Can we just take a moment to appreciate that not only did you go to classes, but you changed nail colors sometime after class? I mean, that's time managment at its finest👏💜🦓💪
Vote for Trump again for 4 more years of low gas prices, historically low unemployment, and vote "OUT" all them evil, racist & discriminative democrats, like the sick nancy pelosi & adam schiff
We are all chronics here so we fully understand that, life happens and you don't always have the energy to pick up a camera. That said it is good to see you again and we're glad you are better now from that nasty sepsis episode. 💕
I’ve had a feeding tube since I was 2 years old, I’m 19 now. I know how hard it is to deal with infections and pain. I’m also disabled and wheelchair ridden. Let’s stay strong together!
Are people allowed to eat or drink when they have a feeding tube, I mean at least once a day. Please let me know as have come to know about this feeding tube for the first time in my life
Are people allowed to eat or drink when they have a feeding tube, I mean at least once a day. Please let me know as have come to know about this feeding tube for the first time in my life and want to know more. So much impressed with her patience
@@Lavenderhoneycreations I don't know about everyone else with a g tube because everybody is different. In my case, I do eat and drink during the day but it is not enough to keep me alive since my stomach is so small. That's why I have to have the tube. It's a blessing though because I never have to swallow nasty tasting medicine.
@@Lavenderhoneycreations It’s less to do with the fact that you have a feeding tube and more to do with why you have it. I have one and I can’t eat any solid food, but I can drink some things if I go slow, like juice.
You were saying that it’s hard that kids at school have to worry about violence and violence in general and I totally agree. Today at our local mall, there was a shooting, but luckily no one was hurt, but for the people there, it was panic by people screaming and running. Several police were there and I’m sure it was really scary for the ones there. It’s sad to see what we have to worry about when we never should have to.
Your an amazing person Mickey ,your strength is something to be admired sometimes I'm in awe of what you can stand and what your willing to go through to keep fighting and making life work. Truly a blessing🙏🙏🙏💯💯💯
It’s amazing you keep up with college with everything you have going on. Your an inspiration for others with health problems. I’ve just had surgery two days ago so TH-cam videos it is for me while I recover. Well done on being so strong xxx
I'm so glad to hear from you again, I always worry when I don't hear from you. Sorry that you've had sepsis and infection problems, I'll be praying for your continued recovery.
I’m so sorry to hear about the difficult Fall you had. I just had sepsis for the third time and it’s so scary. I have EDS, GP, and many others, so I can really relate to your videos. I’m glad to see that school is going well!
I was just catching up on your Instagram and was wondering if you were going to post on TH-cam anymore. I can’t imagine how scary the sepsis must of been. It’s inspiring that you are able to go to college.🙂 You should do a makeup tutorial. Your makeup always looks so good,
Glad you're back Mickey. I found your channel quite a while back searching for others with Gastroparesis. I'm glad you are doing better. Your beautiful smile and attitude inspire me. Thank you!
I have a Facebook n no Instagram. So this last couple of months I have been checking your TH-cam page and hoping for an update. Been worried about you and so happy that you are part of the survivors club and ok all considering what an ordeal sepsis is. Hugs! Proud of you.
I am so glad to see you are back! I have been worried since I have not seen a video posted for a while. I am sorry to hear about your port. I don't have Instagram.
Micky I have a tip for holding our feeding tube tubing from a vanity point of view. Here at Good Samaritan in Waconia a nursing supervisor came up with this idea to hold our tubing to hide the tube with a catheter holder with velcro strips it really works no one knows that I am being tube feed. It is an amazing tool for us who depend on the feeding tube to get proper nourishment.
It's possible that the "alarm" is really the thing in the bathroom that shoots out fragrance to cover the bathroom smell. If it's low or its battery is low it with make loud alarm sounds that you can hear in the bathroom but not outside it.
every time someone from the us mentions being anxious in school environments bc of shootings or similar stuff it is such an eye opener for me. glad to live in a country where people’s lives are more important than guns. also, respect to you all for going to school despite these scary experiences.
Leslie Dobson I know that and I never said it was.. but it is a country where there is not an active war going on where so many students are afraid of going to school everyday because they might get shot by someone who was able to get their hands on a gun easily
We have a right to defend ourselves in the USA. We have good gun laws. The only thing that needs changed is that background checks should show if someone has a mental illness WITH violent tendencies. Not all mental illnesses though. Otherwise we have good gun laws. Fact#1: Chicago and Los Angeles have some of the strictest gun laws in the USA and yet they have some of the highest gun violence rates in the country. Fact 2: most instances of gun violence is committed with guns that were either obtained illegally or guns that are illegal to own already. Handguns are actually the most used gun violence cases. Fact 3: you don’t need a gun to cause mayhem. If someone wants to do harm they will find a way. Other countries might might have high gun violence rates but they have high knife attack rates, bombings, etc. literally anything can be used as a weapon.
ArmySister2 Yep just like in Ireland and I’m sure more of the protest for rights etc....where the trash receptacles on the streets are bomb proof so if you find a suspicious package you can throw it in it.
Welcome back! Sorry to hear how ill you have been. Glad to hear you're making progress in healing. Enjoy this new chapter in your life. Praying for continuing improvement in your health and success in school. Watch your energy levels and take time to rest. Hugs
Those alarms scare me too!!! I totally understand how you felt like no student should ever have to feel unsafe in school yet most of us do and it’s so frustrating that nothing is done to change the circumstances!
Dang! Hope you’re feeling a lot better now! Sepsis is some scary stuff! Never had it myself thankfully (and I don’t have a central line) but know many who’ve had at least one bout of sepsis and nearly lost a good friend to it a couple of times not long ago. Glad you recovered from it, and I definitely hope you won’t have to deal with it again ❤️
Oh my gosh Mickey... Sepsis is a horrible thing. I'm glad you are doing so well so quick! I'm happy you are enjoying college!! I was told i was a professional student a few times because i couldn't really work in my first choice (BSN-NICU nurse) for very long. And music was my 2nd career, but due to my EDS and all that comes with, i was replaced in the orchestra. Sorry that got on to me. 🙃 Anyway, i am so proud of how far you've come! You are still my inspiration. My granddaughter, age 5 now, who also loves watching you with me became a big sister in October and she asked me to tell you hi! and to have fun in school. 😍😷💗🙏 We are continually praying for your health, and for you to reach each goal you choose. Take care and enjoy life!
The alarm part was so sad. I'm in uni too, but not in the US, so when the alarm rings in my building, 95% of the time it's just the damn lab door alarm that rings after being open for like 20 seconds. The other 5% is like fridges beeping because it's not cold enough, or a hood window being lifted too far up, etc. I don't even think we have a security alarm.
So glad you're starting to feel better. You've been through so much. Missed you! You look so pretty...loved the eye shadow & lashes. Be blessed in school. You're amazing. 😊👍
Oh gosh sterilize the counter if ya don’t already. Just in case. Ya never know. I used to be a janitor. You’d be surprised what can be on a counter top in a public bathroom. Glad your enjoying college. Took me 10 years to get my AA. Feels good though.
Leila Santana I know, I’m now in the medical field, knowing both worlds and the fact that she just survived sepsis. I should’ve used the word clean or wipe down. You just never know so it’s good to have something on hand to clean with. I know that chronic illness has a lot that goes into it. It’s good to be aware and safe as possible.
That alarm may be in the hallway, but may be for an alarm in the handicapped stall. Many places put them in so that if someone who is handicapped needs help/has an emergency, they can pull the alarm (usually right next to the toilet.
@@nigonkouk1770 it's true, and theres nothing wrong with facts. It will only hurt more to do all that school and have hope and believe you can do it just to have your dreams crushed and time wasted when you realize you cant be a physical therapist
@@nigonkouk1770 I agree with Emil- there's nothing wrong with facts bc it will def hurt more to have hope and then have your dreams and yrs crushed later. It's so sad in this society where they say "go follow your dreams- you can do it!" - which is true u Should. But make sure it's still realistic. This is why so many students do wrong careers and realize it's not for them- but they can't do anything about it bc they payed so much money/debt/ and too much yrs and time to do it- and they can't back out of it. That's why they end up becoming into a forced cycle and be unhappy with their job. I'm a high-school student (junior)- and I understand this and that I really agree with this- and to look at facts but just as make sure it's your passion to do it. Cuz you never know - maybe tht dream you have been having forever- and u do it- u realize that you can't do it for whtv reason but you have no other option or you get this constant mantra in your head that - hey it's prob my dream. Maybe it gets better- even thg deep down u know you don't really want this type of pathway career anymore. But hey! Because everyone is getting their "passions and dreams" - then maybe you are too. This is a really destructive false hope the society puts on us or teachers (not all thg bc some have talked that they wanted to show their students realistic goals and that their dreams really aren't capable for their capacity - as good constructive criticism- but they couldn't bc the teachers would loose their jobs and they had to go along with and lie) = again reinstating the whole concept of false hope and dreams.
This really gives me hope for coping with uni. I’m currently at UK college (age 16-18 ish) and it’s definitely really tough with my health. I don’t know how I’m going to cope with uni (US college) especially as I doubt I’ll be able to have a reduced timetable or online classes. Seeing you find a way makes it feel less daunting. I hope life treats you well and please never feel bad for not having the health to post. You come first! 🦓💜🥄
I have gastroparesis as well. Mine isn't bad enough to need a tube. But on bad days, I am only have very small amounts of clear liquids. Thanks for sharing this
I got Sepsis from a 3.5 cm kidney stone one year and we didnt know i had it until the next morning when the dr came in and told us, but im glad they caught it as soon as they did, because i know how bad it can be.
Hi my name is rhianna and I have the hyper mobility type of EDS as well finding you has made me feel as I know I’m not alone And I also get quite worried because I don’t really understand I’m only 13 and was diagnosed at 12 but at least right now it’s not as bad as yours you inspire me a lot also I you could reach out and email me I would make my day also suffer with digestive problems and bawl but I have had to stop gymnastics because of it and now take on swimming but you have inspired me to keep going #zebraforlife 🦓❤️
what are your reasons for going all the way up to a doctorate in PT? honestly, i have never heard of anyone needing a doctorate for that before. super interesting! :) what is your dream job or what can you do with that degree in the field of PT? Anyways, I too am a college student with EDS and it is SO HARD! But thankfully my school has awesome disability services. I get to make my own due dates/deadlines, go to school on my own schedule whenever I am able, extra time on tests, quiet room for test taking, etc. I also get my own "access specialist" as they call themselves to help advocate for my disability. def couldn't do it without it! but even if it takes a lifetime to get our degree slow and steady wins the race. most students never finish in 4 years anyway. really is a big myth.
Hi hi! Im not her, but i have finished my undergrad in exercise science and my plan is to do PT. Rules changed a few years before I started college that says you have to have a doctorate to become a physical therapist (not sure if that’s the same everywhere, but in my state that’s how it works.) It used to require a Masters.
@@liyahonthemove oh wow! thanks for the info. that is so interesting to me. I think that is really upsetting if that would be me wanting to be a PT. that is a lot of money to pour into school and you only get the salary that is nowhere where it should be for that amount of schooling. that is why i was so curious it just sounded so excessive. reminds me just like a teacher.... you put in so much work and even more so that you are hands on with patients every single day compared to a specialist who spends 10 minutes with you and doesn't even check you physically. i get way more out of seeing PT than I do with a lot of other docs I have seen. SO hands on and literally full of so much knowledge. The salary is not good enough imo and that is wrong. :(
Hey beautiful! Glad to see your face!!! I love that you are able to manage your medical needs while attending college! I hope you are healing after losing your friend :(
My daughter had sepsis in November last year, that was horrible. They thought it was childhood cancer, luckily NOT! 👏🏼😩 But still very very scary! 😔😔 She was 1.5yrs old. She’s almost 2 now.
How do you crush your meds? I have tried so many different things but that looked like well crushed meds. I also sit right by the door for the same reason!
When I was in nursing school, my second year we had a school shooting. One girl died, 20 seriously injured. It was terrible. I pray you never have to deal with that.
If you drain stuff out of your stomach, and you have to clean the line with water by pushing it in, does the water make you feel sick? Sorry, that's a dumb question.
YAY your back. I have missed u uploading videos. Stay strong warrior 😊 Oh near my birthday I’m meeting a doctor who knows a lot with EDS and I’m so excited cause I never met someone a doctor who knew a lot with EDS.
Welcome back, Mickey! I’m so sorry that you’ve been so poorly recently. Good luck with the new course, darling. It sounds absolutely awesome xxxxxxxxxx
When I was receiving treatment for leukemia my external port got infected so I got an internal metaport placed. I got sepsis when I cut my toe at home , but a doctor almost sent me home because he thought it was nothing. Luckily my oncologist was there and saved my life because I almost died.
I do the same thing, and caffeine usually absorbs through the stomach wall like a drug so yes! As long as the coffee stays in for at least 15 minutes or so, I think. However I have no issues with stomach drug absorbtion and some people with GP do, so if you cant absorb meds through the stomach wall you might not absorb caffeine either. I don't know about Mickey but I drink morning coffee for the pleasure as well as the caffeine :)
It is so nice to see an update. So sorry you have had such a hard time with your health. Prayers that you continue to get better. You are very inspiring and you should definitely be proud of yourself for doing what you can. Going to school is hard when you have an illness. Take your time and please take care of yourself, that is most important. I will be looking forward to future videos.
I need to ask: what are the pieces of tape you use to secure your tube to your stomach! I’m a new tubie and I’m struggling to find something to keep my tube from pulling away from my skin (I have a dangler)
I’ve had a feeding tube before when I was 13 I’m 17 now it was so embarrassing and uncomfortable I have to be fead through the tube with liquid food the tube feeding makes me sick I have to go to school with a feeding tube. I was so embarrassed it was in my nose and went down to my stomach , now I have a scar from my feeding tube.
I pray to God that his grace comes upon you and lessens your sufferings and brings you peace, love and to heal your health and to give you happiness forever, may Gob bless you'
Can we just take a moment to appreciate that not only did you go to classes, but you changed nail colors sometime after class? I mean, that's time managment at its finest👏💜🦓💪
Chronic Butterfly I know right!!
I WAS THINKING THE SAME THING!!!!
Vote for Trump again for 4 more years of low gas prices, historically low unemployment, and vote "OUT" all them evil, racist & discriminative democrats, like the sick nancy pelosi & adam schiff
Sepsis is very scary and the hardest thing I have ever gone through. I'm praying for you
Heather Turner same here! I’m glad you got through it also heather!
@sky it's a blood infection
We are all chronics here so we fully understand that, life happens and you don't always have the energy to pick up a camera. That said it is good to see you again and we're glad you are better now from that nasty sepsis episode. 💕
I’ve had a feeding tube since I was 2 years old, I’m 19 now. I know how hard it is to deal with infections and pain. I’m also disabled and wheelchair ridden. Let’s stay strong together!
Yay there’s more people like me
Are people allowed to eat or drink when they have a feeding tube, I mean at least once a day. Please let me know as have come to know about this feeding tube for the first time in my life
Are people allowed to eat or drink when they have a feeding tube, I mean at least once a day. Please let me know as have come to know about this feeding tube for the first time in my life and want to know more. So much impressed with her patience
@@Lavenderhoneycreations I don't know about everyone else with a g tube because everybody is different. In my case, I do eat and drink during the day but it is not enough to keep me alive since my stomach is so small. That's why I have to have the tube. It's a blessing though because I never have to swallow nasty tasting medicine.
@@Lavenderhoneycreations It’s less to do with the fact that you have a feeding tube and more to do with why you have it. I have one and I can’t eat any solid food, but I can drink some things if I go slow, like juice.
Yay my prayers have been answered. You’re doing well!!! I am so glad that your life has been improving.
You were saying that it’s hard that kids at school have to worry about violence and violence in general and I totally agree. Today at our local mall, there was a shooting, but luckily no one was hurt, but for the people there, it was panic by people screaming and running. Several police were there and I’m sure it was really scary for the ones there. It’s sad to see what we have to worry about when we never should have to.
Your an amazing person Mickey ,your strength is something to be admired sometimes I'm in awe of what you can stand and what your willing to go through to keep fighting and making life work. Truly a blessing🙏🙏🙏💯💯💯
I'm very glad to see you're back and with the progress that you share in this video.
It’s amazing you keep up with college with everything you have going on. Your an inspiration for others with health problems. I’ve just had surgery two days ago so TH-cam videos it is for me while I recover. Well done on being so strong xxx
I'm so glad to hear from you again, I always worry when I don't hear from you. Sorry that you've had sepsis and infection problems, I'll be praying for your continued recovery.
I’m so sorry to hear about the difficult Fall you had. I just had sepsis for the third time and it’s so scary. I have EDS, GP, and many others, so I can really relate to your videos. I’m glad to see that school is going well!
I was just catching up on your Instagram and was wondering if you were going to post on TH-cam anymore. I can’t imagine how scary the sepsis must of been. It’s inspiring that you are able to go to college.🙂 You should do a makeup tutorial. Your makeup always looks so good,
Glad you're back Mickey. I found your channel quite a while back searching for others with Gastroparesis. I'm glad you are doing better. Your beautiful smile and attitude inspire me. Thank you!
Love you Mickey! You have really helped me cope with my EDS!
I have a Facebook n no Instagram. So this last couple of months I have been checking your TH-cam page and hoping for an update. Been worried about you and so happy that you are part of the survivors club and ok all considering what an ordeal
sepsis is. Hugs! Proud of you.
I am so glad to see you are back! I have been worried since I have not seen a video posted for a while. I am sorry to hear about your port. I don't have Instagram.
Micky I have a tip for holding our feeding tube tubing from a vanity point of view. Here at Good Samaritan in Waconia a nursing supervisor came up with this idea to hold our tubing to hide the tube with a catheter holder with velcro strips it really works no one knows that I am being tube feed. It is an amazing tool for us who depend on the feeding tube to get proper nourishment.
I love the music that you played when you were draining. Glad you’re doing better!
Happy to see you back on TH-cam.
It's possible that the "alarm" is really the thing in the bathroom that shoots out fragrance to cover the bathroom smell. If it's low or its battery is low it with make loud alarm sounds that you can hear in the bathroom but not outside it.
You a toilet master?
@@nigonkouk1770 when I worked in retail that happened to us and no one could figure it out so when someone finally figured it out it stuck with me.
Welcome back! Can’t believe you don’t know more about human biology than most instructors 😉
So happy you’re feeling well enough to go to college and also to give an update. I’m so sorry for all your recent challenges.
every time someone from the us mentions being anxious in school environments bc of shootings or similar stuff it is such an eye opener for me. glad to live in a country where people’s lives are more important than guns. also, respect to you all for going to school despite these scary experiences.
sabrina joanne the 🇺🇸 is not the only country with gun violence....wow
Leslie Dobson I know that and I never said it was.. but it is a country where there is not an active war going on where so many students are afraid of going to school everyday because they might get shot by someone who was able to get their hands on a gun easily
We have a right to defend ourselves in the USA. We have good gun laws. The only thing that needs changed is that background checks should show if someone has a mental illness WITH violent tendencies. Not all mental illnesses though. Otherwise we have good gun laws.
Fact#1: Chicago and Los Angeles have some of the strictest gun laws in the USA and yet they have some of the highest gun violence rates in the country.
Fact 2: most instances of gun violence is committed with guns that were either obtained illegally or guns that are illegal to own already. Handguns are actually the most used gun violence cases.
Fact 3: you don’t need a gun to cause mayhem. If someone wants to do harm they will find a way. Other countries might might have high gun violence rates but they have high knife attack rates, bombings, etc. literally anything can be used as a weapon.
sabrina joanne totally agree. It’s one of the reasons why I’m so glad I live in Australia.
ArmySister2 Yep just like in Ireland and I’m sure more of the protest for rights etc....where the trash receptacles on the streets are bomb proof so if you find a suspicious package you can throw it in it.
Was wondering what happened to you. Glad you are back
Welcome back! Sorry to hear how ill you have been. Glad to hear you're making progress in healing. Enjoy this new chapter in your life. Praying for continuing improvement in your health and success in school. Watch your energy levels and take time to rest. Hugs
Those alarms scare me too!!! I totally understand how you felt like no student should ever have to feel unsafe in school yet most of us do and it’s so frustrating that nothing is done to change the circumstances!
Glad to see you back here! Thank you for this new tiny look in your life. I am glad you are enjoying college so much! Stay strong! Love! 😘
So glad to see you doing a little better! Incredibly happy to have you back to making videos again! I have really missed them! ❤️🦓
Dang! Hope you’re feeling a lot better now! Sepsis is some scary stuff! Never had it myself thankfully (and I don’t have a central line) but know many who’ve had at least one bout of sepsis and nearly lost a good friend to it a couple of times not long ago. Glad you recovered from it, and I definitely hope you won’t have to deal with it again ❤️
Yaaayyy! Missed you so much, glad you're back!
Oh my gosh Mickey... Sepsis is a horrible thing. I'm glad you are doing so well so quick! I'm happy you are enjoying college!! I was told i was a professional student a few times because i couldn't really work in my first choice (BSN-NICU nurse) for very long. And music was my 2nd career, but due to my EDS and all that comes with, i was replaced in the orchestra.
Sorry that got on to me. 🙃
Anyway, i am so proud of how far you've come! You are still my inspiration. My granddaughter, age 5 now, who also loves watching you with me became a big sister in October and she asked me to tell you hi! and to have fun in school. 😍😷💗🙏 We are continually praying for your health, and for you to reach each goal you choose.
Take care and enjoy life!
The alarm part was so sad. I'm in uni too, but not in the US, so when the alarm rings in my building, 95% of the time it's just the damn lab door alarm that rings after being open for like 20 seconds. The other 5% is like fridges beeping because it's not cold enough, or a hood window being lifted too far up, etc. I don't even think we have a security alarm.
Glad you're back and doing better. You are in my prayers.
Glad you are feeling a bit better. I am keeping you in my thoughts and prayers!
So glad you're starting to feel better. You've been through so much. Missed you! You look so pretty...loved the eye shadow & lashes. Be blessed in school. You're amazing. 😊👍
Oh gosh sterilize the counter if ya don’t already. Just in case. Ya never know. I used to be a janitor. You’d be surprised what can be on a counter top in a public bathroom. Glad your enjoying college. Took me 10 years to get my AA. Feels good though.
Leila Santana I know, I’m now in the medical field, knowing both worlds and the fact that she just survived sepsis.
I should’ve used the word clean or wipe down. You just never know so it’s good to have something on hand to clean with. I know that chronic illness has a lot that goes into it.
It’s good to be aware and safe as possible.
Leila Santana would you feel comfortable eating a meal straight off the bench top in a public bathroom? That’s the direct equivalent!
You a toilet master?
That alarm may be in the hallway, but may be for an alarm in the handicapped stall. Many places put them in so that if someone who is handicapped needs help/has an emergency, they can pull the alarm (usually right next to the toilet.
Great to see you're up and about. Love this little relaxed vlog. Interesting to see your routine and the things you need to do to make it possible
so happy that you posted! Hope things are going a little bit better and to see more videos soon!
It’s so lovely that you’re considerate of other people not wanting to be filmed. Always thoughtful and kind. Glad you’re back 💕
Glad you a getting better and nice to see you looking so good
Glad u r back on utube! I missed you! Great that u r able to go to college. It’s a great experience!
Honest question... can you be a physical therapist with all your joint dislocations and stuff? Because it's a fairly demanding job physically.
She can try, why you got to be Evil like that, trying to crush her soul ?
@@nigonkouk1770 it's true, and theres nothing wrong with facts. It will only hurt more to do all that school and have hope and believe you can do it just to have your dreams crushed and time wasted when you realize you cant be a physical therapist
@@nigonkouk1770 I agree with Emil- there's nothing wrong with facts bc it will def hurt more to have hope and then have your dreams and yrs crushed later. It's so sad in this society where they say "go follow your dreams- you can do it!" - which is true u Should. But make sure it's still realistic. This is why so many students do wrong careers and realize it's not for them- but they can't do anything about it bc they payed so much money/debt/ and too much yrs and time to do it- and they can't back out of it. That's why they end up becoming into a forced cycle and be unhappy with their job. I'm a high-school student (junior)- and I understand this and that I really agree with this- and to look at facts but just as make sure it's your passion to do it. Cuz you never know - maybe tht dream you have been having forever- and u do it- u realize that you can't do it for whtv reason but you have no other option or you get this constant mantra in your head that - hey it's prob my dream. Maybe it gets better- even thg deep down u know you don't really want this type of pathway career anymore. But hey! Because everyone is getting their "passions and dreams" - then maybe you are too. This is a really destructive false hope the society puts on us or teachers (not all thg bc some have talked that they wanted to show their students realistic goals and that their dreams really aren't capable for their capacity - as good constructive criticism- but they couldn't bc the teachers would loose their jobs and they had to go along with and lie) = again reinstating the whole concept of false hope and dreams.
she can! my PT makes all my exercises but his assitant is the one who teches them to me. she can totally be the brains behind the therapy.
I was an OTA. I'm disabled. I had to leave the field due to my limitations. Wish I'd known earlier in my education.
Yay your back!
This really gives me hope for coping with uni.
I’m currently at UK college (age 16-18 ish) and it’s definitely really tough with my health. I don’t know how I’m going to cope with uni (US college) especially as I doubt I’ll be able to have a reduced timetable or online classes. Seeing you find a way makes it feel less daunting. I hope life treats you well and please never feel bad for not having the health to post. You come first! 🦓💜🥄
I have gastroparesis as well. Mine isn't bad enough to need a tube. But on bad days, I am only have very small amounts of clear liquids. Thanks for sharing this
So glad you're doing better now, take care 😘
I am wholly impressed with you. Good luck chasing your dreams!
Glad you are back. Missed watching you videos.
Sorry to hear you were going through so much. We're here for you through it all!
Does draining ever make you feel hungry?
I don’t have Instagram. I am glad you are back! You look fantastic!
So glad to see you’re back!!
Good to see you back and doing so good.
Good for you! Glad to hear you are doing better after being so sick! Sepsis is no joke! You got this!
I'm glad you are doing better. I wish you the best.
Love your video just curious when you going do what in my bag video or a planner video
So glad you seem to be doing better! So, so sorry you had sepsis!
I got Sepsis from a 3.5 cm kidney stone one year and we didnt know i had it until the next morning when the dr came in and told us, but im glad they caught it as soon as they did, because i know how bad it can be.
I Was So Happy To See You Posted !!!
Hi my name is rhianna and I have the hyper mobility type of EDS as well finding you has made me feel as I know I’m not alone And I also get quite worried because I don’t really understand I’m only 13 and was diagnosed at 12 but at least right now it’s not as bad as yours you inspire me a lot also I you could reach out and email me I would make my day also suffer with digestive problems and bawl but I have had to stop gymnastics because of it and now take on swimming but you have inspired me to keep going #zebraforlife 🦓❤️
Your awesome! Going to school in all! God bless, and all the best to you.
I have Addison’s disease! It’s great finding someone on here that gets it!
Your positive outlook is amazing. Hopefully your absence means no more than being fed up with TH-cam shenanigans m
Missed you on here! ❤️ So proud of you for chasing your dreams 💕
Well done you will be Dr Life with stripes. ☺☺☺☺☺
what are your reasons for going all the way up to a doctorate in PT? honestly, i have never heard of anyone needing a doctorate for that before. super interesting! :) what is your dream job or what can you do with that degree in the field of PT? Anyways, I too am a college student with EDS and it is SO HARD! But thankfully my school has awesome disability services. I get to make my own due dates/deadlines, go to school on my own schedule whenever I am able, extra time on tests, quiet room for test taking, etc. I also get my own "access specialist" as they call themselves to help advocate for my disability. def couldn't do it without it! but even if it takes a lifetime to get our degree slow and steady wins the race. most students never finish in 4 years anyway. really is a big myth.
Hi hi! Im not her, but i have finished my undergrad in exercise science and my plan is to do PT. Rules changed a few years before I started college that says you have to have a doctorate to become a physical therapist (not sure if that’s the same everywhere, but in my state that’s how it works.) It used to require a Masters.
@@liyahonthemove oh wow! thanks for the info. that is so interesting to me. I think that is really upsetting if that would be me wanting to be a PT. that is a lot of money to pour into school and you only get the salary that is nowhere where it should be for that amount of schooling. that is why i was so curious it just sounded so excessive. reminds me just like a teacher.... you put in so much work and even more so that you are hands on with patients every single day compared to a specialist who spends 10 minutes with you and doesn't even check you physically. i get way more out of seeing PT than I do with a lot of other docs I have seen. SO hands on and literally full of so much knowledge. The salary is not good enough imo and that is wrong. :(
Yay!! So happy to see you again Mickey! xoxo
Glad to see you back and doing at least somewhat better! Much love from a fellow classical zebra.
Welcome back! U are awesome! :D Keep going strong guuurl!!
A lady I know died not too long back from feeding tube issues. M so glad to see that you r doing better.
Glad you are doing better
Hey beautiful! Glad to see your face!!! I love that you are able to manage your medical needs while attending college! I hope you are healing after losing your friend :(
My daughter had sepsis in November last year, that was horrible. They thought it was childhood cancer, luckily NOT! 👏🏼😩
But still very very scary! 😔😔
She was 1.5yrs old. She’s almost 2 now.
How do you crush your meds? I have tried so many different things but that looked like well crushed meds. I also sit right by the door for the same reason!
When I was in nursing school, my second year we had a school shooting. One girl died, 20 seriously injured. It was terrible. I pray you never have to deal with that.
Glad to see you back!!❤❤
If you drain stuff out of your stomach, and you have to clean the line with water by pushing it in, does the water make you feel sick? Sorry, that's a dumb question.
Love you Mickey your amazing get better soon and keep up the great work at school
YAY your back. I have missed u uploading videos. Stay strong warrior 😊
Oh near my birthday I’m meeting a doctor who knows a lot with EDS and I’m so excited cause I never met someone a doctor who knew a lot with EDS.
Your makeup looks beautiful 💚💚
Welcome back, Mickey! I’m so sorry that you’ve been so poorly recently. Good luck with the new course, darling. It sounds absolutely awesome xxxxxxxxxx
When I was receiving treatment for leukemia my external port got infected so I got an internal metaport placed. I got sepsis when I cut my toe at home , but a doctor almost sent me home because he thought it was nothing. Luckily my oncologist was there and saved my life because I almost died.
I'm glad you in school and you seem happy
This might be a weird question, but when you drain out things like coffee, do you still have the caffeine effects of the coffee?
I wondered this too!
I do the same thing, and caffeine usually absorbs through the stomach wall like a drug so yes! As long as the coffee stays in for at least 15 minutes or so, I think. However I have no issues with stomach drug absorbtion and some people with GP do, so if you cant absorb meds through the stomach wall you might not absorb caffeine either. I don't know about Mickey but I drink morning coffee for the pleasure as well as the caffeine :)
im praying for you girl I hope for nothing but the best:):)
It is so nice to see an update. So sorry you have had such a hard time with your health. Prayers that you continue to get better. You are very inspiring and you should definitely be proud of yourself for doing what you can. Going to school is hard when you have an illness. Take your time and please take care of yourself, that is most important. I will be looking forward to future videos.
What mascara do you use? Your eyelashes are amazing. Love from England
A lot to remember to take w u to class or when u leave the house/dorm
We missed you.
Welcome back💕
I need to ask: what are the pieces of tape you use to secure your tube to your stomach! I’m a new tubie and I’m struggling to find something to keep my tube from pulling away from my skin (I have a dangler)
Are they going to put your port back in?
God bless you Mickey your always in my prayers . Hope to talk to you on IG soon
Are you getting another king of central line
Were you put to sleep when your port was installed and removed?
Yes. That is a surgery and incisions are made. It is more invasive than a PICC line.
Your back yay!!!!!!!
I’ve had a feeding tube before when I was 13 I’m 17 now it was so embarrassing and uncomfortable I have to be fead through the tube with liquid food the tube feeding makes me sick I have to go to school with a feeding tube. I was so embarrassed it was in my nose and went down to my stomach , now I have a scar from my feeding tube.
I pray to God that his grace comes upon you and lessens your sufferings and brings you peace, love and to heal your health and to give you happiness forever, may Gob bless you'
So glad u back stay string
May I ask what song were you using in your old vlogs? Somebody else can answer too if anyone knows the name of the song.