I was one of the first to get COVID in 2020, battling LongCovid ever since. Taking low-dose naltrexone for 7 months now and I have noticed some improvements. I have less bed bound days. Still have crushing fatigue and other typical fairly debilitating LongCovid symptoms but LDN does seem to help. In the Netherlands it is hard to come by and I paid about $ 40,- each month as it is not covered by any healthcare insurance. I had a pharmacy who was very understanding about my condition and financial situations (small business owner with an expensive disability insurance wasn’t willing to pay out for several years) and was willing to make it for me at low cost. But now that an international company has the rights they are not allowed to make it anymore. Ordering it through them now cost me $ 150,- for a 100ml bottle that has a 4 week expiration date also. A lot of LongCovid patients are starting to make it themselves what is your take on this? Could this possible affect the efficacy of LDN?
Thank you for sharing your story! It’s difficult to comment as there are a few differences here. In the US LDN is relatively affordable (also cash and not covered by insurance), but we typically compound capsules (not suspensions). I’m sure there are differences in the “use by” dates as well. But in general in the US for a compound like LDN there are a lot of special safety requirements, medication ingredient authenticity checks, protective equipment, tools, and formulations that go into each compound, not to mention batch testing we do to ensure potency and safety. The formulations are all reviewed by trained pharmacists. For all of those reasons we strongly advise patients NOT attempt to compound anything themselves at home.
Today, I took my first 1.5 mg of LDN in hopes of preventing Migraine. I do believe that there is a movement with migraine research physicians to see that for some patients, bringing down inflammation helps. I’m hopeful. Glad I listened as I now know to be patient about how much time it takes. Thank you for posting this.
May God bless you & your love ones. I have a very rare autoimmune disease and 2 days ago my neurologist suggested I try LDN. I live in a small town in Colorado so I will probably have to drive about an hour to a compound pharmacy. All the information you provided, and how you readily made yourself available to help anyone was a breath of fresh air. Thank you for putting my mind at ease and for your generous caring heart. 🙏
@@barbaras.5545 not familiar with them, but thank you for sharing! we work with patients around the country but do primarily help patients in NJ. Turn around times and level of service tend to be best when you’re local, so it’s always good to learn about other good pharmacies!
I have had Myalgic Encephalomyolitis Chronic Fatigue Syndrome MECFS for 7 years now. Recently diagnosed with Sjogrens disease. On a few if the TH-cam channel it has been shared that LDN can help with decreasing the inflammation and helping me with energy. From what I see LDN is available in three forms: pill, powder, and liquid. Since I have a hard time swallowing, I thought that perhaps the liquid form would be good for me. May I have your opinion. Thanks for your help. Blessings to you and your families!! Miss Monique 🙂🙏🌷💗
That you for commenting! The short answer is yes. We (or any licensed compounding pharmacy) can compound LDN as a liquid and even flavor it. The challenge with the liquid is the use by dates (by law) on liquids are 30 days. Meaning you can only receive about a 1 month supply each fill. But it’s definitely doable! Feel free to email us if you have additional questions!
I started on 0.5 and the side effects were not unbearable, but unconfirtable. It took me more than one month to bump it up, because of thise side effects. I am still on 2 mg and I think this could be my sweet dose.
Thank you! LDN is a compounded medication and only available from a compounding pharmacy with a valid prescription from a doctor in the US. If not in the US, please check with doctors/pharmacies in your local area.
My naturopathic doctor prescribed it to me. I wish my insurance covered the cost. It’s not as expensive as other things but my budget is stretched too thin. I just started titration a couple days ago. It might be doing something🤷♀️it could be placebo or other things but I feel lighter in a way, more energy, less sluggish. I’m interested to see how it goes when I get up to a higher dose.
Thank you for sharing! Yes unfortunately many compounded meds like this one aren’t covered. Not sure where you’re located, but feel free to look us up and give us a call if you’d like to keep us posted on how you’re doing! We typically dispense a “starter kit” and separate continuing dose which sounds similar to your prescribed protocol.
This is such great info and working with a doctor here in Chicago, but would like to give you call on perhaps another dr as one specialist that I saw was really discouraging me from taking this. I'm on 4.5
I have had good results with LDN using 50mg tablets dissolved. I find it hard to stick to though because it interferes with my sleep. most doctors have no idea about LDN.
While we can’t answer medical questions via comments, if interested please visit hbpharmacy.com and set up a free compound consultation. A pharmacist would be happy to speak with you.
I'm getting ready to start Naltrexone.I hv gene tests for pharma. Slowed metab by 70% for M&N drugs. Hist of Serotonin syn. Fibro 34 yrs. What do most sens ppl start with?
Thanks for commenting! These sorts of questions we unfortunately can’t answer via comments as they’re more geared for a prescriber / pharmacist working together. Feel free to reach out to us directly if interested in discussing further!
Can you discuss how this could be effective with T1 Diabetes.? With type 1, we've been taught that our immune system had a problem "at one time" where it did some bad business in the pancreas, but then its done and over....so, its not like our bodies are "chronically" fighting the problem... would LDN have any effect on the underlying issue.? Help me understand please...😁
This is an excellent and insightful question! Naturally, like we mentioned, this information is all based on newer studies that is constantly evolving. On a case by case basis, individuals may respond differently. Please keep in mind this is NOT medical guidance and specifics should be discussed with your providers who know your personal history. That said, in general, LDN is being studied carefully in type 1 diabetic patients. Though it isn’t likely that it can reverse the condition, the research seems to indicate LDN MAY help increase insulin sensitivity and MAY help improve A1C levels. Please email us if you’d like more info as again we strongly suggest you have a discussion with your provider to see if this would be useful for you specifically as this is based on preliminary research and is not intended to be formal guidance or a recommendation.
Thank you for the video--I am researching this for my condition of psoriatic arthritis. I am currently on Humira and can't find any interaction info between LDN and Humira. Do you have any info or insight on this?
Thanks for commenting! Unfortunately we can’t provide advice like this via comments on social media without understanding the full context. Please give us a call at 201-997-2010 to discuss with a pharmacist. Thank you!
This is a compounded medication, meaning made from scratch in a compound pharmacy with a valid prescription. It entirely depends on the quality of the ingredients used in each formulation, so there can be some variability. Some patients, for example, may be allergic to certain types of capsules used.
@@HBPharmacyUSAA bit of a disingenuous response. You're not synthesising the Naltrexone HCL, but sourcing it from somewhere. Most likely dissolving and filtering 50mg tabs, dosing the solvent onto your own filler substrate, drying and putting in capsules.
Actually we’re not dissolving commercial tablets! As a compounding pharmacy we buy our pure active ingredients, fillers, etc from PCCA and other accredited distributors for compounding pharmacies. Like we mentioned in the video, it’s important to use companies like PCCA as some pharmacies do crush commercial tablets or use less reputable sources, which can impact patient outcomes. You can learn more about PCCA here: www.pccarx.com/AboutUs/WhoisPCCA
There are some ongoing studies related to LDN and weight loss. Of course further research is still needed to better understand it so it’s certainly nothing that’s been confirmed or fully understood at this time. But researchers are learning more and more about its potential every day!
I have been on 4.5mg since July last year, and I must say, I CANNOT take this medicine at night. If I take it at 10pm, I don't fall asleep until 3am. So I take it at 4pm now adays. The 6 hour half-life wears off and I can be asleep by 10pm...
While we can’t answer medical questions via comments, if interested please visit hbpharmacy.com and set up a free compound consultation. A pharmacist would be happy to speak with you.
We adjust formulations for patients with allergies in a way that’s compliant and still efficacious all the time! Obviously we’d need a doctor’s note, but please give us a call to discuss further: 201-997-2010 and ask for John!
I have a questions I get a shot in my hip last about 3 months for rheumatoid arthritis. Will LDN interfere with the effectiveness of the shot? Also is this a long term drug, I have a small granuloma annulare on the palm of my hands , this problem stems from having Covid 3 times
Thanks for the comment! Unfortunately we can't answer specific questions like these in comments on videos. If you'd like specific counseling on this topic, please reach out to the pharmacy directly via any of the methods listed here: hbpharmacy.com/contact-us/
I need a provider in West Tennessee it's like 10 years ago. Before I die. Mast cell activation caused by diazepam. 12 years intractable pain to fail back surgeries. Now I have Lyme disease, Epstein-Barr, RA, I'm in so much pain. Now allergic to food. Starvation. Malnutrition. Osteoarthritis. Now I have vascular issues is that I did not have before. My hair is falling out. I'm going to lose my teeth in my eyesight. Ask my PM doctor for this a year ago. He says it doesn't work. 😭🤬
Hi Julie…very sorry to hear about your challenges. If you’d like, shoot us an email at pharmacist at hbpharmacy.com. We can share some compounding pharmacies in your area. Perhaps one of those pharmacies can share a physician they work with in your area who may be able to help you.
@@HBPharmacyUSA Have you heard anybody say that they have mast cell activation from diazepam withdrawal/ poison? There are many members of the beating benzos group that agree with me on the mast cell. They didn't have any health issues before.. I had a multitude of underlying health issues I was unaware of. And maybe they are too.. in the process of trying to find proof of this.. I know diazepam is listed as a mast cell stabilizer but everything affects me exactly opposite of way it's supposed to.
The LDN Research Trust has a wealth of information , Linda Elsagood started it , she has MS
Love all the information on LDN. I’m taking 4.5mg for Hashimoto thyroiditis and it is helping my TPO levels to go down. Thanks again
You’re welcome! Glad to hear it!
Will it working...plz guide mi..I am from India...
I was one of the first to get COVID in 2020, battling LongCovid ever since. Taking low-dose naltrexone for 7 months now and I have noticed some improvements. I have less bed bound days. Still have crushing fatigue and other typical fairly debilitating LongCovid symptoms but LDN does seem to help. In the Netherlands it is hard to come by and I paid about $ 40,- each month as it is not covered by any healthcare insurance. I had a pharmacy who was very understanding about my condition and financial situations (small business owner with an expensive disability insurance wasn’t willing to pay out for several years) and was willing to make it for me at low cost. But now that an international company has the rights they are not allowed to make it anymore. Ordering it through them now cost me $ 150,- for a 100ml bottle that has a 4 week expiration date also. A lot of LongCovid patients are starting to make it themselves what is your take on this? Could this possible affect the efficacy of LDN?
Thank you for sharing your story! It’s difficult to comment as there are a few differences here. In the US LDN is relatively affordable (also cash and not covered by insurance), but we typically compound capsules (not suspensions). I’m sure there are differences in the “use by” dates as well. But in general in the US for a compound like LDN there are a lot of special safety requirements, medication ingredient authenticity checks, protective equipment, tools, and formulations that go into each compound, not to mention batch testing we do to ensure potency and safety. The formulations are all reviewed by trained pharmacists. For all of those reasons we strongly advise patients NOT attempt to compound anything themselves at home.
Same march 2020 lher
Heb je het gekregen via voorschrift? Was jouw dokter er makkelijk over of moest je veel moeite doen?
Today, I took my first 1.5 mg of LDN in hopes of preventing Migraine. I do believe that there is a movement with migraine research physicians to see that for some patients, bringing down inflammation helps. I’m hopeful. Glad I listened as I now know to be patient about how much time it takes. Thank you for posting this.
You’re welcome! Glad you found it helpful. Please feel free to keep us posted on your treatment!
May God bless you & your love ones. I have a very rare autoimmune disease and 2 days ago my neurologist suggested I try LDN. I live in a small town in Colorado so I will probably have to drive about an hour to a compound pharmacy.
All the information you provided, and how you readily made yourself available to help anyone was a breath of fresh air.
Thank you for putting my mind at ease and for your generous caring heart. 🙏
You’re welcome! Thank you very much for the kind words. Happy to answer any future questions you may have if they come up!
Good Day Compounding Pharmacy in Ft. Collins delivers throughout Colorado. Maybe others do too.
@@barbaras.5545 not familiar with them, but thank you for sharing! we work with patients around the country but do primarily help patients in NJ. Turn around times and level of service tend to be best when you’re local, so it’s always good to learn about other good pharmacies!
mine came by mail from metro area
My Doc has it sent to me from a compounding pharmacy near her. Se's in the next state over from me.
Thank you for this honest conversation about LDN
Thank you for watching!
I have had Myalgic Encephalomyolitis Chronic Fatigue Syndrome MECFS for 7 years now. Recently diagnosed with Sjogrens disease.
On a few if the TH-cam channel it has been shared that LDN can help with decreasing the inflammation and helping me with energy.
From what I see LDN is available in three forms: pill, powder, and liquid.
Since I have a hard time swallowing, I thought that perhaps the liquid form would be good for me.
May I have your opinion.
Thanks for your help.
Blessings to you and your families!!
Miss Monique 🙂🙏🌷💗
That you for commenting! The short answer is yes. We (or any licensed compounding pharmacy) can compound LDN as a liquid and even flavor it. The challenge with the liquid is the use by dates (by law) on liquids are 30 days. Meaning you can only receive about a 1 month supply each fill. But it’s definitely doable! Feel free to email us if you have additional questions!
I have a hard time swallowing things too. The capsules are tiny and I have no problem with them. I frequently get food stuck in my throat.
I started on 0.5 and the side effects were not unbearable, but unconfirtable. It took me more than one month to bump it up, because of thise side effects. I am still on 2 mg and I think this could be my sweet dose.
Thanks for sharing! We did post some other videos about LDN dosing protocols and potential side effects if you’re interested in checking them out!
Many thanks for the valuable informations. How can we get it ? Do u ship wordwide?
Thank you! LDN is a compounded medication and only available from a compounding pharmacy with a valid prescription from a doctor in the US. If not in the US, please check with doctors/pharmacies in your local area.
My naturopathic doctor prescribed it to me. I wish my insurance covered the cost. It’s not as expensive as other things but my budget is stretched too thin.
I just started titration a couple days ago. It might be doing something🤷♀️it could be placebo or other things but I feel lighter in a way, more energy, less sluggish. I’m interested to see how it goes when I get up to a higher dose.
Thank you for sharing! Yes unfortunately many compounded meds like this one aren’t covered. Not sure where you’re located, but feel free to look us up and give us a call if you’d like to keep us posted on how you’re doing! We typically dispense a “starter kit” and separate continuing dose which sounds similar to your prescribed protocol.
You can compound it yourself. Much cheaper
@@MsAEJ How?
Mine was 90$ and it’s not covered. My GP and ND both recc/prescribe it. I’m starting it again after stopping.
This is such great info and working with a doctor here in Chicago, but would like to give you call on perhaps another dr as one specialist that I saw was really discouraging me from taking this. I'm on 4.5
Happy to chat! You can visit hbpharmacy.com to set up a consultation with a compounding pharmacist or call us at 201-997-2010
@@HBPharmacyUSA great I'll call today.
I have had good results with LDN using 50mg tablets dissolved. I find it hard to stick to though because it interferes with my sleep. most doctors have no idea about LDN.
While we can’t answer medical questions via comments, if interested please visit hbpharmacy.com and set up a free compound consultation. A pharmacist would be happy to speak with you.
that's not low dose
I'm getting ready to start Naltrexone.I hv gene tests for pharma. Slowed metab by 70% for M&N drugs. Hist of Serotonin syn. Fibro 34 yrs. What do most sens ppl start with?
Thanks for commenting! These sorts of questions we unfortunately can’t answer via comments as they’re more geared for a prescriber / pharmacist working together. Feel free to reach out to us directly if interested in discussing further!
Can you discuss how this could be effective with T1 Diabetes.? With type 1, we've been taught that our immune system had a problem "at one time" where it did some bad business in the pancreas, but then its done and over....so, its not like our bodies are "chronically" fighting the problem... would LDN have any effect on the underlying issue.? Help me understand please...😁
This is an excellent and insightful question! Naturally, like we mentioned, this information is all based on newer studies that is constantly evolving. On a case by case basis, individuals may respond differently. Please
keep in mind this is NOT medical guidance and specifics should be discussed with your providers who know your personal history.
That said, in general, LDN is being studied carefully in type 1 diabetic patients. Though it isn’t likely that it can reverse the condition, the research seems to indicate LDN MAY help increase insulin sensitivity and MAY help improve A1C levels. Please email us if you’d like more info as again we strongly suggest you have a discussion with your provider to see if this would be useful for you specifically as this is based on preliminary research and is not intended to be formal guidance or a recommendation.
Can it help with lichen sclerosis?
We have heard about some potential use cases here! Please feel free to reach out to us directly to discuss further.
Thank you for the video--I am researching this for my condition of psoriatic arthritis. I am currently on Humira and can't find any interaction info between LDN and Humira. Do you have any info or insight on this?
Thank you for the comment! I see you also sent us an email. I’ll be sure one of our compounding pharmacists replies to you via email. Thank you!
If LDN is giving you headaches is it ok to take paracetamol to manage it?
Thanks for commenting! Unfortunately we can’t provide advice like this via comments on social media without understanding the full context. Please give us a call at 201-997-2010 to discuss with a pharmacist. Thank you!
Naltexone is much more expensive in Australia compared to the price u said it is in America. A 3 month supply is $225.00
Interesting!
India mart website sells 100 for 30 bucks
What about manufacturers? Are they all the same quality I mean for pills 50 mg
This is a compounded medication, meaning made from scratch in a compound pharmacy with a valid prescription. It entirely depends on the quality of the ingredients used in each formulation, so there can be some variability. Some patients, for example, may be allergic to certain types of capsules used.
@@HBPharmacyUSAA bit of a disingenuous response.
You're not synthesising the Naltrexone HCL, but sourcing it from somewhere.
Most likely dissolving and filtering 50mg tabs, dosing the solvent onto your own filler substrate, drying and putting in capsules.
Actually we’re not dissolving commercial tablets! As a compounding pharmacy we buy our pure active ingredients, fillers, etc from PCCA and other accredited distributors for compounding pharmacies. Like we mentioned in the video, it’s important to use companies like PCCA as some pharmacies do crush commercial tablets or use less reputable sources, which can impact patient outcomes. You can learn more about PCCA here: www.pccarx.com/AboutUs/WhoisPCCA
Wonder if this could help ,strong sugar& carbs cravings in the evening. Candida Abilicans I have bad.
There are some ongoing studies related to LDN and weight loss. Of course further research is still needed to better understand it so it’s certainly nothing that’s been confirmed or fully understood at this time. But researchers are learning more and more about its potential every day!
I have been on 4.5mg since July last year, and I must say, I CANNOT take this medicine at night. If I take it at 10pm, I don't fall asleep until 3am. So I take it at 4pm now adays. The 6 hour half-life wears off and I can be asleep by 10pm...
While we can’t answer medical questions via comments, if interested please visit hbpharmacy.com and set up a free compound consultation. A pharmacist would be happy to speak with you.
Does your pharmacy have different fillers. My pharmacy only uses avicel which make me ill. At least I think.
We adjust formulations for patients with allergies in a way that’s compliant and still efficacious all the time! Obviously we’d need a doctor’s note, but please give us a call to discuss further: 201-997-2010 and ask for John!
I have a questions I get a shot in my hip last about 3 months for rheumatoid arthritis. Will LDN interfere with the effectiveness of the shot? Also is this a long term drug, I have a small granuloma annulare on the palm of my hands , this problem stems from having Covid 3 times
Thanks for the comment! Unfortunately we can't answer specific questions like these in comments on videos. If you'd like specific counseling on this topic, please reach out to the pharmacy directly via any of the methods listed here: hbpharmacy.com/contact-us/
Do you think this can help my friend who has primary progressive MS and can’t walk right now?
Thanks for the comment! Please feel free to reach out to us via the contact us page on our website: hbpharmacy.com
Works for some the only thing it did to me was give me head explosions
Thanks for sharing! It certainly isn’t for everyone and is something you need to discuss with your physician.
@@HBPharmacyUSA he has never heard of head explosions, aka auditory hallucinations.
Geese Doc, Google it, lol.
I need a provider in West Tennessee it's like 10 years ago. Before I die. Mast cell activation caused by diazepam. 12 years intractable pain to fail back surgeries. Now I have Lyme disease, Epstein-Barr, RA, I'm in so much pain. Now allergic to food. Starvation. Malnutrition. Osteoarthritis. Now I have vascular issues is that I did not have before. My hair is falling out. I'm going to lose my teeth in my eyesight. Ask my PM doctor for this a year ago. He says it doesn't work. 😭🤬
Hi Julie…very sorry to hear about your challenges. If you’d like, shoot us an email at pharmacist at hbpharmacy.com.
We can share some compounding pharmacies in your area. Perhaps one of those pharmacies can share a physician they work with in your area who may be able to help you.
@@HBPharmacyUSA
Have you heard anybody say that they have mast cell activation from diazepam withdrawal/ poison? There are many members of the beating benzos group that agree with me on the mast cell. They didn't have any health issues before.. I had a multitude of underlying health issues I was unaware of. And maybe they are too.. in the process of trying to find proof of this.. I know diazepam is listed as a mast cell stabilizer but everything affects me exactly opposite of way it's supposed to.