Crohn's Disease | Amanda's Story
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- เผยแพร่เมื่อ 8 ก.ย. 2024
- Amanda came to Johns Hopkins to manage her severe Crohn's disease where she underwent ileostomy surgery and started a new treatment plan. With the help of Dr. Mark Lazarev and her multidisciplinary inflammatory bowel disease team, Amanda was able to regain control of her life and have a healthy baby. #CrohnsDisease #JohnsHopkins Learn more at www.hopkinsmed....
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Here's another Amanda with Crohn's disease too! I got the result since 2012 that I have crohn's. It has always been a rollercoaster for me, I was tired and very sick. In 2018, I almost didn't survive a flare-up because I had a bowel perforation. I have been using Stelara (Ustekinumab) since December 2018 and I have been feeling so healthy ever since! My life is 80% as it was before Crohn's. You must always remain positive because that makes you a strong person and helps you get through physically and mentally. ❤️❤️
Btw im turning 25 next tuesday
Hi Amanda I am Anand .. I have been diagnosed in 2012 as Chrohn's desease and did one operation in Germany .. later didn't had major medication suggested by doctor .. I also ignored saying dr's are crazy in abroad as I come from india .. but again pains started back in 2016 and now reconfirmed that it's Chrohn's desease.
I am not sure about the treatment they talk about tablets like steroids or biological treatment
wow the part where u said you nearly didnt survive i feel you, i had a near death expereince back in 2015 with a hate rate of 43 . Im now 28 and still having issues and the hospital is now actually taking me serious and testing me for chrons.
I was cured of this disease with herbs
I have Crohn’s too, I’m young and I’ve got to admit its really hard. It’s completely changed my life, but it’s reassuring to see people doing so well with their ibd and thats whats kept me going.
Hey I’m so sorry, hate to see you so young with this disease but I’m sending you love and hugs and positive vibes bebe. That’s just Cadjin/Cajun for baby. I’m from Louisiana and am a Louisiana Cadjin. And speak Louisiana french. I say ma Cher when I getting people online because we say that down here, it’s like my love or my darlin or dear.
I have UC (ulcerative colitis) and it may have advanced, because I had major bleeding past few months and so on, I’ll find out soon, have a colonoscopy my dr scheduled, but just found out about 30 minutes ago, my sweet beautiful 19 year old niece is in hospital and was just diagnosed.
I am hoping she can find a support group. Maybe since you are close to her age you can recommend one. Or anything you might think of. I’m helping her research. She is very Christian girl, her papa daddy is a minister. So she is kind of sheltered in a good way. She is so sweet and I hate she has this. But we are a very positive family and I know a lot about chronic pain because I have had it since I was a bebe because of my health issues, and I just found out not long ago I had cancer so I had to battle and still battling the complications I am experiencing. We all support each other and I support any one chronically sick online.
She was bleeding and just went in for surgery and they said it’s Crohn’s so holler at me if you have any good online groups or any food advice for a younger patient. I just bought her the cutest tee shirt that said “in this family no one fights alone! “ She hasn’t met me yet, but I’m very close to her grand mother and mother who are my cousins and I love her already. I also bought her a Crohn’s cookbook that got good reviews from Crohn’s families. I made it through my cancer surgery I just was diagnosed with and still having issues so I hope I don’t have something bad going on with my gut, because I don’t want anymore C words, I don’t want cancer or Crohn’s or anything else. I’m looking for a hypochondriac to give this all too. Jk. Lol I crack jokes and stay positive as I can. And I hate my little sweet cousin and you have this disease. Y’all are too young, I was young too when my autoimmune diseases struck me, really young. Still a little kid. It got worse in y teens. I saw the funniest shirt that said I hate my guts and that’s kinda the way I feel. Because of having ulcerative colitis. Ever since I was little I have had horrible stomach cramps, then I got on pain medication and now I have horrible constipation which I hate and isn’t good for me, & I think is worse than when I had diarrhea and cramps! I was hoping I could get back on ketamine numbing shots and maybe try IV ketamine but I don’t know because of the type of cancer I have I will have to check with my dr. Because I lost my thyroid and my laryngeal nerve and vocal cord and sometimes ketamine can mess with the thyroid. And my old dr I loved that gave me the ketamine numbing shots for my bad injuries said you can’t use it on your bladder, I have a stupid balder disease that’s started all my chronic pain journey then later I had 3 trucks hit me and now I’ve had cancer, but I always say I’m a Louisiana Cajun and we don’t fear cocodrie’s (gators) giant mosquitos, floods, or hurricanes, cause we are too stubborn to die. Lol. I’ll be happy to adopt you and be a big sister to you if you need one. I promised God I would be kind to people and try to help anyone that suffers like I do. And I enjoy helping people if I can. I see your post is old, I hope you are ok, ❤️🫶✌🏽
I'm so sorry to hear that, I pray she'll be strong and healthy. ❤️
This is AWESOME news so glad to hear this was a big help to you. I recently started on entyvio infusions & this gives me hope I've been sick for years & need some relief. I would also love to have another baby one day but if I never have another baby I do have a 6 year old girl & I call her my miracle child 💕
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover
I have Crohn’s & I travel from Long Island to Manhattan for Mount Sinai Hospital. I see a lot of similarities here, I’m glad she was able to achieve remission
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover
How long have u had it
My 16 yr old was recently diagnosed & take the Influctra IV. So glad we caught it. Hope I can find some support groups in my area for us.
May God send blessing upon blessing over you and your family.
This woman survived because of science. If she was born in few hundreds years ago she would be dead long ago.
@@laurynas6729 believe what you want to believe. I pray one day your eyes are opened to the truth. God bless you
@@denisehayes2298 well, once you or your dear one will get sick you will turn to doctors not god.
@@denisehayes2298 How about you believe what you want to believe and not spread your bollock everywhere just to get likes.
@@quinnard9750 I'll believe what I want to believe and say what I want to say anywhere I want. God bless you
I've had it 27 years it's more annoying then anything. I was 82lba when I was diagnosed in 96. Now I'm 175
Glad you are good, I have crohns disease to, thank you for sharing your story x
Me too. From morooco
My daughter 19 months old is recently diagnosed with crohn disease. My heart is broken
@@shahzad035
With medication, her condition will improve, do not worry
@@shahzad035 لا تقلقي فوضي أمرها لله .ستتحسن إنشاء الله مع المتابعة الطبية
How old r u
Oh god how to get rid of this hell.😥😥
At hospital looking this. And about to go on bio treatment. Soo hooefully it works, cos pretnison. Done only bad for me soo far 😟
Good luck... I have a group on Facebook you should join it’s called Crohn’s & Colitis Warriors
I have Crohn’s I’m 23! I haven’t been feel good at all...
Have some courage my dear.This is en evil.😥😥
@@mangalsingh2050 bhaiya ye kaise thik hoga,abhi mujhe utna takleef nhi hai bus weight chala gya hai..Or weakness lagta hai..Plz koi suggestion dijiye.
@@prakash3177 hmko bhi hai
@@SahilAnsari-sy3tx kaha se treatment le rhey ho aap?
@@prakash3177 bhai mera biopsy me confirm nai huwa hai abhi tak biopsy results (highly suggested of IBD) hmko terminal illeum me ulcers hai lekin biopsy se confirm nai huwa isliye doctor ne fecal calprotion test karwaye to o normal tha isliye doctor bolte hai IBD ka chance kam hai
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