Beneath The Surface - A Film About Living with MS, Building Community and What It Can Mean
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- เผยแพร่เมื่อ 29 พ.ค. 2020
- More at www.beneaththesurfacefilm.com
Beneath The Surface tells the stories of people in America living with multiple sclerosis (MS) at various stages of progression, who open their homes and their hearts, share what it felt like at diagnosis, and how dreams survive albeit most quite altered from “original plans.” MS is different for everyone and we see it all here: the strength and grace and for some people, depression and loneliness. We encounter patients, doctors (sometimes during clinical exams), the inside of an MRI machine, well-known and less well-known people, spouses and even one newly-met grandson. The film takes us from the personal level to a more universal consideration on stigma, resilience and above all, hope. Importantly, we see how community and connection - in real life or virtual - can make a difference for people with MS every day.
Living with MS. Diagnosis, prognosis, disease progressions, recovery. Treating MS. Recovering from MS. Non-medical interventions for MS. The importance of relationships for easing symptoms of MS. Avoiding depression with MS. The Nantucket Project and MS. TNP MS Film. IdeaFilm. Support groups. Support community. Conversation and buddies. Alternative medicine for MS. Holistic treatment for MS.
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multiplesclerosisnewstoday.co...
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I just shared this and then realized that 99% of the people I know have MS. MOST of my non MS friends have left me behind because I can’t do things like they do. I’m that inconvenient friend that cancels for reasons that they refuse to accept.
I’ve never identified with something so much. It was powerful to see a version of my story on screen. Thank you.
So well done Kate and team! Thanks for bringing awareness and for allowing me to be part of this project! I don’t remember saying most of what I said but it was absolutely spot on as far as my experience being newly diagnosed! So glad you guys were able to capture it on film! I look back today and realize how much knowledge I’ve gained and am so grateful for such an amazing support group! Diana’s explanation of Cog Fog couldn’t be more spot on and Dr Krieger’s analogy of the swimming pool gives me so much hope to keep fighting each day! Thanks a million!
Watching your story helped me so much. Diagnosed this may and looking for hope...thank you for being brave❤
Very beautifully done. Thank you for bringing true awareness to multiple sclerosis.
Jessica, I am so happy to know you as someone who is a powerful force as you in helping others. Thank you for watching!
Nice work. As person with MS, I think the film does well dealing with progression, variation in disease between people and over same individual over time, relationship challenges, the need to adapt, work and disclosure issues, misconceptions, accessibility, shock of diagnosis, types of MS, etc. Also, nice that it is not overly maudlin about subject. I hope this film gets covered by press or promoted by MS news sources - I have not seen info re at MS Society; MS News Today; Google News feeds re MS. Learned about via Mitch's blog.
A genuine educational and awareness gem, Kate. Thirty minutes tell our story. Thank you! Debbie Petrina
I love when it says that you can see the spots but not how a person copes and processes those spots. That line holds such a DEEP truth to it! Great video so glad that I found this.
My daughter has MS, she lives in California, I live in Maine. She calls me several times a day. I get aggravated with her sometimes, I love her, I wish she would comeback to Maine. Most of our family is gone, she doesn’t have a lot of friends, but in other countries. She has a brother, but he’s all consumed with his own problems in life, he shows no love or empathy. He’s depression & anxiety has crippled him to strive in life.
Ananda is the complete opposite, she’s depressed, lonely at times, but she strives in life! She worked hard to get a job, she cares for her little Princess her dog, and she’s beautiful ❣️
I don’t know what to do for Ananda, I asked her to move back to Maine, I could be there for her more here, I get so frustrated that I can’t help her, I want to drive her places, instead of Uber‘s, take her to the beach, to enjoy the ocean, and Princess too, be more supportive, so she’ll know she’ll never be alone💗
Ananda was granted housing twice, now that she succeeded in getting a job remote, they snatched it away, because they say she makes too much money! That’s fucking crazy!
But what I was thinking, maybe God, fate or something in the cosmic is trying to tell Ananda that she needs to be closer to family that loves her❤️.
My daughter has been a Blessing all her life, she has traveled the world, a strong woman, nothing held her back, I’ve admired her all her life! And I know she’s a fighter, a winner!
Even with MS, I know Ananda will be the best person she can be with that attacking her body❣️. I want to be with her while she does it! To help her, but she also helps me💗. My partner hasn’t been there for Ananda when she wanted to come to Maine, he said he was afraid of COVID, so he didn’t want her here. When he felt different about it and invited Ananda to stay with us, she wouldn’t come. I don’t blame her, I wasn’t able to get a place of my own, especially with a son that won’t work or help. But if Ananda could come to Maine, we could get a place together, if she wanted or have her own place, but we would see each other a lot! 😊
Watching this film, made me cry, was inspiring, powerful, beautiful to see so many fighters in life with MS❣️. So many amazing men & women with MS and so supportive of each other, I Loved that!
Thank you, thank you for letting me understand & see what my daughter is feeling and may need❣️
Thank you 🙏🏾❤️😘
Really identified with a lot, I don’t think I have ever saw something as real as this about MS. Thank you and well done. x
Thank you, Kate and Team. I found myself inexplicably in tears at several points. I was diagnosed in 2003 and still in denial a fair amount of the time... obviously. Awesome people making the most out of their circumstances with a bucket of hope. Namaste.☮️🧘♂️
Ken, did you hear about the therapy Coimbra Protocol ? It stops MS.
You know what the absolute killer is it gets everybody in the middle of living life to the utmost.
As a nurse I’m always happy to learn. Thank you for this, and to everyone dealing with MS, blessings on your journey 🙏
This was wonderful. Thank you. However, I don’t have that many “not so bad” days as most of these people. But I am so isolated that I am going to change that today!
This is in many ways an outstanding overview of living with M.S. Thank you for sharing this DVD production. Together we are helping support each other!
Thank you for giving people who live with MS a voice. God bless.
something i needed to see,lots of happy and sad tears ,thanks for bringing awareness to MS & to all my fellow warriors : WE GOT THIS ❤️💪
Great job, @kate and team.
Thank you for articulating beautifully how MS really feels and how it affects people x x
Thank you for this - I relate to so much of this.
Hello ! Did you hear about the therapy Coimbra Protocol ? It stops MS.
Wow thank you
My husband has MS now for 8 years and this somes up every thing for us
Hello ! Did you hear about the therapy Coimbra Protocol ? It stops MS.
This really helped me feel better, thank you so so much🥴
Candise, did you hear about therapy Coimbra Protocol ? It stops MS.
YES ITS LOVE WE NEED
💜💜💜
Thank you so much! 🌹🙏🏼
May i ask for permission for sharing this on my Instagram page?✌🏾
My partner has MS I'm the one struggling with it.
Lisa, did you hear about the therapy Coimbra Protocol ? It stops MS.
May God visit you all n heal you in Jesus Name. Amen 🙏
What a depressing movie... Should have never watched this. People all excepting it, claiming it theirs, with no real hope.🤦🏼
'accepting'
Wonder boy, Yes depressing, but you missed the parts were these strong, powerful men & women are striving no matter about MS! That’s strength & beauty ❣️ They are alive! And living with this MS, they suffer and keep going, that’s add mirable add amazing💗. I don’t know if I could be that amazing with MS or not!
It’s a terrible thing that happened to these people, but they go on❣️
Please see that, hope is in the Love & the life they continue to survive, with the good & the bad times💗😊😘❤️
I agree, I have MS. I live in rural America. No MS support communities here. My family and friends do not understand MS and expect me to be the do everything for everyone person I always was. Most days I can’t get out of bed. I’m in constant pain. I see nothing to be happy about.