Klippel-Feil Syndrome really needs to be listed on the video too! Love the video! We participate fervently each year! facebook.com/KlippelFeilSyndromeFreedom and Twitter @KFS_Freedom Our video this year: th-cam.com/video/byh5r4t5aQ0/w-d-xo.html Huge thank you for all you do! #WRDD2015 #Rare #Care #hcsm
This is beautiful.
Thank you for raising awareness excellent video.
A delightful piece of work - great message well put across.
Thank you ***** and ***** for all of the excellent work you do for those of us living with Rare Diseases! An amazing video.
This was so well done
Thank you!
Beautiful video
Awesome Video, I love it!
Very very sad. I am so sorry
awesome
Os anos vão passado e pouco se avança !!!
why not thalassaemia and PKD - pyruvate kinasis deficiency? I miss them in your list.. They are in europe rare, isn't?
Missing intracranial hypertension?? It only affects 1 in 100,000 people...
It's miserable.
is there a rare disease day this month?
je fait cette video au seminaire
LOVEEEEEEEEEEEE N CARE..................................................;MALTA
Klippel-Feil Syndrome really needs to be listed on the video too! Love the video! We participate fervently each year!
facebook.com/KlippelFeilSyndromeFreedom and Twitter @KFS_Freedom Our video this year: th-cam.com/video/byh5r4t5aQ0/w-d-xo.html Huge thank you for all you do! #WRDD2015 #Rare #Care #hcsm
Disappointed to see #DuchenneMuscularDystrophy not mentioned on the #credits
bel video!
I have a rare disease
Costello Syndrome is not here!
rare diseases
Mitochondrial disease isn't on here? Ummmmm