Etanercept for Stroke Recovery: Fact or Fiction?
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, board certified neuropsychologist Dr. Karen D. Sulivan discusses the latest research on Etanercept for stroke recovery. Lear more at www.icfyb.com or follow us on Facebook at icareforyourbrain
This was virtually an informercial for the medical establishment. While Dr. Sullivan concentrated her criticisms on the "bias" of the proponents of the treatment, her entire presentation was completely biased in favor of the orthodox medical view. Her argument that successful outcomes were only a placebo effect is highly unlikely, given that there are thousands of drug trials done for all manner of illnesses every year. If the placebo effect was so strong as to get an 80% success rate in this trial, why doesn't the same effect apply to the countless other trials in which the outcomes are poor? Are not the recipients of those novel medications as eager to get well as the ones in this study? And her skepticism based on the fact the reported outcomes were so dramatic seems rather desperate. If you remove the CAUSE of a patient's symptoms, the symptoms WILL resolve.
Established treatment for diseases is an industry, comprised of medical professionals, drug companies and rehabilitation centers. There is a whole lot to lose if suddenly what you do to help is seen as not working nearly as well as something new. The fear of damage to one's business and prestige can make those concerned VERY resistant to a revolutionary treatment that might threaten those interests. Dr. Sullivan kept saying that we need better trials. Fine. Then get going and see to it there ARE better trials. Otherwise, it's just excuse-making.
Everything in I'd risk and all medicine that we take have risk to why not to take a risk in this shot, I did it and walking better and before and after it I'm taking therapy to get much better improved
I wonder how is Linda Lumbra doing in 2022? She received treatment for her stroke in 2014.
@@SelenaGomaz2011 best wishes!
After vaccines scam science all scientists should just shut up . The general scientific community has no credibility anymore
If it is that effective the FDA would approve it or at least request the drug company do the proper trials. If it truly has promise, this could make billions of dollars and someone would invest the resources. It's been more than a decade since these miracles happened
This would not be the first time that a drug that was created for one illness was found to be more effective for another. I do understand your skepticism, but I've seen the videos and find it hard to believe that they were faked-
But you don’t see the ones that don’t work.
@@ericrupert2687 the doctor who performance this treatment said it clearly : 1 in 5 have some type of improvement
@@giovannamoro8564 where did you see that? It was my understanding that 85% of people treated had “some” improvement. I don’t remember where I got that idea though.
@@ericrupert2687 in the " 60 minutes documentary".
In 60 minutes he said 1/5 DONT have response, which means 80% DO!
I must say that as a Nurse who has worked with Post Stroke patients for many years I do know that the Neurological Society has a lot to lose if this injection works ...there is a ton of money to be made for rehabilitation of post stroke patients. Let's do a National study to prove whether or not this drug actually works, and let's do it soon!!!
You are sooo correct! Thanks for speaking out.
So sad that some people think it's great to benefit from others' suffering.
@@hikari8858 well said
@@kelseymathias3881 Yes well thats big Pharma for you . They make no money if you are healthy. They are evil and care nothing for health . only illness .
Indeed
Why not see if this drug works
Seems sensible
How after over 10 years now, has the medical community not seriously looked into this?
bad for business
Dishonesty? Greed?
@@ChristianBang34 Yep. Akin.
fear ..fear for their money , they dont give a sht about the suffering
The love of money is the root of all evil ?💰
This treatment has been in the medical domain for 15 years and has gone through the VERY type of clinical trials mentioned here .AND there have been THREE PHASES of the clinical trials with several articles validating the perispinal injection of etanercept treatment efficacy AND STILL the "Good Ol' Boys" network at the AAN , fearing a reduction in THEIR "stroke treatment" billings CONTINUES to withhold their acceptance and endorsement of this TREATMENT over their use of expensive "rehabilitation programs".
Not to mention they’ve started a study in Australia so the people don’t have to travel to the states. He trained the physicians so the study could begin. How is t there moving faster toward approval when study showed over 90% helping to some degree. I’m in the medical field and trust me it is most definitely about money! See what they’ve done toward cancer and Dr Burzynski. Tried to lock the man up then stole his invention. What if there was this type of treatment for dialysis? Can you imagine all the money that would be lost if one or two shots restored function? They’d find someone just like this to repress it just as they did with high dose iv vitamin c for COVID. Do studies using a mere fraction of the strength that works and conclude it doesn’t work and more studies need to be done. Luckily a colleague of mine is director of a major hospital in Florida and when they utilized this protocol no deaths, fewer patients on ventilators and shorter stays in hospital. It’s very sad to have medical professionals push this maritime for big pharma. She is on the wrong side of history
Where can I get info of the clinical trials?
Thank you for the informative and well presented research and opinion. 22 month out from massive hemmorrhagic stroke in June of '21. I gotsooo lucky considering the scope/size! Am I, who lost my job and now live with hemiparesis, willing to prisk $5k on an 80% chance I might be able to go back to work and use my shop again? I sure am.
Did you get injected with entarcept? How did it go?
As a 1990 TBI survivor, in 2000 I was in a trial for the use of Donepezil (Aricept) for brain injury. The benefits happened immediately. The same was true with Vioxx (cox 2 inhibitor). It was hours within my starting that I felt a marked improvement. After 20 years, I developed unbearable muscle spasms with the Aricept, and had to quit. Vioxx was rushed off the marked after a few people overdosed on it. I loath the phama companies and the doktors who push their wares. We are a society where the doktors and drug makers are not held responsible for their monstrous behavior. It's all about profit, not our health.
Vioxx was killing people with heart attacks
Does anyone know if there is another clinical trial of perispinal entanercept going to take place I’m aware of the 1st taking place at Griffith University in Australia, I have been hoping one would soon take place in the USA.
@@ericrupert2687 I took vioxx for years. YOURS is a generalization and MOSTLY inaccurate.
Does anyone knows where we can has this injection other than USA because visa is not easy to get.
Has she talked to a solitary person who has actually had success with this drug? My friend had a horrible debilitating stroke many years ago. Now recently had great and immediate success with this drug.
Can you tell me more? I am researching for a friend.
While Im all about we are all entitled to an opinion... what else is the option? My husband had a stroke 2 years ago... and is in constant pain, spasms, difficult speech and just trying to walk is a major issue. Its painful to watch,,,, and even harder on him. So if there is ANY hope of this working.. im in, as long as we can figure out cost.
I love your cadence and enthusiasm but I have to mention that I was concerned with a intimation that ' we didn't have much, we even desperately used a cancer drug to help with the symptoms of arthritis...' More often than one would think, some drugs designed and focused to be used for a specific aliment actually can and do work for other situations. And because the WHO lists 5 conditions it is confident a drug can help with, we shouldn't close the mind to understand how the body works with those drugs and that the drug can have other uses. Thinking this simplistically would lead to a computer prescribing medications.
"American Neurological Society did a "big old literature search" (literature review)" -What - of course a lit review is sloppy research - And yet they want to P-R-O-V-E the results - if the science community wants to check into it, then do it. So if there is concern and there seems to be observations that need to be investigated, then, investigate.
I really like your channel but this could have been summed up in three minutes... "This drug is not scientifically proven for strokes but seems to have overwhelming and hence suspicious positive results when used for stroke 'cures'."
I was confused about the last part of the show: If you or a loved one suffered a stroke or other brain injury, would you try this as part of a search for improvement? - Of course we would have to consider the other situations like infection etc.
When someone can present something so cold as this lady, is sure that she never had a close family, friend fighting with all these stroke challenges.And how caregivers suffer seeing their husband/wife in these conditions.
My mom had a stroke and was not recovering enough to be able to speak clearly or walk. I suggested to my sister, who is a multi millionaire, to do this treatment. One out of five chance for recovery compared to 0% is pretty good odds. My sister did not respond and my mom lived a pitiful year and one half before she died....demoralized. i just told my son, who is a Dr., that I would choose to take the one in five chance compared to 0% chance.....placebo or not! I do not care how the cure happens.....I would rather take the chance than live in a prolonged prison of misery until my death. Whether it is "proven" by medical standards or not. Logic tells me this more than $$$$$ motivated, and funded studies. Dr. I strongly disagree with your logic, and if it were you or someone you loved, would choose to rot away or let your loved on rot away when there are no medical cures and be "RIGHT" or would you take any chance or hope for recovery, .....placebo or not?
Agree. I am NOT a multimillionaire, but if my father wants the treatment, I will gladly pay for him to try. I can't take money with me.
So sorry for your loss and I agree completely with getting the shot. A small chance at recovery is better than no chance at all. Living this way is not living!
Very, very well said
It's a stated 4 out of 5 chance of positive treatment, not 1 out of 5!
Yes!
Please stop knocking this treatment . It works. The cost is small for the relief it gives. Just the pain subsidence and the lessening of fatigue the improvement of eyesight. All things that most people don't realise how much impact these have on your life after stroke. Big pharma don't want this treatment to come out. The industry makes billions on stroke treatments
Thank god this doctor won't sell out but continues to help patients. Don't downplay the trials at Griffiths University in Australia. They are experiencing wonderful results and unlike USA we will have treatment paid for by the government.
Thank God I live in Australia but some of my stroke friends have gone to USA and say it was definitely worth it.
Trust me, I know this drug is a miracle. Akin.
@ 01:58 (see it) the drug was patented 1989 - then at 22:45 (watch it) that point is muted one because that Doctor in Florida didn’t invent a new drug he only showed the world a new use and way of existing drug. The pharmaceutical company that holds the patent (if any) are making their money regardless 05:41 since it is almost impossible for generic drug manufacturers won’t even try to manufacture it. With that in, the Dr’’ treatment is one time shot and not a monthly treatment. The pharmaceuticals make money if the procedure was monthly procedure, and not one and done. The stroke care is huge industry and I think the pharmaceutical companies aren’t happy with that Florida Doctor. With his new method of Stroke Recovery treatment, he might be taking too much business away from them. Just saying!
I was on Enbrel/Etanercept for 22 years. When I started on it in 1999 for RA, I had a dramatic improvement within 45 minutes and was able to run up and down stairs, alternating feet, within 3 hours, something I was unable to do for a couple years. Call it placebo effect, call it whatever.. it worked and worked well for many years (I had been on methotrexate and hydroxychloroquine with no improvement). At age 26, I was getting close to a wheelchair. It was a miracle drug, and I only stopped it about 6 months ago, when it was no longer effective enough. I 100% believe it can work extremely quickly, but I also don’t think that’s a typical response.
Now what is your condition?
Are you Okay or Same condition before Taking Etanercept?
Yes care to share..
Same here, but I would say dramatic improvement of my AS within a few days of my first shot. Changed my life after 20 of excruciating pain. Still pain free now. I also started on Enbrel in 1998.
YOU probably, as I did , took YOUR Enbrel orally. THIS is a VERY DIFFERENT administration of the drug which circumvents the BLOOD BRAIN Barrier and counteracts the detrimental effects of TUMOR NECROSIS FACTOR IMMEDIATELY triggering the reversal of stroke damaged brain cells.
@@davidresley1848 Enbrel is not an oral medication.
Great review! I have nephew with a spinal stroke, RA/infection that lead to his spinal stroke. He’s a child. I’m hoping new treatments arrive. I work as a nurse and strokes are nightmares.
After how many vaccines did this stroke happen ? young children do not have strokes they are brought on by vaccines.
Who cares as long as the victim is cured
Perispinal Etanercept is extremely good for post stroke patients. The only concern is the cost. Why the cost gotta be so high🤔🤔🤔🤔🤔????? I had a hemorrhagic stroke August 27, 2022 Saturday. Even though I've made some recoveries, since December of last year, I still don't have full arm movement in my right arm and hand, and my right foot shows dropped foot. Perispinal Etanercept can easily help me, but I have no money to cover the cost. Had the money, I'll go to Florida immediately!!!!! Akin.
It does work.
Even controlling inflammation in your body that’s off the chart is a plus. Inflammation can cause a host of other ailments.
@@amym4999 I know it most definitely work for stroke recovery. I just hate the price got to be so high..... Akin.
That’s why they call all these drug companies big pharma. They only care about getting richer. It should not cost so much. They rather keep people on disability so we depend on the government. Our crooked government
Delay,delay,delay . If YOU had a stroke would you not be willing to do almost anything to get better ? Let whomever wants to try it, try it. I got spinal injections for pain even after surgery. Didn't work . I didn't get My money back! So what's the difference ?
And when you're done tearing up Dr.Tobanic, tell us WHY the FDA took N_AcytlCysteine (NAC) off of the vitamin shelf.
PS..I've got 3 awesome bottles!
NAC what does this do?
@@garywalling4341 google
Top 9 Benefits of NAC (N-Acetyl Cysteine)
Yeah , you're right ! It happened during pandemic 's lockdowns , it went unnoticed
@@giovannamoro8564 some of us did notice.
I have family a distant cousin who works in the pharmaceutical industry who is now in his seventies and his wife had a stroke a few years ago and was given a medical miracle drug which prevented her from having any post stroke symptoms such as paralyzation or sluggishness brain fog and she is 100% well why could there not be another drug that would do the same thing
You know for stroke patients, you are not going to give him a sugar pill and say it is Etanercept, knowing that for stroke patient, placebo effect really is non-existent.
We all know that FDA has our best interest in mind. I’m glad they make sure all drugs are 100% safe and effective before allowing anyone to take them…oh wait.
Yeah, you had to catch yourself to make sure you're not lying. Akin.
FDA doesn’t have the patients best interest
It has the best interest for the pharmaceutical companies
It's actually 8500 for the first shot plus a 1000 consultation fee. I'm from the Caribbean and stroke is a death sentence in my country of Trinidad.
That is insanely expensive.
@@Mila_Brearey yup
LOL, yet another instance of a term being used in place of "we don't understand what's going on". This time it's "placebo effect", something scientists can't explain, can't pinpoint, and yet insist exists simply because they don't want to accept that things could be more complicated than they want to admit. Always use skepticism when confronted with these buzzwords, folks.
I don’t understand the medical fields reluctance to immediately do tests. All you have to do is interview the hundreds of ppl Tobinick has already treated. If I had a stroke I’d be going to see him.
A proper study has to show a ton of things, such as: effectiveness, side effects, "may cause"..., warnings, ... plus age range groups for each one of these must be tested. Then, another age & sex duplicate group will get the placebo.
As much data must be gathered from the results as possible because unfortunately, we live in a very litigious society.
me too
"He CLAIMS he can get it into the brain by injecting it into the spine." She's a neurologist, what the heck! If you inject it into the cerebral spinal fluid it crosses the blood brain barrier. Key words here being spinal fluid (not blood) and cerebral, the brain. She knows this. Who does she work for?
Only certain sized proteins can cross?? Wondering
I didn't like that innuendo either. If there is a reason to doubt that the drug enters the brain, she should explain why.
He doesn’t inject into the spine or the cerebral spinal fluid.
It’s a perispinal injection technique. I have researched this for over 5 years after seeing the 60 minutes report. They cleared my daughters dad for this but sadly his family think it’s a gimmick and would not help me when I came up with half the money and forwarded the paperwork to them. Look at trials at Griffith University in Australia. How the heck are they moving faster for their citizens and a doctor here invented and trined them to do the procedure? All participants had some degree of effectiveness. Many with TBI injuries and a mother of a son with such injury was pivotal in using her life savings to get the trial approved by starting g a non profit to help others. That’s not just a placebo affect. It doesn’t return all to 100% pre-stroke but even being pain free or having some degree of independence is worth it for many. I’m sorry to hear about the person that wasn’t helped. It’s unfortunate and would make me a non believer as well had I not poured over the actual medical information on nih.
@@ericrupert2687 he does you nitwit
Stroke survivor thanks you forthis video!
Healthcare is primarily profit-care. Drug & pharma companies, pharmacies, hospitals, research houses, scientists and scholars, doctors, medical universities are all part of an interconnected profit oriented value chain of industries that runs on exploitation of knowledge, suffering, hope, greed in the name of cure, treatment, therapy, medical attention, operation etc. They do save lives, work hard to improve quality of life, but definitely for a price tag whilst safeguarding their own interests at all times!
PS: Loved the comment section really where logic, rational and sense prevailed!
How is Linda Lumbra doing in 2022? She received treatment for her stroke in 2014.
I couldn’t find her, but if you look up “Institute of Neurological Recovery”, you can find many updates on other patients.
@@jackieruiz3645 Thank you
@@jackieruiz3645 I sent an email to INR last week inquiring about Linda, but haven't received a replay. It occurs to me that because of HIPAA, they might not be able to release any updates. At any rate, I hope she continues to be well and happy.
@@kelseymathias3881 That makes perfect sense. Thanks for trying.
Dr. Sullivan how could we get a clinical trial for the perispinal entanercept procedure done in the US ?
My son had great results from this - we had it done in Florida with Dr Tobinick in January and April 2024. The gains have remained as well.
if people have been effected for say 3 years or so and they made a full recovery or almost recovery how can it be a placebo effect....
That's the same question I asked. I've come to the conclusion this is not placebo. Akin.
wWhy doesn't the NIH conduct a clinical trial in the USA?
Well do the testing to see if it’s legitimate instead of just talking about it, she can do the studies instead of just talking about testing! At least the Florida doctor is trying to help. What is she doing besides talking about it.
That's exactly what I was thinking too. They 've had more of a decade to research on it .....clowns
Exactly!!!!
@@giovannamoro8564 My point, exactly. Akin.
Dr. Sullivan , If you had a stroke, would you try?? You have the money to do!
How about perispinal etanercept injection and complete pain reduction? Result last for years?? Again it is not true?
I went to Florida 3 years post stroke. Left side problems.i received 2 shots,two weeks apart.no improvement. I am not bitter, i had to try. Didnt want to wonder my whole life. Hopefully will live long enough to see a breakthrough.
@@bradmaurer1399 I’m sorry Brad. If you don’t have my stroke recovery guide already, I’ll send it to you at no cost. Message me :-)
So sorry it didn’t work for you , especially after you include all the travel expenses. I think if it doesn’t workDr Tobinick should only charge only for the cost of the Embrel ( which I think is only $400, if it works then pay him the $8400. Then it’s a win win situation for both he doesn’t lose any money cause you pay for the medicine if it works he gets the full amount for the procedure.
This doctor is mispronouncing the name (..Eh-tan-er-cept, not Int-an-er-cept..). Doesn't inspire confidence in her opinions...
I am a stroke survivor and I watched your program, and I wondered what your thoughts were on the Covid injection
why isn't it covered bi insurance the drug costs $400, it seems greed and brand loyalty ruining the medical business!
Griffin University in Australia is doing the study.
I believe that the drug works I just want to know about how long does last how and will it pout you at risk to have multiple strokes
Thank you for the review, but I do have questions. For one, how many people were enrolled in the double-blind study? I agree that the results seem to be too good to be true and deserve scrutiny. But I don't understand your dismissing the results as being likely placebo, since the very purpose of a double-blind study design is to control for that possibility.
It's a shame that the doctor who has been doing this seems determined to act like such a quack. It appears that he is careless with data and cherry-picking results, when he could easily be publishing an observational study that could be the basis for a larger and more definitive one. Even if the results were 30% instead of 90%, I suspect many stroke patients who have hit a plateau would happily take those odds.
I don't think there are any grand conspiracies here shutting out a promising treatment, but I do wish we had better data, with quantifiable measures and follow-up over the course of months.
This video is now almost a year old. The Queensland study she mentions at Griffith University is accepting (Australian) people for a larger second trial of the drug. I don't know what it would take to extend the trial to other countries, but the results of the first trials were encouraging and I would hope there would be interest in continuing and elaborating on the study. Rather than complain about how poor the data is, why not support getting good data?
I think the doctor knows that the novelty of his treatment is what keeps his business afloat. If he were to do an observational study, and the results proved to be promising, other clinics and hospitals would begin treating stroke patients with entanercept. People would no longer fly to HIS clinic in Florida if the treatment became widely available.
We’ll stated, thank you
@@cumguzzler7445 Imagine if you were a Nuerologist and someone threatened to find a cure for stroke. You would say anything to shut them down!
@@cumguzzler7445 yes, you just always consider financial incentives as bias.
Well why dont you organize a clinical trial....what if you are wrong and this drug can help 100s of thousands of people
I had a stroke 4 years ago and I have difficulty speaking and can only use my left hand. Can I regain my speech and the use of my right hand?
March 2016, I had a Heart Attack and a Massive Stroke with Temporary Left Side Paralysis, and I am 95% back, but the Stroke reduced my Peripheral Vision, so I cannot get a driver's license to drive, So the doctor in Florida intrigued me, but I'm a bit apprehensive because don't have $8 grand
My Niece had this Treatment today in Florida . No Results 😫
$8,500. Later she was invited back for a second after a new payment is made.
$8,500 ! And wanted more! I am so sorry for you!
That’s outrageous! I was thinking of going to Fl. He’s a leach, a blood sucker! No way I’ll go now
Soon he’ll be asking $12,000 a shot! He just lost me as a patient. We need more large clinical trials. The AAN should start a clinical trial or get Medicare do a trial so they can prove it’s true or a scam. With nearly 800,00 strokes in just the US each year If it works, think of all the money Medicare would save from paying for hospital costs and rehab The for the cof a good clinical trial cost theymean you have to remember there are approximately 800,000 strokes each year the money Medicare would save just the first year would probably pay for a good clinical trial!
seeing the lady come out of the fog and back to her old self is just too good to brush off with the good old bad science argument. let's just see here down the road. my stroke has me unemployable with the government denying thatam disabled because it does not fit their rules. doctors won't release me. to work andam not disabled enough. guess ifend up dead in a box on a cold roadside,might
Current cost for Enbrel in the US is $7,600/month. Humira costs the exact same.
I take XelJanz and it's "only" $5600 a month. I was forced into financial ruin in order to go on state Medicaid. NO WAY could I afford this on my own, and most insurance companies won't pay for it either.
@@marjake3147 I feel your pain. I've had medication changes recently, and it's been very hard to get things covered.
True. This procedure only uses a half dose for that price.
No, it’s $8200.
It’s gone up these days
Has anyone heard about the results of the double blind testing in Australia? It was supposed to be done mid 2024?
So you are trying to create a placebo effect that it doesn't work
Curious on your take of the Gates & Fauci's shots ....
Why don't all these Dr's who are complaining about it do the proper tests to see if this drug is really working. There's too much money to be made on both sides for a proper study not to be done.
Far too much liability involved to guess how he’s injecting the medication. He has trained physicians however and they have made comments on TH-cam as to its effectiveness. Yes it is expensive bc it is not covered. Last I called in early 2022 it was $1000 prior to arriving but they did inform me that loved one was a good candidate rather than waste our time. Submitted info post COVID so perhaps this is why we had to upload information instead of going there first.
As I asked before how many of these gold standard trials must be done before we see the procedure done in US Hospitals? One, five, ten, just how many?
Nobody is interested , probably the big bucks are in vaccines.
I want to try the Fla dr’s treatment , but my wife says no
She thinks all the videos are paid actors and we would be wasting our money! Since my stroke she has complete control of our monies, so I have no say or way to try it. iMHO, in the future I believe this procedure will be found to help many neurological problems since it bypasses the blood brain barrier.I’m 74, so it’ll be way pass my lifetime. Just wish a hospital in the US would have the gonads & money to try it!
Have seen it in action?
I saw an 8 year old video od the miraculous recovery of the lady she mentioned.
8 years and still don't know if it is valid or not? Like another commenter said, lot of money to lose if it works!
But also a lot of money to gain if it sells, even if it doesnt work.
@@icareforyourbrainwithdr.su7103 Well do you got the proof it's doesn't work????? Because so far I've been hearing talk from certain medical circles saying "it don't work", without evidence. He's got thousands of videos online for anybody to say "it's placebo", which is BS!!!!! I personally think enbrel works extremely well for stroke. The only concern I think you should be concerned about is the price, which that's a legitimate concern to complain on. Other than that, the rest of the crap you been hearing on enbrel is total BS👎🏽👎🏽👎🏽👎🏽👎🏽!!!!! Akin.
The person with a stroke , is not working, by the time the clinical trial is over , the stroke person will be broke, or dead, I would try if I had a stroke
Never follow the science, follow what works for you best !!!
Thank you for posting and sharing!
My sister and I are leaving Florida tonight with heavy hearts. She had such hope that this man and his miracle treatment would aid in her recovery. There were many red flags, the biggest one we were not allowed to video tape the injection. Up to and after was fine, but not during. The medications was drawn up in a different room. So she was not given the chance to see what vial the med was taken out of, and then it was put in her. She said all effects were placebo. When she first stood up, she felt like she could see and hear better. She told me she felt like he went off to the side of her neck with the needle, and if anything, he put normal saline in her. By the time we got to the car she felt no different. She is so sure that nothing was put in her back ( not her spine) that we are going to get a lab when we get home. Etanercept stays in your blood for 3-4 weeks. If he injected her with the drug, there should be something that shows up. She was scheduled for a second injection but opted not to do that one. It would have been a waste of time and money. I'm writing this not because I want Dr.T to get in trouble because, as we all know, he is able to hide behind his "1in 5 do not have any results" theory.
I want others to think long and hard before doing this. I believe he has a very good idea of who this treatment will work for, and those are the folks that get the med and get the med in the correct place. The others just pay the money and leave with their hope ripped away. I would also like to add my sister was given 2o minutes of pre-assessment testing, and she scored high on all of them. Post-assessment was zero. The drape was ripped off, and out the door we went. So unbelievably sad.
This makes my heart break and my blood boil. I am sorry. Please send me a message on my FB page (same name), I want to provide some support.
Look up the research study being in Australia. They are Phase 3 of the study with great results being done.
@@icareforyourbrainwithdr.su7103, HI I have just seen your channel for the first time. I had seen that video about the lady in Florida. It was totally amazing. I too have had stroke.(2021)When I went to Shands hospital in Gainesville Florida the doctor told me I had a stroke in the "pool" of the brain. He said that it would NOT have mattered when I got there that this type of stroke cannot be prevented. (Is this true) I have pins and needles all down my right side and with having 2 more strokes (one in 2022 and 2023) it is now affecting my my left side. I have had extreme nausea with this last stroke and cant eat. He actually told me to just go live my life with only a blood pressure and high cholesterol pills. I really don't know what to do. I can't live my life because I'm always afraid of another stroke. I can't put myself in ANY stressful situation. Please help me find someone to help me. I'm only 62 and NEVER thought that I would be in this situation. ✌🏻❤️
Why hasn'' this mushroomed in use. Why aren't other clinicians using this? Why is Dr. Tobinick the only one using it:
It's too expensive! Probably alot of insurance won't pay for it. I have a friend who could benefit from it & he doesn't have the funds... 😒
It’s expensive and for me it didn’t work
@@ericrupert2687 did you have the perispinal injections at Dr Tobanick’s clinic or some other treatment with Embrel? Are you a stroke patient?
@@nicolaxoxo1 dr tobinick himself did the injection at his clinic. Yea stroke
@@ericrupert2687 was your speech affected by the stroke, or physical problems or both? My mom lost speech, reading and writing. But was spared physical disability. I think she would prefer to speak and be in a wheelchair. Anyway sorry to hear the procedure didn’t help you! Is it normal to try more than one injection?
I think the percentage of success it 100% if it works for you.
So there was one study that was done properly that had amazing results and she just can't believe it because the results were too good even though the test was done with the double blind and Placebo control. It's always safe for a doctor or scientist to say more studies need to be done. It sounds to me more like she's afraid to say anything hopeful lest a patient go get the procedure and then be mad at her because she said something positive about it and they didn't get cured. This cya tendency in doctors is more prudent for their liability than it is for their honest input. If I had a stroke and couldn't speak $6,000 would be a small price to pay for even the hope of a cure. American spend more than that on plastic surgery all the time. I didn't hear anything in this report to indicate that this was a scam. Yes more work needs to be done but it's not going to get done if neurologists are resistant to the possibilities. Couldn't believe she mentioned the study with the shot in the arm, of course that didn't work we already established that the drug doesn't pass the blood-brain barrier.
It all sums up to financial interest of some groups if this kind of researches is not enough funded. That's all. It has nothing to do if it works or may work or not. Science is a world in itself with its own beliefs and it became a kind of religion too with it's need to be right and control everything. But thanks for your video, I appreciate the debate.
We would still be waiting for covid shots if they were in a Clinical trial.
Ironically we did do a live trial of the vaccine, and blue states who took the vaccines did better than red states.
HEY ! DR. Its one shot, for stroke!
Thank u doc. This clears things up for these trials. I almost wanted to fly ther from singapore to get the shot for my hemorrhagic stroke. Phew!
So are you going to Florida for the shot
I enthusiastically applaud Dr. Sullivan's presentation. It was clear, informative and balanced. I am a three-time stroke survivor and a university researcher. The information she presented, and the clarity with which she presented it, will allow me to make more informed decisions.
Could you please doctor tell me if i can tell a neurologist to give me the injection into the spinal fluid as i am MD my self because to come to USA is visa hustle take time I am stroke survivor is there any extra percussion while we give the injection is there other drug should be mixed with such xylocane ??
Gee, I wonder why someone is spending time & money to do trials on something thats going to help us poor suffering stroke patients...because you can't make anymore $$$ out of it! Come on. Dr. Sullivan played it safe with her unbiased opinion. Wonder how she'd feel if she or a loved one had trouble walking, talking, and in constant pain. That's where I am. .one those poor folks that has no chance. None, I'll probably die this way......
Thank you.
You gave no evidence or support then again to be fair you didn’t do any research other than other’s views,Your probably in it for the money ,you know support groups talking about the stroke they had and how to live with it for the rest of there life,Your not going to help people because you have already given up because your career is at a dead end and you probably have enough money to care anyhow!
i wonder if you are talking about the doctors at the clinic or the family members being biased?
I had a stroke i need some medication i live in exuma
Bias or no bias, if it works it works 😊
Overall, medical, entertainment and education have become empires each needing to be fed so therein lies a problem. When elephants fight ants(me) get trampled.
If the placebo helps why would you not use it ?
Placebos effects fade quickly.
The people who have been helped have dramatic outcomes.
And being from Canada I have to add 40% because of our dollar exchange rate
Please, do a placebo effect video! Thank you for your explanation in this video❤️
sounds like a successful test
Let’s do a quick study here… $7k for a solution or $10k for just Botox plus more for doctor and therapy visits… the evidence is clear on why no one has bought this company , the industry suffers
But why our government don't get involved so as to get people healthy and well including scientists and doctors if they are really interested in people not mooney
Because they do not want us getting better. They want us to keep paying for medication. 😡
it is very expensive. the research is not very good when they had all those patients..should have done more quality research. i was going to try but i cannot take an immunomodular drugs
If mam nothing else works then to get back to 99 percent np trying
there they did a random test
They quoted me 8200.00
Did you go for it?
People living with TBI may be far more willing to try something, so your lack of recommendation is taken with a grain of salt. It's your opinion. Period.
@@voices_vary definitely. Just doing my best to provide a balanced view. I wish it worked.
thanx!
Really ,come on , do you really spect someone get better from a stroke by takin a sugar pill.... this is why patients hate doctors
That is how all studies are done
It’s ETaNercept not entarsncept
Great video! I love that you were honest and unbiased.
In other words you are calling the woman a liar. Where were you when they started demanding that we get a shot with a totally experimental medicine?
If you never had a stroke like you and you feel like your life was stolen away then you can talk about what you would or would not try until then if you cant help keep your thoughts shut.
Hi Lia, do you think brain health doctors should have an opinion on this or no? I try to keep the community informed on pros/cons and scientific literature so they can make up their own minds. I wish you all the best in your recovery. I've written a stroke recovery guide, if you'd like a copy, you can write your email and I will send it to you free of charge to support your ongoing rehab. All the best, Karen
Excellent presentation. R.A.Haynes,Ph.D. retired senior research associate
Wow. He never said the claims you said he made. Smh.
thank you so much for such thorough examination from a scientific data perspective. Right on, Dr. Sullivan!
I just came from Florida and I got the shot and and my limping on my left leg is no longer limping and I walk better than before. I really think that if I get one shot I will be better. This July 7th this year 2022
Good luck! Glad you were able to get the shot.
Thank you so much for letting us all know! Great hearing from someone who has actually gone through the procedure. You are very encouraging!
@@lanfordmims5080 thanks for this. I did it cause I nothing to lose and I'm already like this and I went in faith 🙏
@@debbieescobar6267 thanks for this I went with faith and I believe in power of God
@@SelenaGomaz2011 what did the Dr charge if you don’t mind me asking, also was the total cost for one shot or two?