It is so important to speak about CIDP! Thanks for that! ❤ I also got that diagnose and it is life changing and much too unknown. Really hope the research will improve diagnose ways and treatments. Wish us all CIDP-warriors and Michael all the best.
I was diagnosed with CIDP back in 2007. Ive learned a lot since then and am living an almost normal life again. A few tips to help anyone dealing with this disease: A keto style diet works best for me. Lots of organic healthy meats, veggies and fruits. I tried a vegan diet but it made it worse. A diet of good fatty meats, eggs and avocados is good because it helps to regrow the myelin sheets that was stripped off the nerve endings by the immune system. Cut out all processed food especially sweet foods. Sugar is your number one enemy. It’s best to avoid all forms of sugar even stevia etc. you may can get away with a “little” manuka honey. Avoid smoking and drinking any alcohol, including wine. Exercise as much as possible and lift heavy weights (at least what is heavy to you). This will keep you stronger than the disease itself. Workout your entire body especially legs and arms. This is how I regained my balance. Get plenty of rest. When showering. Switch from hot to cold to stimulate your nerves, ending your shower with cold. Get a vibrating foot massager to stimulate your nerve endings in your feet. By doing all of these things I am 90% back to normal without taking any steroids or ivig, haven’t been back to my neurologist in ten years after he told me I will be wheelchair bound if I stopped the treatment. I’m not advising you stop treatment I’m just saying that’s what I did. I didn’t abruptly stop, I slowly reduced the amount of steroids I was taking and weaned myself off of them as I was doing everything I wrote in the comment. The stronger I got the more I weaned myself off. Hope this helps someone
Thank you for bringing awareness! I hope you are getting better. It has been 2 years since I was diagnosed. With the help of IVIG for about 10 months, physical therapy to this day, alpha lopic acid, and B-12, my legs and ankles are getting stronger and I don't use the cain that much. I had drop foot also and it was embarrassing. There were times I would fall and needed help to get up. I've never heard of this autoimmune disease, and it was overwhelming to learn about it. Thank you for your story. I understood everything you said.
That sounds extremely tough. And a shame that’s been a top peak athlete :(. Sharing awareness around these things are important. We are all vulnerable and knowing how to take care and be kind to each other is key
It is so important to speak about CIDP! Thanks for that! ❤ I also got that diagnose and it is life changing and much too unknown. Really hope the research will improve diagnose ways and treatments.
Wish us all CIDP-warriors and Michael all the best.
I was diagnosed with CIDP back in 2007. Ive learned a lot since then and am living an almost normal life again. A few tips to help anyone dealing with this disease:
A keto style diet works best for me. Lots of organic healthy meats, veggies and fruits. I tried a vegan diet but it made it worse. A diet of good fatty meats, eggs and avocados is good because it helps to regrow the myelin sheets that was stripped off the nerve endings by the immune system. Cut out all processed food especially sweet foods. Sugar is your number one enemy. It’s best to avoid all forms of sugar even stevia etc. you may can get away with a “little” manuka honey. Avoid smoking and drinking any alcohol, including wine. Exercise as much as possible and lift heavy weights (at least what is heavy to you). This will keep you stronger than the disease itself. Workout your entire body especially legs and arms. This is how I regained my balance. Get plenty of rest. When showering. Switch from hot to cold to stimulate your nerves, ending your shower with cold. Get a vibrating foot massager to stimulate your nerve endings in your feet. By doing all of these things I am 90% back to normal without taking any steroids or ivig, haven’t been back to my neurologist in ten years after he told me I will be wheelchair bound if I stopped the treatment. I’m not advising you stop treatment I’m just saying that’s what I did. I didn’t abruptly stop, I slowly reduced the amount of steroids I was taking and weaned myself off of them as I was doing everything I wrote in the comment. The stronger I got the more I weaned myself off. Hope this helps someone
Thank you for bringing awareness! I hope you are getting better. It has been 2 years since I was diagnosed. With the help of IVIG for about 10 months, physical therapy to this day, alpha lopic acid, and B-12, my legs and ankles are getting stronger and I don't use the cain that much. I had drop foot also and it was embarrassing. There were times I would fall and needed help to get up. I've never heard of this autoimmune disease, and it was overwhelming to learn about it. Thank you for your story. I understood everything you said.
I prayer for you! You have always been my sons hero, good chose!♥️🙏🎈
wish him all the best
Oh, what terrible news, I hope Michael get through this, and hope they can find out the better treatment.
That sounds extremely tough. And a shame that’s been a top peak athlete :(. Sharing awareness around these things are important. We are all vulnerable and knowing how to take care and be kind to each other is key