@@pm2886I disagree vehemently. She didn’t talk right away about the sexual losses (and maybe some gains?) that certain cancers create, but once someone is getting through the treatments, sex is a big factor in the person’s life. I’m very glad she brought up that topic. I’m a breast cancer survivor, btw.
My sister had a very rare Ovarian Cancer at age 35 and had a total hysterectomy. I am happy to say she is 47 now and is doing well . Everyday is a gift .🙏🏻❤️
I was in my sister’s hospital room when her family doctor visited. She kept asking him questions (since we thought cancer should be investigated) and he YELLED at her,” you don’t have cancer”!!! My sister was diagnosed with pancreatic cancer 3 months later and died 18 months later. 😢
@@calb1231 I am sorry, that your sister and you as family were dismissed by your GP. He should have been at least be doing some tests to "prove" his point. I had similar experiences with my thyroid condition. I was given the wrong medication which enhanced the autoimmune processes. My thyroid is a small heap of non functioning cells now, and all the symptoms I was describing over and over again were put down as "normal for your age" and "you should lose weight, eat less" It messed up my metabolism to a point where I developed food allergies and other autoimmune issues with my skin, hair thinning, and breaking of the usually quite strong nails on feet and fingers. Still trying to find the right dose of thyroxine.
@@amandaharris887 unfortunately no. It was an overwhelming time going for second and then third opinions. Picking up records, researching and then helping with going back and forth to surgeries, ER visits, chemo, picking up RX, helping with her dog, and eventually her weeks in hospice. I was working full time with 3 children in high school and college and lived an hour away. You do what you have to do at the time. She probably would never have considered it since she truly liked him. He continued on her team as the PCP and he seemed more concerned perhaps since he was so mean, in my words, initially. After her last surgery there were several months she was NED. When it came back, it was apparently too soon for her to get in any trials. They said she’d have to have been NED for longer….? She then began another round of different chemo and it was too much for her and it had to stop. She developed ascites, her kidneys started acting up and she then had to go into hospice. She continued to work,when she could, during those times, she had her own business , and lived well those last months….this was in 2015.
I had to do a bunch of oncology scanning this year because of unexplained pain …went alone …had to do a upper endoscopy no sedation because my family refused to babysit for me …..through me under the bus…left so alone and uncared for…still cry because of it:(…..although turns out my biopsy and endoscopy were ok…doctors bedside manner was terrible….my heart goes out to anyone going through anything …you are a brave warrior …keep on striving
I was diagnosed with stage 3 breast cancer at 65, did all the things, then we found out my spine was desiccating in several areas, most recently I was rushed by ambulance for a racing heart rate , 175 was the highest that night, I am not giving up, but I am grateful I am not much younger as you said, it’s less traumatic when you have lived a full life and don’t have young children at home. ❤
What an incredible survivor Taryn is. Her story is horrifying but inspirational at the same. And she tells it so genuinely. So much of what she said resonated with me. She really knows what she’s talking about. Such a smart, tough girl. Wishing her a long, happy and healthy life and also want to thank her for the work she is doing to help others who are trying to cope with this terrible disease. I think she’s AMAZING.
Finally someone validating the sense of violation I felt receiving vaginal brachytherapy my medical team just dismissing the trauma I experienced as an overreaction as unusual like they had never encountered a woman traumatised by this treatment. Finally a new member to my team took the time to listen to me and showed me empathy and understanding 2 years later. I cannot believe that they think it’s ok for women to be awake during the brachytherapy treatment physically it might make sense mentally it can be damaging.
My beautiful 11 year old cat, Raven, was diagnosed with Neuroendocrine cancer in July. She's still doing well but coughs a bit. Hers is in her digestive tract. I was told it's extremely rare in cats. I love my fur baby. She's asleep on me now. Wishing you a ll the best, Taryn❤❤❤
Cancer surviving person here. I love how you just said a little bit of change at a time will add up to big changes over time. A lot of info comes your way when you get the diagnosis. Taking the time to make the changes that are suggested makes 100% sense. It is information given as a recommendation to follow, but changes come one step at a time. Your talk was excellent and real and has given me hope.🌷
21:51 Being there for women who were just diagnosed or those that have no one to explain things or to hold their hand through this journey. Some don’t live in an area with great cancer hospitals. We were fortunate. Keep up the good fight girl. What you’re doing it’s very powerful and it’s helping people. I’m 16 year breast cancer survivor.
My husband is 64. He had an emergency surgery on January 31, 2024, when a hole broke through his stomach, and dumped everything into his abdomen, and he nearly died. His surgeon ordered a scan before surgery, then told us that he may have 3 months to live, but she would know better when she got inside. After surgery, she said it looked like a huge hand full of Rice Krispies was thrown into his abdomen. Cancer growths were everywhere. Oncologist said biopsy showed Neuroendocrine Cancer, Stage 3C/4. He said it was 'rare but not uncommon.' He said it is very slow growing, and had probably been growing for years, if not decades. He said it may STILL be growing for years, or decades, longer. He said that, if you could CHOOSE what kind of cancer you would have, this would be it, since it is so slow. It will never go into remission. It will never be cured, unless God chose otherwise. Oncologist said they can just 'manage' it. It is inoperable, since it is spots and tumors ALL OVER EVERY ORGAN, EVERYWHERE, but looked like its 'source' was the liver or pancreas. His liver was fully involved, tumors are everywhere, and there is a spot on his lower spine. His Oncologist, on his second visit, told him, based on scans and blood work, he would more likely have 1 to 2 years. He has been taking monthly chemo therapies since February 2024. In his most recent scan and blood work, it showed there was no 'activity' or 'change' to any of the dozens of tumors, and blood work was good. He said a more updated long-term prognosis was more like 3 to 5 years. He has been blessed with minimal side effects. God has been very good to us, and we are thankful for every day we are blessed with. Our prayers go out to all who have to deal with ANY illnesses. ❤❤🥰🥰🤗🤗😊😊🙏🙏🙏🙏🙏🙏🙏🙏 An interesting side note...there have been a couple recent local news stories about two local women who were diagnosed with this same cancer, so it's weird that it is, supposedly, so rare. Just interesting. Blessings!!
I love your honesty and transparency. This is so helpful for anyone heading down this path. Your story is absolutely terrifying, but inspirational. You are a great example of light at the end of the tunnel. I am so glad you are NED almost 5 years!!!
When people say "you don't have cancer anymore and look fine ,"I think a perfect answer would be to tell them about having to live with a consequences of early menopause ,other things that it may have permanently affected like your hearing plus the fear of reoccurrence hanging over your head.. There's a lot more to cancer remission than meets the eye and people need to be taught that uncomfortable truth.
Taryn, thank you so much for sharing your story. I am a cancer survivor (ovarian, caught at stage one in 2010 because I had an ultrasound for fibroids and the radiologist saw a little cyst in one ovary). Your story brought back many of the feelings (survivor's guilt) and experiences I had (the port; the queasiness of chemo.) I am positive that your story will help everyone who hears it, whether they are on the cancer journey or they know someone going through it. More than anything, I hope you will continue to be cancer free. I'm at year 14 and I hope you will get there and beyond.
I’m a breast cancer survivor and was diagnosed during Covid also had my chemotherapy and radiation treatment during Covid.. it was a very lonely time because my husband had to drop me at the hospital but couldn’t come in with me, so I understand what you went through ❤
Amazing lady here and also amazing drs. Between my kids’ mitochondrial disease and my own issues…. I’ve been around the country and know how rare GOOD drs and specialists are. 💜
Thank you for your very informative and empathetic video. I’m so glad you’re still here, and I hope you have a very long and fulfilling life with your loved ones.
What a brite, beautiful, light you are!! You have such a strong, positive, spirit in you that LEAPS through the screen!! Prayers to you that you remain cancer free for the next 100 yrs, at least. 😘🥰🫡💪🙏
Brave beautiful girl. Thank you for sharing. I kept thinking about whether or not you had planned on children…thanks for the Signatara mention. Note to self. Wishing you many, many healthy years ahead.❤
BLESS YOU for your honesty and authenticity. I hear you re taking breaks. Keep a balance of giving and just being and enjoying Life. Thank you for sharing so openly - your experiences - your information - and for being so vulnerable in the process. Knowing Healing and Wholeness in and as every Aspect of your Body, Mind and Spirit - All Bodily Systems recognizing their Divine Blueprint of Perfection with Ease and in Grace! Sending Love and Light for the Journey! xo
When I think of how many times I blew off my yearly PAP - I shudder. I am a grandmother who had a hysterectomy long ago - but a seemingly healthy young woman had this cancer - am calling my children to tell them to always be on time with their check ups.
If it was said already, I apologize. Neuroendocrine cancer can happen everywhere in the body. The primary tumor needs to be identified and biopsied or removed. And sometimes the primary tumor can not be found or located for sure. NET survival is one of those cancers, that can be endured like any other chronical disease. Mine was discovered by chance and the tumor removal was tough. Being in the tail of the pancreas, the opened up the abdomen to remove the tumor. In one site, the lymphatic system might or might not transmit the malignant tumor cells. Asking and getting answers to my questions before surgery did not prepare me enough for how rough the open abdominal surgery was afterwards. If chemo is done for the NET, it must have been faster growing. Hope the remission will last and you have years to enjoy life for a long time.
I have Neuroendocrine cancer as well. I have had two bland liver embolizations this year. I will be having an abdominal surgery soon to get the primary tumor. I have stage 4, meaning it has metastasized to my liver, a lymph node in my chest, and my right adrenal gland. I’m not sure how many more surgeries I will need, but hearing other people’s experiences does help.
@@sherryadkins2027 maybe we all with NET should get one informational video to show, how many manifestations Neuroendocrine cancer has, and what the singns are, to suspect it. Hormone producing and non hormone producing needs to be mentioned as well as the comorbidities, if there is chromocytoma or MEN as genetic predisposition. And maybe talking about the different treatment options. I would have found it helpful to see one place which had carried everything togeter at one site. It felt quite strange, that there were so few mentions of it, when I started researching, what my problem was, when the first signs appeared.
Yes! NETs can be anywhere, “rare but there” as they say. High grade small cell (what I had) is very aggressive … compared to low grade which tends to be slower moving & can be more “chronic” as you mentioned.
I'm envy you. I am battling with cancer of neoplasm endometriosis, I completed my 6 rounds of chemo last Aug and had my first immunotherapy last month. While I was dealing with cancer, my brother had a brain aneurysm and passed away couple weeks ago. I never tell my family about my health...
@jodythi1 Thanks! My biggest regret is that I never got a chance to see my brother before and after his passing because of my situation. It has been almost 3 years since the last time I was with my family. I used to video call my mom, but after my first chemo , I started losing my hair and afraid that they would find out about my health, I started to tell them a lie that I accidentally dropped my phone in the toilet and I can not afford a new one.
@@irenedirmyer41 oh noooo… I hope you will reach out to your family and tell them. They would be so heartbroken to hear about you going through this on your own. I just found out my Mom has cancer and I would be so hurt if she hid it from me. God has you, he will help you through this.
Hi Taryn. I do not have cancer, but am listening to your comments about sex after cancer and treatment. It sounds like you have come a very long way. Thank God. I'm wondering if anyone ever suggested a pelvic therapist at any point. If at any point in your journey or if you know of anyone experiencing sexual pain post surgery or at any time for any reason, an experienced pelvic therapist may have been able to help you manage that course of your journey. You are a heck of an amazing young warrior.
I had a scary incident with my port insertion. I was prepped for surgery and on a gurney waiting to proceed. The surgeon came in and said she had saved my procedure for last because I was going to be her most difficult. She was going to make up to three attempts to install the device. If she was unsuccessful she was going to have the cath lab attempt it. (Who was the cath lab?) If after one more attempt by them they would stop trying. My chemo would have to be done without a port. She left after making these pronouncements and I felt very scared. Fortunately it was successful. I imagine it was because I was obese? It was not verbal discussed why my case would be difficult? It was traumatizing because I was told this at the point of no return.
I have extrapulmonary small cell neuroendocrine carcinoma and yours is the first video I have seen with a similar diagnosis. All I hear is "rare" and "aggressive. " Two of the studies I have read have used the word "dismal" in regards to prognosis. This give me hope.
Kathy. Look up fenbendazole . Of course follow the treatment your oncologists recommend but in addition to that take fenbendazole order and dosage on line. May have to take for life
Survivor's Remorse is real and adds to the PTSD. It hurt when women younger than me, even though I was young, died. People say the dumbest things, but we forgive them. Even while their comments haunt us.
After our experience with our 7 yr old son that was diagnosed with cancer osteosarcoma 😩😩💔💔 We had been going to a university hospital in California 🌴 mind you we were always STRESSED OUT but my Husband got into a HUGE FIGHT with the oncology dr and it did not go well 😮😮 my husband told that dr YOU ARE A PRACTICING PHYSICIAN all you do is practice on our kids 😮 the dr did not like what hubby said to him ! We transferred to another dr and another hospital 😩😩💔💔 all pediatric patients have a BROVIAC and it really helped they took blood from it and used it to get meds all kids hate needles so the BROVIAC was a life saver
To be checked every year means there was a dangerous HPV present. Young girls please, please, abstain or insist on using protection. I am seeing this a lot in the clinic. What she is describing is common.
Taryn, did you get vaxxed with C*19 in 2020/21. If so did you also get booster shots. I had a total hysterectomy at 30 years of age due to endometriosis in1980. I was constantly reviwed annually since 1994 until I refused to go any longer from the start of C*19, when suddenly told me I had an indication of HPV. I hadn't had sex for over 20 years following VIN3 excisions, I have had a total of three excisions. So where the hell did HPV come from? Thank you for your bravery in recording your journey.
She laughs all the way through her story! She cracks jokes and laughs after every word! Idk I just can’t really empathize with her story because it’s like she thinks it’s some big joke or comedy show! I just can’t with this one….
@@fionaokeefe1906 yes I crack a lot of jokes. It’s a trauma response- I had a 7% chance of survival. I’m sorry you can’t muster empathy for that but I’ll never stop laughing my way through life, even in the face of death. I hope it never happens to you. 💜 and I did cry a few times in the hour long interview.
I find it really refreshing,the way she told her story, it's too somber to listen to some of the stories where they focus on all the grief, tell about how much they cried etc. I'm a nurse and concrete thinker , I like just the facts and understand people are different. Perfect telling of her account in my opinion. I'm having symptoms of increased norepinephrine and high levels, NET runs in family. I have an enlarged area in my neck feels like carotid body tumor and some digestive issues in the lower right quadrant as well as what feels like a little bit of a mass so I'm having an abdominal CT soon.. I am curious if you had the symptoms like anxiety racing heart, diarrhea? This is the second time I've listened to your story thank you! Xo also , it's her story .. not anyone else's to tell. Can t believe someone wants her to tell her story the way the commenter wants it told.. geez.
About 35 years ago. I had a total hysterectomy because of bleeding and pre cervical cancer cells. So 2 years ago I was told I have a nodule by your spine, then another test told I have the mass behind my cervix. I said what cervix? I had a total hysterectomy. What did I grow a new one? I stop seeing her. My regular doctor finally sent me for MRI unbelievable I have a cervix so now to find another OBYN bless you honey. You are still here. I will pray for you always. ☮️☮️☮️🩷💜🩵🙏🏼🙏🏼🙏🏼
THANK YOU for talking about cancer and sex. Almost no one goes into that.
Why would they? Sex is about the least important thing possible, when you have cancer. It couldn't be more irrelevant.
@@pm2886I disagree vehemently. She didn’t talk right away about the sexual losses (and maybe some gains?) that certain cancers create, but once someone is getting through the treatments, sex is a big factor in the person’s life. I’m very glad she brought up that topic. I’m a breast cancer survivor, btw.
@@Ceeradsagreed. I had a mastectomy at 25 and nobody talked about it with me.
@@pm2886 That’s not a very helpful comment. People are still going to want normalcy in their lives and won’t just spend all day thinking about cancer.
we are glad she was brave enough to talk on this personal aspect of life after cancer
My sister had a very rare Ovarian Cancer at age 35 and had a total hysterectomy. I am happy to say she is 47 now and is doing well . Everyday is a gift .🙏🏻❤️
I was in my sister’s hospital room when her family doctor visited. She kept asking him questions (since we thought cancer should be investigated) and he YELLED at her,” you don’t have cancer”!!! My sister was diagnosed with pancreatic cancer 3 months later and died 18 months later. 😢
@@calb1231 I am sorry, that your sister and you as family were dismissed by your GP. He should have been at least be doing some tests to "prove" his point.
I had similar experiences with my thyroid condition. I was given the wrong medication which enhanced the autoimmune processes. My thyroid is a small heap of non functioning cells now, and all the symptoms I was describing over and over again were put down as "normal for your age" and "you should lose weight, eat less"
It messed up my metabolism to a point where I developed food allergies and other autoimmune issues with my skin, hair thinning, and breaking of the usually quite strong nails on feet and fingers.
Still trying to find the right dose of thyroxine.
This is so very sad.
Can't trust family doctors in the US.
I hope you lodged a formal complaint, it’s not likely to be that doctor’s last mistake.
@@amandaharris887 unfortunately no. It was an overwhelming time going for second and then third opinions. Picking up records, researching and then helping with going back and forth to surgeries, ER visits, chemo, picking up RX, helping with her dog, and eventually her weeks in hospice. I was working full time with 3 children in high school and college and lived an hour away. You do what you have to do at the time. She probably would never have considered it since she truly liked him. He continued on her team as the PCP and he seemed more concerned perhaps since he was so mean, in my words, initially. After her last surgery there were several months she was NED. When it came back, it was apparently too soon for her to get in any trials. They said she’d have to have been NED for longer….? She then began another round of different chemo and it was too much for her and it had to stop. She developed ascites, her kidneys started acting up and she then had to go into hospice.
She continued to work,when she could, during those times, she had her own business , and lived well those last months….this was in 2015.
another amazing woman. This youtube channel brings to us strong, positive, altruistic women. Thank you.
@@Krujstr1stop
thank you! Taryn is an incredible woman!
I had to do a bunch of oncology scanning this year because of unexplained pain …went alone …had to do a upper endoscopy no sedation because my family refused to babysit for me …..through me under the bus…left so alone and uncared for…still cry because of it:(…..although turns out my biopsy and endoscopy were ok…doctors bedside manner was terrible….my heart goes out to anyone going through anything …you are a brave warrior …keep on striving
So sorry you had to go through that virtually all by yourself. Best wishes and stay well.❤
I really do hope that you have a better support system now. I hope you're doing better. I know I don't know you. But I pray that you're doing better
I was diagnosed with stage 3 breast cancer at 65, did all the things, then we found out my spine was desiccating in several areas, most recently I was rushed by ambulance for a racing heart rate , 175 was the highest that night, I am not giving up, but I am grateful I am not much younger as you said, it’s less traumatic when you have lived a full life and don’t have young children at home. ❤
Bless you and your journey.
Hoping you are feeling better.
Prayers to you . Never give up hope .
What an incredible survivor Taryn is. Her story is horrifying but inspirational at the same. And she tells it so genuinely. So much of what she said resonated with me. She really knows what she’s talking about. Such a smart, tough girl.
Wishing her a long, happy and healthy life and also want to thank her for the work she is doing to help others who are trying to cope with this terrible disease. I think she’s AMAZING.
thank you for listening to her story :)
Finally someone validating the sense of violation I felt receiving vaginal brachytherapy my medical team just dismissing the trauma I experienced as an overreaction as unusual like they had never encountered a woman traumatised by this treatment. Finally a new member to my team took the time to listen to me and showed me empathy and understanding 2 years later. I cannot believe that they think it’s ok for women to be awake during the brachytherapy treatment physically it might make sense mentally it can be damaging.
I love you, Taryn. And all the great people who come on this channel to help the rest of us.
My beautiful 11 year old cat, Raven, was diagnosed with Neuroendocrine cancer in July. She's still doing well but coughs a bit. Hers is in her digestive tract.
I was told it's extremely rare in cats. I love my fur baby. She's asleep on me now.
Wishing you a ll the best, Taryn❤❤❤
Wishing sweet Raven all the best, too.
try giving daily fenbendazole. It will put it in remission. Look it up on line for dose
As someone who has only seen Taryn through her husband’s streams and videos, I had no idea she was going through all of this. What a fucking champion.
Cancer surviving person here. I love how you just said a little bit of change at a time will add up to big changes over time. A lot of info comes your way when you get the diagnosis. Taking the time to make the changes that are suggested makes 100% sense. It is information given as a recommendation to follow, but changes come one step at a time. Your talk was excellent and real and has given me hope.🌷
thank you for listening to her story!
21:51 Being there for women who were just diagnosed or those that have no one to explain things or to hold their hand through this journey. Some don’t live in an area with great cancer hospitals. We were fortunate. Keep up the good fight girl. What you’re doing it’s very powerful and it’s helping people. I’m 16 year breast cancer survivor.
@@doriasalmon4790This person haunts these videos. 🤮😡
we love to hear from survivors- so happy for you!
My husband is 64. He had an emergency surgery on January 31, 2024, when a hole broke through his stomach, and dumped everything into his abdomen, and he nearly died. His surgeon ordered a scan before surgery, then told us that he may have 3 months to live, but she would know better when she got inside. After surgery, she said it looked like a huge hand full of Rice Krispies was thrown into his abdomen. Cancer growths were everywhere. Oncologist said biopsy showed Neuroendocrine Cancer, Stage 3C/4. He said it was 'rare but not uncommon.' He said it is very slow growing, and had probably been growing for years, if not decades. He said it may STILL be growing for years, or decades, longer. He said that, if you could CHOOSE what kind of cancer you would have, this would be it, since it is so slow. It will never go into remission. It will never be cured, unless God chose otherwise. Oncologist said they can just 'manage' it. It is inoperable, since it is spots and tumors ALL OVER EVERY ORGAN, EVERYWHERE, but looked like its 'source' was the liver or pancreas. His liver was fully involved, tumors are everywhere, and there is a spot on his lower spine. His Oncologist, on his second visit, told him, based on scans and blood work, he would more likely have 1 to 2 years. He has been taking monthly chemo therapies since February 2024. In his most recent scan and blood work, it showed there was no 'activity' or 'change' to any of the dozens of tumors, and blood work was good. He said a more updated long-term prognosis was more like 3 to 5 years. He has been blessed with minimal side effects. God has been very good to us, and we are thankful for every day we are blessed with. Our prayers go out to all who have to deal with ANY illnesses. ❤❤🥰🥰🤗🤗😊😊🙏🙏🙏🙏🙏🙏🙏🙏 An interesting side note...there have been a couple recent local news stories about two local women who were diagnosed with this same cancer, so it's weird that it is, supposedly, so rare. Just interesting. Blessings!!
Agree with all the comments. This lovely person is a gift. Wishing you all the best Taryn, your story will stay with me.
I love your honesty and transparency. This is so helpful for anyone heading down this path. Your story is absolutely terrifying, but inspirational. You are a great example of light at the end of the tunnel. I am so glad you are NED almost 5 years!!!
yes she is!
I have watched nearly every single episode of The Patient Story. Your story was absolutely amazing to listen to. You are so open, honest and funny!
thank you for being a subscriber to our channel :)
When people say "you don't have cancer anymore and look fine ,"I think a perfect answer would be to tell them about having to live with a consequences of early menopause ,other things that it may have permanently affected like your hearing plus the fear of reoccurrence hanging over your head.. There's a lot more to cancer remission than meets the eye and people need to be taught that uncomfortable truth.
No one knows the cancer journey unless they've walked it. They say, "you're good now, right?".
@@sixtyoneeight I've never had to walk it yet but try to educate myself because it is a boogeyman we all fear .
yes, everyone is still learning about this aspect! you truly don't understand an experience unless you've been through it
Taryn, thank you so much for sharing your story. I am a cancer survivor (ovarian, caught at stage one in 2010 because I had an ultrasound for fibroids and the radiologist saw a little cyst in one ovary). Your story brought back many of the feelings (survivor's guilt) and experiences I had (the port; the queasiness of chemo.) I am positive that your story will help everyone who hears it, whether they are on the cancer journey or they know someone going through it. More than anything, I hope you will continue to be cancer free. I'm at year 14 and I hope you will get there and beyond.
so happy to hear it was caught early!
Thank you 💜
Your perspective and story is so humble and also so hopeful!
So happy you beat this. I have gastric neuroendocrine carcinoid cancer. I totally knew what you described
wishing you the best moving forward in your treatment plan!
Thanknu for sharing your journey in beating cancer. God bless u Taryn and your family.
❤❤❤
I’m a breast cancer survivor and was diagnosed during Covid also had my chemotherapy and radiation treatment during Covid.. it was a very lonely time because my husband had to drop me at the hospital but couldn’t come in with me, so I understand what you went through ❤
Same. So bad. Really.
Yes..my sis was stuck all alone during her diagnosis and treatment.
so sorry you had to go through that alone :(
It was so hard, thanks for sharing 💜
You are an inspiration and a bright light. Thank you so much for sharing your journey and your truth ❤. God bless you
Thank you for sharing such important information.
Amazing lady here and also amazing drs.
Between my kids’ mitochondrial disease and my own issues…. I’ve been around the country and know how rare GOOD drs and specialists are. 💜
glad you are finding a great medical team!
Thank you for your very informative and empathetic video. I’m so glad you’re still here, and I hope you have a very long and fulfilling life with your loved ones.
thank you for the kind comment :)
@@ThePatientStory My pleasure! Thank you.
Sweetheart stay strong. You are helping so many people.🙏🏻
Thank you for sharing your story. You are definitely helping people 💛
❤❤❤
Sending love and many blessings for good health and, a long life. I'm a survivor 💪
I had sclc and was on cisplatin and etoposide as well. Brutal treatment
That's lung cancer? Did it work?
@@meepk633 yes, my cancer had zero symptoms and it was caught by my ent by accident. I was treated at MD Anderson and have been NED 6 years.
so we've heard. i'm sorry :(
Thanks for sharing! Blessings for continued good health!
❤❤❤
What a brite, beautiful, light you are!! You have such a strong, positive, spirit in you that LEAPS through the screen!!
Prayers to you that you remain cancer free for the next 100 yrs, at least. 😘🥰🫡💪🙏
@@Krujstr1stop
thank you for sending her well wishes!
Brave beautiful girl. Thank you for sharing. I kept thinking about whether or not you had planned on children…thanks for the Signatara mention. Note to self. Wishing you many, many healthy years ahead.❤
yes she is!
I’m so glad you are so open. Thank you
I really appreciate your knowledge and intelligence and the heart you have to share it all.
we do too!
I am so glad you caught this early. Lord bless you! I knew nothing either . Breast cancer survivor myself ❤ 😊iam old keep eating healthy and positive
BLESS YOU for your honesty and authenticity. I hear you re taking breaks. Keep a balance of giving and just being and enjoying Life. Thank you for sharing so openly - your experiences - your information - and for being so vulnerable in the process. Knowing Healing and Wholeness in and as every Aspect of your Body, Mind and Spirit - All Bodily Systems recognizing their Divine Blueprint of Perfection with Ease and in Grace! Sending Love and Light for the Journey! xo
Oh my I love your talk. Thank you
I don’t have cancer but this showed up in my feed & after watching I feel like I am more prepared if I do get. Thank you for this & best to you.
You are Wonder Woman! Your energy is unbelievable! What happened to France? Did you ever get to do it?
last we knew- she didn't move there yet! she's traveling all over the world right now :)
I went last summer for 2 weeks, but sadly got sick!
I am so glad God blessed you. And that you are a very strong young lady. 💟💟💟
I so much appreciate all of what you are sharing.
When I think of how many times I blew off my yearly PAP - I shudder. I am a grandmother who had a hysterectomy long ago - but a seemingly healthy young woman had this cancer - am calling my children to tell them to always be on time with their check ups.
I had my yearlies but would be 6 months late....not smart.
You’re absolutely amazing.
yes she is!
My heart goes out to you and your husband.
❤❤❤
*We should not say sorry when we cry. Tears are a necessary balm for our soul*
So cool thanks for your story. I am 4 weeks out from DMX and it’s all scary, but you really are an incredible woman. 🎉❤
wishing the best with your treatment plan!
Love your glowing spirit 🪽😇
Your so so brave ❤
yes she is!
If it was said already, I apologize.
Neuroendocrine cancer can happen everywhere in the body. The primary tumor needs to be identified and biopsied or removed. And sometimes the primary tumor can not be found or located for sure.
NET survival is one of those cancers, that can be endured like any other chronical disease.
Mine was discovered by chance and the tumor removal was tough. Being in the tail of the pancreas, the opened up the abdomen to remove the tumor. In one site, the lymphatic system might or might not transmit the malignant tumor cells.
Asking and getting answers to my questions before surgery did not prepare me enough for how rough the open abdominal surgery was afterwards.
If chemo is done for the NET, it must have been faster growing.
Hope the remission will last and you have years to enjoy life for a long time.
I have Neuroendocrine cancer as well. I have had two bland liver embolizations this year. I will be having an abdominal surgery soon to get the primary tumor. I have stage 4, meaning it has metastasized to my liver, a lymph node in my chest, and my right adrenal gland. I’m not sure how many more surgeries I will need, but hearing other people’s experiences does help.
@@sherryadkins2027 maybe we all with NET should get one informational video to show, how many manifestations Neuroendocrine cancer has, and what the singns are, to suspect it. Hormone producing and non hormone producing needs to be mentioned as well as the comorbidities, if there is chromocytoma or MEN as genetic predisposition.
And maybe talking about the different treatment options.
I would have found it helpful to see one place which had carried everything togeter at one site.
It felt quite strange, that there were so few mentions of it, when I started researching, what my problem was, when the first signs appeared.
Yes! NETs can be anywhere, “rare but there” as they say. High grade small cell (what I had) is very aggressive … compared to low grade which tends to be slower moving & can be more “chronic” as you mentioned.
I'm envy you. I am battling with cancer of neoplasm endometriosis, I completed my 6 rounds of chemo last Aug and had my first immunotherapy last month. While I was dealing with cancer, my brother had a brain aneurysm and passed away couple weeks ago. I never tell my family about my health...
I’m so sorry for your loss and what you’re going through, I’m praying for you!
@jodythi1 Thanks! My biggest regret is that I never got a chance to see my brother before and after his passing because of my situation. It has been almost 3 years since the last time I was with my family. I used to video call my mom, but after my first chemo , I started losing my hair and afraid that they would find out about my health, I started to tell them a lie that I accidentally dropped my phone in the toilet and I can not afford a new one.
@@irenedirmyer41 oh noooo… I hope you will reach out to your family and tell them. They would be so heartbroken to hear about you going through this on your own. I just found out my Mom has cancer and I would be so hurt if she hid it from me. God has you, he will help you through this.
Thinking of you 💛
@@blucky1250, Thank you...
Thx for sharing your journey. All the best to you.
thanks for listening!
Wow I’m so sorry 13:49 you went through all that.
Wonderful story and your positive attitude and God got u through it.Your a great speaker for the cause.God Bless You
yes she is!
I wish you many years of good healing and remission
Did you get to go to France?
looking at her social she seems to be traveling all over the world now :)
Hi Taryn. I do not have cancer, but am listening to your comments about sex after cancer and treatment. It sounds like you have come a very long way. Thank God. I'm wondering if anyone ever suggested a pelvic therapist at any point. If at any point in your journey or if you know of anyone experiencing sexual pain post surgery or at any time for any reason, an experienced pelvic therapist may have been able to help you manage that course of your journey. You are a heck of an amazing young warrior.
I had a scary incident with my port insertion. I was prepped for surgery and on a gurney waiting to proceed. The surgeon came in and said she had saved my procedure for last because I was going to be her most difficult. She was going to make up to three attempts to install the device. If she was unsuccessful she was going to have the cath lab attempt it. (Who was the cath lab?) If after one more attempt by them they would stop trying. My chemo would have to be done without a port. She left after making these pronouncements and I felt very scared. Fortunately it was successful. I imagine it was because I was obese? It was not verbal discussed why my case would be difficult? It was traumatizing because I was told this at the point of no return.
I have extrapulmonary small cell neuroendocrine carcinoma and yours is the first video I have seen with a similar diagnosis. All I hear is "rare" and "aggressive. " Two of the studies I have read have used the word "dismal" in regards to prognosis. This give me hope.
Kathy. Look up fenbendazole . Of course follow the treatment your oncologists recommend but in addition to that take fenbendazole order and dosage on line. May have to take for life
Survivor's Remorse is real and adds to the PTSD. It hurt when women younger than me, even though I was young, died. People say the dumbest things, but we forgive them. Even while their comments haunt us.
After our experience with our 7 yr old son that was diagnosed with cancer osteosarcoma 😩😩💔💔 We had been going to a university hospital in California 🌴 mind you we were always STRESSED OUT but my Husband got into a HUGE FIGHT with the oncology dr and it did not go well 😮😮 my husband told that dr YOU ARE A PRACTICING PHYSICIAN all you do is practice on our kids 😮 the dr did not like what hubby said to him ! We transferred to another dr and another hospital 😩😩💔💔 all pediatric patients have a BROVIAC and it really helped they took blood from it and used it to get meds all kids hate needles so the BROVIAC was a life saver
Ciguatera-- to locate cancer early.
To be checked every year means there was a dangerous HPV present. Young girls please, please, abstain or insist on using protection. I am seeing this a lot in the clinic. What she is describing is common.
You are beautiful. ❤
Did any one else in your familhave this cancer like yours ?❤
Was that the primary? I hope u had a pet scan to rule out other tumors sounds very rare to be found on cervix
Taryn sounds like she could ace the MCAT.
Why don’t they put you out before the internal radiation?
Taryn, did you get vaxxed with C*19 in 2020/21. If so did you also get booster shots. I had a total hysterectomy at 30 years of age due to endometriosis in1980. I was constantly reviwed annually since 1994 until I refused to go any longer from the start of C*19, when suddenly told me I had an indication of HPV. I hadn't had sex for over 20 years following VIN3 excisions, I have had a total of three excisions. So where the hell did HPV come from? Thank you for your bravery in recording your journey.
Wow they put my port in immediately.
🙏🏼❤️🙌🏼❤️😇
Never trust 1st diagnosis. Get 2nd or 3 rd opinion always
🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
❤❤❤❤
Did you ever move to France?
😊😊
Turbocancer?
❤🧡💛💙💜🤍💚
❤️🩹❤️
Can buy toys for both of you.
She laughs all the way through her story! She cracks jokes and laughs after every word! Idk I just can’t really empathize with her story because it’s like she thinks it’s some big joke or comedy show! I just can’t with this one….
@@fionaokeefe1906 yes I crack a lot of jokes. It’s a trauma response- I had a 7% chance of survival. I’m sorry you can’t muster empathy for that but I’ll never stop laughing my way through life, even in the face of death. I hope it never happens to you. 💜 and I did cry a few times in the hour long interview.
I find it really refreshing,the way she told her story, it's too somber to listen to some of the stories where they focus on all the grief, tell about how much they cried etc. I'm a nurse and concrete thinker , I like just the facts and understand people are different. Perfect telling of her account in my opinion. I'm having symptoms of increased norepinephrine and high levels, NET runs in family. I have an enlarged area in my neck feels like carotid body tumor and some digestive issues in the lower right quadrant as well as what feels like a little bit of a mass so I'm having an abdominal CT soon.. I am curious if you had the symptoms like anxiety racing heart, diarrhea? This is the second time I've listened to your story thank you! Xo
also , it's her story .. not anyone else's to tell. Can t believe someone wants her to tell her story the way the commenter wants it told.. geez.
I watched alot of videos - am i am the only one who thinks those videos are fake?
Why?
These are definitely not fake. Why would you think such a strange thing?
You think all videos of people with cancer are fake?
I am a real person :)
Yes you weirdo lmao
adds too long
About 35 years ago. I had a total hysterectomy because of bleeding and pre cervical cancer cells. So 2 years ago I was told I have a nodule by your spine, then another test told I have the mass behind my cervix. I said what cervix? I had a total hysterectomy. What did I grow a new one? I stop seeing her. My regular doctor finally sent me for MRI unbelievable I have a cervix so now to find another OBYN bless you honey. You are still here. I will pray for you always. ☮️☮️☮️🩷💜🩵🙏🏼🙏🏼🙏🏼
So eloquently said. May you remain NED. 🫶🏼
It seems like it was just yesterday you told stream about your cancer. You’ve come a long way Taryn 🥹🥹. We’re all glad you kicked cancers butt!
Right?! I remember shaving my head on stream! 💜💜💜