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How to Treat and Manage Peripheral Neuropathy From Breast Cancer Treatment
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- เผยแพร่เมื่อ 7 ส.ค. 2024
- What is peripheral neuropathy? What causes it? What are the side effects? In this video, Dr. Jennifer Griggs explains everything you need to know about peripheral neuropathy from breast cancer treatment.
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Disclaimer: Yerbba TH-cam videos are for informational purposes only, do not constitute medical advice, and are not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your medical team, mental health professional, or other qualified health provider with any questions you may have regarding your medical condition.
After 9 rounds of chemo both of my entire feet are numb and my finger tips are numb. I reported this starting at round 6. Staff said that it was expected. Dose never changed.
If a person is still able to button a blouse and to pick up a coin from a hard surface (without sliding the coin to the edge of the table), we generally do not have to lower the dose or change the frequency of treatment. Here's hoping things improve once the treatment stops. If you are having questions about your dose, it is completely reasonable to discuss this with your team.
I found that when I stop moving the pain is greater than constant mobility relieves the pain. My hands are better but my feet are not.
Thanks for sharing your experience. We know that this is helpful for other people who are finding the same thing. It's not uncommon for movement to help with pain. It would be important to ask your medical team if you may have other problems in addition to the neuropathy. Joint pain often gets better with movement, so I'm curious if you may also be having joint pain.
My neuropathy is all over my body, it just started about a month or 2 ago. My chemo was about two years ago. My feet are not affected, and I only have a bit in my hands so far. The first was my back. It seems it's getting worse daily.
Great info. I am watching from Trinidad and Tobago.
Thanks for watching.
Me too 😊
I’ve had mine since the beginning of chemotherapy and my oncologist didn’t care about it happening to me. I told them every time about it was getting worse but he didn’t care. And it still is getting worse and it’s been 5 1/2 years but I have learned to live with it. I don’t trust DOCTORS now and will not return. Plus I only did 2/5 of the treatment they wanted to do. My only regret is doing chemo to begin with.
So hard to have lived with this for so long and even harder not to have been believed. Thanks for coming here.
The drugs you mentioned I had tried for other conditions and I found the side effects high without them aiding me. What are other ways of managing cipn? It has been one year since my final chemo and I do believe I may be one of the coasting patients. I did forgo my last two treatments because of leg pain- especially when standing. I would love to read someone's journey who learned to manage cipn very well-
I beat the cancer, migraines, and painful bladder syndrome- so cipn, now, is next!
I wish you didn't have this side effect. It is really disabling for many people. I would consider seeing a palliative care specialist. They manage side effects and are actually experts in this area. I hope you find some relief.
I experienced some peripheral neuropathy prior to my TNBC treatment due to an existing fibromyalgia diagnosis. That PN was more like being shocked up & down my spine with some tingly toes & feet. It usually was worse on stormy days or when I was under a lot of stress. I started chemo treatment on 2/7/23 & didn’t really notice the increased neuropathy until I was done with chemo. Now my lower limbs are numb and painful which make walking difficult. I’m awaiting insurance approval for PT/OT presently. I have tried most of the meds for my FM pain and find that more than 300mg of gabapentin 2 x day just boggles my mind. I keep seeing ads regarding different electrical stimuli devices and wonder if they actually help or if it’s just a scam. Thank you for your videos….I sure wish I had found you earlier!
Thanks for writing with your story. Some of these devices may be helpful. Stress management, PT, and OT are also all helpful. Hoping the approval comes through soon.
It's been 15 yrs since being poisoned with platinum chemo. No pain management. Burning fire nerve pain has now spread over my whole body. Dying of cancer would have been much better.
Thank you for writing. Make sure your medical team knows how severe this is.
@@yerbba I've been telling them for years. There is no help.
So sad about your ongoing pain.😢
CIPN started during Neo adjuvant systemic phase and a year later during adjuvant systemic phase it is still here. I have reported it repeatedly. So far they are powering through and I guess we are leaving it until we look to see how to treat it if it doesn’t go away. But it is in fingers toes and tongue and it drives me nuts.
Sounds really difficult. If you are able to button a shirt and to pick things up (like a coin from a table), stopping chemotherapy is not necessarily required. If the neuropathy interferes with these things, it is worth asking again.
I use the ice mitts and booties to hopefully keep the meds from going to those extremities.
Using ice mitts and booties can be a proactive approach to try to prevent chemotherapy-induced neuropathy in extremities, which can be effective for some patients. Thanks for sharing your experience.
I need help it’s been a year and my life has been destroyed. Gapentine methadone tramadol nothing is working help.
So sad to hear about your struggles. If you haven't already, it may be helpful to see a palliative care specialist. Wishing you the best.
Can Letrozole also affect?
While the aromatase inhibitors have not been shown to cause neuropathy, they may make existing neuropathy from chemotherapy worse.
I had my first chemo 3 days ago and I’m feeling my feet and hands kind of numb already :/
It is important to let you team know about this when you go for your next chemotherapy.
I developed neuropathy in my feet and hands during chemotherapy. I finished with chemo in Nov. 2021 and my neuropathy is worst nothing has helped any advice you can give is appreciated.
Thanks for writing, and it's a dreadful side effect. Although I can't give specific advice, I can suggest you see if there's a cancer rehabilitation physician you could see or a palliative medicine physician. Palliative medical and cancer rehabilitation doctors specialize in helping manage symptoms. Wishing you all the best.
The only thing that has worked for me is hemp cbd, you can research a few websites online and find that many of the aren’t expensive at all, when I stated medicating I was able to walk without feeling like the nerves in my feet were getting ripped out, hope it helps a bit for you as it did for me
@@rickyrobertson2736 where can you get hemp and cdc
@@monicamontgomery3264 wilted flowers, simply crafted cbd
@@monicamontgomery3264At a THC dispensary if it is legal in your state.