Trying my Tactile Medical Flexitouch Lipidema Lymphedema Pump

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  • เผยแพร่เมื่อ 9 ม.ค. 2021
  • My first time going solo, and second time at all. There will be cussing.

ความคิดเห็น • 52

  • @kystdrunk22
    @kystdrunk22 ปีที่แล้ว +5

    Girl, I felt this so hard! I only had help the first day. After that my family was like "you got this"! I feel like this is my exercise for the entire day just getting in and out of this thing! Keep going though! I have seen some serious changes in myself!

  • @pantingcougar707
    @pantingcougar707 2 ปีที่แล้ว +12

    I so feel for you girl. I was ready to throw the damn machine across the floor when I fist tried. After LOTS of work I’m just finally getting it down. And yes it hot and super cumbersome.
    Hope you’re still doing it. It ain’t easy and this condition sucks!

    • @DebbiePike77
      @DebbiePike77 2 ปีที่แล้ว +2

      I can't get all 3 pieces on at once because with the trunk on I can't reach anything. I am just 5 ft tall and with the stomach just can't fasten it all on.

  • @funkdat2818
    @funkdat2818 ปีที่แล้ว +2

    Thanks for the video my daughter has the same machine since she was 14 she's 16 now and I have seen how frustrated she gets with it and wishes she didn't need it and your video helped her not feel so alone she felt she was the only one

  • @healerssanctuary8819
    @healerssanctuary8819 2 หลายเดือนก่อน +1

    You can put a folded towel in the stomach area to reduce the excess size to increase compression

  • @PC-ee1fx
    @PC-ee1fx 2 หลายเดือนก่อน

    Thank you for this. I keep getting that error and plugging everything back in with no change.

  • @karamonsterr
    @karamonsterr 3 ปีที่แล้ว +10

    I just got my pump a few days ago! I am having the hardest time applying the leg garments without my hubby's help and getting them tight enough, like I get SO OUT OF BREATH. Thank you for this video. It helps to see someone else doing it too ❤️ you're so beautiful and I'm so glad I found your channel ❤️ Have you noticed a difference in your swelling? Also do you have a favorite brand of compression stockings?

    • @freedakaye6720
      @freedakaye6720  3 ปีที่แล้ว +2

      I was trying to do it myself but now I just have hubby helping me. It has helped a TON, I swear. They’re even sending me arm attachments. I really like Bioflect, but they run a size big.

    • @imkasi1
      @imkasi1 3 ปีที่แล้ว +2

      YES. The out of breath is NO JOKE. I literally feel like I’ve run a race by the time this thing is on.

    • @mokachyna22
      @mokachyna22 2 ปีที่แล้ว

      I didn’t use my machine for 10 days because it was such a production to get in and out of. I live alone and don’t have help.

    • @mazeflyer1974
      @mazeflyer1974 4 หลายเดือนก่อน

      It is ridiculous. I have to stop periodically to take a breath. I just started a couple of weeks ago and it is such a struggle.

  • @imkasi1
    @imkasi1 3 ปีที่แล้ว +3

    Seriously- your video was a breath of fresh air. I am on day 3 and came to TH-cam looking for some advice. I’m glad I’m not the only one that uttered words trying to get this on and working. I took out a lamp, an iPad, a cup of water, a diffuser, and a water pitcher in my botched attempt and my husband had to rescue me. Night 2 I made it in the garments, only to realize I forgot to plug it in. Night 3 I’m in but feeling like it’s probably all wrong on my body. I got a good giggle out of your video bc I could so relate...hopefully after several months you’ve gotten more used to this!

    • @freedakaye6720
      @freedakaye6720  3 ปีที่แล้ว +2

      Lmao I soooo relate. I should do an update video! You’ll get the hang of it.

    • @mrmurky1118
      @mrmurky1118 2 หลายเดือนก่อน

      Does it work though?

  • @bethsisson1183
    @bethsisson1183 2 ปีที่แล้ว +1

    I am so thankful you didn't edit this. I am so relieved that I am not the only one.

  • @RG-hf4et
    @RG-hf4et 2 ปีที่แล้ว +5

    First step: Use the bathroom first!

  • @mazeflyer1974
    @mazeflyer1974 4 หลายเดือนก่อน

    Thanks for posting this. I just started with mine a couple weeks ago and it is so mush work

  • @padb725
    @padb725 2 ปีที่แล้ว +2

    I feel your pain using that machine. Mine is a 2 hour process that I’m prescribed to do everyday! Whaaa!

    • @eleanormorgan2916
      @eleanormorgan2916 2 ปีที่แล้ว +1

      I'm at three hours per day for the entire suit. That does not include getting the pieces on and off.

  • @mtnmagic1998
    @mtnmagic1998 2 หลายเดือนก่อน +1

    I have these on the way. After seeing how difficult this is, I'm not sure if I'll be able to do it all on my own. I've been using the zip on legs and they're so easy. Thought these would be too. One more challenge I guess. Sigh.

  • @maryjanelucido5644
    @maryjanelucido5644 ปีที่แล้ว

    Thank you Freda for making this video. I don’t feel so alone with this. I have found the same thing, I need to run the fan. It is a work out just to get it all on. I just received mine and a rep came to help me set it up last week. Both the pants and the legs on mine have zippers. I have to use a grabber to pull the zippers up! I use the same words you use when setting it up and taking it off after. I used it 5 days now and it doesn’t get easier. I sure hope it works. Now that you have been using it for a year have you seen improvement?

  • @monacarogers9541
    @monacarogers9541 ปีที่แล้ว

    Hilarious thank you for your honesty I have biotab and it’s so easy I doubt I will switch now

  • @rang52
    @rang52 3 ปีที่แล้ว +1

    Thanks for doing this video.
    Just got mine in the box.
    Your Pug *CRACKS ME UP*
    Get the pup. CPAP machine!!!
    Luvin’ HAHAHA.
    :-)

  • @Hijynx87
    @Hijynx87 ปีที่แล้ว +1

    I just got mine in the mail (ins covered it 100% wow) now I’ve gotta wait for them to come train me. Idk if it’s the same model, I haven’t opened the box yet.

  • @kate2014LR
    @kate2014LR 3 ปีที่แล้ว +3

    Thank you for this video! My Flexitouch are coming soon, and I'm sort of dreading it. Thank you for an honest video about the difficulties of using them. Now that a couple of month have passed, is it any easier? And give that sweet dog a hug for me.

    • @priscillaalonzo2928
      @priscillaalonzo2928 3 หลายเดือนก่อน

      How do you get your size, do you tell them your measurements?

  • @pjt3887
    @pjt3887 2 ปีที่แล้ว +2

    Did anyone from the company contact you after you posted this and offer to help you? I've watched the other video with the leg pieces. It showed them laying them out on a couch or bed then lowerIng your foot into it. Then wrap it so that it's smooth. I know easier said than done. But getting it smoothed out and wrapped securely gives you better results. Hope your feeling better.

  • @Strandysmommy
    @Strandysmommy 5 หลายเดือนก่อน

    Thank you. Thank you for saying what I’m feeling right now coming up on day 4 of this rigamarole. I get so sweaty just putting the damn thing on, and yes I’m not sure how to make it smoother. That’s not happening! 😅

  • @eleanormorgan2916
    @eleanormorgan2916 2 ปีที่แล้ว +2

    I wish there was a remote control for the pump unit.

  • @pamelakitchens5549
    @pamelakitchens5549 2 ปีที่แล้ว

    Love your jeans can I ask where you bought them

  • @socrate677
    @socrate677 4 หลายเดือนก่อน

    After a 3 years i hope you feel good and better
    Can u please tell us about the pump experience is it really helpfull and if it is , how much time it takes you to feel the different ?
    I hope u answer cause im having a very bad lipolymphedema the same body areas
    And do you recommend this brand machine or did you tried another one

  • @loganrichards2166
    @loganrichards2166 2 ปีที่แล้ว

    Hey Freeda! Do you know which doctor referred you to tactile??

  • @dianetakis3712
    @dianetakis3712 ปีที่แล้ว

    I just discovered this video (2022) and I'm hysterical laughing- not at you...with you! I have the same pump and have uttered the same words and wondered the same things...how the hell is someone supposed to get in this god awful stuff without help?!!
    It does work wonders once in it though. I am most compliant with the vest and head garments because they zipper. I keep hoping they will make it easier to get in the garments.

  • @prestigeprestiges8311
    @prestigeprestiges8311 2 ปีที่แล้ว +1

    This is the best company. You’re complaining SMH. I know it’s cumbersome but this model is better than the original brown model. And it works

  • @rebeccahand6158
    @rebeccahand6158 5 หลายเดือนก่อน +1

    I had such a problem putting that on that I don't use it anymore. Not friendly use at all.

  • @shamekastephens6688
    @shamekastephens6688 3 ปีที่แล้ว

    Hi, if you don’t mind me asking, what size is this? I’m buying mine second hand and cannot find information about sizing anywhere. Thank you.

    • @freedakaye6720
      @freedakaye6720  2 ปีที่แล้ว +2

      Let me look! I lost some weight since then so I’m in the smaller of my two trunk pieces since I was right between sizes. I was about 220 and now I’m about 185. So now I’m in the small trunk. Since I’m 5 foot 4 I’m in the short legs.

    • @shamekastephens6688
      @shamekastephens6688 2 ปีที่แล้ว

      @@freedakaye6720 Awww thank you. You're sweet. I actually got the medium, which seems to fit okay. Hoping it will help me. Thanks so much for your video and, for your response. Greatly appreciated.

    • @freedakaye6720
      @freedakaye6720  2 ปีที่แล้ว +1

      @@shamekastephens6688 I hope you have good results! Between pumping and taking nattokinase and serrapeptase and guafenisen my pain is really reduced a lot!

    • @shamekastephens6688
      @shamekastephens6688 2 ปีที่แล้ว

      @@freedakaye6720 thank you for these suggestions. I’ve been doing magnesium, selenium and butcher’s broom and my swelling isn’t as significant as it was. Doing all I can to get relief. Thank you again.

    • @ShannonAhern
      @ShannonAhern 8 หลายเดือนก่อน

      👍🏻

  • @vanity68
    @vanity68 3 ปีที่แล้ว +1

    This is why I went to Amazon and got a compression pump for 80. And it’s easy peasy to do.

    • @freedakaye6720
      @freedakaye6720  2 ปีที่แล้ว

      Tell me more!

    • @vanity68
      @vanity68 2 ปีที่แล้ว +3

      @@freedakaye6720 I actually got it but I am getting the flexitouch. Because the Amazon one only squeezes. The flexi is like a massage. And with the abdominal piece it actually moves the fluid out of the body. The Amazon one doesn’t. The flexitouch is a thousand times better. I tried it and it’s amazing.

  • @Hijynx87
    @Hijynx87 ปีที่แล้ว

    Looks like you are about to put out a damn fire haha

  • @DebbiePike77
    @DebbiePike77 2 ปีที่แล้ว +1

    I got the trunk garment on but it only massages the bottom, not the top. I HATE it!!!!! Could not get a refund but listen to this. After the insurance payment went thru, a woman from Textile Medical calls and ask, "Did you want to return your machine only"? What a bunch of liars they are. She knew I could not get another one after insurance had paid.

    • @noneofyourbusiness4616
      @noneofyourbusiness4616 2 ปีที่แล้ว

      the lack of actual compression in the torso is completely dishonest malpractice. most of my lymphedema is in the torso and it has zero compression there; it's just a piece of fabric with no air pockets in it. liars.

  • @mariel.4566
    @mariel.4566 2 ปีที่แล้ว

    Your dog is just sitting there wondering what’s going on.

  • @tamicoulson3973
    @tamicoulson3973 3 ปีที่แล้ว

    Did you read instructions?
    You pinch the tabs to plug in

    • @freedakaye6720
      @freedakaye6720  3 ปีที่แล้ว +2

      Lol I have severe Adhd. Reading instructions is not the way my brain operates. :) I offer authentic experience videos not instructional videos.

    • @pantingcougar707
      @pantingcougar707 2 ปีที่แล้ว +2

      That was rude. I read the instructions and watched the vids twice and still had issues. Finally got it with the help of a rep. This is NOT easy to do on your own.