Answering Viewers Questions: Mavenclad for Multiple Sclerosis
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- เผยแพร่เมื่อ 25 ก.ค. 2024
- In this video, I answer viewers questions about Mavenclad for Multiple Sclerosis. Is it the best oral medication for MS?
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions about Mavenclad for Multiple Sclerosis below! I look forward to reading and responding!
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NOTE: I have received remuneration from several companies for speaking (never on TH-cam), advising, consulting and research. This includes Biogen, Novartis, Merk, Sanofi, Roche, Soal and Medtronic.
NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS (and in this case Answering Viewers Questions: Mavenclad for Multiple Sclerosis) to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
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Thank you Dr Boster. I'm currently on copaxone, but I have had an adverse reaction. My neurologist has suggested swapping to cladribine. You have made me feel more reassured.
#WeHaveMS #StrongerTogether BosterMS.com
Done 2 years of Mavenclad, now a year out, and feeling great!
I finished year 2 in March 2020 and sadly it has not worked for me. 3 new lesions (one large one on my brain stem), my balance has been getting bad over the past year and increasing falls as well as bladder hesitancy pee myself lol. My neuro doesn't think a 3rd year will do anything so I have to consider Ocrevus or Kesimpta
@@boop82364🙏
I’m surprised I haven’t heard of this drug. Also surprised that it isn’t given more… I’m on my 2nd DMT and this dosing sounds amazing. Thanks for educating me, again! Love that you do this, it is so insightful. 💗
Ive been using it for two years and it is amazing. It stop my progression with no new lessions For 2 years so far. I had very active MS and no other drugs they have gave me worked. It Amazing
I'm offically in year 5 now!! Glad to share I have had no progression or new lesions.
I was diagnosed with highly active RRMS and failed the first DMT with major progression within 6 months. I felt a huge shift within8-12 weeks of year 1. And didnt suffer many side effects while taking it. Stay Strong Warriors x
Can I ask what your first DMT was? I've told to chose between them and mavenclad is an option for me. This will be my first DMT
@@dearbhlar6681discuss it with your neurologist
On year 2 of Mavenclad. I felt the shift in my brain the first week. Haven't had brain fogs nor needed my cane. I don't know why they don't offer this to everyone once diagnosed with MS. I had to deal with horrible Copaxone and Tysabri before Mavenclad. The price is up there but they have help and it's worth it. Not sure why you said that young man can get a covid shot when we only have one week a year to get a covid vaccine. Our white count is never high enough to get the shot.
Thank you very much for your answer, man 😊
Happy Monday Dr B!
How many years do you think we have before they come out with a remylination drug?
I love these videos!! Thank you 😊
Currently investigating injecting stem cells into brain to repair myelin x
Thank you for your 2 cents IMO your undervaluing :) and Q&A. Also your chickens look super happy, they're in great hands!
Thank you Dr. Boster! I love your videos, your a true hero for everything you do! I was on Rebif for about a year and could not handle the 3 injections per week any longer, completely stopped taking Rebif for 18 months. Seeing my neuro next week and I think Mavenclad is the one for me.
Good to know! I'm on my final cycle of Mavenclad (2nd year), so learning more about how it works actually makes it better. I was on Rebif, failed then was changed to Mavenclad. I'm actually a bit better physically now than I used to. However, the limitations do still stand and I've accepted that.
Thanks for the information Dr Boster I am not sure if it is in Australia I will need to speak to my neurologist about it, as I have never taken anything for MS just TN.
Perfect timing for this video - I took my last Copaxone today and will start Mavenclad tomorrow. Your video reassured me in that going for Mavenclad was the right choice for me.
I went from Copaxone, to nothing for 10 years, to Mavenclad. Copaxone was horrible for me, Mavenclad was great! I am all done both years, and haven't had progression, plus some symptoms have seemed to improve. Good luck to you!
@@dmphax Thanks, and good luck and good health to you too.
hi thank you so much for doing more videos, it really helps
could you do a video about ocrevus and male fertility as I'm on ocrevus and trying for a baby and worried ocrevus could effect male sperm or the baby
Thank you
Good Morning Dr. Boster.
Morning!
The first Pfeizer shot was hard on me because I’ve been dealing with the long COVID. I got moderately ill. The second shot was just like having COVID all over again. I have anti bodies out my wahzoo! But I never fully recovered from the original disease course back in November ‘20.
Good morning Dr. B
Howdy!
Would love to hear from any Road cyclists on these meds. Thanks doc
Great educational video on Mavenclad.
Sharing is caring
#WehaveMS
Thanks for sharing!
Hi Dr. Boster the first question the gal asked about progression during year one of Mavenclad. Can you provide some insight on people who experience progression when they are not completed with the entire two-year course?
Thank you, Dr. Boster! Which do you think is more effective & which is safer - Mavenclad or Kesimpta?
Dr.Boster what about fingolimod and the pfizer vac.? do patients need a 3rd shot or does antibodies not really matter?
Love the chicken outro. I wanted to let you know also that it looks like Brabio is a UK name for glatiramer acetate - surprise!
Oh MY! My answer is quite different for GA and cladribine as compared at teriflunomide and cladribine! TY for sharing, I may need to redo this answer!
Could you post the Dr from Israel's study
Dr Boster is one of the best MS Specialists!!!!!
I haven't taken anything since being diagnosed in 1997
I keep seeing cancer scares when looking up this drug. Is there a risk, or what is the risk of cancer for this? I am currently on Rebif and have been since 2016 but and getting tired of the needle
For anyone considering Mavenclad, I, personally, want to encourage you to research this drug before agreeing to this treatment. In April and May of 2023, I took Mavenclad as prescribed. It’s now July 17th, and three weeks ago, several brown, unsymmetrical lesions w/ scalloped edges popped-up on my arms and leg. I also discovered several swollen lymph nodes under the skin of my neck. I’ve always, always used sunscreen, and have never been a “sun worshipper,” nor used tanning beds. After notifying my neurologist and contacting a dermatologist about taking Mavenclad and what I am experiencing, the dermtologist is seeing me next week, despite a long waiting list for new patients. After doing my own research, I discovered approximately 10 out of 900 Mavenclad patients are at an increased risk of developing; Melanoma, Pancreatic cancer and Ovarian cancer. If my suspicions are correct (I certainly hope I’m wrong), this type of Melanoma is agressive in nature, and can spread in as little as six weeks. I pray no one, who has already completed Mavenclad, develops cancer from this drug. God Bless.
Thank you for sharing!
What happened to you?
I have a question are my current condition going to get better I know that future is better? I'm gonna take my third infusion of ocrevus and I'm gonna be able to see improvements in my current condition
How long has this treatment been around?
Gonna start using cladribine this week. Previously i tried 3 other medicine: rebif, tecfidera and copaxone. First medicine decreased my white blood cell count drastically. Second two negatively affected my kidney function. I had two registered MS relapses in about two years time. I wasn't taking any medicine before the second relapse cause of my kidney condition. Both relapses were pretty bad and i needed about 1 month to recover. Im male, 27 yo. Thank you for informative video. I hope this one will work fine :)
Hey I wanted to see if you had a update on your experience. I start on 06/27/22
@@securedebtagency Hello. About to start my second year of Mavenclad. Had zero relapses and MRI seems to not show any active lessons. Seems to be working very well for me.
Will you do a video about propionic acid supplementation?
What's that about?!
I’m about to start my first treatment today. I’ve been subscribed 4 tablets week one and week 5 another 4 tablets. So 1 tablet a day for 4 days and repeat same thing week 5
Will Mavenclad make me sick. I am very anxious about it making me sick. What are the most common side effects please?
Also can I take Mavenclad with steroids as I’m in the middle of a relapse.
Thank you kindly in advance Doc!! I’d be so grateful for your advice.
Ps. I’m from Melbourne Australia.
What if you took your COVID vaccine before starting Mavenclad, is it still effective?
What are your thoughts on Mavenclad for CIS ?
Which particular b & t cells does mavenclad target? And what are your thoughts on risk of taking Mavenclad with Type 1 Diabetes plus age (mid 50s)? Also, would this med be considered for someone who is continuously, slowly progressive, however has also had very, very few relapses too? Oh, and how is it on the liver?
Dr boster , Appreciate your knowledge and your kind way to explain any medicine for multiple sclerosis.
Especially for Mavenclad which I am on my 2nd year dose.
I just wanted to ask you about the side effects of mavenclad. and what the pill does to your throat specifically.
cos I can't find any reviews of this medicine online.
the only thing I know is that I have to wash my hands pretty good before and after the tablet.
and that the side effects are these:
- upper respiratory tract infection,
- headache,
- low white blood cell count (lymphopenia),
- nausea,
- back pain,
- joint pain, and insomnia.
But do you know if there's anything else should I be aware of?
I’m thrilled I found your channel Dr. Bolster which was by accident. I watched 1 video and I was hooked. If I were able, I’d leave NY to make an appointment to see you. I’ve been on Tecfidera since 2014 and now have to change to generic or another medication. And quite frankly my Neurologist has made no recommendations. I’m 63 years old and also asked her what her take was on Medical Marijuana. She flat out told me it’s all Bull$&@t and it that’s what I wanted she wasn’t the Dr. for me. I didn’t tell her that I am certified in NY and use it for my spasms. I haven’t had to take a Baclofen at night in months! I will be binge watching your videos!
Should this be my first med to take
Good morning brother , how long do I have to wait after my infusion do I have to wait until I get my vaccine ?
What infusion are you getting?
SPMS? Thoughts
Stacking
FYI I'm taking 10 pills,2 each day for 5 days in the first month and then I will repeat it for the second month....
Relapsed after a month on year 2. Worst decision of my life having mavenclad. Im all for dmts and fighting it with force, but that drug ruined my life.
Hello, my father suffers from sclerosis and now he is taking mavenclad medicine and he made the left side shiver. Is this normal through medication? It is his first year And now its second week؟؟؟ Thanks
My neurologist doesn’t think it’s going to be good because I have the JC virus.
Any explanation why?
What are your thoughts in regards to discontinuing DMT if you are over 60 and appear to be stable in regards to MS. Had this conversation with MS doctor during my most recent visit. Seems a study has been done by the Cleveland Clinic looking at this. As always thank you for all the information you provide in your videos.
Chris, Dr. Boster don't like that idea AT ALL!! Surely he'll throw you a link to his recent rant on the subject. He wants you to continue treatment for as long as you enjoy living with your vital functions intact!! 🌸 💖 😘
I agree with Jerusalem warrior. A lady in my support group is in her 60s and she stopped treatment because no activity and her neuro thought she would be fine. She's not. She showed activity on her mri. :(
I am suppose to be starting aubagio soon and will be receiving my second dose of pfizer tomorrow. How long should I wait before starting aubagio?
For the people that have taken it what side effects did you experience
Just itching that’s about it I’ve never had a drug work this well I haven’t had any new attacks I just started year two
@@assataaverett428 did you try another DMT before this one?
Overkill with stacking
Heard that and peed It out again...
Always tired. Antisocial,like to alone M R I every year,diagnosised in 2011. Betaseron,
Good afternoon I had lumbar puncture that proved that I have MS doctors keep telling me only white women get MS twice two different doctors even though I had the lumbar puncture. MRIs prove that I have lesions and more than one place in my body.
MS society doctor has let me down. I don't know what kind of vacation she has taken disappeared .
Welcome to the club bro