast cancer. I had painful periods since I started menstruating and suffered from fibromyalgia too. It took years to know finally why I’ve been suffering from chronic body pain especially when I have my period. People thought I’m making stories about my body pain. Very frustrating. At least now they believe me.

Dr Budrick on TH-cam has a great theory regarding persistent uti when tests are negative.

Is there anyway to undo mast cell activation? What was the medication you were prescribed?

What medication did he give you? Thanks so much for the video was all the things I’m dealing with