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I bet this video has helped thousands of people reverse thier EDS naturally. Thank you❤

I have EDS, fibromyalgia, Adenomyosis, and under investigation for MCAS.

I have both. I see EDS as the underlying cause of my fibromyalgia.

Mere 28 sep ko fabroid ka operation hua tha or muje septum bhi hai. 1 oct ko Leuprolide 11.25 injection laga or 10 nov ko muje period a gye hai ab kya karna chahiye. Injection lagne k baad period ate hai kya

I loved this. Thank you.

Address &telephone number ?

My boyfriend tells me I'm selfish for going to hot yoga or sleeping 8 houra as a single mom w EDS, no support & previous stroke

I'm still in the medical gaslighting phase. My doctors continue to tell me that it's no big deal

Hello.. i had robotic surgery for endometriosis.. its been 6 days after surgery.. doctor suggested me to take zoladex injection for 3 months(once in a month).. so plz help me should i take this injection or not??

oh it's also can be menopause joint muscle pain same as fibromyalgia! exactly same! it si due to hormone something, it is pain like fibornyalgia due to menopause and not fibromyalgia. the real woman with that pain due to hormone of menopause told me (she wasn't fooled with 'firbromyalgia' as she is medical)

What medication were you put on ?

I have heard this too. Women exaggerate pain. They seek attention….

The urodynamics examination are straight from hell lol❤, I will never allow that again, especially as now I have the IC diagnose- after cystoscopy under general anaesthesia, so hopefully I won't need that again.

❤

Salut ! Merci pour tes conseils. Pour ma part, j’utilise des vêtements compressifs sur mesure qui m’aident en cas de douleurs, et l’oxygène. Je fais du yoga 🧘🏻‍♀️1x/semaine, je cours 1x/semaine, je passe mon temps à boire de l’eau, et j’évite de manger des fruits après les repas. J’adore les goûters, mais je suis habituée depuis toute petite à avoir ma dose de sucre et ça me revigore. Cependant, ce n’est pas recommandé. J’ignore quel travail font les Ehlers-Danlos, moi je suis perdue avec ça. (Au niveau Professionnel)…je cherche toujours ma voie… J’adore l’astrologie, la musique, la peinture. Je peux faire plein de choses mais pas trop longtemps. (Je me fatigue vite). J’ai également remarqué que manger trop de pain fatigue énormément , et que le système hormonal (le cycle féminin) avait clairement un lien avec les douleurs. Le pire pour moi, ce sont les repas de famille interminables. Sinon, comme tu dis, il faut se créer des petites routines. Je vois régulièrement psychologue, kinesiologue, et l’idéal c’est de faire de la fasciathérapie (mais pas remboursée en France, hélas). Et surtout, si j’ai bien un conseil à donner c’est de ne pas vous faire craquer par un chiropracteur ou ostéopathe parce que c’est à cause de ça que je suis « rouillée » aujourd’hui.

I just want to help her. She's a beautiful soul, but sometimes I feel so helpless and I feel like I don't do a good enough job even though I'm trying so hard. I love her though, and I'm learning how to handle these situations better

Can uh help me as uh said tht ur also a sufferer with this .......from lst 1month nd 9days ...it strted aftr urination i got burning sensation nd heating my urinary area nd vaginal area tooo.... aftr 3,4days i deal with frequent urination +urge to urinate ...i go to washroom 6,7tym in a day not in night ...nd becz of this i hesitate to drink wter bcz of frequent urination ....so sometimes little urine come sometimes more ... Plz help me i hve a kidney nd bladder problem ....both kidney nd bladder pain ...my urine is hot ...wht to do sometime vaginal itching also plz help wht is this i tired of this urge to urinate but sometimes urinte little ..why i am fed up i am a collge student ....i also suffer from gerd from lst 4months

Thank you so much for sharing!

I have only just found this website. I am 86 years old and have only just been diagnosed. My youngest daughter was diagnosed first and I didn't know what she was talking about, but then my son got leukaemia, and my granddaughter was diagnosed. I then thought I should pay to go to the same consultant for his opinion. It took him no time at all to confirm I had EDS. He was asking me all sorts of questions about my childhood but as I pointed out I was born in the war and the main problems were staying alive and hoping we didn't get bombed and also that we could get enough to eat. He showed me how my joints did odd things and my skin could be stretched so easily. However, having read all the comments, "growing pains" was mentioned over and over again when I was growing up. My fingers get so cold and difficult to use as I have Raynauds disease. I have seen so many doctors and specialists and have been told first I had Parkinsons, then Lewys Disease. Pain management said I should see his Physio, but all she said when I nearly fell over was that I was doing it deliberately. I gave up in the end. I have always been anaemic and have to have injections weekly. Now I think there is a question that maybe I should have a test for leukemia. I haven't mentioned all the symptoms like knee replacements, as I could write book I have always fought against being ill and have had a life full of sport as well as working all my life. Tennis, Horse Riding, Squash, Badminton and table tennis. Trouble was that slowly I got injured so many times, I had to admit defeat and give up one by one. It's a bit late to look forward to many more years which is very sad so obviously I get very depressed but at least I know what it is all about now and will try to stop worrying about people and doctors thinking I am a hypochondriac.

Mam, Iam eds patient If you possible you can help me......

Iam eds patient madam

You are telling my life’s story… only that I have worsened my pcos again by actually not taking care of my health and hairs are back stronger and harder and coarser… all the words you can choose…

Can u tell me which doctor? If u did it in mumbai?

Im so glad i had mine 3wks ago and Im okay thankyou lord and bless my surgeon

Good information

It's aweek ago after the surgery and so far so good I thank God

Can u make a support group plzzz ?

Any1 frm india here ?

What did your dr prescribe for this?

I also went home with a catheter & can confirm it was the worst week of my life. I barely slept and paced around my house & cried pretty much the whole time. It was so much worse than I could have ever expected

Diagnosed earlier in 2023 but having a incredibly difficult time finding care, or anyone knowledgeable in my state. I have to cystic facial bumps as well do you have any advice on clearing it...?

I had painful bladder syndrome for over 10 years I am now healed from it using mind body work

My period pains are so painfully and l sleep for hours

Anybody here tried Acupuncture? I had it on the NHS at my local Hospital, it works, but I had to stop as I have Peripheral Neuropathy,in my Legs and Feet, and the Acupuncture because its done in the Ankle can make it worse..

Hiii mam, I was recently diagnosed with Ehler danlos syndrome, I am a doctor by myself, but I want to talk to you. How to connect to you mam?

After my surgery last Aug 2023..untill now l felt pain inside and l do certain things here inside my house.

Omg this is my story too. Thank you so much for putting this information out there. Most general doctors don’t know about this. I was put on antibiotics for years with no infection evident.

Is get pergnant with hirsutism ???

Good eveing after the surgery does endometriosis occur again? how do you feel now? Can you conceived? After laposcopy surgery do you mentrate normal?

Thanks for this information. I’m having mine done in a few days. My question is how long do I stay away from hydropool spa…etc.? Thanks.

What was the medicine he put you on?

Thanks for sharing. I wish it was this easy to apply when it came to chronic illness for malnutrition and chronic pain. If you can eat you weak and body shuts down u basically can’t do anything it makes it hard to make goals etc. TPN (nutritikn through the vein) is short term but I did it for over 2 in half years but got 9 DVT (blood clots) because of it! Feeding tubes you say yes yes 19 of those and infection remember I am sick in my stomach bleeding ulcers. Do to stress. Of course show me how to not be stressed lol I try but very difficult because sometimes I stress within myself and don’t realize. Anyways live the video❤ keep them coming

Hi, I am in love with a guy who has EDS and mitochondrial disease as an adult. I met him through a dating app. I want to know the chances of this disease being passed down cause he is rejecting my love due to his anxiety

With EDS its helpful to keep the nervous system very strong and healthy.

one of the first vids i watched years back while researching, now i’m returning before my surgery. thanks so much

Name of doctor with adress plz

Great, practical tips. Thank you.

Does anyone know how IC is diagnosed?

Its my 3 rd day of recovery of lapa csn i drink coffee

Thank you so much for this video. It encapsulates everything I have kept in my throat because I have felt "what will change? Who will listen?"