Kierra's Life with Nager Syndrome

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  • เผยแพร่เมื่อ 29 ก.ย. 2024
  • Kierra is diagnosed with a rare genetic condition known as Nager syndrome. She hopes that others understand that each person in the world is a human worthy of acceptance.
    Kierra's Socials:
    / kierrap19
    / @kierrap
    SBSK Patreon: / sbsk
    SBSK Socials:
    SBSK's Socials:
    / specialbooksbyspecialkids
    / chrisulmer
    / specialbooksbyspecialkids
    / sbsk

ความคิดเห็น • 149

  • @xanlysphynx8839
    @xanlysphynx8839 3 ปีที่แล้ว +152

    I so appreciated u not editing the time she took it gave me insight as to how she is able to communicate and teaching me to be patient with people who communicate differently

    • @katlov3r536
      @katlov3r536 2 ปีที่แล้ว +4

      Yeah i like that!

  • @paigelauryn4328
    @paigelauryn4328 3 ปีที่แล้ว +2

    really interesting abstract art work, i love it

  • @Chaplin1219
    @Chaplin1219 2 ปีที่แล้ว +1

    She’s beautiful just like her mom 💗. She seems like a fun girl, I’d love to meet her!.

  • @michellemedina9891
    @michellemedina9891 2 ปีที่แล้ว +1

    I love back so much

  • @michelerosequreshey8345
    @michelerosequreshey8345 3 ปีที่แล้ว +1

    💚

  • @nadeen1111
    @nadeen1111 3 ปีที่แล้ว +50

    I really appreciate the clip of her full response time. Gives a good idea of what we can expect when we meet a friend like her in person. All people need patience, both to show and receive. Her art blew me away, truly incredible. Get in an art contest girl!!

    • @kierrap
      @kierrap 3 ปีที่แล้ว +2

      Thank you!

  • @jadeheart5862
    @jadeheart5862 3 ปีที่แล้ว +67

    She’s so lovely❤️ What a sweetheart and intelligent woman.

    • @kierrap
      @kierrap 3 ปีที่แล้ว +11

      Thank you!

    • @show._bug
      @show._bug 3 ปีที่แล้ว +3

      @@kierrap hi kierra!! i loved this video! i hope you’re doing well ❤️

    • @kierrap
      @kierrap 3 ปีที่แล้ว +3

      @@show._bug Hi! Thanks & I’m doing good ❤️

    • @Dragonslayer_21
      @Dragonslayer_21 3 ปีที่แล้ว

      @The Vatican Pope Of Memes go away no one wants your negativity

    • @premiumtrash7120
      @premiumtrash7120 3 ปีที่แล้ว +2

      Kierra I'm sorry u had to see that awful comment I reported it

  • @nic.k_o
    @nic.k_o 3 ปีที่แล้ว +20

    This yellow piece of artwork is stunning.
    I also appreciate that Kierra's mom participated, their relationship reminds me of my mother.

  • @dewvet
    @dewvet 2 ปีที่แล้ว +17

    im really impressed with the artwork omg kierra did so well

  • @ziaratiara4288
    @ziaratiara4288 3 ปีที่แล้ว +30

    That is actually a type of art style I forgot what it is called its called her art is actually really nice

  • @charlesbronson1594
    @charlesbronson1594 3 ปีที่แล้ว +30

    These people are proof of human strength and will. Strength is expressed in those who face the most difficulties, strength is a need, an achievement, not a blessing. Love her artwork, the dog one really impressed me.

  • @xanlysphynx8839
    @xanlysphynx8839 3 ปีที่แล้ว +5

    I will beat anyone who Hurts her. I would love to be her friend such pretty hair.

  • @melody.306
    @melody.306 3 ปีที่แล้ว +94

    shes soooo adorable 🥰

    • @kierrap
      @kierrap 3 ปีที่แล้ว +19

      Thank you❤️

    • @brandonahhh
      @brandonahhh 2 ปีที่แล้ว +2

      Yea she really is ❤️ 🥰

  • @lj2659
    @lj2659 3 ปีที่แล้ว +10

    Duuude that art piece with the yellow background is stunning!! I’d genuinely want that as a print to put in my room! best wishes you two

  • @HeIterSkelter
    @HeIterSkelter 3 ปีที่แล้ว +12

    If you ever need someone to talk to I got you kierra

    • @kierrap
      @kierrap 3 ปีที่แล้ว +6

      ❤️

  • @serenatsukino5252
    @serenatsukino5252 3 ปีที่แล้ว +52

    Kiera is such a fantastic artist! I'm so jealous of her skills!

    • @kierrap
      @kierrap 3 ปีที่แล้ว +5

      Thank you haha

    • @borsuk96
      @borsuk96 2 ปีที่แล้ว

      @@kierrap First two paintings are really good

  • @iangraves7047
    @iangraves7047 3 ปีที่แล้ว +15

    That artwork is tight!

  • @cjeyerly869
    @cjeyerly869 2 ปีที่แล้ว +10

    Her art is amazing! She has a natural talent. I hope she pursues it.

  • @JimKll
    @JimKll 3 ปีที่แล้ว +12

    My jaw dropped when I saw that first painting! 😍

    • @susangraham6801
      @susangraham6801 3 ปีที่แล้ว +2

      Mine too! Absolutely mind-blowing!!

  • @geerreeg3298
    @geerreeg3298 3 ปีที่แล้ว +12

    Comments are backkkkk love this girl

    • @kierrap
      @kierrap 3 ปีที่แล้ว +1

      Thank you & I know right! I’m happy

    • @mztiffanyguilbeau3697
      @mztiffanyguilbeau3697 3 ปีที่แล้ว +1

      @@kierrap how do you draw and paint so darn well? You are smart and talented!! Way to go!!

    • @kierrap
      @kierrap 3 ปีที่แล้ว

      @@mztiffanyguilbeau3697 Thank you!

    • @mztiffanyguilbeau3697
      @mztiffanyguilbeau3697 3 ปีที่แล้ว

      @@kierrap you're welcome, young lady!! I am drawing too.

  • @katlov3r536
    @katlov3r536 2 ปีที่แล้ว +4

    bro imagin being that person that bullies people with dissabilitys because their own life is bad. like how could you bullie her? she is such a sweet and kind girl yet people will bulie her. that makes me sad.

  • @Engwayave
    @Engwayave 3 ปีที่แล้ว +10

    Now that comments are back: Damn, she can draw so good! I wish I could do that :)

  • @khandiieamerson1039
    @khandiieamerson1039 3 ปีที่แล้ว +3

    I understand that she uses an assistive device. But she routinely looks away from the screen while replying. Is there more pieces to the technology or more to her setup??

  • @dog1331
    @dog1331 3 ปีที่แล้ว +5

    Whoever bullies her on social media has no soul. Shes cool.

    • @violet9416
      @violet9416 3 ปีที่แล้ว

      Agree, she's very nice and energetic!!

  • @Jonson1st
    @Jonson1st 3 ปีที่แล้ว +14

    You're sweet just as you say and you have a beautiful character!!! And we love you for it! 💗

    • @kierrap
      @kierrap 3 ปีที่แล้ว +4

      Thank you!!

    • @Jonson1st
      @Jonson1st 3 ปีที่แล้ว +3

      @@kierrap You're welcome! Rock on!!! :)

  • @user-th9zd1le3g
    @user-th9zd1le3g 3 ปีที่แล้ว +9

    Kierra, your art is so amazing!!!

  • @Slawsers
    @Slawsers 3 ปีที่แล้ว +11

    She seems like such a sweet person

    • @kierrap
      @kierrap 3 ปีที่แล้ว +5

      Thank you!

    • @Slawsers
      @Slawsers 3 ปีที่แล้ว +4

      @@kierrap no problem ✌🏻love your art it’s really abstract and psychedelic lol

  • @green4lilies
    @green4lilies 3 ปีที่แล้ว +7

    Love her!!! One of my favorite interviews! Thanks for sharing your story and your voice Kierra :)

  • @MandoMTL
    @MandoMTL 3 ปีที่แล้ว +4

    Kierra and mom, both cuties. Love the art and that Nickelodeon shirt. 😄

  • @audiotextospsiquis
    @audiotextospsiquis 3 ปีที่แล้ว +2

    ojala no existiera el bullyng.

  • @Josephwilliemrice
    @Josephwilliemrice 2 ปีที่แล้ว +4

    that artwork is super expresive and i feel what shes trying to convey through it

  • @maddawg4692
    @maddawg4692 3 ปีที่แล้ว +6

    You are so amazing Kierra! You’re artwork is beautiful and I know you’ll be able to go very far with your skills! 🥰

  • @marcalamara5525
    @marcalamara5525 3 ปีที่แล้ว +7

    Really want to see more artwork you have an amazing talent! :) I love your relationship with your mother you both seem so happy :)

    • @kierrap
      @kierrap 3 ปีที่แล้ว +1

      Thank you!

  • @CandiceAlise
    @CandiceAlise 5 หลายเดือนก่อน +1

    What a beautiful person and thank you for sharing your art. You are an amazing artist! I am an artist as well 💗

  • @Random_person12431
    @Random_person12431 ปีที่แล้ว +1

    I wish people could appreciate everyone and like them jus the way they are❤❤❤

  • @JRH198513
    @JRH198513 3 ปีที่แล้ว +3

    You are beautiful inside and out . All ways remember bully's have issues there are not dealing inside them selves . That's why the do that its sad really . Love the art work its awesome !

  • @KBEAMON08
    @KBEAMON08 3 ปีที่แล้ว +5

    She's so sweet and her artwork is beautiful ❤️

  • @Heavymetal16
    @Heavymetal16 2 ปีที่แล้ว +2

    she drew that?! Holy moly! That first painting was amazing

  • @Angel_Dust_Therapy30
    @Angel_Dust_Therapy30 ปีที่แล้ว +1

    Does anyone know if she sells her art?! I collect pieces and would love to add a new edition to my wall😍

  • @diane9247
    @diane9247 3 ปีที่แล้ว +6

    Hi, Kierra! You're a very creative young lady and I hope you make art all of your life. Sending my greeting and love from Oregon! 💗

    • @kierrap
      @kierrap 3 ปีที่แล้ว +2

      Thank you ❤️

    • @sagittariusa7319
      @sagittariusa7319 2 ปีที่แล้ว +1

      @@kierrap yoo didnt know you had a youtube channel, subbing immediatelly

    • @kierrap
      @kierrap 2 ปีที่แล้ว

      @@sagittariusa7319 Thank you!❤️

  • @junebug71690
    @junebug71690 3 ปีที่แล้ว +4

    I would buy that first painting. She is a great artist

  • @taxicab780
    @taxicab780 3 ปีที่แล้ว +7

    she’s very very talented, and such a sweetheart🥺

    • @kierrap
      @kierrap 3 ปีที่แล้ว +4

      Thank you!

    • @twistedcryptid
      @twistedcryptid ปีที่แล้ว

      @@kierrap you have a friend in me! My name is Samantha, and we can email if you’d like. 😁

  • @TheMrgautason
    @TheMrgautason 3 ปีที่แล้ว +3

    What an amazing artist!.. wish i could draw like that :)

  • @fredericboninpissarro5789
    @fredericboninpissarro5789 ปีที่แล้ว +1

    The work that Chris is doing is amazing, I am always baffled when I hear stories of bullying, how can people be so heartless?

  • @mazzacre8293
    @mazzacre8293 2 ปีที่แล้ว +2

    She seems cool

  • @itsdave3891
    @itsdave3891 2 ปีที่แล้ว +2

    Her art is dope for real

  • @Rightwhereyouleftme_
    @Rightwhereyouleftme_ 3 ปีที่แล้ว +12

    She is so sweet 💕💕What a beautiful and kindest person

    • @kierrap
      @kierrap 3 ปีที่แล้ว +2

      Aw thanks 💛

    • @ada_funni
      @ada_funni 2 ปีที่แล้ว

      true

  • @nataliemamo8709
    @nataliemamo8709 3 ปีที่แล้ว +5

    Shes such a talented artist!!

    • @kierrap
      @kierrap 3 ปีที่แล้ว +1

      Thank you!

    • @sagittariusa7319
      @sagittariusa7319 2 ปีที่แล้ว

      @@kierrap btw dont give an f about people on social media who try to bully you or make you a meme

  • @mr.irrelevant8826
    @mr.irrelevant8826 3 ปีที่แล้ว +3

    Kiera is the greatest of all time

  • @xanlysphynx8839
    @xanlysphynx8839 3 ปีที่แล้ว +4

    She's a great artist

  • @bruh7331
    @bruh7331 2 ปีที่แล้ว +2

    I feel bad she doesn’t deserve to live a hard life I hope she’s ok

  • @SayCheeseSmile19
    @SayCheeseSmile19 3 ปีที่แล้ว +4

    Started sobbing not even a minute into the video. You are so strong Kierra, keep being the beautiful light you truly are! I'm so sorry you've had to endure bullying :/

    • @SayCheeseSmile19
      @SayCheeseSmile19 3 ปีที่แล้ว +3

      @Fred the Fish It's infuriating that people project their insecurities onto others. I just hope she knows that it has nothing to do with her.. words can really hurt

    • @kierrap
      @kierrap 3 ปีที่แล้ว +1

      Thank you ❤️

    • @SayCheeseSmile19
      @SayCheeseSmile19 3 ปีที่แล้ว

      @@kierrap anytime!! ♥️♥️♥️

  • @debscharles4674
    @debscharles4674 2 ปีที่แล้ว +1

    Hey Kierra, your artwork is fantastic. You're a very talented artist 🎨 really enjoyed your interview with Chris, I got to understand you and how your condition effects your day to day life. I just wanted to agree with something you said at the end of your interview, yes we are all the same. We may have different things going on for each of us but ultimately, we are all human beings that have feelings. Just remember, Usually when people bully someone it's a sign that they're relaying their own frustraitions onto you, or sometimes when people get jealous then they pick on the person they feel jealous of, in order to make themselves feel better. Thanks for sharing your precious time with us 🌟 💛

  • @katieboise
    @katieboise 3 ปีที่แล้ว +2

    Wow her artwork is fantastic. What a great young lady

  • @nonsynonymousbeanies3271
    @nonsynonymousbeanies3271 2 ปีที่แล้ว +1

    Her artwork is incredible! I'm so jealous of her skills, she is very talented. ☺️

  • @kimblebreazell556
    @kimblebreazell556 3 ปีที่แล้ว +2

    I think it is absolutely great that you do this young man. Educating people is the key to ignorance
    She is so sweet and love her paintings

  • @merleigh1979
    @merleigh1979 3 ปีที่แล้ว +2

    Aww she’s so adorable and so kind I hope the best for her💕❤️

  • @kristenglenn7026
    @kristenglenn7026 7 หลายเดือนก่อน

    I cannot believe that this day & age people with disabilities are looked down on, made fun of or avoided just because they are different. We are all people with feelings & personalities desires & experiences 💜

  • @sheenagriffith2635
    @sheenagriffith2635 10 หลายเดือนก่อน

    Kiera you seem like such a sweet kind, human being. I liked your interview very much. Your painting are amazing.

  • @angelak6293
    @angelak6293 2 ปีที่แล้ว +2

    She’s so lovely and an amazing artist !

  • @grifyn882
    @grifyn882 3 ปีที่แล้ว +1

    The first one artwork she showed surprised me.
    Not bad;, there is something to dig

  • @emmarose6590
    @emmarose6590 3 ปีที่แล้ว +2

    What a sweetheart 💗

  • @cutefairy25
    @cutefairy25 3 ปีที่แล้ว +2

    Wow she’s an amazing artist!!!

  • @fredichang7725
    @fredichang7725 5 หลายเดือนก่อน

    You are very smart and beautiful and have a lot of Confidence

  • @burly636
    @burly636 5 หลายเดือนก่อน

    In this world of hurry up, do this do that, I could see where she would be frustrated.

  • @battack2551
    @battack2551 2 ปีที่แล้ว +1

    Such amazing artwork!

  • @katlov3r536
    @katlov3r536 2 ปีที่แล้ว +1

    Kirara what a beautiful name!

  • @twistedcryptid
    @twistedcryptid ปีที่แล้ว +1

    Thank you for not doing heavy editing on this video. Is there a way to email her, or hand write a letter to her, so she can have friends everywhere? Kierra’s paintings are awesome!

  • @asa1973100
    @asa1973100 3 ปีที่แล้ว +1

    She is beautiful and so well spoken, with incredible insight

  • @lovebird28jayparkwifey81
    @lovebird28jayparkwifey81 3 ปีที่แล้ว +3

    I love this video

    • @kierrap
      @kierrap 3 ปีที่แล้ว

      ❤️❤️

  • @jamessmith-eb8bm
    @jamessmith-eb8bm 2 ปีที่แล้ว +1

    Thank you for being a wonderful teacher Kiarra.

  • @anhelikacovington661
    @anhelikacovington661 2 ปีที่แล้ว +1

    If able, I would like to purchase some art from you. !!!

  • @Harry78996
    @Harry78996 3 ปีที่แล้ว +2

    Wow she is soo talented

  • @miamaserati1597
    @miamaserati1597 3 ปีที่แล้ว +1

    i just wanna give her a hug

  • @ItsHayley9
    @ItsHayley9 2 หลายเดือนก่อน

    I like drawing just like she does

  • @gabrielabraham238
    @gabrielabraham238 2 ปีที่แล้ว +1

    she's really talented

  • @marleenninaka1303
    @marleenninaka1303 3 ปีที่แล้ว +1

    Hi everyone: It's so nice to see you all again on TH-cam. I want to meet you all one day. Take care and stay safe.

  • @MsAmaznstar
    @MsAmaznstar 3 ปีที่แล้ว +1

    ❤❤❤❤❤

  • @river_salmon
    @river_salmon 3 ปีที่แล้ว +1

    Holy...she's soooo talented

  • @jedjones5406
    @jedjones5406 ปีที่แล้ว

    Wow great artwork 😊😊😊Beautiful

  • @Ciela887
    @Ciela887 3 ปีที่แล้ว +2

    Incredible artwork!! Kierra, you are inspirational :)

  • @lilith902
    @lilith902 3 ปีที่แล้ว +1

    I love this sweet girl and her art 💜💜💜

  • @BDWriter92
    @BDWriter92 9 หลายเดือนก่อน

    Kierra kicking it. She is her best self

  • @katherinedalipe9358
    @katherinedalipe9358 3 ปีที่แล้ว +1

    I wish I could draw like that it's so pretty she does it better than me

  • @RLaf328
    @RLaf328 3 ปีที่แล้ว +1

    I love her shirt

  • @halfasleeppoet
    @halfasleeppoet 6 หลายเดือนก่อน

    Your art is awesome Kierra :)

  • @OutNaboutwithSwiift
    @OutNaboutwithSwiift ปีที่แล้ว +3

    That was a risky title to type out…

  • @squizzyicetea
    @squizzyicetea 3 ปีที่แล้ว +4

    I wonder if she likes doing makeup 💄

    • @kierrap
      @kierrap 3 ปีที่แล้ว +1

      I wish :(

  • @cedenojr_8649
    @cedenojr_8649 7 หลายเดือนก่อน

    Bro looked like he was holding in a laugh the whole time☠️

    • @watchmo2310
      @watchmo2310 6 หลายเดือนก่อน

      wasnt we all bruh lmao

  • @LeslieG5
    @LeslieG5 ปีที่แล้ว

    Ahh, I didn´t found this video on the 'Meet Somebody Who Communicates With Technology' list on your channel, I think it have to be there 😅 I wanted my mom to see it. I finally shared with her after all haha, good work :D

  • @nomnomnommy2955
    @nomnomnommy2955 2 ปีที่แล้ว

    She seems lovely, I love her artwork. I know how to talk to someone who communicates the way she Kiera does. :)

  • @anna-7476
    @anna-7476 2 ปีที่แล้ว

    her paintings is so beautiful and detailed and she is cool herself. i would love to be her friend. 🤲🏻💗

  • @borsuk96
    @borsuk96 2 ปีที่แล้ว

    Honestly two first paintings are really good

  • @Eugene_Connor
    @Eugene_Connor ปีที่แล้ว

    Hello Kierra! Love your art!

  • @halfasleeppoet
    @halfasleeppoet ปีที่แล้ว

    Kierra I love your art!

  • @ATMcGWriter
    @ATMcGWriter 2 ปีที่แล้ว

    She’s a really nice girl.

  • @don8403
    @don8403 2 ปีที่แล้ว

    beautiful!!!!!

  • @evie6716
    @evie6716 2 ปีที่แล้ว +1

    osquinn

    • @乕
      @乕 2 ปีที่แล้ว

      HAHAHAHAHAHA