I wish I could get the courage to run. My heart anxiety's kept me away from training for almost 10 years... (SVT, Ectopic and a-fib sufferer here). The SVT seems to be undercontrol after my ablation. That also seemed to have fixed my a-fib (we think the svt triggered a-fib). Now I'm just dealing with the ectopics and I just hate them!
I've had SVT my whole life. (49 now) Heart rate used to hit 120bpm while in SVT, about 4 years ago it changed to 90bpm. It's a little less annoying now. I used to never have it when I laid down but now it happens frequently when laying down. It's weird how my SVT has changed over the years. Another things that's changed is my ability to shut off the SVT when it starts and get back to regular sinus rhythm. For me it's a breathing technique while sitting on the edge of a chair and tilting my head back.(and looking up). This is effective for me about 95% of the time. My SVT has been happening more frequently over the past few years and I've had regular visits with my cardiologist. I'm finally considering an ablation to try and fix it... we'll see. Good video, thx for sharing and best of luck!
Thank you! I hope your able to finally get it figured out. It’s definitely bothersome living with any type of arrhythmia. Im working with electrophysiologist now to try and get my issue figured out.
my heart rate is 90 bpm just standing, and 120 during moderate exercise.. my SVT hits 220 BPM. how is your heart rate so low are sure that’s SVT what you got ?
I don't get palpitations when exercising. A Dr. who visited my bedside on my first overnight stay in the hospital commented after looking at my charts that I should continue exercising vigorously if that's what I wanted to do. So, three years on I run and lift and work a physical job. I really thank that doctor for offering that advice as it completely shifted what I thought would be possible for me going forward. I often get the "little tremors" as I call them but the big episodes are rare now when before the cardiologist told me I was "highly symptomatic." Like our host, I attempted the ablation but the cardiologist couldn't trigger it. Ugh, PSVT has turned my life upside down. One thing I'm always curious about is how others just "ride out" the long episodes without reporting to the ER. Probably because of my age (57), I was told to check myself into the ER. This has me feeling trapped! I have a wall full of brand-new/unused backpacking gear for example. I also had prepared for a big shift to working overseas at this stage of my career but now I'm so unsure. Have any of you traveled, or moved overseas and can offer some advice? Thank you!
I have had this about 5 years now (officially diagnosed after a bad reaction to my third Covid shot 2 years ago that sent me into what I now know was an SVT episode of about 5 hours). That was a long one. Mine are usually triggered by exercise, particularly drumming - yesterday's show produced a few more episodes - the aggressive ones really make me light headed - but I have never fainted from an episode ever. I handle them naturally as best as I can (beta blockers made my episodes worse and I'm really not keen doing an ablation) so I just deal with them as best as I can - good for you on working through them too :)
I had an episode of SVT that landed me in ER. I had no clue what was happening. I am searching to see about sprinting with SVT and your video came up. How do you address the SVT when it hits? Icepacks coughing and bearing down is what I was told to do. WOuld love to hear from one with alot of experience with this.
Hi I just got told I've been dealing with this. Can you do a video talking about how you cope with it? I didn't even know it was okay to exercise like run with it. It feels like it has somewhat taken over my life. I'd appreciate if you could share any tips on living with it.
So sorry I just now saw your comment! It can be very scary at times but I have managed to cope my whole life. There are definitely highs and lows. If your interested I can try and make a video describing things that help me deal with it.
You’re so brave to run with it! I try and walk mostly and do low intensity workouts. I had one this morn after a fast paced stressed walk to a class and some stairs. Just frightening esp when you’re out of your comfort zone when I have one. You’re so brave! Have you considered the ablation? I’m worried about the risks..
I have considered the ablation. I still have not gone through with it yet though. But If they do get worse I will definitely be mentioning it to my doctor! I’ve read a lot of success stories on that procedure and I think it’s something I would consider going through with.
@@chrisblair3488 Yes I backed out of one 3 years ago. I’ve asked to be re referred. I’ve also read lots of success stories and I’m trying to avoid the horror stories. The prospect of not having to worry about when it will strike or deal with it when it does would be life changing! Are you always able to convert yourself out of an episode?
Have you talked with Cardiologist of implanting a Loop Recording Device? I started with PVC's and then A-Fib. I have a loop recording device under skin and it records Tach/Brady/SVT/A-fib episodes so the doctor can see monthly what is happening. My A-fib burden has increased so I am going to have my 2nd Ablation. Hopefully that will stop the episodes and we can reduce the beta blocker meds. You might want to consider talking with doctor about a Loop Recording device. You don't have to carry with you any other devices and worry about if they are waterproof. You also don't have to hook them up during an episode either. Once a loop recording device is implanted the battery is good for 3 years and it stays on 24/7. You don't have to do nothing special. My insurance paid for the minimal procedure to implant it and the monitoring. Something to look into.
Mine last for 5 - 6 hours mostly every night, but sometimes also during they day. . Always afraid it starts again. Mostly when I am relaxed and my body lays down. I wonder what triggers it. I am 55 and it only started 3 months ago. Anyone else has this condition?
Do you experience palpitations everyday? I have SVT too and very bad anxiety now because of it. SVT and anxiety don’t mesh well together obviously. But I experience palpitations at least a few times every week. My svt attacks are usually only triggered by bending down for something or really high stress.
Hey , I’ve had like 4 svt episodes. I have the same issue with anxiety , they usually happened when lifting something or like push up’s , I also noticed that they occur when I breathe through my mouth not 100 sure though
@@ronveeno i’ve had about 6 attacks in the span of 6 years but I experience the palpitations/ flutters very regularly & i’ve dealing with my SVT for so long that I know my triggers for the most part and can navigate around that to the best of my ability it is stressful living with it though considered getting the ablation, but I’m very scared
I have palpitations every day, but I’ve been told they are mostly PVCs but the long episodes happen very randomly. Sometimes a couple times a month sometimes I won’t have a long episode for a couple months. There’s really no rhyme or reason to it. The longest SVT episode I’ve had was about 1.5 hours but it converted out itself luckily.
@@LeadaQuietLlife mine last for 5 - 6 hours mostly at night, but sometimes also during they day. . Always afraid it starts again. Mostly when I am relaxed and my body lays down. I wonder what triggers it. I am 55 and it only started 3 months ago. Anyone else has this condition?
@@LeadaQuietLlife are you on any medication? I'm on beta blockers but I still have some episodes during my work out even tho it comes and goes very quickly but still very scary and it's affecting my life.
I don’t take any medication. I tried a beta blocker but it made me so tired constantly and didn’t seem to help I had to quit taking it. I know what you mean by being frightened I go through the same thing
@@LeadaQuietLlife how did you overcome the fair? I only started back in June and the episodes are making so afraid of exercising. I have been a very active person all my life but now I'm so afraid of any exercise that would trigger the episode. It's very frustrating
Honestly as of recently I’ve really cut down on my high intensity workouts like running. I work a pretty physically demanding job so I stay in shape but it’s gotten to the point where running isn’t enjoyable anymore. I’m just staying positive that the doctors will be able to get it all figured out and one day I’ll be back to doing what I enjoy 100%. Just stay positive and you have to except the condition for what it is. It’s annoying scary and a nuisance but you will get through it.
I wish I could get the courage to run. My heart anxiety's kept me away from training for almost 10 years... (SVT, Ectopic and a-fib sufferer here). The SVT seems to be undercontrol after my ablation. That also seemed to have fixed my a-fib (we think the svt triggered a-fib). Now I'm just dealing with the ectopics and I just hate them!
I've had SVT my whole life. (49 now) Heart rate used to hit 120bpm while in SVT, about 4 years ago it changed to 90bpm. It's a little less annoying now. I used to never have it when I laid down but now it happens frequently when laying down. It's weird how my SVT has changed over the years.
Another things that's changed is my ability to shut off the SVT when it starts and get back to regular sinus rhythm. For me it's a breathing technique while sitting on the edge of a chair and tilting my head back.(and looking up). This is effective for me about 95% of the time.
My SVT has been happening more frequently over the past few years and I've had regular visits with my cardiologist. I'm finally considering an ablation to try and fix it... we'll see.
Good video, thx for sharing and best of luck!
Thank you! I hope your able to finally get it figured out. It’s definitely bothersome living with any type of arrhythmia. Im working with electrophysiologist now to try and get my issue figured out.
my heart rate is 90 bpm just standing, and 120 during moderate exercise..
my SVT hits 220 BPM. how is your heart rate so low are sure that’s SVT what you got ?
I don't get palpitations when exercising. A Dr. who visited my bedside on my first overnight stay in the hospital commented after looking at my charts that I should continue exercising vigorously if that's what I wanted to do. So, three years on I run and lift and work a physical job. I really thank that doctor for offering that advice as it completely shifted what I thought would be possible for me going forward. I often get the "little tremors" as I call them but the big episodes are rare now when before the cardiologist told me I was "highly symptomatic." Like our host, I attempted the ablation but the cardiologist couldn't trigger it.
Ugh, PSVT has turned my life upside down. One thing I'm always curious about is how others just "ride out" the long episodes without reporting to the ER. Probably because of my age (57), I was told to check myself into the ER. This has me feeling trapped! I have a wall full of brand-new/unused backpacking gear for example. I also had prepared for a big shift to working overseas at this stage of my career but now I'm so unsure. Have any of you traveled, or moved overseas and can offer some advice? Thank you!
My eye twitches too with svt 👍🏽
I have had this about 5 years now (officially diagnosed after a bad reaction to my third Covid shot 2 years ago that sent me into what I now know was an SVT episode of about 5 hours). That was a long one. Mine are usually triggered by exercise, particularly drumming - yesterday's show produced a few more episodes - the aggressive ones really make me light headed - but I have never fainted from an episode ever. I handle them naturally as best as I can (beta blockers made my episodes worse and I'm really not keen doing an ablation) so I just deal with them as best as I can - good for you on working through them too :)
I also get palpitations while running
but I never quitted it, just like you, i'm working through it, keep it up!
It can be scary at times but you can’t let it run your life!
I had an episode of SVT that landed me in ER. I had no clue what was happening. I am searching to see about sprinting with SVT and your video came up.
How do you address the SVT when it hits? Icepacks coughing and bearing down is what I was told to do. WOuld love to hear from one with alot of experience with this.
Hi I just got told I've been dealing with this. Can you do a video talking about how you cope with it? I didn't even know it was okay to exercise like run with it. It feels like it has somewhat taken over my life. I'd appreciate if you could share any tips on living with it.
So sorry I just now saw your comment! It can be very scary at times but I have managed to cope my whole life. There are definitely highs and lows. If your interested I can try and make a video describing things that help me deal with it.
You’re so brave to run with it! I try and walk mostly and do low intensity workouts. I had one this morn after a fast paced stressed walk to a class and some stairs. Just frightening esp when you’re out of your comfort zone when I have one.
You’re so brave! Have you considered the ablation? I’m worried about the risks..
I have considered the ablation. I still have not gone through with it yet though. But If they do get worse I will definitely be mentioning it to my doctor! I’ve read a lot of success stories on that procedure and I think it’s something I would consider going through with.
@@chrisblair3488 Yes I backed out of one 3 years ago. I’ve asked to be re referred. I’ve also read lots of success stories and I’m trying to avoid the horror stories. The prospect of not having to worry about when it will strike or deal with it when it does would be life changing!
Are you always able to convert yourself out of an episode?
Have you talked with Cardiologist of implanting a Loop Recording Device? I started with PVC's and then A-Fib. I have a loop recording device under skin and it records Tach/Brady/SVT/A-fib episodes so the doctor can see monthly what is happening. My A-fib burden has increased so I am going to have my 2nd Ablation. Hopefully that will stop the episodes and we can reduce the beta blocker meds. You might want to consider talking with doctor about a Loop Recording device. You don't have to carry with you any other devices and worry about if they are waterproof. You also don't have to hook them up during an episode either. Once a loop recording device is implanted the battery is good for 3 years and it stays on 24/7. You don't have to do nothing special. My insurance paid for the minimal procedure to implant it and the monitoring. Something to look into.
My 11yo nephew has SVT. His bpm is 250+ whenever it happens. He has to go to the hospital every time.
Mine last for 5 - 6 hours mostly every night, but sometimes also during they day. . Always afraid it starts again. Mostly when I am relaxed and my body lays down. I wonder what triggers it. I am 55 and it only started 3 months ago. Anyone else has this condition?
Do you experience palpitations everyday? I have SVT too and very bad anxiety now because of it. SVT and anxiety don’t mesh well together obviously. But I experience palpitations at least a few times every week. My svt attacks are usually only triggered by bending down for something or really high stress.
Hey , I’ve had like 4 svt episodes. I have the same issue with anxiety , they usually happened when lifting something or like push up’s , I also noticed that they occur when I breathe through my mouth not 100 sure though
@@ronveeno yes it’s certain movements that can trigger it. & yes as insane as it sounds even taking A breath in at the wrong time can trigger
@@ronveeno i’ve had about 6 attacks in the span of 6 years but I experience the palpitations/ flutters very regularly & i’ve dealing with my SVT for so long that I know my triggers for the most part and can navigate around that to the best of my ability it is stressful living with it though considered getting the ablation, but I’m very scared
How often do you get them and how long do they last?. I get them almost every night especially when I lay down or relax
I have palpitations every day, but I’ve been told they are mostly PVCs but the long episodes happen very randomly. Sometimes a couple times a month sometimes I won’t have a long episode for a couple months. There’s really no rhyme or reason to it. The longest SVT episode I’ve had was about 1.5 hours but it converted out itself luckily.
@@LeadaQuietLlife mine last for 5 - 6 hours mostly at night, but sometimes also during they day. . Always afraid it starts again. Mostly when I am relaxed and my body lays down. I wonder what triggers it. I am 55 and it only started 3 months ago. Anyone else has this condition?
what and where do you get that device?
Could you please tell me what is the name of the device you have?
It is callled Kardia mobile
@@LeadaQuietLlife are you on any medication? I'm on beta blockers but I still have some episodes during my work out even tho it comes and goes very quickly but still very scary and it's affecting my life.
I don’t take any medication. I tried a beta blocker but it made me so tired constantly and didn’t seem to help I had to quit taking it. I know what you mean by being frightened I go through the same thing
@@LeadaQuietLlife how did you overcome the fair? I only started back in June and the episodes are making so afraid of exercising. I have been a very active person all my life but now I'm so afraid of any exercise that would trigger the episode. It's very frustrating
Honestly as of recently I’ve really cut down on my high intensity workouts like running. I work a pretty physically demanding job so I stay in shape but it’s gotten to the point where running isn’t enjoyable anymore. I’m just staying positive that the doctors will be able to get it all figured out and one day I’ll be back to doing what I enjoy 100%. Just stay positive and you have to except the condition for what it is. It’s annoying scary and a nuisance but you will get through it.