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I have been experiencing these symptoms at least 20 yrs.to this date! I am just in shock to hear my exact symptoms to the tee! I have always asked about MS since I have a younger Sis. who was diagnosed 20 yrs.ago. I have been diagnosed with Chronic pain and peripheral Neuropathy. No other history has been considered when I see doctor after doctor, specialist after specialist. Til this day I haven't been properly diagnosed! This is so sadddd! Please respond to my post so that I can get the proper help. Thanks!

This sounds so much like my story too. I finally got a diagnosis of MS at 62. I had been having symptoms for so many years too. We know our own bodies and have to keep fighting for our health and for someone to believe us. Thank you for your story

Thank you for sharing your story, also with your experience with doctors. I have had terrible doctors experiences. And your message to listen to your body and be determined to find help, is so so valuable. I sometimes want to give up, or doubt myself and it takes a flare every time, to feel like sh*t to realize, that I come back and say to myself that I have something that is worth looking for the right doctor.

"dr's" Are mentally ill.

How are you doing?

I’m having a MRI of my brain this month Scared

My husband’s maternal aunt has MS and it’s very late stage now. It’s so sad to see her and her husband struggling so much. She is only mid 60’s.

I can't have any more mri as i shake too much. My sympotms Knee gave way and ankle did so kept falling down. Took months to get back to normal Arm weakness Constipation Tripping as not lifting foot properly. Cobwebs Itchiness Headaches Hug Difficultiy finding words Swallowing issues Blurred vission off and on Tremor head and arms Numbess. Tingling and electric shock in legs Zingers Memory recall.. Depression Clumsiness Falling into doors Balance issues Episodes of my right side of my face going numb and tingling Dont join in conversations Words on the tip of your tongue, but it won't come out Slurred speech Stiff ankles And so on

I've had ms 17 years . Which now they say is not active yet I have the same symptoms. But over the period of 17 years ..I was told I had essential tremor then transverse mialytis then dystonia. I'm at a loss

Thanks for sharing … that doctor should be fired immediately!!

I feel for you. I am going through trying to find answers. I am having insurance issues. I have a 1 and 3 year old. Some days are so hard. Thank you for sharing and for the advice about using your non dominant side.

Imagine if you were anxious and in a lot of life adversity and discrimination and also had ms-- this is horrible ❤

It is awful, the waiting and waiting. But, this really shows the importance of you, as an individual, to record everything. You know it will take a long time to get any Dr or GP to take you seriously, so record everything, no matter how small. You will then see if things increase (or see a pattern etc). Go back and back and back to the GP just so you can get it on record that it's still occuring. Even if it makes you feel awful, you must go back to get things noted down. GP's, and Consultants, sadly are taught to get rid of patients.. to basically push any patient down the line. So they fob you off until it's seen that you are not going away quietly. Their hope is that if they keep telling you, nothings wrong, it's anxiety, it's cycle-related, it's age, it's being female, it's too much salt, not enough salt(yes that's been used on me for A.S), etc etc, that you get fed up and you won't come back. That is their MO. Push it further down the line. So record and badger them. It's awful that we have to advocate for ourselves... but we must. Be knowledgeable and empowered. xxx

I have been saying something is wrong for a year now. My experience was like yours.

Have you tried overus

Hope u have new videos to upload

I am so sad that the doctor verbally stated that to you. I mean, we FEEL them thinking that..but to actually SAY it? My goodness! I'm so sorry. I thank you for sharing your story.

Oh my goodness!!!! Just TODAY i got out of the hospital!! This is MY story as well! Though they did all kinds of testing, i was discharged with a diagnosis of migraines. I agree, i get migraines often, but i do believe its so much more than that. I believe it is ms. My symotoms are just like you said! Symptom for symptom. I cannot even believe i found this, today. How do you make them listen? I know its more than migraines. The same exact things are happening to me. Just like the stories of your doctor and his manorisms. I did schedule appointments for neurology to get more opinions, so we will see. But i can completely relate to thus video. Honestly. Symptom for symptom and experience for experience. Is it alright if i keep in touch? Are you alright?

Who are those drs?! We ride at dawn! ⚔️ Im so glad you advocated for yourself! Ty for sharing

Currently going through 9 years of hell, I can’t stress how much I hate the NHS. Useless system, months or year to see a specialist who sees you for a few minutes and just palms you off.

Omg my dr had the same rude reaction 😢 He was out of town when his partner referred me to a neurologist to be looked at for possible MS Well when my dr calls me upon his return, he exasperatedly says “You don’t have MS!” I said to him “Talk to the neurologist because when I told him I had a shocking sensations when I would bend my head forward, he immediately wanted me to get an MRI of my head!” I’m sorry you were treated so poorly by your GP 😢

Can I have your friend request please 🫶🫶🫶🙏🏻🙏🏻🙏🏻😘😘😘

I’m in the process of being diagnosed.. But all those symptoms you mention it’s just like me

You know after watching you I’m going to fight my doctor to be referred!!! Bless your heart for helping me.

Good lord this is so bad you poor thing keep well god bless u

This is and has been happening to me for the last few months, since April. I’ve gone from, Anaemia, hyper pulmonary tension, heart disease to now MS following an MRI. I’ve lost my job and have felt on the verge of mental collapse. Our NHS is a shambles

It is a shame for those doctors i have been dealing with pains for 4 years and also panic attacks and its made me feel tbat maybe it is anxiety but now i been feeling horrible nerve pain all over my body as well as itchy feeling and feeling like somthing is crawling on me the pain since last week has been making me feel like its affecting my mobility and im still being told its probably anxiety but i reallyfeel a worsening of symptoms im tired and fatigued and i dont know what to do

During pregnancy your immune system really backs off so that it is not attacking the fetus, which is essentially foreign. MS happens when your immune system attacks the myelin sheath “wiring” between neurons in the brain. With the immune system really suppressed, most patients get much better. But flare up badly within a year PP. I’m a doctor and I’m so sorry you’ve gone through this. I was going into combined psych/neuro residency so spent about 20 weeks in MS clinic. Fascinating but I went through so many symptoms/ hypnic jerks falling asleep ( I was barely getting any sleep), twitching eyelid so badly I could not use that eye, seeing Scotomas which was diagnosed as aura without migraine. My foot had pins and needles. Have had RLS since I was maybe 5. I am 37 and had all these horrific symptoms at 34. When I’m very stressed some come back. After standing for long clinical rotations, I’d have back spasms, extreme pain and constant jerking and spasms in my ribs. It would make me curl up. But my testing always normal except for extreme hyper reflexia which I’ve had since I was 16 and they tested me bc I had back problems. I’ve fallen asleep at work and driving. I have been exhausted for 2-3 years. No amount of sleep helps. Oh I just remembered when you said it I had ice pick headaches at 22!!!! I went to PT and they diagnosed muscles compressing my nerve. I’m at a loss. I have a feeling one day I’ll be diagnosed. But I also had cancer and had my thyroid removed, so many align w that as well. Brain fog. My mom is 71 and can tell me what I did last week but I have no idea. It’s awful; especially in our age group as females are the most common group in both areas. Also low vitamin D levels are linked to MS. Mine has been around 17 and low normal is 34. 90 is great. I just fall asleep texting. I’m glad you’re doing relatively well!! Odd that this video just happened to pop up for me! My optic nerve is always perfect as well, so they do not believe the Scotomas are related to MS or INO. I’ve also had strange sensations like a hair or bug is on my leg- but nothing is there. I’ve seen the best neurologists. Thorough, caring. But still…I’m written off as a hypochondriac. My legs are very weak but that can also be my thyroid meds being off. There is a symptom in forgetting but I can’t think of it. I thought I had trigeminal neuralgia but that was my mind. I’m headed to see if you’ve any updates since this vid. Best wishes ❤

Well done you for pushing for your diagnosis xx

I was in hospital because of bleeding in my bowel for some time. The doctor sent me home saying it was just something in my diet but he didn’t know what. Luckily I have a great doctor as I went back to her a few months later and she arranged a colonoscopy which showed up my cancer. I’ve since had an operation for my bowel and my liver as it spread. I’ve been cancer free for 1 year now but when I think about that doctor and what would have happened if I had just believed him I get a bit annoyed especially since I felt that I had wasted medical staffs time and taken up a bed that I didn’t need. Always listen to your body and don’t be fobbed off.

I have been thru the same thing. My GP said I'm sorry you're going that. So I went to an internal medicine Dr. And they are listening to me. It's sad really. You know your body!!!

Drs don't listen!!!!!

I'm ready to ask how to get off each medication and start. I'm tired.

Today is my Frist day starting, thanks for sharing

So very relatable. My first neurologist dismissed me. And I am kept sending to Rheumatologist just because my ANA is positive and my olicoglonal bands is not present in CNS and according to my Neurologist positive ANA indicates some autoimmune rheumatic disease. Fortunately I happened to meet a wonderful rheumatologist who went out of his medical box and due to his amazing observations and experiences in medical field; he told me that I don’t have any rheumatic issue. He is one hundred 💯 percent sure that I have MS and it is never easily diagnosed by neurophysicians. I am on my third neuro physician and hoping to not being misdiagnosed.

Just came across this video, thank you and I hope everyone is doing well. Have had symptoms for years, had migraines for a long time and MRI only showed one lesion. Neurologist many years later said ‘you’re fine’ even after saying I lost 75% of hearing in left ear and ocular migraines in left eye. Trouble swallowing and restless leg…..so here I am a year later after suffering horrible blurry vision in both eyes and unable to work for a day. Eye specialist is saying glaucoma which I have a follow up in 3 weeks. Seeing neurologist again end of July. So tired of them messing around, almost everyone seems distracted and in a hurry. I agree, you need to advocate. I’m tired of people saying I’m fat, lose weight. People are very hesitant to diagnose MS until the disease progresses to permanent damage. I refused the lumbar puncture due to migraine side effect and again, not conclusive of diagnosis. So frustrating. I hope things worked out for you, thinking about all of you who have been diagnosed or those without a diagnosis still struggling.

Thanks for sharing 😊

Unfortunately, we are piercing the "armor" of these "doctors" and exposing their complete ignorance of how the human body actually works. We now know more than they have cared to ever know. Knowledge is power.

That’s what they did too me diagnose me with RLS but my symptoms have got worser so I’m going back

Maybe too many people have been saying they have those symptoms so many that it’s unusual

Maybe I missed it bigger did your MRI show lesions on your brain and if so how many? Thank you

I've seen some MS youtube videos about significant symptom improvement from a keto / Carnivore diet .(see on youtube , Anthony Chaffee M.D. , Multiple Sclerosis, ).

American health care sounds messy and scary No ,its not so hard to diagnose. You needed an mri. And it took 5 years to get it

Only people with MS or diseases that get them extremely exhausted! It's sheer exhaustion and NOT fatigue! Fatigue doesn't cut it. Actually I think that ALL MS literature, ought to use the term "Sheer Exhaustion" instead of fatigue, as using that word, does MS patients, a dis-service, actually. As it educates people to think: "Oh, you're just tired!"... It's (OSE), overwhelming sheer exhaustion!!! I relate to you, sooo very much, when it comes to exhaustion. It's worse than the pain! That's how bad it is. As if my brain refuses to register that I've slept. No matter the number of hours I sleep... It's awful to live with that constant, swimming against the courant thing... ...constant going against the courant, again and again and yet again!

I have had symptoms for a long time. I could not do MRI Im extremely exhausted even when I wake up pins & needles in my legs & hands feeling weak I went to a doctor today & said well your exam was normal. I did mention my eye sight has changed drastically I went from having 20/ 25 now 20/50 20/40 in two weeks because I have an autoimmune promblem they all referr it to that. Lupus. I’m at a loss

I wish my mom would get a diagnosis on what is wrong with her. Doctors tell her everything is fine but she has gotten so weak she needs a walker. Her legs get stiff and has lost her strength. One doctor told her she needed to go to the gym. At the time she was going to the gym and still does on occasion. Now they tell her it’s her age. My mom was so active now she doesn’t want to burden anyone and wants to stay home. She was not a homebody something is wrong.

I can relate to Doctors thinking they know all the answers. I remember having knee pain and a Col in the military said she could cure me but I needed a referral and told me the doctors would give me a hard time. She was correct, the doctor said I needed surgery and I was wasting my time. I asked for referral anyway. He grudgingly gave it to me. She said I had trigger points on my leg and had me roll on a foam roller. Two weeks later I ran the Army 10 miler. My only regret is I should have gone to him and told him I was cured. 12 years later I don’t have knee pain. Doctors don’t always have the answers and some are so prideful to admit it.

Neurology refused my referral because all of my weird symptoms are "migraines" ((i never get migraines)). They wont see me until i try multiple migraine meds. It's shocking.

I've got a Dr that's a #1 A 🕳️. Told me my problems will resolve themselves when I lose weight. 😳 Blood tests don't show MS and when you go to ER because of the horrible symptoms you're having, you're dismissed as having anxiety or mental health issues.

Sadly, those people who didn’t t offer help…they aren’t watching our kinds of videos.