Spinal Cord Tumor (Schwannoma): Aaron’s Story
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- เผยแพร่เมื่อ 16 มิ.ย. 2015
- Aaron, an avid runner from Delaware, was diagnosed at 29 with a spinal cord tumor pressing on his nerves. Surgery was necessary, but the risks were high, including paralysis and loss of the ability to run. Spine neurosurgeon Ali Bydon met with Aaron, and together, they chose to wait. Watch to find out why.
For appointments, Maryland residents should call 410-955-4424, and out-of-state residents should contact 1-855-884-6754. Learn more at www.hopkinsmedicine.org/neuro/spine. - วิทยาศาสตร์และเทคโนโลยี
I had a spinal cord tumor that my nerve endings had wrapped. I was in terrible pain; had surgery but nerve endings were severed to remove as much of tumor as possible. The years since haven’t been easy, I can walk short distances; no feeling below my waist backside. No control over bladder . I am thankful that I have done as well as I have. Just wish the nerve endings hadn’t of wrapped the tumor. But I’m a Christian and I know that God has allowed me to walk. The doctor told me after learning to walk again that anyone else would be in a wheelchair. Praise my Jesus that I am still here years later. To you reading this never take walking for granted; our lives can change in a minute
What were your symptoms?
I'm 52yrs old and diagnosed spine tumor schwanoma. I feel terrible pain no sleep always crying. I sleep only sit for a month unti I had surgery . Last Feb 11, 2021. Thanks to dra. Miriam dy of Phil general hospital for successful Operation now I feel much better. Not like before but thanks god I walk again and no more cry.
Amen!
God bless you
What we’re you feeling in your body I’m in severe pain constant
Mine was near L4-L5 and causing me lots of pain for years. I had surgery 3 months ago and there was no complications! I was so scared when they found the tumor and had fears about surgery. To anyone going through this I hope all goes well for you too!
Hi I m having in D5 and D6 ,iam afraid of surgery can you please advice how it going to be?
I also had a spinal cord tumor removed on 11/6/18 I can report I am walking and driving !! Thank you Dr. Heiss at NIH !
Can tell me Dr adress in which country hospital full Dr detakls
Hi, may i know the exact location of your tumor? Is it intradural?
Lee Castillo hi Lee, I was recently told that what I thought was a herniated disc for months, may have actually been a nerve sheath tumor in my L5-S1. The radiologist thinks it is a Schwannoma. I have had a long wait to get any answers but finally have an appointment with another neurosurgeon in two weeks. It’s good to hear a success story. Where was yours in your spine?
Way to go surviver! Keep it up warrior 👊💪
NIH Clinical Center’s Patient Recruitment and Public Liaison Office. This office is trained to assess eligibility for Surgical Neurology Branch and ALL other NIH clinical trials (1-800-411-1222 or prpl@mail.cc.nih.gov). In addition, the eligibility requirements and inclusion/exclusion criteria for all of our clinical trials are available on www.clinicaltrials.gov. 240-760-6010
I'm 24, I'm in my last year of Law school and this January 2018 I had a spinal tumor removed from my L3 on my lumbar. I've always been an athlete, and prior to the surgery I hadn't been able to do much physical activity for around a year because of the pain the tumor caused me. It took about a full year for a doctor to diagnose the tumor. I walked less than 48hr after the surgery, and three months after the surgery I am in very good physical shape with the ability to run, jump, play soccer and do anything I please. I train my body regularly and work hard on getting myself to where I once was. I am and will forever be thankful to the people that study such a beautiful profession, keep a positive mindset.. always and no matter what.
Hi was any laminectomy done or fusion?
Where did you go ?
So with a tumor did your ear hurt or a pusling sensation? Proud your alive keep it up!
Where did you have it done?
Any updates?
Have a good life ahead my man, your story inspires us🙏🏽💪🏼
Recently had a benign schwannoma removed between T11 and T12. Six weeks after it was fully removed, I’m back to work. Anyone reading this with similar issues, be strong 👍
So, I have had surgery last week. Removing a schwannoma from my spinal cord around l3. I found out in February this year. My life just stopped. Couldnt believe it and as soon as i found out what kind of surgery was needed i was so scared. Last week i was very scared going into surgery. I knew there was no choice by still had to drag myself in there. I was scared for complications and also the surgery itself. Now 1 week later, I feel better. It was a very tough surgery, and first 3 days were very hard. Walked on day 2, but my legs did not feel the same. Power and coordination were missing. Now after the 1st week I can say strength is coming back and coordination also. Still very tired from surgery. This will take those 4 to 6 weeks recovery. From anyone going trough this, keep up hope. It sure helps and go into surgrry being fit. I'll post an update in a few weeks.
Meaning of life is to enjoy it.
Brilliant guys so happy for you.
I actually had a spinal cord tumor (T3 height).I got operated by a really good doctor and i walked in the 3rd day).Now i can run,sprint,play basketball and shiet :') It been 2 years and 3 months and my right side from my right ribs to my right foot toes are really numb but im alive :D
Iam also havinga spinal tumor can u tell me in which country hospital and which doctor
there is also a really good ortho surgeon in the Philippines, Doctor Morales.
Zafar Ahmed there is also a really awesome ortho surgeon in the Philippines, Cebu City, Chong Hua Hospital, his name is Doctor Morales and an awesome Nuerologist, Doctor Español
Lucky...
In 1991 at 30 years old...they found a tumor on the base of my spine. They rushed, did surgery and I've been disabled since. I had to learn to walk again...among other things. I suffer with spinal headaches daily. It's been hell. My surgery was over 4 hours but they severed major nerves. I wish I had found a better surgeon. I can't run anymore...I walk slow. But...I'm alive!! :)
+KL Carroll can you get in touch with me? I suffer from the same problem and I would like some support from people who understand this. Thanks
KL Carroll you are in my thoughts
Im so sorry, I'll keep you in my prayers. 🙏💕
I'm also 30 years old, professional skateboarder just found out I might have a tumor in spine and freaking out :( I will keep you all updated on what goes on :(
Good thing is you are alive
Keep up the great work ..
I'm having surgery for a tumor and herniated disk on August 31st 2022. Your video really eased my nerves Aaron! Thankyou for sharing and posting your story!
How are you doing?
I hope it went well
I had a spinal tumor the size of a peach wrapped around my nerves at the L4 and L5 and suffered with it for 3 years before I was diagnosed. My symptoms were an extreme fire like pain down both legs and couldn't walk more than a few feet without falling over. After my surgery I was in the hospital for a 4 days recovering and a week later I was walking around the house. The only Negative effects of surgery was my lower back muscles tightened up and numbness in my inner leg thigh. Other than that i consider myself lucky.
When di you have surgery? I mean the year the surgery of schwannoma occurred... now mine Is 1cm and 3 mm... my legs are aching both, the left One Is worse during the night...i cant jeep my legs closed during the night...the doctor says i can have surgery but there are risks fir my left leg ... knees are aching during the day...
@Ilaria Brovini sorry for the late reply, I'm sorry you're going through this. I know firsthand what you're going through, it got so bad I didn't care about the risks as long as I could get some relief. But its a pretty common surgery and they always have to tell you that there's risks. But you could try putting a pillow between your legs when your in bed, and a warm bath helped me as well when it got too bad. You could also ask your doctor to try cortisone injections.
I wish you luck
Hugs and hugs, my niece just diagnosed. She's about 50
I had a benign tumor wrapped around my spine. I got paralyzed from surgery.
Oh God bless you. I suffered so bad for 5 years with fire burning gnawing pain. Took 8 yrs to get better
my best friend had a tumor inside the spinal specifically in T11. his having a hard to walk to due to the effect of the tumor. he still under doctors observation. hope next year will be his operation. pray for my friend pls.
Hope he is cancer free
thank god yes its not
+Sedo Rikku congrats
Mico Cedric Galino how is your friend now?
Mico Cedric Galino 🙏
3 years ago I was diagnosed by a cystic schwannoma arising from spinal nerve sheath and then I was only 18 years old . Surgery was done after 4 months as the tumor was a little big so immediate surgery was required. After the surgery I lost my sensation in the thigh of my left leg and it's been 3 years after the surgery it don't heal and got a pain in the spinal . But luckily the tumor was arising from the L2-L3 nerves so I can walk freely and can run also .
Bless you buddy. Legend
I have had 4 spine tumors, the largest was 8 pounds from being misdiagnosed for seven years. It took me two years to learn to walk again. Now in my 50s and seven spine surgeries, I have to use a cane. I still have a lot of pain and I think it’s because I have schwannomatosis. But trying to get my insurance to pay for the genetic testing is impossible. I’m glad yours turned out so well.
You are indeed a strong person, having endured that many spinal tumours. I had one, from C6-T2 & am so grateful to my medical team that I can walk & work.
También he sido operada hace 20 días de lo mismo,gracias a mi neurocirujano que hizo que volviera a tener alegría,no podía caminar,tengo 56 años y parecía de 80 años. Gracias al Dr Miguel Calderón tengo una nueva vida, sin dolor y el poder caminar...!
I have small one L 2. I have enough spine issues. Cyst in S 2. Used lumbar, fused cervical. Pinch nerves. Lord healed me and anyone just found out they have it
I just hat the 1st operation and have a 2nd in a month or so. It is a non cancerous schwanoma, the largest was at the base of my skull pressing against my brain stem. A week and a half ago they removed that section. Lost most of my voice at this point. Sounds like i am lucky at this point. Im held up recovering. Worried about the next subsection in the neck and more potential loss of nerves.
My youngest brother has this going on with him right now poor kids only 16 wants to go out and be active used to run alot now just stays in sleeps alot he's really weak and depressed the way it's looking he will be going into surgery himself before much longer I just want my younger brother to be happy and make his faith strong again I'm not no angel but my brother ain't hardly ever done wrong in his life in fact I don't think he ever has probably the only one of three brothers never got grounded he doesn't deserve this prayers for a quick surgery and recovery if there's anything in this world I truly couldn't live without it's my younger brothers
How’s your brother, I hope everything is okay , best wishes🙏
I have a spinal tumor. The Dr is watching it and has told me that when I lose bladder or bowel control then it will be a problem. Until then he doesn't want to do anything with it. 5 years now and we are still watching.
Curious if you’d share where it’s? I was recently diagnosed as having a cystic schwannoma at the S1 vertebrae. We’re going through the process now.
I had melanoma tumor on spine surgery 1 month ago. Dr. Konn in Memphis Tn. I have 10 screws and 2 rods in my spine and was able to walk fine day after surgery. This man in my opinion worked a miracle on me. Will forever be grateful for this doctor. He is at UT Medical in Memphis Tn.
Hi my husband was told he had a tumor on his spine . We’re seeing the Doctor on Thursday to get more information. We also live in Memphis Tn and I would like more information about the Doctor who performed your surgery.
I was told recently by a great Neurosurgeon here in Miami that New York is one of the best states to undergo for Spine Surgery!
Did they recommend you a doctor in New York? I live in New York and trying to find a doctor a neurosurgeon for post surgery care but I have been to 6 doctors n noone can understand my case
and Philippines, Cebu City Chong Hua Hospital as well. Ortho Surgeon, Doctor Morales and Neurologist, Doctor Español
megha malhotra try in Philippines, Cebu City, Chong Hua Hospital. Doctor Morales an Ortho Surgeon and Doctor Español a Neurologist
aaron if i may ask after how many after surgery you were back on your feet and runing
I have been experiencing this severe backpain from time to time for a decade before I was diagnosed last year with schwannoma at L1. I was advised to take surgery but due to financial constraint and we can not afford the surgery. A month ago the pain suddenly resourface and it is much worse that before. Now the tumor doubled its size in just span of a year. Now I am considering to undergo surgery if we can come up with the amount needed. Here in our country neurosurgeries are not covered by health card so it is really difficult to be tested and undergo surgery. There might be more individuals who have this condition but because of economical situation they can not afford it.
I know God will make a way for my surgery. And I am looking forward to that day.
Keep safe everyone!!!
Praying your surgery goes well and your healing. 🙏🏾 In Jesus name
I had the surgery July 8th 2019 it was very successful I suggest if you know you got a tumor or the day u find out get the surgery don't sit and wait for it to grow but good luck Aaron and god bless
I just had this surgery 2 weeks ago. L1 l2 area. I was up and walking after 2 days. Surgery was done in Townsville Australia
Wish you a speedy recovery mate. Fellow Aussie here. Cheers.
@UCnRkztPBiZHPqp4VTUL4zaA thanks
I am doing good. I started playing basketball again and hurt my knee.
Old age does not agree with me.
@@mattjames7773 Exactly the same area in the spine as me. I'm going in to surgery in two days.
Sorry about the knee, but great to hear it worked out well for you.
My good friend is dying from a spinal tumour. He had surgery which rendered him a paraplegic but the cancer is still spreading & he is in constant pain. Very sad indeed.
Hi any update on your friends? I highly recommend him to try a plant based diet
@@ELBrown213 Unfortunately, he passed away but thank you anyway.
@@anne-mariezack so sorry to hear about your friend stay strong for him🙌🏽
my brother did this surgery for 33 days today, he is well, walks and has legs in the legs, but he feels pain on the right side, at the height L2 where the Tumor was, and the doctor said that he did not take a root that was in the marrow, not to give sequels!
It’s scary because they just found a tumor in my spine and also near my pelvic and a cyst on my sacrum being 17 it’s scary but the doctors say they all looks benied
Get help you need don't wait. God bless. Be positive.
I was 19 when I found out I was in excruciating pain for about year and half and I had just started my medical college but then everything stopped for me I couldn't believe how was this happening to me I mean I had plans and I remember thinking what now Am I going to be on a wheelchair my whole life or what is it.The fear I can remember it i couldn't even cry because of the people around me. I was literally dying inside thinking i may not be able to talk after today.People tell me you became stronger but all I think to myself is I wouldn't wish it on anyone.
I just found out I might have a tumor, a cyst or possible cancer in my spine, I might be contacting you soon after I find out what is going on, glad you made a full recovery I hope I can make the same, my meeting is this Wednesday so wish me luck
Chadd Sinclair prayers for you bro
Chadd Sinclair how did it go?
NIH Clinical Center’s Patient Recruitment and Public Liaison Office. This office is trained to assess eligibility for Surgical Neurology Branch and ALL other NIH clinical trials (1-800-411-1222 or prpl@mail.cc.nih.gov). In addition, the eligibility requirements and inclusion/exclusion criteria for all of our clinical trials are available on www.clinicaltrials.gov. 240-760-6010
I hope you are doing fine🙏
Hey man any update?
I am diagnosed with spinal tumor in T4-T5 since December 7, 2021. We are not that rich and can't afford the surgery. I have anxiety attacks every night because of worsening symptoms. Tired of waiting. It's so hard to be poor.
Send help
Sorry to hear. What's your symptoms. I'm going for a PSA test tomorrow been suffering with back pain for two years lower and upper now in wetting the bed. At night I wake to go toilet at least every hour and a half. I'm 46
How can I deal with this pain...2011 I started to feel the mayor pain in my lower back and legs..9yrs later I found out I had a ganglioma tumor... Lack of medical in Puerto Rico and I was incarcerated in the United States for 5 years and had to do all my time with some Major Pain.. the same day I got out I went straight to medical emergency and found out I had a tumor in my spine.
What is: T2 vertebral body likely represents hemangioma?
1. 4cm ependymoma behind L1. I’m seeing Dr Bydon on November 5th after he reviewed my submitted MRIs.
Oh my God I found out I have a bening spine tumor 2 cm long at the exit of L1 and I am not planning to touch nothing! Knowing medicine make you think twice when it comes to touch your spine! I truly wish you the best of luck and I'll be praying x you! Blessings
@@liurodriguez5964 I had surgery all the tumor was removed and I feel amazing I am so lucky I can walk and run and drive I can live !!! Non Malignant !!
Hi lee can we get in touch please chz im seeing Dr Bydon as well.
I currently have a tumor at the root of my spinal column as well as a fluid build up and I’m suppose to have surgery this month . I have total weakness in my feet I can’t run or walk normally right now I lost my balance . my surgeon said he is going to put a catheter into the artery in my thigh to block off my blood vessels until the procedure . My main concern is my nerves repairing themselves. They have been compressed from the tumor on my spine . lifting weights and working out is a hobby of mine so if I don’t regain strength in my heels and feet I will be so heartbroken . I have two children to tend to I just wanna be able to return back to work .
Wanted to comment to possibly help someone out. My pain started off mid back more on the left side. It was all of a sudden that it started hurting me. Excruciating pain while I was laying on couch. I had not done anything to hurt my back like lifting anything or falling or laying in a weird position. Pain hit and I could not fall asleep. 3 hours, a back massage, and using the heat pad is what it took for me just to go to sleep. Pain went on and on and on. Symptoms basically lined up with kidney stones believe it or not. Went and got urinalysis. Everything came back great. Then x ray. Everything looked great. Then CT scan. They said they found something in t12 section of spine that needed further imaging. I assumed herniated discs and I researched all about it. Sounded just like what I was having. Being a truck driver, this was bad news for my career because I didn’t want disc problems my whole life on and off. Went and got the MRI and they called me saying that I actually have a spinal growth (I’m sure they said this so it doesn’t sound scary). So now I wait. The pain is terrible. Only thing that helps me is BC powder and I know those aren’t good for us when used long term. There’s times it hurts so bad (mainly after hard work or a lot of physical activity) that I can’t even hardly breath or walk or talk. I can feel the pain wrap around my left side down to below my navel. When pain is real bad all I can do is make noises like moaning and groaning. I guess when I take deep breaths my lungs swell and cause pressure on the nerves or something. Same with stomach; if I eat too much or too fast, same pain I guess from stomach being a little more swollen. Legs and arms are perfectly fine, no problems or pain. Praying for everyone going through this. It’s no fun especially when you have to work through it all. Boss man doesn’t understand the pain. I wake up in the middle of the night and stay awake sometimes for hours because of the pain
Try taking olive oil wth kaffir lime juice.. grated tumeric..
I hv 2 bulges in my neck area, a tumor at T12 L1.. n 2 bulges at L4 L5 L6.... been in pain meds for years.. but the pain still there.. even when i breath hurts.. so i stop all the med n start taking olive oil n other herbal remedies...
@@andrianacheah9224 thanks for your advice! But since this comment of mine two years ago, the tumor has resolved itself and the doctors were actually surprised when they went back to check on how it was doing and they found that it was gone, all that was left on the image was scar tissue where you could tell it had been previously. I’m glad I don’t have to deal with that anymore but feel terrible for those like you that are still dealing with it. Peace, positivity, and prosperity to you my friend ❤️ ☮️ 🙏
I just found out i have a tumor in my spine but so far classify it only as a hermangioma, but have lots of pain in my right leg, interesting to see how this all works out.
I do too, my left side goes numb. Have you received treatment?
I have this going on right now and my tumor is growing and pushing my vertebrae out I have been dealing with this since 2017 but it's time to get it removed and have my SI joint fused and hopefully it will help with my chronic pain
Delightful
Haemangia midthorcic vertebral body does it the same as tumor. I saw on my mri scan they saw this
I have hemangioma on T9. To T12 for 5 years now i doctor just mention it now and told me not to worry but i feel like its a bubble in my back plus pain i have been dealing for so so long
Just had the same surgery as you, still hospital wondering how much strength I will have after this? I had a stroke about
3 years ago. I have a you channel mrhangerone
All about chainsaws I worry lifting and starting a chainsaw how is your upper strength? Cheers Kevin down under Australia 😢😢
I had this same tumor on my spine in my T-5 T6 region and after it doing nothing it started growing out the blue. I had surgery In 2010 and suffered nerve damage since then. I drop a lot of things and my hands shake. My spine also curved after the tumor removal and it’s fusing in that area.
The fact your alive. Your God's blessings are enormous.
I had a Schwannoma removed from my chest 15 years ago. It was the size of a softball. It was pressings against my left lung, almost completely collapsed it. Surgeon said it was attached to the the Vegas nerve and it may have damaged it. To this day I have a chronic cough that is very rough and I have different nerve issues all over my body at diff ent times
Yo también tuve un shwannoma, en c6 y c7, me operaron hace 4 años. A los 6 meses , volví a caminar. Después de 2 años sin moverme...
Gloria a Dios🎉
I have tumor also on c6 I can stand walk with someone cause my leg feet is weak
I am having same issue I am also 30 years old .I found 1 thing that we all got to know in same age what's the reason ?
I have similar symptoms, my right leg is numb, weak, i cant move my ankle or control my entire leg. The pain worsens at night. My lower back hurts so much. My xray showed a curvature in my spine. I was asked to do a ct scan but i cannot afford it. Every day i live with the fear that i might become paralysed one of these days.
Hi we have the same symptoms. Last may i underwent MRI. The result was i have also tumors on my spine(multiple)😳
i had spinal tumor t7 t8 , its removed with surgury in auckland nz. it was 8 hours surgery. now its recovery time . hard time.
28 years
Please keep us posted. Just found out I have two near l4 and l5.
How are you doing? I have a nerve sheath tumor t7 that's growing. Was it difficult for the surgeon to get to? I hope you are doing well.
I have a brother who has been diagnosed with a tumor inside his spine. He is in abroad not in the United States. I have reached out to many for a second opinion or some guidance, unfortunately I had no luck as no-one is ready to give any guidance or suggestions just because he cannot be physical present for opinion. Is it possible to get an opinion through email or through phone ? Any help will be appreciated.
sumit pradhan Philippines, Cebu City, Chong Hua Hospital, Doctor Morales an Ortho Surgeon and Doctor Español a Neurologist
I was diagnosed having nerve sheath tumor between T1 - T2. Did get one opinion from Neurosurgeon last week, going for another opinion this week (July 25,2019). This was an accidental finding. Went in for chest x-ray due to persistent coughing ( coughing is long gone). I have NO side effects, no pain of any sort. What shall I do, go for surgery, or monitor periodically (MRI) and see what happens. Thank you.
Paresh Patel can you see spinal tumors on a chest x Ray? I did have one also for coughing and chest pain. Everything looked normal. Now I have upper back pain and there is a lump at the top of my spine. Not sure if it is a bone sticking out or not because it is rock solid. I’m picking it okay since I had a chest x Ray but I’m still going to see my doctor about it next week.
What symptoms did u have. Ear pain under the hairline? Was it a lump? Was it a pulsing sensation?
Praise the Lord hallelujah 🙌 🙏 glory to God
what about when you have no insurance and cant even afford a cat scan or mri....
I have the tumor, but I’m not leaving university for the surgery.
Please tell me what is thoracic tumor embolisation??
Hi Husham, thanks for reaching out. You can learn more about thoracic surgery here: www.hopkinsmedicine.org/surgery/div/Thoracic.html and neurosurgery here: www.hopkinsmedicine.org/neurology_neurosurgery/index.html.
How many days in the hospital after surgery? What did the PT consist of? How many weeks/months to recover?
Good afternoon joe. I had a lower back spine tumour removed, was in hospital 2 weeks after the surgery. And up walking in that time. All thanks to mr Salvatore Russo
At saint Mary’s hospital Paddington. London.
Mine was in my lumbar spine. My hospital stay was only three days (too short). The entire recovery process is up to a year, but there are stages of progress. No bending, lifting, or twisting for at least 6 months. Pt starting out at 2x a week.
Hello good day I'm interested to much for this I found this in my hubby spinal cord I was so allarming of this
Hi, thank you for reaching out to us. If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
Do you treat cavernous malformations of the spine?
Hi Jessica, thank you for reaching out to us. If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
Hello sir
My father is hearing some kind of noise inside his right ear,so we took a scan,the result
( Right ear: moderate to profound sloping sensorineural hearing loss form 500Hz to 8kHz (mixed component at 1kHz) with normal hearing at 250Hz
Left ear : hearing sensitivity within normal limits from 250Hz to 4kHz with mild hearing loss at 8kHz ) but he has no Diabetes.
And again I took M R I scan also
The result
(Considering the clinical history most likely diagnosis is an acoustic schwannoma of right side)
So what should I Do Doctor?
I'm waiting your reply?
This isn’t the place to be asking questions like this, you need to seek out a medical professional. Best of luck to your father.
I am in an identical position to him- young, active, 2 little boys, exact same tumor. Haven't yet had surgery; do you know if he would be willing to field a couple questions (via email if easiest) from me? Thank you.
Hi Lartrip2, if you have questions and would like to reach out to Johns Hopkins for a second opinion, you can call our specially trained medical concierge at 888-872-1408.
Please look into treatment with the Cyberknife it's less invasive and could be an option for you if your tumor is less than 3cm. Best of luck to you.
I from the Indonesian and i have schwannoma tumor in L1-S3 help me
i hope my surgery will be successful this summer for my schwannoma. very scary..
thank you very much!
*****
*update* surgery went well :)
hi dear ,how was ur surgery and how's life now.I too have same problem plz suggest something
i recently had a surgery , it was shwanomma .
Now i can walk alhumdolillah .But my left feet toe is still paining since the moment after operation till now . i take pain killers for this .Doctor says that the pain will go by time .Lets see
Hi I'm 30 years old. I'm suffering for a week with tingling pins and needles in face legs and arms with numbness . Had CT scan on head nothing was visible. Should I be concerned still is going on badly . Thankyou
Hi, for specific questions, please reach out to your doctor. If you would like to request an appointment at one of our hospitals, please call 888-872-1408.
My mother has a spinal cord tumor too about 0.4x0.5x0.4 cm. I hope things end well.
I pray all goes well for her and she makes a rapid recovery
Bradley Hollar Thanks man
Ain't nothing but a thing man my little brothers going through the same stuff but you just gotta hold faith that everything will come out on the brighter side the energy you put into whatever you want to manifest is the energy you usually get back out of any situation so keep your head high and believe she's going to be in good hands I believe my brother will as well and the energy I give you give it to her so she can put faith in knowing she will be ok and will come out strong and be in your life for so much longer than you may fear that she won't be idk if Christianity is your faith but most people imagine a god that's good so God bless buddy
Bradley Hollar I am a Muslim, but I respect every single religion in this world. Unlike some who want to be superior than the other, I choose to be kind and friends with everybody. Thank you, I will do what you said. I will hold on to my faith that my mom and your brother too will heal faster.
How is you mother
my mum who is 59 had an mri today and lumbar puncture to see if shes got spinal cancer she can't walk at all and she is getting numbness all over her body shes lost so much weight im hoping its not to serious. from australia.
how’s your mom?
I also had tumor and had surgery last month..now i am not normal ..I'm worried can my life will be normal life like before 😣😥
Can you plz tell me what happened to you as my mother also went through same surgery and she is now recovering slowly
MRI without contrast can detect it?
We suggest talking to a doctor for specific medical questions.
Hi I have shwnmana nerve tumor detected yesterday in 3 place.. it's very small size.
Your advice please. Thank you
Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
i had spinal tumor too i got operated 2 years ago but still i didnot have any recovery i got spasm on my legs and its getting worst day by day can you please help me
Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
Meri best friend ko spinal cord tumor hai lumbar region me
iske complications ke baare me bataayee
I had the same tumor removed and I was left with paralazation
It's not paralization dialling it's called short term weakness and if we remove the tumor help of surgeon we will recover our strength on that leg
It's like me my spine popped and at the moment iit has been a month and i'm back at work cannot sit up straight for long but it's ok when I stand up and walk for long periods ' lucky because my job involves mostly standing up' but I do worry if Ii have a tumor on my back but we'll never know as I cannot get an appointment with my doctor, I live in North London and the NHS system is completely over run i cannot afford private treatment and I have no idea what's wrong with me. Britain is turning into a shameful country a country that takes money from the working class while preaching from high heaven in a system that is more interested in cover-ups then telling the truth or trying to fight the problems - if my back goes again I might even end up paralyzed FACT if it is a tumour...
I'm now 7 years post surgery and still have many lingering effects. The pain is much better, towards the end I was taking the max dose of Tylenol, aspirin and ibuprofen or alive basically 24/7, just to keep the pain at bay. I've always hated going to the Dr so I put it off way too long.
hi i had a schwannoma tumor in my t7-t8 thoracic spine and 4 years post surgery, but yesterday i was diagnosed with tarlov cysts in my sacral spine. i was wondering did you have a constant mri follow ups? because i just had my mri done again because my lower back was hurting bad and sending sharp pain on my foot, shin and sometimes having severe cramps on my calves. just wondering how was your recovery and how are you now?
@@zharlenebanzuelo My last mri followup showed only a collection of spinal fluid. It wasn't terrible and could have been more risky to try to fix as long as symptoms were mild. I should be about due for another MRI.
@@zharlenebanzuelo what symptoms are you having with the cysts?
Has anyone ever experienced facial numbness with a benign tumor on your lower back? Its right next to my spine and the doctors said it could be pressing on a nerve connecting to my face.
It has been 14 weeks since i got spinal tumor(Schwannoma) removal surgery. Tumor was at l2-l3 region. Now i am feeling constant dull pain in lower left back but sometime it goes towards my buttocks and leg as well. Is it normal after surgery and will get better with time? Or, is this chronic condition? I am really worried and in pain.
Thanks for reaching out. For specific medical questions, please reach out to your doctor.
I am getting better from low back pain but now my knees are hurting. It pain when i bend it or pose squat. It's giving me trouble since 3 weeks. Is it a part of recovery?
hey I'm so scared I have four tumors sitting bilateral in my spinal cord in the sacrum having surgery in three weeks im 39 male
How did everything go. So sorry you had to deal with so much. I’ve also recently been told I have a possible tumor on my L5-S1. I’m so scared. I don’t even have a treatment plan yet. Going to see the new specialist in two weeks.
How are you now? Update pls
@@ebradley8057 thank g-d I'm doing much better I was paralyzed for four weeks after my surgery was in a dyper in that time
It was hard I also needed to be with a catheter during that time
What's going on with you now how old are you?
But you should be aware of post traumatic Syringomyelia, which develops in 3℅ of patients after the surgery.I have developed that after 15 year of schwannoma spinal tumor surgery.
What are your symptoms from this disease? I'm sorry to hear that
Can anybody help I need a best surgeon iam having this problem but unfortunately iam from Pakistan.if anybody suggest me which country should I go which Dr to be concerned which will be affordable for me
Zafar Ahmed Philippines, Cebu City, Chong Hua Hospital, Doctor Morales an Ortho Surgeon and Doctor Español a Neurologist
@@SheenazaDy hello my daughter have tumor also frm T-12 to L-5...i ask maam if vicente sotto is good hospital for spinal cord surgery..
Don’t bash me for this , but can you treat a spinal tumor with radiation/ chemo???
It depends on what kind of tumor to see if it's bad or good will not good but benign
Not a benign tumor. Surgery is the best bet
with benign surgery and xgeva denomusab treatment
Doing radiation for my t1 tumor
I had 6cm bening tumor schwanoma removed from inside the spinal cord thank god i am walking driving after a year from 10 hours surgery i am way better my biggest problem and suptom was in my right foot i started to loss feeling and standbility it felt also that blood didint go to my right foot even when i massage it nothing change after surgery big part relief of my leg symptoms and the symptoms go with the time.
I also had other syptoms that i didint mention sbove was the worst for me..
Me also have schwanoma removed last feb 11, 2021. I also walking driving. But my problem is My Left foot. It feels numb and sometimes my balance is not Good
Which part of the spine do you have surgery
Can you get tumor in age of 13? I have a back pain and it feels like electric shock and i dont know what is it
Let your doctor answer your questions. A MRI will show the doctor any tumours
Yeah if they do the MRI right my brother went back for a second time after the first one sent him out saying he was fine make sure when you get an MRI if you go to get one they get your entire back and not a fraction of it cause then they're just looking for ways into your pockets for multiple trips
My daddy passed away last week of this spinal tumor
Gary, we are so sorry to hear about the loss of your dad.
My mom has spinal cord cancer. What should i do ? Any tips
Very sorry but why did he passed away
Stay brave!!
- learn how to treat cancer yourself
- visit - wattpad - book title ; what doctors dont know about cancer......
- Scientist K.E Anaekwe
I love having cancer and no insurance and no family support.... like a discarded Pet
Carl James I’m sorry you feel that way. There are people here to talk to you
You have God, nobody is alone. I don t know which country you live but speak to your Doctor, try to get help don t give up.
I have similar symptoms, my right leg is numb, weak, i cant move my ankle or control my entire leg. The pain worsens at night. My lower back hurts so much. My xray showed a curvature in my spine. I was asked to do a ct scan but i cannot afford it. Every day i live with the fear that i might become paralysed one of these days.
Dulcis Aisha you need to do an MRI
Find a way to save money and get that done, don t spend on anything else... Focus on that first. Number one priority. Ask for help, Don t give up because of money. The only scan you need is an MRI and to be referred to the right specialist which is a spinal neurosurgeon.
A very important advise here : NEVER EVER GO SEE A CHIROPRACTOR OR OSTEOPATH, THEY CAN CAUSE INJURY BECAUSE IT S A TUMOR, THEY CANNOT WORK IF THERE IS A TUMOR.
Good luck Darling.