MY SCOLIOSIS STORY: back brace, spinal fusion surgery, & recovery
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- เผยแพร่เมื่อ 2 ต.ค. 2024
- I was really nervous ab filming this and say um and like about a thousand times so I’m sorry ab that, I just wanted to keep it real and didn’t feel like cutting them all out. This definitely was more out of my comfort zone to be filming, hope I wasn’t talking too fast to where you couldn’t understand me haha. If you’re going through something similar I’d love if you would reach out or if you have any questions I would be happy to answer them!! I will be shocked if anyone actually watches the whole thing.
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I just got my surgery yesterday,im in the hospital right now. And honestly it’s not that painful. And I got to eat actual food the day of my surgery but I threw it up lol. But if you do have to get surgery just know nothing will happen,you’ll do great. And I highly recommend getting it cause it’s worth it. I can already breathe so much better,and a bunch of other stuff.
Omg I am afraid to do it but if it’s worth it I am going to
Is Kr that’s goods!
I'm supposed to get it in 2 months and I'm super nervous
How the pain on the first day
Mine is tomorrow morning, it hasnt hit me yet lol
Omg I had scoliosis and I also got the surgery. I wore that back brace for like 3 years and it was HELLL.
Cristinaparra 0415 you can say that again!
Fuck the brace I never wore that shit
Yeah I hated it,it was so uncomfortable to sleep in.
I have scoliosis as well. I just got my brace a few weeks ago. That shit is a medieval torture device. If it were up to me I would honestly just rather get the surgery than having to wear the brace for 3-5 years. My mom is so against the idea of getting surgery though which sucks...
I wore it for 2 years and no progress, still I had to do the surgery
Hi. My brother is in surgery as I’m watching this vlog. I was just looking up the recovery after surgery. He has a 83 degree curve. He’s 17 and he has a double curve x
my heart goes out to him and your family!! thinking of yall, praying that all goes well💜
He’s come out of theatre. Went in at 12:30 and out at 8. Thank you x
I got my done on October 1 2019 I am recovering very well it has been a month so far
Krisanna Vlogs I got my surgery yesterday lol
Krisanna Vlogs i had mine on January 7 2020 and im still recovering. Scoliosis surgery is tough man. Every time I look back on the memories of the hospital days i can’t help but tear up
How much for the surgery ? And do you guys know after the surgery, it will have any affections when we ‘are getting older ?
@@totidelano7519 I might get surgery if my curve gets worse. I just have a few questions that I hope you can answer. Depending on the answers it might put me in great relief. Does insurance cover the surgery cost? How painful is the surgery/recovery? We’re you able to get back to your daily normal life without any complications? Can you bend normally? Are there any movements that cause pain? Is the surgery permanent or do they remove the rods and other stuff after you stop growing?
Can you share your doctor are your results good?
i have 3 curves, one in my lower back which is about 45°, middle back which is 66°, and my neck has a 30° curve. i had 2 braces, both of which i never wore out of discomfort and how self concious it made me. i absolutly hate my body right now. i want surgery so badly, i just want to look normal. im at a loss. im so depressed. i just want to sit in a ditch and never come out. i dont want anybody to look at me. i have always been very short and small because of my scoliosis and i cant stand it. i have no confidence left at all. scoliosis is the worst thing that has ever happened to me, and it will always be in the back of my head no matter what i do. there is no escape from my body.
Please check out Dr. Loren Fishman and get a consultation via Skype or in person if you can. I had a 68 degree C curve in my middle to lumbar spine and after a year of doing the exercise routine he gave me it reduced to 52 degrees and is still reducing as i'm continuing the exercises, this is not a scam or anything I promise please check it out
@jenna UwU Did you get the surgery, sweetie? You are not alone in this! Many people have this condition or worse... Remember to live your life to the fullest no matter what.
@jenna UwU Did you get the surgery, sweetie? You are not alone in this! Many people have this condition or worse... Remember to live your life to the fullest no matter what.
i completely agree with what she said!! we are all here to help each other, you are not in this alone
Samar Ali how old were u when u did the exercises
i just found out today i have scoliosis and in scared straight
kaleigh mitchell the best of luck to you! Hope all goes well, God bless u 💛
Hi! It all depends on how bad your scoliosis gets if you need spinal fusion. I may likely be getting it soon. I have a S curve of 74 and 89 for each.
i don’t think they got the joke🤧lmao
I have it too! The crazy thing is is I’m more worried about my future kids having it.. even tho that’s far from now. I’m super insecure about it and feel people would treat me differently if they knew I had it. I’ve heard ppl in my school make jokes about it as well. And Ik this sounds sad but I’m scared a guy would never like me if he knew I had it :(
GIRRLL!! you are beautiful inside and out and do not ever be afraid of someone not accepting you as you come!!! embrace your differences
Emily Edwards AW thank you !!! This made my day 💜💜
I just wore my brace for the first time yesterday and i cried my FACE OFF- thank u for sharing your story, it means a lot
its the start of a journey for sure, stay strong!! you got it :)
Emily Edwards thank you!!!
when i first got mine it was so painful but it’s been a few months and it doesn’t really bother me anymore
hopefully it’s the same for you 💗💫
When I first put on my brace with my doctor. I cried so much, it was so overwhelming. But now, a few months later. It’s normal to me.
@@abi_nguyen hope everything’s been ok in the last year for you
Glad you were brave enough to tell your story. Love that for you💛💛
Aww, thank you for the support💛💛
Thank you so much for posting this! I just got informed a month ago that I need surgery for my scoliosis. I have another appointment on the 7th of January to find out what the full plan will be but now I’m not as nervous because I know what to expect.
Great that she’s helping people.wish I was confident enough to do videos ,but always happy to talk to people.although maybe I’m not the best person ,however I’m alive and can walk so could be hell of a lot worse without surgery
I’m getting my brace sometime this week I’m nervous 😬
I am getting fitted for one in like 2 weeks
Omg you remind me SO much of another youtuber ashley wicka, you even speak the same, it's actually scary lol
omg aww i watch her!! ahahha thank u and reach out if u need someone to talk to :)
Such a good video! I’m looking into this surgery for myself. Do you feel any sort of aching/nerve pain after the initial recovery? As in 6 months into recovery and beyond, I’m terrified of being in more pain after than now. Currently dealing with daily back pain, numbness, headaches, and hip pain. Also are you able to “feel” the hardware inside? Or does your back just feel like one unit, I’ve heard some people say they can feel it which is obviously super scary.
thank u!! and no, i have pain sometimes but it is just when i over work myself. it is a million times better than before the surgery, but pain is different for each person.
for anyone seeing this, i just uploaded a scoliosis q&a if you wanna check it out (:
my scoliosis surgery is in 14 days, and i’m so excited because i hate the appearance of my back and how my body is uneven, ive struggled with my lack of self esteem for years now. but i’m sooo nervous, i’ve never had surgery before and i’m just overwhelmed.
yah I feel u, i was so nervous the day before my surgery that i was ill, but it went perfectly and it hurt a ton to get up and sit but a month after I felt ready to go back everything, even tho i wasn’t aloud, tho i may have still have practiced a little😉
it’s all worth, hope it goes well!
I’m seeing this one year later but I went through the same exact thing!!
This helped!❣️i just got my surgery in July 17,2020
that means so much to hear! hope you’re doing good
can you bend and touch your toes like normal? bc i am contemplating whether to get it
Lillyana-Rose Cowie oh yes I can ! I mean the fist like 2 month of recovery will be kinda hard I recommend having a lot of patience but I mean I have 9 months from my surgery now & I feel 100% good
You dont know how much this video means to me. I’m getting surgery during the summer, and when I found out I needed to I completely broke down. I’m so scared and worried about what could happen, but I know I’ll be okay. Watching this video gave me a little bit of a heads up and hope. Thank u so much❤️
heyy did u do it and if so hows recovery?
Mikaela B I actually had to reschedule it because of the pandemic! But I’m seeing my doctor in December to try to schedule it again
So sorry that I never got back to your comment but thank you so much! just knowing that I helped one person makes me so happy. Keep me updated if you get it rescheduled!!
This vid made relieved the anxiety I had. . . Ty so much
Im gonna get one planned for next year
I just found out I have Scolosis last year my curve was 55, I’m thinking about getting the spinal fusion
have you done it?!
Nah not yet, still saving money for it. When I do I’ll update the status.
Corbett Robinson ok! hope u get it!
Mikaela B thank you it means a lot
Corbett Robinson :)
I did scoliosis surgery and I feel just like you❤️❤️ thank you for your help I love you so much😍 love from Israel 🇮🇱
Can you bend and arch your back and what degree was your curve?
I'm older but I'm finally having scoliosis correction surgery in two days after being diagnosed with it ten years ago. I have an eighty something degree curve.
How did your surgery go?
@@ΣταθηςΣταθοπουλος-χ4η it went well. I'm recovering nicely. My incision is almost completely healed but it's getting itchy. I'm achy sometimes but no real pain. And I'm straighter and bit taller now apparently lol. No one let's me do anything but the only thing I can't really do is bend over. But my range of motion is improving over time with my own efforts.
can anyone give me advice or tell me how they felt during a few weeks into recovery? because currently i feel like i’m not doing good enough like it’s still hard for me to walk, eat, i have tummy aches, and can’t even get out of bed myself still and i’m just concerned about how i’m doing :(
im getting my surgery monday (2 days) and im sooo scared. was it scary orr like what was it like when u woke up??
talia rblx hey! don’t worry luv i felt the same exact way and it’s really nerve wracking at first. i tried my best to stay calm on the way there and while i was meeting with my doctors before the surgery and such they really calmed me down! so they of course put you to sleep and when you wake up you’re a bit loopy and such but slowly you clear up. it’s a bit painful at first since you have a whole different shaped spine so it obviously feels different. genuinely the pain comes and goes but you learn to get used to it and it’s there for only a little bit! i felt completely painless about 3 weeks after surgery so it’s a slow process but it’s worth it :)
talia rblx if you have any more questions feel free to ask! i’m here
Khadija Khan aww thanks so much, this makes me feel so much better. i cant even tell u how anxious ive been about this and i can barely eat. i met the surgeon a few weeks ago and he gives me rlly creepy bad vibes. so im just kinda scared about that too? but it could be in my head. i hope i recover quickly because i havent been in any form of sports or exercise lately and i feel like ill be so weaaak.. i'm glad u came out okay! ill update u when i get it if i can remember 🥺
talia rblx aweee i was just as anxious since it’s a big change but it’s a good change ☺️ and omg same my surgeon creeped me out too but hey all they have to do is the surgery and other people like the nurses and such help you out! and i’m not an athletic person at all and i think i’m recovering at a normal speed, and you do end up being a bit weak afterwards like i’m still trying to regain some strength! it’s a slow process but it works haha and thank u! i hope you come out better than ever! good luck and if you wanna talk more sometime if you have instagram mine is @khadijakhaaan feel free to message me if you ever need to
Hello everyone,
I have an accident, my middle back is really afftected. After accident there is space in D10 (mid back) the Docters just gives me medication for pain also I am have done phyioherapies and doing exercise at home. Did any have done surgery for such accident. Do I need surgery to cover or pull the upper and lower back to fix the space.??
Thank you.
Hi, I doubt you will see this because you posted it a year ago but I watched the whole video and my first x ray was at 32 as well and then I jumped to the high 40’s in 6 months! I’m currently on the waiting list but all operations are postponed due to corona virus so hopefully I’ll get it done soon, your video really helped! Thanks :)
Lucy Elms Awh of course!! Let me know if I can do anything to help :)
Emily Edwards Thanks! I feel really confident at the moment, I just want it to get over and done with lol
How old are u
@BlackpinkInYourArea yes I think I was 13 when I was diagnosed but I’m 4 months post op now and it had progressed a lot xx
@BlackpinkInYourArea 10 degrees is quite a small curve, and everyone’s curve is different so it’s hard to say whether it would get worse
I had a back brace and wore it for about a week. Mine was huge, it completely covered my chest and it stuck out in every angle. I remember the first time I put it on I just cried (I was 11). I didn’t go to school because of how scared I was. The last time I wore it was when I went to the garden centre to get flowers with my dad. I have social anxiety and all the weird looks and stares I was getting caused me to have a panic attack. It made it so hard to breath that I almost fainted. When I went to bed that night the Velcro wrecked my bed sheets. After that I never wore it again. My curve has gotten worse and I’m hoping to get surgery one day. I really wished the brace worked out but I remember just thinking about it made me cry. This video really helped me. Thanks
Aww of course!! Always here to help, I feel you! I absolutely hated my brace it is not for everyone. Proud of you for giving it a shot!!!
I had scoliosis I hated every bit of it I went on this scoliosis web page on Facebook and I met so many different ppl with the same condition as me I could talk about anything on there
Can you share what page that is? I would love to join that group!
I know this was 6 months ago but I'm 12 and I got diagnosed with scoliosis a year ago and i also do gymnastics so that makes everything worse.
Update: I found out that I have 2 curves so it's like an S. The top curve is 37 degrees and the bottom is 15 degrees. I am getting a brace but I only have to wear it at night. I am so glad and thankful that I can still do gymnastics for now. I have been doing it for 9 years so it is very important to me.
I'm so sorry!! I'm always here to talk
scoliosis isn't really common in my country, ive been wearing for 1 3/4 years and it was torture. thankful i didnt need surgery but i was and still am the only one i know in school who wears a brace and it really sucks getting judged. thanks for sharing ur story
Itsmehshinni i know how tough it can be! stay strong!!
my brother actually got his surgery done today, and seeing your videos has helped me cope with the anxiety and fear I had. He's recovering well and he made it through. Thank you for the emotional support today lol.
Abby B awww that makes me so so happy to hear!!! thank you for sharing, thinking of your brother and family this week!
Woah you speak quite fast. Were you nervous when you were recording the video?
love this video ❤️
I’m about to get mine on the 11th of December. I have double with 52 and 33 degree curves respectively. This was really informative, thank you so much.
Thank you!!! Thinking of you and praying that your surgery goes smoothly!
Omg no way I’m having mine December 14th!!! ❤️sending love hope all goes well for you!
i have to get surgery in like july , and i’m legit terrified💀 but after surgery, i know you can’t bend your back or anything like that for a while. ik this is a stupid question but will i ever be able to bend my back?😂💀
that’s not a stupid question!! but you won’t be able to bend your back where the rods are. i promise you get used to it, it becomes normal
@@EmilyNetzel I have just had my surgery on 24th of June and i'm really sad because i won't be able to bend my back like I did before 😟
i remember being tested for scoliosis in middle school, it was terrifying. girl i’m proud of you for going through this
thank u!! it means a lot
im sorry for all the comments, ig its kinda like a rant, idk, but i wonder how im gonna walk bc of the virus, like, the hospital obviously has kids in there with it, but idk, ig it'll work out, idk why i scare myself, like im not gonna wake up or something, ig bc i already had one surgery, so idk, but im glad everything worked out with u :)
don’t worry keep commenting girl get all the thoughts out!! and yes i can’t relate about the virus but everything’s gonna work out n be okay
I have scoliosis right now and I just went to see my Sergeant and he told me that I need to get surgery and in January of 2021 I am getting surgery on my back.
Im getting mine in January too! Good luck ur gonna do great
Omg I have the snoopy now!!! Hahahah it’s in my closet!!
Here before 350 subs!!
omg lol, for my first surgery i was laughing so hard too, and they was asking me questions too, and i was like sorry im laughing, and stuff, and after i woke up i was saying crazy stuff, i wanna get my other surgery, but im stressing so bad
Hii! Since had that surgery, after u have it done, does it hurt? I mean, I know that they put in your back metal sticks or whatever but after that, does it hurt when it's healing?
it was very stiff in the healing process but i am okay now!
My back pain is terrible and my shoulders are a few cenemeters uneven, my mom was supoost to scedual my first xrays last may, hut she still hasnt and its honestly scaring me
babie_xiao don’t be scared!!! just schedule and appointment and itll all be good
@@EmilyNetzel my mom has to scedual it bc im not even 16 yet, but she is procrastinating and it sucks, but this video was good to watch
babie_xiao dont freak!! it’ll all be okay and thank uuu
@@EmilyNetzel no oroblem, and ill try my best not too :)
I have been diagnosed like three years ago i never searched videos of people telling their stories. I'm wearing a Boston brace since day one and I'm so tired of it, people really think is easy but they don't know how emotionally exhausting it is.
you're so strong!!! i'm here for you!
Getting surgery next week and I’m terrified
everything's gonna be okay!!
I got my surgery nov. 25, first day at home and I'm watching for advice in youtube.
How long did it take you to get up by yourself? I'm scared my family will get bored of me wanting to walk a bit to get more comfortable every hour.
Victoria Ávila My mom was pretty much with me the first couple weeks 24/7!! I would change positions a lot. I’d lay down for an hour or so, then sit up, and then walk around. It gets easier and easier everyday!! Just walking and do your small exercises/stretches helps a lot!
I have kyphosis which means that I’m hunched over. My curve is 80 degrees and it was so bad that my lungs couldn’t fully expand. With physical therapy now it’s at a 70 degree curve
I had the back brace ,god it was almost like fucking torture.although not as bad as the ACTUAL torture I endured of traction.holy living hell Jesus I had screws in my head and knees and was strapped down with weights for weeks, SURPRISE it only made things worse.also lowered my iq drastically (don’t know how) and gave me nightmares for years.
If any barbaric hospitals still do this procedure please do NOT ever accept it and never let kids or relatives do it neither.
The back brace is near heaven in comparison
How long did it take you to like do sports after surgery cause I’m getting scoliosis surgery on January 7
My doctor did not want me doing full physical activities until 6 months post op, but I started to run and do light workouts at 3 months post op
Thank you so much, this video has really helped! I found out around 2/3 months ago that I have severe structural scoliosis and we started to talk about my options however with the coronavirus they said they can’t do anything for 3 months so I’m just stuck at home panicking about the operation. This video as put me at ease thankyou so much xx
Bailea Hook i’m so sorry to hear that, but soso happy that this could help. please reach out if u need anything!!
i had the surgery and i am two weeks from having it and it has been hard i have been depressed and have anxiety and crying and screaming in pain and please pray for me and i am doing better than i was but still in pain and it is hard. these are the worse 8 weeks of your life.
Mack Fam i couldn’t feel for you more!! you will be in my thoughts in prayers💜 let me know if i can help you in any way
I have scoliosis and I can’t we’re a brace because I have 13 vertebrae’s instead of 12 and mine just keeps getting worse so I’ll problem have to get surgeries!
I had to have surgery for scoliosis back in February 2019, it was pretty severe. However, I am feeling much better. The experience of the surgery is different for everyone, but if you're reading this and worried about it, don't be, you will do just fine! :))
This is the positivity we love to hear!!! Hope you’re doing good :)
How was the pain on the first day
Watched the whole thing. Super interesting! Ya learn something every day! 💕
Good video I'm getting the surgery I'm nervous what all are you hooked up to?
heyy how's recovery?
hey man i got surgery last thursday and ive been experiencing rib pain because my scoliosis moved my body and i got a head tilt any chance u experience that? and if so when will it go away? please answer i beg
I didn’t specifically experience rib pain, but my whole body was defintely ina. state of shock from being changed so drastically. I believe that it will go away as you heal. Praying for a smooth recovery for you!
@@EmilyNetzel ah ok because i cant go outside rib pain hurts too much
hiiii! I also have scoliosis and ive been wearing a back brace for almost a year now...its really not that bad!
Laura Hanna How many hours a day do u have to wear it?
Jess Reilly I am wearing it over 20 hours a day and I got so used to it that it feels weird not to wear it! Haha
Laura Hanna ughhh for some reason mine just doesn’t feel normal. It hurts all the time and the pads are always jabbing me 😔
Jess Reilly I’m really sorry to hear that! How long have you been wearing it for? And have you been wearing it often? Cause your back may change over time and maybe that’s why the back brace is uncomfortable for you now...I would suggest asking an expert!
Laura Hanna I’ve been wearing it for 12 hours a day for the past 4 months! My doctor says that it still fits and I also believe it does. It’s just that it for some reason has never gotten comfortable! I honestly just wish I didn’t have to wear it 😂
had my surgery last tuesday still in a huge huge amount of pain but dont worry guys your doctors will help
im back no pain anymore but had a question does anyone elses metal work move inside there body
i got my scoliosis surgery last week and i’m not at home restinggg my curve was a S the top curve was 63 and the bottoms was 43 degrees i tried bracing but whenever i wear them fir a long periods of time i would get bruises when i take them off so i stopped and went for physio therapy but none of the work and the degree got higher and higher so i decided to get surgery the rod was only for the top curve so that i can still have my flexibility from my bottom spine because over time the bottom spine would straighten itself since the top curve was straightened and honestly i don’t regret having the surgery although i’m missing school and having my nationals this year but yesss don’t be scared trust the doctors you’re under great care 😚😚:D
I just came across this video and i love stories on this type of stuff haha. Also, random but you kinda look like joey king
thank you ahaha
I had back injury 3 years ago then ahain i had a year ago and now i found out i have a mild scoliosis and dr told me to have physical therapy for 1 month and let's see we will see about operating scoliosis. I am 27 and when i was 23 i had back injury. Let's see. Wish me luck and ty for this video.
Did your scar ever get smaller?
it’s been a year for me and the scar is barley visible, sometimes it just looks like a shadow.
I also have scoliosis and I wore a back brace for 3 years and I’m going into surgery this Friday and I’m so nervous and you’re vídeo helped me a lot like knowing what you went thru and kinda getting ready for what I’m gonna get thru (even if every experience it’s different) and now with covid my mom it’s not going to be able to be with 24/7 and that makes me a little bit nervous.
But thanks you’re vídeo helped me a lot
I’ve gad surgery 11 days ago and I’m feeling like it didnt happend, like, minimal pain
hey i'm getting my back brace this week, can someone tell me what it's like? like how long does it take to get used to? is it painful?
It is a little bit uncomfortable and can make yo ur back sore at first, and depending on the type of brace you get it can be really uncomfortable at times but you learn to deal with it. just make sure to make yourself wear it because if not you’ll get surgery
what she said, it can be uncomfortable but not painful. you’ll get used to it!
Thank you
I got my surgery 4 Nov 2020 and I remember the most painful thing was standing for the first time and I would’ve never thought that sitting could be so uncomfortable
I just heard today that my sister, 10yo, has scoliosis. Just recently diagnosed and apparetly it's curving fast...
Trying to convince my doctor to let me get the surgery! I found out during high school and I had to go through the whole back brace experience at that time, purely hated it. They didn't even mold it from my body literally made one purely from my x-ray and then did some trimming when I was there :'(
Love It❤️ So Glad Everything Went Good! Probably TMI, But I’ve Heard You Have To Get A Catheter... If You Did Was It Bad?
I actually forgot to talk about that!! and no they put it in while you are asleep so you don’t feel it. When they remove it it is a bit of discomfort but nothing too bad.
Lauryn Else That’s crazy!! I’m too young to worry about it now, but I’ve thought about not being able to get an epidural before because of my back. But for me prior to my surgery I experienced more aching and after my surgery is when i delt with nerve pains but that was only when I overworked myself and did more than my body could take. My pain before was a whole not worse than after. I would recommend surgery if you have talked to your doctor and he thinks it is suitable for you and the pain. It is a difficult and long recovery so you may have more to figure out before you would get it since you have a son and are older than I was. If you need to talk about it more or have any more questions feel free to dm me on instagram!!
im scared af of surgery but i need it and im almost 20 so fuck
I have to go next month & have my surgery. I have a 90degree curve & have to go have it done ten days before Christmas. Which is also right around my birthday. I am 37 & have a son & am very scared. Can I e-mail you?
Yes! my email is in the description (:
I like your video, very interesting! I´m operated from scoliosis. I think that it´s important to share the
experiences. I write about that in my channel. Be strong, you´re a
warrior!!!
Omg I relate to so many things you said, the sitting down pain, the car ride home, the rat's nest hair, the stickiest band aid ever (I screamed when my mom took it off lol)... I got my surgery back in 2012 so it's been a while. I was wondering, do you still struggle to sit down? Because you looked pretty relaxed sitting down in this video. I still look really really really straight when I do and it's so uncomfy, like I feel so stuck and it makes me really insecure cus I look like a stick lol. I basically have 0 mobility in my spine, did it loosen up for you?
It has not loosened up but the last few vertebrae of mine are not fused so I have a little bit of mobility in my lower spine. I can relate with the stick thing though ahhaha so many people comment on my posture and I honestly think that’s a great bonus, although sometimes you may wanna be able to slouch it just creates problems in the long run!
thank you so much for sharing!! i can relate to lots of stuff you are talking about. i’m currently going through the bracing process! i understand the struggles, concern, doctors, back pain, appointments, x-rays, and self consciousness. it’s awesome to hear stories about other girls like me!!!❤️❤️
Omg thank you! Praying for you through this!! I know it’s tough, but in the end it’ll be worth it 🤍
I found I have scoliosis and I have to have spinal fusion in three months and I’m so scared 😱 😭
i have scoliosis and i got my brace the other week and I had to be in it all the time after a week I have surgery mid march.
Just a few comments here. Emily, you're talking like a runaway freight train. You might want to try slowing down just a little bit so that people don't have to struggle to understand what you're saying. Some comments for anyone else watching this video. I have heard many stories from kids having to be braced for scoliosis. I've heard from some that say that it's horrible. I've also heard from others who said it was a bit uncomfortable, even no problem. There has to be a mindset here to make the brace work. Yes, it's stiff, yes it's hot, but I've heard plenty of stories from kids who hated it at first but then it got used to it and actually kind of liked it. A lot in that group have compared it to getting used to a new pair of leather shoes. If there are spots that are particularly bothering you go back for another meeting and talk to the orthotist (brace fitter/maker). From the stories I've read, the large majority of kids who ended needing surgery either those who the scoliosis had been caught too late or didn't wear their braces for the prescribed time. Some of the other things that people need to understand are: The brace will NOT fix scoliosis, It is only to try and slow the progression of the curve and hopefully avoid surgery. This is important because there are definite risks with surgery. Another thing is that the more severe the curve, the more difficult it is get the spine straight. More so with the curves that have gotten 80-1oo degrees or even more. Oh, BTW, they are now putting sensors in the braces that will monitor how well you are doing in terms of wearing your brace for the time prescribed. I'm guessing that this is also a way of determining whether it is a matter of not wearing the brace, or the brace being ineffective. There is overwhelming evidence that the rigid braces work. Be glad you don't have to wear the old Milwaukee brace which went all the way up to the head with a neck ring. :-O
I appreciate the input, but this video for one is very old and now I could probably make it 1000x better than I did then. However, I still stand by everything I said and I made it so that young people in same position as I was know that someone can relate to them and to do whatever they feel is best for them. I was sharing my story and was going to tell the whole truth and sugarcoat nothing. I also always talk fast so if you cannot keep up sorry :)
i hope you don’t mind me asking but what was the cost around?
not sure, i was so young and my parents didn’t want me worrying about that
@@EmilyNetzel Oh Ok thanks for responding!
i’m three weeks in recovery i feel way better it’s just really bad pinching sharp pain did you ever experience that and how long omg i feel like recovery is going by so slow ☹️
I’m glad to hear that the surgery was successful and yes that is normal and sadly one of the most uncomfortable pains, keep powering through!!! i know that it can be exhausting, but it will get better!
Did you do physical therapy? Cause I found out I needed to start treatment 2 weeks ago and I just got fitted for my brace and and I’m getting a PT evaluation tommorrow
Ella Friedman No I never did, but a lot of people do!
What was your degree level ??!?! I am going into surgery soon and I’m SOOO SCARED !!! I’m at 50sum top and bottom
I was around 50 when I had the surgery!!
do u have anyway i can message u like instagram or something, i had my surgery!! and i have some questions about showering lol, ik i need help im just trying to figure something out :) if not its ok, i understand
Hannah Bewley omg yes of course!! dm me on instagram! @emily.edwards18
The question is can you carry heavy weight and go to gym as normal or there's limits.. ?
not for the first few months but once you’re fully recovered you can!
Thank you so much
I think now I am ready. I am afraid, but if you said is not that bad I am confident now.
Thank you.
Of course!!! Lmk if there is anything I can do the help!
Getting my surgery inna few months, I’m literally crying, I have some questions how was the pain the beginning and how long was it till u could acc go to school
I'm getting a surgery in November!!
everything’s gonna be okay!! i was out for school for about two months, but it is different for everyone.
I have scoliosis ( 48 degrees lower curve and then 50 on the higher one I think) I hate how I have a waist on one side and the other one not lol
Did the surgery fix that?
hi i had my surgery 10 days ago and yes my curve is gone
I just had my spinal fusion surgery last Monday and i can’t tell you how similar are stories are! I just wanted to ask about how you dealt with the soreness and back pain after the operation. I haven’t been sleeping good and i’m always waking up in discomfort so i would love some advise or tips as to what helped you get comfortable.
okay so i experienced the same discomfort and honestly you just have to do your best to make it work, it gets better i promise!! i would have multiple pillows diagonally stacked behind me to wear it was slanted like a hospital bed and that was the best position for me
I have scoliosis and am really just scared of the scar. Has your scar faded or you can still see it very well? Also how big is the scar
my scar is actually really good!! you definitely see it but i like it that way, its very thin so i wouldn’t worry too much about that. the most important thing is to put sunscreen when you are in the sun so it does not burn
I had my surgery last week and my back feels really stiff and i can barely bend do these feeling go away after a few months or is it permanent
You’re gonna be really stiff for a while, but you’ll gain movement and feeling as you recover!
My son was diagnosed with scoliosis in January. He has a s curve. his curve was 26 degrees. He had to wear a night brace. He we back to the dr in June now is 46 degree the dr wanted to do surgery but wanted to try day brace going back in September and scared it’s going to be worse. As a mom it’s hard to see your babies go through something like this.
I am so sorry to hear this. I cannot relate from the mom perspective, but my mom can and just watching me stay strong helped her so much. Praying for your son!
How old is ur son and did the day brace benefit him? Btw I have scoliosis too and my mom was more scared than me , moms are always scared for their children and want the best for them
I got scoliosis ima start wearing my brace again
i have so many questions if someone’s interested in answering
Mikayla Pash yes?
Im watching this video while I have been having a terrible backpain the whole day today. Thinking about getting surgery someday. But a doctor I was talking to told me that the surgery won’t make my body to be flexible anymore and will be very rigid, it scares me a lot. How do you feel now? Is the surgery really change your whole life? I know you must feel a lot better with surgery but does it really make your body rigid after at least 6 months recovery?
Mila Maulida It doesn’t make your body rigid your body just adjusts to how it can move!! I can’t bend the fused part of my spine but i promise you don’t think about it, just gives u great posture. I feel great now, it definitely changed me but I don’t think about it everyday.
Emily Edwards thank you, its nice hearing from you Emily! So happy that youre doing very well after getting the surgery
anyone who did the surgery years ago , do you feel lower back pain? It's been 9 years since i did the surgery
i do when i push myself too hard that day, but when i lay down and rest it goes away!
@@EmilyNetzel when I lay down sometimes it gets worse, I'm trying to find some lower back exercises that are safe maybe that helps
I get surgery next month 😥 I'm so nervous...
Were you scared?
I was very nervous, but that is completely normal!! everything will be okay I promise
I got the surgery on December 26, 2019... four days ago. It is VERY sore and it feels like you are laying on a brick when you lay on your back. But it is getting better each day and each day is something to look forward to!
were like the same person had surgery and brace
Watching this vid in a back brace that I've been wearing for almost 3 years for 22 hours a day :/ have a consultation in 3 weeks to see if I need an op - wish me luck 🥲
Praying for you Leah!! Let me know if there’s anything I could do to help. I know it can be so difficult, but it’s just making you stronger! 🤍
I'm going to surgery today and I've had scoliosis for 2 years and wore a brace
thinking of you!!!
I know this was a year ago and I’m so scared because I have to get surgery in like 1 month and I’m so scared
i’m here to help anyway that i can! you got this!
I had my surgery almost a month ago. I was very scared but for me it wasn't bad at all. I had a very good doctor. I hope yours went/ goes well.
I have brace and it hurts so bad and I don’t ware it and now I am scared that I will have to have surgery
always here to help!