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Vlad's ME Diary
United Kingdom
เข้าร่วมเมื่อ 16 พ.ย. 2021
This channel is about living with Myalgic Encephalomyelitis (ME), a chronic illness affecting 1/250 humans. ME is one of the most disabling conditions on earth. The most severely affected patients unable to walk, talk, eat, tolerate light or touch. Women get ME more often than men, with a ratio of about 75/25.
Whether you are interested in what it's like to live with ME, or Long Covid, or in chronic illness generally, welcome aboard!
My diary about living with ME has been on Twitter for the past year, with over 150 episodes.
Whether you are interested in what it's like to live with ME, or Long Covid, or in chronic illness generally, welcome aboard!
My diary about living with ME has been on Twitter for the past year, with over 150 episodes.
The Reality of Long COVID & ME Symptoms
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis
What is long covid
me-pedia.org/wiki/Long_COVID
Vlad's main channel - th-cam.com/users/VladVexlervideos
Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos
Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Support Vlad's work on Patreon!
www.patreon.com/vladvexler
Support Vlad via PayPal
www.paypal.com/paypalme/vladvexler?country.x=GB&locale.x=en_GB
What is long covid
me-pedia.org/wiki/Long_COVID
Vlad's main channel - th-cam.com/users/VladVexlervideos
Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos
Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Support Vlad's work on Patreon!
www.patreon.com/vladvexler
Support Vlad via PayPal
www.paypal.com/paypalme/vladvexler?country.x=GB&locale.x=en_GB
มุมมอง: 2 837
วีดีโอ
Health Update From Vlad (ME/myalgic encephalomyelitis & post covid microvascular damage)
มุมมอง 3.1K14 วันที่ผ่านมา
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's main channel - th-cam.com/users/VladVexlervideos Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos Support Vlad's work on Patreon! www.patreon.com/vladvexler Support Vlad via PayPal www.paypal.com/paypalme/vladvexler?country.x=GB&loca...
MORNING HEALTH SAMPLE - 70% of my time looks like this.
มุมมอง 2.8Kหลายเดือนก่อน
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's main channel - th-cam.com/users/VladVexlervideos Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos Support Vlad's work on Patreon! www.patreon.com/vladvexler Support Vlad via PayPal www.paypal.com/paypalme/vladvexler?country.x=GB&loca...
HEALTH UPDATE DROM VLAD (ME/myalgic encephalomyelitis)
มุมมอง 9Kหลายเดือนก่อน
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's main channel - th-cam.com/users/VladVexlervideos Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos Support Vlad's work on Patreon! www.patreon.com/vladvexler Support Vlad via PayPal www.paypal.com/paypalme/vladvexler?country.x=GB&loca...
A health update from Vlad (ME/myalgic encephalomyelitis)
มุมมอง 7K2 หลายเดือนก่อน
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's main channel - th-cam.com/users/VladVexlervideos Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos Support Vlad's work on Patreon! www.patreon.com/vladvexler Support Vlad via PayPal www.paypal.com/paypalme/vladvexler?country.x=GB&loca...
I am laughing here but this is serious! ME not a joke.
มุมมอง 2.2K2 หลายเดือนก่อน
Response to the Rest is Politics Long Covid discussion coming up on the Chat channel - when I can!
5 WEEKS ON UPDATE (covid + myalgic encephalomyelitis interaction)
มุมมอง 4.7K3 หลายเดือนก่อน
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis ME QOL study - www.healthrising.org/blog/2015/08/05/chronic-fatigue-syndrome-worse-mulitple-sclerosis-cancer/ Vlad's main channel - th-cam.com/users/VladVexlervideos Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Navigating Covid with ME (Myalgic Encephalomyelitis)
มุมมอง 8K3 หลายเดือนก่อน
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis ME QOL study - www.healthrising.org/blog/2015/08/05/chronic-fatigue-syndrome-worse-mulitple-sclerosis-cancer/ Maeve story - th-cam.com/video/10hCNt6ajSE/w-d-xo.html Vlad after sitting up for yesterday's Chat th-cam.com/users/shorts6vDRjxecjfQ?si=M3iU1JIGlIFZTKDC Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter Vlad'...
The treatment of Severe ME patients in NHS hospitals
มุมมอง 3.5K8 หลายเดือนก่อน
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter Vlad's main channel - th-cam.com/users/VladVexlervideos Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Christmas message for people with ME
มุมมอง 3.6Kปีที่แล้ว
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter Vlad's main channel - th-cam.com/users/VladVexlervideos Vlad's Chat channel - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
People with ME Want to Live.
มุมมอง 9Kปีที่แล้ว
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - th-cam.com/users/VladVexlervideos Vlad Vexler Chat - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
Holiday Message for people with ME
มุมมอง 2.8Kปีที่แล้ว
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - th-cam.com/users/VladVexlervideos Vlad Vexler Chat - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
10 tips for navigating Christmas with ME (or Long Covid)
มุมมอง 2.6K2 ปีที่แล้ว
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - th-cam.com/users/VladVexlervideos Vlad Vexler Chat - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
What 19 Years of Living with Pain Taught Me
มุมมอง 24K2 ปีที่แล้ว
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - th-cam.com/users/VladVexlervideos Vlad Vexler Chat - th-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
#MillionsMissing London 2022 #myalgicencephalomyelitis
มุมมอง 2.4K2 ปีที่แล้ว
Myalgic Encephalomyelitis (ME) is one of the most disabling conditions on earth. It affects 1/250 humans. Most ME patients are women (75%). My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - th-cam.com/users/VladVexlervideos Vlad Vexler Chat - th-cam.com/channels/n7XHZiW6EUgSuxItybLLM...
My message on ME Awareness Day 2022 #MyalgicEncephalomyelitis
มุมมอง 1.4K2 ปีที่แล้ว
My message on ME Awareness Day 2022 #MyalgicEncephalomyelitis
We MISREPRESENT people with ME & Long Covid
มุมมอง 2.4K2 ปีที่แล้ว
We MISREPRESENT people with ME & Long Covid
Tiny message for you if you have ME or Long Covid
มุมมอง 2.9K2 ปีที่แล้ว
Tiny message for you if you have ME or Long Covid
Why we should SPEAK UP for Myalgic Encephalomyelitis
มุมมอง 3K2 ปีที่แล้ว
Why we should SPEAK UP for Myalgic Encephalomyelitis
A CRISIS OF MEMBERSHIP for people with disabilities
มุมมอง 1.5K2 ปีที่แล้ว
A CRISIS OF MEMBERSHIP for people with disabilities
What if most ME patients were men, not women? | Myalgic Encephalomyelitis
มุมมอง 2.8K2 ปีที่แล้ว
What if most ME patients were men, not women? | Myalgic Encephalomyelitis
CRASHING during social interaction | ME ( Myalgic Encephalomyelitis )
มุมมอง 10K2 ปีที่แล้ว
CRASHING during social interaction | ME ( Myalgic Encephalomyelitis )
How I got Myalgic Encephalomyelitis (ME CFS)
มุมมอง 39K3 ปีที่แล้ว
How I got Myalgic Encephalomyelitis (ME CFS)
*I GOT COVID 3RD WEEK JAN 2020* very early, I live next to a port in Bulgaria. COVID was bad, not hospitalising. I recovered and went back to life - but the more "life" I did the worse I got I tried to fight it and every time I fought it I got worse, until I was walking one step at a time with a stick. Unable to comprehend basic subjects and concepts. Stress is the worst for me, I cant DO basic things like revenue a passport and the stress of not being able to do it makes me extremely ill. I now have a fear of doing things that will make me ill and the fear itself makes me ill...
If you have not considered it, I suggest you investigate TCM and if you can find one, a good Qigong practitioner. All the best.
Well, not too dire. It certainly seems like you'd be able to help others in the same boat with your insight. What a blessing.
"half a fucking year of this" - I can hear the frustration.
Reading the comments here seems to me this is something that seems to happen to highly intelligent people or do stupid people get it too ?
God, Vlad you give us an exquisite gem like description of the first dreadful moment. I don’t know how to handle that. ❤❤❤
Don't stress about the world. Keep focusing on your health. I sent a little donation to you. Hope you start to feel a bit better.
Damn 🌹💔
That video is not exactly what most influencers post on there status. It does not change my intellectual fantasy that I'll meet you in London coffee shop and we'll have a lively chat and we'll both feel so delighted by the encounter that we'll hug and hope serendipity happens again. I'm glad that you post videos that show your passion for people and the world. ❤ Get well 🙏🏻 and keep up the good fight.
Vlad .....admit yourself to hospital. Your "normal " does not mean you have to suffer on your own. My ❤️ goes out to you. "Slainte" = a wsh for good health in gaelic from Ireland 🇮🇪
Vlad, your strength is inspiring. as @marijo1951 said, it really makes your videos more extraordinary, and we feel doubly appreciated that you spend those rare minutes to help us understand the world. If there is a medal for a teacher and in general, a cool human being, you've got it. I hope we are giving you the appreciation that you deserve. Stay strong! ❤
Question: how did you know that you have micro vascular damage? From symptoms? From tests?
My biggest fear with my POTS/ME would be to catch covid. I know what it’s like to be bedridden for a year and a half and to suffer with this since 2003. Best of everything to you. I know how brutal it can be.
Sending much love
Blessings!
Hi vlad, just wanted to ask how many shots you took, feel better my dude
Oh, Vlad. Seeing you suffer and struggle for air is heartbreaking... Praying for a turn for the better asap. Thank you for who you are and what you do, especially while going through this terrible ordeal. You're a very special person to be doing what you do on TH-cam while going through this. Lots of love.💛
When your body is stuck in guantamo bay mode.
Thank you for using even your tragedies to promote empathy and thought in the world! You have made the world a more beautiful place.
Quick recovery Vlad, don't give up,my love from Greece!!! Slava Ukraine!!!
Thank you for your courage. Please take care. Love from Canada.
I hope you have an oxygen generator. So terrible. 😢
So sorry you're afflicted in this manner. I hope you find the relief you need. Rest & Recover.
I'm so sorry Vlad, not being able to catch one's breath is terrifying. I hope your hospital visit is restorative! Much love and well wishes.
Can you have morphine?
Dear Vlad, I am so sorry for what you are going thru… 🥺 I hope a new medical discovery will come to heal you asap. Sending love and hugs.
:-(
Oh Vlad..Maybe going to hospital is a good idea. I am so sorry. We share such a cruel disease.
Damn... Long term illness sucks... I got twice 10days of post pneumothorax recovery with tubes and what felt like electric shocks in my ribs kind of pain sometimes. I can imagine some of your pain and am sorry it is long term shit... May you get better somehow ❤
Very hard to watch you suffer. 😢 The world needs to know how extreme this can be.
Hey Vlad, you are a hero on multiple fronts. You’re distilling political nonsense and insanity into understandable political nonsense and insanity. You are also fighting this illness, and helping people understand that it’s not just getting sick then getting better. My recent ex girlfriend was dealing with a long COVID variant, it’s debilitating and tragic. She’s an “ex” because her body, immune system couldn’t handle a relationship. Her emotional state affects her immune response. It sucks for me, I can’t imagine how much it sucks for her. I know it’s not the same as your fight, but somehow it seems similar. Don’t stop being an inspiration for so many of us, like I said earlier, you are a hero 👍 Andrew on Cape Cod
Your strength is admirable. Stay strong Vlad
Unimaginable for someone not stricken by the disease . My heartfelt sympathy. The Thumbsup is not for the "likeable" content, but for your strength, endurance and the decision to get the workd informed about these diseases. Very best wishes for a speedy improvement ❤❤❤❤
Hey Vlad, you are a hero on multiple fronts. You’re distilling political nonsense and insanity into understandable political nonsense and insanity. You are also fighting this illness, and helping people understand that it’s not just getting sick then getting better. My recent ex girlfriend was dealing with a long COVID variant, it’s debilitating and tragic. She’s an “ex” because her body, immune system couldn’t handle a relationship. Her emotional state affects her immune response. It sucks for me, I can’t imagine how much it sucks for her. I know it’s not the same as your fight, but somehow it seems similar. Don’t stop being an inspiration for so many of us, like I said earlier, you are a hero 👍 Andrew on Cape Cod
Vlad… I always think that you are so strong but to see the reality in the clip at the end, I don’t know how you aren’t outwardly an angrier or more frustrated person than you show. It’s so frustrating to me to see your health so compromised. It’s not fair that such good people in this world have the absolute worst chronic health challenges to contend with while the most despicable narcissistic sociopaths in this world run free-shod over the lives of those in the middle! I really, really do not understand the human health spectrum…
What I’m seeing is hypochondria. But don’t worry I unsubscribed. A very interesting article from Psychology Today, titled “Iodine Deficiency - An Old Epidemic Is Back”
Dear Vlad ❤
So very sorry that you are going through these health challenges that rob you of living a normal healthy life and sending 🙏🙏🙏🙏 and healing to you, please take the time needed as you move through these health challenges, we appreciate the insights and thoughts you share with us 🙏💚💚💚💚🙏
Im laying bed with phnumonia watching this. I feel for you vlad ❤
❤
Vlad what a remarkable human been!! ! Your strengh and courage... it is mountainous!!
Every time I see one of these, I gotta comment with some 💙. Hope you're feeling better.
🌻🍀
So sorry Vlad🌹I've finally been given a heart scan and it's damaged my aortic coronary artery.
Thank you for your documentation of moments of life with long-term illness. Daily, daily, daily I say much the same stuff you say in this little video. The pain alone (I have a severe visceral-pain problem with my renal system) along with would put anyone without comparable pain for many years in a nearby hospital as immediately as possible. The early days of my declining years included about a dozen years with pulmonary-cardio (in that order) difficulties - with a bit of a return of heart issues in the last couple of years. That feeling you mention in the video of having your breathing forcibly restrained (while enduring awful pain and a list of other horrid symptoms) snaps my sense-memory to attention and initiated a reliving of those times washes through me and takes hold while the video finishes. Likely your symptoms are the same ones you have faced in recent months. All the same, the experience you have with this layered, restated ME with bonus regions under attack remains new enough that new trouble could arise with your recognizing them as trouble. This being so, it may be worthwhile - despite my lack of confidence in hospitals - to have a reassessment done by the hospital of your choice. I typically resist such suggestions for many good reasons. But yes, think about and probably do this hospital visit - preferably with the involvement of the specialist, just to be sure you sure you know you and your doctors are doing more or less what can be done. If this can be done equally well where you are with office visits, that works. Just keep in mind your current health is in a relatively new.
💔
so real 🙏 thank your for sharing your thoughts with us
i understand your pain man 🙏 suffering from the same curse, god bless you and i wish the best for you. Also remember this Vlad, your amazing! You are suffering with all this pain and yet you find the strength to make a video to showcase the reality of this condition, you are truly a person of good character and will, I know success and happiness will come your way
I get it Vlad. Peace and strength to you over this holiday season. May there be moments of joy and delight, and may you be with people who understand.
Darling Vlad, thank you for sharing. It helps me, with my lesser heart problem, cope. You are so brave and inspirational in how you face the world and in what you say.