It is so interesting to me that folks seems to have their Long Covid taken seriously, and yet I have had CFS for 23 years and have not had any help what so ever from any medical professional. In fact if anything they have made me worse,. A blessing came out of LC, sad as it is for people with it, as it has the same symptoms as CFS and loads of talk abt LC now and people getting better. Must be the numbers of people getting it - just cannot be ignored I guess in these numbers - where as CFS/ ME - I have been completely dismissed as "just stressed" or "just depressed" but extremely debilitatingly sick, saying :something else must be going on here ", with a husband and young children. It has been nothing short of devastating to my life and robbed them of the partner and Mum I should have been . ( I am not in UK)
You are very right - when millions present with these symptoms there has to be a mindset change in the medical world. However some still are not being taken seriously by some old school medics and the devastation is as you know, very real. I’m so sorry this has been your story.
This is such a heartwarming webinar. The positivity, and the important sense of community shared was lovely and left a smile on my face. But also, the importance of being aware of our thoughts, anxieties and how we can calm our nervous system using the breath. All contributing to our recoveries. Thanks for boosting my spirits.
I had a think yesterday about the qualities you possess Susie, and you have many!! You are humble, kind, genuinely caring and have so much empathy! You could have went on your own journey and never given others a second thought, but that doesn’t seem to be your character and I thank you for that! As you give us something incredibly important…HOPE…when many of us feel we have none 💜
So inspirational! TY Joe for sharing your story. And TY Suzy Bolt for helping so many. I too was introduced to your videos and they helped my recovery!
Thanks very much, the new videos with such a positive attitude towards recovery are really helpful. Im going to try your program. Kindest Regards from Vancouver, Canada
Thank you so so much for this story of hope, I’m these uncertain times. I will be looking into your program Susie. I started watching this feeling stressed and anxious and left with a smile and a heart full of hope.
AWESOME! I feel so empowered now! I didn’t get Covid but I am helping family and friends. Gez led me to you! Speechless thanks to Dr Li as well WOW WOW WOW
I'm at 2 and a bit years and still v poorly, but Ive also had mh problems and chronic stress for decades. In the first year I got a lot out of breathing and tapping, and binaural beats when decoding speech was too much, so hope this will be good...
Amazing video! I will be doing Suzy’s yoga. Currently doing dnrs brain training and have noticed improvement and Breathwrk! I have insomnia and pots from long covid. Thank you Dr lim
@@suzyboltyogaforlongcovid Are you able to talk on the phone? I would like to hear about your story. Mine started in november I had to quit my job and school in febuary
Thank you so much for this shared experience! I have been through several ups and downs for the past 24 months..It has been disappointing and disheartening living such a debilitating condition for so long..when our nature to be very active.. It was really good to hear you 💚 I guess I will have to keep going doing 10min meditation and breathing, 2 -3 x times a day and just keep believing one day the body will calmly go back to normal autonomic system functioning. I won’t try Yoga again as my body reacted so badly with the adrenaline in the past. A very good book that explains about Autonomic System written by Raymond Perrin, that explains the whole physiology of what happens to our body when the virus reaches our hypothalamus and overrules our autonomic system. It has decades of knowledge built up by several Specialists. It is a great educational tool. Highly recommend it too! Thank you for the bottom of my heart for your shared experiences ♥️ P.S.: Would a GP be able to refer long covid patients to an autonomic disorder specialist clinic so we can do these autonomic system tests? Sometimes it feels difficult to tell a GP what to do, because they will have their own perceptions and might don’t be aware of it either. As this field is such a niche specialised area of the human body. I already take Ivabradine because my heart was 177bpm just from sitting up, the symptoms that this tachycardic status brings in us is unnatural. So a Cardiologist kindly helped with that after 24h ECG tape to proof I had Sinus tachycardia but no tests were done to the autonomic system at the time. At the time it wasn’t talked about, the focus were on ICU and staffing pressures as you all may remember. All I know it’s from my own search for solutions to heal. I would be most thankful if you could help with this question please. 🙏
I am a 2,5 years long covid sufferer, and my tachicardia improuved with magnesium orotate (Magnerot), that I am taking daily. Also, drinking cellery juice (Anthony Williams protocol) have done miracles for me. I have a mild pericarditis, too, discovered just a few weeks ago, but this condition is there for a long period of time. It's dissapointing that cardiologists did not see it before... I think it's a cronic condition now...
@@raymalilian2619 you take cellery and juice it, than strain the liquid and drink first thing in the morning, empty stomach. Eat after 30 minutes minimum. First, the taste is horrible, but it becomes better in a couple of weeks. Have a good healthy life!
You'll be ok. I fought that for 2 years. Got it back in 2020 and symptoms started month later which got debilitating. Made unlimited visits to different doctors but nothing helped. What helped was getting fired from my job which gave me body time to rest. So rest is what you need. Remember, quit alcohol if you drink and don't do any strenuous exercise or go to gym. It will cause relapse and you don't want that. As for the brain fog and anxiety, you will have episodes, like said in video breathwork can help with that. Not the easiest thing to do but know that it will reduce and eventually go away. I can tell this from my experience. Good luck on your recovery.
This is great and very interesting. I would say however that a huge barrier to working in this way is not being believed by doctors which is the situation for many/most of us who are suffering from post vaccine symptoms. POTS and other facets of dysautonomia, fatigue and various neuropathies plague many of us but generally we are psychologised or given a diagnosis of FND. This makes us very triggered by anything which even hints at using the mind to recover. Sad but true - I see it a lot in the online groups I visit. Personally I do what I can - as a long-term meditator I know how the control of mind and breath facilitates general health. That and gentle exercise keep me from falling into a hole but 22 months on I am still unable to work or live a full life and that stinks.
Kia Ora, I am a long covid patient from New Zealand. I had the symptoms like POTS, diarrhea and anxiety for two months. Still, suffering from the symptoms. My cardiologist checked my heart, all the checks looks all normal. Feel very frustrated, any possible, can I make a online appointment with Dr. Lim?
I am a bit miffed by the world that we are all are more convinced by well-spoken white men like Joe and Gez describing their illness despite over 75% of Long Covid sufferers being (mostly highly intelligent!) women, but I'll get over it if it means the message is getting out there louder and clearer. Thank you Joe and Dr Lim. Suzy, you are a legend. Much love, Hannah x
My next interview is with a female. It’s adds power to the story if we can also include a doctor who has treated them too! It takes a combination of medicine and self guided work to get us through much of this. Xx
I think being taken seriously by your doctor (and in this case being praised by your doctor) is so healing, and so unavailable to many is us, so it can be a bit upsetting to see someone else getting that validation. And I think my GP minimises me and takes me less seriously because I’m a woman. I was referred to a cardiologist for POTS, and they wrote back and told me to drink more water. It’s not that I want pills, I totally believe in calming my nervous system being the solution. But it sends such a clear message that I don’t matter, and that is upsetting to my nervous system, and I have to work really hard to overcome that (without any praise or validation). Still a really helpful video though.
Take it as a compliment, they can’t help you these doctors, YOU can only heal youre self, If there was something really wrong with you the doctors would find it and tell you
Hi Suzy, I think it's sort of implied but are these success stories also experiencing PEM or PESE and gotten a relief over time practicing your program?
On the top-3 tips from both of you you are mentioning "basic understanding on whats going on in the body" and says there is information out there. Do you mind tell me where is this information and what is going on? Thanks for a good video.
Just in case you are still looking for info, i found this video really helpful in explaining how the body is reacting in autonomic dysfunction and Dr Lim gives some advice on possible ways to help symptoms. th-cam.com/video/K0ktH5CXy2I/w-d-xo.html
Can anyone point me towards stories of recovery for young people with severe pots who have had it a long time ? My daughter us nearly 12 and has been ill from 5 yrs of age. I don't see any hope in the post viral stories. She isn't getting better no matter what I do.
Does she have joint Hypermobility? Ehlers Danlos? Any neuro diversity at all? These conditions are very linked to POTS and are worth crossing off the list at least. I’m so sorry that your 12 year old is having to deal with this - I have a 12 yr old boy and I can’t even imagine how upsetting it must be for you all. ❤️
Check out Whole Body Healing with Jen. She has interviewed some people who've had pots since a young age and overcome it. She focuses on root cause. There is hope!
I just found your site a few days ago. I'm not sure if the algorithm picked up on the fact that I listened to a recovery story that you did with a woman from BC where I live. I would agree with JacquiQ that those of us who have been struggling with ME for many years are sad that it has stolen a deal of our lives and been a long time coming but, in my case, heartened that there is more help on the net now - in a way thanks to long covid. I give thanks and blessings to all that are offering hope where there has been little for a very long time.
If you have something like join Hypermobility syndrome or Ehlers Danlos syndrome then you may well find POTS follows you through life on and off. But yes, we can manage it well enough to recover a normal life.. xx
@@suzyboltyogaforlongcovid thanks..why is it so hard to find them?..I have bad fatigue now 6 months..I'm a single fulltime dad..I have to push through and work as i have no safety net..its been hell
@@stanleysteamer3212 There are a few great sources of recovery stories: 1. LongHaulersRecovery reddit page 2. There is a Covid Longhaulers Discord where they have a recovery stories only channel 3. I've heard about a Slack group called Body Politics where you might find recovery stories.
@@stanleysteamer3212 I guess once people are better they leave the support groups and get on with their lives. I have been working with people since sept 2020 and know loads of people who have recovered and gone back to life. Your story is hard, always having to push through. All you can do is work to calm the nervous system with something every day and reduce the stress response in the body.
![[LIVE] : ONE ลุมพินี 63 วันนี้!! คู่เอก "ยอดภูผา vs โซเนอร์"](http://i.ytimg.com/vi/RGVmBsegKEI/mqdefault.jpg)
It is so interesting to me that folks seems to have their Long Covid taken seriously, and yet I have had CFS for 23 years and have not had any help what so ever from any medical professional. In fact if anything they have made me worse,. A blessing came out of LC, sad as it is for people with it, as it has the same symptoms as CFS and loads of talk abt LC now and people getting better. Must be the numbers of people getting it - just cannot be ignored I guess in these numbers - where as CFS/ ME - I have been completely dismissed as "just stressed" or "just depressed" but extremely debilitatingly sick, saying :something else must be going on here ", with a husband and young children. It has been nothing short of devastating to my life and robbed them of the partner and Mum I should have been . ( I am not in UK)
You are very right - when millions present with these symptoms there has to be a mindset change in the medical world. However some still are not being taken seriously by some old school medics and the devastation is as you know, very real. I’m so sorry this has been your story.
Thank you for posting a recovery story these are hard to come by and much needed
This is such a heartwarming webinar. The positivity, and the important sense of community shared was lovely and left a smile on my face. But also, the importance of being aware of our thoughts, anxieties and how we can calm our nervous system using the breath. All contributing to our recoveries. Thanks for boosting my spirits.
I had a think yesterday about the qualities you possess Susie, and you have many!! You are humble, kind, genuinely caring and have so much empathy! You could have went on your own journey and never given others a second thought, but that doesn’t seem to be your character and I thank you for that! As you give us something incredibly important…HOPE…when many of us feel we have none 💜
Thank you! I really needed to hear that. I’ve been positive most of the time, but my recent relapse, really sent me back.
So inspirational! TY Joe for sharing your story. And TY Suzy Bolt for helping so many. I too was introduced to your videos and they helped my recovery!
Thank you for posting a recovery story. I just found Suzy and am in my healing journey. God Bless You all 🙏🏼
well done Joe!!!
Thanks very much, the new videos with such a positive attitude towards recovery are really helpful. Im going to try your program. Kindest Regards from Vancouver, Canada
This was an amazing example. I struggle with long covid but started doing yoga once in the AM and once before bed and it has helped me tremendously.
Posting about this! Check my channel
Thank you so so much for this story of hope, I’m these uncertain times. I will be looking into your program Susie. I started watching this feeling stressed and anxious and left with a smile and a heart full of hope.
AWESOME! I feel so empowered now! I didn’t get Covid but I am helping family and friends. Gez led me to you! Speechless thanks to Dr Li as well WOW WOW WOW
Great podcast, very reassuring as someone in their 20s who is experiencing this right now.
Seconded from someone not much older.
I'm at 2 and a bit years and still v poorly, but Ive also had mh problems and chronic stress for decades. In the first year I got a lot out of breathing and tapping, and binaural beats when decoding speech was too much, so hope this will be good...
Thank you for these interviews. It would be interesting to know how many of the recovery stories were vaccinated people or not.
Amazing video! I will be doing Suzy’s yoga. Currently doing dnrs brain training and have noticed improvement and Breathwrk! I have insomnia and pots from long covid. Thank you Dr lim
Mine started November 25th 21year old athlete
WOW! Going through the same thing been posting about it
Hey! Sorry to hear this. Hopefully you picked up some hope and inspiration from the interview. It really is possible to recover x
@@suzyboltyogaforlongcovid Are you able to talk on the phone? I would like to hear about your story. Mine started in november I had to quit my job and school in febuary
Thank you so much for this shared experience!
I have been through several ups and downs for the past 24 months..It has been disappointing and disheartening living such a debilitating condition for so long..when our nature to be very active.. It was really good to hear you 💚
I guess I will have to keep going doing 10min meditation and breathing, 2 -3 x times a day and just keep believing one day the body will calmly go back to normal autonomic system functioning.
I won’t try Yoga again as my body reacted so badly with the adrenaline in the past.
A very good book that explains about Autonomic System written by Raymond Perrin, that explains the whole physiology of what happens to our body when the virus reaches our hypothalamus and overrules our autonomic system.
It has decades of knowledge built up by several Specialists.
It is a great educational tool. Highly recommend it too!
Thank you for the bottom of my heart for your shared experiences ♥️
P.S.:
Would a GP be able to refer long covid patients to an autonomic disorder specialist clinic so we can do these autonomic system tests?
Sometimes it feels difficult to tell a GP what to do, because they will have their own perceptions and might don’t be aware of it either. As this field is such a niche specialised area of the human body.
I already take Ivabradine because my heart was 177bpm just from sitting up, the symptoms that this tachycardic status brings in us is unnatural.
So a Cardiologist kindly helped with that after 24h ECG tape to proof I had Sinus tachycardia but no tests were done to the autonomic system at the time.
At the time it wasn’t talked about, the focus were on ICU and staffing pressures as you all may remember.
All I know it’s from my own search for solutions to heal.
I would be most thankful if you could help with this question please. 🙏
Hi there Rayma - think of it as work - commit to it daily - nothing is more important that getting your health back.
Posting about this! Check my channel
I am a 2,5 years long covid sufferer, and my tachicardia improuved with magnesium orotate (Magnerot), that I am taking daily. Also, drinking cellery juice (Anthony Williams protocol) have done miracles for me. I have a mild pericarditis, too, discovered just a few weeks ago, but this condition is there for a long period of time. It's dissapointing that cardiologists did not see it before... I think it's a cronic condition now...
@@Anamaria-ew8lh thank you for your feedback. I will try the celery juice! What’s the recipe like?
I hope you keep getting better. Xx
@@raymalilian2619 you take cellery and juice it, than strain the liquid and drink first thing in the morning, empty stomach. Eat after 30 minutes minimum. First, the taste is horrible, but it becomes better in a couple of weeks. Have a good healthy life!
After infection a got brainfog, insomnia, depression and panick attacks which I never had before and still fighting with it
You'll be ok. I fought that for 2 years. Got it back in 2020 and symptoms started month later which got debilitating. Made unlimited visits to different doctors but nothing helped. What helped was getting fired from my job which gave me body time to rest. So rest is what you need. Remember, quit alcohol if you drink and don't do any strenuous exercise or go to gym. It will cause relapse and you don't want that. As for the brain fog and anxiety, you will have episodes, like said in video breathwork can help with that. Not the easiest thing to do but know that it will reduce and eventually go away. I can tell this from my experience. Good luck on your recovery.
How do we attend these classes live?
This is great and very interesting.
I would say however that a huge barrier to working in this way is not being believed by doctors which is the situation for many/most of us who are suffering from post vaccine symptoms.
POTS and other facets of dysautonomia, fatigue and various neuropathies plague many of us but generally we are psychologised or given a diagnosis of FND. This makes us very triggered by anything which even hints at using the mind to recover. Sad but true - I see it a lot in the online groups I visit.
Personally I do what I can - as a long-term meditator I know how the control of mind and breath facilitates general health. That and gentle exercise keep me from falling into a hole but 22 months on I am still unable to work or live a full life and that stinks.
Mine morphed into long covid with no gap
Where can I find the REPLAY please ?
Kia Ora, I am a long covid patient from New Zealand. I had the symptoms like POTS, diarrhea and anxiety for two months. Still, suffering from the symptoms. My cardiologist checked my heart, all the checks looks all normal. Feel very frustrated, any possible, can I make a online appointment with Dr. Lim?
Posting about this! Check my channel
I am a bit miffed by the world that we are all are more convinced by well-spoken white men like Joe and Gez describing their illness despite over 75% of Long Covid sufferers being (mostly highly intelligent!) women, but I'll get over it if it means the message is getting out there louder and clearer. Thank you Joe and Dr Lim. Suzy, you are a legend. Much love, Hannah x
My next interview is with a female. It’s adds power to the story if we can also include a doctor who has treated them too! It takes a combination of medicine and self guided work to get us through much of this. Xx
I think being taken seriously by your doctor (and in this case being praised by your doctor) is so healing, and so unavailable to many is us, so it can be a bit upsetting to see someone else getting that validation. And I think my GP minimises me and takes me less seriously because I’m a woman. I was referred to a cardiologist for POTS, and they wrote back and told me to drink more water. It’s not that I want pills, I totally believe in calming my nervous system being the solution. But it sends such a clear message that I don’t matter, and that is upsetting to my nervous system, and I have to work really hard to overcome that (without any praise or validation). Still a really helpful video though.
Take it as a compliment, they can’t help you these doctors, YOU can only heal youre self,
If there was something really wrong with you the doctors would find it and tell you
Can you link any of these women making videos like this for all of us?
What is the name of both the interviewers? Would like to get in contact with you both. Also the patient. Just need email or something, thanks!
How do I join!!!? Thank you, what a lovely, inspiring story.
Hi there. Ok go to www.360mindbodysoul.co.uk and have a read xx
Hi Suzy, I think it's sort of implied but are these success stories also experiencing PEM or PESE and gotten a relief over time practicing your program?
Yes very much so.
@@suzyboltyogaforlongcovid thank you! Your answer gave me the hope I needed to keep going this week with patience and trust. 💖
On the top-3 tips from both of you you are mentioning "basic understanding on whats going on in the body" and says there is information out there. Do you mind tell me where is this information and what is going on? Thanks for a good video.
Please see all my other videos. X
@@suzyboltyogaforlongcovid Could you recommend one particular? It is not obvious to me which one you are referring to. Thank you!
Just in case you are still looking for info, i found this video really helpful in explaining how the body is reacting in autonomic dysfunction and Dr Lim gives some advice on possible ways to help symptoms. th-cam.com/video/K0ktH5CXy2I/w-d-xo.html
Can anyone point me towards stories of recovery for young people with severe pots who have had it a long time ? My daughter us nearly 12 and has been ill from 5 yrs of age. I don't see any hope in the post viral stories. She isn't getting better no matter what I do.
Does she have joint Hypermobility? Ehlers Danlos? Any neuro diversity at all? These conditions are very linked to POTS and are worth crossing off the list at least. I’m so sorry that your 12 year old is having to deal with this - I have a 12 yr old boy and I can’t even imagine how upsetting it must be for you all. ❤️
@@suzyboltyogaforlongcovid yes it's pretty awful. Yes she has hEDS but no neurodiversity.
Check out Whole Body Healing with Jen. She has interviewed some people who've had pots since a young age and overcome it. She focuses on root cause. There is hope!
Long term COVD has ruined my quality of life. I can't even write legibly any more.
I hear you. I got trouble walking and speaking. Months ago, I had trouble breathing. Couldnt sleep cuz I stopped breathing.
Great webinars, did Joe get covid more than once? How did it effect him?
He did - and he got sick again but recovered much more quickly. x
I worsened and not recovering, I have subscribed to your TH-cam account and will be looking at your video 👍
Go to www.360mindbodysoul.co.uk and have a read of everything there x
I just found your site a few days ago. I'm not sure if the algorithm picked up on the fact that I listened to a recovery story that you did with a woman from BC where I live. I would agree with JacquiQ that those of us who have been struggling with ME for many years are sad that it has stolen a deal of our lives and been a long time coming but, in my case, heartened that there is more help on the net now - in a way thanks to long covid.
I give thanks and blessings to all that are offering hope where there has been little for a very long time.
CBD oil seems to have done wonders for me
Hey How is the recovery going? I think his name is Jo, right?
He’s fully back at work 😊
I am full time worker too but still have POTS symptoms. So my question is…. Can we recover fully from POtS? Many thanks 🙏
If you have something like join Hypermobility syndrome or Ehlers Danlos syndrome then you may well find POTS follows you through life on and off. But yes, we can manage it well enough to recover a normal life.. xx
Hi Suzy. No I don’t have hyper mobility as far as I know… I want to do this yoga classes. How can I join in?
Has anybody recovered from long covid?
Yes. Lots of people are back doing life again.
@@suzyboltyogaforlongcovid thanks..why is it so hard to find them?..I have bad fatigue now 6 months..I'm a single fulltime dad..I have to push through and work as i have no safety net..its been hell
@@stanleysteamer3212
There are a few great sources of recovery stories:
1. LongHaulersRecovery reddit page
2. There is a Covid Longhaulers Discord where they have a recovery stories only channel
3. I've heard about a Slack group called Body Politics where you might find recovery stories.
@@stanleysteamer3212 I guess once people are better they leave the support groups and get on with their lives. I have been working with people since sept 2020 and know loads of people who have recovered and gone back to life. Your story is hard, always having to push through. All you can do is work to calm the nervous system with something every day and reduce the stress response in the body.
I'm on all the facebook groups..there are a handful of recovery stories..that's it..out of 10s of thousands
bunch of nothing for over an hour