I'm to the point when I go to sleep at night I don't want to wake up because my neuropathy has gotten so irritating and miserable and I'm only 50 and not diabetic or overweight and my physicals always come back good...I'm coming to the end of my rope...I pray for everyone who suffers from this to find help and healing.
Same with me. Just two months ago I started having heaviness, numbness, tingling and aches/pains in my legs, arms, neck. No doctor has been helpful. I don't want to wake up.
@@DC-qm3nz don't give up...I found out my vitamin D was 16 which is very deficient so I started heavy vitamin D3 and K2 supplements and started eating a ketogenic diet and pretty much cut out sugar and I'm actually starting to feel better... definitely research all you can.
Do you think it could be the vaccine side effects? I have gotten this out of nowhere too, I don’t feel a fly crawling, sitting anywhere on my body now. The nerve pain in my legs and now needles all over and inside of eyes.
Hi Don, I fell in Sept., hurt my hip and now myrightfoot is always cold, tingly, asleep,pins and needles. My toes are crooked up , it hurts. Foot pains all the time. Thank you for trying to help. You are a very kind and understanding Dr.
Gladys. It could be a blood clot. I had those symptoms, saw a specialist and it was a blood clot. Had a Stent put in and when blood flow returned, with time, all improved.
WOW !!! I've wasted almost 2 years at the VA trying to find out why I'm having all these problems, 90 % of what I just heard, is new to me from a doctor !
I suffer from severe peripheral neuropathy. You even took the time to email and explained everything to me perfectly. I’m on Medicare and you don’t except it. I’m saving my pennies but I will be there for you to save my life
Dear DR Tollestrup I listened to you speak about peripheral neuropathy . Im a 57 year old male and iv suffered with this for a long time . I have been treated like a addict to the point we're I flushed my meds down the toilet . I did this for four months . The never decreased one bit . Infact it got worse an worse and any type of life I had before stopped . I could no longer go outside or to my local coffee house . I had one leg totally stop working an my balance became so bad I'd just fall over . My hands shook so bad that I dropped things I was holding an the shaking was so bad I threw cups,glasses an silverware .I finally had to take the pain meds or it was going to get the better of me . I no longer take any meds for breakthrough pain an I suffer greatly because of this for several years . I know it's to late for me . As I seem to be getting worse . It means a lot to me to hear that there are Dr that are not writing people off such as myself at a young enough age to get help and mabe there life back . I just wanted to say thank you Sir !! When I heard I broke down an cried . That was something i haven't allowed myself to do except when im having a especially painful day or night . Once again thank you SIR from the very bottom of my heart !!!!!!!!!
I live in Michigan and am a 76-year-old woman. I have one of the best medical insurance plans here in our state, but I doubt it would be good in Nevada. I have heard that at my age the chance of getting better is not possible. I have had sharp pains in my left leg for a couple of years...numbness in my feet..no diabetes, no high blood pressure...I have been checked for blood clots...there were none. My blood circulation was checked and it is normal...so many I will learn to live with it at my age....I have found your video very interesting. Our son works at a huge hospital in Reno, Nevada, as a registered nurse with an additional degree in infectious disease...you are very easy to listen to...thank you for helping people.😊
This is more information than what we have been told by the 4 different doctors my step son has been to in the last couple of months. He is only 23 years old, has Type 1 DM, and is suffering from Neuropathy. We have absolutely no treatment plan for him and he has no relief from this pain. It is such an agonizing experience. We are going to continue to fight for him and educate ourselves. Thank you Dr.Tollestrup for sharing your knowledge with us. We might take an out of state trip to Nevada to see if he can finally get some relief.
I have idiopathic peripheral neuropathy in my feet that is slowly moving upward. Mostly I have pain like walking on tacks, restless leg syndrome in my right foot, the feeling of wearing compression hose that are too tight, total numbness and a stabbing burning pain like when your foot is asleep and it’s just starting to wake up. I saw a neurologist and had the electric test done which was painful in the areas where I am not numb. The prescription drugs did not work at all. What does work almost immediately is a topical salve with CBD and THC massaged into my feet by Mary Jane’s Medicinals. Thank you for the video and explaining in detail more information than I have been able to glean elsewhere.
Hi! Thank you very much for your information! :) I live in Oslo Norway and have the exact same symtoms as you. But I can't find anywhere to buy this product you mention. I will be thankful if you could provide a generic term for the " topical salve with CBD and THC by Mary Jane’s Medicinals." Then I can search for an alternative. I have had periferal sensory neuropaty for 3 years now, and all doctors I have asked say there is no cure...
Thank you doctor. That was the most illuminating explanation I have ever heard about PN. And I had no idea that some PN could be treated with surgery, but it makes perfect sense once you explained it. I've had PN in both feet for about 20 years. My holistic doctor diagnosed it based upon "walking on cardboard". My MD actually used acupuncture for about 5 years, and I had almost total relief for the first 3 years, and subsequent acupuncture did slow or halt the advance. I just wanted to say that you are a gem among doctors: caring, conservative and brilliant.
Thank you Dr. for explaining what PN is. I have been suffering with RLS for over 15 years. I am not sure if my RLS has led to PN or the other way around. Can they go hand in hand ? Thank you very much for this informative report. It helped educate me and I understand it so much better. LG
Just wondering if I have this PN, can I also have sciatica at the same time? As I have pain in my bum area all the way down to my ankle, the back of my left leg , finery pain from the back of my knee area to my ankle. Also I am a type 2 diabetic. Hope you answer me back, thank you, Lana Scott
Thank you Dr. Tollestrup for letting us understand a little more about this complicated matter. You are right some neurologists are not well prepared in regards to this ailment.
You are very informative never had a doctor explain anything to me just shove medicine that don’t work never found a good doctor thanks for being helpful
I have been searching for YEARS for an explanation. I have seen numerous doctors and nobody had an answer or a treatment. For years it's been an indescribable pain, sort of like having my feet literally on fire. Recently it's gotten more intense and there are the pins and needles as well. I now do not have any insurance, so I am just living with it as best I can. I wish I had found your channel 2 years ago, when I had insurance! Anyway, thanks for making this video and I can at least know what to call it.
The PN that started in my big toe is now completely gone after 9 months of lchf OMAD. Brought my A1c down from 10.2 to 5.1. my vision is significantly improved, my skin has cleared up, lost 57 lbs and my labs are excellent for first time in 20 yrs. Mostly eat meat, high fat (butter/olive oil only) and a few veggies. (Broccoli, aspary, brussel sprouts, occasional salad,)
@@makeoversbymeme2077 low carb high fat one meal a day. I do this too lately. Meat, eggs, cream and thats it. In general. I do mix in some carbs or light fruit and veg. Not much. High meat and fat. No seed oils either. Posion
The cure for most people is eating a whole food or low carb/keto/carnivore diet. I recommend to people when they pick up something to eat ask yourselves a few questions. 1) Is this a whole food? 2) Is it going to nourish me? 3) Am I just emotionally eating?
Thank you for this video. This has answered alot of questions for me..I have listen to you several times now..I certainly need your help. My pain started many years ago. It has grown from my toes to hands too..my balance is affected now. Thank you .
Thank you for this really enlightening explanation. I would like to know if PN caused by chemical toxicity years ago (15-20) ago causes any type of swelling that would cause impingement of nerves ?
Thank you. My symptoms are not painful but still very unpleasant, numbness and a feeling like there is cast encircling my feet and lower legs. They just don’t feel anything like they used to. To express it differently my lower extremities feel trapped. Don’t have diabetes so I guess what I have is Idiopathic neuropharmacologist. I am doing exercises to improve my balance, and they help some, don’t want to use drugs.
My doctor was unsuccessful treating my neuropathy. It felt like sunburned road rash. I finally tried with OTCs. It took a while, but with B12 (later, B-complex), turmeric/curcumin, D3, Mg, and CBD, it is quite significantly better.
@@tkevasu989 Mg is magnesium. I take a high absorption, chelated form of magnesium (magnesium bisglycinate). CBD is cannabidiol, made from hemp. I took all of the aforementioned (in my previous post). It took a while, but it finally greatly minimized the symptoms.
@@djondjon Sir, Thanks So Much for your timely response. I will follow your advice. I am totally dipressed. NOW I got confidence after seeing your message. Thanks again. High Regards
@@tkevasu989 Be sure your doctor approves. Since he or she should know your health history and/or current blood work results, and would know what is safe for you.
@@djondjon Thanks Sir. I have consulted Senior Neuro physician, and Orthopaedic Doctor. They Prescribed Gabatenin and Mythylcbalamin.. But no relief. My problem due to heavy use of 2 wheeler traveling. My friend also got relief after Magnisium suppliment. Thanks again Sir.
I appreciate” the listen to your patient for a bit” , there is so much assuming when your getting in you 60’s and a cubby person. I don’t have diabetes,my cholesterol is low. I had a brain bleed In basal ganglia , which stopped so I survived. I am left with right sided paralyze that leaves me pretty limited. Movement. My heart is functioning well. So I may live to an old age pretty well otherwise. Old nurse so I know that listening is important and there is only so much can be done. This was very clear explanation and I like the good sense approach.
I liked this video so much that I stayed up til 4 a.m. watching it. I was 99.5% sure that this guy was who I needed to see up until 1:29:00 thru 1:29:20, that's when he said the words that put me at 100% sure! LOL.... Excellent advice. I hope this doctor is still practicing cuz I need his help.
Diagnosed with PN over 25 years ago! Have muscle weakness in my left leg.No pain thank God! Went to PN doctor years ago. At that time didn't seem to have much hope for cure! Was prescribed years ago also with Amlodipine for blood pressure.still on it! Looking forward to watching the rest of your video!
So thankful for your very informative video! I’m currently undergoing right foot issues diagnosed as plantar fasciitis, Achilles tendinitis, tibialis tendonitis. Not to mention having had a nerve conduction test 4-5 years ago that was very unpleasant. I have had so many wishy-washy diagnosis and dead end very expensive tests and treatments that I’d literally have 30k more in my bank account. My podiatrist just recently tried putting me on a low dose of lyrica and even at 50mg taken in the evening for only 4 nights I am already getting negative side effects and called to tell him I’m not taking this anymore. I’ve been prescribed SSRIs before and have had horrible effects and told him that but he assured me that lyrica was different. Nope. Exactly the same or close enough that I don’t want it in my system.
1800 mg of high quality alpha lipoic acid taken three times a day and 600 mg doses after 30 days you will notice an immense positive change in peripheral neuropathy symptoms. If you experience a change after 30 days continue use after 60 days mine was completely gone. And I take 1800 mg a day now for maintenance. Of course proper stretching and exercise along with it. And swimming it will save your life!
Eu tomo 300mg de ácido alfalipoico+ 150mg de benfotiamina+ 400mg magnésio quelado + vitamina D3 com K2. Dieta com baixo carboidrato, cortei glúten, lácteos, álcool e faço caminhadas diárias. Estou completamente assintomática 🙏🙏🙏
MGUS can cause peripheral neuropathy. Feet and up to the sock line numbness top and bottom of feet. Little bit in finger tip, pins and needles and not much pain.
I suffer from chronic back and neck pain now it has crept to my feet. Please advise what to do. I want to be able to manage it. I am tired of taking pain killers that don't work. Thanks for putting yourself out here.
I would like to have clarifications on the 20% of failures following the surgical operation. Are these failures related to the fact that the pain persists or are there failures that further invalidate the patient?
Wow my dad has been bed ridden for about 6 months and it just hit him after he fell. He has a weak knee and was 2 weeks away from having surgery on it when he fell and then he started losing feeling and tingling. He is being pumped with drugs and the rehab/nursing home just now finally got him an appointment with a neurologist. He don’t have a lot of money and lives off of his s.s so I fear now if he is a candidate they won’t want to do the surgery because he only has Medicaid and little income. Does anyone think he would be a candidate? All we can do is pray but this sure has given some hope at least. Thank you for this video
I have exactly what your talking about I have aches that I can't explain from my ankles up to my calves and sometime my wrists and I often have burning feet.
Greetings Dr. Tim, I was diagnosed with moderate PN one year ago. Numbness in my feet started 4 years ago. My primary thought no big deal. After 3 more yrs he finally referred me, as walking was getting more difficult thus the diagnosis. My condition is the same. Stiffness , soreness and heavy feet and legs. After walking 10 minutes have to take a break. Have a new neurologist I see next month and will ask about the test you mentioned. It’s the first time I ve ever heard of a possible cure. Thank for an excellent presentation.
I’m so glad I found you. Can it be torn? I’m at a loss and I can’t take this pain any longer. I’m waiting on a call back from your office in Nevada. Thank you for giving me hope!
I have PN of the side of the foot, mostly starting at the ankle going down the left side of the foot. Pain, nerves shooting , electrical , no burning . My podiatrist has suggested removing the sensory nerve, the problem is only on the left side of my ankle and foot, this happened after a laminotomy , nerve never healed . The Dr said removing the sensory nerve would not effect my walking because it was not a motor nerve . I've been on every drug imaginable, now on Cymbalta and tizanidine, nothing works. What is your feeling on removing the sensory nerve that is causing the pain in the left side of my foot, and cramps in my calf ?
They don't really know how to cure you so they want to fill you with as many drugs as they can for as long as they can before recommending anything else. But drugs never cured anything. You have to talk to other patients to see what actually works.
Thank you for this in depth discussion. The basic symptoms you describe of numbness, burning or tingling are the ones I had. By process of elimination I found the major culprit to be sugar and fructose. This extended to anything refined or processed and is directly correlated in that a few pieces of pineapple would cause a little burning, more than that a lot of discomfort. And no fruit, sugar refined carbs or alcohol and all symptoms disappeared. I also regularly have diabetes tests which so far are clear. ,
Your experience is encouraging for me. I just started the carnivore diet, eating nothing but meat (mostly beef) and water, specifically to address peripheral neuropathy. So far after 4 weeks my blood pressure is significantly lower, depression and anxiety are gone, I sleep the whole night through for the the first time in years, and headaches have disappeared. Look up "carnivore diet" on TH-cam and be amazed at what it can cure, from diabetes to gut issues to skin conditions, autism and MS. Amazing. Thanks for posting.
did it cure your neuropathy? I am pre-diabetic and just started getting neuropathy. pins and needles in my feet only. I am willing to try anything at this point. I generally eat very healthy and am not overweight and there is no diabetes in my family.. I did previously have lyme disease and the PN got bad after i took predisone for poison ivy over the summer. now the PN is constant where before i would just get stabbing pains every once in a while.. @@capealiaksin8776
I’ve had peripheral neuropathy since 2013 after a mastectomy. Had I.V. Chemo first as there was a tumor like growth the wanted to reduce in size before operating. Then, a partial mastectomy follow by radiology. Legs,,feet have been numb,,numbness wrapped around the back through the rib cage. Feet felt like there was a thick board on each foot. Legs made It difficult to walk as the only feeling was that they were there and had to be taught to re walk, but only severe soreness around the arm of the side of the operation. Not really direct pain. That got better , some relieved, so I could again do driving self to appointments and gardening, moderate housework. Somewhere in late 2019, I began to go backward. Numbness and lameness returning and vertigo with walking imbalances. Then in 2020, I became aware that the formerly numb side was beginning to…’wake’, and I could feel the actual flesh of the arm on the side of the operation. I didn’t notice that my other side was being affected but I could no longer reach down to trim my own toenails on that opposite side. Then I noticed the toes on that opposite side foot had turned under,,claw like. And a toenail fungus had so taken over the nails that I could hardly trim. Pain I’d had in the hip on that side,,switched to a pain in the side of the operation. Have a lot of trouble trying to get socks and shoes on that side now. I am going backwards. Had sessions of Epley maneuvers given until the vertigo stopped. Found online, exercises to relieve the vagus nerve and those muscles surrounding the vagus nerve. Now,,today,,finally, 2 years later, I was assigned a PT because of the vertigo and I managed to get through to them that this neuropathy had taken over but was having the greatest relief from the vagus nerve and muscles ..and eye exercises..that had almost stopped all vertigo and was feeling really as if I’d gone past that paralysis and vertigo…until I started doing gardening. Anything I do,,is body doesn’t seem to adjust and get stronger without muscle pain and vertigo,,it keeps coming back. Thank God,,this PT has finally considered its not all my ears but other..things causing this return to neuropathy, some vertigo,, muscle soreness,,stiff necks,,with great pain there, etc. and has assigned special exercise maneuvers for the affected areas. But..I don’t know what’s going on or has gone on that I understand the going backwards,,back into the neuropathy and muscle pain. Do you,,or Doctor,,have any idea what is happening..? I’m sure I’m not the only person in the world to have had this happen to them too but the doctors I have seem to just skip over any discussions about it. Is the last 2/3 of your teaching the answer? All these years,,the space for the Original nerves have become crowded for the small space left to it by the swelling from the cancer therapy..?? Even after 7-1/2 years..?? Frankly,,that seems to be a lot of answers to the questions I’ve asked.
Given your history of chemotherapy, you are certainly at high risk for having developed mechanical compression neuropathies in your legs/feet. You really need to have a comprehensive peripheral nerve evaluation to know if you would be a candidate for nerve decompression surgery or not.
Your video is amazing so thankful I found it. I have had to serve PN for over 10 years. I have had a couple of EMGs throughout the years with no nerve damage. I am a nurse on my feet for hours. My feet hurt horribly, I have had all the tendons cut in all my toes. I have had hammer toe surgery and a bunion fixed neither worked to help my feet. I can live through the pain in the day. But have horrible pain at night. Both feet and mid-way up my calves on both legs are about the same amount of pain. Is there a Dr like you in Utah and if not how do I make an appointment with you?
very informative and professional. At some point I have carpal tunnel syndrome while working in compounding pharmacy (busy hands problem combined with reaction to various meds). I stopped it by eliminating citrus fruits from my food choice. Now I assume that Ph has it's word in the situation. I also switched to old style soap. You show what and how to pull all factors together so patient can analyze lifestyle and better describe it to those who involved in decision making. I still remember EMG test as pointless torture. You return us to reality. Thank you so much, Mr. Tollestrup.
Thankyou explaining this affliction so thoroughly.. have had numb feet for about a year….my right foot in particular. Cannot feel my toes …have to be Very careful when walking. take b12 …d3 Thought It was from taking statin meds!,,,!
Dearest Dr. Tollestrup, thank you for the wealth of information. Is there anyone here in the Dallas, Texas, area that can perform this surgery. I am so desperate to find relief.
Thank u, Doctor! My iron tablet disappears the pins n needles, always, but I take a very small dose of iron w no calcium, to help absorption, so this is why I take small dose. I was wondering, greatly about chemicals that they spray? I’ve been smelling at nite an extreme chemical smell wafting in the window, with extreme watery eyes, until I close the window. People that study geoengineering say they spray LITHIUM in air. Was wondering what that or others could do to cause neuropathy symptoms. God bless!
I have an underactive thyroid and take 50 grams of Thyroxine each day. I had this for almost ten years before it was diagnosed. The horrific pain across the top and around my right foot and sometimes my left foot, is exactly as described in this video by you.The absolute tiredness and pain all over my body as though I'd been attacked by something unknown. I thank you for that, as I feel I am not been taken seriously regarding the ferocity of the pain. I am prescribed 30mg Co -codamol for the pain 2 x four times a day. I had a Morton's Neuroma in my right foot, which was removed about four years after the foot problems had begun. Three operations were performed on my foot at the same time. Neuroma excised, a Nerve stretched across my foot from the same point of where the Neuroma had been. A pin was attached and the nerve attached to this. The inside of my foot was (I think) shaved to straighten it as it had a bit of bone protruding which is now even worse. There's a hard lump of bone on top of my foot between the first and second down from Big toe. I didn't have this before my op. I have no idea why all this was performed apart from the removal of the Neuroma, which was causing pain up to my knee too. I think the surgery caused the problems I now have, with the pain I suffer each and every day. . I am so tired of all of this, but sleep is a problem I also have pain under my left breast, which was infected due to a bout of Shingles, which caused such pain I thought I was having a heart attack. This veers between sudden stabbing and shooting pains. It has been happening for years. I didn't know about the Thyroid and the Shingles until you spoke about today possibly having some effect on the pain. .I also have bouts of Sciatica on my right side at the top of my leg/hip. I know this is a lot of info, and am sorry to lay this at your door. I am not Diabetic. I'd like to know what's best to help. The Consultant Surgeon retired from his post within a month of my operation. Scares me. A lot. The mention of the Mortons Neuroma surgery made me sit bolt upright. I did have XRays You got my absolute attention. I do have all the symptoms of this but whatever this is, I'm in shocking unrelenting pain. I don't drink alcohol. At all. You can tell which part of your video I'm watching, from where I'm now responding to what you say. I am horrified by your opinion regarding the state that the so called Orthopaedic surgeon has left me with. I have little hope left, and I just want to improve the quality of my life. to enable me to enjoy it after all these years.
I hope you found help. Some doctors are good and some don't help at all. I 'very been through that. My chiropractor helped me. I did see a few chiropractors before I found one to help. He did more than ' Crack my back.'
@@happynancybear8709 I can relate. I am good without a walker or cane right now. Still in chronic pain. Injections in the back. I can't afford them. Too many cortisone shots. Neuropathy now. Try listening to sound vibration music. I listened to Good Vibes on TH-cam. There is many different ones. The Regeneration one Really helped me for 1 day. I need to listen with headphones on. And listen alot even play when I sleep. Most people know not to touch my back. I tap people's shoulders myself when I say hi. Shooting pain. Also takes about 5 -10 seconds sometimes before pain registers when I accidentally burn myself with air fryer. Not good One day I actually felt 1/2 human. My eyes water from pain sometimes.
I should not have needed 5 ankle surgeries. The first doctor put a cast on my broken ankle. Took it off 10 days later and told me to go back to work. Another operated , didn't send me to PT. Standing working and ankle rebroke . The bone called the talus inside ankle. He operated again, then PT. And put me on a test that should not have been given to me for at least a year if at all.... you get the Idea 23 + cortisone injections in 3 -4 years. I Know. I wanted to work and needed to work. Anyway, try the therapy listening to music with headphones. I listened to Good Vibes the Regeneration one. I could feel the chronic pain getting alot better. I felt almost human for a day. I still hurt bad ( people can't tap my back. ) but I was even standing straight. Nicoli Tesla has music too on TH-cam. Won't hurt and it is free. I hope it helps.
Thank you for this video, I have learned so much , the neurologist that I went to, the only words he say was "you have diabetic neuropathy " after that he kept quite and I asked him like 5 questions and that was it, never he tried to explain what you should do, or what you might feel, or any other information. I felt so overwhelmed and confused.
I thought I had PN and fibromyalgia. I ended up going to a NAET acupuncturist(s) who told me 95% of the time they were finding it was food allergies. A year later, IT WAS FOOD ALLERGIES. I did multiple treatments ($50 a piece) and I’m 100% better. I do not know if this will work for everyone. I did not believe it would work for me. However after five or six treatments it was obvious.
I had back surgery and right after I developed a severe burning pain from the top of knee up to the upper thigh on left side. Is this typical after surgery.?
Do you allways say neuripty is from diebeite I have terrible pain in.my feet legs and nees I have had some tests done and did not come from diebiets I am waiting to see some other dr in hospital shortly what do you think please help
Absolutely fantastic this as been the most informative video I have seen, my Neurologist has ever explained it in such detail all he has ever said is you have Peripheral Neuropathy and there is no cure just take pain killers .
Hi ,thank you for explaining, I'm from Pakistan, meeting you is not possible,but I need your help I got this nerve problem after covid 19 my both feet have pinching burning sensation,and symptom is very disturbing is excessive sweating on whole body especially on forehead ,I ve lower backbone compression also,pls tell me what I do
I'm from Detroit, MI. I had a thyroidectomy from pappilary cancer and they also took my parathyroids unintentionally in 1985. Took radioactive iodine then and in 1998 when the cancer returned. I developed PN shortly after I broke a toe in 2006. I was recently diagnosed with diabetes. Do you know if Medicare covers surgery? Suggestions?
Thank you so much for this presentation. 5 months ago I was sitting with my leg tucked under me and when I got up, my left leg was entirely numb. Feeling eventually returned in my thigh but have PN from my left knee down, my right foot and ankle AND my groin. Sitting has been almost intolerable (due to strange, odd, pressure-like sensations & sunburn type feeling) and I only sit when I have to drive. Saw a neurologist who obviously didn't know much about this and referred me to a neuromuscular specialist who I won't be able to see for another couple of months. You have given me hope that this may be a compressed nerve somewhere high up and that I may be a candidate for surgery. (They did a lumbar MRI and it's not in the spine.)
My boyfriend had mentioned his left leg feeling numb from knee down a couple of times but it went away. About 5 months ago he took me to Las Vegas for my birthday and the day before we were to return home his leg went numb and the left side of his body started to spasm. We went to the hospital by ambulance and after a scan they told us he had a significant mass in his brain. We returned home and the tumor was removed. It was a big, benign menegioma the size of a large lemon that had probably been growing there for 20 years. He has done great but still has numbness in his leg. They said the numbness should improve as the brain fills in the void where the tumor had been. Please check everything.
this sounds more like spinal stenosis or severe pinch nerve. i had serious sciatic nerve problem. i finally had a epidural steriod injections. and i have been pain free for over a year. before I received the shot, I barely could get out of bed.
I need to see you! I’m suffering from something - it’s just sever pain in several areas on one side of my lower body. I need to see you because YOU really sound like you KNOW what’s going on & you sound like You actually CARE! 🙏🏻 yes my quality of life is all but gone- almost to my much to bare to walk. Wake in pain: pain wakes me up. You are very knowledgeable. Seem like a GREAT DR.
@@carolferguson19 no it way worse. The leg feels like a heavy weight. I have numbness started in my toe now it’s moving up my foot and bottom of my leg. Unbearable to walk. Maybe from my spin? But thank you so vm 🙏🏻🙂
Wonderful video! Thank you so very much! I had Guillain-Barré syndrome in 2016. I have tingling in my arms and some in my shins. Is there anything that can help me with these terrible symptoms? Thank you for any help!!! Mike
I Was injured in Vietnam I have a piece of scrap metal in my lower left calf . I have drop foot and The top ofI my foot and my toes are numb Ihave terrible pain hot burning stinging throbbing you name it. Would you consider surgery for me I’m 74 otherwise healthy.
Absolutely outstanding video. Thank you for taking the time to explain everything in an easy to understand yet detailed way. I'm am so impressed and will be in good hands with you no doubt. Can't wait for my opportunity to meet you soon.
Stem cell therapy may work for some types of ‘peripheral neuropathy’ but it is not effective when the underlying problem responsible for the clinical symptoms is mechanical compression of the nerves.
Just started 2 months ago , tingling in my toes and my.left leg behind my knee feels like it's always asleep. And headaches on my left side, burning in both heels.. can you please help.
Explained alot more than Everything Heard before. Thanks how can i disregard That. My pains come from L5 pain and not other of trying to recup the Info Need
You seem to diagnose my problem.Two year ago I had complete knee replacement.Six weeks ago I fell on my back and fractured three ribs .I am now suffering from tingling on the right side of my calf from the knee down to my toes.Also get swelling t my ankle and toes.What treatment would you suggest for me.Thanks for your response.
@@TimTollestrupMD hello Dr. I am 35 and only for a few months I have been having the pins and needles/slight numbness in the bottoms of my feet and hands/forearms off and on for a couple of months. Concurrently I have been having burning tongue sensation as well. I eat very well, supplement vitamins, and get moderate exercise weekly. I used to drink to excess, but have not for quite a while. My anxiety since 2020 had been high and periodic heart palpitations. Where should I begin seeking relief? I am hopeful for referral since this is very early. I appreciate any responses!
I was told I have SEVERE Gillian's Barre Disease in my legs FEET and fingers. However my current doctor is very young!! Where are you located for any of the stuff you have. Pleasef
Thank you so much. I had hip replacement on right dide one month ago, could this have left me with PN on the other leg at the thigh level? Is this permanent?
I am suffering. Toes on fire when I lay down. Not all the time. But when it kicks in. Yamma Hamma pain. High sugar. Other than this great health. No other symptoms.
I have diagnosed myself with idiopathic neuropathy. Have weird feeling in both feet like the skin is too tight and kind of numb I guess No relief like it is permanent . When I lie down for any length of time my toes and calf muscles will cramp and sometimes RSL syndrome. Consequently I get little sleep so it is basically ruining my life My GP has given me Lyrica - didn’t make any difference and had side effects I have normal cholesterol levels and blood pressure and not diabetic I eat a super healthy diet etc I was diagnosed with PAD but wasn’t severe My question to the good Dr is could PAD cause my numbness and cramps. I think your presentation was very comprehensive and excellent AD
PAD? peripheral artery disease? Well the blood does feed nutrients to the nerves, so sadly we lose nerves/endings/function entirely when lacking circulatory nutritions (and oxygen etc) for long enough.
Is there any relief for those with (heredity) Sensory/Motor Axonal Polyneuropathy? I've already had decompression surgery L-3-5 for severe spinal stenosis.
Is it possible to have polyneuropathy as a result of SIFI and or Leaky Gut Syndrome? If you were to have my MRI and xrays and EMB reports is it possible to do a teleconsult as I live in New York? I have been to both a neurologist and neurosurgeon.
Broken hip 12 yrs ago lld numb toes, electric pain when bending like a pending squat. Use walker. Walk like ape without walker. Dra gave me serotonin, gabap, tramadol n9thing works. Good leg same but ankle swells. Blocked femoral artery on broken hip side found by vascular surgeon when attempting stents for 2aaa aneurism, could not use do to clog arteries. Any hope or suggestioñ???
Compression socks don't help line takes days to go away. Metal to correct hip moved into bone. Dr said breaking femour and digging out metal never. This happened because of fall 5 days after surgery. Pl ease help if possible.
This is an honest, knowledgeable doctor who has spent time to give us a treasure trove of information.
I'm to the point when I go to sleep at night I don't want to wake up because my neuropathy has gotten so irritating and miserable and I'm only 50 and not diabetic or overweight and my physicals always come back good...I'm coming to the end of my rope...I pray for everyone who suffers from this to find help and healing.
Same with me. Just two months ago I started having heaviness, numbness, tingling and aches/pains in my legs, arms, neck. No doctor has been helpful. I don't want to wake up.
@@DC-qm3nz don't give up...I found out my vitamin D was 16 which is very deficient so I started heavy vitamin D3 and K2 supplements and started eating a ketogenic diet and pretty much cut out sugar and I'm actually starting to feel better... definitely research all you can.
Nights are always worse. Burning, itching, restless skin everywhere. I may fall asleep for 1-2 hours at a time.
I am so upset with neuropathy. Before my hip surgery I had no problems
Do you think it could be the vaccine side effects? I have gotten this out of nowhere too, I don’t feel a fly crawling, sitting anywhere on my body now. The nerve pain in my legs and now needles all over and inside of eyes.
What a great doctor. Thank you so much for taking the time to explain this condition.
What is the chance of cure if your pn is inherited?
He's a scholar! He put out 1 hour & 40 minutes.
A very rare opportunity for us to observe a true healer in his natural habitat. I thank you for your honesty, time and knowledge sir.
Oh I forgot to thank Dr.Tollestrup
U ARE just brilliant to explain the problem. So pleased!
Hi Don, I fell in Sept., hurt my hip and now myrightfoot is always cold, tingly, asleep,pins and needles. My toes are crooked up , it hurts. Foot pains all the time.
Thank you for trying to help. You are a very kind and understanding Dr.
Gladys. It could be a blood clot. I had those symptoms, saw a specialist and it was a blood clot. Had a Stent put in and when blood flow returned, with time, all improved.
WOW !!! I've wasted almost 2 years at the VA trying to find out why I'm having all these problems, 90 % of what I just heard, is new to me from a doctor !
I suffer from severe peripheral neuropathy. You even took the time to email and explained everything to me perfectly. I’m on Medicare and you don’t except it. I’m saving my pennies but I will be there for you to save my life
Me too . A lot to save I guess 🤔
What is a general cost? I know everyone is different and so an exact cost isn't realistic, but are there payment plans of any sort?
@dgottobed Do not go to him! I was numb and he decompressed my 3 peroneal nerves and left me with severe pain and tingling!
I take Benfontamine, Alpha Lipoic Acid and B complex. D3k2 and serapeptase.
@@Agapy8888 is that helping
Dear DR Tollestrup I listened to you speak about peripheral neuropathy . Im a 57 year old male and iv suffered with this for a long time . I have been treated like a addict to the point we're I flushed my meds down the toilet . I did this for four months . The never decreased one bit . Infact it got worse an worse and any type of life I had before stopped . I could no longer go outside or to my local coffee house . I had one leg totally stop working an my balance became so bad I'd just fall over . My hands shook so bad that I dropped things I was holding an the shaking was so bad I threw cups,glasses an silverware .I finally had to take the pain meds or it was going to get the better of me . I no longer take any meds for breakthrough pain an I suffer greatly because of this for several years . I know it's to late for me . As I seem to be getting worse . It means a lot to me to hear that there are Dr that are not writing people off such as myself at a young enough age to get help and mabe there life back . I just wanted to say thank you Sir !! When I heard I broke down an cried . That was something i haven't allowed myself to do except when im having a especially painful day or night . Once again thank you SIR from the very bottom of my heart !!!!!!!!!
I'm so sorry you are dealing with it, so scared myself
Please try acupuncture
I pray you get help. Don't give up. You are still young.
I live in Michigan and am a 76-year-old woman. I have one of the best medical insurance plans here in our state, but I doubt it would be good in Nevada. I have heard that at my age the chance of getting better is not possible. I have had sharp pains in my left leg for a couple of years...numbness in my feet..no diabetes, no high blood pressure...I have been checked for blood clots...there were none. My blood circulation was checked and it is normal...so many I will learn to live with it at my age....I have found your video very interesting. Our son works at a huge hospital in Reno, Nevada, as a registered nurse with an additional degree in infectious disease...you are very easy to listen to...thank you for helping people.😊
Thank you 😊 for your kindness ❤️ a breath of fresh air. ❤️
This is more information than what we have been told by the 4 different doctors my step son has been to in the last couple of months. He is only 23 years old, has Type 1 DM, and is suffering from Neuropathy. We have absolutely no treatment plan for him and he has no relief from this pain. It is such an agonizing experience. We are going to continue to fight for him and educate ourselves. Thank you Dr.Tollestrup for sharing your knowledge with us. We might take an out of state trip to Nevada to see if he can finally get some relief.
Have you tried keto or carnivore?
Is he a type 1 diabetic?
I take Lyrica it works good it started from day 1 of taken it Not 30 or more days like some pills
@@txlucky1 a
Im not a Diebitic the Dr.zTold me i had Nerve Ending it is around my Ankle and up aways.
Thank you for putting yourself out there like this where ppl like me can find you. I will be emailing you very soon. Thanks!
Finally, some direct information. Keep up your writing and research. We all appreciate some news … good info.
You are the first doc that explained this perfectly.thank you
This video truly is an answer to many months of prayer,
I have idiopathic peripheral neuropathy in my feet that is slowly moving upward. Mostly I have pain like walking on tacks, restless leg syndrome in my right foot, the feeling of wearing compression hose that are too tight, total numbness and a stabbing burning pain like when your foot is asleep and it’s just starting to wake up. I saw a neurologist and had the electric test done which was painful in the areas where I am not numb. The prescription drugs did not work at all. What does work almost immediately is a topical salve with CBD and THC massaged into my feet by Mary Jane’s Medicinals.
Thank you for the video and explaining in detail more information than I have been able to glean elsewhere.
Hi! Thank you very much for your information! :)
I live in Oslo Norway and have the exact same symtoms as you. But I can't find anywhere to buy this product you mention. I will be thankful if you could provide a generic term for the " topical salve with CBD and THC by Mary Jane’s Medicinals." Then I can search for an alternative. I have had periferal sensory neuropaty for 3 years now, and all doctors I have asked say there is no cure...
Thank you doctor. That was the most illuminating explanation I have ever heard about PN. And I had no idea that some PN could be treated with surgery, but it makes perfect sense once you explained it. I've had PN in both feet for about 20 years. My holistic doctor diagnosed it based upon "walking on cardboard". My MD actually used acupuncture for about 5 years, and I had almost total relief for the first 3 years, and subsequent acupuncture did slow or halt the advance. I just wanted to say that you are a gem among doctors: caring, conservative and brilliant.
I totally agree!
Oh this is great to hear! Just found him
Thank you Dr. for explaining what PN is.
I have been suffering with RLS for over 15 years.
I am not sure if my RLS has led to PN or the other way around. Can they go hand in hand ?
Thank you very much for this informative report. It helped educate me and I understand it so much better.
LG
What is restless legs vs peripheral neuropathy?
Just wondering if I have this PN, can I also have sciatica at the same time? As I have pain in my bum area all the way down to my ankle, the back of my left leg , finery pain from the back of my knee area to my ankle. Also I am a type 2 diabetic. Hope you answer me back, thank you, Lana Scott
Thank you Dr. Tollestrup for letting us understand a little more about this complicated matter. You are right some neurologists are not well prepared in regards to this ailment.
Very true
You are the first Doc that has explained this clearly. Thank you!
You are very informative never had a doctor explain anything to me just shove medicine that don’t work never found a good doctor thanks for being helpful
I have been searching for YEARS for an explanation. I have seen numerous doctors and nobody had an answer or a treatment. For years it's been an indescribable pain, sort of like having my feet literally on fire. Recently it's gotten more intense and there are the pins and needles as well. I now do not have any insurance, so I am just living with it as best I can. I wish I had found your channel 2 years ago, when I had insurance! Anyway, thanks for making this video and I can at least know what to call it.
Have you tried using a small TENS machine with sticky pads on your feet? It could help..!
Thank you for having this very informative to the public in your thorough explanation in the field of your expertise.
The PN that started in my big toe is now completely gone after 9 months of lchf OMAD. Brought my A1c down from 10.2 to 5.1. my vision is significantly improved, my skin has cleared up, lost 57 lbs and my labs are excellent for first time in 20 yrs. Mostly eat meat, high fat (butter/olive oil only) and a few veggies. (Broccoli, aspary, brussel sprouts, occasional salad,)
That’s wonderful!! What is Ichf OMAD?
Me two ,what is OMDA ?
@@barrylowther8728 One Meal A Day. Google is your friend. You are welcome. Be blessed.
@@makeoversbymeme2077 low carb high fat one meal a day. I do this too lately. Meat, eggs, cream and thats it. In general. I do mix in some carbs or light fruit and veg. Not much. High meat and fat. No seed oils either. Posion
@@scoobtoober2975 thank you for sharing
The cure for most people is eating a whole food or low carb/keto/carnivore diet. I recommend to people when they pick up something to eat ask yourselves a few questions. 1) Is this a whole food? 2) Is it going to nourish me?
3) Am I just emotionally eating?
you are so right, thanks for this. I have been fasting12 to14 hours a day, going for a 21 day, I'm starting to feel better already!
I've read on the keto diet. It is not a long-term diet, and you still need vitamins A,C, and E. Beware, it is best for short-term only.
1:18:46 @@maronichalyles7515
Thank you for this video. This has answered alot of questions for me..I have listen to you several times now..I certainly need your help. My pain started many years ago. It has grown from my toes to hands too..my balance is affected now. Thank you .
Thank you for this really enlightening explanation. I would like to know if PN caused by chemical toxicity years ago (15-20) ago causes any type of swelling that would cause impingement of nerves ?
Thank you. My symptoms are not painful but still very unpleasant, numbness and a feeling like there is cast encircling my feet and lower legs. They just don’t feel anything like they used to. To express it differently my lower extremities feel trapped. Don’t have diabetes so I guess what I have is Idiopathic neuropharmacologist. I am doing exercises to improve my balance, and they help some, don’t want to use drugs.
Now I know what to ask my doctor and will have a better understanding of what the options may be Thanks Doctor.
My doctor was unsuccessful treating my neuropathy. It felt like sunburned road rash. I finally tried with OTCs. It took a while, but with B12 (later, B-complex), turmeric/curcumin, D3, Mg, and CBD, it is quite significantly better.
Sir, Useful information for me. Aged 72 Suffering neuropathy. Please explain what is Mg, CBD, which would be helpful for me. Regards
@@tkevasu989 Mg is magnesium. I take a high absorption, chelated form of magnesium (magnesium bisglycinate).
CBD is cannabidiol, made from hemp.
I took all of the aforementioned (in my previous post). It took a while, but it finally greatly minimized the symptoms.
@@djondjon Sir, Thanks So Much for your timely response. I will follow your advice. I am totally dipressed. NOW I got confidence after seeing your message. Thanks again. High Regards
@@tkevasu989 Be sure your doctor approves. Since he or she should know your health history and/or current blood work results, and would know what is safe for you.
@@djondjon Thanks Sir. I have consulted Senior Neuro physician, and Orthopaedic Doctor. They Prescribed Gabatenin and Mythylcbalamin.. But no relief. My problem due to heavy use of 2 wheeler traveling. My friend also got relief after Magnisium suppliment. Thanks again Sir.
I appreciate” the listen to your patient for a bit” , there is so much assuming when your getting in you 60’s and a cubby person. I don’t have diabetes,my cholesterol is low. I had a brain bleed In basal ganglia , which stopped so I survived. I am left with right sided paralyze that leaves me pretty limited. Movement. My heart is functioning well. So I may live to an old age pretty well otherwise. Old nurse so I know that listening is important and there is only so much can be done. This was very clear explanation and I like the good sense approach.
Vitamin E , Omega fatty acids like EPA , DHA. Turmeric helps omega fatty acid absorption. Lysolecithin also helps. Vitamin D helps magnesium absorption. Nerve flossing excercises. Vitamin K increases sulfatides in brain for myelination. Choline.
Thank you Dr. Tollestrup for explaining the PN problem so well!
0
Peripheral neuropathy classification
Length dependent, sensory > motor
• Diabetes about one third
• Alcohol about one third
• Idiopathic about one third
• Vitamin B12
• Vitamin E
• Thiamine
• Amyloidosis
• Paraprotein related
• Confluent vasculitis
• HIV
• Toxic, chemotherapies, HAART etc.
• Typical workup [starts in his feet, slowly progressive] includes fasting blood sugar or hemoglobin A1c, B12 level, thyroid function tests, serum protein electrophoresis and immunofixation
• Additional studies if atypical: Nerve conduction studies/EMG, creatinine, ESR, ANA, rheumatoid factor, HIV, CMV of HIV positive, LFTs, hepatitis profile for HBV and HCV serology if LFTs and abnormal, vitamin E levels
Diffuse motor > sensory
• AIDP
• CIDP
• POEMS syndrome; osteosclerotic myeloma
• Drugs [amiodarone, gold, perhexilene]
• Inherited [Charcot-Marie-Tooth]
• Acute arsenic
• Lead intoxication
• Diphtheria
• Investigations: Nerve conduction studies, electromyography, spinal fluid, fasting blood sugar, B12, liver function studies, HBV and HCV if LFTs abnormal, serum protein electrophoresis and immunofixation, creatinine, ESR, ANA, RF, ANCA, cryoglobulins, Lyme antibodies, HIV, if HIV positive then CMV antigenemia, 24-hour urine for heavy metals if previous studies unrevealing
• Testing for M protein: Skeletal survey, 24-hour urine for Bence-Jones protein, CBC, serum calcium, renal function tests, biopsy for amyloidosis, bone marrow biopsy
Multifocal, motor & sensory
• Immune mediated: Vasculitis, sarcoidosis, brachial neuritis, mCIDP, multifocal motor neuropathy
• Infectious: Lyme, HIV-associated CMV, leprosy, HZV
• Infiltrative: Diabetic amyotrophy, amyloidosis, lymphoma, leukemia
• Hereditary: CMT X, hereditary neuropathy with pressure palsies HNPP
• Investigations: Nerve conduction studies, EMG, spinal fluid, nerve biopsy, fasting blood sugar, hemoglobin A1c, B12, LFTs, HBV and HCV if LFTs abnormal, serum protein electrophoresis and immunofixation, creatinine, ESR, ANA, RF, Lyme antibodies, ANCA, cryoglobulins, HIV, CMV antigenemia if HIV positive
Neuropathies with prominent dysautonomia
• Diabetes
• Guillain-Barré syndrome, AIDP
• Amyloidosis
• Hereditary sensory and autonomic neuropathy HSAN
• Porphyria
• HIV
• Taxanes, e.g., vincristine
Neuropathies with prominent ataxia
• Paraneoplastic: Anti-Hu, anti-CV 2, malignancy
• Sjogren syndrome, anti-SSA, anti-SSB
• MAG neuropathy
• Vitamin E deficiency
• Vitamin B6 excess
• Syphilis
Just scrolled down and came across your presentation. Thank you for sharing your knowledge.
I liked this video so much that I stayed up til 4 a.m. watching it. I was 99.5% sure that this guy was who I needed to see up until 1:29:00 thru 1:29:20, that's when he said the words that put me at 100% sure! LOL.... Excellent advice. I hope this doctor is still practicing cuz I need his help.
Send an email request to patients@tollestrupmd.com to start the process if you have not already done so.
Thank you
L
@@eyleenjones9288 😮😮😮
Diagnosed with PN over 25 years ago! Have muscle weakness in my left leg.No pain thank God! Went to PN doctor years ago. At that time didn't seem to have much hope for cure!
Was prescribed years ago also with Amlodipine for blood pressure.still on it! Looking forward to watching the rest of your video!
So thankful for your very informative video! I’m currently undergoing right foot issues diagnosed as plantar fasciitis, Achilles tendinitis, tibialis tendonitis. Not to mention having had a nerve conduction test 4-5 years ago that was very unpleasant. I have had so many wishy-washy diagnosis and dead end very expensive tests and treatments that I’d literally have 30k more in my bank account. My podiatrist just recently tried putting me on a low dose of lyrica and even at 50mg taken in the evening for only 4 nights I am already getting negative side effects and called to tell him I’m not taking this anymore. I’ve been prescribed SSRIs before and have had horrible effects and told him that but he assured me that lyrica was different. Nope. Exactly the same or close enough that I don’t want it in my system.
Can foot exercises help to reduce advancement of nerve damage
Incredible description and translation. Thank you.
1800 mg of high quality alpha lipoic acid taken three times a day and 600 mg doses after 30 days you will notice an immense positive change in peripheral neuropathy symptoms. If you experience a change after 30 days continue use after 60 days mine was completely gone. And I take 1800 mg a day now for maintenance. Of course proper stretching and exercise along with it. And swimming it will save your life!
That sounds like a lot! I have just began to take it but only 600 mg per day. Is it safe to take more?
Eu tomo 300mg de ácido alfalipoico+ 150mg de benfotiamina+ 400mg magnésio quelado + vitamina D3 com K2. Dieta com baixo carboidrato, cortei glúten, lácteos, álcool e faço caminhadas diárias. Estou completamente assintomática 🙏🙏🙏
👍
I have had damage to my tail bone. Could my peripheral Neurophathy in my feet?
MGUS can cause peripheral neuropathy. Feet and up to the sock line numbness top and bottom of feet. Little bit in finger tip, pins and needles and not much pain.
Are you aware of neurosurgeon who does this surgery in Calgary Ab, Canada
I suffer from chronic back and neck pain now it has crept to my feet. Please advise what to do. I want to be able to manage it. I am tired of taking pain killers that don't work. Thanks for putting yourself out here.
I would like to have clarifications on the 20% of failures following the surgical operation. Are these failures related to the fact that the pain persists or are there failures that further invalidate the patient?
looks like he is not answering any messages on here stated below the video. 80% get full recovery and 20% get no better or worst.
Very Informative ~Thank you!
Very helpful explanation. Are there any studies that look at possible correlations between PN and diet?
Thanks for sharing, very helpful info . Excellent lectures/presentations. 💐🌸🌺
Thank you for such a detailed and vast description of this ailment and what can happen to address it.
I just found your post. I will listen to your information. I am desperate . My neuropathy is in both hands and both feet and both calves, Thank you.
Wow my dad has been bed ridden for about 6 months and it just hit him after he fell. He has a weak knee and was 2 weeks away from having surgery on it when he fell and then he started losing feeling and tingling. He is being pumped with drugs and the rehab/nursing home just now finally got him an appointment with a neurologist. He don’t have a lot of money and lives off of his s.s so I fear now if he is a candidate they won’t want to do the surgery because he only has Medicaid and little income. Does anyone think he would be a candidate? All we can do is pray but this sure has given some hope at least. Thank you for this video
Dr Tollestrup is a Genius
I have exactly what your talking about I have aches that I can't explain from my ankles up to my calves and sometime my wrists and I often have burning feet.
Greetings Dr. Tim, I was diagnosed with moderate PN one year ago. Numbness in my feet started 4 years ago. My primary thought no big deal. After 3 more yrs he finally referred me, as walking was getting more difficult thus the diagnosis. My condition is the same. Stiffness , soreness and heavy feet and legs. After walking 10 minutes have to take a break. Have a new neurologist I see next month and will ask about the test you mentioned. It’s the first time I ve ever heard of a possible cure. Thank for an excellent presentation.
What is your opinion on acupuncture for PN?
I’m so glad I found you. Can it be torn? I’m at a loss and I can’t take this pain any longer. I’m waiting on a call back from your office in Nevada. Thank you for giving me hope!
Have you made any progress, fingers crossed?
I have PN of the side of the foot, mostly starting at the ankle going down the left side of the foot. Pain, nerves shooting , electrical , no burning . My podiatrist has suggested removing the sensory nerve, the problem is only on the left side of my ankle and foot, this happened after a laminotomy , nerve never healed . The Dr said removing the sensory nerve would not effect my walking because it was not a motor nerve . I've been on every drug imaginable, now on Cymbalta and tizanidine, nothing works. What is your feeling on removing the sensory nerve that is causing the pain in the left side of my foot, and cramps in my calf ?
How do you find a top neurologist in your area that has a desire to cure your neuropathy? Syracuse NY
You can't .
They don't really know how to cure you so they want to fill you with as many drugs as they can for as long as they can before recommending anything else. But drugs never cured anything. You have to talk to other patients to see what actually works.
Watch Alan Mandell and Eric Burg. Take ALA
Can you recommend an associate in Greensboro, NC area who is also familiar with IBM disease? Thank you!
Excellent explanations. Clear and concise. Thank you.
Thank you for this in depth discussion.
The basic symptoms you describe of numbness, burning or tingling are the ones I had.
By process of elimination I found the major culprit to be sugar and fructose. This extended to anything refined or processed and is directly correlated in that a few pieces of pineapple would cause a little burning, more than that a lot of discomfort. And no fruit, sugar refined carbs or alcohol and all symptoms disappeared. I also regularly have diabetes tests which so far are clear.
,
Your experience is encouraging for me. I just started the carnivore diet, eating nothing but meat (mostly beef) and water, specifically to address peripheral neuropathy. So far after 4 weeks my blood pressure is significantly lower, depression and anxiety are gone, I sleep the whole night through for the the first time in years, and headaches have disappeared. Look up "carnivore diet" on TH-cam and be amazed at what it can cure, from diabetes to gut issues to skin conditions, autism and MS. Amazing. Thanks for posting.
did it cure your neuropathy? I am pre-diabetic and just started getting neuropathy. pins and needles in my feet only. I am willing to try anything at this point. I generally eat very healthy and am not overweight and there is no diabetes in my family.. I did previously have lyme disease and the PN got bad after i took predisone for poison ivy over the summer. now the PN is constant where before i would just get stabbing pains every once in a while.. @@capealiaksin8776
2:20 2:22
How can I tell the difference in peripheral neuropathy from diabetes or nerve pain from a pinched nerve?
I had a neroma many years ago no problems then had buniectomy wit screws and fusion. Am a type to diabetic what do I do. Have had some balance issues.
I’ve had peripheral neuropathy since 2013 after a mastectomy. Had I.V. Chemo first as there was a tumor like growth the wanted to reduce in size before operating. Then, a partial mastectomy follow by radiology. Legs,,feet have been numb,,numbness wrapped around the back through the rib cage. Feet felt like there was a thick board on each foot. Legs made It difficult to walk as the only feeling was that they were there and had to be taught to re walk, but only severe soreness around the arm of the side of the operation. Not really direct pain. That got better , some relieved, so I could again do driving self to appointments and gardening, moderate housework. Somewhere in late 2019, I began to go backward. Numbness and lameness returning and vertigo with walking imbalances. Then in 2020, I became aware that the formerly numb side was beginning to…’wake’, and I could feel the actual flesh of the arm on the side of the operation. I didn’t notice that my other side was being affected but I could no longer reach down to trim my own toenails on that opposite side. Then I noticed the toes on that opposite side foot had turned under,,claw like. And a toenail fungus had so taken over the nails that I could hardly trim. Pain I’d had in the hip on that side,,switched to a pain in the side of the operation. Have a lot of trouble trying to get socks and shoes on that side now. I am going backwards. Had sessions of Epley maneuvers given until the vertigo stopped. Found online, exercises to relieve the vagus nerve and those muscles surrounding the vagus nerve. Now,,today,,finally, 2 years later, I was assigned a PT because of the vertigo and I managed to get through to them that this neuropathy had taken over but was having the greatest relief from the vagus nerve and muscles ..and eye exercises..that had almost stopped all vertigo and was feeling really as if I’d gone past that paralysis and vertigo…until I started doing gardening. Anything I do,,is body doesn’t seem to adjust and get stronger without muscle pain and vertigo,,it keeps coming back. Thank God,,this PT has finally considered its not all my ears but other..things causing this return to neuropathy, some vertigo,, muscle soreness,,stiff necks,,with great pain there, etc. and has assigned special exercise maneuvers for the affected areas. But..I don’t know what’s going on or has gone on that I understand the going backwards,,back into the neuropathy and muscle pain. Do you,,or Doctor,,have any idea what is happening..? I’m sure I’m not the only person in the world to have had this happen to them too but the doctors I have seem to just skip over any discussions about it. Is the last 2/3 of your teaching the answer? All these years,,the space for the Original nerves have become crowded for the small space left to it by the swelling from the cancer therapy..?? Even after 7-1/2 years..?? Frankly,,that seems to be a lot of answers to the questions I’ve asked.
Given your history of chemotherapy, you are certainly at high risk for having developed mechanical compression neuropathies in your legs/feet. You really need to have a comprehensive peripheral nerve evaluation to know if you would be a candidate for nerve decompression surgery or not.
@@TimTollestrupMD do you need to do this in person, or if you are at a distance, a video consult?
Spondylosis, can it be helped by surgery?
It's there a Dr in NC you would recommend to cut my femoral nerve in dying from the pain
If you are in NC the closest doc to you who does this kind of surgery is Eric Williams in Baltimore.
Your video is amazing so thankful I found it. I have had to serve PN for over 10 years. I have had a couple of EMGs throughout the years with no nerve damage. I am a nurse on my feet for hours. My feet hurt horribly, I have had all the tendons cut in all my toes.
I have had hammer toe surgery and a bunion fixed neither worked to help my feet. I can live through the pain in the day. But have horrible pain at night.
Both feet and mid-way up my calves on both legs are about the same amount of pain.
Is there a Dr like you in Utah and if not how do I make an appointment with you?
very informative and professional. At some point I have carpal tunnel syndrome while working in compounding pharmacy (busy hands problem combined with reaction to various meds). I stopped it by eliminating citrus fruits from my food choice. Now I assume that Ph has it's word in the situation. I also switched to old style soap. You show what and how to pull all factors together so patient can analyze lifestyle and better describe it to those who involved in decision making. I still remember EMG test as pointless torture. You return us to reality. Thank you so much, Mr. Tollestrup.
Thankyou explaining this affliction so thoroughly.. have had numb feet for about a year….my right foot in particular. Cannot feel my toes …have to be
Very careful when walking. take b12 …d3 Thought It was from taking statin meds!,,,!
Please look into acupuncture
Dearest Dr. Tollestrup, thank you for the wealth of information. Is there anyone here in the Dallas, Texas, area that can perform this surgery. I am so desperate to find relief.
Thank u, Doctor! My iron tablet disappears the pins n needles, always, but I take a very small dose of iron w no calcium, to help absorption, so this is why I take small dose. I was wondering, greatly about chemicals that they spray? I’ve been smelling at nite an extreme chemical smell wafting in the window, with extreme watery eyes, until I close the window. People that study geoengineering say they spray LITHIUM in air. Was wondering what that or others could do to cause neuropathy symptoms. God bless!
Will special shoes help the feet on the numbness and sensation on the feet. If so what brand of shoes.
I have an underactive thyroid and take 50 grams of Thyroxine each day. I had this for almost ten years before it was diagnosed. The horrific pain across the top and around my right foot and sometimes my left foot, is exactly as described in this video by you.The absolute tiredness and pain all over my body as though I'd been attacked by something unknown. I thank you for that, as I feel I am not been taken seriously regarding the ferocity of the pain. I am prescribed 30mg Co -codamol for the pain 2 x four times a day. I had a Morton's Neuroma in my right foot, which was removed about four years after the foot problems had begun. Three operations were performed on my foot at the same time. Neuroma excised, a Nerve stretched across my foot from the same point of where the Neuroma had been. A pin was attached and the nerve attached to this. The inside of my foot was (I think) shaved to straighten it as it had a bit of bone protruding which is now even worse. There's a hard lump of bone on top of my foot between the first and second down from Big toe. I didn't have this before my op. I have no idea why all this was performed apart from the removal of the Neuroma, which was causing pain up to my knee too. I think the surgery caused the problems I now have, with the pain I suffer each and every day. . I am so tired of all of this, but sleep is a problem
I also have pain under my left breast, which was infected due to a bout of Shingles, which caused such pain I thought I was having a heart attack. This veers between sudden stabbing and shooting pains. It has been happening for years. I didn't know about the Thyroid and the Shingles until you spoke about today possibly having some effect on the pain. .I also have bouts of Sciatica on my right side at the top of my leg/hip. I know this is a lot of info, and am sorry to lay this at your door. I am not Diabetic. I'd like to know what's best to help. The Consultant Surgeon retired from his post within a month of my operation. Scares me. A lot. The mention of the Mortons Neuroma surgery made me sit bolt upright. I did have XRays You got my absolute attention. I do have all the symptoms of this but whatever this is, I'm in shocking unrelenting pain. I don't drink alcohol. At all. You can tell which part of your video I'm watching, from where I'm now responding to what you say. I am horrified by your opinion regarding the state that the so called Orthopaedic surgeon has left me with. I have little hope left, and I just want to improve the quality of my life. to enable me to enjoy it after all these years.
I hope you found help. Some doctors are good and some don't help at all. I 'very been through that. My chiropractor helped me. I did see a few chiropractors before I found one to help. He did more than ' Crack my back.'
Find a spine and back clinic
I need a walker after last back surgery, years later, foot agony when I try to sleep. Uhhgggg.
@@happynancybear8709 I can relate. I am good without a walker or cane right now. Still in chronic pain. Injections in the back. I can't afford them. Too many cortisone shots. Neuropathy now. Try listening to sound vibration music. I listened to Good Vibes on TH-cam. There is many different ones. The Regeneration one Really helped me for 1 day. I need to listen with headphones on. And listen alot even play when I sleep. Most people know not to touch my back. I tap people's shoulders myself when I say hi. Shooting pain. Also takes about 5 -10 seconds sometimes before pain registers when I accidentally burn myself with air fryer. Not good One day I actually felt 1/2 human. My eyes water from pain sometimes.
I should not have needed 5 ankle surgeries. The first doctor put a cast on my broken ankle. Took it off 10 days later and told me to go back to work. Another operated , didn't send me to PT. Standing working and ankle rebroke . The bone called the talus inside ankle. He operated again, then PT. And put me on a test that should not have been given to me for at least a year if at all.... you get the Idea 23 + cortisone injections in 3 -4 years. I Know. I wanted to work and needed to work.
Anyway, try the therapy listening to music with headphones. I listened to Good Vibes the Regeneration one. I could feel the chronic pain getting alot better. I felt almost human for a day. I still hurt bad ( people can't tap my back. ) but I was even standing straight. Nicoli Tesla has music too on TH-cam. Won't hurt and it is free. I hope it helps.
Please tell me what you know about spinal stimulation does it really work for patients with neuropathy?
Thank you for this video, I have learned so much , the neurologist that I went to, the only words he say was "you have diabetic neuropathy " after that he kept quite and I asked him like 5 questions and that was it, never he tried to explain what you should do, or what you might feel, or any other information. I felt so overwhelmed and confused.
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I thought I had PN and fibromyalgia. I ended up going to a NAET acupuncturist(s) who told me 95% of the time they were finding it was food allergies. A year later, IT WAS FOOD ALLERGIES. I did multiple treatments ($50 a piece) and I’m 100% better. I do not know if this will work for everyone. I did not believe it would work for me. However after five or six treatments it was obvious.
@@Intoxicanna thank you for telling me i will research this
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How would u repair the damage nerve .is there any surgical trearment for it .
I had back surgery and right after I developed a severe burning pain from the top of knee up to the upper thigh on left side. Is this typical after surgery.?
Looks like what dealing with. I'm thinking Dr Tollestrup is not going to be helpful. I not staying with him for an hour and half.
Do you allways say neuripty is from diebeite I have terrible pain in.my feet legs and nees I have had some tests done and did not come from diebiets I am waiting to see some other dr in hospital shortly what do you think please help
Absolutely fantastic this as been the most informative video I have seen, my Neurologist has ever explained it in such detail all he has ever said is you have Peripheral Neuropathy and there is no cure just take pain killers .
Hi ,thank you for explaining, I'm from Pakistan, meeting you is not possible,but I need your help I got this nerve problem after covid 19 my both feet have pinching burning sensation,and symptom is very disturbing is excessive sweating on whole body especially on forehead ,I ve lower backbone compression also,pls tell me what I do
Hiya, I'm from England do you know any specialist doctors you recommend in the UK?, i have severe pain in my hand feet and legs . Please help
I'm from Detroit, MI. I had a thyroidectomy from pappilary cancer and they also took my parathyroids unintentionally in 1985. Took radioactive iodine then and in 1998 when the cancer returned. I developed PN shortly after I broke a toe in 2006. I was recently diagnosed with diabetes. Do you know if Medicare covers surgery? Suggestions?
Thank you so much for this presentation. 5 months ago I was sitting with my leg tucked under me and when I got up, my left leg was entirely numb. Feeling eventually returned in my thigh but have PN from my left knee down, my right foot and ankle AND my groin. Sitting has been almost intolerable (due to strange, odd, pressure-like sensations & sunburn type feeling) and I only sit when I have to drive. Saw a neurologist who obviously didn't know much about this and referred me to a neuromuscular specialist who I won't be able to see for another couple of months. You have given me hope that this may be a compressed nerve somewhere high up and that I may be a candidate for surgery. (They did a lumbar MRI and it's not in the spine.)
Watch out! He decompressed my 3 peroneal nerves and left me with severe pain and tingling!
My boyfriend had mentioned his left leg feeling numb from knee down a couple of times but it went away. About 5 months ago he took me to Las Vegas for my birthday and the day before we were to return home his leg went numb and the left side of his body started to spasm. We went to the hospital by ambulance and after a scan they told us he had a significant mass in his brain. We returned home and the tumor was removed. It was a big, benign menegioma the size of a large lemon that had probably been growing there for 20 years. He has done great but still has numbness in his leg. They said the numbness should improve as the brain fills in the void where the tumor had been. Please check everything.
this sounds more like spinal stenosis or severe pinch nerve. i had serious sciatic nerve problem. i finally had a epidural steriod injections. and i have been pain free for over a year. before I received the shot, I barely could get out of bed.
My name is Florence. I’m 87 years old. Am I to old for surgery? I have pain in my left leg and foot. Mainly my toe next to my little toe.
I need to see you! I’m suffering from something - it’s just sever pain in several areas on one side of my lower body. I need to see you because YOU really sound like you KNOW what’s going on & you sound like You actually CARE! 🙏🏻 yes my quality of life is all but gone- almost to my much to bare to walk. Wake in pain: pain wakes me up. You are very knowledgeable. Seem like a GREAT DR.
Sounds like Fibromyalgia.
@@carolferguson19 no it way worse. The leg feels like a heavy weight. I have numbness started in my toe now it’s moving up my foot and bottom of my leg. Unbearable to walk. Maybe from my spin? But thank you so vm 🙏🏻🙂
Do you know a doctor in Vancouver British Columbia who does similar work for nerve block
Wonderful video! Thank you so very much! I had Guillain-Barré syndrome in 2016. I have tingling in my arms and some in my shins. Is there anything that can help me with these terrible symptoms? Thank you for any help!!! Mike
How is surgery done with peripheral mine is the worst on my left foot really swollen the most
I Was injured in
Vietnam I have a piece of scrap metal in my lower left calf . I have drop foot and The top ofI my foot and my toes are numb Ihave terrible pain hot burning stinging throbbing you name it. Would you consider surgery for me I’m 74 otherwise healthy.
Absolutely outstanding video. Thank you for taking the time to explain everything in an easy to understand yet detailed way. I'm am so impressed and will be in good hands with you no doubt. Can't wait for my opportunity to meet you soon.
Outstanding to make more money for the clinic and not to help patients.
How was your surgery ? 🤔✨
Why do you have so many bad reviews? Can u help us to understand why?
Very informative video, thanks. Have you experienced any relief of peripheral neuropathy using stem cell therapy?
Stem cell therapy may work for some types of ‘peripheral neuropathy’ but it is not effective when the underlying problem responsible for the clinical symptoms is mechanical compression of the nerves.
@@TimTollestrupMD how can 1 find out if it's compression neuropathy?
Just started 2 months ago , tingling in my toes and my.left leg behind my knee feels like it's always asleep. And headaches on my left side, burning in both heels.. can you please help.
@@darrenclarke4671 good question. Is there a specific test to assess this?
How does one find out where the nerves are compressed?
Explained alot more than Everything Heard before. Thanks how can i disregard That. My pains come from L5 pain and not other of trying to recup the Info Need
You seem to diagnose my problem.Two year ago I had complete knee replacement.Six weeks ago I fell on my back and fractured three ribs .I am now suffering from tingling on the right side of my calf from the knee down to my toes.Also get swelling t my ankle and toes.What treatment would you suggest for me.Thanks for your response.
Tingles only when I am standing.
I have Peripheral artery disease. What can I do to make it stop it from getting worse?
I can still run and ride a bike and walk but the numbness is creeping up the toes I walk at work many miles am I speeding up the progression?
Probably not.
@@TimTollestrupMD hello Dr. I am 35 and only for a few months I have been having the pins and needles/slight numbness in the bottoms of my feet and hands/forearms off and on for a couple of months. Concurrently I have been having burning tongue sensation as well. I eat very well, supplement vitamins, and get moderate exercise weekly. I used to drink to excess, but have not for quite a while. My anxiety since 2020 had been high and periodic heart palpitations. Where should I begin seeking relief? I am hopeful for referral since this is very early. I appreciate any responses!
When you're saying "peripheral," does that include/mean small fiber?
Excellent presentation. Most informative. Thank you
I was told I have SEVERE Gillian's Barre Disease in my legs FEET and fingers. However my current doctor is very young!! Where are you located for any of the stuff you have. Pleasef
Thank you so much. I had hip replacement on right dide one month ago, could this have left me with PN on the other leg at the thigh level? Is this permanent?
I am suffering. Toes on fire when I lay down. Not all the time. But when it kicks in. Yamma Hamma pain. High sugar. Other than this great health. No other symptoms.
I have diagnosed myself with idiopathic neuropathy. Have weird feeling in both feet like the skin is too tight and kind of numb I guess No relief like it is permanent . When I lie down for any length of time my toes and calf muscles will cramp and sometimes RSL syndrome.
Consequently I get little sleep so it is basically ruining my life
My GP has given me Lyrica - didn’t make any difference and had side effects
I have normal cholesterol levels and blood pressure and not diabetic I eat a super healthy diet etc I was diagnosed with PAD but wasn’t severe
My question to the good Dr is could PAD cause my numbness and cramps.
I think your presentation was very comprehensive and excellent
AD
PAD? peripheral artery disease? Well the blood does feed nutrients to the nerves, so sadly we lose nerves/endings/function entirely when lacking circulatory nutritions (and oxygen etc) for long enough.
I am very similar to you. It’s awful, life changing pain
Is there any relief for those with (heredity) Sensory/Motor Axonal Polyneuropathy? I've already had decompression surgery L-3-5 for severe spinal stenosis.
Is it possible to have polyneuropathy as a result of SIFI and or Leaky Gut Syndrome? If you were to have my MRI and xrays and EMB reports is it possible to do a teleconsult as I live in New York? I have been to both a neurologist and neurosurgeon.
deficiencies or diabetes can both cause it. stomach problems cause absorption issues which can easily cause deficiencies
@@kramer911 are you able to provide the sources of your comments with respect to deficiencies? Thanks.
For LGS listen to Dr. Berg on u tube.
Broken hip 12 yrs ago lld numb toes, electric pain when bending like a pending squat. Use walker. Walk like ape without walker. Dra gave me serotonin, gabap, tramadol n9thing works. Good leg same but ankle swells. Blocked femoral artery on broken hip side found by vascular surgeon when attempting stents for 2aaa aneurism, could not use do to clog arteries. Any hope or suggestioñ???
Compression socks don't help line takes days to go away. Metal to correct hip moved into bone. Dr said breaking femour and digging out metal never. This happened because of fall 5 days after surgery. Pl ease help if possible.
Gp order cymbalta but paperwork from this says combo with tramadol dangerous
Developed hump on neck and back.