IN MEMORY OF AMBER RAE | Born Without Kidneys at 36 Weeks

แชร์
ฝัง
  • เผยแพร่เมื่อ 1 ธ.ค. 2024

ความคิดเห็น • 574

  • @isabelmorinigo5795
    @isabelmorinigo5795 ปีที่แล้ว +534

    My daughter was born with Group B Strep. I remember the department of vital statistics came in and asked me for her name to put on her death certificate. They said she wasn't going to make it through the night. She did and is 36 years old now and has blessed me with 7 grandchildren.

    • @TT-cu7ze
      @TT-cu7ze ปีที่แล้ว +38

      My first baby was born with group B strep. That morning there was a segment on good morning America about it. I never heard of it before that. After several hours I began to throw up and they treated me for it. Sure enough she had it. I waited for 3 days to find out what organs were affected. After 5 days I got to take her home. That was 33 years ago. If the nurses didn't catch it, there would have been a different turn out.

    • @Sea-cucumber1151
      @Sea-cucumber1151 ปีที่แล้ว +17

      Now they test a head of time, my daughter had group strep B as well, so she was treated with antibiotics at least doses and then he was. Now they always test just in case.

    • @pattidale7968
      @pattidale7968 ปีที่แล้ว +20

      @@TT-cu7ze thank you for the kudos to nurses. We don't necessarily get much from our employers, but it's great to get it from those who matter - our patients.

    • @ColleenH38
      @ColleenH38 ปีที่แล้ว +19

      My fourth/last baby was born in April 1990. At that time women were not tested for GBS and even though I had every warning sign during labor, and the nurses were begging my OB to do something, he ignored it all. My full term baby died just 8 1/2 hours after her birth. Sadly even all these years later, most doctors know very little and do very little because as they say "only 2000 babies die each year from GBS so it's not on our radar". REALLY! When did it ever become okay that "ONLY 2000" die"!

    • @kathymckay6112
      @kathymckay6112 ปีที่แล้ว +19

      The same story happened to me with my first born. They came in at 3 am and said, you need to say your goodbyes she won’t make it through the night. She had Strep B. I was alone, no one there to help me process what was happening. She made it through the night and was in the NICU for 2 weeks. Bringing her home was the happiest day of my life. She is 34 and a mom now! I’m so sorry for the mommy’s that don’t get to bring their babies home. Hardest thing any woman can go through. ❤️

  • @umjination4022
    @umjination4022 ปีที่แล้ว +195

    I'm so sorry for your loss. I too have had a still birth at 32 weeks. That was followed by 4 miscarriages in 4 years. I was about to give up when I found out I'm pregnant last year. I had a very difficult pregnancy. I suffered from preeclampsia, gestational diabetes and my baby has growth restriction. I gave birth via emergency CS last 04/23 at only 34 weeks. My little warrior fought for a month in the NICU. I cried and prayed almost everyday for the good Lord to have mercy on my baby. She just got discharged from the NICU a week ago. Such a miracle baby.

    • @reneemcgee9623
      @reneemcgee9623 10 หลายเดือนก่อน

      God bless you and your baby. may God continue to bless you both and your family.

    • @AngelinaATF
      @AngelinaATF 8 หลายเดือนก่อน

      Wow, you’ve beeen thru so much! I’m happy you have a lil warrior‼️💜💜💜😘

    • @joannesbardella5413
      @joannesbardella5413 7 หลายเดือนก่อน

      God bless your little blessing ❤

  • @wyattb2012
    @wyattb2012 2 ปีที่แล้ว +194

    How comforting to know your little boy was waiting to wrap his arms around his little sister in heaven ❤️

  • @chauncyreed4492
    @chauncyreed4492 ปีที่แล้ว +130

    My baby Thea was born on 4/20/23. She has IUGR and I had severe pre-eclampsia. She was delivered at 27 weeks. Due to severe complications she lived u til 4/27/23. Completely heartbroken and devastated. We tried for 5 years to have her and to lose her in one week is unimaginable. I will forever cherish the little time we spent together

    • @ratherboutside2
      @ratherboutside2 ปีที่แล้ว +7

      I’m sorry. My heart breaks for you. 🫂

    • @barbrovaage7309
      @barbrovaage7309 ปีที่แล้ว +1

      l am sp sorry for your loss!

    • @Vivian-nv9hb
      @Vivian-nv9hb 11 หลายเดือนก่อน +3

      It hurts so much to lose your baby! Our first daughter, Lisa, lived for five days in November of 1967

    • @ipacarrollread
      @ipacarrollread 10 หลายเดือนก่อน +1

      I’m so sorry. So very sad.

    • @Millymoobags
      @Millymoobags 10 หลายเดือนก่อน +1

      So sorry for your loss xx

  • @dannadonahue916
    @dannadonahue916 ปีที่แล้ว +31

    Our daughter, Carah Grace was born at 42 weeks. She was born with Trisomy Mosaic 18 syndrome. We were completely unaware of any problems as with the ob appointments. But for me, I knew something wasn’t right. I felt like I was having first time Mom nerves and anxiety and yet something didn’t feel normal my whole pregnancy. Our lil Beauty lived for 15 days. She had multiple complications. She was a miracle that she made it that far. God has a reason for everything. Our lives were forever changed in those 15 days for the better. I learned so much about what a parent was and could be. As heart wrenching as it was, those days are precious to me. Our lil Beauty made her mark on this world and forever changed ours. Her brother was born 4 years later and as a baby he would look over in the corner of the room and giggle and coo often. We feel she was looking out for him. She would be 21 now and still she is so loved and talked about often. I am a Momma of 2 babies. One heaven side and one earth side. My heart is full of love and joy for both of them.

  • @mochacellow
    @mochacellow ปีที่แล้ว +82

    We just buried our baby two weeks ago. Nothing comes close to this pain. Sending all the prayers and love to you and your family.

    • @StephAnie....
      @StephAnie.... ปีที่แล้ว +2

      😢

    • @dianacurry6248
      @dianacurry6248 10 หลายเดือนก่อน +4

      My prayers for peace for you.

    • @stacy6994
      @stacy6994 10 หลายเดือนก่อน +3

      You will get through this. You will never not feel sad. But with time it comes easier. But the disappointment will always be there. I'm so sorry. But it will get easier.

    • @carrielopez1728
      @carrielopez1728 10 หลายเดือนก่อน

      Hugs and kisses from a complete stranger who is praying for you now. I'm so incredibly sorry ❤

    • @SandyKTJV
      @SandyKTJV 9 หลายเดือนก่อน

      ❤❤❤❤

  • @TheGutscheLife
    @TheGutscheLife 3 ปีที่แล้ว +134

    Amber is so beautiful ♥️ I lost my son when I was 36 weeks and couldn’t imagine going through that pain twice. You are so brave telling your story. Sending lots of love to you and your family xx

    • @kat.jax99
      @kat.jax99 2 ปีที่แล้ว +8

      My twins were born at 36 weeks. I can't imagine losing them. My heart goes out to all mothers who have lost a baby. You are so strong. ❤

    • @DefiantAngel87
      @DefiantAngel87 2 ปีที่แล้ว +7

      I'm so sorry.

    • @Millymoobags
      @Millymoobags 10 หลายเดือนก่อน +1

      So so heartbreaking bless to lose a son then a daughter so devastating y niece gave birth ro her son Dominic he was born at 29+3 her waters went at 17 weeks but resealed but because then had gone before 8 weeks his lungs didn't form properly he was so strong and brave and faught for 2 days we all miss him so much xx

    • @sandrabowman8935
      @sandrabowman8935 9 หลายเดือนก่อน

      God bless you and your family so sorry for your losses may God keep his loving arms around you all. 🙏🏽❤️❤️

  • @sassy7999
    @sassy7999 ปีที่แล้ว +43

    Absolutely heartbreaking. I’m so sorry for your losses and thank you for sharing little Jeff and Amber Rae with us. ❤

  • @CatFromFL
    @CatFromFL 3 ปีที่แล้ว +155

    I lost my first two pregnancies. No one spoke about it. Others in the family had babies due similar times. It was so hard. Finally I gave birth to my daughter and 3 yrs later my son. When ever I hear of fetal demise ,stillborn or death shortly after birth, i make sure I acknowledge the loss. Families need it.

    • @756Nichols
      @756Nichols 2 ปีที่แล้ว +13

      That is very courageous of you. I'm glad you managed to have children and no doubt that you will see your 2 that you lost in heaven- they'll be waiting &free from pain,hurt just as perfect as you made them 🌻

    • @glentong3543
      @glentong3543 ปีที่แล้ว +3

      i am so sorry for your loose

  • @danyellediguardia8833
    @danyellediguardia8833 3 ปีที่แล้ว +88

    I lost my daughter when she was 13 days old. I developed severe pre eclampsia at 28 weeks. She was growth restricted. I delivered at 29 weeks. She weighed 1 lb 11 oz. It’s been 11 years and I miss her terribly. I had two other children after her.

    • @kaylaking7845
      @kaylaking7845 3 ปีที่แล้ว +11

      So very sorry you faced this. I had preeclampsia in both my pregnancy and I was terrified during both. Could not relax. Just had my daughter 12 days ago and consider both my kids my miracles. Things could have gone very wrong but they didn't. My heart breaks for you. Heartwrenching loss😢💔

    • @lisajhay4387
      @lisajhay4387 2 ปีที่แล้ว +9

      So sorry to read this, my first baby I ended up in full blown eclampsia suffered seizures, sickness, nose bleeds and migraines… they delivered him and it was 7 weeks before his due date, and he was 3lb8oz and did very well but my blood pressure wouldn’t stay down for a few days so I felt terrible. My second pregnancy I got pre-eclampsia again and again they had to deliver my little girl and she ended up the exactly same weight. I wanted one more baby and we tried but I lost four pregnancies and we stopped and decided we couldn’t go through any more loss xx

    • @sweetjewelstar
      @sweetjewelstar 2 ปีที่แล้ว +4

      So heart breaking can't even imagine

    • @raefarnsworth4278
      @raefarnsworth4278 2 ปีที่แล้ว +6

      My daughter was an IUGR baby. 37 weeks 3lbs. 11 ozs. She turned 25 on July 11th.

    • @chauncyreed4492
      @chauncyreed4492 ปีที่แล้ว +5

      I too had severe pre-eclampsia and delivered at 27 weeks. Also with iugr. Baby Thea was born at 15 ounces. She lived one week and passed on 4/27/23. Very heart breaking. We tried for 5 years to have her. And to lose her in one week is just devastating.

  • @jenniferbooth9348
    @jenniferbooth9348 ปีที่แล้ว +28

    I cannot imagine losing two babies to the same disease. You are so strong to tell your story not once but twice. God works in mysterious ways and she was greeted in heaven by her brother. God bless you all!!!!

  • @reneemcgee9623
    @reneemcgee9623 10 หลายเดือนก่อน +37

    I had twin girls Sabrina and Audrina. Audrina lived 11 weeks and passed with SIDS they were born June 30, 1993. Sabrina is still with us. Thank God, we never forget Audrina. we talk about her almost every day she still lives in our hearts. R.I.P. SWEET BABY GIRL.

    • @suedu9609
      @suedu9609 9 หลายเดือนก่อน +3

      I had twins who were fine and are now 34. I can't imagine the shock of that. She is waiting for you on the other side of the veil.

    • @wendygable4394
      @wendygable4394 3 หลายเดือนก่อน

      Prayers 🙏

  • @SherryDyck
    @SherryDyck 3 ปีที่แล้ว +43

    You are a very good speaker and have told the story of your grief very well. Thank you so very much for sharing. On November 27, 1986, my 3 triplet daughters who were conceived naturally were born prematurely. My very precious babies spent hours in the NICU before they passed away. I was so impressed to see how far hospitals have come with parents spending time with their babies after they pass. 24 hours~ I couldn't believe it. I have no photos to speak of, only a few horrible polaroid snaps that the hospital took, and none of my babies taken together. The photos are so awful I can't share them, in fact, my other children have never seen them. As we both know, some children's lives are measured in utero, some in minutes, some in hours, some in days, some in hours, some in days, weeks, months or years. I love my daughters as much as I love my living children and miss them every day. The pain eases but the love never fades.

    • @756Nichols
      @756Nichols 3 ปีที่แล้ว +5

      God bless you, oh my goodness, the fact that you have said that, well sending love, prayers &hugs sending too you. 💟💟💟🌈

    • @reneebarnhart1836
      @reneebarnhart1836 2 ปีที่แล้ว +3

      I'm so very sorry for you loss. Three precious daughters watch over you.
      I'm so sorry you don't have better pictures. Now there's NILMDTS to help with pictures and saving those moments.

    • @holly8274
      @holly8274 ปีที่แล้ว +4

      I am so sorry about your photos. There are free photoshop groups online like on Facebook that have people that can do amazing things with photos. I don't know if they would be able to help you but I hope maybe it could, so so sorry for your loss ❤️‍🩹

  • @pamudithabmahadiulwewa1503
    @pamudithabmahadiulwewa1503 11 หลายเดือนก่อน +16

    I am truly sorry for your losses. My baby boy James had the same issue. I pray that no one has to go through this 🤍 Thank you for sharing your story and the pictures are so gorgeous.

  • @debbiekeithley7440
    @debbiekeithley7440 2 ปีที่แล้ว +26

    May the Lord comfort you and your husband and sweet young daughter. I lost 1 baby and I completely fell apart. I can't even tell you how much I grieve for you. I can't even imagine losing 2. Your the strongest woman I've ever seen. And your little family is right there with you. May God Bless you in the future and give you another healthy baby. My prayers are there for you and your beautiful little family. 💜🙏

  • @lisajeter9511
    @lisajeter9511 10 หลายเดือนก่อน +6

    I give your husband Mad PROPS for being so hands on at the cemetery!

  • @lisajhay4387
    @lisajhay4387 2 ปีที่แล้ว +156

    Thanks for sharing your sad story. I guess I see myself as a very unlucky parent in that I had three miscarriages at 12, 8,and 15 weeks gestation, and then a still birth at 39 weeks, and she was a little girl we named Kira Leigh Ann. Then we had Kaitlyn Grace who was so beautiful and fun and happy. She helped with all the emotional pain we’d suffered. To cut it short she got seriously ill at 7 years old. She had leukaemia and fought for almost a year but we lost her. We never had anymore kids. Heartbroken forever xx

    • @debraronan8389
      @debraronan8389 2 ปีที่แล้ว +23

      So sorry that you have had such heartache. May God comfort you. XX 😢

    • @cherylwaller4826
      @cherylwaller4826 ปีที่แล้ว +14

      God bless you, Lisa, my heart breaks for you. Just know that it is never God’s will that any of our Angel babies perish. He knows that pain all to well in losing His only Son. He is touched by your grief and sadness. My favorite scripture comes from King David, when his son died. He was praising God in the middle of his heartache and proclaimed “ I can’t bring him back, but I can go to be with him”. We will see our little ones again.❤️🙏🏻🥲

    • @crazydee1955
      @crazydee1955 ปีที่แล้ว +5

      I am so sorry to hear this.

    • @nancycurtis488
      @nancycurtis488 ปีที่แล้ว +11

      So very sorry about the sorrow you had with your babies. I had only one miscarriage at 9 weeks and I lost my oldest son 3 days before his 54th birthday on 9-4-19. We lost the smartest, most handsome, most wonderful son, husband, father, grandson, and employer ever. His death is still an open homicide investigation in Sherman, Texas. Rick was a CPA and owned his own accounting firm in Allen, Texas. The woman who is still being investigated is the woman to whom he was married for 20 months when he died. I am so thankful that I have a younger son and 5 younger daughters. But losing a child, regardless of that child’s age, is so VERY painful. I am so sorry that you have had to suffer this horror so many times. Bless your heart and the family you do have. I hope the doctors discover the reason for this anomaly.

    • @Jimntrix2407
      @Jimntrix2407 ปีที่แล้ว +9

      I'm so sorry for your loss. I had an ectopic pregnancy at 21 then when I got married we weren't able to have children. I know it's not the same. My heart aches for your family. God bless.

  • @vuyanisibisi495
    @vuyanisibisi495 2 ปีที่แล้ว +43

    Ohh God, no parent deserves this kind of pain 😭 I would literally lose myself. Rest well little Angel🕊️

  • @karincampbell9289
    @karincampbell9289 ปีที่แล้ว +9

    I don't even have words. I look back to 35 years ago after delivering my second baby, and back then, there were very few ultrasounds. I can't imagine going through what you all have experienced. May God wipe away your tears, and have you feel his presence each and every day. I wish the best for your family, now and in the future.

  • @annieroberts3818
    @annieroberts3818 3 ปีที่แล้ว +46

    I also had a baby born with the same thing , it’s called potters syndrome 45 years ago it still breaks my heart today. He lived only 4 hours, back then you weren’t allow to hold your baby. I saw him briefly i still struggle.
    2 years later I had another child and the had 7 more babies in the next 12 years. All healthy.
    They are grown now, all of the children as adults with each pregnancy were tested as it is generic.
    Stay strong my prayers are with you.

    • @angmoulton8528
      @angmoulton8528 2 ปีที่แล้ว +8

      I'm so sorry you went through this 😔 not being able to hold your baby is the cruelest, simply not okay

  • @ygfamily1947
    @ygfamily1947 3 ปีที่แล้ว +28

    I lost twin boys a week ago, I feel your pain as a mother this is a worst nightmare. Prayers to you and your family may God restore your broken heart. We have guardian angels surrounded by us. Much love 🤍

    • @reallyrandomthings615
      @reallyrandomthings615 3 ปีที่แล้ว +1

      Sorry for your loss.

    • @ox4920
      @ox4920 3 ปีที่แล้ว +1

      Praying for you to heal 🙏

    • @bdlimea7018
      @bdlimea7018 2 ปีที่แล้ว

      I'm so sorry for the loss of your twins.

    • @carolkontur1442
      @carolkontur1442 ปีที่แล้ว

      Condolences on your loss!

    • @carrielopez1728
      @carrielopez1728 10 หลายเดือนก่อน

      My heart is breaking for you. I will keep you in my prayers and I hope you find peace as soon as possible.

  • @delaneybartling7463
    @delaneybartling7463 3 ปีที่แล้ว +49

    It breaks my heart to see that this family went through not only one but two heartbreaks. I probably wouldn’t be as strong as them if that happened to me. Stay strong and I’ll keep them and Amber in my prayers.❤️❤️💕

  • @libra88888
    @libra88888 3 ปีที่แล้ว +8

    I will FOREVER be praying for your whole family.

  • @susan710734
    @susan710734 3 ปีที่แล้ว +46

    I’m so sorry that you had to bare the loss of two babies. I’m sending good thoughts, hugs and saying prayers for all of you. God Bless You and Your Family. 🙏🙏🙏🙏

    • @carolyn9349
      @carolyn9349 3 ปีที่แล้ว +4

      Praying for you and your family 🙏🏽

  • @stephanieann8115
    @stephanieann8115 3 ปีที่แล้ว +12

    Bre, I wanted to Thank you so much for sharing your beautiful children with us. I hope you are all a little lighter in your grief. I can’t imagine. My heart hurts for you terribly. God’s Blessings on you and your family.

  • @hannahwest2016
    @hannahwest2016 ปีที่แล้ว +29

    That baby girl was beautiful. ♥️ My first pregnancy I delivered a beautiful, healthy baby boy. My second pregnancy, I got pregnant with fraternal twins, and my water in my baby boy’s sack broke at about 20 weeks, and he was born a day and a half later, and passed away. My baby girl twin’s water broke at 23 weeks, and she is now a happy and healthy almost two year old. 🥰 As for your beautiful precious babies, and my sweet precious baby boy, the first thing they are gonna know is Jesus. They lived perfect lives. I will always wonder what could’ve been and will miss him, but he’s in the arms of Jesus now with all of the other precious angel babies. 👼💕

  • @garyh5541
    @garyh5541 ปีที่แล้ว +9

    RIP Little Angel! Prayers for all who love you 🙏🙏🙏

  • @patriciasavage4899
    @patriciasavage4899 3 ปีที่แล้ว +32

    No one should ever have to go through the death of 2 babies. You will be with them again when this life is done. Forever! I am so very sad for you and Jeff. You guys are so strong and I'm sure you telling this story helped so many people in similar situations.

  • @Bnice2any1
    @Bnice2any1 3 ปีที่แล้ว +50

    I stumbled upon this and so glad I listened even though it’s hard to digest what you went through and remembering how mine went, I didn’t get to talk much about my daughter when I lost her so listening to you talk made me feel like I’m apart of the important conversations. I’m so sorry & thank you so much for sharing 🙏

    • @mrspokitstheriot477
      @mrspokitstheriot477 2 ปีที่แล้ว +8

      If your willing to share, I'd love to hear about your amazing daughter.

  • @joyful_tanya
    @joyful_tanya 9 หลายเดือนก่อน +3

    Thank you for sharing your story. I am so sorry for your losses. I got recommend this video out of the blue. Rest in Heaven Amber Rae.

  • @michaelaleach8195
    @michaelaleach8195 3 ปีที่แล้ว +17

    Your daughter is perfect and beautiful. I’m so glad you were able to have a few precious moments with you, I know that meant the world to you. One day you will get to meet your beautiful babies again and hold them both in your arms. Thank you for sharing your story.

  • @barbarahertig237
    @barbarahertig237 3 ปีที่แล้ว +15

    Thank you so much for sharing your story. It is heartbreakingly beautiful. It helps so much to have a glimpse, a piece of your heart, of your joy overwhelmed with the terrible pain of separation. Little Jeff and Amber live in our hearts, too!! They will never be forgotten!! 😇😇❤️❤️

  • @stacypierce530
    @stacypierce530 ปีที่แล้ว +6

    I lost my baby when i was 8 weeks pregnant and had lost a pregnacy in 2006. It still hurts everyday. I ending up having to have a hysterectomy recently. My first baby was born at home.

  • @elmienliebenberg9145
    @elmienliebenberg9145 2 ปีที่แล้ว +61

    I just want to say to all the mothers and fathers who have angel babies, you are so amazing. You are so strong. Even if there are times that you feel you want to breakdown and cannot go on, it does not change that. Its ok to feel that way. There is a reason there is no term in the english language that can be given to parent that lost a child. Its one of the most traumatic events to happen to a person.
    Never stop telling the world your story. So many moms and dads suffer in silence. It needs to stop. Your story is part of you and you should be allowed to talk and tell the world. Its so important for healing.
    I'm sending my love to anyone reading this comment. Know you are part of a community. You arw NOT alone.❤❤❤🙏

    • @amystull5832
      @amystull5832 10 หลายเดือนก่อน

      Thank you! I lost my son... he was 39 years old, from pneumonia and MRSA. Two little girls and Jen at home. When you lose a child, doesn't matter at what age, it's the most gut wrenching pain and loss.... 💔😢🙏🙏

  • @ag5amanda
    @ag5amanda 2 ปีที่แล้ว +53

    When I was 22 weeks pregnant with my daughter the doctor also told me that she didn’t have kidneys and also a heart defect. I remember feeling devastated and broken, however we saw a different doctor for a second opinion who also didn’t find the kidneys but he was able to see fluid around the babies lungs which he said it meant the baby does have at least one working kidney. Thank god the doctors and nurses acted quickly and were able to get me an appointment for an MRI I think 2 days later and they found the kidneys both located at the right place. I remember crying of happiness and being so thankful for saying yes to that second opinion. My daughter still had the heart defect which thankfully has been fixed but I understand the pain and the fear of hearing those words. I send you my deepest condolences. Stay strong and just remember you have two Ángels watching you and taking care of you all the time.

    • @rubaiyasahnama2616
      @rubaiyasahnama2616 2 ปีที่แล้ว +4

      I lost my daughter too .when I was pregnant my doctor told me that the was baby anencephaly. She doesn't have brain and skull .she could die any time. And after 39 week she born but return to our lord. I remember her all the time

    • @peachmelba9333
      @peachmelba9333 2 ปีที่แล้ว +1

      @@rubaiyasahnama2616 a Mama ALWAYS does- may it comfort you to know she will be waiting with her arms outstretched- I too lost a son- not a baby but still I miss him- wish I could him again.

  • @lisajeter9511
    @lisajeter9511 10 หลายเดือนก่อน +4

    I’m so sorry for your loss! Both babies were so very picture perfect! I’m seeing so many more pics of Amber and she is such a beautiful little girl! Hearing the story of the story of the blanket sounds like such a precious lifeline gift to receive.

  • @janettenichols9141
    @janettenichols9141 ปีที่แล้ว +5

    So very sorry for the loss of both your babies. May God comfort you both and Murphy during this difficult time

  • @midnightmadness5307
    @midnightmadness5307 4 หลายเดือนก่อน +1

    I went through some trying medical moments with my only child my daughter, she's now thirty six and my heart goes out to all of you. My daughter's traumas weren't anything such as yours. Her ailments were able to be resolved with medical care/operations. I feel for all of you and thank you for sharing this painful experience. The wee ones are always with you 'always'. xoxo

  • @believeinjesus8862
    @believeinjesus8862 3 ปีที่แล้ว +10

    Can't watch this with dry eyes😭 How courageous to share your life in this way.

  • @karenshepler7128
    @karenshepler7128 ปีที่แล้ว +6

    Thank you for sharing this with us, and may the two babies rest in peace .All the best in the future.

  • @carrieanderson1889
    @carrieanderson1889 3 ปีที่แล้ว +10

    My very first baby, son never developed his bladder or kidneys he was alive for 2 hrs. and 9 minutes after birth 3 weeks early. They told me it was called Potters syndrome also renal genisis. That was 30 years ago this past November 13th. He’s always in my heart. My Angel! I’m very sorry for your loss. It’s very devastating.

  • @nikkimier3617
    @nikkimier3617 3 ปีที่แล้ว +17

    the story of your little Amber Rae was so very beautiful to listen to. The love with your family is incredible and pure. Thank you for sharing this part of your life experience with us.

  • @mariesahota1478
    @mariesahota1478 2 ปีที่แล้ว +5

    Such a brave mother TO TELL HER story

  • @rosestar8293
    @rosestar8293 10 หลายเดือนก่อน +2

    Oh my gosh. That baby so beautiful

  • @cbkeno81
    @cbkeno81 9 หลายเดือนก่อน +4

    Just awful to lose a baby may god bless there precious souls

  • @TexasbyStorm
    @TexasbyStorm ปีที่แล้ว +8

    My mother's oldest sister died shortly after birth. She was born with a very small section of intestine that was severely deformed, no colon, no rectum. She lived a few days as she slowly starved. It was horrific. It was my grandmother's first baby. They named her Joanne. This was long before there was any way to even attempt to fix issues like this. I'm so sorry for the loss of both Little Jeff and Little Amber.

  • @aijab5129
    @aijab5129 9 หลายเดือนก่อน +1

    Thank You for being so brave to share Your beautiful yet sad story with such a love...It's been three years since we lost our beautiful baby angel at 23 weeks-she is with us and in our thoughts as long as we are on earth,waiting to meet her in Heaven...Sending lots of peace and love to You ❤❤❤

  • @SharonJones-ql8oy
    @SharonJones-ql8oy ปีที่แล้ว +7

    What a heartbreaking and at the same time beautiful story. 💞

  • @ardenpeters4386
    @ardenpeters4386 9 หลายเดือนก่อน +3

    it's amazing their little bodies continue to develop.

  • @lisaedwards931
    @lisaedwards931 3 ปีที่แล้ว +18

    This poor family went through two heartbreaks 😭🙏🏼❤️❤️

  • @ox4920
    @ox4920 3 ปีที่แล้ว +22

    My son was born sleeping in August with problems with his kidneys. Praying for this family and all of you who have lost a baby/child. Stay strong 🙏🤍

  • @Biggerbetterboulder1
    @Biggerbetterboulder1 10 หลายเดือนก่อน +2

    This video was posted 2 years ago and I have Amber in my heart today hearing her story from her mom ❤️ You are SO loved little Jeff and Amber 🩵💛

  • @KNGFitness
    @KNGFitness 2 ปีที่แล้ว +5

    Thank you for sharing ❤️I’m currently going through this with my son … watching this is making things a little bit easier to digest.

    • @StillAPartofUs
      @StillAPartofUs  2 ปีที่แล้ว +1

      We are so very sorry to hear that you are going through something like this, too. We hope that Bree's and Jeff's stories of both Little Jeff and Amber help you find a way to connect and love your own child. We're thinking and praying for you.

  • @carkrueger
    @carkrueger ปีที่แล้ว +3

    Amazing courage. Thank you for sharing your story.

  • @georgiemummaof6933
    @georgiemummaof6933 ปีที่แล้ว +6

    Wow that is brutal Brea, I’m so sorry - so beautifully spoken about and the lasting memories you have of both your babies xx
    ❤ God will bless you again xxx

  • @maryellenblount6376
    @maryellenblount6376 ปีที่แล้ว +6

    Thank you for sharing your story. So heartbreaking to lose two babies. God bless 🙏🏼

    • @ruannebettnodiva9378
      @ruannebettnodiva9378 ปีที่แล้ว +1

      Thank you for showing your story. So heartbreaking to lose two babies. God
      bless 🙏

  • @normacamposshute3134
    @normacamposshute3134 ปีที่แล้ว +2

    Shes so beautiful you will see your baby in heaven ❤❤

  • @southernbelle2478
    @southernbelle2478 3 ปีที่แล้ว +12

    My son was born without kidneys at 35 weeks. I never thought I would've been burrying a child when I was 22.

  • @glynisansara
    @glynisansara 3 หลายเดือนก่อน +1

    2 beautiful angel babies. Heartbreaking for all of you.

  • @SusanJones-jz9ny
    @SusanJones-jz9ny ปีที่แล้ว +3

    I cannot imagine what you and your family have gone through. My dearest friend lost a daughter at 37 weeks due to a cord accident. I had just given birth to my 1st child 6 weeks prior to her loss. I later lost a triplet ( delivered twins) a few years later. The baby I lost was pretty much gone at my first ultrasound. ( 18 weeks) but, to carry a child as long as you did knowing what the outcome will be must be simply agonizing. Your story, your strength, your faith is just so sad, but truly amazing too. God bless you.

    • @tinabloomfield7228
      @tinabloomfield7228 9 หลายเดือนก่อน

      I have also lost a triplet ( boy) but delivered surviving twin girls. I had to spend 20 weeks in the hospital to keep them in as long as possible. I still wonder to this day 35 years later, what my son would look like ❤

  • @ruthlarkins2445
    @ruthlarkins2445 10 หลายเดือนก่อน +3

    Prayers sent to all families

  • @sandywuerch
    @sandywuerch 9 หลายเดือนก่อน +2

    Beautiful boy I am so sorry.

  • @carolw569
    @carolw569 3 ปีที่แล้ว +18

    I'm so sorry for your enormous losses. I lost my parents 10 weeks apart. One minute I'd be crying/mourning for one parent which would only remind me of the other so I'd start crying for that one. So what you're feeling is understandable. I ended up being diagnosed with PTSD later on.

  • @Ski7440
    @Ski7440 3 ปีที่แล้ว +5

    So so sorry for your loss. I cannot imagine your pain losing a baby. We had several medical problems with our third baby, but it turned out eventually ok. Sending you healing vibes and big hopes for a healthy baby in the future.
    Best wishes from England xxx

  • @brilliantbutblue
    @brilliantbutblue 3 ปีที่แล้ว +15

    Happy Birth Day Amber Rae for 15th November 🌼🌻🍁 the moulds of her hand sound beautiful. I'm certain she is organising Little Jeff right now😇🤍 Thankyou for sharing your precious Daughter with us Bre🙏

  • @a.life.reimagined
    @a.life.reimagined 11 หลายเดือนก่อน +2

    Heartbreaking, she’s so beautiful❤❤❤❤❤

  • @wowtv101
    @wowtv101 ปีที่แล้ว +4

    My words are so hollow , but i want you to know how sorries i am for your losses !!! I love the fact that your beautiful Angel babies will be on top of you when your time comes !!! Thank You so Much for sharing ❤️

  • @MsRosiecat
    @MsRosiecat 2 ปีที่แล้ว +5

    What amazingly loving parents to go thru the loss of both children to the same condition. I hope it’s a small comfort to know they’re both with God. Xxx

  • @mypaperdreamz
    @mypaperdreamz 10 หลายเดือนก่อน +1

    Such a tragic story. I’m grieving your loss. You are very brave in sharing not only the loss of Amber but the loss of little Jeff as well. I had a miscarriage and I still morn the loss of my child. This story has helped me so much not because of that loss, it’s because of the loss that I’m going through. My husband has dementia. His life is slowly disappearing and I have to adjust as I go. This story was oddly comforting because it felt like the stages that I’m experiencing. God bless your family.

  • @williamcampbell3329
    @williamcampbell3329 3 ปีที่แล้ว +9

    My little Angel grandaughter had the same thing little Amber had . Her mummy and daddy decided to have another baby . They had another daughter born very healthy . I’m so very sorry for the loss of your two very beautiful Angels . ❤️

    • @StillAPartofUs
      @StillAPartofUs  3 ปีที่แล้ว +2

      Thank you for sharing. We're so sorry for the loss of your granddaughter.

  • @a.b.5590
    @a.b.5590 3 ปีที่แล้ว +14

    My second baby also had BRA. He was stillborn at 22.5 weeks back in February of 2018. And then I lost another baby in July of that year at 10.5 weeks. I finally had my rainbow son in June of 2019. 🖤 And now I'm 12 weeks with my 5th baby.
    The fear of being told that your baby has no kidneys or bladder never goes away. I'm always anxious right before ultrasounds... but I try to hold onto hope that everything will be okay. I now have 2 living babies, so I know my body is capable of growing healthy babies... it's just that once you go through getting that diagnosis once, it's hard to trust that it won't happen again.

  • @tanyabrown9839
    @tanyabrown9839 9 หลายเดือนก่อน +2

    Sorry for your looses, children are so precious. I've never actually lost a child but know what it feels like to think one has lost one as my daughter stopped breathing due to a sudden major hemorrhage which blocked her airways and her heart stopped for about 8 to 9 minutes when she was 6 weeks old so we thought she was gone,, I was left doing CPR on her till the ambulance arrived. I always had wanted a large family but ended up only being able to have the two so my grandchildren I have now are so important to me. My daughter's have given me 5 lovely grandkids.

  • @Victoria-fw9xn
    @Victoria-fw9xn ปีที่แล้ว +2

    This breaks my heart… R.I.P prince and princess… My heart goes out to this beautiful family….

  • @shinyhunteralana2297
    @shinyhunteralana2297 3 ปีที่แล้ว +5

    Condolences
    I'm grateful that my nephew's baby was healthy & was born yesterday

  • @claudiadresel4216
    @claudiadresel4216 ปีที่แล้ว +1

    What a beautiful family❣️Though all the heartache you can see the pure love shine through. Thank you for sharing your story and the precious pictures. Prayers and love.

  • @ashaburtell9910
    @ashaburtell9910 3 ปีที่แล้ว +12

    Happy Birthday Amber! What a beautiful story and beautiful baby girl!!

  • @starshowers8312
    @starshowers8312 2 ปีที่แล้ว +3

    I'm so very sorry. Having lost a child I know the pain we went through and you've done this twice. I always feel very protective of parents who are trying to cope with this. I wish there was something that could be said to ease your pain.

  • @sonjajefferson23
    @sonjajefferson23 2 ปีที่แล้ว +3

    What a brave story. sending healing and love

  • @vickimartin3008
    @vickimartin3008 11 หลายเดือนก่อน +4

    This was so very heartbreaking. I cried and cried for the parents. I don't think I could have survived losing two babies in a row. The parents are the strongest man and lady I've ever read about. God bless and be with this family forever. I will never forget them.❤❤❤

  • @anna121ist
    @anna121ist 2 ปีที่แล้ว +7

    I’m not pregnant & probably never will be. But I’ve loved watching birth stories & delivery shows forever. When I took my human growth class in high school the miscarriage/stillbirth unit was fascinating but heartbreaking. This is such a brave thing to share! I have some issues with depression/anxiety that stemmed from the loss of one of my best friends in 2019 ( 8/16/19) I’ve found great comfort writing her & then also I found reborn babies. SO MUCH comfort holding these sweet dolls that seem so realistic… have either Bree, Winter, or any of your other loss parents found help with them?

    • @thelighthousefjcproduction5597
      @thelighthousefjcproduction5597 2 ปีที่แล้ว +1

      May the Lord Bless you and keep you; May the Lord cause His face to shine upon you and be gracious to you; May the Lord lift up His countenance toward you and give you peace. God Bless FJC

  • @ConnyNordlicht
    @ConnyNordlicht 2 ปีที่แล้ว +14

    All my love goes out to you and to this beautiful baby and to you, her parents. Be blessed, you have to go through so much. I had this 2 times, but before birth, tht's a difference, all in all but so sad. Take your time to go through, noone can say when you have to be „over“ it. I never will be but it's part of me now and I wear my two babies deep in my heart and I wrote them letters to tell them how much I love them forever. I will love them and see them again in heaven. Knowing that our Lord cares for them makes me calm. I got a son years later. He's 21 now, studies, but his sister and brother are part of us both and it's good. I am the mother I am bc they passed away. They both are lights in heaven, don't suffer , in nothing, theey feel full of love and they're happy. Perhaps they care for your baby now. Yours there is happy. Be blessed! Call me here, I'll be there for you, whenever you might need someone. And if in 5 years and what reason ever. I'm here for you, day&night, sister.

  • @michellestormmusic2063
    @michellestormmusic2063 3 ปีที่แล้ว +23

    It's hard enough dealing with one. And it's been 28 years. I couldn't image 2. My heart goes out to this family. It takes a lot of strength to tell their stories. I never did. Hid my loss/ daughter until this year. I'm releasing my grief finally. In a song I wrote called "Willow". In hopes it will help remove some of the [quiet] taboo conversations concerning stillborn/infant loss. I can't speak for others. But acknowledging loss, and our babies not being forgotten. People shy away thinking it hurts moms to talk. We hurt whether our babies are remembered by others, or not. Moms (and Dads) grieve with or without support. The process helps WITH it. I never had it. And the grief followed me like an evil shadow for nearly 3 decades. A Mother's heart, never forgets. Christina Naomi. My Angel October 4, 1993.

    • @2particlesinapodcast442
      @2particlesinapodcast442 3 ปีที่แล้ว +2

      God has her now and u will see your beautiful Christina Naomi again someday .. God bless you.

  • @debbieolivarez3322
    @debbieolivarez3322 2 ปีที่แล้ว +3

    I'M so sorry for your loss of your dear sweet baby girl. I will be keeping you and your family in my prayers.

  • @doreenwood3508
    @doreenwood3508 ปีที่แล้ว +4

    She was such a beautiful baby

  • @jojozep7820
    @jojozep7820 3 ปีที่แล้ว +84

    It breaks my heart that money has to come into finding out about your baby’s devastating outcome in the USA. Here in Australia our healthcare is free, we get to say yes to testing even if we’re not ready to know. She is so precious and I can’t even begin to imagine the pain. Love to the family x

    • @EmilyMineDesigns
      @EmilyMineDesigns 3 ปีที่แล้ว +12

      I was watching a documentary last night about PANDAS (not the animal lol) and the one parent said it's called the rich man's disease because insurance companies refuse to pay for any treatments because they're considered experimental. My husband and I were saying how it's sad you have to watch your kid suffer in the US if you aren't wealthy. It shouldn't be this way!

    • @livinglife8333
      @livinglife8333 3 ปีที่แล้ว +9

      The United States is absolutely the worst for health care, if you have a lot of money you can have any tests you need and the very best treatment. If you are poor you get basically nothing.

    • @amandaseigler7520
      @amandaseigler7520 2 ปีที่แล้ว +4

      I live in the USA and yes Money talks, Here money can get you just about anything you want regardless whatever it may be want.

    • @Beirut27
      @Beirut27 2 ปีที่แล้ว +4

      @@livinglife8333 Apparently there is no treatment for babys born without kidneys.

    • @believeinjesus8862
      @believeinjesus8862 2 ปีที่แล้ว +14

      It's not free! You pay high taxes just as we do in Canada!

  • @dianawardrip5171
    @dianawardrip5171 10 หลายเดือนก่อน +2

    Such a beautiful little girl, so sorry for your losses. God bless you.❤❤❤

  • @Kupkakes1224
    @Kupkakes1224 ปีที่แล้ว +4

    My heart hurts! I'm crying for you! I couldn't even imagine going through this! My heart goes to you! You are a strong mama!

  • @kellieb6985
    @kellieb6985 ปีที่แล้ว +1

    Praying for your family. God Bless you all. What beautiful babies you have watching over you.

  • @candicew8674
    @candicew8674 3 ปีที่แล้ว +5

    I'm so sorry for the loss of both your precious babies!! I pray blessings over your family. I pray for peace and comfort for you all!! God bless you!!

  • @leemayhan4199
    @leemayhan4199 ปีที่แล้ว +2

    Very informative, thanks for sharing your story. As a nurse i know often the patients know more about their conditions than the doctors.

  • @cleosingsgreat
    @cleosingsgreat 2 ปีที่แล้ว +2

    Our daughter was stillborn Nov 20 2021 from one bereaved mom to another; I'm so,so sorry for your loss. This is the worst and it sucks.

  • @TheRadtech2011
    @TheRadtech2011 2 ปีที่แล้ว +6

    My heart hurts so much for you and your family. I pray that God brings you peace and comfort when you need it. Amber Rae was absolutely beautiful .

  • @susanowens6393
    @susanowens6393 2 ปีที่แล้ว +2

    So so sorry to hear this about your baby girl. May she rest in peace now. She and her brother are in gods hands now.

  • @janetwalker2897
    @janetwalker2897 8 หลายเดือนก่อน +1

    I. Could not imagine the heart break, but my love is with you and your family. Please stay strong, as she is allways in your hearts, be happy she gives you your strength.

  • @adriennehone4902
    @adriennehone4902 3 ปีที่แล้ว +6

    So sorry for your loss . She is absolutely beautiful……

  • @donnabaardsen5372
    @donnabaardsen5372 2 ปีที่แล้ว +3

    Oh. My. Goodness! They went through this twice! God bless them. How they've suffered such grief is mind boggling!

  • @jackiehollis9058
    @jackiehollis9058 11 หลายเดือนก่อน +5

    My first grandchild was born without kidneys also, he lived for 30 minutes. There's not a day that goes by that I don't think of him. He would be 11 now if he had lived.

  • @berky01
    @berky01 3 ปีที่แล้ว +16

    Very sorry for your loss
    Hope you will find a strength to go forward and trying to get through such an enormous loss and get pregnant with your rainbow baby.
    We’ve had 3 losses snd we’ve made a decision not get pregnant naturally and went through 5 IVF cycles to test each embryo for genetic abnormalities.
    It was the best decision that we’ve made, we can’t go through another loss.
    Kim from Australia

    • @StillAPartofUs
      @StillAPartofUs  3 ปีที่แล้ว +4

      Thank you for sharing your story of loss and your IVF journey.

  • @sarah29880
    @sarah29880 3 ปีที่แล้ว +11

    I’m so sorry for your loss..this is devastating beyond words, you and your husband are so strong and resilient, and your babies will always be with you and in your hearts.

  • @bethjionzo5699
    @bethjionzo5699 ปีที่แล้ว +1

    Thank you for sharing your story. Many blessings to you and your family.