Thank you for the videos. You have a common touch and make sense. The information puts scary, complex medical jargon into English. When people are in pain with nerve damage these explanations give hope that treatment options are available. That hope is priceless! John Bryan
I can't thank you enough for taking the time to make this video.I have learned so much.I've had two spinal fusions in the last 7 years and have been in lots of crazy pain . My neuro surgeon at this point said all they can do is put a pain stimulator in, I'm guessing at least part of the pain is probably scar tissue or something else they cant fix🥵🥵🥴
This is a fantastic explanation of nerve damage and how nerves attempt to regenerate. In 5 minutes I was able to understand what happened what a shower glass door severed my tendon on aligning nerves in my right foot when it exploded on my. I also have CRPS, which complicates the situation. But your video helped me to understand what may have happened and started the spinal in my situation. Thank you so much for all of your time and wonderful work.
Send me an email request to patients@tollestrupmd.com. You almost certainly have a peripheral nerve issue that could probably be fixed. It’s not necessary to live with the pain of CRPS in most patients.
@@TimTollestrupMD Now, you're lying. CRPS while ultimately caused by some type of trauma (or infection), it's a disease of the Central Nervous system, plain and simple. It has to do with the Limbic system, Glial cells, the pain loop in the brain, and a whole number of other factors. The last thing any CRPS patient needs is an invasive procedure.
@@marcusaurelius2242 And you know this how exactly? I’m sure you’ve treated lots of CRPS patients or something? Do you do surgery for patients with peripheral nerve problems? Do you have CRPS yourself? Unfortunately, the CRPS community is divided into two basic groups. The first group is made up of those who prey upon CRPS patients selling them treatments that don’t work. The second group is made up of those that have been brainwashed by the first group into thinking that you can never ‘cure’ CRPS and just have to learn to live with the insane pain. If you’re in the first group, shame on you. Educate yourself. If you are in the second group and want to live with the pain for the rest of your life, that’ your decision but please refrain from making ignorant comments on something you know nothing about. Allow others who have a more open mind and who don’t want to live in pain forever to consider other options.
@@TimTollestrupMD Dr. Tollestrup, Thanks for your response. I do have some questions, if it's OK? Exactly what do you consider 'preying" on CRPS patients? Ketamine? Spinal Cord stimulators? Stellate blocks? Sympathectomies? I'm curious. The word "cure" is rarely used in the same sentence as CRPS. I suppose "remission" might more palpable, but this involves so many variables I don't have the time to elaborate. What I will say is CRPS involves the CNS bring damaged, and a person pushed into a constant state of "fight or flight." This involves changes to the Autonomic nervous system, as well. It can lead to Autoimmune responses which further complicate a serious and misunderstood diagnosis. My diagnosis is Peripheral Small Fiber Neuropathy with mild autonomic dysfunction. This started with a herniated disc at c6/c7 in 2014, and since then I have had more and more problems. The diagnosis no longer matters to me, although I'm sure this started the whole issue. It was then I began digging and discovered I was HLA-B27, along with other autoimmune markers. (Intrinsic factor + ) You use the word "cure." How would your surgery reverse all the damage to a persons CNS? The Vasomotor issues? I can understand the premise of your surgery, just not how you can "cure" CRPS? What would happen to the patient if your surgery was not successful? Then what? A person with CRPS would also have a heightened CNS, yes? Hypersensitive CNS, yes? I am in no way trying to argue with you, because I'm not a physician. Would you agree CRPS involves Glial Cells, the Limbic System, Cytokines, Vasomotor issues etc.,? I'm only trying to understand how a surgery could resolve this? Also, people with chronic pain have PTSD, Depression and anxiety. There is is a clinic who has helped CRPS by using non-invasive procedures to calm down the CNS. Primarily through adjusting the Vagus nerve, and other modalities. Respectfully Submitted,
@@TimTollestrupMD Dr. Tollestrup, Thanks for your response. I do have some question, if it's OK? Exactly what do you consider 'preying" on CRPS patients? Ketamine? Spinal Cord stimulators? Stellate blocks? Sympathectomies? I'm curious. The word "cure" is rarely used in the same sentence as CRPS. I suppose "remission" might more palpable, but this involves so many variables I don't have the time to elaborate. What I will say is CRPS involves the CNS bring damaged, and a person pushed into a constant state of "fight or flight." This involves changes to the Autonomic nervous system, as well. It can lead to Autoimmune responses which further complicate a serious and complicated diagnosis. My diagnosis is Peripheral Small Fiber Neuropathy with mild autonomic dysfunction. This started with a herniated disc at c6/c7 in 2014, and since then I have had more and more problems. The diagnosis no longer matters to me, although I'm sure this started the whole issue. It was then I began digging and discovered I was HLA-B27, along with other autoimmune markers. You use the word "cure." How would your surgery reverse all the damage to a persons CNS? The Vasomotor issues? I can understand the premise of your surgery, just not how you can "cure" CRPS? What would happen to the patient if your surgery was not successful? Then what? A person with CRPS would also have a heightened CNS, yes? Hypersensitive CNS, yes? I am in no way trying to argue with you, because I'm not a physician. Would you agree CRPS involves Glial Cells, the Limbic System, Cytokines, Vasomotor issues etc.,? I'm only trying to understand how a surgery could resolve this? Also, people with chronic pain have PTSD, Depression and anxiety. There is is a clinic who has helped CRPS by using non-invasive procedures to calm down the CNS. Primarily through adjusting the Vagus nerve, and other modalities. Respectfully Submitted,
Excellent presentation. Such useful analogies to help viewers understand the issue. Dr. Tollestrup is very insightful and has a unique,fuller perspective regarding pain management; he gets at root cause of issues.
I’m so glad I found your channel. Thank you so much for putting out this information. I’ve suffered for 5 years with burning and sometimes numb legs. Desperate for a solution I had 2 back surgeries. I’m still having the same problems. I need to come out to NV and see you. Thanks again!
I really appreciate you explanations of what is peripheral nerve problem anatomically. Helps a lot! For myself I also needed your opinion and explanation about why drs cannot adequately diagnose or treat this. This explains so much about patient relationships with drs in general. There is ego involvement when a patient doesn’t simply fall lockstep in place with drs’ assumptions and directives. Listening well is rare enough but also considering what alternative solutions might be tried is not given any weight. I say this from my own experience as a patient as well as my having practiced Traditional Chinese medicine for 30 years. West and East can help each other if our minds are open to possibility.
I'm so glad I came across your site Doctor, I had back pain for about 18 years, other arthritis pain for 12 years disabled, my hands, elbows, knees, right hip, and ankles! I been with Pain management, for about 15 years, they throw everything at my pain but nothing really work, I know my thigh, hip, and hand pain, is nerve pain, but I get some relief from my back pain meds, 10/325 4-5 per 24 hours for about 10 years
I agree with you on docs not seeing when it is right in front of them. I diagnosed my own RSD/CRPS many years ago. I had it for 20 years before I could get help. Dr. Schwarzman in Philly and Dr. Kilpatrick were the two docs that finally said yes you have it but you have waited so many years to get here, now on my 45 year of having this I am to the point of no return. Wish you were closer to me.
I suffer from psychosomatic back pain but also from back pain from a physical cause. This is hugely helpful for understanding the physical cause of my pain. I want to get seen by you and evaluated if you can help me!! I’ll be in touch.
Omw this makes so much sense cause of my nerves being burnt in my back for years!😥 And that's exactly where I am at chronic pain and pain management and even the pain medication is a factor in my nerve pain now 😥
I just had my second discectomy a month ago. First surgery very successful and had 6 years pain free. Re-injured another disk lower. Pain was absolutely excruciating. I’m still recovering, but still have pain. I feel it running through my legs like a wire. It’s not as bad as it was before surgery, but still pretty strong, have to take medicine all the time. I’m still hopeful it will go away. Great video and explanation on how these complicated nerves work. Thank you so much!
Give it 6 months. During that time, you should see a trend towards improvement if this is just a back issue that was addressed adequately with spine surgery. If you plateau in a month or two and are still having significant symptoms at 6 months then you probably have a peripheral nerve issue. You should touch base with your spine surgeon if you don’t feel things are going the way they should just to make sure there isn’t a lingering problem at the spine level.
@@TimTollestrupMD hi mate! Greetings from Australia. I’m really enjoying your videos, very informative and easy to understand. I’m 49 and have never had an injury in my life although I have competed in contact sports since my early teens. I eat healthy and exercise daily. Just recently I have had numbing sensations, pins and needles in both my hands and feet. It’s not really pain but more like electric shocks. Is having this issue in both hands and feet at the same time common or is it usually one limb that is affected. I’m concerned because I don’t have any underlying health issues
Thx , for the info. I went tonthe hospital back in March 21, 2021 for tingling on the left side, toes tingling, back of my knee felt asleep left pressure headaches almost felt as it was sinus pressure but only on the left side . Also my bottom left lip tingling. Thanks for all you input. You are amazing!!!!! N. Servidio
Hey good night I'm have like a burning in my feet something in my stomach it goes in patches I'm also a diabetes. I also have it in my big toe on the right I'm also have headache will yo be able to help me
Hi. Thank you so much for this. It is very informative. I am 38 years old and since 2016 I have started having funny nerve compressions, which I have never ever had before. I have had since bilateral guyons canal, bilateral carpal tunnel and the left cubital tunnel released. I have had nerve conduction studies (NCS) and they were all normal. Seen the neurologist who has examined me and checked my reflexes and said that based on my NCS I have no evidence of nerve compression. Being in excruciating pain, having sensory symptoms and motor function difficulties, I went to see an orthopaedic hand surgeon who's clinical examination proven that there was nerve compression. As I couldn't bear the symptoms and my motor function was compromised, I have had surgery and even the surgery has revealed that there was abnormality within each nerve and there was compression. I have had MRI of the Brachial plexus, cervical spine and brain which has shown no leisons or any c spine radiculopathy. The neurologist hasn't got an answer as to why do I get nerve compression as he's saying I have no evidence of neuropathy.. I would appreciate your thought and view on this. Many thanks
Very interesting and informative must all the neurologist knows this information but they didn't have the time to let us all know all this I know is it mportant , I personal really appreciate mr. Doctor for this video of God Bless you
Have you ever heard of something like a basic Lazer retinapathy treatment causing pain through the eye, through the entire 1 side of the brain & traveling to the shoulder causing muscle spasms?
My friend was eventually found to have a long fine sliver of bamboo in his lower arm..not visible on X-ray and gave excruciating pain until finally being removed.
I was a software engineer. I had carpal tunnel wrists. I cured it by riding a large motorcycle, the strong vibration on long trips cured the problem in a few months.
I’m suffering real bad from head to feet minus thighs and arms 👀 Insurance companies are ruining our lives. Some doctors are too ( big pharma ). I’m on the east coast and you would think I’d find the right doctor by now . 3yrs
Thank you for your willingness to share your expertise in a concise, easy to understand manner. I definitely have neuropathy that has recently started to affect both feet. I have Psoriatic arthritis and OA as well. Is there a dieectory of docs who can u derstand and teeat PN?
Emma I was wondering how your surgery turned out . I have been diagnosed with CRPS of the left foot and I am interested in how DR T solved your problem
I have trigeminal neuralgia the nerve sheathing has been worn off from a artery rubbing on the nerve! All 3 branches on my face are effected. I think other branches are also effected. I wish you would do a video on trigeminal neuralgia and cranial nerves!
I have had over 15 back surgeries. I have degenerative disks, I have had 6 separate fusions. A doctor has left and now I am loved with all this hardware and all this pain I'm not really sure where to go but at least this seems like something I haven't heard or seen before because I've had it all thank you I'm not really sure how I could get in to see you That's a joke because no one will see me. Thanks again for the video you gave me some information
Thank so so much for your response Dr. Tollestrup! Coincidentally, I just got back from consultation with my spine surgeon. It’s been two months since surgery and not doing well. Pain is still lingering and according to nerve test recently done left leg nerve is chronically inflamed/damaged. So here are my options according to him: 1- repeat epidural injection to see if I get relief. 2- Spinal nerve stimulation procedure. 3- Spine fusion of that segment. Before surgery I had like a buzzing, almost like an electrical shock on my thigh inner part, now that’s gone, but pain lingers and it’s hard to deal with. I’m positive I crushed that nerve in a bad way. Willing to do anything for this to go away. Thank you again for taking the time. I really appreciate it.
Thank you so much for your wishes, Linda! May I ask you what type of injection you had? And was it spine injection or directly on the leg? I’d really appreciate it!
Can you please help me find a doctor/ surgeon near Huntsville Alabama that can treat piriformis syndrome? If it's confirmed, I'd like to have to muscle removed and be done with it.
Thank you for this info! My husband suffers from neuropathy in his feet, bloodwork is perfect. He had the nerve testing and refuses to do it again because so painful. He has degenerative disc issues in his back but neurosurgeon says he cannot fix it. He’s only 58, a general contractor. I’m going to beg him to watch this because I want him to pursue every option! He has brining and shocks especially at night but one foot now having spots of numbness as well. Living off Advil, ughhh!
I undergo lowback pains surgry and a disk was planted on my spin that was 2017 but the pains andnomess and paralis leg and pains still continue what will be the remady. and it had provoke other complacation like urine conttinent. pains on my boucks no sensation.
Thank you for explaining this. I had robot assisted thoracic surgery 1month ago and eventhough my 4 incisions have healed, I have been experiencing nerve pain, the area left side of chest is very sensitive to touch, even my shirt on my skin hurts, when I explaining to surgeon and primary care doctor they at 1st thought it was inflammation because I didn't like taking the prescribed pain meds to me. They mess with my sleep and I just don't like the feeling they give. I was then given naproxen 500mg, but it did nothing. I'm still in pain constantly, currently I'm trying Voltaren gel, I don't feel any relief yet, I just 2 days in applying it. I hope this passes soon. Thank you for this video. Also do you have any suggestions as to what I can do to get relief minus narcotics. Thanks
I have read that buttocks and thighs and hips can have pain/burning from Proximal neuropathy. I have just started having all three suddenly. I don't know if mine is from that or from spine.
Dr. I had reconstruction tkr in 2016. I'm have burning all the time and knee pain. I put ice on it all day long, my leg dosn't bend its gotta get corrected can I be seen by you? How do I reach you?
I had reconstructive spinal surgery for collapsing vertebrae from accident falling off step stool. Very good neurosurgeon. But ive had numbness in tops of both thighs with pain in both legs. Doc wont answer my calls to see about numbness and pain. What would you suggest?
I am just starting to watch this and I am wondering when they do abulations or burning the nerves in your spine can this also be a cause that is causing this in me!?
If I need to use a nerve graft, my preference is an Axogen allograft. For an unimportant nerve like the sural nerve, however, I prefer to use a neurectomy approach at the popliteal fossa level as it’s much more cost effective and basically removes the risk of a painful neuroma recurring a the graft site. Also, the patient gets immediate relief without dealing with nerve regeneration pain for weeks or months afterwards potentially.
This truly makes sense from every aspect. Man, are you knowledgeable. I have small fiber neuropathy, CRPS, DD with stenosis (cervical) and according to the experts my CBS is now a out of whack. Maybe Central Sensitization. Can you help me? I really don't want to live this. It hit me a 52 after a sparring session. It's been downhill ever since.
28 years ago,….I had a very bad breach birth that went terribly wrong. I ended up with numerous injuries due to pelvic ring injury which also injured my sacrum, si joints and vertebrae with nerve and muscle tissue damage also. So, really just a trainwreck in that sense. My blue baby did survive it THANK GOD,…but,..I thought I would heal up over time and as I healed the excruciating pain would subside also. That never happened. The pain stayed the same and I am barely eeking through life in constant excruciating pain in several areas. From L4/L5 all the way down through buttocks, around hip joint areas, groin and on down my legs to ankles and feet. No tingly sensation. Just the deepest, heaviest, bone-crushing dull throbbing aching and a burning in their too. It never stops throbbing/aching/burning EVER. Not ever. I’m under pain management but,..I will never stop looking for someone who might know something that would help me. Even if some surgery or something could reduce my pain by 50% or say, stop the pain in my hip/leg areas…..I’m not exaggerating. Living in THIS kind of severe pain is a living hell that never ends and I am desperate to enjoy some last years before I die. I’m 58. I don’t know why this had to happen but it did and I am never going to learn to LIVE with it. What I’m doing these past 28 years is not living….. it’s STRUGGLING in physical pain through each 24 hr period….only to repeat. It’s been over 11,000 of those and I need HELP.😭 I have doctors BUT,…I just seem like a number to them in a way. It’s like,..no one wants to dig deeper into what actually caused each injury and find exactly where nerves were compressed or pulled etc….the nerves that run through the pelvic area are ALOT and could have been damaged somehow in more than one way or place 🤷🏻♀️🤷🏻♀️ I get lumped in with back injury ppl because I do have back pain but…I just feel like I was injured from the inside. I didn’t slip and fall or get into a car accident. I never stop wondering exactly what, where and why. 15-20 minute doctor visit is impossible to diagnose someone correctly or efficiently or effectively.🤷🏻♀️🤷🏻♀️😢
I have some ulnar nerve problems. Can you help me? I'm 16 months post OP. I'm fused C4 to T1. I had a ski accident that made me 30 years older. I've had dramatic recovery but my hands drive me crazy.
I had a surgery on my ankle and I developed neuropathy in bot feet they burn all day evyday. Is that normal. I can’t get any answers if this is normal . Been looking for help for 7 years and slowly giving up on hope . Thanks
Thank you so much for the explanation of the nerves in the body. My mom is 91 and is suffering from nerve pain, tingling and now full numbness in both hands. I have taken her to doctors over the past years and they said that they couldn't help her just giving her pain pills. She had a nerve test for carpel tunnel and it was positive but the neurologist said that she was to old to have the surgery. I don't know if that's true but we're going for a second opinion to another neurologist. My mom's on 2mg of morifin plus two extra strength Tylenol so she can sleep at night for the pain but numbness is always their. By listening to your video it sounds like there's not much that can be done to help her besides what she is doing taking morifin. Is my mom too old for surgery and would it releaved her numb and painful hands?
Try going to a orthopedic hand surgeon....if you look on you tube there are certainly older individuals getting this procedure...endoscopic carpal tunnel surgery. good luck! Just because someone is older should not limit the help that is offered for them....good luck!
I had surgery over a year ago for a broken femur.While in the hospital I got Covid & was there for 4 months!i’m 84 & wondering if I have long term Covid or issues from femur surgery! I’m taking Neurontin meds & I’ve had therapy more than a year.Wondering if I should see a surgeon or continue therapy?
Hi Dr, for chronic sciatica with unimaginable pain that starts from lower back and travels down left leg and can often be difficult to move or sit. What type of surgery can permanently solve it. Regards
@@ReLair88 Hi thanks for the reply. I haven't decided what to do yet as it comes and go but want a permanent solution. I will enquire about this procedure. Regards and stay safe
@@openminds4706 I was pretty much bed-ridden for almost three months. It started to improve on its own about a week before this out-patient surgery, but I knew it would return, so went ahead with the surgery. (Not that being in bed alleviated the pain in any way. I just wasn't able to function.)
Why does spine nerve ablation lose efficacy over time after multiple procedures? I used to get 18 months relief and it's cut down to 6 months if I'm lucky. Thanks 👍
I have had one morton's neuroma removed in my left foot between digit 3 & 4..Then i had another neuroma between 2 & 3...11 yrs later that i had cryogenic freezing to stop the pain...MUCH RATHER HAVE CRYOGENIC FREEZING!
What about Peripheral Neuropathy without pain? My feet are numb, my right leg muscle has atrophied, feels like from knee down I have leg in vise, but NO Pain?
Dr.my mom fell the Dr doctors said she has nerve damage and she can't use her right hand and she said it hurts she also get stiffness in the right arm. I just like to know how I can help her out.
Doc, I have failed back surgery in 2017 on my L4-L5 with spinal fusion laminectomy ,spinal fusion with bone graft and dissectomy for severe stenosis of my L4 L5. I did not know that my S1 had stenosis too. I did everything by the book log roll whatever the doctors instruction I followed it to the teeth, started my physical therapy when he said it’s OK. He said my back is fused per x-ray report. I was telling the doctor after three months that my leg was tingly and I could not sit for over 15 minutes in the chair. Keep on prescribing me Vicodin 10 mg/325 mg 1 to 2 tablet every 4 to 6 hours when the numbness and tingling sensation didn’t stop. I keep on telling him and he doesn’t know what to do so I asked him to refer me to a pain management doctor, which was like a hard thing to do because they scheduled me and they said they overbooked after one month and then I have to go back and reschedule again in one month and I went ahead and went And when the pain management doctor saw my MRI , he said that the L4, L5 and S1 foramen Has on both sides have a lot of scar tissue which is obstructing the nerves and I told my surgeon I why don’t he go back and scrape the scar tissue; I’m in a lot of pain;needed a pain management doctor and he said that the problem was my S1 , the pain management doctor said he will give me three injection one in between my L4 and L5 on both sides of my foramen & in two weeks times two he is going to inject steroids on my S1 two weeks apart of the foramen. It 12:31 Did not work.😢 i’m also on Neurontin 300 mg four times a day; Vicodin 10/325mg 1 tab.every six hours and Valium 5 mg three times a day. parafon forte 400 mg pretty much taking my pain every six hours around the clock because I couldn’t even go over one hour without hurting so bad and mind you I still hurt even with the pain medicine taken. Doc I need some help please The pain management doctor does not want to do ablation because he said I already got nerve issue on my leg my knee buckles sometimes my leg I can’t move them. I have to literally tell them to you know I got a move it you know I try to exercise whenever I can you know if the weather permits you know in in the streets, so I can at least exercise on the, I try to be active when I can to how much I can tolerate but for the most part I’m useless I have my son drive me to the doctors office because I feel like with all the medicine I’m bored of me you know I might have an accident.
5 yrs if chronic pain( because I didn’t want to have surgery for a herniated disc in my L2-L3) severe cramping behind both thighs, sometimes, stabbing excruciating pain behind the left knee, and, outside of left knee( no, not the IT band) now pain management want to burn L3-L4 nerves, but, I have very bad sacrum pain, which stems to the hip, butt and down the left leg! I’ve seen, surgeons ( orthopedic and neurologist surgeons) have had nerve blocks ( don’t last long) and am on medication, any thoughts as to what my next step “should” be?
So nerve ablation, burning the nerve off, sounds like a bad idea! I had it done and it did not help it made it more painful. I did have a titanium disc put in and that help some but i still have left side liwer back chronic pain.
Greetings from India. I've been struggling with low back, hip pain for 3 months. After an initial slipped disc diagnosis, my mri showed tarlov's cysts in s1, the largest of which is 3.8 mm. How effective would surgery be? Should I get surgery now or when my motor control is affected, like bowel incontinence etc. I am unwilling for surgery, unless absolutely necessary. Pl advise 🙏
My left tight is numb..I've seen an orthopedic Dr no help..I'm using a chiropractor..but my tight is still numb I've asked if it's meralgia persthica no answer..help..should I see a neurologist
Dr. I have nerve pain from TB in the spine suffering for over 6 years now. I'm not diabetic. This pain is emanating from breast down to my toe. I've been on Gabapentine 3300 mg/day + Dilauded. They said that surgery is not an option. I tried ketamine infusion & inthratecal pump but failed. Tried acupuncture too. I feel like my doctors run out of options so they referred me to pain management class. Have you handled cases like mine? Please advice.
I have peripheral neuropathy I get electric shocks numbness crawling sensation pins and needles in legs and feet. Also mortons neuropathy, my legs and feet always feel cold , my balance is affected to, I am not diabetic can you help. Thank you.
Potentially, yes. It doesn’t matter if the neuropathy is related to diabetes or something else. The physical examination is the key to determining whether or not surgery might work for you.
Hi Doctor, I've listened to a few of your videos before I saw a neurologist. I have graves disease. I had a thyroidectomy and a cyst grew back. I had more surgery. I had nerve conduct study with blood work. I have carpet tunnel in both hands. Had surgery on one. Hand surgeon said it's common in thyroid immune disease. I have now been diagnosed with peripheral neuropathy in my leg in foot. Also lyme disease. Please I have been in severe pain for 20 years due to 8 abdominal surgeries. I've tryed everything as far as nerve medication advil creams etc. I can't cope with this anymore. If you think you can help me please comment back. I love in RhodeIsland. I'll do anything go anywhere thank you..... Michele
Please help me with your knowledge 🙏 I have had chronic pain for years. I have lipomas close to my wrist and elbows, under my rib, I think in my neck and back and legs. I have serious upper back pain ( in the middle and in between my shoulder blades) I have serious sciatica pain and I have really bad foot cramps (constant, even while walking) I truly believe the lipomas have something to do with this but I've never been able to get help. Please tell me what to do !
They told me I have carpal tunel is very bad can't even do physical work anymore they gave me gabapetin but I didn't took cause it didn't help at all just took it for 4 weeks and not improved, they won't gave me nothing else and can't afford surgery
Hi Dr; thank you for great information. I am 67 years old. I have scleroderma for about 12 years, I am suffering PHN three years ago after a long and painful shingles, no doctors could help with the 24 hours and so much pain and Gabapentin Is the only answer. Please help me. Thank you.
Hello Dr. T ,I have leg pain on side of the b go down to side of the leg to the bottom of my foot , I went around to see 3 surgeons could not find something wrong in my spine they said no surgery ,, I did PT and injections and a lot of things did not help for 2 years and then I did surgery by spine surgeons on L4L5 surgery did not help me to release the pain and I went around injections and PT did not help me I still have the same pain . What kind of doctor I can looking for help ? live in SoCalifornia do you know any Dr can help me . Please help me
Hi Khmer. There are no doctors in California who can help you, mainly because there are no doctors in California who do what I do. You could have piriformis syndrome or some other type of peripheral nerve problem. Send me an email request to patients@tollestrupmd.com if you would like me to figure out where your pain is coming from.
I have fusion back of the neck. Had neve damage. After that. Doctors say I have specificity .can't do anything for it.take buckfine and pregabline .don't help. When I walk. Fot pass four years.
In general, I think that RPNI is superior to TMR. Specifically for what I do as a pain-focused peripheral nerve surgeon, TMR doesn’t make a lot of sense because I’m rarely dealing with patients who have had or need some kind of limb amputation. Therefore, I don’t want to sacrifice motor nerves to intact, functioning muscles when I can take a small muscle graft and accomplish the same end goal. Even in the amputee patient, I think RPNI clearly has more potential in terms of providing options for the use of more complex function prosthetics.
I have been in chronic nerve pain for ten years. I have MS and a lesion on C3-C5. My pain radiates from my neck toward my right pectoral, shoulder, right arm at an intolerable pain level with muscle pain in right chest and back. I've been on Fentanyl which has helped somewhat, but now that my doctor has retired, no pain doctor will provide it. Has something changed in the law or regulations. With the extent of my pain is surgery an option? Please tell me there is some relief from this.
CDC opioid guidelines were forced on medical providers a few years ago which were draconian and opiodphobic due to addicts overdosing. Recently it's been changed a bit but the govt is more concerned about racial equity than patients' needs, and constantly referred to sickle cell in that addendum. Many patients including vets with catastrophic injuries had doses cut down or meds cut off altogether. Even cancer and hospice patients bore the brunt. Doctors are still terrified of having their practices raided by the DEA and going to prison if their I's are not dotted correctly or T's crossed on paperwork. We are the collateral damage the govt and media don't care about.
Can grinding my teeth at night cause that sort of compression on my nerves? What about gum disease? I have nerve pain in my face, in front of ears and jaw. Even shooting over the back of my scalp like electric shocks. It seems worse when I brush my teeth.
Things to consider : If Trigeminal nerve, look up a surgeon at University of Wisconsin Hospital . Don’t know his name. If grinding look up massage to release massiter muscles. Get a natural toothpaste and put clove and cinnamon powder or a touch of edible oil on the toothpaste. Make sure won’t hurt enamel. Disclaimer- I am not a doctor. Do your research.
This guy, is an absolute saint, and deserves the Nobel prize. Bless you sir!
No Nobel, most of Nobel price winners are layers this days.. This doctor is to good to call layer 😉
Thank you for the videos. You have a common touch and make sense. The information puts scary, complex medical jargon into English. When people are in pain with nerve damage these explanations give hope that treatment options are available. That hope is priceless! John Bryan
Hope, is, PRICELESS!!!!!
Great analogies and information for helping us to understand our nerve issues. Thank you❣️
I can't thank you enough for taking the time to make this video.I have learned so much.I've had two spinal fusions in the last 7 years and have been in lots of crazy pain . My neuro surgeon at this point said all they can do is put a pain stimulator in, I'm guessing at least part of the pain is probably scar tissue or something else they cant fix🥵🥵🥴
Good lord! Thank you!!! 12 yrs w no feedback from my doctor. ❤❤❤❤
why dont we have doctors like this in England.
This is a fantastic explanation of nerve damage and how nerves attempt to regenerate. In 5 minutes I was able to understand what happened what a shower glass door severed my tendon on aligning nerves in my right foot when it exploded on my. I also have CRPS, which complicates the situation. But your video helped me to understand what may have happened and started the spinal in my situation. Thank you so much for all of your time and wonderful work.
Send me an email request to patients@tollestrupmd.com. You almost certainly have a peripheral nerve issue that could probably be fixed. It’s not necessary to live with the pain of CRPS in most patients.
@@TimTollestrupMD Now, you're lying. CRPS while ultimately caused by some type of trauma (or infection), it's a disease of the Central Nervous system, plain and simple. It has to do with the Limbic system, Glial cells, the pain loop in the brain, and a whole number of other factors.
The last thing any CRPS patient needs is an invasive procedure.
@@marcusaurelius2242 And you know this how exactly? I’m sure you’ve treated lots of CRPS patients or something? Do you do surgery for patients with peripheral nerve problems? Do you have CRPS yourself? Unfortunately, the CRPS community is divided into two basic groups. The first group is made up of those who prey upon CRPS patients selling them treatments that don’t work. The second group is made up of those that have been brainwashed by the first group into thinking that you can never ‘cure’ CRPS and just have to learn to live with the insane pain.
If you’re in the first group, shame on you. Educate yourself. If you are in the second group and want to live with the pain for the rest of your life, that’ your decision but please refrain from making ignorant comments on something you know nothing about. Allow others who have a more open mind and who don’t want to live in pain forever to consider other options.
@@TimTollestrupMD Dr. Tollestrup,
Thanks for your response.
I do have some questions, if it's OK?
Exactly what do you consider 'preying" on CRPS patients? Ketamine? Spinal Cord stimulators? Stellate blocks? Sympathectomies? I'm curious.
The word "cure" is rarely used in the same sentence as CRPS. I suppose "remission" might more palpable, but this involves so many variables I don't have the time to elaborate. What I will say is CRPS involves the CNS bring damaged, and a person pushed into a constant state of "fight or flight." This involves changes to the Autonomic nervous system, as well. It can lead to Autoimmune responses which further complicate a serious and misunderstood diagnosis.
My diagnosis is Peripheral Small Fiber Neuropathy with mild autonomic dysfunction. This started with a herniated disc at c6/c7 in 2014, and since then I have had more and more problems. The diagnosis no longer matters to me, although I'm sure this started the whole issue. It was then I began digging and discovered I was HLA-B27, along with other autoimmune markers. (Intrinsic factor + )
You use the word "cure." How would your surgery reverse all the damage to a persons CNS? The Vasomotor issues? I can understand the premise of your surgery, just not how you can "cure" CRPS?
What would happen to the patient if your surgery was not successful? Then what? A person with CRPS would also have a heightened CNS, yes? Hypersensitive CNS, yes?
I am in no way trying to argue with you, because I'm not a physician.
Would you agree CRPS involves Glial Cells, the Limbic System, Cytokines, Vasomotor issues etc.,?
I'm only trying to understand how a surgery could resolve this? Also, people with chronic pain have PTSD, Depression and anxiety.
There is is a clinic who has helped CRPS by using non-invasive procedures to calm down the CNS. Primarily through adjusting the Vagus nerve, and other modalities.
Respectfully Submitted,
@@TimTollestrupMD Dr. Tollestrup,
Thanks for your response.
I do have some question, if it's OK?
Exactly what do you consider 'preying" on CRPS patients? Ketamine? Spinal Cord stimulators? Stellate blocks? Sympathectomies? I'm curious.
The word "cure" is rarely used in the same sentence as CRPS. I suppose "remission" might more palpable, but this involves so many variables I don't have the time to elaborate. What I will say is CRPS involves the CNS bring damaged, and a person pushed into a constant state of "fight or flight." This involves changes to the Autonomic nervous system, as well. It can lead to Autoimmune responses which further complicate a serious and complicated diagnosis.
My diagnosis is Peripheral Small Fiber Neuropathy with mild autonomic dysfunction. This started with a herniated disc at c6/c7 in 2014, and since then I have had more and more problems. The diagnosis no longer matters to me, although I'm sure this started the whole issue. It was then I began digging and discovered I was HLA-B27, along with other autoimmune markers.
You use the word "cure." How would your surgery reverse all the damage to a persons CNS? The Vasomotor issues? I can understand the premise of your surgery, just not how you can "cure" CRPS?
What would happen to the patient if your surgery was not successful? Then what? A person with CRPS would also have a heightened CNS, yes? Hypersensitive CNS, yes?
I am in no way trying to argue with you, because I'm not a physician.
Would you agree CRPS involves Glial Cells, the Limbic System, Cytokines, Vasomotor issues etc.,?
I'm only trying to understand how a surgery could resolve this? Also, people with chronic pain have PTSD, Depression and anxiety.
There is is a clinic who has helped CRPS by using non-invasive procedures to calm down the CNS. Primarily through adjusting the Vagus nerve, and other modalities.
Respectfully Submitted,
Thank You, Dr.Tollestrup, For Answering Several Questions I Needed. Very Much Appreciate !!!!🙏💗🙏💗🙏💗🙏💗
Excellent presentation. Such useful analogies to help viewers understand the issue. Dr. Tollestrup is very insightful and has a unique,fuller perspective regarding pain management; he gets at root cause of issues.
Thank you so much for making these videos and for the information. I definitely will be contacting your office. 😊
I’m so glad I found your channel. Thank you so much for putting out this information. I’ve suffered for 5 years with burning and sometimes numb legs. Desperate for a solution I had 2 back surgeries. I’m still having the same problems. I need to come out to NV and see you. Thanks again!
Where is your office?
Thank you, Dr. Tollestrup
Yes I can still hear you
I'm sharing ALL your videos and information with my doctor's because I've been going down hill fast....since 2019.
I really appreciate you explanations of what is peripheral nerve problem anatomically. Helps a lot!
For myself I also needed your opinion and explanation about why drs cannot adequately diagnose or treat this. This explains so much about patient relationships with drs in general. There is ego involvement when a patient doesn’t simply fall lockstep in place with drs’ assumptions and directives. Listening well is rare enough but also considering what alternative solutions might be tried is not given any weight. I say this from my own experience as a patient as well as my having practiced Traditional Chinese medicine for 30 years. West and East can help each other if our minds are open to possibility.
Your so right bro
I'm so glad I came across your site Doctor, I had back pain for about 18 years, other arthritis pain for 12 years disabled, my hands, elbows, knees, right hip, and ankles! I been with Pain management, for about 15 years, they throw everything at my pain but nothing really work, I know my thigh, hip, and hand pain, is nerve pain, but I get some relief from my back pain meds, 10/325 4-5 per 24 hours for about 10 years
I'm learning so much
I agree with you on docs not seeing when it is right in front of them. I diagnosed my own RSD/CRPS many years ago. I had it for 20 years before I could get help. Dr. Schwarzman in Philly and Dr. Kilpatrick were the two docs that finally said yes you have it but you have waited so many years to get here, now on my 45 year of having this I am to the point of no return. Wish you were closer to me.
Video and audio are fine
I suffer from psychosomatic back pain but also from back pain from a physical cause. This is hugely helpful for understanding the physical cause of my pain. I want to get seen by you and evaluated if you can help me!! I’ll be in touch.
Thank you! As well to at least explain it. Nobody ever seams to do this.
Omw this makes so much sense cause of my nerves being burnt in my back for years!😥 And that's exactly where I am at chronic pain and pain management and even the pain medication is a factor in my nerve pain now 😥
Yes Audio is good
I just had my second discectomy a month ago. First surgery very successful and had 6 years pain free. Re-injured another disk lower. Pain was absolutely excruciating. I’m still recovering, but still have pain. I feel it running through my legs like a wire. It’s not as bad as it was before surgery, but still pretty strong, have to take medicine all the time. I’m still hopeful it will go away. Great video and explanation on how these complicated nerves work. Thank you so much!
Give it 6 months. During that time, you should see a trend towards improvement if this is just a back issue that was addressed adequately with spine surgery. If you plateau in a month or two and are still having significant symptoms at 6 months then you probably have a peripheral nerve issue. You should touch base with your spine surgeon if you don’t feel things are going the way they should just to make sure there isn’t a lingering problem at the spine level.
@@TimTollestrupMD hi mate! Greetings from Australia. I’m really enjoying your videos, very informative and easy to understand. I’m 49 and have never had an injury in my life although I have competed in contact sports since my early teens. I eat healthy and exercise daily.
Just recently I have had numbing sensations, pins and needles in both my hands and feet. It’s not really pain but more like electric shocks. Is having this issue in both hands and feet at the same time common or is it usually one limb that is affected. I’m concerned because I don’t have any underlying health issues
Thank you very much
Thx , for the info. I went tonthe hospital back in March 21, 2021 for tingling on the left side, toes tingling, back of my knee felt asleep left pressure headaches almost felt as it was sinus pressure but only on the left side . Also my bottom left lip tingling. Thanks for all you input. You are amazing!!!!! N. Servidio
Hey good night I'm have like a burning in my feet something in my stomach it goes in patches I'm also a diabetes. I also have it in my big toe on the right I'm also have headache will yo be able to help me
Get MRI sounds like spinal stenosis.
Hi. Thank you so much for this. It is very informative. I am 38 years old and since 2016 I have started having funny nerve compressions, which I have never ever had before. I have had since bilateral guyons canal, bilateral carpal tunnel and the left cubital tunnel released. I have had nerve conduction studies (NCS) and they were all normal. Seen the neurologist who has examined me and checked my reflexes and said that based on my NCS I have no evidence of nerve compression. Being in excruciating pain, having sensory symptoms and motor function difficulties, I went to see an orthopaedic hand surgeon who's clinical examination proven that there was nerve compression. As I couldn't bear the symptoms and my motor function was compromised, I have had surgery and even the surgery has revealed that there was abnormality within each nerve and there was compression. I have had MRI of the Brachial plexus, cervical spine and brain which has shown no leisons or any c spine radiculopathy. The neurologist hasn't got an answer as to why do I get nerve compression as he's saying I have no evidence of neuropathy.. I would appreciate your thought and view on this. Many thanks
Do you have a doctor you can recommend in Atlanta GA ? Thank you so much for posting this.
Yes we hear you
Very interesting and informative must all the neurologist knows this information but they didn't have the time to let us all know all this I know is it mportant , I personal really appreciate mr. Doctor for this video of God Bless you
Have you ever heard of something like a basic Lazer retinapathy treatment causing pain through the eye, through the entire 1 side of the brain & traveling to the shoulder causing muscle spasms?
My friend was eventually found to have a long fine sliver of bamboo in his lower arm..not visible on X-ray and gave excruciating pain until finally being removed.
Does back pain sciatica pain have any thing to do with peripheral neuropathy.
Thanks for sharing ❤
Would you recommend any nerve surgery for a patient age 91
I agree with your presentation
I was a software engineer. I had carpal tunnel wrists. I cured it by riding a large motorcycle, the strong vibration on long trips cured the problem in a few months.
Hi is there any hope for folks that have neuropathic pain after dental trauma from a root canal? been suffering for 2+years and don't know what to do.
I’m suffering real bad from head to feet minus thighs and arms 👀 Insurance companies are ruining our lives. Some doctors are too ( big pharma ). I’m on the east coast and you would think I’d find the right doctor by now . 3yrs
Can a home shock wave, hand held machine help with hand, thumb, and finger Nephropathy ???
Thank you for your willingness to share your expertise in a concise, easy to understand manner. I definitely have neuropathy that has recently started to affect both feet. I have Psoriatic arthritis and OA as well. Is there a dieectory of docs who can u derstand and teeat PN?
Hi Dr T. Im hanging on in there! I Can't wait to fly over to see you for my surgery! Large flights are still delayed. Ive never been so patient.
Emma
I was wondering how your surgery turned out . I have been diagnosed with CRPS of the left foot and I am interested in how DR T solved your problem
How did your surgery turn out?
What MD should I go to for my chronic back pain?
I have trigeminal neuralgia the nerve sheathing has been worn off from a artery rubbing on the nerve! All 3 branches on my face are effected. I think other branches are also effected. I wish you would do a video on trigeminal neuralgia and cranial nerves!
I have had over 15 back surgeries. I have degenerative disks, I have had 6 separate fusions. A doctor has left and now I am loved with all this hardware and all this pain I'm not really sure where to go but at least this seems like something I haven't heard or seen before because I've had it all thank you I'm not really sure how I could get in to see you That's a joke because no one will see me. Thanks again for the video you gave me some information
Thank so so much for your response Dr. Tollestrup! Coincidentally, I just got back from consultation with my spine surgeon. It’s been two months since surgery and not doing well. Pain is still lingering and according to nerve test recently done left leg nerve is chronically inflamed/damaged. So here are my options according to him: 1- repeat epidural injection to see if I get relief. 2- Spinal nerve stimulation procedure. 3- Spine fusion of that segment. Before surgery I had like a buzzing, almost like an electrical shock on my thigh inner part, now that’s gone, but pain lingers and it’s hard to deal with. I’m positive I crushed that nerve in a bad way. Willing to do anything for this to go away. Thank you again for taking the time. I really appreciate it.
I actually had the second injection for leg pain, it lasted for 20 years, wish you the best!
Thank you so much for your wishes, Linda! May I ask you what type of injection you had? And was it spine injection or directly on the leg? I’d really appreciate it!
I feel u.. it's a totally different kind of pain to deal with. 🙏💕
Hi Dr Tollestrup! Tina Tye from WV..had surgery in April 2019!
Can you please help me find a doctor/ surgeon near Huntsville Alabama that can treat piriformis syndrome? If it's confirmed, I'd like to have to muscle removed and be done with it.
Yes, I like to know how you can help someone with nerve damage.
So true.
Thank you for this info! My husband suffers from neuropathy in his feet, bloodwork is perfect. He had the nerve testing and refuses to do it again because so painful. He has degenerative disc issues in his back but neurosurgeon says he cannot fix it. He’s only 58, a general contractor. I’m going to beg him to watch this because I want him to pursue every option! He has brining and shocks especially at night but one foot now having spots of numbness as well. Living off Advil, ughhh!
I undergo lowback pains surgry and a disk was planted on my spin that was 2017 but the pains andnomess and paralis leg and pains still continue what will be the remady. and it had provoke other complacation like urine conttinent. pains on my boucks no sensation.
Thanks for explaining in this video the different types of nerve damage .
How can I get in touch you ?
I live in the Leeds, west Yorkshire, 🇬🇧
Can you recommend a good like yourself in Roseville Ca or Sac?
Yes I can still hear the audio
Thank you for explaining this. I had robot assisted thoracic surgery 1month ago and eventhough my 4 incisions have healed, I have been experiencing nerve pain, the area left side of chest is very sensitive to touch, even my shirt on my skin hurts, when I explaining to surgeon and primary care doctor they at 1st thought it was inflammation because I didn't like taking the prescribed pain meds to me. They mess with my sleep and I just don't like the feeling they give. I was then given naproxen 500mg, but it did nothing. I'm still in pain constantly, currently I'm trying Voltaren gel, I don't feel any relief yet, I just 2 days in applying it. I hope this passes soon. Thank you for this video. Also do you have any suggestions as to what I can do to get relief minus narcotics. Thanks
I am now Subscribed
Dr. Tollestrup, do Neuromas show on an MRI? And if so, is there a chance it wouldn’t show? Thanks (suffering from a spot in my hip for four years)
I have read that buttocks and thighs and hips can have pain/burning from Proximal neuropathy. I have just started having all three suddenly. I don't know if mine is from that or from spine.
Have any advice on shingles
Dr. I had reconstruction tkr in 2016. I'm have burning all the time and knee pain. I put ice on it all day long, my leg dosn't bend its gotta get corrected can I be seen by you? How do I reach you?
I had reconstructive spinal surgery for collapsing vertebrae from accident falling off step stool. Very good neurosurgeon. But ive had numbness in tops of both thighs with pain in both legs. Doc wont answer my calls to see about numbness and pain. What would you suggest?
I can still hear audio and I still have visual
Your still on video yes!!
I am just starting to watch this and I am wondering when they do abulations or burning the nerves in your spine can this also be a cause that is causing this in me!?
Are you doing Axogen allografts. I find that beneficial for patients who have iatrogenic nerve injuries of the Sural Nerve.
If I need to use a nerve graft, my preference is an Axogen allograft. For an unimportant nerve like the sural nerve, however, I prefer to use a neurectomy approach at the popliteal fossa level as it’s much more cost effective and basically removes the risk of a painful neuroma recurring a the graft site. Also, the patient gets immediate relief without dealing with nerve regeneration pain for weeks or months afterwards potentially.
This truly makes sense from every aspect. Man, are you knowledgeable. I have small fiber neuropathy, CRPS, DD with stenosis (cervical) and according to the experts my CBS is now a out of whack. Maybe Central Sensitization.
Can you help me?
I really don't want to live this. It hit me a 52 after a sparring session. It's been downhill ever since.
28 years ago,….I had a very bad breach birth that went terribly wrong. I ended up with numerous injuries due to pelvic ring injury which also injured my sacrum, si joints and vertebrae with nerve and muscle tissue damage also. So, really just a trainwreck in that sense. My blue baby did survive it THANK GOD,…but,..I thought I would heal up over time and as I healed the excruciating pain would subside also. That never happened. The pain stayed the same and I am barely eeking through life in constant excruciating pain in several areas. From L4/L5 all the way down through buttocks, around hip joint areas, groin and on down my legs to ankles and feet. No tingly sensation. Just the deepest, heaviest, bone-crushing dull throbbing aching and a burning in their too. It never stops throbbing/aching/burning EVER. Not ever. I’m under pain management but,..I will never stop looking for someone who might know something that would help me. Even if some surgery or something could reduce my pain by 50% or say, stop the pain in my hip/leg areas…..I’m not exaggerating. Living in THIS kind of severe pain is a living hell that never ends and I am desperate to enjoy some last years before I die. I’m 58. I don’t know why this had to happen but it did and I am never going to learn to LIVE with it. What I’m doing these past 28 years is not living….. it’s STRUGGLING in physical pain through each 24 hr period….only to repeat. It’s been over 11,000 of those and I need HELP.😭
I have doctors BUT,…I just seem like a number to them in a way. It’s like,..no one wants to dig deeper into what actually caused each injury and find exactly where nerves were compressed or pulled etc….the nerves that run through the pelvic area are ALOT and could have been damaged somehow in more than one way or place 🤷🏻♀️🤷🏻♀️ I get lumped in with back injury ppl because I do have back pain but…I just feel like I was injured from the inside. I didn’t slip and fall or get into a car accident. I never stop wondering exactly what, where and why.
15-20 minute doctor visit is impossible to diagnose someone correctly or efficiently or effectively.🤷🏻♀️🤷🏻♀️😢
Visceral manipulation has helped me by releasing blockage and thus compression is released
I have some ulnar nerve problems. Can you help me? I'm 16 months post OP. I'm fused C4 to T1. I had a ski accident that made me 30 years older. I've had dramatic recovery but my hands drive me crazy.
What can you do ro help yourself without medication I just have sensation not much pain
I had a surgery on my ankle and I developed neuropathy in bot feet they burn all day evyday. Is that normal. I can’t get any answers if this is normal . Been looking for help for 7 years and slowly giving up on hope . Thanks
Thank you so much for the explanation of the nerves in the body. My mom is 91 and is suffering from nerve pain, tingling and now full numbness in both hands. I have taken her to doctors over the past years and they said that they couldn't help her just giving her pain pills. She had a nerve test for carpel tunnel and it was positive but the neurologist said that she was to old to have the surgery. I don't know if that's true but we're going for a second opinion to another neurologist. My mom's on 2mg of morifin plus two extra strength Tylenol so she can sleep at night for the pain but numbness is always their. By listening to your video it sounds like there's not much that can be done to help her besides what she is doing taking morifin. Is my mom too old for surgery and would it releaved her numb and painful hands?
Try going to a orthopedic hand surgeon....if you look on you tube there are certainly older individuals getting this procedure...endoscopic carpal tunnel surgery.
good luck! Just because someone is older should not limit the help that is offered for them....good luck!
😔😔😭😭😭😭😭 sorry buddy I got the same thing I'm young still 47 lost my job lost it all now I'm disable for life God bless your mom it is not easy
I had surgery over a year ago for a broken femur.While in the hospital I got Covid & was there for 4 months!i’m 84 & wondering if I have long term Covid or issues from femur surgery! I’m taking Neurontin meds & I’ve had therapy more than a year.Wondering if I should see a surgeon or continue therapy?
Hi Dr, for chronic sciatica with unimaginable pain that starts from lower back and travels down left leg and can often be difficult to move or sit. What type of surgery can permanently solve it. Regards
I had the same thing in 2017...had the MILD procedure and haven't had a problem since. Minimally Invasive Lumbar Decompression (MILD)
@@ReLair88 Hi thanks for the reply.
I haven't decided what to do yet as it comes and go but want a permanent solution. I will enquire about this procedure. Regards and stay safe
@@openminds4706 I was pretty much bed-ridden for almost three months. It started to improve on its own about a week before this out-patient surgery, but I knew it would return, so went ahead with the surgery. (Not that being in bed alleviated the pain in any way. I just wasn't able to function.)
@@ReLair88 oh sorry to hear this and hope you are doing better now
Why does spine nerve ablation lose efficacy over time after multiple procedures? I used to get 18 months relief and it's cut down to 6 months if I'm lucky. Thanks 👍
I have had one morton's neuroma removed in my left foot between digit 3 & 4..Then i had another neuroma between 2 & 3...11 yrs later that i had cryogenic freezing to stop the pain...MUCH RATHER HAVE CRYOGENIC FREEZING!
What about Peripheral Neuropathy without pain? My feet are numb, my right leg muscle has atrophied, feels like from knee down I have leg in vise, but NO Pain?
Dr.my mom fell the Dr doctors said she has nerve damage and she can't use her right hand and she said it hurts she also get stiffness in the right arm. I just like to know how I can help her out.
I've been reading a lot about Lipedema and nerve pain. Are you familiar with this?
How about peripheral nerve pain caused by chemo; i.e. taxotere?
Failed back surgery syndrome. Major nerve pain for last 10+ years.
I can probably help with the pain you have.
Doc, I have failed back surgery in 2017 on my L4-L5 with spinal fusion laminectomy ,spinal fusion with bone graft and dissectomy for severe stenosis of my L4 L5. I did not know that my S1 had stenosis too. I did everything by the book log roll whatever the doctors instruction I followed it to the teeth, started my physical therapy when he said it’s OK. He said my back is fused per x-ray report. I was telling the doctor after three months that my leg was tingly and I could not sit for over 15 minutes in the chair. Keep on prescribing me Vicodin 10 mg/325 mg 1 to 2 tablet every 4 to 6 hours when the numbness and tingling sensation didn’t stop. I keep on telling him and he doesn’t know what to do so I asked him to refer me to a pain management doctor, which was like a hard thing to do because they scheduled me and they said they overbooked after one month and then I have to go back and reschedule again in one month and I went ahead and went And when the pain management doctor saw my MRI , he said that the L4, L5 and S1 foramen Has on both sides have a lot of scar tissue which is obstructing the nerves and I told my surgeon I why don’t he go back and scrape the scar tissue; I’m in a lot of pain;needed a pain management doctor and he said that the problem was my S1 , the pain management doctor said he will give me three injection one in between my L4 and L5 on both sides of my foramen & in two weeks times two he is going to inject steroids on my S1 two weeks apart of the foramen. It 12:31 Did not work.😢 i’m also on Neurontin 300 mg four times a day; Vicodin 10/325mg 1 tab.every six hours and Valium 5 mg three times a day. parafon forte 400 mg pretty much taking my pain every six hours around the clock because I couldn’t even go over one hour without hurting so bad and mind you I still hurt even with the pain medicine taken. Doc I need some help please The pain management doctor does not want to do ablation because he said I already got nerve issue on my leg my knee buckles sometimes my leg I can’t move them. I have to literally tell them to you know I got a move it you know I try to exercise whenever I can you know if the weather permits you know in in the streets, so I can at least exercise on the, I try to be active when I can to how much I can tolerate but for the most part I’m useless I have my son drive me to the doctors office because I feel like with all the medicine I’m bored of me you know I might have an accident.
5 yrs if chronic pain( because I didn’t want to have surgery for a herniated disc in my L2-L3) severe cramping behind both thighs, sometimes, stabbing excruciating pain behind the left knee, and, outside of left knee( no, not the IT band) now pain management want to burn L3-L4 nerves, but, I have very bad sacrum pain, which stems to the hip, butt and down the left leg!
I’ve seen, surgeons ( orthopedic and neurologist surgeons) have had nerve blocks ( don’t last long) and am on medication, any thoughts as to what my next step “should” be?
So nerve ablation, burning the nerve off, sounds like a bad idea! I had it done and it did not help it made it more painful. I did have a titanium disc put in and that help some but i still have left side liwer back chronic pain.
Greetings from India. I've been struggling with low back, hip pain for 3 months. After an initial slipped disc diagnosis, my mri showed tarlov's cysts in s1, the largest of which is 3.8 mm. How effective would surgery be? Should I get surgery now or when my motor control is affected, like bowel incontinence etc. I am unwilling for surgery, unless absolutely necessary. Pl advise 🙏
My left tight is numb..I've seen an orthopedic Dr no help..I'm using a chiropractor..but my tight is still numb I've asked if it's meralgia persthica no answer..help..should I see a neurologist
Dr. I have nerve pain from TB in the spine suffering for over 6 years now. I'm not diabetic. This pain is emanating from breast down to my toe. I've been on Gabapentine 3300 mg/day + Dilauded. They said that surgery is not an option. I tried ketamine infusion & inthratecal pump but failed. Tried acupuncture too. I feel like my doctors run out of options so they referred me to pain management class. Have you handled cases like mine? Please advice.
Is there any help when pain medicine is making this worse
I have peripheral neuropathy I get electric shocks numbness crawling sensation pins and needles in legs and feet. Also mortons neuropathy, my legs and feet always feel cold , my balance is affected to, I am not diabetic can you help. Thank you.
Potentially, yes. It doesn’t matter if the neuropathy is related to diabetes or something else. The physical examination is the key to determining whether or not surgery might work for you.
Hi Doctor, I've listened to a few of your videos before I saw a neurologist. I have graves disease. I had a thyroidectomy and a cyst grew back. I had more surgery. I had nerve conduct study with blood work. I have carpet tunnel in both hands. Had surgery on one. Hand surgeon said it's common in thyroid immune disease. I have now been diagnosed with peripheral neuropathy in my leg in foot. Also lyme disease. Please I have been in severe pain for 20 years due to 8 abdominal surgeries. I've tryed everything as far as nerve medication advil creams etc. I can't cope with this anymore. If you think you can help me please comment back. I love in RhodeIsland. I'll do anything go anywhere thank you..... Michele
Yes
Please help me with your knowledge 🙏 I have had chronic pain for years. I have lipomas close to my wrist and elbows, under my rib, I think in my neck and back and legs. I have serious upper back pain ( in the middle and in between my shoulder blades) I have serious sciatica pain and I have really bad foot cramps (constant, even while walking) I truly believe the lipomas have something to do with this but I've never been able to get help. Please tell me what to do !
They told me I have carpal tunel is very bad can't even do physical work anymore they gave me gabapetin but I didn't took cause it didn't help at all just took it for 4 weeks and not improved, they won't gave me nothing else and can't afford surgery
Excellent! ☺☺☺😇😇😇
Hi Dr; thank you for great information. I am 67 years old. I have scleroderma for about 12 years, I am suffering PHN three years ago after a long and painful shingles, no doctors could help with the 24 hours and so much pain and Gabapentin Is the only answer. Please help me. Thank you.
Hello Dr. T ,I have leg pain on side of the b go down to side of the leg to the bottom of my foot , I went around to see 3 surgeons could not find something wrong in my spine they said no surgery ,, I did PT and injections and a lot of things did not help for 2 years and then I did surgery by spine surgeons on L4L5 surgery did not help me to release the pain and I went around injections and PT did not help me I still have the same pain . What kind of doctor I can looking for help ? live in SoCalifornia do you know any Dr can help me . Please help me
Hi Khmer. There are no doctors in California who can help you, mainly because there are no doctors in California who do what I do. You could have piriformis syndrome or some other type of peripheral nerve problem. Send me an email request to patients@tollestrupmd.com if you would like me to figure out where your pain is coming from.
I’ve been in chronic pain after back fusion I’m not even able to wear panties or jeans cause it makes the pain worse please help
I have fusion back of the neck. Had neve damage. After that. Doctors say I have specificity .can't do anything for it.take buckfine and pregabline .don't help. When I walk. Fot pass four years.
Dr. Tollestrup,
Are you doing TMR or RPNI?
Dr. Kevin Powers
In general, I think that RPNI is superior to TMR. Specifically for what I do as a pain-focused peripheral nerve surgeon, TMR doesn’t make a lot of sense because I’m rarely dealing with patients who have had or need some kind of limb amputation. Therefore, I don’t want to sacrifice motor nerves to intact, functioning muscles when I can take a small muscle graft and accomplish the same end goal. Even in the amputee patient, I think RPNI clearly has more potential in terms of providing options for the use of more complex function prosthetics.
I have been in chronic nerve pain for ten years. I have MS and a lesion on C3-C5. My pain radiates from my neck toward my right pectoral, shoulder, right arm at an intolerable pain level with muscle pain in right chest and back. I've been on Fentanyl which has helped somewhat, but now that my doctor has retired, no pain doctor will provide it. Has something changed in the law or regulations. With the extent of my pain is surgery an option? Please tell me there is some relief from this.
CDC opioid guidelines were forced on medical providers a few years ago which were draconian and opiodphobic due to addicts overdosing. Recently it's been changed a bit but the govt is more concerned about racial equity than patients' needs, and constantly referred to sickle cell in that addendum. Many patients including vets with catastrophic injuries had doses cut down or meds cut off altogether. Even cancer and hospice patients bore the brunt. Doctors are still terrified of having their practices raided by the DEA and going to prison if their I's are not dotted correctly or T's crossed on paperwork. We are the collateral damage the govt and media don't care about.
Can grinding my teeth at night cause that sort of compression on my nerves? What about gum disease? I have nerve pain in my face, in front of ears and jaw. Even shooting over the back of my scalp like electric shocks. It seems worse when I brush my teeth.
Things to consider : If Trigeminal nerve, look up a surgeon at University of Wisconsin Hospital . Don’t know his name. If grinding look up massage to release massiter muscles. Get a natural toothpaste and put clove and cinnamon powder or a touch of edible oil on the toothpaste. Make sure won’t hurt enamel. Disclaimer- I am not a doctor. Do your research.
I had trigeminal too and I had few of my bottom tooth grind down as grinding me teeth caused it. The pain has gone