Brain on Fire: Laura's Journey with Autoimmune Encephalitis
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- เผยแพร่เมื่อ 25 ส.ค. 2024
- In August 2019, Laura Martin's future was on the rise. The Kentucky Governor’s Scholar and standout goalie on Transylvania University's women’s soccer team was on a path to great success. But in a matter of days, she and her family were facing their lowest moment. Her health suddenly declined, and no one knew if this promising student and gifted athlete would make it past 20 years old. Learn more about Laura's battle with Autoimmune Encephalitis, and how the Martin family found hope at UC Health.
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This happened to my daughter. We went through the same experience as this family but it took almost a year before we found out. This turned our lives upside down, words cannot describe the trauma we have experienced. 😢
Same thing happened with my wife , she was on ventilator from last 22 days , first 3 days she's behaviour are abnormal after 3 days started seizure , seizures increase every day after treatment of IV ig now shes seizure are stop but still she forgotten everything , I pray to God, I want my wife to be the same as before.😢
How is she now? I started ivig 2 weeks ago with no change
please look into dry fasting for your wife - I and many others were able to heal ME/CFS and long covid with it.
This is my son. I'm crying 😢 This journey is so hard
I had a sezuire and collapsed on Christmas Eve 2017. my brother heard a big bang coming from up stairs and found me laying lifeless in my room and the Christmas dinner laying on my bed I never touched. I just remember waking up in the hospital with no memory of the previous months. My mother said I was very violent and confused. I just remember having the most craziest delusions and wanting to be with God. Prayers for everyone who has been through this or will go through this. It's the most craziest thing I've ever been through.
Hello Liz, I had a similar experience two weeks ago and was diagnosed with Autoimmune Encephalitis. Happy to hear about your recovery. I feel that I'm regaining my strength every day and in a much better position. I was hoping to hear from you on your recover and how it went - how much time it took for a complete recovery, whether you had to instil any lifestyle changes and till when, whether you changed your diet, what medications/steroids you took and for how much time. Hearing back from you would mean a lot to me :)
@@aimankler How are you now?? Where did you get your treatment done.. I want to know bcoz my son is suffering from autoimmune encephalitis from march 2022.
He moves only hand and leg . He opens eyes and moves eyeball but not act as things .. plzz help me
My friend got this disease. How long does it take to fully recover. He got this like 20 days ago
@@OZAMAtry anti parasitics maybe? Some auto immune conditions are caused by parasites that make their way into the brain
@@LuckyW23 ok so update, he recovered and learning how to do physical stuff now
Keeping this young lady and her family and everyone in the line here in my prayers 🙏💜
Sure am glad they found out about what your problem was. I am 70 years old took a J&J booster shot on 21 Dec 2021 on the 28th came down with Covid very mild got over it but started going down hill. Loss of appetite wouldn't eat at all, joint pain, sleeping 20 hours a day! Went o the VA for medical and was bounced around physical therapy. Well in early June my wife took me into Ohio St University hospital. I had lost 30lbs, hardly walk, bad balance, dizziness and didn't know where I was or what date it was and hurting all over. They thought about putting me into a nursing home, but a doctor came in and I started rambling and she said something is wrong! That resulted in a 17 day hospital stay. Well after 4 spinal taps, 3 CRts, 4 MRIs, blood test, nasal feeding tube (OUCH IT REALLY HURT) they big word here THINK it was Autoimmune Encephalitis. I am on steroids and recovering at home but with swelling of my brain and spinal column I could have died! I think what saved me was my insistence that something was not right in my joint pain. My memory really started going down hill in the end of May. I see on the net of Long Term Covid and reactions to the COVID booster and has to wonder if this was related but medical source do not want to discredit COVID Vaccinations. Anyway good luck
Mother is currently being tested for Autoimmune Encephalitis after J&J as well. She suddenly developed severe Psychosis, delirium, hallucinations, confusion, disorientation, muscle and joint paim, red glassy eyes, personality changes, agitation etc.
My mother died of autoimmune ecephalitis two years ago. She was only 59 years old. We did what we could medically. But it was never meant to be.
and people that have idiopathic schizophrenia will never get the a full solution. it is so sad. i wont have a life. i would also like to have a life like every young person should...
We have been going through the same thing for about 4 and a half years now. I believe we are on our last legs because no one will listen. I think our love one is dying. I and my family members have gone through pure hell. I am so angry with the medical world. It is like they don't care.
How are you now?
They won’t learn anything new. You have to go to a functional medicine practitioner to get tested. They can use the Cunningham Panel to diagnose the disease.
My 36 year old son is in the hospital now, and he’s gone through living hell for the past 6 months, and before that, he still went through hell living in a home that has severe mold, TBIs, meningitis at age 7, and now this!
They can’t find anything wrong with him, but won’t release him. I want to take him to Dr. Frid, Mayo Clinic, Cleveland Clinic, and I just heard you mention Cincinnati. I’ll check that out if they know what to do. My God, our medical system is so broken. Two doctors have told him it’s “just anxiety”, but WHERE DOES IT COME FROM? What’s the root cause? That’s a symptom of something going on. Why does he have head pressure beyond belief, limb numbness, severe cognitive decline, horrific anxiety, burning skin, IBS, prostate problems, all of which are neurological. Before he was diagnosed with mold toxicity, Bartonella Henselae, and got two vaccinations for Covid, but still got it three times, he had psychosis, has paranoia, rage issues, crying spells, and insomnia, among other symptoms.
This is so hard!
Hi i am going through the same symptoms, can we talk more please?
@@Tinyteacher1111ivermectin
@@Tinyteacher1111ivermectin look into it for auto immune encephalitis
MUCH LOVE & ALL SUPPORT FROM ALL MY HEART
My daughter is in hospital now this very day 27 June 2022 she has anti NMDA autoimmune receptor encephalitis has has it since January 2022 this is the most painful thing I have ever had to go through watching what my daughter has and is going through she had migraines at start then cold then fainting then she would cry for no reason or laugh she also said at the beginning ,when she was kind of herself, that the tv and her phone looked like matrix ,she explained it as slow motion or fast forward when she watchedtv or went on her mobile,then seizures then just staring putting her hands out not knowing who we are or who she is ,going psychotic seeing things saying thing like I’m rich then I killed a baby which she did not and we are all going to die run. Things like that,she got angry violent confused tired, so sad and horrific disease she had a teratoma tumour on her ovary had it removed then was on steroid drip still on that plasma exchange then finally rituximab cancer drug had this twice but still confused and like a child I pray to god every night she recovers soon she is 33 a nurse and loved her job I hope this helps people see the signs as we didn’t never ever heard of this disease ever until now so please look for the signs as it is very very hard to diagnose as they thought she was taking non epileptic fits , the dissociative seizures then they thought schizophrenia but finally they took a spinal tap. Then mri scan and seen she had a tumour
had this in 2017 and then again earlier this year much worse this time much longer coma…it’s a journey just to find an answer
Exactly no one would listen to us but we knew this was not our daughter or sister so we fought hard and said there is something just not right and eventually we got a diagnosis anti NMDA autoimmune receptor encephalitis but this has been six months now I am worrying will she ever go back to they way she was a normal hard working woman as a nurse I can only pray
I need help with my mom she was diagnosed with this illness what can I do is sad to see my mom like that her neurologist gave her steroids but since she was taking this she is acting aggressive please help 😢me
My dear friend who I dated back in 1999-2000 is dealing with something she doesn't understand, and Doctors can't give her answers she needs.... she got a bacterial infection years ago then brain fog...PCOS and her head feels tight etc., she has the symptoms of Encephalitis or Meningitis....she wants a lumbar but is afraid any suggestions? I care for her more than anything ...called friendship and a bond.
I think I might have this. Neurologists here in Atlanta have no clue what’s wrong with me.
can i speak with you..............i think i have this too... and am dying from it...
@@smiles3500me to. 2 years of hell. I’m in OKC.
I think I have this too, happy to talk with you guys if your willing
Any improvement?
Sometimes miracle happen
What about all the people that prayed to that god and their daughters died? What about the people who prayed to different gods? Either he can do nothing to save people or doesn’t care to. Impotent or evil.
What is the name of the doctor at UC please? I have some sort of autoimmune cerebritis and the Dr at UC, said I was bipolar, with no energy and migraines, blurred vision and dizziness?! I vowed that i would never go back to UC!
I have all the symptoms of encephalitis, called up the encephalitis society and she says.. oh no those aren't symptoms.... she says, it's gotta be someething else..... hung up on her. I am dying here from it.
You need to see a Neurologist, my friend.
So are you saying that anyone in KY who has these symptoms, or perhaps neural lyme disease, should skip UK hospital because they will not do anything for them, and go directly to UC?
@Laura Martin could I please speak with you video chat ? I know I have this cause of syptoms and am in my bed dying from it... Neuros don't take it serisulsy they think i'm a mental case.
My dad just told me to look this up. I’m currently diagnosed [disabled] with schizoaffective and schizotypal and agoraphobia and you know if this is what it is I’ll probably just die lmfao I don’t really give af anymore
Do you know what you have now?
transylvania university? wow
I have bipolar one
........they are describing me
This is what I have. I have to take meds for it and have no short term memory.
i know if have this but docs won't test and i am literally dying at home...... limbs fly all over the place, tounge wag.. all kinds of stuff. yell scream, curse, bitch, no short term memory.. how do i get meds to stop it.
@@smiles3500 I aim sorry you are going through that. It sounds tough. Have you tried talking to family members? An attorney or some sort of public advocate or your local health department?
@@smiles3500 Why won't the docs test for it?
@@smiles3500see if you can get on clonazepam, it’s helps with my brain.
How is your short term memory now?