Thank you for spreading awareness for ICP! I wanted one more baby but I have two and through because of this. I could have lost my kids but I was sent out to have them early with induction. I hated the itching and taking the ursodial. The ursodial didn't really help because I was still itchy. I had it worse with my last born because of ICP and Pre-eclampsia of pregnancy. I'm so sorry for this but thank you again for spreading awareness.
Thank you so much for sharing your story. I had never before heard of ICP, and I know your sharing your story will make us all more educated and help save lives! God bless you and your family.
In this April I also lost my baby at 36 week because ICP...I live in Hungary (Europe) and here isn't any bile acid testing....from the day of stillbirth I also fight for raising awareness about ICP. It's so hard....
Thank you for sharing your story. We are deeply sorry for your loss due to Cholestasis of Pregnancy! We are here for support and to help with your advocacy efforts.
Thanks for sharing your story and sorry for your loss. I was diagnosed with ICP just yesterday. Before that, I’ve never heard of this condition. Thanks for spreading awareness.
I hade ICP,my baby was born in 37+3 weeks and we were ok, itching stoped after birth! Now my daughter has 6 month and she's wonderful baby. She has GER only and pyelectasis,I hope that's will be ok ! ♥️♥️♥️
Thanks for sharing. I lost my son too in Aug this year. I was on medication and bile acid values came down but I still lost him in week 33. ICP is cruel.
I had cholestasis in my first pregnancy but was only told after my birth of my daughter at 37 weeks the itching became so intense that I went into emerg. My family doctor saw me and I’m not even sure if he ordered the right test. Luckily I saw my OBGYN a few days later and he knew that I needed my bile acids tested. They called him with the results and said they were negative. When he actually got the bloodwork back it was super high. Luckily I had booked myself in to induce with accupunture that day. And had my daughter the morning I was supposed to see my OBGYN. Now I’m 34 weeks pregnant and started getting symptoms at 30 weeks. Got my results back and I have it but it took 3 weeks to get the results of the bile acids! Her baby died over the weekend and it takes 3 weeks to get bloodwork back?! Luckily I see my OBGYN tomorrow and can make a better plan. I think this baby needs to come out early! Hopefully we can wait until 37-38 weeks
Thank you for sharing your story. We have made many attempts to reach out to the large labs here in the USA to help improve the turnaround time of the bile acids blood tests.
I was brushed aside when I kept going in about all of my symptoms. I went into premature labour at 31 weeks and had my baby. Spent 5 weeks in the NICU. I don't know why they couldn't just give me a blood test. Push hard girls when you know something isn't right.
So so sorry 😞 im experiencing the fear of possible stillbirth now, waiting on my bile levels to come back I'm 36 weeks 5 days & hoping i can be induced this coming week bc I'm just freaking out
so it is possible to get icp while being 12 weeks pregnant? in my first pregnacy i had icp with 38 weeks but he came to the world oke the day after. my second pregnancy ended with 7 weeks, my thirth suddenly ended with 12.5 weeks while with 12 weeks i had a normal ultrasound but i was iching sometimes, the babys chromosomes were ok. So can it be that my icp kicked in again and ended it at 12.5 weeks. I am just trying to figuire out what went wrong...
Yes I am having symptoms at 5 weeks which is the earliest it can show up. Lots of water. I drank 10 waterbottles and a day later I was fine. Just bought milk thistle to help support my liver
@@HackerActivist kindly share your experience,how was your pregnancy,i lost my baby boy at 30weeks.m much worried to having it again in second pregnancy
For future reference, for anyone else with the same question: If you're taking urso, call your OB and ask if you can take more. I was told to take more if it wasn't helping the itch, but you need to call and ask how much.
Thank you for spreading awareness for ICP! I wanted one more baby but I have two and through because of this. I could have lost my kids but I was sent out to have them early with induction. I hated the itching and taking the ursodial. The ursodial didn't really help because I was still itchy. I had it worse with my last born because of ICP and Pre-eclampsia of pregnancy. I'm so sorry for this but thank you again for spreading awareness.
Thank you so much for sharing your story. I had never before heard of ICP, and I know your sharing your story will make us all more educated and help save lives! God bless you and your family.
Thank you for comment.
In this April I also lost my baby at 36 week because ICP...I live in Hungary (Europe) and here isn't any bile acid testing....from the day of stillbirth I also fight for raising awareness about ICP. It's so hard....
Thank you for sharing your story. We are deeply sorry for your loss due to Cholestasis of Pregnancy! We are here for support and to help with your advocacy efforts.
Thanks for sharing your story and sorry for your loss. I was diagnosed with ICP just yesterday. Before that, I’ve never heard of this condition. Thanks for spreading awareness.
We are grateful for Ariana's advocacy.
I hade ICP,my baby was born in 37+3 weeks and we were ok, itching stoped after birth! Now my daughter has 6 month and she's wonderful baby. She has GER only and pyelectasis,I hope that's will be ok ! ♥️♥️♥️
Thank you for sharing.
This is so sad. I’m so sorry you had to go through that and lose your little one.
Thanks for sharing. I lost my son too in Aug this year. I was on medication and bile acid values came down but I still lost him in week 33. ICP is cruel.
Deeply sorry for your loss. We are here to support you.
Thanks for sharing
I had cholestasis in my first pregnancy but was only told after my birth of my daughter at 37 weeks the itching became so intense that I went into emerg. My family doctor saw me and I’m not even sure if he ordered the right test. Luckily I saw my OBGYN a few days later and he knew that I needed my bile acids tested. They called him with the results and said they were negative. When he actually got the bloodwork back it was super high. Luckily I had booked myself in to induce with accupunture that day. And had my daughter the morning I was supposed to see my OBGYN. Now I’m 34 weeks pregnant and started getting symptoms at 30 weeks. Got my results back and I have it but it took 3 weeks to get the results of the bile acids! Her baby died over the weekend and it takes 3 weeks to get bloodwork back?! Luckily I see my OBGYN tomorrow and can make a better plan. I think this baby needs to come out early! Hopefully we can wait until 37-38 weeks
Thank you for sharing your story. We have made many attempts to reach out to the large labs here in the USA to help improve the turnaround time of the bile acids blood tests.
I was brushed aside when I kept going in about all of my symptoms. I went into premature labour at 31 weeks and had my baby. Spent 5 weeks in the NICU. I don't know why they couldn't just give me a blood test. Push hard girls when you know something isn't right.
Thank you for sharing your experience.
So so sorry 😞 im experiencing the fear of possible stillbirth now, waiting on my bile levels to come back I'm 36 weeks 5 days & hoping i can be induced this coming week bc I'm just freaking out
Thank you for sharing. You are not alone. ICP Care has resources and support groups.
This happened to me.
😥 oh, she is a warrior!
Indeed a true Cholestasis of Pregnancy warriror!
so it is possible to get icp while being 12 weeks pregnant? in my first pregnacy i had icp with 38 weeks but he came to the world oke the day after. my second pregnancy ended with 7 weeks, my thirth suddenly ended with 12.5 weeks while with 12 weeks i had a normal ultrasound but i was iching sometimes, the babys chromosomes were ok. So can it be that my icp kicked in again and ended it at 12.5 weeks. I am just trying to figuire out what went wrong...
Yes I am having symptoms at 5 weeks which is the earliest it can show up. Lots of water. I drank 10 waterbottles and a day later I was fine. Just bought milk thistle to help support my liver
But also get tested for every type of hepatitis
@@HackerActivist kindly share your experience,how was your pregnancy,i lost my baby boy at 30weeks.m much worried to having it again in second pregnancy
@@Life_Set16 did your gynae suggest vit K injections before delivery? I lost my baby too 😞
@@fitnessbeautywithnikita9600 No he didn't give anything,he just got my reports and decided to deliver
Is it safe to do exercise with ICP?
You can review our pages here for reference icpcare.org/managing-symptoms/
Tips on how to relive itching please. I need help I’m 33 weeks and have been diagnosed with this for three weeks. The medicine is not working
Not sure if you still need relief but my MFM doc told me that Sarna is helpful on top of the medication
I used Sarna too with icp.
I know I’m late, but using a UV light at night while you sleep.
Please visit the Self helps page of our website icpcare.org/managing-symptoms/self-help/
For future reference, for anyone else with the same question: If you're taking urso, call your OB and ask if you can take more. I was told to take more if it wasn't helping the itch, but you need to call and ask how much.