This is good feedback for week 1 of Mavenclad, thank you for sharing it. I just finished week 1 (yesterday) and while It’s hard to differentiate between side effects and symptoms currently, Im happy to say that. I’ve been pretty stable all week, and monitoring for any changes in the coming weeks.
Hey, looks like you’re on a similar journey to me. I failed with Copaxone and Plegridy, however, this was side effects and my body rejecting Copaxone. I’ve been doing okay so far, I hope you do too xx Good luck.
Thanks for your update. I’m likely moving to Mavenclad soon after 12 years of Tysabri. Really appreciate you sharing your experiences - they’re very helpful. Take care
Wow, 12 years of Tysabri, that’s one hell of a time! How was it for you? I have had mixed reports of it. I hope all goes well for you if you choose Mavenclad. I’m still awaiting to take the next set of tablets in a couple of weeks and will be doing another update. Great to know the information was helpful x
@@mammadoo4977 sorry for the extremely late reply! Tysabri has been great for me - nothing new / nothing active for whole time I’ve been on it. Sad to have to change but since JC+ my neuro thinks PML risk is too high. Thanks for your Mavenclad update after year 1 on your other video
Hey, no apologies needed, we can when we can x Great that Tysabri was good for you, Ive heard some great things about it. The JC virus is a tricky one, I was positive before so couldn't choose Tysabri. Its a shame you can't continue with it but your neurologist is right, PML is something I definitely wouldn't want to develop. I'm hoping you have a positive experience with Mavenclad. From the Facebook groups, it seems more people have positive experiences than negative ones x
Thank you... Finishing last pill tonight of week one...just had some itchy scalp and felt good to scratch and if I had a little headache would drink a bottle of water....Very tired a few days but I can sleep...if I want...Thankful.. Great luck to all
Hello, my father has been taking this (mavenclad) medicine for a week, but he appears tired from the beginning. Is it normal for such effects to appear?
Hey, thanks so much for asking. I'm feeling okay, I have unfortunately caught a cold from my toddler but generally okay. First year of Mavenclad now finished. I am quite surprised about this medication as I was very anxious after reading so much about it. I have had bad side effects from other MS medication however this one seems to be okay so far. MS still playing up on a daily basis due to residual symptoms from previous relapses but I cannot grumble about any side effects. Are you thinking about choosing this medication? x
How are you feeling today. I see the video you were nice to share .. thinking about doing it. How were you before you started it? If you don't mind me asking ?
This is good feedback for week 1 of Mavenclad, thank you for sharing it.
I just finished week 1 (yesterday) and while It’s hard to differentiate between side effects and symptoms currently, Im happy to say that. I’ve been pretty stable all week, and monitoring for any changes in the coming weeks.
I’m supposed to start mavenclad in a couple weeks and have been anxious after 2 failed DMDs, but this helps. Thank you 🙏🏻
Hey, looks like you’re on a similar journey to me. I failed with Copaxone and Plegridy, however, this was side effects and my body rejecting Copaxone. I’ve been doing okay so far, I hope you do too xx Good luck.
Thanks for your update. I’m likely moving to Mavenclad soon after 12 years of Tysabri. Really appreciate you sharing your experiences - they’re very helpful. Take care
Wow, 12 years of Tysabri, that’s one hell of a time! How was it for you? I have had mixed reports of it. I hope all goes well for you if you choose Mavenclad. I’m still awaiting to take the next set of tablets in a couple of weeks and will be doing another update. Great to know the information was helpful x
@@mammadoo4977 sorry for the extremely late reply! Tysabri has been great for me - nothing new / nothing active for whole time I’ve been on it. Sad to have to change but since JC+ my neuro thinks PML risk is too high. Thanks for your Mavenclad update after year 1 on your other video
Hey, no apologies needed, we can when we can x Great that Tysabri was good for you, Ive heard some great things about it. The JC virus is a tricky one, I was positive before so couldn't choose Tysabri. Its a shame you can't continue with it but your neurologist is right, PML is something I definitely wouldn't want to develop. I'm hoping you have a positive experience with Mavenclad. From the Facebook groups, it seems more people have positive experiences than negative ones x
Thanks so much for sharing your story!
Absolutely brilliant!!!!
Thanks for the update❤❤
You're welcome.
Thank you... Finishing last pill tonight of week one...just had some itchy scalp and felt good to scratch and if I had a little headache would drink a bottle of water....Very tired a few days but I can sleep...if I want...Thankful.. Great luck to all
I found this very interesting and wanted to share.
How long have you been on Mavenclad? When I started it was 2 pills 1st and 2nd day, then 1 a day for 3 days. Then a month later is it, for a year.
How are you now? Did your lyphocytes level went back to normal? Did you loose any hair? I am starting tomorrow and im scared 😔
Any of you on this treatment tested JC virus positive?
I am due to commence Mavenclad next Monday (26th!), I've tested positive to JCV.
Hello, my father has been taking this (mavenclad) medicine for a week, but he appears tired from the beginning. Is it normal for such effects to appear?
Hey how r u now?
Hey, thanks so much for asking. I'm feeling okay, I have unfortunately caught a cold from my toddler but generally okay. First year of Mavenclad now finished. I am quite surprised about this medication as I was very anxious after reading so much about it. I have had bad side effects from other MS medication however this one seems to be okay so far. MS still playing up on a daily basis due to residual symptoms from previous relapses but I cannot grumble about any side effects. Are you thinking about choosing this medication? x
Ordinary vinegar appears more tired at the beginning of the medication
How are you feeling today. I see the video you were nice to share .. thinking about doing it. How were you before you started it? If you don't mind me asking ?