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EXCLUSIVE: Australian Swimming Hero Michael Klim Reveals Major Health Battle With CIDP
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- เผยแพร่เมื่อ 9 ก.ค. 2022
- Michael Klim is one of Australia's greatest swimming heroes, and in a Sunday Project Exclusive, for the first time, he opens up about the health battle he's kept a secret for years in the hope it can raise awareness for others.
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I was diagnosed in 2020 - thanks for sharing. We need to get the word out about this debilitating disease - most people, including doctors, have never heard of it. Good luck, Michael!!
True that. My gp has practiced for over 30 years & I am his first patient with CIDP. Fortunately I have a fantastic Neurologist whos walking me through it.
@@Le_coq_sportiff I hope they figure out the exact diagnosis so you can start getting the treatment you need
@@jacksalami9945does a rheumatologist help?
Michael ! You are still one of our all time great swimmers . I know this has hit you like a ton of bricks but your inner strength and determination with the help of your caring partner will get you through this! Chin up mate !
Michael, you are a role model. I have another autoimmune disease that is nothing nearly as bad as yours, and sometimes I just don't get out of bed. Seeing you makes me even more keen to keep pushing on and exercise as much as I possibly can.
Push on brother aus is here for ya mate
So sorry to hear but in support I suffer similar illness after years of a full , athletic life , my condolences but also I hope for you more strength and improvement . So glad to see you still have your family and loved ones around . ❤
I had gullian barre syndrome 17 years ago , brutal illness, still can’t move my ankles and feet , cidp is same condition except with gbs you don’t need the Iv treatment every couple of months . I wish the numb feet would go away but unlikely, Michael is right about the water , it’s great when your not on your feet . Best of luck with your Michael
Recovery
I've had this terrible disease for 28 years. It's hard to watch Michael's story. I hope with his IVIg treatment he continues to improve.
I first had symptoms of CIDP in 2004, but took until 2018 and a trip to Mayo to get an accurate diagnosis. Unfortunately no treatment we have tried has helped me, but glad to hear that you are seeing some improvement!
Hi Shari, im taking youve tried IVIG with no luck? hows your pain holding up? xoxo
@@jacksalami9945 We tried steroids, cellcept, rituxan, and IVIG. Nothing has helped. Docs call me "treatment resistant" at this point. Daily, near constant pain unfortunately.
@@ShariCzerwinski really sorry to hear that. I too have CIDP, I have lost all feeling in my legs (between the knees & ankles) yet I have consistent sharp stabbing pain across my shins. It's extremely painful. I have had multiple IVIG infusions yet didnt see a reduction in pain. Aldo had steroid injections but they too didnt assist. I am really struggling to deal with this. Are you able to manage your pain? I am so sorry to hear about your situation :(
@@ShariCzerwinski I really dont want to be on pain killers for the rest of my life. CIDP is extremely draining & a terrible terrible disease
@@jacksalami9945 it sure is! Hang in there. 🤗
Trzymaj się Panie Michale! Pozdrowienia dla całej rodziny. Mam nadzieję, że wszystko się ułoży. Walcz!
Yes !! ..great moment ...unconditional love ..
Diagnosed with this crappy thing in Feb 2013 - it sucks. I'm still affected by it :(
2.5 months after getting the tingling, I went to the SAN (here in Sydney) - 36hrs after arriving my brother in Melbourne suggested CIDP and went for a lumbar puncture test - yep
Thanks for sharing your story Michael
Any luck with IVIG Andrew?
@@jacksalami9945 hi, I had 30 bags of it (5 bags each night for 6 nights) back when finally diagnosed in 2013. Fortunately havent need anymore over the years - a few days ago on a friends fb post, came across someone who travels from rural qld to Brisbane every 3 weeks for 2 nights for more. Various long term side effects have meant I can’t officially work anymore - fortunately we have our own business where I do the web/computer side of things which usually means 20 mins here, 45 mins there, 30 mins here, 2 hrs there, as needed. Which I can cope with. I also struggle travelling anywhere even in the car. 30 mins and I need to get out and take a few steps and relax and loosen up
Basically no more travelling back to Melbourne where my family are, or even visiting friends here in Sydney. They have to come here :(
I can’t believe this! I saw him crossing the road about 7 years ago, he was like a great big hulking man, a physical pillar of strength, built like a tree trunk, to see him like this with twigs for legs, Mother Nature is no friend. l can’t believe l am saying this but I hope he can get back into the water competitively in the Paralympics.
Thanks for sharing your story, I'm going through the same, we probably crossed paths at the RPA, I truly hope you're making a recovery and yes a big thanks to all the plasma donors!
All the best ...mate , life as we all say ..haiz..
always in awe with michael.. together with popov ..
Wow... I have never heard of this type of autoimmune disease. I have an autoimmune disease but mine is nothing compared to what this young has. Wishing him all the best and will follow his story.
Love and respect
'The Project' Should do a story about Australia's back-to-back E-Sport's champions (DarkZero) Their existence is a bit inconvenient to the organisers so their victories have not been well publicised and it's a great story of how they have beaten a lot of set-backs etc and won quiet achiever style. Best of Luck to Michael Klim, always been a big fan, get better mate!
Sporting Legend 💖
I have become a Blood doner &plasmer doner to make a difference to people lives
Thank you for donating. You are helping us
Its actually 10,000 doners per bottle
Anyone here with CIDP who are aware of what may have triggered their disease in their specific case (infection, other illness, etc)? I am interested because I am a neuroscientist working with neurological infections/immune responses, and I also myself have an autoimmune disease. I would have got it anyway, but I think a serious viral infection set it off in my case. Mine is not nearly as bad as Michael's. I have ankylosing spondylitis, but there are times I can't get out of bed for a few weeks. I have taken a long leave from work to hopefully get better. In my case, excercise is really helping, but I am lucky that I can exercise. I get really bad in hot humid weather which is ironic as I live in QLD.
To be honest i feel like i have something like this past 5 years ive gone down hill even had 2 spinal surgerys and my legs still and just feel like they are getting weaker its so hard to explain.
Im only 35 was fit healthy built and strong know im a shell off myself. Thedes auto immune diseases ive notice always happen to fit athletes type off people i wonder if theres a link to stimulating the nerves so much due to sports and stuff. Take care
❤
Myelin sheath disorders/damage have been linked to vitamin B12 (cobalamin) deficiencies. Chlorine has also been linked in destroying B12 in the body. It may have been the thousands of hours Michael spent training/competing inside swimming pools over his life that contributed to his current condition. Unfortunately Myelin sheath damage is not reversible.
I have CIDP & my B12 readings have always been good (even prior to diagnosis)
I have cidp and my b12 has always been good.
Perhaps the Peter Garrett of swimming.
Now u know how most kids feel towards sport.
They have no talent or gifts, resulting in a major lack of self-confidence.
You're a blessed individual.
Quit whinging to make money.
I just heard onTv 😢😢
How many jabs
I have had CIDP for over 30 years mine not related to a jab.
But you can get it from a jab.
It is very frightening to know your own body is attacking you.
Lìz
Michael needs to try chlorine dioxide!!
Terrible thing to happen.