Overcoming Two Rare Diseases - EDS (Ehlers-Danlos Syndrome) & PP (Periodic Paralysis)

[@Eloise_Please]

Thank you for making these videos, as someone with multiple rare conditions including EDS and some kind of paralysis that comes and goes, I really appreciate this and want to learn even if it's not what I've got. Your videos are really informative and personal and that's great!

[@PeriodicParalysisAssociation]

Thank you for your kind remarks. Please visit our website at www.periodicparalysis.org

[@shannongreenwell1278]

I have EDS + Epilepsy

[@PeriodicParalysisAssociation]

We hope you enjoyed Paul's story and thank you for sharing about your challenges. We hope you are able to manage them well.

[@jwilleseries7764]

How old where you when you got an EDS Diagnosis?

[@GoldNGhostsParanormal]

Is there a duplication on chromosome 22.33 per chance? I have hEDS and PP plus a heap of other challenges. I was dx in 1997. Thank you for helping educate folks about this. :)

[@alishamurdock3796]

I’m a (10yr) member of the PPA.
Is there a way for Paul to DM me? I’ve recently been dealing with a neck pain/paralysis connection that I’ve been trying to get answers for. I’ve been to pain specialists and a neurosurgeon to get an understanding of how my neck issues relate to my recurring paralysis episodes. It’s gotten so bad that I’ve been scheduled for a steroid injection this Thursday to help reduce pain and weakness episodes. I’d love to speak to Paul to share experiences. Thanks!

[@PeriodicParalysisAssociation]

Alisha, I will try to connect you to Paul if you send me your email and phone at [e-mail]