Dementia Care and Training Specialist Teepa Snow joins Senior Helpers to discuss common issues that might come up during the course of the dementia disease.
As a nurse that has worked in a rehab/nursing home, I must say this lady has absolutely nailed the symptoms and actions of those who are suffering from dementia. And as a daughter caring for my 87 year old mom, I can say she also explains the stressors so accurately. Wonderful teacher!
After learning about Dementia just within the last year & 1/2..this is the only video where someone completely tells it as it is. It's a horrible, heartbreaking disease. I'm so going thru this with Mom. Please pray for me & my family..I truly am hanging on for this dear life to give me strength. God has to! Much Love, SCNEESE
I was drinking tea while watching this and at minute 5, I about spit it out laughing. My husband has Younger Onset Alzheimer’s and I pray we both keep our sense of humor through this as long as possible. Love Teepa Snow!
OMG I need this now. Both my paremts are going down fast. 80 and 82. I'm an RN and keep trying to help them. This is the refresher course I need. I've worked in hospitals and nursing homes and in-the-home private duty. I've seen it all. But my situation is, it's my parents. It's extremely difficult even though I am familiar with dementia.
I was diagnosed about 2 1/2 years ago. This is pretty accurate… I also forget what we just talked about 10 minutes ago. My wife and 3 children are very very patient with me. I will never go anywhere dark …not even with someone…I still do the grocery shopping .. it’s 5 minutes away 🤣… I will not ever go anywhere dark… no way.. I like our friends coming here but I can’t go to their house.
My Nana had Alzheimer's, it's a heartbreaking, horrible disease that takes the person away before they're dead.... I was mourning her death years before she died, because it wasn't her anymore. But I do remember visiting her the last time, long after she was non verbal, but she was smiling and could tell I was someone who she cared about. And when I gave her a kiss goodbye and said I would visit again, she said "thank you." The last words I heard her say, and long after I thought she couldn't speak anymore. Tiny glimpses shine through sometimes, which can help, but also just make the pain worse. Anyway, thank you for educating people, and reminding us this isn't a memory loss disease...it's a brain eating disease. My literal worst nightmare.
I have no idea how I stumbled across this channel, but I'm so glad I did. Teepa has such a powerful, imaginative way of speaking and presenting concepts that I find myself hanging onto every word. It's almost like slam poetry. Bravo.
Thank you so much. I was thrown into a "dimentia like" state for 2+ years after 2 mini strokes and a head injury. **The stuff you talk about between 5 and 7 minutes .. just blew me away. I now 'get' why so many couldn't stand "me" .. it wasn't me.. :( Phew .. Thank yuo
Such a scary disease. My friend was just diagnosed with PPA. She’s only 56. I’m having trouble dealing with it. These videos help so much. Even though it’s scary, I feel much more prepared for what is yet to come. I wish I had someone to talk to who has been through this. I recently visited her. She has pretty severe apraxia of speech. She’s also having trouble with fine motor control. I also noticed she clears her throat constantly and has to have a bottle of water with her at all times. In addition, she seemed very out of touch with her emotions. That spark that made her the person I grew up with seemed absent. She was still my friend, but a more basic distillation of the person I knew. It’s scary because it’s so early in the process. The symptoms started 3 years ago and she was just diagnosed a few weeks ago. I’m afraid for her and feel so lost on how I can help. I continue to read and watch videos online. Even the experts don’t seem to fully agree on how to classify Primary Progressive Aphasia. Some say it a form of Frontotemporal Dementia. Others say it is a symptom of Alzheimer’s. I’ve read quite a few NIH studies, but even those are on very limited population sizes. The doctors who gave her the diagnosis didn’t explain to her that it is a form of dementia or explain how the disease will progress, so I have to be extremely careful what I say as I don’t want to upset her. It’s really frustrating how little is really known about this disease.
I just happen to click on this video and I just want to thank you for explaining shadowing It was driving me crazy. And understandinding the clinging is because I am the one my mother trust the most. I was angry at my siblings for not doing enough but I am looking at this in a whole different way Thanks Again
My husband is 45 and is displaying every single one of these behaviours. His doctors are trying their best, but he refuses medical care. He's turned all of the family against me and has bouts of blackouts/memory loss every few days. Getting a diagnosis is nearly impossible because he refuses treatment and no one will say he's not in his right mind.
hey, i m in similar situation with you. He got my 2 boys to boycott me . Form a different group chat for only father n 2 sons. A diabetic & i suspect the side effect of metformin is causing his Vit B12 deficiency. He is still living in denial and refused to see a neuro / geriatrician despite being reminded. He has his good n bad days . Worst is he has instant gratification, buying many pairs of shoes, bags , hangers , tissue papers 🙂n snacking non stop.
I wish I had known more about this disease 10 years ago. My mother had suffered from it and none of us knew anything about the early signs. There were fights, there were arguments. The family unit was basically destroyed. The damage was done by the time it was discovered what was happening. My mother is gone but now my father is showing the same signs. Round #2...but at least we are all a little better prepared. Thank you.
@@sylviaehrlich4359 No worries, my family wasn't a role model of perfection to begin with anyway. But I do share my experiences and lessons learned as much as possible to help others in hopes of saving them from the heart aches suffered by my own family due to this disease. Thank you and I pray you will never have to travel that same path my family has had to travel. Blessings to you and yours. ❤
When you said it will wear you out ...this is what happened with my dear Dad .... Now mother has last stage dementia and six years ago my father was her carer and he died of a massive stroke.he wouldn't let us help he would say they were ok ..he for got to take his medication sooooo sad .so yes dementia patients will wear you out ..💜ripDad💜
What a blessing someone told me about you Teepa, also the videos you made. Can't stop watching over and over again, taking notes. Taking care of my 90 year old mom is getting harder with her dementia now, I think I also have it too. Since I am diabetic feeling the brain failing had to step back ask for help. I'm happy my 24 year old son is stepping up. Since he is going to college for psychology. This will give him hands on helping people with this dementia/behavior. Thank you again Teepa ♥
I live in a nursing home, in a psychiatric ward/ department, mostly for serious anxiety problems. All the other wards are dementia patients. It can be very tiring, especially when you are not feeling well yourself. They all think you are a nurse because you are younger. They want you to help them to the toilet, take them to their room (I have no idea where their room is), once a man kept following me because he wanted me to take him to his room, he did that for days. I have been hit, touched inapropriately, and verbally abused. I have to hide food in the living room because someone from another ward, someone with dementia, is always out to eat any food he sees. I try to be nice, but sometimes I can't do it. Of course, those people are not loved ones, they are strangers. I am trying to understand more about the disease so I know why they do it all, but it's still hard. We are moving out of the home, and into our own building, but it will still take two years. Finally someone understoond that the combination of psychiatric patients and dementia patients is not ideal, to say the least. Also, people who come in now with dementia are in later stages. Budget cuts.
We need her at all the nursing homes for us CNAS to learn, we were never taught on how to care for this nasty disease, we were clueless, so we learned the hard way.
*So sad, but anyone who has looked after a loved one with dementia will know how hard it is physically and mentally. My heart goes out to anyone/everyone affected by Alzheimer/Dementia. A huge shout out to any caregiver doing this alone! I feel your journey. I feel your pain because I've been there. My mom was also diagnosed in her 60s. Feeling absolutely shattered, heartbroken and drained , working with different physicians across the country, used Donepezil and many other drugs, with little or no improvement. I was exhausted and overwhelmed to look any further. Crying a lot through frustration, anger and despair, But today with the help of Homeocure Worldwide Natural Medicine, my mother is completely healthy and well again. I think we only need more support and sunlight to overcome this dreadful disease. Search for support regardless and don't stop until you get it. With Homeocure Worldwide treatment, there is hope, don't give up! Check out this blog for useful info️; **homeocureworldwide.blogspot.com**, Be it any condition, natural treatment and a healthy diet is a road to fast recovery.*
Boy Do I need Help. This is my mother and she won't let me help her. I hate this disease. I am just starting to learn more about it but now its so far progressed I am struggling.
This hit home in so many ways and I wish that I had known about Teepa a year ago! I am going to make the time to soak up all your insightful information. Thank you thank you!!
Shadowing. I'm experiencing this. It is the STRONGEST URGE and I'm fighting with myself because I know my son isn't gonna like it. I think one of the reasons we get so far along before we're diagnosed may be that we recognize that what we're feeling isn't appropriate and we fight it. I feel like I'm fighting on so many fronts, not the least of which is the doctor who said to me, "well I can't talk you into believing you're depressed". Shit fire man, give me some credit for recognizing what's going on!!
I never spotted this reply before and really wish I had I'm so impressed and fascinated by your own insight, awareness and urges to shadow and would love to know how you're doing if you don't mind me asking? Never had the privilege of meeting or getting to know someone at the earlier stages when there's insight and awareness and I'm genuinely interested to hear how you are.
@@CharlotteWeb100 this person appears to be younger than normal onset. I'm wondering if it was early onset of dementia. Typical it progresses faster than older people who get it.
My MIL has been slowly deteriorating over the past 10 years. She turns 90 this year and I’m looking at this list going omg. And you are correct. During the initial stages of the disease, there is most definitely self awareness that things are not how they should be. And covering up the odd behaviours is something most become well practiced with. We are now at the moderate stages with her paranoia, bad mouthing anyone who figures out she has dementia and ‘escaping’ to a new person as soon as possible, so she can retain her independence a bit longer. Too bad about the stress it causes all of us.
I have Vascular Dementia. It runs in the family. My Mother is currently in memory care but With just a little luck, I'm still a few years away from moving to a memory care facility. As such, I've read everything I could find and watched every video. Video's from family talking about their experiences and doctors discussing the mechanics of the disease. I can tell you without any thing to gain, Teepa Snow is by far the best at describing both in a way that is easy to digest as well as entertain. (If it doesn't entertain, it doesn't get watched to the end) I recommend Teepa Snow and her series of videos to anyone who wants to understand dementia. Anyone who is providing care or even just friends with someone going through any of the diseases that cause this purely evil condition. They can be a better friend than those who assume and don't get the information to be helpful. So check out as many of Teepa Snow's videos as you can. It will help you become a better friend to someone who needs one. It took me 2 hours to right this paragraph, welcome to my world.
the most amazing videos i have seen on dementia and really makes you think about your behaviour...... a great sense of humor yet getting the important message across
You are just awesome great 👍 ......haven’t seen anybody here in TH-cam , tv, google, .....that could describe these diseases like you.....your examples are crazy awesome.....what can i say.....thank you, deeply appreciated 🙏🏻👍🙏🏻👍🌺💕
Oh, Teepa Snow, thank you for all of these lectures, all the sharing, and all of the information and ideas. The Hubster has parkinson's, and his "mild to moderate" dementia was diagnosed about 6 months ago. i retired to care for him, and have been at such a loss (despite being an anesthetist for 40 years) as to how to cope, how to handle, how to approach this whole thing. I feel vindicated that most of my "home approaches" have been correct--but oh, how wonderful to have more tools to work with. You are a priceless resource.
I hate this disease so much, my mom has it. Im her full-time care giver. Thank you for the video, it does help to know what's going on in there head and knowing that its part of the disease.
I am starting to take a career in geriatric and memory care. These seminars are so great, giving a direction and knowledge rather than just being tossed in to care for people who need more than just general care
My husband has sever depression, has been hospitalized for 4 months now, moved Around until finally in a geriatric psych teaching HOSPITAL. Lots of medical tests, good insurance I guess. Clearly has dementia, echolalia, preservation, autonomic system issues, UTI, and many more. Many come and go over hours/days/weeks. Hopefully once finally diagnosed we can begin appropriate treatment.
Hallucinations are something I saw my loved one go through. He said his keyboard looked like the keys were moving up and down or he would see movement on the wall or think there was a rat running around the couch. In addition, balance issues were a daily think where my loved one would fall and he stopped swinging his arms to walk and walked to one side. He has moderate dementia (and blood flow issues in the front of the brain) and has been in a care home for 2 months. He is hydrated and looks healthy. Despite the outside looking great, he is on the decline cognitively.
Under "Common Issues", I realize that mom had 27/36 of these behaviours. This is such a cruel, relentless & exhausting/painful disease process. Right from the "pit". Our Gov'ts (all levels!) need to start planning for provisions & services for our present aging population & place it as a priority in Health Care. Please advocate for these folks!!
Yes I am in the middle of the Baby Boomer group. It is very scary to think about what healthcare will be like in 10 years. The pandemic has exposed more of the problems but it has been sketchy for decades, since the early 80s. As an RN I've seen the situation from the inside and it is woefully inadequate. And I see it getting worse as my group ages.
Thank you for this video. I am an immigrant in a neighbourhood of immigrants. I live across the street from an 89 yo. He kept sexual harassing me, for which I called the police. Now I understand what’s going on. ( this is German neighbourhood I came here from South Africa I am Dutch )
THAT is a WOW!! Never heard that before. My dad decided to let himself get pneumonia, as he was tired at age 98, tired of being black blind, tired of missing my mom, gone for 9 yrs by then. He had a DNR, and refused ANY meds for the pneumonia. It worked. When the chaplain said his prayer and his amen, I said another amen. I have no idea HOW that just popped out of my mouth. Daddy stopped his life as soon as he heard the prayer and the 2 amens. No dementia, but what you said about pneumonia IS TRUE.
Very informative & insightful to what the later stages of dementia are. I was hopping for how the earlier stages begin (which I am; memory issues) & how to delay the advances, maybe even getting back to normal
Here’s the ultimate cure to Alzheimer’s, dementia and other memory related conditions....Go here ==> memoryhealer.tumblr.com/Alzheimer.html Click it, hope it helps
When my aunt got multi-infarct dementia, which is similar to Alzheimer's, she alienated everyone of her friends. She lost the "filter" that prevents us from saying what you think about someone. She insulted every one of them with what she had always thought of them.
My husband will stand quietly behind me or others. He scared a lady one she didn’t know he was there. I can relate. He had three frontal lobe TIAs. He’s never been the same.
Teepa, if you shouldn't argue with the person with dementia, then how do you respond to the first 2 issues: not wanting to designate a financial/healthcare POA, and not wanting to go to the doctor? PLEASE, PLEASE, PLEASE, PLEASE, PLEASE tell me!!!!!!!!!!!!!
I have just one question, which I feel NEEDS to be addressed: how do you respond to those issues such as the dementia patient refusing help, or refusing to go to the doctor?
There isn't much you can do without going to court. I've contacted the Council on Aging and spoken to an attorney. My sister and I are dealing with this issue. My mom is in mid-stage dementia and we have no access to her medical records or medications. I did email all of her doctors and called to let them know what was going on with mom. Because of HIPPA they cannot talk to you but that does not stop you from communicating to them. Be aware that some doctors may feel compelled to share your communication with the patient. We just keep in touch, visit, bring food help around the house if she allows and love her for where she is in life.
My mother was diagnosed early onset alzheimers and vascular dementia. She has 19 of these symptoms. My father has cognitive impairment. Looking after them both is a real challenge. I see a black dog chasing me.
I realize this is late but may God bless you, both with knowledge and understanding. AND good health all the way. Stuff skips generations sometimes, so be sure your children know, GET IT.
Wish I had seen this in 2013. My mom's friend that I introduced her to had Parkinson's. He died in 2015. When he was very sick he would stay and sleep in the recliner. One time I went to the kitchen, he was telling me to call 911 because there were burglars in the house.
Should one tell their mate that they have dementia? My brother never told his wife even when she questioned him as to why she couldn’t do things anymore.
After the death of my husband I was not able to talk as if I lost all my senses often times I see him suffering his cancer of the bones l cry with no tears because it seems that my tears were all gone..I was experiencing extra ordinary fear I ignored anything they were saying I was out of my mind everything inside our house reminds me and my memories until there was a time for me to commit s drastic things to kill myself but some one knocked he was a Pastor so I handed a book Bible commentary that my husband bought from US.. some of which were awards in their Church He was also a Pastor because he Studied in the Seminary too aside from being a Mechanical Engr. Oftentimes my mind traveled I feel no more hope because I was alone I spent my time sleeping I did not care for anything.. I forgot to eat I just drink water I look only in one direction my tears rolling down maybe for several hours until such time all my tears were all gone..I did not care for any visitors that came to remind me of him..all my children who came home from abroad went on their ways after the funeral at an instant I thought of going to stay with them.. I feel that I was becoming all right then..
Phyllis Oswell Lorraine encourage your Doctor to check his hormone levels: progesterone estrogen and testosterone levels About 15 years ago I had Psychosis but some of the symptoms bordered on Dementia and Alzheimer’s and when my mom broke her leg I observed the shock she went into was like psychosis so it is my hypothesis that these are all related and hormone levels play a role in addressing the symptoms When I was given an injection of Deprovera it cleared up all these symptoms and I discovered my condition was called Menstral Psychosis according to John Hopkins Hospital desease library The other factors that affect behaviour are diabetes, dehydration, and being dressed too warm and not being active. Singing to your loved one and getting them to sing to you 🎵 can be helpful The other thing is blood circulation so being physically active is key Exhaustion can play a role as well ie sleep apnea Protein is critical as is fat in the diet as not eating enough protein and fat can make the brain shrink as it is starved of nutrients and oxygen as some people tend to hold their breath due to some kind of trauma at some points in their lives and this could lead to brain Shrinkage too
Many times you have to pay for a caregiver to come in. The Alz Assoc. can connect you to your local chapter. They do have grants for respite and possibly for getting extra help to hire a caregiver.
I have a question for Teepa. My mother appears to be suffering from dementia. She has lived with my youngest brother for at least 10 years and very recently she doesn't recognize him as her son. She asks "where's Willie?", and doesn't believe him or anyone else present who tries to reassure her that this IS Willie. She recognizes me when I come to visit. What causes her to lose her recognition of the one with whom she lives?
Hi Sharon, on one of Teepas videos she explains that often times people with dementia are remebering things long ago when they were younger so your mum has gone back before your brother was around.
Sometimes a high white blood cell count is leukemia. Dad was misdiagnosed for at least 5 years. I knew what a UTI looked like with him. Doctors misdiagnose often.
My husband had abnormal UA test results for months but Drs said he was asymptomatic so wouldn’t treat. I disagree, his behavior was progressively worse. I suggested to them that maybe he couldn’t feel the pain… it took him having urinary urgency and incontinence issues in the hospital common areas to convince them to finally give him an antibiotic. Note: UTIs in men are not common, and reoccurrences are a red flag.
Where do the ugly words, swearing, racial slur etc come from.....if the person NEVER used these words before the dementia , how do they know to use the words? Xxx
In reply to Laura Hunter: Maybe by remembering things which they would, in the past, have chosen to ignore/put to the back of their minds, such as inappropriate words/conversations/actions which perhaps now get used because the shocking memories of these things remain at the front of their consciousness. These unfortunate words/slurs etc may have been witnessed in everyday life or seen on tv/internet etc over time. Perhaps they are remembering things that they would have chosen to forget in their previous ‘normal’ lives.🤔🤔. We have all, no doubt, seen or heard things so shocking/rude/frightening/ that we choose to put them to the back of our minds and try not to think about them.
As a nurse that has worked in a rehab/nursing home, I must say this lady has absolutely nailed the symptoms and actions of those who are suffering from dementia. And as a daughter caring for my 87 year old mom, I can say she also explains the stressors so accurately. Wonderful teacher!
How long do people live after the early signs of the disease , on average?
After learning about Dementia just within the last year & 1/2..this is the only video where someone completely tells it as it is. It's a horrible, heartbreaking disease. I'm so going thru this with Mom. Please pray for me & my family..I truly am hanging on for this dear life to give me strength. God has to! Much Love, SCNEESE
For what it's worth I hope you and your fam are managing. Hoping you're doing okay.
Yes sending lots of love and prayers ❤
I'm suspecting my dad has early onset, trying to get him diagnosed is a challenge!
Sending prayers my mom passed away from dementia
Sad is your mother still with you ❓
I understand. ❤🙏🏻♥️
As a nurse, I am happy to know there are seminars like this for all to hear and understand the disease process of dementia. Than you!
I was drinking tea while watching this and at minute 5, I about spit it out laughing. My husband has Younger Onset Alzheimer’s and I pray we both keep our sense of humor through this as long as possible. Love Teepa Snow!
OMG I need this now. Both my paremts are going down fast. 80 and 82. I'm an RN and keep trying to help them. This is the refresher course I need. I've worked in hospitals and nursing homes and in-the-home private duty. I've seen it all. But my situation is, it's my parents. It's extremely difficult even though I am familiar with dementia.
I was diagnosed about 2 1/2 years ago. This is pretty accurate… I also forget what we just talked about 10 minutes ago. My wife and 3 children are very very patient with me.
I will never go anywhere dark …not even with someone…I still do the grocery shopping .. it’s 5 minutes away 🤣…
I will not ever go anywhere dark… no way.. I like our friends coming here but I can’t go to their house.
I’m a plumber, and have no medical experience, but this lady is amazing. Fascinating stuff
My Nana had Alzheimer's, it's a heartbreaking, horrible disease that takes the person away before they're dead.... I was mourning her death years before she died, because it wasn't her anymore. But I do remember visiting her the last time, long after she was non verbal, but she was smiling and could tell I was someone who she cared about. And when I gave her a kiss goodbye and said I would visit again, she said "thank you." The last words I heard her say, and long after I thought she couldn't speak anymore. Tiny glimpses shine through sometimes, which can help, but also just make the pain worse. Anyway, thank you for educating people, and reminding us this isn't a memory loss disease...it's a brain eating disease. My literal worst nightmare.
Keeping a sense of humor goes a long way...thank you for the smiles!
I have no idea how I stumbled across this channel, but I'm so glad I did. Teepa has such a powerful, imaginative way of speaking and presenting concepts that I find myself hanging onto every word. It's almost like slam poetry. Bravo.
Thank you so much. I was thrown into a "dimentia like" state for 2+ years after 2 mini strokes and a head injury. **The stuff you talk about between 5 and 7 minutes .. just blew me away. I now 'get' why so many couldn't stand "me" .. it wasn't me.. :(
Phew .. Thank yuo
How did you recover from it?
Such a scary disease. My friend was just diagnosed with PPA. She’s only 56. I’m having trouble dealing with it. These videos help so much. Even though it’s scary, I feel much more prepared for what is yet to come.
I wish I had someone to talk to who has been through this. I recently visited her. She has pretty severe apraxia of speech. She’s also having trouble with fine motor control. I also noticed she clears her throat constantly and has to have a bottle of water with her at all times. In addition, she seemed very out of touch with her emotions. That spark that made her the person I grew up with seemed absent. She was still my friend, but a more basic distillation of the person I knew. It’s scary because it’s so early in the process. The symptoms started 3 years ago and she was just diagnosed a few weeks ago. I’m afraid for her and feel so lost on how I can help.
I continue to read and watch videos online. Even the experts don’t seem to fully agree on how to classify Primary Progressive Aphasia. Some say it a form of Frontotemporal Dementia. Others say it is a symptom of Alzheimer’s. I’ve read quite a few NIH studies, but even those are on very limited population sizes. The doctors who gave her the diagnosis didn’t explain to her that it is a form of dementia or explain how the disease will progress, so I have to be extremely careful what I say as I don’t want to upset her. It’s really frustrating how little is really known about this disease.
Deeps Snow, what a precious soul. On the list of my heroes
She's brilliant! Thank God I found this video.
I just happen to click on this video and I just want to thank you for explaining shadowing It was driving me crazy. And understandinding the clinging is because I am the one my mother trust the most. I was angry at my siblings for not doing enough but I am looking at this in a whole different way Thanks Again
This lady is truly an amazing speaker.
My husband is 45 and is displaying every single one of these behaviours. His doctors are trying their best, but he refuses medical care. He's turned all of the family against me and has bouts of blackouts/memory loss every few days. Getting a diagnosis is nearly impossible because he refuses treatment and no one will say he's not in his right mind.
And you are the carer, something has to happen for you to be believed.
hey, i m in similar situation with you. He got my 2 boys to boycott me . Form a different group chat for only father n 2 sons. A diabetic & i suspect the side effect of metformin is causing his Vit B12 deficiency. He is still living in denial and refused to see a neuro / geriatrician despite being reminded. He has his good n bad days . Worst is he has instant gratification, buying many pairs of shoes, bags , hangers , tissue papers 🙂n snacking non stop.
Fantastic, enthusiastic, passionate speaker. Absolutely love Snow. I feel so fortunate to have found her. Highly informative great communicator
I wish I had known more about this disease 10 years ago. My mother had suffered from it and none of us knew anything about the early signs. There were fights, there were arguments. The family unit was basically destroyed. The damage was done by the time it was discovered what was happening. My mother is gone but now my father is showing the same signs. Round #2...but at least we are all a little better prepared. Thank you.
WAAOF 😭
WAAOF I wish you the best!!!
U😮🎉😂❤
Wish I could say something clever ot
@@sylviaehrlich4359 No worries, my family wasn't a role model of perfection to begin with anyway. But I do share my experiences and lessons learned as much as possible to help others in hopes of saving them from the heart aches suffered by my own family due to this disease. Thank you and I pray you will never have to travel that same path my family has had to travel. Blessings to you and yours. ❤
When you said it will wear you out ...this is what happened with my dear Dad .... Now mother has last stage dementia and six years ago my father was her carer and he died of a massive stroke.he wouldn't let us help he would say they were ok ..he for got to take his medication sooooo sad .so yes dementia patients will wear you out ..💜ripDad💜
Thank you for all the info. You hit on everything mother is going through. Now I don't feel so alone.
What a blessing someone told me about you Teepa, also the videos you made. Can't stop watching over and over again, taking notes. Taking care of my 90 year old mom is getting harder with her dementia now, I think I also have it too. Since I am diabetic feeling the brain failing had to step back ask for help. I'm happy my 24 year old son is stepping up. Since he is going to college for psychology. This will give him hands on helping people with this dementia/behavior. Thank you again Teepa ♥
I live in a nursing home, in a psychiatric ward/ department, mostly for serious anxiety problems. All the other wards are dementia patients. It can be very tiring, especially when you are not feeling well yourself. They all think you are a nurse because you are younger. They want you to help them to the toilet, take them to their room (I have no idea where their room is), once a man kept following me because he wanted me to take him to his room, he did that for days. I have been hit, touched inapropriately, and verbally abused. I have to hide food in the living room because someone from another ward, someone with dementia, is always out to eat any food he sees. I try to be nice, but sometimes I can't do it. Of course, those people are not loved ones, they are strangers. I am trying to understand more about the disease so I know why they do it all, but it's still hard. We are moving out of the home, and into our own building, but it will still take two years. Finally someone understoond that the combination of psychiatric patients and dementia patients is not ideal, to say the least. Also, people who come in now with dementia are in later stages. Budget cuts.
The irony is that, if your anxiety is ever cured, you have already had the on-the-job training to be a caregiver (if you wanted to)!
Wow - that’s a lot to go through / it’s been a couple of years- how are you doing now ?
You are such a good at acting out the expectations of their behaviors and reactions! Thank you for educating us !
We need her at all the nursing homes for us CNAS to learn, we were never taught on how to care for this nasty disease, we were clueless, so we learned the hard way.
No
This is all so sad and so true for my dear Mum right now and all of us
*So sad, but anyone who has looked after a loved one with dementia will know how hard it is physically and mentally. My heart goes out to anyone/everyone affected by Alzheimer/Dementia. A huge shout out to any caregiver doing this alone! I feel your journey. I feel your pain because I've been there. My mom was also diagnosed in her 60s. Feeling absolutely shattered, heartbroken and drained , working with different physicians across the country, used Donepezil and many other drugs, with little or no improvement. I was exhausted and overwhelmed to look any further. Crying a lot through frustration, anger and despair, But today with the help of Homeocure Worldwide Natural Medicine, my mother is completely healthy and well again. I think we only need more support and sunlight to overcome this dreadful disease. Search for support regardless and don't stop until you get it. With Homeocure Worldwide treatment, there is hope, don't give up! Check out this blog for useful info️; **homeocureworldwide.blogspot.com**, Be it any condition, natural treatment and a healthy diet is a road to fast recovery.*
Boy Do I need Help. This is my mother and she won't let me help her. I hate this disease. I am just starting to learn more about it but now its so far progressed I am struggling.
Teepa is so good and descriptive!! Hit the nail on the head for me and my poor husband with Alzheimer's who goes everywhere with me even church!!
Thank you so much, Teepa!
This hit home in so many ways and I wish that I had known about Teepa a year ago! I am going to make the time to soak up all your insightful information. Thank you thank you!!
Shadowing. I'm experiencing this. It is the STRONGEST URGE and I'm fighting with myself because I know my son isn't gonna like it. I think one of the reasons we get so far along before we're diagnosed may be that we recognize that what we're feeling isn't appropriate and we fight it. I feel like I'm fighting on so many fronts, not the least of which is the doctor who said to me, "well I can't talk you into believing you're depressed". Shit fire man, give me some credit for recognizing what's going on!!
I never spotted this reply before and really wish I had I'm so impressed and fascinated by your own insight, awareness and urges to shadow and would love to know how you're doing if you don't mind me asking? Never had the privilege of meeting or getting to know someone at the earlier stages when there's insight and awareness and I'm genuinely interested to hear how you are.
@@CharlotteWeb100 this person appears to be younger than normal onset. I'm wondering if it was early onset of dementia. Typical it progresses faster than older people who get it.
My MIL has been slowly deteriorating over the past 10 years. She turns 90 this year and I’m looking at this list going omg.
And you are correct.
During the initial stages of the disease, there is most definitely self awareness that things are not how they should be.
And covering up the odd behaviours is something most become well practiced with.
We are now at the moderate stages with her paranoia, bad mouthing anyone who figures out she has dementia and ‘escaping’ to a new person as soon as possible, so she can retain her independence a bit longer. Too bad about the stress it causes all of us.
I have Vascular Dementia. It runs in the family. My Mother is currently in memory care but With just a little luck, I'm still a few years away from moving to a memory care facility. As such, I've read everything I could find and watched every video. Video's from family talking about their experiences and doctors discussing the mechanics of the disease. I can tell you without any thing to gain, Teepa Snow is by far the best at describing both in a way that is easy to digest as well as entertain. (If it doesn't entertain, it doesn't get watched to the end) I recommend Teepa Snow and her series of videos to anyone who wants to understand dementia. Anyone who is providing care or even just friends with someone going through any of the diseases that cause this purely evil condition. They can be a better friend than those who assume and don't get the information to be helpful. So check out as many of Teepa Snow's videos as you can. It will help you become a better friend to someone who needs one. It took me 2 hours to right this paragraph, welcome to my world.
This is a wonderful series of videos. Thank you for posting them.
the most amazing videos i have seen on dementia and really makes you think about your behaviour...... a great sense of humor yet getting the important message across
I so wish I had known all of this years before my mom passed away. So much makes sense now 😪💔
You and me both. Learned a lot that I “might” have been able to use.
Being a caregiver is not an easy job. But thank you for uploading this video it helps me alot to improve my care to my patient.
Eriza Buenviaje yes. me too. I have being a caregiver for 2 yrs. It so difficult and stressed sometimes... but those videos helped me so.much
You are wonderful...your voice is so calming ...thank you for this
wonderful information.
These videio's are very informative, to caregivers inside nursing facility. Good training video's. Thank you.
Excellent!!! Thank you so much, I'm learning in fun way, the best to remember and practice on my job. 👏👏👏
Ty..your knowledge is suburb..I have learned so much from you...
You are just awesome great 👍 ......haven’t seen anybody here in TH-cam , tv, google, .....that could describe these diseases like you.....your examples are crazy awesome.....what can i say.....thank you, deeply appreciated 🙏🏻👍🙏🏻👍🌺💕
This is very helpful information
Oh, Teepa Snow, thank you for all of these lectures, all the sharing, and all of the information and ideas. The Hubster has parkinson's, and his "mild to moderate" dementia was diagnosed about 6 months ago. i retired to care for him, and have been at such a loss (despite being an anesthetist for 40 years) as to how to cope, how to handle, how to approach this whole thing. I feel vindicated that most of my "home approaches" have been correct--but oh, how wonderful to have more tools to work with. You are a priceless resource.
I hate this disease so much, my mom has it. Im her full-time care giver. Thank you for the video, it does help to know what's going on in there head and knowing that its part of the disease.
Thank you for your insight and education! 😮❤
Very good informative speaker. Great Job!
I’m learning so much from her
Love your presentation Teepa is awesome and she's very funny.
It's an eye_ opening video for family members who are learning to deal with dementia patient. Thank you so much
I am starting to take a career in geriatric and memory care. These seminars are so great, giving a direction and knowledge rather than just being tossed in to care for people who need more than just general care
Thank you. So very much, thank you.
Teepa, can you PLEASE talk about how to respond to paranoid/delusional thinking?
This discussion scares the hell out of me! 😱😳☹️
My husband has sever depression, has been hospitalized for 4 months now, moved
Around until finally in a geriatric psych teaching HOSPITAL. Lots of medical tests, good insurance I guess. Clearly has dementia, echolalia, preservation, autonomic system issues, UTI, and many more. Many come and go over hours/days/weeks. Hopefully once finally diagnosed we can begin appropriate treatment.
U and ur information are priceless!!!
Mum.,ur lessons has helped me a lot in assisting old people as a care giver person. I have learned a lot on ur platform🙏🙏🙏👏👏
Hallucinations are something I saw my loved one go through. He said his keyboard looked like the keys were moving up and down or he would see movement on the wall or think there was a rat running around the couch. In addition, balance issues were a daily think where my loved one would fall and he stopped swinging his arms to walk and walked to one side. He has moderate dementia (and blood flow issues in the front of the brain) and has been in a care home for 2 months. He is hydrated and looks healthy. Despite the outside looking great, he is on the decline cognitively.
OMG i soooo wanna work for SeniorHelpers, this lady is funny . San Antonio Texas
Under "Common Issues", I realize that mom had 27/36 of these behaviours. This is such a cruel, relentless & exhausting/painful disease process. Right from the "pit". Our Gov'ts (all levels!) need to start planning for provisions & services for our present aging population & place it as a priority in Health Care. Please advocate for these folks!!
Yes I am in the middle of the Baby Boomer group. It is very scary to think about what healthcare will be like in 10 years. The pandemic has exposed more of the problems but it has been sketchy for decades, since the early 80s. As an RN I've seen the situation from the inside and it is woefully inadequate. And I see it getting worse as my group ages.
Wow, so much good information, thank you so much 😊
I was diagnosed with mild cognitive impairment 8 years ago. I am trying to learn more to be prepared.
I'm going thru these stages with my mom, it really saddens me because my mom has a good heart-she would never talk to anybody like that!
Same with my dad
Some families fall apart because some members are in denial and can’t handle that Dad is sick, or Mom can’t juggle this alone.
How do you respond when the patient refuses something he/she NEEDS!?
Thank you for this video. I am an immigrant in a neighbourhood of immigrants. I live across the street from an 89 yo. He kept sexual harassing me, for which I called the police. Now I understand what’s going on. ( this is German neighbourhood I came here from South Africa I am Dutch )
My mother the nurse called pneumonia the old peoples' friend.
THAT is a WOW!! Never heard that before. My dad decided to let himself get pneumonia, as he was tired at age 98, tired of being black blind, tired of missing my mom, gone for 9 yrs by then. He had a DNR, and refused ANY meds for the pneumonia. It worked. When the chaplain said his prayer and his amen, I said another amen. I have no idea HOW that just popped out of my mouth. Daddy stopped his life as soon as he heard the prayer and the 2 amens. No dementia, but what you said about pneumonia IS TRUE.
Very informative & insightful to what the later stages of dementia are. I was hopping for how the earlier stages begin (which I am; memory issues) & how to delay the advances, maybe even getting back to normal
Here’s the ultimate cure to Alzheimer’s, dementia and other memory related conditions....Go here ==> memoryhealer.tumblr.com/Alzheimer.html
Click it, hope it helps
The presenter is fantastic 👌
When my aunt got multi-infarct dementia, which is similar to Alzheimer's, she alienated everyone of her friends. She lost the "filter" that prevents us from saying what you think about someone. She insulted every one of them with what she had always thought of them.
My husband will stand quietly behind me or others. He scared a lady one she didn’t know he was there. I can relate. He had three frontal lobe TIAs. He’s never been the same.
Teepa, if you shouldn't argue with the person with dementia, then how do you respond to the first 2 issues: not wanting to designate a financial/healthcare POA, and not wanting to go to the doctor? PLEASE, PLEASE, PLEASE, PLEASE, PLEASE tell me!!!!!!!!!!!!!
Did you ever find an answer?
@@froggydoodle808 No, I still have not.
I have just one question, which I feel NEEDS to be addressed: how do you respond to those issues such as the dementia patient refusing help, or refusing to go to the doctor?
There isn't much you can do without going to court. I've contacted the Council on Aging and spoken to an attorney. My sister and I are dealing with this issue. My mom is in mid-stage dementia and we have no access to her medical records or medications. I did email all of her doctors and called to let them know what was going on with mom. Because of HIPPA they cannot talk to you but that does not stop you from communicating to them. Be aware that some doctors may feel compelled to share your communication with the patient. We just keep in touch, visit, bring food help around the house if she allows and love her for where she is in life.
You trick them and warn the nurses beforehand that they're going to get upset. Idk
Phone the gp explain yr reasons then hopefully ask person to go for a check up or ear syringing if deaf etc .
I love my mom, but I'm not able to "Breathe".
Omg this is great
My mother was diagnosed early onset alzheimers and vascular dementia. She has 19 of these symptoms. My father has cognitive impairment. Looking after them both is a real challenge. I see a black dog chasing me.
I realize this is late but may God bless you, both with knowledge and understanding. AND good health all the way. Stuff skips generations sometimes, so be sure your children know, GET IT.
My mother in law is experiencing this now and my sister in law is in total denial. Very hard for her to deal with what is happening.
What if he/she wants to go to the bank? What if he/she is INSISTENT about it?
Wish I had seen this in 2013. My mom's friend that I introduced her to had Parkinson's. He died in 2015.
When he was very sick he would stay and sleep in the recliner. One time I went to the kitchen, he was telling me to call 911 because there were burglars in the house.
i think one of the common issues missed out is unusual spending behaviour and instant gratification
Should one tell their mate that they have dementia? My brother never told his wife even when she questioned him as to why she couldn’t do things anymore.
Oh my gosh, what a presenter !!!
Why is she on the floor though, everyone should see her mannerism
After the death of my husband I was not able to talk as if I lost all my senses often times I see him suffering his cancer of the bones l cry with no tears because it seems that my tears were all gone..I was experiencing extra ordinary fear I ignored anything they were saying I was out of my mind everything inside our house reminds me and my memories until there was a time for me to commit s drastic things to kill myself but some one knocked he was a Pastor so I handed a book Bible commentary that my husband bought from US.. some of which were awards in their Church He was also a Pastor because he Studied in the Seminary too aside from being a Mechanical Engr. Oftentimes my mind traveled I feel no more hope because I was alone I spent my time sleeping I did not care for anything.. I forgot to eat I just drink water I look only in one direction my tears rolling down maybe for several hours until such time all my tears were all gone..I did not care for any visitors that came to remind me of him..all my children who came home from abroad went on their ways after the funeral at an instant I thought of going to stay with them.. I feel that I was becoming all right then..
This is about dementia not deep depression
N
Phyllis Oswell Lorraine encourage your Doctor to check his hormone levels: progesterone estrogen and testosterone levels
About 15 years ago I had Psychosis but some of the symptoms bordered on Dementia and Alzheimer’s and when my mom broke her leg I observed the shock she went into was like psychosis so it is my hypothesis that these are all related and hormone levels play a role in addressing the symptoms
When I was given an injection of Deprovera it cleared up all these symptoms and I discovered my condition was called Menstral Psychosis according to John Hopkins Hospital desease library
The other factors that affect behaviour are diabetes, dehydration, and being dressed too warm and not being active.
Singing to your loved one and getting them to sing to you 🎵 can be helpful
The other thing is blood circulation so being physically active is key
Exhaustion can play a role as well ie sleep apnea
Protein is critical as is fat in the diet as not eating enough protein and fat can make the brain shrink as it is starved of nutrients and oxygen as some people tend to hold their breath due to some kind of trauma at some points in their lives and this could lead to brain Shrinkage too
How do you get a team of caregivers when you are the only child and the parent lives with you
Many times you have to pay for a caregiver to come in. The Alz Assoc. can connect you to your local chapter. They do have grants for respite and possibly for getting extra help to hire a caregiver.
I have a question for Teepa. My mother appears to be suffering from dementia. She has lived with my youngest brother for at least 10 years and very recently she doesn't recognize him as her son. She asks "where's Willie?", and doesn't believe him or anyone else present who tries to reassure her that this IS Willie. She recognizes me when I come to visit. What causes her to lose her recognition of the one with whom she lives?
Hi Sharon, on one of Teepas videos she explains that often times people with dementia are remebering things long ago when they were younger so your mum has gone back before your brother was around.
Sometimes a high white blood cell count is leukemia. Dad was misdiagnosed for at least 5 years. I knew what a UTI looked like with him. Doctors misdiagnose often.
My husband had abnormal UA test results for months but Drs said he was asymptomatic so wouldn’t treat. I disagree, his behavior was progressively worse. I suggested to them that maybe he couldn’t feel the pain… it took him having urinary urgency and incontinence issues in the hospital common areas to convince them to finally give him an antibiotic. Note: UTIs in men are not common, and reoccurrences are a red flag.
Very Good!... #142 ✝ {9-25-2022}
What about talking aloud to themselves and not acknowledging to others that they are doing so?
Depends it could be another mental disease like psychosis. Go get her checked out
4:52 LOL!
Some of these common issues can apply to people who do NOT have Dementia.
What does "c/o" stand for in "Feeling sick c/o of pain"? Thanks.
Colette Levesque complaints of
Sounds like my dad.
Hi does anyone else have trauma from watching your loved one deteriorate? Even after 2 years after they' ve passed?
Yes.
The racial slurs are HUGE amongst those that grew up in times where it was far more common.
My uncle has circ. Dementia , it is horrible, he does not know who I am, therefore for my own mental health, I have stepped away,
GOOD.
Family should not be the care givers
4:17
B
it is a public health nightmare it is hopeless it is the gorilla in the room brain dies lord help us
Where do the ugly words, swearing, racial slur etc come from.....if the person NEVER used these words before the dementia , how do they know to use the words? Xxx
Laura Hunter, did you get an answer to your question? If not the fascinating answer is here.
th-cam.com/video/0BlZF_4EKp4/w-d-xo.html
In reply to Laura Hunter: Maybe by remembering things which they would, in the past, have chosen to ignore/put to the back of their minds, such as inappropriate words/conversations/actions which perhaps now get used because the shocking memories of these things remain at the front of their consciousness. These unfortunate words/slurs etc may have been witnessed in everyday life or seen on tv/internet etc over time. Perhaps they are remembering things that they would have chosen to forget in their previous ‘normal’ lives.🤔🤔. We have all, no doubt, seen or heard things so shocking/rude/frightening/ that we choose to put them to the back of our minds and try not to think about them.