Multiple Sclerosis | Rachael's Story
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- เผยแพร่เมื่อ 29 ก.ย. 2024
- For 3 years, Rachael suffered from symptoms that she could not explain, blurry vision, sensory disturbance, numbness on one side of her body, and fatigue. Multiple doctors told her she was fine. She was starting to lose hope, until she was referred to the Penn MS Center.
Dr. Eric Williamson, MD, Assistant Professor of Neurology diagnosed Rachael with multiple sclerosis. Rachael has MS, but now she also has a plan and team at Penn. Multiple sclerosis (MS) is an autoimmune disease affecting the central nervous system (the brain, spinal cord, and optic nerves). There are more than 450,000 people in the United States with MS, making it among the most common neurological illnesses in North America. Although MS can appear at any age, it most commonly begins between the ages of 20 and 40, and affects women twice as often as men.
The Penn MS Center is made up of experienced, highly-trained physicians and specialists who are experts in the diagnosis and management of MS. Patients benefit from individualized treatment plans and personal care from dedicated physicians, nurses, nurse practitioners, social workers, and a pharmacist.
wow imagine having a parent who actually validates how you feel
I hope you do or did at some point in your life. If not, I'm sorry. My mother was always my cheerleader, my defender and the one that taught me how to love and empathize. It's been hard seeing her change, for various ailments. Hysterectomy, thyroid issues, depression. She's still "my mom" but she responds to things differently, quick to worry about "losing" me every time we don't see eye-to-eye. Not even blow ups, just "I'm sorry I don't have heavy cream here for you, I wanted everything to be perfect, you'll probably never come back!" .... seriously, it's so small but gets such an intense feeling. We don't know what's going on yet, she's very young..54. I'm thinking of bringing up MS to her. So much of it fits. I just want my Mom to be happy, to relax and to know she's loved. I miss who she was when I was young but she's still my Mom. Underneath all the smoke screens, my, confident, strong yet gentle Mommy is still there.
Bro I cried when her mother said she knew she wasn't faking it because when I get sick, I'm worried people think I'm faking it because of how often it happens.
I know right 😭
true! my parents are like dont think too much ...u take stress thats why it happens ...u think abou it thats why it happens i am so miserable.. doctors dont understand and nw i am in canada and i dont even have a health card here to start process idk what to do except being vulnerable
Instead of just acting like they know it all ans push you away when u speak about things
Thank you for posting this. I was diagnosed 6 years ago after my medical complaints were disregarded for 20 years. I was lucky to unintentionally find my favorite neurologist ever and she empowered me to go on ‘as normal’ when I thought there was no chance of that anymore. I had a healthy pregnancy and now have a healthier 3yo who DOES NOT STOP! ❤️
Aww.
May God bless you.
is a neurologist a specialist you have to request to get tested?
That's great
My doct say me pragnance no..becouse ms will be worse.
Most Doctors are the crazy ones anymore! Lazy and don’t want to do the detective work some require for a diagnosis, it’s to easy and much faster to diagnose anxiety or depression these days and move on to the next dollar in line and on top of that we don’t even get lollipops anymore just a big fat bill for nothing. It’s hard to find a good doctor these days for sure but I’m glade you found one and stayed persistent. Good luck I wish you nothing but the best on your life’s journey I’m still looking for that one doctor myself
bruh vision, sensory and swollowing issues is NOT STRESS. Stress does a lot. It does not how ever effect your NERVES. God bless this girl
It does bruh
Thank you for sharing your story. I was diagnosed 3 weeks ago and I thought I was going crazy because I couldn't not explain what was causing my symptoms. K was literally imploding from keeping it to myself for fear of what others would say since my issues could not be seen to the naked eye. Thank you for sharing
Please share your symptoms
Mri?
what are your symptoms and how doctor diagnosed??
Celery juice - 2 cups, pulp removed, 30 minutes before eating breakfast.
it is most likely that your MS is caused by covid 19.
this means that it is not necessarily gene based. but a product of the phosphorylation of sinuclein most likley of bacterial or fungal in nature.
I was diagnosed with MS 12 years ago, and I have set up a channel to share my MS journey to help others with theirs. I'm so pleased you got your diagnosis but it must have been a frustrating time for you.
please say me since 12 years did you get constant symptoms of MS everyday?
Subscribed! 🇲🇽
What’s your channel name?
12 years ago? your MS is genetic, probably in other parts of your family, may show up as a heart arrhythmia called Brugada / or unidentified arrhythmias and even heart failure unrecognized as Brugada syndrome. , MS, Parkinson's, Liver and bile duct problems resulting in lesions in your liver and cholangiocarcinoma, and even Amyotrophic Lateral Sclerosis, these are all manifestations of the same problem. this not an all encompassing inclusive list as many process in the Nervous system rely on this alpha-synuclein and anywhere that protein is located can develop improper Phosphorylation resulting in it not being able to preform its Job, and also resulting in it doing jobs its not supposed to. the very bases of dysbiosis I believe. as those same pathways in the nervous system are used for the messages being sent by the beneficial bacteria and that. means shit just gets all messed up in translation. those messages not being sent or not being recieved in a normal manor cause things to happen chaotically and this manifests chaotic responses. this is why low phosphorus and calcium is a hallmark of COV19. And also has to do with the long covid lethargy. as ATP requires Phosphorylation in order to reset its energy equalibrium.Coronavirus (CoV) nucleocapsid (N) protein is a highly phosphorylated protein required for viral replication....Low calcium and low phosphorus are more prevalent in severe or critical COVID-19 patients than moderate COVID-19 patients. Calcium is being used WITH the phosphorus.... why? well, in parkinsons. the calcium coagulates with this misfolded phosphorilated protein Alpha synuclein and causes " plaques" this also involves fungi. as they make homes in this phosphorilated synuclein and trapped calcium. this substance then gets stuck at the junction where it is supposed to do its Job and cant, becasue of the phosphorilisation.... this mess actually makes it possible for the Static feedback where signals get messed up and can not be interpreted, leading to the twitchy aspects of parkinsons as calcium is a major signaling substance in our anatomy. this alows bacteria and fungi to get into places that they are not supposed to be. and candida a can KILL our red blood cells. with the sugars located in its outer cell wall, even after it is dead itself. there is so much more but not even nearly enough time nor space to get any farther into the madness.
two days ago I diagnoced MYSELF with MS. I have went to my Family Dr. he has ordered an MRI to check for lesions in my brain and CNS I was having these symptoms for YEARS.... YEARS before I or any DR figured any part of my condition out with any hope of accuracy. When I get that MRI I have no doubt that I will be diagnosed as having MS. And I know this is going to happen because I have done so much research about these things that I am beginning to understand how it all works. I am not bragging about self-diagnoses here. what I am saying is that I have done enough digging to find a bone, and its the correct bone. I know it is, I can smell it. I was diagnosed with Brugada over 7 years ago. previous to that, i was being investigated but no results had been found regarding what was wrong with my heart, 6 years of testing before the diagnoses. wanna know something I discovered about a week ago through my intense research...... BRUGADA is a manifestation of MS. Which is connected to My great grandfathers Parkinsons. and my father Just died of cholangiocarcinoma, and that all of these things are geneticly related. its just like a box of cerial. all those pieces are the same, but every once in a while youll end up with a double maybe even a tripple cerial square..... super rare. what are the chances? lol. Y'All dont want to know. Believe me. Its much better when you let someone else do all the reading and are blissfully unaware. Because I almost NEVER want to be rite about what I am searching to understand.
My daughter had been diagnosed with autoimmune multiple sclerosis. She's been hospitalised for the 2nd time and today She had seizures and was taken to the ICU. They did MRI and
ICU doctor said they found a blood clot on one of the vessels in the brain so now they going to do a CT scan to zoom to the exact place and start my girl on blood thinning medication. I am going through so much and can't stop my tears and I have been praying for her. I love my daughter very much!
You are strong, and you will get through this with your daughter.
I hope she’s doing well ❤
Hope she's doing well!
i think the one thing thats devastating for me is that for the longest time i've beaten myself up for not being able to do things right or think efficiently and finding out that MS was the cause for it was pretty nerve wrecking, but it gave me a lot of the validation i needed to stop beating myself up.
How I long to have Dr. like that. Nearly every dr. I see tells me to go on anti depressants.
@@cree33able Yes, of course it does. But the problem is when doctors just throw antidepressants without ruling other potential issues out first. It happens a lot to young women.
Your horse is gorgeous. Little poppet, so sweet. I love horses too but unfortunately came off at gallop about eight years ago, breaking my neck and jolting my pelvic area. I am now disabled with severe fibromyalgia, but recently been getting the shakes, tremors all over my body, but mostly legs and hands. These last two or three hours, so I googled, what causes shakes and tremors, which led me to you and MS - so very similar symptoms, so I may see my doctor. Just could not resist clicking you when I saw your horse, lovely skew bald. Sadly I cannot ride any more. Keep well my friend and fellow horse lover. Andrew, Somerset, England.
Going thru it with a parent is special. I was diagnosed in February
My wife might have MS because she says that her symptoms are the same as MS. Her doctors for years have been telling her she's alright, is arthritis and/or its normal. She'll be having another appointment with her physician on the 18th of this month. Any suggestions of what can she say for them to look at her more thoroughly?
Thanks.
Trucker Lu - neurological symptoms. Ask for a brain MRI. I have had my spine fused and have symptoms such as weakness in my limbs. Try get a brain scan and see a neurologist. Best wishes to you and your wife
stop bullshiting yourselves guys, i have had symptoms of ms, but there is cure for ms.
@@zilyx5448 please say what are the treatment?? is their any medication available?
@@lordzmusic8461 there's no cure for ms... But there are some treatments who can slow down the disease...
@@lordzmusic8461 do you have ms
Oh god. I am 17. I have had these symptoms for years and the doctors look at me like I am crazy and won’t do tests because I am “ so young “ there “ should be nothing wrong with me “. I have all of the MS symptoms. I have thought for years I was going insane because of all of these symptoms- thinking there cant possibly be any disease that can have this many symptoms. I didn’t ever think about MS with my age until a friend reached out to me and told me to look into it. I won’t go self diagnosing and no offense to anyone who lives with MS but I do NOT want to have it at my age- I am holding out hope... but I have a high pain tolerance and am a major realist, I am the type to not seek medical care unless I was shot in the chest, so it is discouraging when these doctors look at me and send me home saying I am fine when I know something is up...
Hi Shay.
Deffinetly speak up. Like you, I had all the symptoms from childhood.
Horrible pain but I just sucked it up. After 10 years of Physios/surgeons/integrated medicine. ( heaps of others) all them telling me there's nothing wrong with me.
I finally got diagnosed with MS. Only because I stopped listening to them all, and started telling them to do their f#$#ig jobs. You have pain tolerance which is good, but living with Chronic pain creeps up and breaks you down.
You don't want to waste the best years of your life in regret. And in pain.
Always question what the doctors are telling you. They all say something differant which can be fucking frustrating.
Wish you all the best
Go STRAIGHT to a neurologist & by past the others. This is what I am doing. 20 years of bullshit from my doctors.
It sucks not knowing, it’s good you know, and you have a plan ...
You're right
I’ve lived with pain, tingling, numbness and many more symptoms for the past 5 yrs and still no answer. I know how she feel. I feel like I’m crazy. I know something is wrong but no one can give me answers.
Have you done a MRI?
Hi Rachel I loved your story. I have had similar symptoms and doctors aren't able to tell me what's wrong. I finally gave up going to physicians because they could never find anything wrong with me. However my symptoms continue to increase the fatigue, muscle pain and numbness are the absolute worse.
Its probably fibromyalgia
Why didn't you did a mri?
How do I contact this doctor? I have family history of MS and been debilitated with worse symptoms for over a year. Ive been passing out and non coherent convulsions multiple times a day. I can hardly move. Im having a hard time getting listening to. Im sighning my medical rights to my mom because she wants to address the state for negligence. I can hardly lift my arms. I have Dysautonomia, pots and more ligament degenerative issue but they don't care to give me any treatments or find the cause. What happens to me is hell. Im genuinely scared for my life.
Hi, I hope you're now better and that you've found a doctor/s that really cares. 🙏🏽 Warm Regards
It's probably EDS(ehler danlos syndrome). These diseases are very difficult to diagnose because mimetize each other in symptoms(fibromyalgia,ms and eds)
How is Rachael now?
My uncle's wife had it. It caused his military careers as Col of the SAS and lost everything to be with his wife.
She died and the armed forces cared zero about him.
It doesn’t surprise me at all . Suffering is never good . It makes you feel worthless 😞
Super exited for you and your doctors for they're great work. I've been looking for your story for many yrs.
They said i was diagnosed with MS, getting attacks got almost fully blind on moth eyes, got disabled on the half of my body, and trouble looking when i had restored eye sight,
One this was weird, they (the doctors) didn't knew what was the cause of it, so i went to a homeopathic doctor checking my vibrations my energy levels and it clearly showed my liver was the cause of all these symptoms, i had a virus in my liver and my liver was damaged because of it. now that i fixed it almost fully my symptoms are super small, almost as if im new and have no issues at all.
This is inspirational. Stay strong and don’t give up. What I learned to reduce symptoms is to have low fat in ur body and that way u won’t be so stiff and leg pain. Also baclofen and gabapentin and be careful with weed cuz sometimes that stuff makes it worse. Drink hella water btw. Good luck to everyone.
I second the weed thing. Was using it to gain weight but made pain at night worse.
It took me months to get diagnosed correctly
I began getting symptoms early. At 14 it was obvious. But in Sweden there is no healtcare help or considerstion to individuals with these condition. So life has been awful. I have tried to leave the nation every single day since their total lack of consideration to my needs turned all into a painful reality, where all decency was absent. I wish I had been born elsewhere. I think they are today guilty of a human rights crime upon my person. Not that I have the time to stick around and argue with them. I want to move away. And live where I would actually get good help on an every day basis.
ms' and other neurological disorders' symptoms/diagnostic criteria must be revisited! to stop labeling people all over the world crazy and delay treatment!
Sir please help me my name is MOSAROF I'm from Bangladesh 35 year old I'm suffering ALS MND disease one year ago please help me sir
I suffer, and my entire soul wants nothing but to leave Sweden once and for all and forever.
Worst is, when (I have family in both Canada and the U.S.) family abroad has tried to help me on Swedish soil all money has been greedily taken by Sweden, and I never had any of it, nor any help or support myself whatsoever.
I been diagnosed since October 12th 2020. My best advice to the newly and old diagnosed is to keep moving don’t stop moving it keeps the MS from not disabling us along with Multiple sclerosis Medication. I’m currently on kesimpta and my multiple sclerosis been stabled since first diagnose.
Good luck to all warriors! 🧡🧡🧡🧡
Hi All, thanks for all your amazing prayers and unconditional love. Praise Abba our Heavenly Father and Christ Jesus always and forever. Glory be to God in the Most High 💪💝🙌🙏
Best news of the day is… my daughter's report came back from US and she got negative autoimmune MS!!!!! 👏🏼👏🏼👏🏼
And she finished her lunch today…. Literally finished everything…porridge, chicken vege and fruit puree
another good news, she has been transferred to the rehab ward for her speech and physio therapies..all these good news came on my 49th 🎂 birthday..that's on 28th June..Thank you Jesus for healing my daughter and giving her back to me in one piece. It's a miracle of God. I rejoice for all the tears and pain I went through since April😄😅😆🎉🎊💖💝❤
Can totally relate. I was finally diagnosed with Epilepsy, and it was actually a relief after all the “You’re just depressed. You’re just stressed”.
I also try to live as before, but I can't do much (
Thanks so much for contributing this video and adding to people's understanding of MS. Based on the number of subscribers and downloads - it's obviously helped a TON of people. Thanks again. #FUMS
Guys please help me out i am suffering daily with this ilness.
I feel i have MS.
SO worth it.