So very sorry you're faced with this debilitating disease, Naima. I'm going into my six month of it, and the depression seemed to hit since I've tried most of the things you have. Did want to mention that I recently started getting therapeutic body massages, taking NAC with Glutathion (6000 mg a day), Nattokinase (8000FUs per day) and Vitamin K2 (100 mcg/day along with Vitamin D, 10,000 units a day). I've done a lot of research on NAC (N-acetylL-cysteine) and there seems to be quite a bit of science backing it up. That's the entirety of supplements I take, no other drugs. I'm a vegan, if that means anything. Unfortunately, I live in the US, so we have to pay an exorbitant price for all medical treatments. I've chosen the homeopathic route to save money and not allow the medical industry use me for a lab rat. That being said, with the recent addition of the massages and the high doses of NAC, I've seen a huge difference. The limb and back pain has subsided very much, I don't have a headache or vertigo for the first time in 6 months. Anything positive is good at this point. I really think it was the massages that made the biggest change. Wanted to share my small success with you, in case you want to try it. Oh, and Serrapeptase made me so, so much sicker. I stopped it almost immediately. Good luck with this horrible disease. Do your research before you listen to me. I've had some success and would like for you to be able to say the same. I've been watching you through torturous journey. Best of luck.
Hi, lovely summary. In addition to the massage, I recomend craniosacral therapy. It is a gentle touch but work deep into the body in holistic way.. And it can help with tightness of the membrane surrounding the brain which for me is always a huge relief. Plus working deep on the nervous system which in my case has been a big thing after last Covid. Beyond my own ability to calm it down in a long run. Good luck and all the best.
Doctor for holistic health here in Germany has prescribed me hawthorn which is supposed to be good for increasing blood flow to the heart and general cardiovascular troubles. Feels positive to me.
@@ConsciousGrowing Lies doch einfach was sie schreibt? WEIßDORN. Genau so würde wahrscheinlich auch Rostkastanie, Weinrebenextrakt, Arginin, OPC, grüner Tee, schwarzer Tee ( nur Tees OHNE - bzw mit möglichst niedrigem Gehalt von - KOFFEIN ) etc etc helfen. Ist lediglich ein Supplement, das die Durchblutung anregt. Mein persönlicher Tipp: essentielle Aminosäuren, Eiweiß & Mineralstoffe supplementieren - mit den Mineralstoffen nicht übertreiben. Ggf noch etwas, das die Durchblutung anregt ( bzw etwas was bei dr Blutgerinnung hilft, wie Vitamin D und K - die zwei Vitamine nur zusammen supplementieren) und Vitamine ( die B Vitamine und C sind besonders wichtig ), falls du nicht genügend bzw ausgewogen Obst, Gemüse & tierische Lebensmittel isst. Besser kannst du deinen Körper bei der Heilung nach aktuellem Stand nicht unterstützen.
Thanks so much for this video - I’m just over my third bout of covid and have suffered with long covid previously, and I’m really struggling with chest pain at the moment. I’m finding that drinking fresh ginger, turmeric powder, black pepper and cayenne tea (if you can stomach it and take the heat!!) and foam rolling on my upper back and shoulder blades, to open up the chest, is helping alleviate symptoms for a good couple of hours. Also recommend a book called ‘Breathe’ which looks at ways to improve our respiratory. Good luck to everyone on the road to recovery - I feel your pain 🫠
A really useful video and echoes my own experience. Quercetin/Vit C high dose helped me best as anti-histamine, rather than medication. I think your statement that it is about supporting recovery is the key. Anything we can do to support the body's healing process (as painfully slow as it is) is important. Thank you for your videos.
Interesting on your reaction to NAC... if that happened to me I did not notice. Yes I forgot to mention magnesium, which I dip in and out of. I haven't explored electrolytes yet, but I've just ordered some liquid IV and nuun tablets, which I keep hearing other long haulers mention
I have used magnesium for decades, because I get painful sensations and arrythmias in my heart otherwise. I have IBD and food allergies that cause magnesium deficiency.
I've had long covid for 2.5 years. I wasn't very sick with covid. It was like a stomach flu with loss of taste and smell. I felt better within 2 days. A few months later my health started to decline. My first symptoms were severe anxiety and depression, then heart issues, fatigue, pots, head pressure. Pressure behind my eyes, ears, and the roof of my mouth. Gagging and throwing up for no reason. No stomach pains or nausea. I think my brain was swollen. Now I only have brain fog and some heart issues left. One thing I noticed is I can't tolerate car emissions. If I ride in a brand new car I'm ok. In an older car I feel dizzy and like I'm going to pass out. Anyone notice any sensitivities to car emissions like me?
Thanks for your reply! 🙏 And the antibiotics certainly helped with everything, because I think you have inflammation in the body in post-covid and therefore you get anxiety and depression, never before in my entire 44-year-old life i had it! Live in Sweden 🇸🇪
@@bellarazza2413 Me too, I am also 44. You could also look into antiviral herbs. They are starting to believe that long covid is actually viral persistence. Even though it is not detected in the nose, they have found it in other body system. A functional med dr. Would know what herbs to try.
Since having covid last April I have had 2 problems: almost continuous headaches and sleep problems. I found NAC to be as good as paracetamol for reducing my headaches. A 600 mg NAC capsule usually works for me for about 10 hours. I use magnesium to help sleeping but I had problems getting the dosage right. If I take too much (more than 100 mg/day) I can be sleepy during the following day as well.
Thank you for posting this. I caught COVID back in August this year. Almost been at a stand still with hardly any improvement for 2 months. Pushing myself to this limit and my muscles were cramping at night. Tried the QI Ribose you recommended. I've recommended it to others as it's been so good for me, I've ordered more off Amazon to keep me picked up ✌️🥰🇬🇧
I've gone to a low histamine diet. CoQ10,B 50,D,Allegra, and benadryl at night if I have a bad day ,probiotic I haven't used any antacids bc they can effect absorbtion.Also Pacing when I'm bad I journal my steps in a day to help with post exertional malaise.
I take ubiquinol How many steps can u get in before you crash ? I'm at about 150-250 it sucks , it feels like something is wrong with my heart my chest hurts, I cant see have trouble breathing and talking I have to lay down for a hr or so before I snap out of it . Long covid sucks . 10 months in . But I never fully recovered from my first initial infection in feb 2020
I have had covid for 8 months, despite of four covid-vaccinations. I´m taking an enzyme called DAO, diamine oxidase, made of kidney extract from pigs. It has helped a lot against my itchy covid rash (MCAS activation) on the inside of my arms and on my back.
Would you mind listing the brands you use for each supplement, or include links to them in the description? Since the quality/type is important, and I’d have no idea really where to start
Thanks for delivering all these details about long covid. I have been straggling with long covid for about 2 years now and I have not started any medication yet because I did not know where to start, with a lot of physical exercise and right diet , Most of my physical activities come back normal. however , my brain fog and memory decline is still very bad, any suggestions for neurological symptoms of long covid.
Glad you've been able to improve a lot of your physical symptoms. I'm sorry about the cognitive issues, but it's not something I can help with as haven't experienced many. If someone sees this comment and has had brain fog/ memory issues, please help Ahmed out with things that have helped you 😊
Not good at measuring or keeping track but after trying a lot, the ones I’ve stuck with are vit D, magnésium, B12, Melatonin and Blexten (antihistamine). My gut health is only so-so though and I’d like to start taking a probiotic. I’ve tried to make a conscience effort to eat à vider satiety of fruit/veg. Thanks for your videos.
I do yogurts and some kimchi for gut health...flccc vitamin list plus h1 , h2 blockers , but i still can't stand/sit on my own and trouble walking. Good luck on recovery.👍
Hi, I don't speak English and I have a question about the subtitles of your video. Are you talking about D Ribose as a supplement that helps you with fatigue and post-exertion discomfort?
Thanks for another super video! I take vitamin D, as advised by my doctor, like you 2. Vitamin B complex, as recommended by friends, which I give a 2.5. 2.5? They are very cheap, so if the marginal improvement is coincidence / placebo effect, fine. I give magnesium supplement a very strong 3. I go for the transdermal "oil" stuff. If I don't slather some on before bed I will wake up for halftime break much sooner than normal, and in way more pain than normal. As it helps brain and muscles it does so much for fatigue. Epsom salt baths are magnesium supplement in strong form, imo. Epsom salt and magnesium oil can be found for a fraction of price of high street chains, where the markup is ouch. Overall a huge difficulty is that supplements are poorly regulated in UK. I find it so ... adjective that we are left guessing and dabbling like this. Meanwhile, I have not yet felt up to trying the yoga nidra, but have doubled down on breath work through a challenging week, so okay! ♡
Ooh very interesting on the magnesium side of things - I didn't realise that it comes in oil and gel form. I will order some to use before bed. I have tested out using it in pill form and did not notice much. I hope your weekend is less challenging than your week has been 💛
@@naimaella I have tried 2 different suppliers each of magnesium oil and Epsom salt on eBay, all fine correct stuff, and like less for a litre than what H&B charge for 200mL. I hope it works as well for you!!!!!!
Ive had good experiences with vitamine E for fatigue and to a lesser extent vitamine C (500mg). Also sodium butyrate has helped me with digestion and IBS issues.
Hallo naima thanks alot. I started try phyto- v and your gut.! It’s helping me my fatigue .am taking it since last Sunday and I can see a change. I bought in Amazon but the probiotic made from England 🏴.greeting from Germany 🇩🇪
Thanks so much, Sadna! I'm going to look into this as definitely have not yet found exactly what I need for gut health. I hope you're having a good day 🙂
@@naimaella ur welcome naima, Since 13 month now struggling with fatigue and gut issues nothing helps me, but really am so happy now. I even feel the blood flowing in my body. But let me not celebrate 🎉 early 😊
I would strongly suggest trying Ivermectin. It took about 2 weeks of following the protocol, but I am now feeling so much better. I'm still careful a month later. But my bad days now are what my good days felt like before the protocol. I honestly didn't think it would work, but I was desperate and willing to try anything.
This is great info thank you for sharing. I have been recovering from covid and I take most, but not all of what you suggest. I believe they have helped I also take a baby aspirin a day for any unknown mini clots. Now that was suggested by my med. professional and anyone should get consult from their own dr before taking. Mostly for Me I work part time right now, and when malaises kicks in I go to bed and rest, try to get a little sun, eat a balanced diet, stay away from processed foods, and eat Whole Foods in natural state. I also drink chamomile tea, along with other teas, I incorporate tymne herb, which is helpful for the lungs, antihistamine daily, try to be mindful of eating anti histamine foods, keep stress low, that includes emotional stress. It all seems to be helping. It's been a slow recovery but since I have learned all of the above I have noticed my recovery is speeding up. Anyways hope my info can help someone out there. Good luck guys
Thank you Naima for taking us with your journey thru your long covid. I can only imagine how hard it must have been for you. Glad you're getting better. I am one of your newest subscribers, I am also going thru long covid since I had covid in July of this year. Interestingly I started having all these symptoms in Sept, it has been life altering. I read in one of your videos comments that you had internal vibrations and tremors. Can I pls ask you do you still have those? Or did it go away? How long did it last? Did you take something for it? Glad to hear that you're getting better. Hoping to hear from you.
On the tremors/vibrations, I had those. At the start of my long covid experience (Jan 21) they were almost unbearable, shaking all night and not sleeping. Utterly awful. It eventually calmed down a bit, and then calmed down further when I started taken transdermal oestrogen, which I guess might be useful for women but not men. I still get the tremors in the morning if I have not slept well or if I am very tired or have just done too much (which, at this stage, is not very much). But it is more manageable and not for hours at a time. I hope you see improvements.
Hi welcome 🙂. Thanks it's a slow process, but there's a lot more information out there now thankfully. Yes for me the tremors in my chest went away with time. They're such a frightening symptom and now I only have them very very occasionally (similar to Anna it's when I've overdone it quite a bit). For me I had them every few days for six months to a year and then they slowly phased out as I introduced pacing and slowed my life down.
I have this really bad. I feel like im dying . I can tell when its bad , its around my period and ovulation. I feel like my skin is burning , i feel shakey ,extreme weakness, horrible nausea reflux , constipation, hormomal.issues. blood pressure , sugar problems ,vein problems ,legs turn blue ,fingers swell , brain swelling, huge amounts mucus in the lungs .
my chest pulls anytime I try to use my Phone,PC,or Tv or Even go outside into the light please help this chest pains stop my life I can't do much now since long covid.... HELP especially with the chest pains
Can you comment. On the panic feeling we get ? Anything help ? The over whelming shakey weakness feeling ? My daughter is having heart issues with this .any comment on chest palpitations or abdominal palpitations? Me and all 3 of my kids have it . I think it started for us with Delta .my skin feels like its burning alot.
My best guess is that your issues are from 1. Mitochondrial Dysfunction (oxygen not getting to cells along with lipid/metabolic issues as a result.. This also triggers clotting factors like hyper platelet aggregation and micro clots. 2. Autoimmune (GPCR Auto Antibodies) G Protein Couple Receptor Auto Antibodies… MANY of us are dealing with this. BC007 is the only cure for that.
Its true bc 007 i think will help many of us. They have already started study here in Germany 🇩🇪 I hope soon 🔜 they will help us all .am waiting for this because trying to many things gonna hurts us.
Thanks for sharing your insight. I've not come across BC007 - is it being offered anywhere for Long Covid sufferers? Or can you link any trials that are going on?
Black seed oil from Healths Harmony...For long covid im taking Sacred 7 mushroom extract, glutathione topical cream at night, nac, megaviron from microbiome labs, black seed oil, natures craft liver support, sunergetic kidney cleanse, vitamin d ,c ....Also you need to incorporate water fasting (no food), but start small..Fast for 1 day a week for the first month..Then gradually increase as you understand your body...Same with the supplements...Take Dr berg electrolyte powder when water fasting...
@@jessemendoza2991 Since January 2022...You could also try Star Anise tea with Fennel tea together with prunella vulgaris drops...It supposedly blocks the spike proteins from Ace 2 receptors in your body...Tried it but the detox was to intense ,causing me to have anxiety..When you detox to fast you'll feel the anxiety come on strong...Just start the regimen and fasting gradually, go slow or stop if you have to and start again when you feel like you can handle it...Thats the key..
Doctors have no clue about this. I am at my eight covid pneumonia, I am a mess, y digestion is a mess, my brain does not work, I am suffocating for almost two years... I keep making covid pneumonia... every month a new one.
I got paxlovid even though I wasn’t suffering from acute covid. Did this in the states. Not a supplement but it took away my chest pain, light sensitivity and most of my headaches by the second day. Took two courses back to back over 10 days. Hope they start researching antivirals like this soon for all our sakes. Baby aspirin has helped a lot of my joint pain and strangely some of my breathlessness. Im also taking it with Lumbrokinase and nattokinase. Fexofenadine plus famotidine seems to really help but I take them an hour apart. Notice this helps my aches and my post covid reflux. Supplement wise, I find probiotics, prebiotic inulin, acerola powder in waterfor vit C, flax+chia+hemp powder in smoothies really helps my digestion. I take vit d3 and b12 as well as turmeric with piperine and Ginger. Fish oil I take as well. Beano really helps control gas and bloating I find. Melatonin and magnesium taurate at night for sleep and chest pain. The magnesium really helped my pain I noticed. If I miss it it seems to come back. Medication wise, I’m looking forward to starting low dose naltrexone and Mestinon soon. They both seem to have recent studies supporting their use in me/cfs, long covid and pots.
I’m only on month 4 of this experience and main problems are POTS, severe PEM and shortness of breath. Still have some sensory issues but milder since the paxlovid I took. Pretty disabled and limited to the bed 95 percent of the day.
Thanks for providing so much detailed information - this is really useful! Interesting you used Paxlovid and magnesium taurate for chest pain - nothing has managed to get rid of mine despite being on beta blockers and colchicine… Yes there have been some really interesting studies on LDN and mestinan recently - I hope they help you. We have quite similar symptoms! Month four was really tough for me, but things started to improve at the 6 month mark (even if I couldn't tell at the time). Hang in there and find ways to calm your nervous system - Yoga Nidra, breathwork, meditation. Looking back it took me so long to get out of fight or flight and allow my body to heal, but since doing that I'm more comfortable and have to hope my recovery will speed up. I hope you start to see some improvements soon 😊.
@@naimaella sorry to hear about your ongoing chest pain. it really is one of the most uncomfortable/unpleasant pains I’ve experienced ever. My “laying down” chest pain is gone but I still get a chest pain if I’m upright for too long (it fades after laying down with my feet up). Not sure of the exact cause but I read about there being “preload failure” in me/cfs and pots, which sounds like the heart doesn’t get enough blood being returned to it when upright or during exertion, resulting in some of the symptoms of exercise and orthostatic intolerance. This is at least what Systrom argues in his study on me/cfs and Mestinon. This may just me psyching myself out before starting a medication in hopes of having a good experience. I’ll keep you posted on how my Mestinon experience goes! I have a friend (in her 30s and previously healthy) who was prescribed colchicine after being diagnosed with gout and myocarditis post covid. It sounds like it helps her but she still struggles with on and off chest pain. She recovered from the myocarditis but the gout issue still lingers. Paxlovid is strangely very easily available in the US now. I used a robo doc online service and just said I had an acute infection and was high risk and got it prescribed (this was not the case but being in LC hell I was willing to lie). This is perhaps the only perk to the Wild West American healthcare system (being able to take advantage of the lack of regulation and organization here). I wonder how many of us have viral persistence because it was amazing how rapidly I felt better despite being 3 months out from “recovering” from my acute infection and extremely unwell in the weeks prior. I went from entirely dependent on others for almost everything to being able to make simple meals for myself and shower every night. I really hope they get some trials underway on this. I’ll be going to a naturopath here which is more money than I want to spend but from other long haulers here I’ve heard they can be helpful in guiding people towards effective supplements, healing modalities and in some states (like California) can prescribe medications. There’s definitely some quackery to sift through but some are more evidence based while still being holistic. The nervous system calming work is super important. I totally agree! So far I’ve really found relief in Yoga Nidra and taking a hot shower (laying on the tub floor due to POTS) followed by 30 seconds of cold water (all I can handle for now). I tried wim hof but it felt too intense/tiring so had to give it a break. I’ve really found relief in breath work when having to be on the move (going up the stairs when coming back from an appointment). I’d like to try Susy Bolt yoga soon but will need to start out on a very low level given how vulnerable I am to crashes right now.
You must try supplement NAD+, that one is the only vitamin that has helped me better than any other medication or supplement when it comes to regain "feeling normal" during this postcov.
Taking them separately, one at a time might not be that helpful, as they work differently together. Some work synergistically, some compete for absorption.
Not that I know of. But have had slight issues with cholesterol and my liver since getting long COVID. This illness can impact people so differently though
@@naimaella sorry I meant after my infection I had long covid. Took ivermectin for 7 days. Helped to clear the spike protein out of my body which was causing my long covid symptoms.
@@naimaella recover might be they are used to their symptoms and the tolerate level might me increased example starting i could not tolerate 110 hr now i can tolerate till 150
@@prathamrballal1229No I'm speaking to people who are back to work, back to exercising and living a normal life without worrying about pots or LC. My HR used to be 120-160 bpm regularly and now it rarely goes beyond 120 bpm. I think that's an improvement
Today's a good symptom day actually. But as you know there are many ups and downs. I'd say I'm probably at 30-40% at the moment, but noticing improvements month to month for sure. Able to work a bit more, but still quite limited in terms of mobility.
Hi Naima and everybody :) Melatonin has proved to be really helpful for me. I noticed a great improvement since I´ve started taking it at night before going to sleep. Maybe it could also help you :) Wish us all a quick recovery❤🩹🥳
So very sorry you're faced with this debilitating disease, Naima. I'm going into my six month of it, and the depression seemed to hit since I've tried most of the things you have. Did want to mention that I recently started getting therapeutic body massages, taking NAC with Glutathion (6000 mg a day), Nattokinase (8000FUs per day) and Vitamin K2 (100 mcg/day along with Vitamin D, 10,000 units a day). I've done a lot of research on NAC (N-acetylL-cysteine) and there seems to be quite a bit of science backing it up. That's the entirety of supplements I take, no other drugs. I'm a vegan, if that means anything. Unfortunately, I live in the US, so we have to pay an exorbitant price for all medical treatments. I've chosen the homeopathic route to save money and not allow the medical industry use me for a lab rat. That being said, with the recent addition of the massages and the high doses of NAC, I've seen a huge difference. The limb and back pain has subsided very much, I don't have a headache or vertigo for the first time in 6 months. Anything positive is good at this point. I really think it was the massages that made the biggest change. Wanted to share my small success with you, in case you want to try it. Oh, and Serrapeptase made me so, so much sicker. I stopped it almost immediately. Good luck with this horrible disease. Do your research before you listen to me. I've had some success and would like for you to be able to say the same. I've been watching you through torturous journey. Best of luck.
Hi, lovely summary. In addition to the massage, I recomend craniosacral therapy. It is a gentle touch but work deep into the body in holistic way.. And it can help with tightness of the membrane surrounding the brain which for me is always a huge relief. Plus working deep on the nervous system which in my case has been a big thing after last Covid. Beyond my own ability to calm it down in a long run. Good luck and all the best.
Doctor for holistic health here in Germany has prescribed me hawthorn which is supposed to be good for increasing blood flow to the heart and general cardiovascular troubles. Feels positive to me.
Can you share the product you take or took?
@@ConsciousGrowing Lies doch einfach was sie schreibt? WEIßDORN. Genau so würde wahrscheinlich auch Rostkastanie, Weinrebenextrakt, Arginin, OPC, grüner Tee, schwarzer Tee ( nur Tees OHNE - bzw mit möglichst niedrigem Gehalt von - KOFFEIN ) etc etc helfen. Ist lediglich ein Supplement, das die Durchblutung anregt.
Mein persönlicher Tipp: essentielle Aminosäuren, Eiweiß & Mineralstoffe supplementieren - mit den Mineralstoffen nicht übertreiben. Ggf noch etwas, das die Durchblutung anregt ( bzw etwas was bei dr Blutgerinnung hilft, wie Vitamin D und K - die zwei Vitamine nur zusammen supplementieren) und Vitamine ( die B Vitamine und C sind besonders wichtig ), falls du nicht genügend bzw ausgewogen Obst, Gemüse & tierische Lebensmittel isst. Besser kannst du deinen Körper bei der Heilung nach aktuellem Stand nicht unterstützen.
You and your videos are way more helpful than many doctors. Thank you ✌️✌️✌️✌️💚
Wow, thank you!
Thanks so much for this video - I’m just over my third bout of covid and have suffered with long covid previously, and I’m really struggling with chest pain at the moment.
I’m finding that drinking fresh ginger, turmeric powder, black pepper and cayenne tea (if you can stomach it and take the heat!!) and foam rolling on my upper back and shoulder blades, to open up the chest, is helping alleviate symptoms for a good couple of hours.
Also recommend a book called ‘Breathe’ which looks at ways to improve our respiratory.
Good luck to everyone on the road to recovery - I feel your pain 🫠
A really useful video and echoes my own experience. Quercetin/Vit C high dose helped me best as anti-histamine, rather than medication. I think your statement that it is about supporting recovery is the key. Anything we can do to support the body's healing process (as painfully slow as it is) is important. Thank you for your videos.
And a low histamine diet made a noticeable difference.
Vit c & benedryl help me most Unvaccinated,long COVID 2021
Magnesium is helping, also lots of electrolytes, coconut water, Gatorade. And sleeping early
Interesting on your reaction to NAC... if that happened to me I did not notice. Yes I forgot to mention magnesium, which I dip in and out of. I haven't explored electrolytes yet, but I've just ordered some liquid IV and nuun tablets, which I keep hearing other long haulers mention
I have used magnesium for decades, because I get painful sensations and arrythmias in my heart otherwise. I have IBD and food allergies that cause magnesium deficiency.
I've had long covid for 2.5 years. I wasn't very sick with covid. It was like a stomach flu with loss of taste and smell. I felt better within 2 days. A few months later my health started to decline. My first symptoms were severe anxiety and depression, then heart issues, fatigue, pots, head pressure. Pressure behind my eyes, ears, and the roof of my mouth. Gagging and throwing up for no reason. No stomach pains or nausea. I think my brain was swollen. Now I only have brain fog and some heart issues left. One thing I noticed is I can't tolerate car emissions. If I ride in a brand new car I'm ok. In an older car I feel dizzy and like I'm going to pass out. Anyone notice any sensitivities to car emissions like me?
How did you get rid of the anxiety and depression? 🙏
Those were my first symptoms too and haven't gotten better a year later😢
@@bellarazza2413 My dr. Put me on antibiotics because I also had chronic lyme before covid. I think it helped with the covid too.
Thanks for your reply! 🙏
And the antibiotics certainly helped with everything, because I think you have inflammation in the body in post-covid and therefore you get anxiety and depression, never before in my entire 44-year-old life i had it! Live in Sweden 🇸🇪
@@bellarazza2413 Me too, I am also 44. You could also look into antiviral herbs. They are starting to believe that long covid is actually viral persistence. Even though it is not detected in the nose, they have found it in other body system. A functional med dr. Would know what herbs to try.
@@bellarazza2413 take curcumin and magnesium but the best one for anxiety is L theanin 100/200 mg daily
Since having covid last April I have had 2 problems: almost continuous headaches and sleep problems. I found NAC to be as good as paracetamol for reducing my headaches. A 600 mg NAC capsule usually works for me for about 10 hours. I use magnesium to help sleeping but I had problems getting the dosage right. If I take too much (more than 100 mg/day) I can be sleepy during the following day as well.
Thank you for posting this. I caught COVID back in August this year. Almost been at a stand still with hardly any improvement for 2 months. Pushing myself to this limit and my muscles were cramping at night. Tried the QI Ribose you recommended. I've recommended it to others as it's been so good for me, I've ordered more off Amazon to keep me picked up ✌️🥰🇬🇧
Brace yourself !!! I been going at it 3 years now
@@dsandman2723years,9months
NAC was the biggest help so far, but I take a very high dose, it’s quite cheap if you buy the powder in big bags.
I've gone to a low histamine diet. CoQ10,B 50,D,Allegra, and benadryl at night if I have a bad day ,probiotic I haven't used any antacids bc they can effect absorbtion.Also Pacing when I'm bad I journal my steps in a day to help with post exertional malaise.
I take ubiquinol How many steps can u get in before you crash ? I'm at about 150-250 it sucks , it feels like something is wrong with my heart my chest hurts, I cant see have trouble breathing and talking I have to lay down for a hr or so before I snap out of it . Long covid sucks . 10 months in . But I never fully recovered from my first initial infection in feb 2020
I have had covid for 8 months, despite of four covid-vaccinations. I´m taking an enzyme called DAO, diamine oxidase, made of kidney extract from pigs. It has helped a lot against my itchy covid rash (MCAS activation) on the inside of my arms and on my back.
Would you mind listing the brands you use for each supplement, or include links to them in the description? Since the quality/type is important, and I’d have no idea really where to start
Thanks for delivering all these details about long covid. I have been straggling with long covid for about 2 years now and I have not started any medication yet because I did not know where to start, with a lot of physical exercise and right diet , Most of my physical activities come back normal. however , my brain fog and memory decline is still very bad, any suggestions for neurological symptoms of long covid.
Glad you've been able to improve a lot of your physical symptoms. I'm sorry about the cognitive issues, but it's not something I can help with as haven't experienced many. If someone sees this comment and has had brain fog/ memory issues, please help Ahmed out with things that have helped you 😊
@@naimaella thank you so much 😊
Omega 3 high dose and magnesium threonate
Also if you have a holistic Dr ask for Low dose neltrexone
@@dsandman272 What dosage of omega three? Thank you
Thank you so much Naima for your brilliant videos.
Glad you're enjoying them. Hope you're doing well 🙂
Not good at measuring or keeping track but after trying a lot, the ones I’ve stuck with are vit D, magnésium, B12, Melatonin and Blexten (antihistamine). My gut health is only so-so though and I’d like to start taking a probiotic. I’ve tried to make a conscience effort to eat à vider satiety of fruit/veg. Thanks for your videos.
Hey Angela thanks for sharing! It seems a combination of d, b vitamins and anti histamines are working well for a lot of us 😊. Have a great day.
I do yogurts and some kimchi for gut health...flccc vitamin list plus h1 , h2 blockers , but i still can't stand/sit on my own and trouble walking. Good luck on recovery.👍
Hi, I don't speak English and I have a question about the subtitles of your video. Are you talking about D Ribose as a supplement that helps you with fatigue and post-exertion discomfort?
Yes D-ribose - I usually buy it online on amazon. For fatigue - commonly used for ME/CFS and athletes who need to recharge
Thanks for another super video!
I take vitamin D, as advised by my doctor, like you 2. Vitamin B complex, as recommended by friends, which I give a 2.5. 2.5? They are very cheap, so if the marginal improvement is coincidence / placebo effect, fine. I give magnesium supplement a very strong 3. I go for the transdermal "oil" stuff. If I don't slather some on before bed I will wake up for halftime break much sooner than normal, and in way more pain than normal. As it helps brain and muscles it does so much for fatigue. Epsom salt baths are magnesium supplement in strong form, imo. Epsom salt and magnesium oil can be found for a fraction of price of high street chains, where the markup is ouch.
Overall a huge difficulty is that supplements are poorly regulated in UK. I find it so ... adjective that we are left guessing and dabbling like this.
Meanwhile, I have not yet felt up to trying the yoga nidra, but have doubled down on breath work through a challenging week, so okay!
♡
Ooh very interesting on the magnesium side of things - I didn't realise that it comes in oil and gel form. I will order some to use before bed. I have tested out using it in pill form and did not notice much.
I hope your weekend is less challenging than your week has been 💛
@@naimaella I have tried 2 different suppliers each of magnesium oil and Epsom salt on eBay, all fine correct stuff, and like less for a litre than what H&B charge for 200mL. I hope it works as well for you!!!!!!
@@naimaella If magnesium in the pills is magnesium oxide, then the adsorption in the body is poor. Most other Mg are better.
Ive had good experiences with vitamine E for fatigue and to a lesser extent vitamine C (500mg). Also sodium butyrate has helped me with digestion and IBS issues.
Hallo naima thanks alot. I started try phyto- v and your gut.! It’s helping me my fatigue .am taking it since last Sunday and I can see a change.
I bought in Amazon but the probiotic made from England 🏴.greeting from Germany 🇩🇪
Thanks so much, Sadna! I'm going to look into this as definitely have not yet found exactly what I need for gut health.
I hope you're having a good day 🙂
@@naimaella ur welcome naima,
Since 13 month now struggling with fatigue and gut issues nothing helps me, but really am so happy now. I even feel the blood flowing in my body. But let me not celebrate 🎉 early 😊
God bless you all thanks again naima.
Have a great day 😊☀️
I would strongly suggest trying Ivermectin. It took about 2 weeks of following the protocol, but I am now feeling so much better. I'm still careful a month later. But my bad days now are what my good days felt like before the protocol. I honestly didn't think it would work, but I was desperate and willing to try anything.
Liquid or tablets ?
This is great info thank you for sharing. I have been recovering from covid and I take most, but not all of what you suggest. I believe they have helped I also take a baby aspirin a day for any unknown mini clots. Now that was suggested by my med. professional and anyone should get consult from their own dr before taking. Mostly for Me I work part time right now, and when malaises kicks in I go to bed and rest, try to get a little sun, eat a balanced diet, stay away from processed foods, and eat Whole Foods in natural state. I also drink chamomile tea, along with other teas, I incorporate tymne herb, which is helpful for the lungs, antihistamine daily, try to be mindful of eating anti histamine foods, keep stress low, that includes emotional stress. It all seems to be helping. It's been a slow recovery but since I have learned all of the above I have noticed my recovery is speeding up. Anyways hope my info can help someone out there. Good luck guys
Thank you Naima for taking us with your journey thru your long covid. I can only imagine how hard it must have been for you. Glad you're getting better. I am one of your newest subscribers, I am also going thru long covid since I had covid in July of this year. Interestingly I started having all these symptoms in Sept, it has been life altering. I read in one of your videos comments that you had internal vibrations and tremors. Can I pls ask you do you still have those? Or did it go away? How long did it last? Did you take something for it? Glad to hear that you're getting better. Hoping to hear from you.
On the tremors/vibrations, I had those. At the start of my long covid experience (Jan 21) they were almost unbearable, shaking all night and not sleeping. Utterly awful. It eventually calmed down a bit, and then calmed down further when I started taken transdermal oestrogen, which I guess might be useful for women but not men. I still get the tremors in the morning if I have not slept well or if I am very tired or have just done too much (which, at this stage, is not very much). But it is more manageable and not for hours at a time. I hope you see improvements.
@@Anna-if8tc Thank you for your comment. Glad you're better.
Hi welcome 🙂. Thanks it's a slow process, but there's a lot more information out there now thankfully.
Yes for me the tremors in my chest went away with time. They're such a frightening symptom and now I only have them very very occasionally (similar to Anna it's when I've overdone it quite a bit). For me I had them every few days for six months to a year and then they slowly phased out as I introduced pacing and slowed my life down.
@@naimaella Thank you Naima for your reply.
How would you describe the chest tremors? as a throbbing of the chest/abdomen? I believe I have this
I have this really bad. I feel like im dying . I can tell when its bad , its around my period and ovulation. I feel like my skin is burning , i feel shakey ,extreme weakness, horrible nausea reflux , constipation, hormomal.issues. blood pressure , sugar problems ,vein problems ,legs turn blue ,fingers swell , brain swelling, huge amounts mucus in the lungs .
my chest pulls anytime I try to use my Phone,PC,or Tv or Even go outside into the light please help this chest pains stop my life I can't do much now since long covid.... HELP especially with the chest pains
Ah I'm so sorry. The chest pains are so awful. I really hope it starts to improve for you soon 💛
Can you comment. On the panic feeling we get ? Anything help ? The over whelming shakey weakness feeling ? My daughter is having heart issues with this .any comment on chest palpitations or abdominal palpitations? Me and all 3 of my kids have it . I think it started for us with Delta .my skin feels like its burning alot.
Lactofferin
help me with gut issue from long covid❤
My best guess is that your issues are from 1. Mitochondrial Dysfunction (oxygen not getting to cells along with lipid/metabolic issues as a result.. This also triggers clotting factors like hyper platelet aggregation and micro clots. 2. Autoimmune (GPCR Auto Antibodies) G Protein Couple Receptor Auto Antibodies… MANY of us are dealing with this. BC007 is the only cure for that.
Its true bc 007 i think will help many of us. They have already started study here in Germany 🇩🇪 I hope soon 🔜 they will help us all .am waiting for this because trying to many things gonna hurts us.
Thanks for sharing your insight. I've not come across BC007 - is it being offered anywhere for Long Covid sufferers? Or can you link any trials that are going on?
Thanks for the potential lead. Here's a couple for you. Methylene blue and PQQ.
Intravenous ozone and PEMF will work alot better.
for brain try Brahmi and ashwaganda and try coffea cruda for sleep homeopathy
The chest pain, is it located on the right side of sternum?, I still have issues with that.
Ah it's such a pain! For me it's right in the centre - maybe slightly right, but not noticeably.
Black seed oil
Tried it worked pretty 👍...Fatigue was lesser..Workout endurance increased also..
@@dang2954 which brand? Oil or the supplement?
Black seed oil from Healths Harmony...For long covid im taking Sacred 7 mushroom extract, glutathione topical cream at night, nac, megaviron from microbiome labs, black seed oil, natures craft liver support, sunergetic kidney cleanse, vitamin d ,c ....Also you need to incorporate water fasting (no food), but start small..Fast for 1 day a week for the first month..Then gradually increase as you understand your body...Same with the supplements...Take Dr berg electrolyte powder when water fasting...
@@dang2954 How long have you had long covid for? Thanks for the info.
@@jessemendoza2991 Since January 2022...You could also try Star Anise tea with Fennel tea together with prunella vulgaris drops...It supposedly blocks the spike proteins from Ace 2 receptors in your body...Tried it but the detox was to intense ,causing me to have anxiety..When you detox to fast you'll feel the anxiety come on strong...Just start the regimen and fasting gradually, go slow or stop if you have to and start again when you feel like you can handle it...Thats the key..
What probiotic did you use
Which probiotic are you taking
Doctors have no clue about this.
I am at my eight covid pneumonia, I am a mess, y digestion is a mess, my brain does not work, I am suffocating for almost two years... I keep making covid pneumonia... every month a new one.
I got paxlovid even though I wasn’t suffering from acute covid. Did this in the states. Not a supplement but it took away my chest pain, light sensitivity and most of my headaches by the second day. Took two courses back to back over 10 days. Hope they start researching antivirals like this soon for all our sakes.
Baby aspirin has helped a lot of my joint pain and strangely some of my breathlessness. Im also taking it with Lumbrokinase and nattokinase.
Fexofenadine plus famotidine seems to really help but I take them an hour apart. Notice this helps my aches and my post covid reflux.
Supplement wise, I find probiotics, prebiotic inulin, acerola powder in waterfor vit C, flax+chia+hemp powder in smoothies really helps my digestion. I take vit d3 and b12 as well as turmeric with piperine and Ginger. Fish oil I take as well. Beano really helps control gas and bloating I find.
Melatonin and magnesium taurate at night for sleep and chest pain. The magnesium really helped my pain I noticed. If I miss it it seems to come back.
Medication wise, I’m looking forward to starting low dose naltrexone and Mestinon soon. They both seem to have recent studies supporting their use in me/cfs, long covid and pots.
I’m only on month 4 of this experience and main problems are POTS, severe PEM and shortness of breath. Still have some sensory issues but milder since the paxlovid I took. Pretty disabled and limited to the bed 95 percent of the day.
I appreciate your videos so much! Really helpful to hear the experiences of others in this recovery process
Thanks for providing so much detailed information - this is really useful!
Interesting you used Paxlovid and magnesium taurate for chest pain - nothing has managed to get rid of mine despite being on beta blockers and colchicine…
Yes there have been some really interesting studies on LDN and mestinan recently - I hope they help you.
We have quite similar symptoms! Month four was really tough for me, but things started to improve at the 6 month mark (even if I couldn't tell at the time). Hang in there and find ways to calm your nervous system - Yoga Nidra, breathwork, meditation. Looking back it took me so long to get out of fight or flight and allow my body to heal, but since doing that I'm more comfortable and have to hope my recovery will speed up.
I hope you start to see some improvements soon 😊.
@@naimaella sorry to hear about your ongoing chest pain. it really is one of the most uncomfortable/unpleasant pains I’ve experienced ever. My “laying down” chest pain is gone but I still get a chest pain if I’m upright for too long (it fades after laying down with my feet up). Not sure of the exact cause but I read about there being “preload failure” in me/cfs and pots, which sounds like the heart doesn’t get enough blood being returned to it when upright or during exertion, resulting in some of the symptoms of exercise and orthostatic intolerance. This is at least what Systrom argues in his study on me/cfs and Mestinon. This may just me psyching myself out before starting a medication in hopes of having a good experience. I’ll keep you posted on how my Mestinon experience goes!
I have a friend (in her 30s and previously healthy) who was prescribed colchicine after being diagnosed with gout and myocarditis post covid. It sounds like it helps her but she still struggles with on and off chest pain. She recovered from the myocarditis but the gout issue still lingers.
Paxlovid is strangely very easily available in the US now. I used a robo doc online service and just said I had an acute infection and was high risk and got it prescribed (this was not the case but being in LC hell I was willing to lie). This is perhaps the only perk to the Wild West American healthcare system (being able to take advantage of the lack of regulation and organization here). I wonder how many of us have viral persistence because it was amazing how rapidly I felt better despite being 3 months out from “recovering” from my acute infection and extremely unwell in the weeks prior. I went from entirely dependent on others for almost everything to being able to make simple meals for myself and shower every night. I really hope they get some trials underway on this.
I’ll be going to a naturopath here which is more money than I want to spend but from other long haulers here I’ve heard they can be helpful in guiding people towards effective supplements, healing modalities and in some states (like California) can prescribe medications. There’s definitely some quackery to sift through but some are more evidence based while still being holistic.
The nervous system calming work is super important. I totally agree! So far I’ve really found relief in Yoga Nidra and taking a hot shower (laying on the tub floor due to POTS) followed by 30 seconds of cold water (all I can handle for now). I tried wim hof but it felt too intense/tiring so had to give it a break. I’ve really found relief in breath work when having to be on the move (going up the stairs when coming back from an appointment). I’d like to try Susy Bolt yoga soon but will need to start out on a very low level given how vulnerable I am to crashes right now.
@@naimaella sorry for the information dump. Wishing you well on your long covid healing journey!
Coq10 really helps and magnesium
B12 injections- nothing 0/3
Wow magnesium seems to be helping a lot of people. Not come across Coq10 I'll look into it...
Nothing helped me so much and faster than creatine
You must try supplement NAD+, that one is the only vitamin that has helped me better than any other medication or supplement when it comes to regain "feeling normal" during this postcov.
Thanks for the suggestion - do you have a particular brand that you recommend?
@@naimaella Since I am in Scandinavia you guys dont have this brand where u are. But as long as it is clean NAD+.
You take Cocuima? Or what is it? With ginger and black pepper... Thank you so much :)
Curcuma, which is found in turmeric 😊
@@naimaella thank you, thank you 🙏🏽 that sounds tasty. Love those flavors combined 👏🏽☺️
Really helpful info
Thanks Dom 🙂
Taking them separately, one at a time might not be that helpful, as they work differently together. Some work synergistically, some compete for absorption.
Probiotics is helping me recover
Make sure it has Bifidobacteria
I'm on the same path !...
Did/Do you have pancreas issue's ?...
Not that I know of. But have had slight issues with cholesterol and my liver since getting long COVID. This illness can impact people so differently though
NAC gives me severe chest tightness
Ivermectin helped me. 7 days.
As in seven days after your infection or you took it for seven days and your symptoms were relieved?
@@naimaella sorry I meant after my infection I had long covid. Took ivermectin for 7 days. Helped to clear the spike protein out of my body which was causing my long covid symptoms.
@christopherallen3828 I've heard its nearly impossible to get it out there. Im so sorry.
@AnaloguedialogYou may try a local veterinarian for ivermectin. It is a wormer normally used for animals. Hope this helps.
How is ur pots now
I'd say it is managed, but not "cured" with medication, compression clothing and staying hydrated. What about you?
@@naimaella it's not curable we can manage it for our whole life
@@prathamrballal1229 How do you explain people who have recovered?
@@naimaella recover might be they are used to their symptoms and the tolerate level might me increased example starting i could not tolerate 110 hr now i can tolerate till 150
@@prathamrballal1229No I'm speaking to people who are back to work, back to exercising and living a normal life without worrying about pots or LC. My HR used to be 120-160 bpm regularly and now it rarely goes beyond 120 bpm. I think that's an improvement
Sorry for my English
Not at all - it was very clear
@@naimaella am trying.
Every score I’d score the same but pro-biotics - for me that’s a 2
How are you today? How close you get to 100%? I still got long COVID. Tremor and some organ sick. 😂
Today's a good symptom day actually. But as you know there are many ups and downs. I'd say I'm probably at 30-40% at the moment, but noticing improvements month to month for sure. Able to work a bit more, but still quite limited in terms of mobility.
I lost a lot after COVID. I lost businesses, health, and I got divorced. What can I do now?
It can get to the point where you rattle as you walk along.
😂😂😂
Don't need a dissertation; rather real information or why post?
Hi Naima and everybody :)
Melatonin has proved to be really helpful for me. I noticed a great improvement since I´ve started taking it at night before going to sleep. Maybe it could also help you :)
Wish us all a quick recovery❤🩹🥳