Wow, does this doctor describe and explain RLS perfectly. I have had is for 7 years that I know of and he hits every point right on target. So impressed with this podcast. Dont know if he is still in practice but thank you wherever you are doctor.
This is one of the least understood syndromes out there in my experience that doctors always seem to dismiss. Partly because it's so hard to describe to them. Last two times I was in hospital, I got RLS from withdrawal of pain medications, but no one believed me enough to even try something like Requip. It's one thing if you can relieve the RLS by standing up and walking but if you're stuck in a bed it's a nightmare. In 2011 during a routine physical I brought it up. The doctor's immediate reaction was, "Have you ever been tested for sleep apnea?" I got tested and I did have it. Also when Dr. Landow mentioned iron deficiency that rung a bell too because I had been found to be anemic several times. Thank you for putting 2 and 2 together!
Night time is my NIGHTMARE trying to sleep with my fairly new husband (10 years) and whatever is going on with his legs kicking and Jerking and jolting and pounding me awake, every 5 seconds all night long. I am exhausted. He sleeps. Thank you for your explanations. I am going to ask our Doctor to watch this and help diagnose him?
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
Update: So far, so good, and a disclaimer is that I have a thermo unit that includes a humidity control setting involved together with heat or cold or circulation setting for the comfort zone level prefered setting to the RLS free threshold and it is 55 percent humidity only at nap time. Do not confuse this with portable cheap humidifiers, which all have a whole different configuration which need water and is not good for individuals with pre- existing medical conditions or cause mold. ❤❤ I turn it back to 45 percent humidity setting at the daylight hours.
My husband has RLS since he was diagnosed with early onset Parkinson's at age 36. He is now 46. Thank you for all your very comprehensive videos Doctor 🙏🏻 🙏🏻 🙏🏻. Would you consider doing one of these extremely informative videos on Parkinson's? My husband does not have temors at this stage but he becomes "frozen". Godspeed.
Same. I suffer with it EVERY NIGHT. I get it in my legs and my arms. It’s unbearable. Every night I always have to take warm baths in the middle of the night multiple times. I was prescribed Gabapentin but I’m scared to take it.
@@Axon_the_neuronYes do research. My stepdad became addicted to Kratom. He was a Kratom junkie. It was really bad. Kratom is helpful, but it’s important to remember the risk.
I have suffered from this for years. About 10 years ago I was at my pulmonologist office for something unrelated and I happen to mention to him what my legs feel like and how often it happened at night. He chuckled a little bit, took out his prescription pad and said take this is called Mirapex. He said his wife also suffered from this. I started taking Mirapex 25 mg and it works like a charm. It literally takes it away every time. I only took it when I started feeling symptoms but through the years I take 50 mg now and I take it every night before bed, it literally completely takes away the symptoms every single time I don't know what causes it actually nobody does I try to figure out what I do on different days and see if there's any common denominator, but to this day I've never come up with one. My mother has suffered with this for years, but she would not take medication from it until recently. At 90 years old she decided to try it and she started crying two days later because it took the symptoms away. Although I didn't know my grandfather, my mother said he suffered from the same thing so obviously there is some genetic component to it if I didn't have Mirapex, I don't know what I would do, I really don't. If you suffer from restless leg syndrome, haven't tried Mirapex I strongly strongly suggest you do literally a lifesaver.
Thanks for the Vid , always reassuring to hear a Doctor who knows about RLS , most don't in my experience , or know very little .In Australia at the moment if you have severe augmented refractory RLS and need opiates . You will not be treated . A really cruel state of affairs really . A doctor told me about 15 years ago when i went for a prescription for Bupernorpodrine . He told me that some doctors don't believe in RLS . I asked him why and he said that opiates are involved . I didn't really believe that then but i certainly do now.
Thank you Doctor for an excellent talk on this difficult condition that tends to keep us awake to the wee small hrs of the evening asmine does . I developed it while I had 2 long stays in hospital for a serious heart condition in 2014 but on leaving hospital after a 12 week period , it stopped. Then in 2023 back it came after I developed anxiety in Nov & this is my 2 nd week of disrupted sleep being awake through the night 😢 At 71 its making a comeback .
So far, so good, and a disclaimer is that I have a thermo unit that includes a humidity control setting involved together with heat or cold or circulation setting for the comfort zone level prefered setting to the RLS free threshold and it is 55 percent humidity only at nap time. Do not confuse this with portable cheap humidifiers, which all have a whole different configuration which need water and is not good for individuals with pre- existing medical conditions or cause mold. ❤❤ I turn it back to 45 percent humidity setting at the daylight hours.
I walk around all evening as my legs won't allow me to sit still and enjoy the evening. I clean the kitchen instead. Then I take carbidopa an hour before bed. I imagine it is now causing a rebound effect. Last night zero sleep. I am 86. The severity of RLS is probably caused by nerve damage. I fell very hard on cement over a year ago. The surgery that would fix that would be too drastic for my age. My feet are cold all the time. I am up and down all night going to the bathroom too. Tried to get rid of Trazadone but can't sleep without it. Taking enough to sleep causes a feeling of being drugged for half the following day. It is all bad if you ask me. Medications. I am a believer in Jesus, but I realize that life isn't perfect just because you are a believer. Not all things are healed by Jesus as sometimes you need the experience to grow spiritually. I will continue to pray though, and for others who have this condition. Prayer can help with anything. Maybe even just to bear it. Paul had something that he had to live with that God did not relieve him from. And yet he was one of the great apostles in the Bible.
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
I remember when I first got mine. I wanted to stay up past 11 to watch an old black and white horror flick. I was 11 years old and I remember the sensation started. They went away as soon as I went to sleep, But no more! They've gotten progressively worse and worse and worse. Requip works great. However, I want to get off of it by trying more holistic approaches. I understand B9 and magnesium are supposed to work well. 'll be trying it.
Magnesium is huge and most diets under dose magnesium. So definitely a supplement to be taking. If you eat enough meat B vitamins shouldn't be a problem. But alot of people don't eat that much meat in our high carb society.
Took opioids for years and years do to nerve pain and si joint pain. I experience severe rls now. Botha legs every night and on occasion arms to. If I take an opioid product it completely stops. Never happens until said drug wears off. It doesn’t take very much either. A very minor dose is enough.
This is my experience exactly.. symptoms completely go away with a minor dose.. why isn't it prescribed for RLS though? It's absolutely worked for me no question.
A comment on the need to move: I have tried to counteract it by constant movement but can still feel the ache even as the muscles move. It feels like it's radiating from my tailbone. If you have periodically movements and sleep apnea they won't treat the apnea until they treat leg! Ridiculous.
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
My first experience with RLS was after the intake of Trazodone before falling asleep. That is the only time I´ve experienced it. I immediately informed my docter. Needless to say he never prescribed it again.
I wish i had your advice before i started with Pramipexol. Now after 4 years taking this substance, the drug itself ( SIFROL in Europe) has made the condition worse...almost untenable. All day long symptoms, feet, legs, arms, fingers, breast head. My whole body. Thank you for sharing your knowledge and experience especially about augmentation. I know what to do next....altho it ain't gonna be easy. Greetings from Sweden.
@@mildredlundgren7027 i also have rls but my legs are ok for now but i have sensation in genital area now..my rls has progressed to restless genital syndrome which is also a variant of rls...though my rls is ok but rgs is bad
Ststus update: after chronic worsening of condition I came off Pramipexole cold turkey. 3 months later, i have minimum rls and i have 2 periods of 3-4 hours sleep åt night. No rls any longer during the day. How? Lifestyle changes: healthy Lifestyle- diet, supplements, exercises, meditation and prayer. No medication at all since early sept 2020 Hope this continues
I wouldn’t say it is exclusively restless legs. I also get restless shoulders occasionally. It also can be a painful anxiety. I’ve had it since childhood. Also drugs like pramipexole and ropinirole made it much worse for me. Most family doctors don’t know how to treat it. Oddly , pulomonologists seem to understand it the most. Heating pads are really helpful as are baths with Epsom salts. I appreciate the doctors comments but sometime a sufferer knows the symptoms best... although I acknowledge symptoms vary slightly from patient to patient
Trazodone ? Forget about it 😜 it was suppose to help me sleep but instead --- Restless Legs All night .. It was like torture my brain 🧠 because my brain was ready for sleep but my legs and feet were being tortured with painful restlessness !!!!! I was trapped in a physical contradiction 😡 .
I first experienced this when I was around 10 years old, (1970) no one knew what it was and so people thought I was making it up. I’ve had it on and off my whole life. Magnesium helps a little but not completely. It’s like a kind of seizure that you experience only in your legs.
I got restless leg syndrom and at the same time I got electro - magnetic - sensitivity.. Ems.. I got ems from my cell phone..radiation.. Caused nerve damage or something in my head from talking on the cell and carrying it in pocket.. I only use wifi and a hot spot now.. Cell phone can't come near my body.. If I use a cell phone with a tower hook up my ems goes crazy!... Some of you might have same issue and not even know it.. Mine is severe.. A big hint is if you feel a vibration on your skin where you carry the cell phone.. Its called a phantom vibration.. I have to take kratom everyday now to treat it... No doctor or prescriptions were helpful.. I had to figure this all out by myself over a 20 year period.. For more info on EMS look up.. " Resonence: beings of frequency" on TH-cam
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
I think maybe many people have episodes of RLS but could not meet the diagnosis of it because of lack of frequency. It happens on occasion that my legs bother me in a way that sounds like this. I wonder if caffeine intake has anything to do with it. I take seroquel and I had some diet caffeinated beverage tonight. When I tried to sleepI had those feelings in my legs. It is hard to sleep when you feel like you need to move your legs. I am writing this in case the info might help some day. Maybe something about that combination and the timing within taking it has something to do with solving the issue. I don't know.
@@MrAlan604 I think for me it's more like a discomfort and a feeling to move. I get it in more than my legs sometimes. It's almost like I feel like I just need to shake all my limbs or something. It doesn't move on it's own for me. Maybe it isn't RLS. But it reminds me of it because it is very uncomfortable if I don't move and yet I cannot relax even if I am tired.
@@indecisiveexplorer4565 yes it's uncomfortable.yeah its like a throbbing.i feel exactly like you,have to move all my limbs to feel better.been taken b12 kinda helps.but I heard it could be from low magnesium.
I’ve had a history of mild restless leg my whole life that usually only happened on airplanes when I couldn’t lie down properly. Then I took a low dosage of lexapro (about 5mg I believe) for about 9 months. Once I got off it, my restless leg worsened to every night no matter what, and won’t go away when I sleep. My father has RLS. Also took lexapro and now him and I both take requip. Is it possible that the lexapro caused this?
Are you an RLS SUFFERER? If you are, then that's the last thing you would be noticing is the relief and not his clothes. Also, what does it matter if he is a priest or not? REALLY????
I had to refer my GP to dissertations like this one and studies from the Mayo Clinic and Johns Hopkins before he agreed to put me on low-dose opioid therapy which has been a miracle! No augmentation and complete relief all night going on 7 years now!
I'm curious what you mean by "low-dose" for the opioid therapy. What is low dose for you? I've seen the charts of equivalence in the Mayo Clinic publication on opioids. Do you take it just once a day in the evening before going to bed? I use a ultra-low dose (1/4 of a 5mg 325mg Norco....hydrocodone pill split) I only use it when awakened with rls and my arms are too active to remain in bed. Seems to work, unless I'm just getting a placebo response from such a ultra low dose.
@@delwoodkelp8590 The video from Johns Hopkins shows the dosages used in their studies to start around 10mg of Oxycodone, once daily before bedtime. For years now I have never exceeded 20 mg and have no side effects, etc. The key with opiods, however, is that you must be self-disciplined about their usage and NEVER take more than prescribed. Because of my history with my doctor, there is trust there and I will never begin to use them inappropriately. I shoukd note that I have refractory RLS, caused by using dopamine agonists like ropinirole. It is true for me that opioids appears to never force me to take more over time, as is often the case when used for pain. Your dosage is VERY low and awesome if that works for you.
Wow, does this doctor describe and explain RLS perfectly. I have had is for 7 years that I know of and he hits every point right on target. So impressed with this podcast. Dont know if he is still in practice but thank you wherever you are doctor.
This is the best summary so far on the web he had me throughout the video.
This is one of the least understood syndromes out there in my experience that doctors always seem to dismiss. Partly because it's so hard to describe to them. Last two times I was in hospital, I got RLS from withdrawal of pain medications, but no one believed me enough to even try something like Requip. It's one thing if you can relieve the RLS by standing up and walking but if you're stuck in a bed it's a nightmare. In 2011 during a routine physical I brought it up. The doctor's immediate reaction was, "Have you ever been tested for sleep apnea?" I got tested and I did have it. Also when Dr. Landow mentioned iron deficiency that rung a bell too because I had been found to be anemic several times. Thank you for putting 2 and 2 together!
Night time is my NIGHTMARE trying to sleep with my fairly new husband (10 years) and whatever is going on with his legs kicking and Jerking and jolting and pounding me awake, every 5 seconds all night long. I am exhausted. He sleeps. Thank you for your explanations. I am going to ask our Doctor to watch this and help diagnose him?
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
Update: So far, so good, and a disclaimer is that I have a thermo unit that includes a humidity control setting involved together with heat or cold or circulation setting for the comfort zone level prefered setting to the RLS free threshold and it is 55 percent humidity only at nap time. Do not confuse this with portable cheap humidifiers, which all have a whole different configuration which need water and is not good for individuals with pre- existing medical conditions or cause mold. ❤❤
I turn it back to 45 percent humidity setting at the daylight hours.
My husband has RLS since he was diagnosed with early onset Parkinson's at age 36. He is now 46. Thank you for all your very comprehensive videos Doctor 🙏🏻 🙏🏻 🙏🏻. Would you consider doing one of these extremely informative videos on Parkinson's? My husband does not have temors at this stage but he becomes "frozen". Godspeed.
I have TERRIBLE RLS and also have it in my arms and back etc. It is horrendous beyond words....
Same. I suffer with it EVERY NIGHT. I get it in my legs and my arms. It’s unbearable. Every night I always have to take warm baths in the middle of the night multiple times. I was prescribed Gabapentin but I’m scared to take it.
@@BibBubDude Kratom helped mine. I was just like you and Kratom saved my life!
Me too... It's like hell
Kratom is what I take too.. Get it online.. Take the minimal amount.. Do research before taking kratom
@@Axon_the_neuronYes do research. My stepdad became addicted to Kratom. He was a Kratom junkie. It was really bad. Kratom is helpful, but it’s important to remember the risk.
thanks so much i have rls and it is severe. i couldn't get things done in class because of it
I always get it when I try to sleep. Only thing I've found to help is getting up and walking around. It's very unpleasant.
I have suffered from this for years. About 10 years ago I was at my pulmonologist office for something unrelated and I happen to mention to him what my legs feel like and how often it happened at night. He chuckled a little bit, took out his prescription pad and said take this is called Mirapex. He said his wife also suffered from this. I started taking Mirapex 25 mg and it works like a charm. It literally takes it away every time. I only took it when I started feeling symptoms but through the years I take 50 mg now and I take it every night before bed, it literally completely takes away the symptoms every single time I don't know what causes it actually nobody does I try to figure out what I do on different days and see if there's any common denominator, but to this day I've never come up with one. My mother has suffered with this for years, but she would not take medication from it until recently. At 90 years old she decided to try it and she started crying two days later because it took the symptoms away. Although I didn't know my grandfather, my mother said he suffered from the same thing so obviously there is some genetic component to it if I didn't have Mirapex, I don't know what I would do, I really don't. If you suffer from restless leg syndrome, haven't tried Mirapex I strongly strongly suggest you do literally a lifesaver.
Thanks for the Vid , always reassuring to hear a Doctor who knows about RLS , most don't in my experience , or know very little .In Australia at the moment if you have severe augmented refractory RLS and need opiates . You will not be treated . A really cruel state of affairs really . A doctor told me about 15 years ago when i went for a prescription for Bupernorpodrine . He told me that some doctors don't believe in RLS . I asked him why and he said that opiates are involved . I didn't really believe that then but i certainly do now.
Thank you Doctor for an excellent talk on this difficult condition that tends to keep us awake to the wee small hrs of the evening asmine does .
I developed it while I had 2 long stays in hospital for a serious heart condition in 2014 but on leaving hospital after a 12 week period , it stopped.
Then in 2023 back it came after I developed anxiety in Nov & this is my 2 nd week of disrupted sleep being awake through the night 😢
At 71 its making a comeback .
So far, so good, and a disclaimer is that I have a thermo unit that includes a humidity control setting involved together with heat or cold or circulation setting for the comfort zone level prefered setting to the RLS free threshold and it is 55 percent humidity only at nap time. Do not confuse this with portable cheap humidifiers, which all have a whole different configuration which need water and is not good for individuals with pre- existing medical conditions or cause mold. ❤❤
I turn it back to 45 percent humidity setting at the daylight hours.
I walk around all evening as my legs won't allow me to sit still and enjoy the evening. I clean the kitchen instead. Then I take carbidopa an hour before bed. I imagine it is now causing a rebound effect. Last night zero sleep. I am 86. The severity of RLS is probably caused by nerve damage. I fell very hard on cement over a year ago. The surgery that would fix that would be too drastic for my age. My feet are cold all the time. I am up and down all night going to the bathroom too. Tried to get rid of Trazadone but can't sleep without it. Taking enough to sleep causes a feeling of being drugged for half the following day. It is all bad if you ask me. Medications. I am a believer in Jesus, but I realize that life isn't perfect just because you are a believer. Not all things are healed by Jesus as sometimes you need the experience to grow spiritually. I will continue to pray though, and for others who have this condition. Prayer can help with anything. Maybe even just to bear it. Paul had something that he had to live with that God did not relieve him from. And yet he was one of the great apostles in the Bible.
I think I have RLS. My urge to move is accompanied by irritability, a feeling if anger. I feel exhausted.
Take b1 vitamins for both the anger and restless leg
Yes
May this, may that, may help, may make better, may may may
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
I get it 24 hrs a day now , even standing up I get it .
Me too...
The explanation of Dr was very wide and informative.
I remember when I first got mine. I wanted to stay up past 11 to watch an old black and white horror flick. I was 11 years old and I remember the sensation started. They went away as soon as I went to sleep, But no more! They've gotten progressively worse and worse and worse. Requip works great. However, I want to get off of it by trying more holistic approaches. I understand B9 and magnesium are supposed to work well. 'll be trying it.
Magnesium is huge and most diets under dose magnesium. So definitely a supplement to be taking. If you eat enough meat B vitamins shouldn't be a problem. But alot of people don't eat that much meat in our high carb society.
Is it normal to freak out because of discomfort from restless leg?
Yeah
Took opioids for years and years do to nerve pain and si joint pain. I experience severe rls now. Botha legs every night and on occasion arms to.
If I take an opioid product it completely stops. Never happens until said drug wears off. It doesn’t take very much either. A very minor dose is enough.
This is my experience exactly.. symptoms completely go away with a minor dose.. why isn't it prescribed for RLS though? It's absolutely worked for me no question.
A comment on the need to move: I have tried to counteract it by constant movement but can still feel the ache even as the muscles move. It feels like it's radiating from my tailbone.
If you have periodically movements and sleep apnea they won't treat the apnea until they treat leg! Ridiculous.
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
My first experience with RLS was after the intake of Trazodone before falling asleep. That is the only time I´ve experienced it.
I immediately informed my docter. Needless to say he never prescribed it again.
My symptoms are in my feet
Has anyone you know
had an intravenouss iron procedure.?
I wish i had your advice before i started with Pramipexol. Now after 4 years taking this substance, the drug itself ( SIFROL in Europe) has made the condition worse...almost untenable. All day long symptoms, feet, legs, arms, fingers, breast head. My whole body. Thank you for sharing your knowledge and experience especially about augmentation. I know what to do next....altho it ain't gonna be easy. Greetings from Sweden.
have you tried gabapentin or pregabalin for rls....it is also very effective....you should try
@@zubairbutt228 Thanks!
@@mildredlundgren7027 i also have rls but my legs are ok for now but i have sensation in genital area now..my rls has progressed to restless genital syndrome which is also a variant of rls...though my rls is ok but rgs is bad
Ststus update: after chronic worsening of condition I came off Pramipexole cold turkey. 3 months later, i have minimum rls and i have 2 periods of 3-4 hours sleep åt night. No rls any longer during the day. How? Lifestyle changes: healthy Lifestyle- diet, supplements, exercises, meditation and prayer. No medication at all since early sept 2020 Hope this continues
Your Doctor is getting rich while you still suffer. Gabapentin is a scary drug. Do some research.
I wouldn’t say it is exclusively restless legs.
I also get restless shoulders occasionally.
It also can be a painful anxiety.
I’ve had it since childhood.
Also drugs like pramipexole and ropinirole made it much worse for me.
Most family doctors don’t know how to treat it. Oddly , pulomonologists seem to understand it the most.
Heating pads are really helpful as are baths with Epsom salts.
I appreciate the doctors comments but sometime a sufferer knows the symptoms best... although I acknowledge symptoms vary slightly from patient to patient
RLS patients have 30 to 40% less beta endorphin and lue-enkephalan{sp} ,opiates relieve symptoms in vast majority of patients.
Yep me too... I get it in leg arm shoulder adomen etc... It's hell
Trazodone ? Forget about it 😜 it was suppose to help me sleep but instead --- Restless Legs All night .. It was like torture my brain 🧠 because my brain was ready for sleep but my legs and feet were being tortured with painful restlessness !!!!! I was trapped in a physical contradiction 😡 .
I first experienced this when I was around 10 years old, (1970) no one knew what it was and so people thought I was making it up.
I’ve had it on and off my whole life.
Magnesium helps a little but not completely.
It’s like a kind of seizure that you experience only in your legs.
Try 12 years of age onset.
I got restless leg syndrom and at the same time I got electro - magnetic - sensitivity.. Ems.. I got ems from my cell phone..radiation.. Caused nerve damage or something in my head from talking on the cell and carrying it in pocket.. I only use wifi and a hot spot now.. Cell phone can't come near my body.. If I use a cell phone with a tower hook up my ems goes crazy!... Some of you might have same issue and not even know it.. Mine is severe.. A big hint is if you feel a vibration on your skin where you carry the cell phone.. Its called a phantom vibration.. I have to take kratom everyday now to treat it... No doctor or prescriptions were helpful.. I had to figure this all out by myself over a 20 year period.. For more info on EMS look up.. " Resonence: beings of frequency" on TH-cam
7:07 truth.
It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.
8:29
consider researching "nicotinamide riboside" - a B-3 variant
I think maybe many people have episodes of RLS but could not meet the diagnosis of it because of lack of frequency. It happens on occasion that my legs bother me in a way that sounds like this. I wonder if caffeine intake has anything to do with it. I take seroquel and I had some diet caffeinated beverage tonight. When I tried to sleepI had those feelings in my legs. It is hard to sleep when you feel like you need to move your legs. I am writing this in case the info might help some day. Maybe something about that combination and the timing within taking it has something to do with solving the issue. I don't know.
Did you get tremors in leg?thanks!
@@MrAlan604 I think for me it's more like a discomfort and a feeling to move. I get it in more than my legs sometimes. It's almost like I feel like I just need to shake all my limbs or something. It doesn't move on it's own for me. Maybe it isn't RLS. But it reminds me of it because it is very uncomfortable if I don't move and yet I cannot relax even if I am tired.
@@indecisiveexplorer4565 yes it's uncomfortable.yeah its like a throbbing.i feel exactly like you,have to move all my limbs to feel better.been taken b12 kinda helps.but I heard it could be from low magnesium.
I’ve had a history of mild restless leg my whole life that usually only happened on airplanes when I couldn’t lie down properly.
Then I took a low dosage of lexapro (about 5mg I believe) for about 9 months. Once I got off it, my restless leg worsened to every night no matter what, and won’t go away when I sleep.
My father has RLS. Also took lexapro and now him and I both take requip. Is it possible that the lexapro caused this?
Anti depressants are known to agrevate rls
Well said sir thats how i started 7:09 and 8:29
Coco jacket
🙏🏻🙏🏻🙏🏻
Is this guy a Priest or something? He wears the same shirt & tie in every video...
It's a uniform !!!
What does it matter what he wears as long as he helps us?
He's an angel!
Are you an RLS SUFFER? Because if you are, then wearing the same clothes he wears, would be
Are you an RLS SUFFERER? If you are, then that's the last thing you would be noticing is the relief and not his clothes. Also, what does it matter if he is a priest or not? REALLY????
I had to refer my GP to dissertations like this one and studies from the Mayo Clinic and Johns Hopkins before he agreed to put me on low-dose opioid therapy which has been a miracle! No augmentation and complete relief all night going on 7 years now!
I'm curious what you mean by "low-dose" for the opioid therapy. What is low dose for you?
I've seen the charts of equivalence in the Mayo Clinic publication on opioids.
Do you take it just once a day in the evening before going to bed?
I use a ultra-low dose (1/4 of a 5mg 325mg Norco....hydrocodone pill split)
I only use it when awakened with rls and my arms are too active to remain in bed.
Seems to work, unless I'm just getting a placebo response from such a ultra low dose.
@@delwoodkelp8590 The video from Johns Hopkins shows the dosages used in their studies to start around 10mg of Oxycodone, once daily before bedtime. For years now I have never exceeded 20 mg and have no side effects, etc. The key with opiods, however, is that you must be self-disciplined about their usage and NEVER take more than prescribed. Because of my history with my doctor, there is trust there and I will never begin to use them inappropriately. I shoukd note that I have refractory RLS, caused by using dopamine agonists like ropinirole. It is true for me that opioids appears to never force me to take more over time, as is often the case when used for pain. Your dosage is VERY low and awesome if that works for you.