8-Year-Old Girl Battling A Rare Brain Disease She Calls ‘Awesome’ | TODAY

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  • เผยแพร่เมื่อ 15 พ.ย. 2024

ความคิดเห็น • 2.2K

  • @ViaH__
    @ViaH__ 5 ปีที่แล้ว +5754

    *"If we got rid of my Condition I wouldn't be myself"*
    Maybe I cried. 😢

    • @AreeeAsh
      @AreeeAsh 3 ปีที่แล้ว +21

      @Madison and Leah no u 😭😭😭😭

    • @topatosalt
      @topatosalt 3 ปีที่แล้ว +15

      maybe i did too

    • @dherrer6294
      @dherrer6294 3 ปีที่แล้ว +46

      I know I did shed some tears. Also, when she said that I was like...whoa, she is sooo grounded and so mature about her situation.

    • @Based-Anti-Theist
      @Based-Anti-Theist 3 ปีที่แล้ว +12

      None of you cried 😑

    • @djentleman8116
      @djentleman8116 3 ปีที่แล้ว +18

      it's okay, i cried too and way before this part of the video =[ her innocence and compassion, her empathy and love of herself are all so moving

  • @uwuhowell8998
    @uwuhowell8998 7 ปีที่แล้ว +9077

    This girl is a very strong child, so are her parents. I wish the best for her

    • @HaveSomeTolerance
      @HaveSomeTolerance 6 ปีที่แล้ว +8

      Thattrashcan her and her parents goid luck and stay strong

    • @gyubur
      @gyubur 6 ปีที่แล้ว +10

      Isn’t she so adorable. 💕😊

    • @amayajohnson5845
      @amayajohnson5845 6 ปีที่แล้ว +2

      theaisarat i

    • @ddbears3686
      @ddbears3686 6 ปีที่แล้ว +7

      phanedits You want to call her brave , I would say that she might be a bit on the crazy side. Anybody that name is a disease awesome disease has issues. You’re giving false hope to children telling them they have an awesome disease that is going to make them possibly be in a wheelchair and die at an early age and not thrive like other children. You can think she’s awesome all you want I disagree...I think that she’s gonna look back and go wow that was stupid maybe not though

    • @urmom-ki1of
      @urmom-ki1of 6 ปีที่แล้ว +14

      +DD Bears
      No no no shes saying shes brave because of how she is speaking of it publicly not ANY of the horrible things u said

  • @DutchDread
    @DutchDread 6 ปีที่แล้ว +8445

    "boys get this disease too"...... I love this girl.

    • @marshmallowdoge
      @marshmallowdoge 4 ปีที่แล้ว +31

      DutchDread omg me too

    • @ki-zf6uy
      @ki-zf6uy 4 ปีที่แล้ว +22

      YESS

    • @lovelyletter7460
      @lovelyletter7460 3 ปีที่แล้ว +109

      I know right?! Everything is always about girls and for girls etc. Don’t believe me, go to any department store and try to find cute boys clothes and outfits. Nope. They’re just like an afterthought - a few super hero t shirts and sweat pants shoved in the back and yet countless selections for girls. Yeah I’m a proud boy mom! 👊🏻

    • @laur-unstagenameactuallyca1587
      @laur-unstagenameactuallyca1587 3 ปีที่แล้ว +5

      same

    • @tommzytree2787
      @tommzytree2787 3 ปีที่แล้ว +37

      Me too, she isn’t a feminist who just cares about girls who get it.

  • @maddy1847_fly
    @maddy1847_fly 3 ปีที่แล้ว +2125

    Update: as of March 2021, ellie is still alive, and her family has raised over 400k dollars for research.

    • @Syngrafer
      @Syngrafer 3 ปีที่แล้ว +185

      When I read "Update", I panicked. Glad it's good news!

    • @maddy1847_fly
      @maddy1847_fly 3 ปีที่แล้ว +93

      @@Syngrafer haha, sorry if I scared you! I am too! She is so brave and I wish her the best

    • @Syngrafer
      @Syngrafer 3 ปีที่แล้ว +40

      @@maddy1847_fly No worries, I'm just glad my initial fear was wrong! :D

    • @lilasayers9298
      @lilasayers9298 3 ปีที่แล้ว +44

      Thank you, I was literally scrolling through the comments to find an update.

    • @EmpressStar_103
      @EmpressStar_103 3 ปีที่แล้ว +15

      Where did you get this information?

  • @annabel467
    @annabel467 5 ปีที่แล้ว +4144

    “Tough to pronounce but not nearly as tough as this little girl is.”

    • @insertnamehere9558
      @insertnamehere9558 3 ปีที่แล้ว +18

      Ikr I didn’t know if I should laugh

    • @spec_wasted
      @spec_wasted 3 ปีที่แล้ว +15

      Not at all tough to pronounce, I can spell it without cheating
      Leukoencephalopathy

    • @emsblack4685
      @emsblack4685 3 ปีที่แล้ว +5

      period. harry styles. love your pfp lol

    • @danyelo9032
      @danyelo9032 3 ปีที่แล้ว +1

      I see harry

    • @darakhshanoureen8182
      @darakhshanoureen8182 3 ปีที่แล้ว +2

      True tho! Love ur pf Harry's my favorite!! ❤

  • @triciarose389
    @triciarose389 7 ปีที่แล้ว +3454

    😢😢😢 Ellie you're such an inspiration to everybody of all ages.

    • @oliviacappybara9580
      @oliviacappybara9580 6 ปีที่แล้ว +6

      BeautyFanatic27 no she is not

    • @thegrimreaper1892
      @thegrimreaper1892 6 ปีที่แล้ว +22

      Liv Cabrera yes she is

    • @KarePassion
      @KarePassion 6 ปีที่แล้ว +7

      Goosebumps down the back of my neck... so amazing!

    • @KarePassion
      @KarePassion 6 ปีที่แล้ว +2

      Seriously??? How do you ever count to 667?

    • @illestoftherealest
      @illestoftherealest 6 ปีที่แล้ว +2

      J Co Haha. I don't

  • @learning.growing.1017
    @learning.growing.1017 7 ปีที่แล้ว +5672

    SHE'S SO FREAKING CUTE!!! What a champion.... ❤

    • @_aashes_
      @_aashes_ 6 ปีที่แล้ว +6

      Elizabeth Cartagena ikr

    • @laurenc9458
      @laurenc9458 6 ปีที่แล้ว +7

      Elizabeth Cartagena I know she's so cute

    • @tyh_d8813
      @tyh_d8813 6 ปีที่แล้ว +2

      Fuken lier

    • @salt6519
      @salt6519 6 ปีที่แล้ว +6

      cinnamon gaming Bruh you ain't right.

    • @laylarabbeth2214
      @laylarabbeth2214 6 ปีที่แล้ว

      Praise Be To YAH and His SON you know the name of YAH too?

  • @eelavsks
    @eelavsks 5 ปีที่แล้ว +17757

    Doctor: You have rare disease.
    Ellie: How rare?
    Doctor: You get to name it.

    • @imcookingyayenjoy5922
      @imcookingyayenjoy5922 4 ปีที่แล้ว +268

      • creampop • I would love to name something

    • @theyearthreethousand911
      @theyearthreethousand911 4 ปีที่แล้ว +106

      that is mean to make fun of her disease

    • @isaidmo9520
      @isaidmo9520 4 ปีที่แล้ว +311

      Nola Gamer2008 i- its not mean

    • @isaidmo9520
      @isaidmo9520 4 ปีที่แล้ว +53

      i commented this n forgot all about this adhdhdhd

    • @unknownparrots1358
      @unknownparrots1358 4 ปีที่แล้ว +24

      Most wholesome things

  • @faceshredder2576
    @faceshredder2576 5 ปีที่แล้ว +10759

    Imagine getting that diagnoses...
    “Sir, we have your test results back. I regret to inform you....*long pause*
    You have..awesome disease”
    “Excuse me?”

    • @thewheekingrodent
      @thewheekingrodent 4 ปีที่แล้ว +233

      To add to this there’s a gene called “Sonic Hedgehog Gene” in the human body which can have mutations which causes damaging genetic disorders.
      So somewhere a doctor will have had to inform someone that their loved one has a problem with their Sonic Hedgehog Gene, and it’s manufacturing of the Sonic Hedgehog Protein.

    • @CR_SagetheFairy
      @CR_SagetheFairy 4 ปีที่แล้ว +11

      That’s awesome!

    • @Hakajin
      @Hakajin 4 ปีที่แล้ว +15

      Lol, I would probably ask if that was supposed to be some kind of pick-up line. If we're talking about a diagnosis in adulthood, anyway.

    • @pendrive_01
      @pendrive_01 4 ปีที่แล้ว +2

      😂 😂 😂

    • @emrecann150
      @emrecann150 4 ปีที่แล้ว +3

      Miracle Formula breakthrough created by Doctor!
      supermemoryprogram.com/?hop=sutanle to

  • @me-hk4ro
    @me-hk4ro 4 ปีที่แล้ว +3014

    Okay but isn't anyone gonna inform how beautiful she is

    • @spec_wasted
      @spec_wasted 3 ปีที่แล้ว +72

      you did

    • @me-hk4ro
      @me-hk4ro 3 ปีที่แล้ว +25

      @@spec_wasted Lmao 💀

    • @Bevity
      @Bevity 3 ปีที่แล้ว +129

      Because beauty is relevant here... 👎🏻

    • @Orangejuice1fan
      @Orangejuice1fan 3 ปีที่แล้ว +54

      Uh 911?

    • @Truth72500
      @Truth72500 3 ปีที่แล้ว +40

      Fbi open up

  • @ghosttoast7
    @ghosttoast7 7 ปีที่แล้ว +2674

    What a beautiful and brave little girl. She’s an inspiration ❤️

    • @mirceasidea7682
      @mirceasidea7682 6 ปีที่แล้ว +3

      Almost 900 likes but no comments..

    • @milktea4333
      @milktea4333 6 ปีที่แล้ว

      true lmao

    • @kevinpark55
      @kevinpark55 3 ปีที่แล้ว

      She is not a little girl. I am 8 years old. I am a big boy. So she is a big girl.

    • @Eternal_Sufferring
      @Eternal_Sufferring 2 ปีที่แล้ว +2

      @@kevinpark55 Ok, go play mud

  • @clairepatterson4680
    @clairepatterson4680 7 ปีที่แล้ว +2695

    She's beautiful

    • @haleysgarbage6504
      @haleysgarbage6504 7 ปีที่แล้ว +2

      Claire Patterson iI

    • @eightacres9221
      @eightacres9221 7 ปีที่แล้ว +26

      Maryam A what??😂😂😂 How is this relevant.

    • @stardustangel3528
      @stardustangel3528 7 ปีที่แล้ว +18

      Maryam A
      Idk what children you've been around, but that certainly hasn't been the case from what I've seen.
      Plus, there are plenty of cute/ pretty kids of different skin colors.

    • @mricecream5194
      @mricecream5194 7 ปีที่แล้ว

      I've seen better

    • @cyclonicchris
      @cyclonicchris 7 ปีที่แล้ว

      had to make the 700 likes come true

  • @trustme9572
    @trustme9572 6 ปีที่แล้ว +576

    she’s such a sweetheart, she doesn’t deserve this :(

    • @monabohamad2242
      @monabohamad2242 4 ปีที่แล้ว +33

      I kinda hate it when people talk about anybody "deserving" anything as if Life is all about what we do and don't "deserve" I've went to
      Hospital/s for a Couple of Years in a row to get Medical Treatment and my Mom Traveled Abroad for like 3 years in a row to also get Medical Treatment and what not what does any of that has got to do with anyone "deserving" anything?😑😒

    • @ilovebmth2007
      @ilovebmth2007 3 ปีที่แล้ว +3

      @trust me
      she WANTS to be like this okay?

    • @Caring-girl1.0
      @Caring-girl1.0 3 ปีที่แล้ว

      I agree

    • @pandaperson9466
      @pandaperson9466 2 ปีที่แล้ว +4

      i don't think there is a single child who does

    • @claucara-joanjettfan3984
      @claucara-joanjettfan3984 2 ปีที่แล้ว

      @@monabohamad2242 yup 100 agree, or people who thinks you are a puppy or not human, those people are worse than disease or conditions. I have accepted my adhd and I don't see it as disorder just someone who has a little of challenges over somethings.

  • @hughjazz4736
    @hughjazz4736 3 ปีที่แล้ว +323

    This girl is so positive, smart and strong

    • @Laffy-ix5xy
      @Laffy-ix5xy 3 ปีที่แล้ว +3

      @Shispirina Yes, I agree. I think that being so young and innocent gives her the luxury of not knowing too much about her prognosis or at least have the ability to filter out some of the knowledge she has gained. I'm sure she knows a lot more about it than I do. But on the other hand, it comes back to the fact that no child should have to go through what she is dealing with. I can see you're only trying to see the positive side though. Let's hope they find a cure for her and her fellow awesome patients.

    • @fidelcatsro6948
      @fidelcatsro6948 2 ปีที่แล้ว +2

      agreed!

  • @query4634
    @query4634 3 ปีที่แล้ว +2329

    "What disease do you have?"
    Oh, I have "The awsome disease".
    "Cool! And what does that stand for-?"
    It stands for leukoencephalopathybrainstermpinalcordinvolvementlacateelevation disease. No big deal.

    • @sparklebutt1119
      @sparklebutt1119 3 ปีที่แล้ว +67

      It's not all one word. 🤣🤣

    • @gimygaming8655
      @gimygaming8655 3 ปีที่แล้ว +3

      🤣

    • @query4634
      @query4634 3 ปีที่แล้ว +10

      Omg I just checked in this an it has 468 likes.

    • @darkprotoboy
      @darkprotoboy 3 ปีที่แล้ว +1

      @@query4634 808 now o_o

    • @Xaizomaiii
      @Xaizomaiii 3 ปีที่แล้ว +1

      @@darkprotoboy 853

  • @littlestepprints4911
    @littlestepprints4911 7 ปีที่แล้ว +917

    she is sooo smart!! But she's only 8?! This kid is amazing

    • @egallagher7368
      @egallagher7368 5 ปีที่แล้ว +18

      @little bee. you mean awesome

    • @gamerisrbija
      @gamerisrbija 4 ปีที่แล้ว +4

      @@egallagher7368 both

    • @gamerisrbija
      @gamerisrbija 4 ปีที่แล้ว

      @@pancake_127 edgy

    • @nenidetic
      @nenidetic 4 ปีที่แล้ว +1

      @@pancake_127 they're adding on to the compliment

    • @lissy3336
      @lissy3336 4 ปีที่แล้ว

      I’m your 666 like

  • @rilee5275
    @rilee5275 7 ปีที่แล้ว +2779

    As a blind disability rights activist, I'm proud to say that she will be the revolutionary of the future! She is already expressing such pride in her identity. Hopefully, she learns of the social model of disability and curb-cut phenomenon soon!

    • @yoongistan3335
      @yoongistan3335 7 ปีที่แล้ว +2

      Rilee I

    • @gachagirl2585
      @gachagirl2585 7 ปีที่แล้ว +15

      Rilee how are you able to right.?????

    • @rhianamckenzie932
      @rhianamckenzie932 7 ปีที่แล้ว +87

      well the original commenter can WRITE better than you...

    • @gabrielacruz6011
      @gabrielacruz6011 7 ปีที่แล้ว +8

      Rilee if ur blind how can u write?

    • @silverluvr102
      @silverluvr102 7 ปีที่แล้ว +63

      Gabriela Cruz there are computer programs and hardware that are for blind people. There are Braille key boards, they could have spoken our their comment aloud and it was heard by the computer and typed out.

  • @ddaengella9512
    @ddaengella9512 7 ปีที่แล้ว +612

    When I was like 2, I couldn’t even roll over. I had a sort of muscle disability and I wasn’t strong enough. Soon enough, no one thought I couldnt move for the rest of my life, so I needed a wheelchair. Then my doctor made me an ankle thing and my parents called me “miracle”. whenever I have a bad day, i just remember that one day people everywhere tried hard to help me and that somehow i am a miracle

    • @icecreamguru7584
      @icecreamguru7584 6 ปีที่แล้ว +10

      fair chair I learned to talk and walk late I have dyspraxia but it’s like wayyyyy less than when I was younger. When I was 6 I was diagnosed with I think 4 different things lol

    • @KekePalmer.
      @KekePalmer. 6 ปีที่แล้ว +2

      fair chair is that y its ur name

    • @ddaengella9512
      @ddaengella9512 6 ปีที่แล้ว +5

      Wolf Pup OML I DIDNT NOTICE THAT 😂😂

    • @sanokk3439
      @sanokk3439 6 ปีที่แล้ว +3

      awww fair chair...even ur name...xD

    • @annomaly751
      @annomaly751 5 ปีที่แล้ว +4

      The fact you exist is a miracle 🙏

  • @km1dash6
    @km1dash6 3 ปีที่แล้ว +303

    What Eli said at the end, that she didn't want to cure her own disease because then she wouldn't be herself, is really fascinating. At such a young age, she is able to forge meaning from her condition, and build an identity with it as a positive part of herself.

    • @Trip_mania
      @Trip_mania ปีที่แล้ว +3

      Or it's because it helps her get attention, that she should be getting for her qualities instead.

    • @dad7493
      @dad7493 ปีที่แล้ว +12

      ​@@Trip_maniaor because she just simply don't want to go through such a large life change like a lot of other disabled people because of how hard and long it can take to adapt from their way of life with their disability that they had for as long as they remember to their new, completely different life without said disability, which they won't ever get used to at all is some cases??

    • @ねこ男の子
      @ねこ男の子 11 หลายเดือนก่อน +4

      @@Trip_mania Why are you projecting your wishes of fame onto a child for attention LOL.

    • @SonnyModi-gm7bk
      @SonnyModi-gm7bk หลายเดือนก่อน

      Guys relax this is from a show called Still Alive , she is fictional and her disease is fictional!!

  • @keithandchrissysteury9085
    @keithandchrissysteury9085 3 ปีที่แล้ว +165

    She’s still doing great today. She’s one of my good friends. She is amazing!

    • @wencyanntaday4689
      @wencyanntaday4689 3 ปีที่แล้ว +11

      Really?! Awwee she's really a warrior ❤️

    • @safm986
      @safm986 3 ปีที่แล้ว +3

      like you know her personally?

    • @keithandchrissysteury9085
      @keithandchrissysteury9085 3 ปีที่แล้ว +11

      Yeah, she is doing amazing!

    • @Renwick19
      @Renwick19 2 ปีที่แล้ว

      @@safm986 excuse me if you have nothing better to say shut up and say nothing.

    • @charlotte5671
      @charlotte5671 ปีที่แล้ว +1

      Amazing! I hope that is still the same today. I have an acquired brain injury from an accident. Although different I understand when they said the Drs. Thought she was just being funny. I'm so glad they found a Dr. To investigate & help. I've had to do a ton of research & healing on my own b/c the Drs didn't seem to have any answers on my constant falling. Blessings and love to the whole family but especially Ellie 💝

  • @michellec.4291
    @michellec.4291 7 ปีที่แล้ว +368

    she's just an amazing human being. Wow

  • @ashleyrico4160
    @ashleyrico4160 7 ปีที่แล้ว +870

    She's brave and awesome stay brave!!!

  • @matthewmabasa3331
    @matthewmabasa3331 7 ปีที่แล้ว +700

    She really is awesome

    • @the2ndte
      @the2ndte 6 ปีที่แล้ว +1

      yes we get she has awesome disease? Your point is..? (its a joke... because the name....of the disease.... is....awesome....)

  • @aliceboyd9863
    @aliceboyd9863 5 ปีที่แล้ว +772

    *ellie is like really pretty*

    • @Luna4CE
      @Luna4CE 3 ปีที่แล้ว +5

      For reallll

    • @CedrinMedia
      @CedrinMedia 3 ปีที่แล้ว +3

      How old are you?

    • @whoopwhoop9339
      @whoopwhoop9339 3 ปีที่แล้ว +142

      @@CedrinMedia you can call someone pretty and have no intent of any sort

    • @Chifly-te5vc
      @Chifly-te5vc 3 ปีที่แล้ว +30

      @@whoopwhoop9339 THANK you ✊

    • @FlintGlint
      @FlintGlint 3 ปีที่แล้ว +26

      @Hi person reading this Get your mind out of the gutter there Is nothing sus about calling someone pretty

  • @jaydope4823
    @jaydope4823 3 ปีที่แล้ว +128

    Imagine saying "I have the awesome disease" and your friends are just put in a very awkward situation whether they don't know if they wanna laugh or cry

  • @davidc3857
    @davidc3857 7 ปีที่แล้ว +957

    She's magnificent, what a lovely little lady, my prayers are certainly with her, I hope she recovers well, she's absolutely adorable, it breaks my heart to see children go through such rough times! 💕 PS: You're truly awesome honey, keep up the good fight, you inspire all of us!

    • @sanokk3439
      @sanokk3439 6 ปีที่แล้ว

      yea it's hard for those lil angel's ..

    • @kaitlynlaura6088
      @kaitlynlaura6088 6 ปีที่แล้ว +3

      these run-on sentences are getting on my nerves

  • @nataliepa8406
    @nataliepa8406 7 ปีที่แล้ว +286

    This little girl is such a beautiful human being😭❤️ She doesn’t deserve any of this, she is such an innocent child❤️ May god bless her and her family🙏❤️❤️

    • @greatwhiteflash1645
      @greatwhiteflash1645 6 ปีที่แล้ว +5

      If you believe in god, I guess He has already blessed her. With a horrible medical condition that will see her die in agony through no fault of her own. Praise Him.

    • @lieaparisss08
      @lieaparisss08 4 ปีที่แล้ว +1

      In every innocent comment there is always that one person who ruins the mood. If you have nothing nice to say, don't say it.

  • @heliotype9591
    @heliotype9591 6 ปีที่แล้ว +359

    “Seven, eight, nine, ten, kaput!” Such a sweet cinnamon bun!!!! 😭☺️💖😍

  • @prabhatpoudyal
    @prabhatpoudyal 4 ปีที่แล้ว +57

    This girl is so strong and I hope she's getting better everyday. Bless her 💞

  • @bemeeklezvelveeta6719
    @bemeeklezvelveeta6719 3 ปีที่แล้ว +51

    She's the cutest and most hopeful little kid I've ever seen omg

  • @BUNKBEDJUNCTION
    @BUNKBEDJUNCTION 6 ปีที่แล้ว +509

    DO THE CAPTIONS REALLY HAVE TO BE IN CAPS????

    • @j7055
      @j7055 4 ปีที่แล้ว +27

      I DONT UNDERSTAND WHY

    • @user-db1ec2lw4w
      @user-db1ec2lw4w 4 ปีที่แล้ว +14

      IT’S NETFLIX

    • @Jobe-13
      @Jobe-13 4 ปีที่แล้ว +17

      IT’S SO STRANGE ISN’T IT????

    • @himephobia
      @himephobia 4 ปีที่แล้ว +5

      IKR

    • @sano8172
      @sano8172 4 ปีที่แล้ว +6

      SO COOL WOW

  • @EricaPapad
    @EricaPapad 4 ปีที่แล้ว +477

    This is such an adorable girl with a huge personality.. love her absolute positivity despite the hard times she has to face.. it is truly admirable.. but i have to point out something that rubbed me a bit wrongly.. when they asked her if she would want to be cured and she answered 'I would like to get rid of the medicine but not the disorder because I wouldn't be who i am without it..' .. it made me feel as though she feels her identity is her disorder and that without it she wouldn't be her.. I feel this is a little bit sad.. maybe through trying so hard to be positive and getting attention by being the girl with the 'awesome disease', maybe it was in a way engraved in her that all there is to her is this disorder and that's the only thing that makes her special so she doesn't want it to be gone.. I think it would be nicer if she detached herself from this disorder and put worth on every other amazing quality that she has, because with or without this disease she is still her and she is truly adorable and precious... I hope it is just my misunderstanding of the wording of her answer and this is not truly how she feels because that would be sad..

    • @phoebebiketravel
      @phoebebiketravel 4 ปีที่แล้ว +31

      i was wondering exactly the same as you, but couldn't have phrased it as well and as kindly as you. thank you!

    • @madhukarjonathanminj2772
      @madhukarjonathanminj2772 3 ปีที่แล้ว +13

      I was thinking that as well, nicely put.

    • @kaiatheodore
      @kaiatheodore 3 ปีที่แล้ว +36

      If she hadn't had the disease, she would have had different life experiences and would not be the same person she is now. Your experiences change you, for better or for worse, but they change you. I don't think she was claiming it makes her "special"--just that it cannot be entirely separated from her without changing who she is.
      In my experience, I feel better about the conditions I've embraced. Trying to detach them from myself makes me hate having the conditions, which makes me less satisfied with my life.

    • @explodingdog
      @explodingdog 3 ปีที่แล้ว +20

      @@kaiatheodore The thing is, she was asked if she would want it to go away and she said no because she wouldn't be herself, but she can die having this disease so that was quite shocking to hear. I can understand in the past you wouldn't want to change it, but something that gets worse over time and possibly deadly in the future?

    • @Based-Anti-Theist
      @Based-Anti-Theist 3 ปีที่แล้ว +3

      Too much text ow my brain

  • @boltPoke
    @boltPoke 3 ปีที่แล้ว +187

    Gets disease
    Girl: I see this as an absolute win.

  • @Vexis_plays_games
    @Vexis_plays_games 3 ปีที่แล้ว +1563

    I'd like to know how Ellie is doing today
    Edit:
    Holy crap 919 likes?

    • @kennethjames1837
      @kennethjames1837 3 ปีที่แล้ว +4

      @Junkers Ju 87 what-?

    • @kennethjames1837
      @kennethjames1837 3 ปีที่แล้ว +57

      @Junkers Ju 87 oh I think it’s because her story is famous and her account Is for raising money for research like his comment said.

    • @SummeRain783
      @SummeRain783 3 ปีที่แล้ว +8

      ^ what just happened?

    • @OfficialMyxomatosis
      @OfficialMyxomatosis 3 ปีที่แล้ว +16

      @@SummeRain783 I'm not sure. Just as confused. Maybe one person thought the *_woman_* who spoke about Elle's Twitter was a man. So they were trying to call her out as a pervert/chester. Good grief.

    • @OfficialMyxomatosis
      @OfficialMyxomatosis 3 ปีที่แล้ว +23

      @Junkers Ju 87 YO! *PAY ATTENTION!!*
      _Holly Higgs,_ is the *WOMAN* who knows Ellie's Twitter account. *_Holly Higgs is the original poster._* NOT a man! She is NOT a Chester, pervert or stalker.
      *_You stating, "YEAHHHHH." Only brings suspicion onto yourself._*
      Do your own research before you attempt to call someone out for nothing. This little girl's Twitter account is EVERYWHERE.
      _GET THAT?_
      *EVERYWHERE! ! !*
      I have not logged into Twitter since 2018. I did this morning *for my own research* and Ellie was listed as people I may know, or would like to follow. Most likely because I do lots of fundraising and volunteering.
      Then again, that's how my Father raised me all the way up until he died.
      *EDIT:* stupid google pixel autocorrect - switching back to Samsung.

  • @teclinsoro4523
    @teclinsoro4523 3 ปีที่แล้ว +145

    2:28 had to pause the video to mentally process the chicken man.. that was definitely unexpected

  • @user-lj4vt4rd6p
    @user-lj4vt4rd6p 6 ปีที่แล้ว +52

    She is such a pretty and sweet girl.
    Sending my prayers to her. 😢💞

  • @Lauren-hinrichsen
    @Lauren-hinrichsen 7 ปีที่แล้ว +39

    People call me a robot because I don't cry about anything, but I cried when this video ended.

    • @pauleenantoniette8262
      @pauleenantoniette8262 4 ปีที่แล้ว +6

      How come I also don't cry about everything because I don't want to be seen as a crybaby.
      It's weird when people cry they get call as a crybaby but when you don't cry they said why didn't you cry are you a robot they just can't make up their mind
      Oh its okay to cry sometimes

  • @niky5052
    @niky5052 7 ปีที่แล้ว +428

    Who ever disliked this video is just mean

    • @kcmobaseballmom
      @kcmobaseballmom 6 ปีที่แล้ว +9

      I think some people think of it as disliking the disease not the video.

    • @icecreamguru7584
      @icecreamguru7584 6 ปีที่แล้ว +12

      Novemu I think the people who like it are supporting her

    • @mayakim5240
      @mayakim5240 6 ปีที่แล้ว +8

      Maybe they disliked it because they are upset that she has the disease?

    • @mynameisgreg3033
      @mynameisgreg3033 5 ปีที่แล้ว +1

      Ice cream Guru hi fren ||-//

    • @mynameisgreg3033
      @mynameisgreg3033 5 ปีที่แล้ว +1

      Nove I think the people who liked it are supporting her and like Ellie not the disease

  • @Rachel-nq5so
    @Rachel-nq5so 2 ปีที่แล้ว +12

    I really love how strong and positive she is. Having a rare disease is hard because nothing is really known about it. But the way she stays strong and fights for herself is incredible. I really love her personality and how bright she is. Her parents are also very strong and did a good job in staying with their daughter.

  • @TaylorJohnson1
    @TaylorJohnson1 2 ปีที่แล้ว +36

    Ellie is still with us as there was a video posted on her channel. The disease has progressed, but she is still here! 🕊🌸

    • @ELSGaming
      @ELSGaming 2 ปีที่แล้ว +2

      Very glad she’s doing okay. It looks like she’s walking the same as here? how has the disease progressed?

    • @SuperMissblueeyes
      @SuperMissblueeyes ปีที่แล้ว

      What's her channel name?

    • @JoyP-rw5bc
      @JoyP-rw5bc 5 หลายเดือนก่อน

      How is Ellie doing now is she doing OK?

  • @jeromecabral7464
    @jeromecabral7464 7 ปีที่แล้ว +617

    Praying for her

    • @evilvhs2728
      @evilvhs2728 6 ปีที่แล้ว +1

      Fellow Traveler a research hospital, lol, or just go ahead and send all your savings to that Nigerian Prince who sent you an email.

    • @paulwebb2078
      @paulwebb2078 6 ปีที่แล้ว +1

      Evil Vhs A Nigerian prince won't do anything.

  • @rosiexx27
    @rosiexx27 3 ปีที่แล้ว +4

    Such a pure child. Many many many many many prayers for her hope she gets well soon.

  • @gillianbrookwell1678
    @gillianbrookwell1678 5 ปีที่แล้ว +5

    She's a lovely child. All the best to Ellie and her family.

  • @andreamoon4172
    @andreamoon4172 5 ปีที่แล้ว +8

    What a powerful kid. Brought tears to my eyes.

  • @nikaliking6327
    @nikaliking6327 7 ปีที่แล้ว +88

    Praying for this little girl she's beautiful

  • @FATFASHIONFINESSE
    @FATFASHIONFINESSE 4 ปีที่แล้ว +42

    "I dont feel good about getting rid of my condition, if i get rid i will not be myself!" Such a life lesson she taught

    • @javeydones5163
      @javeydones5163 3 ปีที่แล้ว +5

      True, so many people wish they could be unique and have a deadly disease that kills them at 15.

  • @Kmsnna1012
    @Kmsnna1012 5 ปีที่แล้ว +288

    the doctor looks like buddy from cake boss

    • @malikes4591
      @malikes4591 4 ปีที่แล้ว +3

      Ashley Marie YES! he looks exactly like him!

    • @izzy4791
      @izzy4791 3 ปีที่แล้ว

      HE DOES

  • @vesniqui3773
    @vesniqui3773 5 ปีที่แล้ว +106

    I'm not sure if she's really brave or of just too young to understand the implications of her condition. I really hope she gets enough time to find an adequate, life improving treatment.

    • @NicoleCzarnecki
      @NicoleCzarnecki ปีที่แล้ว +11

      Exactly. Leukoencephalopathy, and related conditions such as Leukodystrophy, take tolls which nobody would ever wish on themselves could they fully understand them.

    • @MangoTroubles-007
      @MangoTroubles-007 11 หลายเดือนก่อน

      ​@@NicoleCzarnecki
      She's probably dead by now

    • @NicoleCzarnecki
      @NicoleCzarnecki 11 หลายเดือนก่อน

      @@MangoTroubles-007, how absolutely comforting for her parents to possibly read 🙄 😠!

  • @jodim3795
    @jodim3795 5 ปีที่แล้ว +8

    I have a chronic pain condition with post traumatic stress syndrome which I find hard to live with. Elle you are the most (beautiful) amazing young lady. I have days where I have to fight to get out of bed. But you have the most amazing outlook after seeing you and your condition you have shown me that you are one of the strongest person I have ever seen. You have an amazing outlook on your life and on what you what to do with that life. So now when I am in hospital and crying my eyes out I will think about you and pull myself together. Thank you so much for sharing your story. My heart is with you princess 👸. You can and should be very proud of yourself. I will keep you in my heart 💓 everyday.

  • @jackycook64
    @jackycook64 7 ปีที่แล้ว +63

    She is amazing. So mature and articulate and a big loving and compassionate heart.

  • @BMarie774
    @BMarie774 4 ปีที่แล้ว +53

    The brain disease is NOT awesome. Ellie is! 😘❤️ Keep fighting, girlie! You’ve got the strength of a warrior. Heck, you’ve got the strength of an endless army of warriors.

  • @ProdByDrestar
    @ProdByDrestar 3 ปีที่แล้ว +34

    0:34 "6 7 8 9 10 kaput" She's so cute! with her little fingers lol, I hope she's doing okay.

  • @em1186
    @em1186 5 ปีที่แล้ว +13

    How in the world did 452 people dislike? Please someone tell me why. Even though there is no possible reason... She is so inspirational and kind and brave.

  • @heatherlynsey3092
    @heatherlynsey3092 3 ปีที่แล้ว +2

    Bless her heart, she is so resilient. I can’t say I’d be that positive. Kids are amazing.

  • @kaylacote5376
    @kaylacote5376 7 ปีที่แล้ว +83

    She is so brave. God bless her

  • @geneviveterriquez9440
    @geneviveterriquez9440 7 ปีที่แล้ว +8

    She is sooo strong and she always looks to the positive

  • @amytan1463
    @amytan1463 7 ปีที่แล้ว +9

    Bless her - she seemed so sweet x

  • @sococa8149
    @sococa8149 2 ปีที่แล้ว +1

    awwwww........brave little girl.....she truly is a messanger of hope, and deserves everthing she accomplishes.....

  • @julesthreetwos
    @julesthreetwos 5 ปีที่แล้ว +2

    SHE IS SO STRONG! Not to mention adorable! Sending love and prayers to her family! Hopefully she came overcome her disease! ❤️

  • @YuliiKurnosov
    @YuliiKurnosov 11 หลายเดือนก่อน +4

    She is such a beautiful child ❤ keep it up, girl!

  • @lesleylaurence6056
    @lesleylaurence6056 5 ปีที่แล้ว +23

    What a beautiful girl! Ellie your so inspirational

  • @lexlex2394
    @lexlex2394 7 ปีที่แล้ว +15

    What an angel❤️ hope she lives a long, great life filled with happiness and positivity!

  • @Angelandblueberry
    @Angelandblueberry ปีที่แล้ว +1

    She’s so brave and strong even when things get rough, she will still stand up

  • @diegensehaut
    @diegensehaut ปีที่แล้ว +1

    What a smart and witty young lady. Really hope she will be getting better! The world needs more people like this

  • @charlotteking6756
    @charlotteking6756 6 ปีที่แล้ว +7

    What an amzing human being. We need more

  • @extrapathos
    @extrapathos 3 ปีที่แล้ว +19

    I love that she acknowledges that boys get the disease too, sounds like something I would have said as a kid, we both like to acknowledge everyone equally.

  • @giahypham4111
    @giahypham4111 3 ปีที่แล้ว +25

    Sometimes in the future:
    “Have you got the test results back?”
    “Yes, it’s awesome…”
    “I’m so sorry to hear that”
    *hug each other and cries

  • @Anna-lr7ur
    @Anna-lr7ur 3 ปีที่แล้ว +2

    Everyone needs to be as positive as this girl!!!

  • @Theorangecrushgamer
    @Theorangecrushgamer 3 ปีที่แล้ว +1

    Shes so precious 🥺

  • @rafaelperalta1676
    @rafaelperalta1676 2 ปีที่แล้ว +15

    I also have a rare disease but much less intense and much less rare than hers. Still deadly though. I am 25 but this young girl half my age has more courage and positivity than I could ever have.
    I admire her. She's giving me courage to fight. I hope both our diseases along with other rare ones get their respective cures.
    Also, the statement her mother said is one of the best parent traits. My mother basically feels the same thing. Parents love their child/ren so much that they would wish to have their child's sickness instead. I can't imagine the pain they experience seeing their children suffering.

  • @lydiamai7458
    @lydiamai7458 7 ปีที่แล้ว +193

    She's so pretty 💗

    • @cookieswithmustachesaj3442
      @cookieswithmustachesaj3442 7 ปีที่แล้ว

      Captain Crunch I know right x3. She's an adorable little girlie.

    • @beriheli2277
      @beriheli2277 6 ปีที่แล้ว

      Captain Crunch why is this relevant?

    • @graaaah9080
      @graaaah9080 6 ปีที่แล้ว +1

      Everyone's beautiful on the inside.

    • @sarviacavazos2153
      @sarviacavazos2153 6 ปีที่แล้ว

      @@luizaspinosa3261 7

  • @auroraknight3766
    @auroraknight3766 7 ปีที่แล้ว +5

    What a pity that a strong minded courageous young girl has to go through this. If the world had more people who are as slightly open hearted as her we'd be living in a much better place 💝

  • @graceharrison1991
    @graceharrison1991 3 ปีที่แล้ว

    So kind to try and help others, I think she’s Awesome

  • @HG-ig3qr
    @HG-ig3qr 4 ปีที่แล้ว +1

    We need to pray for this young girl and all children with rare disorders. I prayed and I'll pray again.

  • @kimbriancuamag6654
    @kimbriancuamag6654 7 ปีที่แล้ว +19

    Strong baby girl..get well soon..godbless u and ur family

  • @mariagalbova9891
    @mariagalbova9891 3 ปีที่แล้ว +3

    I wish her a lot of health.

  • @mayaholt4574
    @mayaholt4574 7 ปีที่แล้ว +173

    Awww she is a Taylor swift fan

  • @dylpicklethebugslayer
    @dylpicklethebugslayer 3 ปีที่แล้ว +1

    What a beautiful soul indeed.

  • @davids8048
    @davids8048 3 ปีที่แล้ว

    What a sweet little girl. It’s always the worst when young kids have serious medical issues. She is indeed awesome. God bless her and her family.

  • @bradi9326
    @bradi9326 6 ปีที่แล้ว +5

    Stay strong Ellie. She's a positve thinker. Such an inspiration ❤

  • @jenniferlewis4961
    @jenniferlewis4961 4 ปีที่แล้ว +19

    I can see her as an actress. She has the personality.

  • @Red-km5zu
    @Red-km5zu 7 ปีที่แล้ว +69

    The 35 people that have disliked this are heartless.

    • @princessk.8887
      @princessk.8887 6 ปีที่แล้ว +1

      Blueberry Muffin how?

    • @franco1996
      @franco1996 5 ปีที่แล้ว +1

      They can't breathe because they're heartless Ha-ha-ha...

    • @franco1996
      @franco1996 5 ปีที่แล้ว

      i hate myself

  • @akiraillustrates9853
    @akiraillustrates9853 6 ปีที่แล้ว

    She is the most beautiful child i have seen. Fricc child. She is so grateful and looks so happy. Awww it melts my friccen heart to bits and pieces.

  • @jennifersackley5480
    @jennifersackley5480 2 ปีที่แล้ว +1

    Awe she is so precious. God bless her and her family. Sending prayers

  • @sophiedetorie2384
    @sophiedetorie2384 3 ปีที่แล้ว +70

    i’m sorry but the doctor looks like he should be in cake boss

  • @juldionson2777
    @juldionson2777 3 ปีที่แล้ว +6

    When I was here age, I can't even read, yet this girl is starting a campaign. Neat, some people are really born to move mountains, and us to follow

  • @lil9576
    @lil9576 5 ปีที่แล้ว +17

    She is truly Awesome! What an inspiration to everyone.

  • @aaronwilliams6989
    @aaronwilliams6989 3 ปีที่แล้ว +1

    Poor kid. We need to count our blessings.

  • @Alexandra-dy2ns
    @Alexandra-dy2ns 2 ปีที่แล้ว +1

    This amazing little girl is wise beyond her age. Unbelievable!

  • @pavnith8039
    @pavnith8039 3 ปีที่แล้ว +29

    She’s wearing a Taylor tee 💗💗💗💗 the most cheerful child ever

    • @apurbadebadhikary
      @apurbadebadhikary 3 ปีที่แล้ว +1

      I wanted to like this comment but it had 13 likes I left it.

    • @gs-pu7vh
      @gs-pu7vh 3 ปีที่แล้ว +1

      Was looking for this comment

    • @noriii6786
      @noriii6786 3 ปีที่แล้ว

      time stamp?

  • @user-ut7wi1if9q
    @user-ut7wi1if9q 7 ปีที่แล้ว +5

    She's an angel

  • @bigchungus3149
    @bigchungus3149 7 ปีที่แล้ว +55

    0:27 I thought her buddy pulled too hard and made her fall over,lol.

  • @cami0742
    @cami0742 5 ปีที่แล้ว +2

    She’s so strong.

  • @chemicalbenzeneccl4
    @chemicalbenzeneccl4 ปีที่แล้ว +2

    What a brilliant little sweetheart.

  • @chairunissasyafwinia2049
    @chairunissasyafwinia2049 4 ปีที่แล้ว +4

    the 1989 shirt that she wear at 1:00🥺🥺🥺 so cute really hope taylor could see this

  • @therachellllcat4444
    @therachellllcat4444 4 ปีที่แล้ว +11

    She was already amazing! So cute and well spoken. She's super considerate of others and very deserving of the award! BUT SHE ALSO WAS WEARING A 1989 SHIRT 💕 I'm so sad I saw this a few years later, but I hope she's still being awesome.

  • @elessasarafidi4863
    @elessasarafidi4863 3 ปีที่แล้ว +3

    She’s really inspiring and beautiful.

  • @cats8621
    @cats8621 8 หลายเดือนก่อน +2

    She is an angel

  • @ivancritter
    @ivancritter 4 ปีที่แล้ว +1

    she is the sweetest little girl ever 🥺

  • @michalkatec.6841
    @michalkatec.6841 7 ปีที่แล้ว +563

    GIRL I SEE THE TAYLOR SWIFT SHIRT

    • @xJacquelineBx
      @xJacquelineBx 7 ปีที่แล้ว +7

      MK C i noticed that immediately, too!! so cool :)

    • @amymchasi
      @amymchasi 7 ปีที่แล้ว +3

      MK C Lol... First thought too

    • @Emily-fz6rq
      @Emily-fz6rq 7 ปีที่แล้ว +9

      I noticed it right away too!!! Yes she is an awesome little girl with awesome music taste!

    • @tiffcart9339
      @tiffcart9339 7 ปีที่แล้ว

      MK C GURLLLLLL

    • @notyourlocalkid4074
      @notyourlocalkid4074 7 ปีที่แล้ว +1

      Hello fellow hogwarts student