This was great. What a fantastic and symbolic way to show how MS is your own body fighting against you. Most people don't understand what it is or how it works. Everyone afflicted knows what it's like to feel like something else or someone else is running your show.
THIS!! This for the first time really accurately portraits how us MS warriors feel & fight EVERY day! Thank you to the makers of this. Brilliant x. Just BRILLIANT x
@fragnugget Yup we get it! the stair scene seems to be the scene that has really resonated with people in Hidden - We're super glad that you liked the film.
Reminded me of the time before l was dx'ed. Climbing some stairs snd my right leg just didn't want to go along. By yhe time l had forced myself and my right leg to the top l was shattered........
honestly, this showed me a handful of things. My multiple sclerosis isn't that bad when I look at how it has and does hit others. I can 100% relate to ever scene depicted in this film yet the experiences are spread out over months and years rather than days or weeks. sure, my MS side puts his hands on my shoulders EVERYDAY and causes pain and lack of mobility to a degree, but I brush him off just as quick as he showed up and Ive been able to keep it moving these 6 years since diagnosis. My MS side might dive and grab onto my legs as I walk out the door, but I kick hiss ass down the stairs before I take that 1st step. If he's gonna try and make my days worse, Im going to make his ass work for it. Oh, and sweet sweet miss Mary Jane has been my ride or die. She tends to keep my MS side falling in line.
the scene when Kirsti talks with Keisha makes me want to cry. I wish I had a Kristi in my life who I could talk to and understands what I'm going through - people without MS try to imagine, and they are so far off feeling how it is to have to always be fighting through this disease.
I’m so sorry. I understand, I get it. The saying, “Others don’t get it until they get it” comes to mind. “NEVER give up. NEVER give in. I have MS. MS will NEVER win”-my personal mantra since being dx’d years ago. I’ll be your Kristi if only online. I don’t post on TH-cam much. Yet seeing your post brought tears to my eyes, as I know that feeling. And I hate seeing others feel that way. Blessings and you are in my thoughts!!
Tiffani, you are a sweetheart - but how can we "talk" privately? Don't want everyone to listen in :) Not that I will be always talking - I try to be as independent as I can be. Your thoughts?
Linda YoungBlendick I’m on FB. I also have a support group on there and locally. Do you have FB? If so, search Tiffani M Ratliff (my pro is a vid of my dogs) or MS Support Group of the Coalfields. Me a sweetheart 😂 You’ll ruin my reputation 🤣 Hope to hear from you. And blessings 🙏
Hi Linda, have you visited www.shift.ms ? We have a forum where you can talk to other people with MS, you can also talk privately through direct messages if you prefer. Sarah
The doppelganger portrayal was really effective - I have often felt MS is unfortunately like sharing your life with a 'toxic twin'. And the scene with the stairs was spot on. I did struggle to understand some of Keisha's vocab as it was fast and had a strong accent, but I can see that this script will help to make the film resonate with young people in the English speaking world.Well done Shift MS for depicting these hidden symptoms of MS in such an accessible and engaging way 👍🏼
It's a shame that the accent is so thick- I had to watch 3 times to pick it up properly and I'm an Australian!! The 'brain fog' , fatigue and the door and stairs are so accurate! And they are the symptoms that people really don't understand.........
Hey @Cathi Smith "you get me blud?" ;-) we're looking into subtitling now, as we know not everyone is down with the London slang Fam. Thanks for watching and your support!
This was so brilliant! Being an artist myself working in TV/Film, I appreciated the visual portrayals of symptoms MS Warriors deal with every day. I always have a difficult time explaining to people, but watching a film like this can say it all for me.
Unfortunately, Shift.ms I’m unable to make an account of your website. It states “You are signed in with your FB account but you are still one step away of getting into our website.” When I click the option to create account I’m taken to a page that states, “An error occurred while creating a new user”! Any assistance with this issue would be greatly appreciated!! Thank you ☺️
Best MS video ever! It really explains in the video how it feels🤯 I have MS and my husband was really impressed how the video has helped him understand what it really feels like when I’m going through some of these things! This video it’s amazing Thank You so much! 🧡MS AWARENESS🧡
Wow thank you @RVing with MS Multiple Sclerosis for your kind words! we really appreciate your feedback and are so glad that this can help communicate some of the difficult to explain symptoms - anything you need we got you over at www.shift.ms
I have secondary progressive MS & I have gotten worse pretty quick.My memory is bad,pain is very bad,Legs don't want to move very much anymore.So many things to say.Im tired all time.Great film.Its hard but you have to keep fighting & stay strong.😊😊
The loss of dexterity with your fingers is really frustrating! I thought it was just writing but it's typing , holding on, etc. Thank you for this film.❤
This really showed what it's like dealing with MS. How it's like fighting yourself to do the things that you're used to doing everyday. That simple things can sometimes seem like the most challenging thing in the world.
I wish there was a german version of this so i could show it to my bf to help him understand better.. but the visuals are amazing maybe i will show him this anyways
I have just watched this for the second time and, wow, it's brilliant. Sometimes, when I feel nobody understands and I can't explain - then this makes real sense to me. Thank you x
I just had my first appt with the neurologist two weeks ago and was told he thinks I have MS. I go for my first MRI in two weeks... But this is exactly how I told my husband how it felt. Like my body didn't belong to me anymore...
This is a genius way of describing ms! However I’m not sure if the ending is very accurate , or if I took it wrong Because it is not that easy to not let it over take you !Or define you as , so many people love to say . I wish that I could be out with my friends and family doing what the do but I Cannot I’m like a zombie and it makes me more dead than usual. So they get less of me for trying to socialize and I always regret pushing myself I end up more beat and zombie like. I personally cannot just get up and go when the phone rings because I “want” or choose to . I cannot plan anything . I’m sure I am just misunderstanding the ending though . Because the rest of the film is the most extraordinary description I have ever seen !!
Barbara I’m sorry to hear that . It’s a constant battle and different everyday. I was diagnosed in 2010 2012 2015 it’s been a roller coaster Only we know. 🙏
I completely understand! I was diagnosed in 1988 and although I "look fine", I am always exhausted and battle constantly with 'micro spasms' in my legs that make me feel like I've run a marathon. Because this exhausts my muscles, I need to treat them as though I have run a marathon.... I can't push through the fatigue- I just fall asleep and can't be woken. I don't get invited to places any more because I usually can't turn up....
I enjoyed this. Wish there were more videos like this so more people could understand. Maybe shorter ones to fit the short attention spans. lol The invisible symptoms make us look like liars & makes us look lazy & when we open our mouths, we sound dumb.
Thanks @CeliTan7 we're stoked you enjoyed this - we hear what your saying - have you checked out our animated symptoms videos - they are all around 2 mins long..
Very good, So useful that it is a young person who is very active who is facing MS. Great that Kirsti offers to help Keisha and get her talking, that's the first hurdle. We deal with symptoms 24/7 of differing grades but always there. When she talks about fatigue it is your whole body and usually your mind too. Well done, really well done.
The whole idea is genius and the stairs are so real. But maybe the most subtle thing was Charlie wanting to get in the lift and briefly looking at the doppelgänger as a sign he understands because his mum goes through similar thigs.
We hear you Nat and understand - our films can't represent everyone in every situation, but we do try and create content that supports people and starts a conversation to broaden the portrayal of people with MS on screen.
I don't have MS, my mom does. I'm trying to understand MS for her sake. From my point of view of this film, and life experience with my mom, it looks like MS is like a demon or it is their angry self acting out. Maybe like unresolved stresses which end up being toxic to the body. Does that seem accurate? Not trying to offend. Honest conversation welcomed. TY
I think it is accurate. I am diagnosed with MS (11years) and I work with other patients, and it seems that stress is increasing the relapses and worsens health condition. Many MSers that I have known where diagnosed during some stressful events/periods in their lifes. Like divorce, graduating from school etc
It's not your angry self acting out, it is your body physically fighting itself and there is nothing you can do to stop it. It is not unresolved stresses that cause MS but they do aggravate symptoms. MS is a physical condition with no known cause, although there are plenty of theories. some more likely than others. MS happens when your immune system attacks a fatty material called myelin, which wraps around your nerve fibers to protect them. Without this outer shell, your nerves become damaged. Scar tissue may form. The damage means your brain can’t send signals through your body correctly. Your nerves also don’t work as they should to help you move and feel. Everybody is affected in different ways, depending on which nerves are affected. Some people have mobility problems, some have muscular spasms, some get pain, some need wheelchairs - there's a whole list of symptoms that people get some or all of. Depression is very common, as is anger at the condition itself. The best thing you can do for your Mom is to support her, be loving, and don't say you understand what she's going through, if you don't. You can't fully understand so don't beat yourself up if you don't, just be supportive and listen when she needs to talk. Also take care of yourself and find someone you can talk to as well, because this is tough on you. Bless you :-)
It's not really an "angry self" acting out, it is your body fighting you at every turn. There are some times when you can walk through just fine, and others when you have to fight your body to make your legs move. What was most real for me was when the mom sat down on the couch and was surrounded by fog. A lot of my issues are cognitive. There are times when it feels like I can't really participate in the world around me because it is unclear. As if a fog has entered and made it difficult to discern what is happening. MS can effect any function that relies on your brain or spinal cord. It is completely unpredictable and it effects us all differently. You could hear 50 different people tell you stories about how they are impacted by this disease, and you would find it is not identical for any of them.
This was great. What a fantastic and symbolic way to show how MS is your own body fighting against you. Most people don't understand what it is or how it works. Everyone afflicted knows what it's like to feel like something else or someone else is running your show.
Thanks Brain - we really appreciate your feed back! Big ups from everyone at www.shift.ms
That's exactly
THIS!!
This for the first time really accurately portraits how us MS warriors feel & fight EVERY day! Thank you to the makers of this. Brilliant x. Just BRILLIANT x
The scene with the stairs is probably about as real as it gets... I feel that always
@fragnugget Yup we get it! the stair scene seems to be the scene that has really resonated with people in Hidden - We're super glad that you liked the film.
Reminded me of the time before l was dx'ed. Climbing some stairs snd my right leg just didn't want to go along. By yhe time l had forced myself and my right leg to the top l was shattered........
This had me in tears. The perfect way to describe what others cannot see when it comes to MS. Brilliant!!! I will definitely be sharing this video.
Thanks for watching and sharing @Jade -Alexis It's our mission to get as many stories about MS represented on the screen as possible
@@Shiftms1.Muscle stiffness/spasm
2.MS hug
3.Cognitive problem
4.Dipression
5.Sleepiness
U should include these things also... ❤
honestly, this showed me a handful of things.
My multiple sclerosis isn't that bad when I look at how it has and does hit others.
I can 100% relate to ever scene depicted in this film yet the experiences are spread out over months and years rather than days or weeks.
sure, my MS side puts his hands on my shoulders EVERYDAY and causes pain and lack of mobility to a degree, but I brush him off just as quick as he showed up and Ive been able to keep it moving these 6 years since diagnosis.
My MS side might dive and grab onto my legs as I walk out the door, but I kick hiss ass down the stairs before I take that 1st step.
If he's gonna try and make my days worse, Im going to make his ass work for it.
Oh, and sweet sweet miss Mary Jane has been my ride or die.
She tends to keep my MS side falling in line.
Best Video ever on MS 🧡MS AWARENESS🧡
the scene when Kirsti talks with Keisha makes me want to cry. I wish I had a Kristi in my life who I could talk to and understands what I'm going through - people without MS try to imagine, and they are so far off feeling how it is to have to always be fighting through this disease.
I’m so sorry. I understand, I get it. The saying, “Others don’t get it until they get it” comes to mind. “NEVER give up. NEVER give in. I have MS. MS will NEVER win”-my personal mantra since being dx’d years ago. I’ll be your Kristi if only online. I don’t post on TH-cam much. Yet seeing your post brought tears to my eyes, as I know that feeling. And I hate seeing others feel that way. Blessings and you are in my thoughts!!
Tiffani, you are a sweetheart - but how can we "talk" privately? Don't want everyone to listen in :) Not that I will be always talking - I try to be as independent as I can be. Your thoughts?
Linda YoungBlendick I’m on FB. I also have a support group on there and locally. Do you have FB? If so, search Tiffani M Ratliff (my pro is a vid of my dogs) or MS Support Group of the Coalfields. Me a sweetheart 😂 You’ll ruin my reputation 🤣 Hope to hear from you. And blessings 🙏
Hi Linda, have you visited www.shift.ms ? We have a forum where you can talk to other people with MS, you can also talk privately through direct messages if you prefer. Sarah
add me on facebook hun Im always around to help people with m.s
The doppelganger portrayal was really effective - I have often felt MS is unfortunately like sharing your life with a 'toxic twin'. And the scene with the stairs was spot on. I did struggle to understand some of Keisha's vocab as it was fast and had a strong accent, but I can see that this script will help to make the film resonate with young people in the English speaking world.Well done Shift MS for depicting these hidden symptoms of MS in such an accessible and engaging way 👍🏼
Thanks Leonie Martin! we're so glad that this resonated with you and thanks so much for the kind words and support.
The door scene sticks out for me. Me being 6’2 and having trouble opening doors is real! Then the couch scene for real! Oh the stairs for sure!
So real! Gives me chills its exactly how I feel. Well done! Thanks for the awareness
@ftf p Thanks for the feedback - we're stoked that you liked the film!
As hard as it is to watch this film it definitely portrays how our lives are! It brings out so many emotions I try to keep in. Great job!
Kind words @Gail Ganske thank you!
It's a shame that the accent is so thick- I had to watch 3 times to pick it up properly and I'm an Australian!!
The 'brain fog' , fatigue and the door and stairs are so accurate! And they are the symptoms that people really don't understand.........
Hey @Cathi Smith "you get me blud?" ;-) we're looking into subtitling now, as we know not everyone is down with the London slang Fam. Thanks for watching and your support!
This was so brilliant! Being an artist myself working in TV/Film, I appreciated the visual portrayals of symptoms MS Warriors deal with every day. I always have a difficult time explaining to people, but watching a film like this can say it all for me.
When the cell rang. I was thinking, “Is she going to forget how to answer it, as I often do”? Spot on portrayal of MS.
Unfortunately, Shift.ms I’m unable to make an account of your website. It states “You are signed in with your FB account but you are still one step away of getting into our website.” When I click the option to create account I’m taken to a page that states, “An error occurred while creating a new user”! Any assistance with this issue would be greatly appreciated!! Thank you ☺️
Hey Tiffani - did you get this sorted..? please let us know if you need any help..
Best MS video ever! It really explains in the video how it feels🤯 I have MS and my husband was really impressed how the video has helped him understand what it really feels like when I’m going through some of these things! This video it’s amazing Thank You so much! 🧡MS AWARENESS🧡
Wow thank you @RVing with MS Multiple Sclerosis for your kind words! we really appreciate your feedback and are so glad that this can help communicate some of the difficult to explain symptoms - anything you need we got you over at www.shift.ms
I have secondary progressive MS & I have gotten worse pretty quick.My memory is bad,pain is very bad,Legs don't want to move very much anymore.So many things to say.Im tired all time.Great film.Its hard but you have to keep fighting & stay strong.😊😊
The loss of dexterity with your fingers is really frustrating! I thought it was just writing but it's typing , holding on, etc. Thank you for this film.❤
This really showed what it's like dealing with MS. How it's like fighting yourself to do the things that you're used to doing everyday. That simple things can sometimes seem like the most challenging thing in the world.
We're glad it resonated with you Janelle!
Wow what an incredibly powerful example of what it’s like to live with MS. Fight on warriors 🙏😉 🇦🇺 💪🏽
I wish there was a german version of this so i could show it to my bf to help him understand better.. but the visuals are amazing maybe i will show him this anyways
I have just watched this for the second time and, wow, it's brilliant. Sometimes, when I feel nobody understands and I can't explain - then this makes real sense to me. Thank you x
No, no, no Thank you!! @Kate Riley We're so glad this helps! - that's what we're here for - we get it.
I have MS . This is awesome!!!! To help people understand what it is like!!!!!!
@Abby Paige you are awesome!!! thank you for watching and we're glad it helps!
I just had my first appt with the neurologist two weeks ago and was told he thinks I have MS. I go for my first MRI in two weeks... But this is exactly how I told my husband how it felt. Like my body didn't belong to me anymore...
This is a genius way of describing ms! However I’m not sure if the ending is very accurate , or if I took it wrong Because it is not that easy to not let it over take you !Or define you as , so many people love to say . I wish that I could be out with my friends and family doing what the do but I Cannot I’m like a zombie and it makes me more dead than usual. So they get less of me for trying to socialize and I always regret pushing myself I end up more beat and zombie like.
I personally cannot just get up and go when the phone rings because I “want” or choose to . I cannot plan anything .
I’m sure I am just misunderstanding the ending though . Because the rest of the film is the most extraordinary description I have ever seen !!
Peggy Rinaldi the same for me. I'm diagnosed with ms since 2011
Barbara I’m sorry to hear that . It’s a constant battle and different everyday. I was diagnosed in 2010 2012 2015 it’s been a roller coaster Only we know. 🙏
I completely understand! I was diagnosed in 1988 and although I "look fine", I am always exhausted and battle constantly with 'micro spasms' in my legs that make me feel like I've run a marathon. Because this exhausts my muscles, I need to treat them as though I have run a marathon.... I can't push through the fatigue- I just fall asleep and can't be woken. I don't get invited to places any more because I usually can't turn up....
Cathi Smith , Yes it takes very understanding friends .
I understand this 100% I wish to do normal things again.. I swear other people just think it’s not hard to just get up and operate.
I loved the short film specifically wen she got to the stairs many can relate to that feeling
I enjoyed this. Wish there were more videos like this so more people could understand. Maybe shorter ones to fit the short attention spans. lol The invisible symptoms make us look like liars & makes us look lazy & when we open our mouths, we sound dumb.
Thanks @CeliTan7 we're stoked you enjoyed this - we hear what your saying - have you checked out our animated symptoms videos - they are all around 2 mins long..
This is so well explained, bravo to whoever made this. It's exactly how I feel sometimes
Thanks Spencer - we have created a number of films about MS that you can find here: shift.ms/films
Very good, So useful that it is a young person who is very active who is facing MS. Great that Kirsti offers to help Keisha and get her talking, that's the first hurdle. We deal with symptoms 24/7 of differing grades but always there. When she talks about fatigue it is your whole body and usually your mind too. Well done, really well done.
Thanks Al Mack!!
This was brilliant. Explained the way it feels in a way I never could x
Thanks @BevsArtsandCrafts - we're here for ya.
The whole idea is genius and the stairs are so real. But maybe the most subtle thing was Charlie wanting to get in the lift and briefly looking at the doppelgänger as a sign he understands because his mum goes through similar thigs.
This is the best video ever to explain multiple sclerosis thank you so so much! 🧡MS AWARENESS🧡
Wow. This was so validating. ❤
This was so creepy to watch
Spot on. I'm assuming the ringing of the phone is she was too exhausted to go though her expression with the call is that she really wanted to.
Thank you so much for that!!
Try the Mediterranean diet, use Herb's like turmeric, ginger and Asian ginseng and speak to a chiropractor.
Very artistic!
Brilliant!
Sadly this otherwise great video does not include those of us that cannot talk on the telephone…
We hear you Nat and understand - our films can't represent everyone in every situation, but we do try and create content that supports people and starts a conversation to broaden the portrayal of people with MS on screen.
Absolutely love the film because it describes the indescribable but I ain’t feelin’ da rhymez n barz; ya git me blud, innit fam?!
Big up Robby you are Shift.ms famalam long time blud xx Robby Khullar = Bare hench.
Thank you for this. It's been 23 years for me. In a closet...
Hey Nancy - we're here anytime you need us, www.shift.ms is there 24/7 for you!
I don't have MS, my mom does. I'm trying to understand MS for her sake. From my point of view of this film, and life experience with my mom, it looks like MS is like a demon or it is their angry self acting out. Maybe like unresolved stresses which end up being toxic to the body. Does that seem accurate? Not trying to offend. Honest conversation welcomed. TY
I think it is accurate. I am diagnosed with MS (11years) and I work with other patients, and it seems that stress is increasing the relapses and worsens health condition. Many MSers that I have known where diagnosed during some stressful events/periods in their lifes. Like divorce, graduating from school etc
Thank you for your response. It helps me to understand better.
You found the right words to describe MS! I have MS and no medication has the power to overcome the damage stress does to my body
It's not your angry self acting out, it is your body physically fighting itself and there is nothing you can do to stop it. It is not unresolved stresses that cause MS but they do aggravate symptoms.
MS is a physical condition with no known cause, although there are plenty of theories. some more likely than others.
MS happens when your immune system attacks a fatty material called myelin, which wraps around your nerve fibers to protect them. Without this outer shell, your nerves become damaged. Scar tissue may form.
The damage means your brain can’t send signals through your body correctly. Your nerves also don’t work as they should to help you move and feel.
Everybody is affected in different ways, depending on which nerves are affected. Some people have mobility problems, some have muscular spasms, some get pain, some need wheelchairs - there's a whole list of symptoms that people get some or all of. Depression is very common, as is anger at the condition itself.
The best thing you can do for your Mom is to support her, be loving, and don't say you understand what she's going through, if you don't. You can't fully understand so don't beat yourself up if you don't, just be supportive and listen when she needs to talk.
Also take care of yourself and find someone you can talk to as well, because this is tough on you. Bless you :-)
It's not really an "angry self" acting out, it is your body fighting you at every turn. There are some times when you can walk through just fine, and others when you have to fight your body to make your legs move. What was most real for me was when the mom sat down on the couch and was surrounded by fog. A lot of my issues are cognitive. There are times when it feels like I can't really participate in the world around me because it is unclear. As if a fog has entered and made it difficult to discern what is happening. MS can effect any function that relies on your brain or spinal cord. It is completely unpredictable and it effects us all differently. You could hear 50 different people tell you stories about how they are impacted by this disease, and you would find it is not identical for any of them.
Look into lion's mane mushroom as well.
Amazing Thank you for this Ms can be lonely xx
Thanks for watching @Sasha Rix
tears.... But... im on my grind great vid
Thanks Don!
Yeaho this actually what ms looks like. It's another self of yours that controls you every single minute
This was creepy af.
So demonic possession?
foot drop
Nah this is just creepy