Chronicles of Nani - Know Your Limits

I was still tired and you can hear it in my raspy voice, but the vlog must go on!
After celebrating my birthday with things planned for three days in a row, it took me another 3 1/2 days to start to recover and get my normal energy back. It was totally worth it, but it's a lot easier to do if you know what your energy limit is and make an effort not to overdo it too much. In my life before multiple sclerosis, I tended to overdo it anyway. But it takes me longer to recover now. There was a time when I worked 2 80-hour weeks in a row producing a hockey game for a charity I really believed in. My boss told me she didn't want to see me for three days after the production was done. Now, I carefully schedule how long it takes me to complete a simple vlog once a week and that requires a few hours of rest in between and after. My energy limits changing is probably one of the hardest things multiple sclerosis has made me adjust to.
But you can do you things that are fulfilling and things that are fun even if you are living with a chronic illness or are always in a wheelchair. You just have to learn to adjust what your limits are and go ahead and push them! Just PLAN your time for recovery, so you can push those limits again.
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[@christinekajfasz5437]

Nani, I know all too well about knowing your limits. With as many years as I’ve had MS I know my window by now. What’s frustrating though is when you attempt to do something within your limits and a wrench gets thrown into the plan. We were flying to Toledo for Jim’s mom‘s birthday this weekend and I knew exactly what my limits were as far as the airport and pacing myself and getting all of my ducks in a row. We drove an hour to the airport and made our way through security and all the way to our gate before we got a notice that our flight was canceled. However scary it May be, hoping that your plan comes together; it is more frustrating when you attempt to do it and it’s all for nothing. I know I’m capable of the trip and now we have to plan it all over again. But I know in my heart I did everything I could to make it happen. I’m glad you had an enjoyable birthday weekend! 💗

[@thechroniclesofnani4804]

Oh Christine, how awful to prepare so perfectly, which I know you always do, and have your trip cancel that the gate. You and I both know getting ready to go is the hardest part. Whether it's you doing the walking to get to the gate or me letting someone get me dressed and put in the wheelchair, thanks to MS we both have our hardware that we have to work with just to get to whatever we're doing. We should at least be guaranteed that we get to actually do everything we want to do and ultimately we should enjoy every moment instead of sometimes enjoying the memories after surviving them or feeling defeated after we prepared perfectly and then didn't get the memories we look so forward to enjoying.