I have PANS and I have severe ocd and had severe tics I’m on my 10th ivig treatment and missed 3 months of school I’m so happy that other people can talk About this because it makes me feel less alone
My sister (who is 24 now) also got PANDAS around 5th grade! For her it was mostly motor tics (stretching the neck and jaw and eyes compulsively) and frequent urination. Such an odd disease and it can be so hard to detect! I'm glad both of y'all got diagnosed and that you're doing better now
I have pandas and I have ocd, adhd, depression, and anxiety I am glad I’m not alone I got strep in the summer of 2019 and I was diagnosed with pandas I was also in and out of school and dance too I was also in fourth grade I’m glad I’m so someone to relate too
Wow u relate to me to I dropped out at 16 and im 19 finding out I have encephalitis with my pans and getting a IVIG treatment to get better sounds are a huge trigger are urs?
woahh. i have PANDAS too. i have tics, ocd, anxiety, and my memory is really bad. but im not sure if thats because of the PANDAS. I hope you get better, i know this is not fun for you and for me. thank you for sharing your story and spreading the word. i really appreciate it.
I’m so happy that I find other people with this condition I have PANDAS. My best friend has it too but it is so comforting that other people have it and can understand.
For the people that commented, your not alone and neither is Lena because I have pandas too and there are people to support you, also lena ik u, I left Rogers a couple days after u got there, and I was the kid with the scooter, but it’s nice to see you are doing well and I hope you keep progressing:)
My son is started having symptoms over time... I only just found out what PANDAS is... I do not have a diagnosis for my son yet but your video made me have goosebumps... tomorrow I will have to convince my son’s doctor to be on board to rule in/out PANDAS...it is not well known in UK and getting treatment privately is extremely expensive. But watching you encouraged me that things will be ok
Hey Lena, wow, wow, wow! this is really inspiring, this special story of yours you tell. I hope you find your own unique way to expose your torch and strength within you. Shalom from Israel!🇮🇱
I experienced the same thing. And doctors told me they didn’t know what happened, but I really think this happened to me and it was the scariest moment in my life.
I have PANDAS right now, I make involuntary movements... my parents had no idea what it was. Now we do! I am super confused though... most people with PANDAS get OCD and anxiety. I don’t really get that, I get tics. Bad tics. I just found out yesterday. 😅
I have PANS too. I have POTS and MCAS on top of it which is annoying. I’m currently getting treatment for all of those things. Thanks for making this video.
@@iosmodtester7403 With which one? For POTS and MCAS my cousin has it too so I knew when I was having all the symptoms it was that so they just did bloodwork and the tilt table test and then for PANS they did a lot of bloodwork and I got to see a specialist for P.A.N.S. and they diagnosed me with it.
I had PANS and I was young I randomly started thinking I was choking and I thought my food and pillow and basically all stuff had leaked battery and I thought I was going to die I was in kinder to first during the time my mom took me to the doctor the said nothing was found or wrong then my mom did a lot of searching and they found pans and ya there is a lot more to say but now I have a little bit of anxiety and sometimes I like clench my fists or pull my hair but ya
I have OCD and one thing I noticed is that one of my eyes gets covered alot with my hair just like how your hair is. I feel like the anxiety and ocd have contributed to that. Feels like my hair is a shield I guess. Hides me from others when I get shy. And because of this I have noticed that the one that usually covered by hair looks wider than the one that gets more sun. Please let me know if you relate :)
Same, I still do this in adulthood. I've always been a little timid and felt like it was a barrier. Taking aerial dance classes really helped me come out of my shell.
Dowa anyone know if one course of anyibiotics can clear all the aymptoms or just some symptims? Andnif utbinky cleares simenif thebaymptoms can anithwrncourse of abtibiotics help?
Find a nearest PANDAS/PANS doctor and schedule an appointment with him/her that’s what we did and usually they’ll draw blood to see if you have a history of strep to see if it’s pandas or pans
There is also cases with pans/pandas with a non Strep infection/ like Lyme infection and trigger pandas /pans so I wonder what else is being missed when suffering from “mental illness “
ابني سامي تم تشخيصه قبل شهر بمرض الباندز بعد تحليل les aslo باكتيريا ستريبتوكوك لحد الان جربت les antibiotiques لكن لم ارى اي تحسن لان ابني لديه اعراض التوحد الحركات التكرارية و فرط الحركة المرجو ممن يعرف العلاج ان يدلني أرجوكم
PANDAS is an anagram for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep infection. On the TH-cam site ABC news dated July 21, 2018 two children are featured that have this.
I have PANS and I have severe ocd and had severe tics I’m on my 10th ivig treatment and missed 3 months of school I’m so happy that other people can talk About this because it makes me feel less alone
I saw another one of your comments I hope your doing okay
My sister (who is 24 now) also got PANDAS around 5th grade! For her it was mostly motor tics (stretching the neck and jaw and eyes compulsively) and frequent urination. Such an odd disease and it can be so hard to detect! I'm glad both of y'all got diagnosed and that you're doing better now
Madison Shelton hi please respond, how did they find out she had pandas ( your sister )
I have pandas and I have ocd, adhd, depression, and anxiety I am glad I’m not alone I got strep in the summer of 2019 and I was diagnosed with pandas I was also in and out of school and dance too I was also in fourth grade I’m glad I’m so someone to relate too
Wow u relate to me to I dropped out at 16 and im 19 finding out I have encephalitis with my pans and getting a IVIG treatment to get better sounds are a huge trigger are urs?
You show great maturity and quite a charming/authentic personnality. Wishing you the best. Thanks for the content.
woahh. i have PANDAS too. i have tics, ocd, anxiety, and my memory is really bad. but im not sure if thats because of the PANDAS. I hope you get better, i know this is not fun for you and for me. thank you for sharing your story and spreading the word. i really appreciate it.
Me and my younger brother both have P.A.N.D.A.S. I can relate.
Thank you for sharing your story!
I’m so happy that I find other people with this condition I have PANDAS. My best friend has it too but it is so comforting that other people have it and can understand.
For the people that commented, your not alone and neither is Lena because I have pandas too and there are people to support you, also lena ik u, I left Rogers a couple days after u got there, and I was the kid with the scooter, but it’s nice to see you are doing well and I hope you keep progressing:)
I have pandas too!!!!!!
It's nice to see someone who can relate 🙃❤
I have OCD where I have to put something perfect, organized, and matching
I have pans. Thank you for sharing. This inspires me to open up to. Thanks you. 😊
I have PANDAS too :) luckily I’m much better than I use to be
I just wanted to thank you for making this video. I have PANS and this is one of the first times I’ve haven’t felt alone.
My son is started having symptoms over time... I only just found out what PANDAS is... I do not have a diagnosis for my son yet but your video made me have goosebumps... tomorrow I will have to convince my son’s doctor to be on board to rule in/out PANDAS...it is not well known in UK and getting treatment privately is extremely expensive. But watching you encouraged me that things will be ok
Hey Lena, wow, wow, wow! this is really inspiring, this special story of yours you tell. I hope you find your own unique way to expose your torch and strength within you.
Shalom from Israel!🇮🇱
I am feeling alote better after my medication and it was a long hard journey and now I am making a book that will be published about my pands story
I experienced the same thing. And doctors told me they didn’t know what happened, but I really think this happened to me and it was the scariest moment in my life.
I feel the same way :)
I have PANDAS right now, I make involuntary movements... my parents had no idea what it was. Now we do! I am super confused though... most people with PANDAS get OCD and anxiety. I don’t really get that, I get tics. Bad tics. I just found out yesterday. 😅
Just believe in God. Thats the answer to solving PANDAS
I have PANS too. I have POTS and MCAS on top of it which is annoying. I’m currently getting treatment for all of those things. Thanks for making this video.
PerfectFlaw how did u get diagnosed? Please respond
@@iosmodtester7403 With which one? For POTS and MCAS my cousin has it too so I knew when I was having all the symptoms it was that so they just did bloodwork and the tilt table test and then for PANS they did a lot of bloodwork and I got to see a specialist for P.A.N.S. and they diagnosed me with it.
PerfectFlaw I believe I have pandas because of my symptoms but they did only 1 test and said everything was normal so idk what to do
PerfectFlaw I feel hopeless ab it . What were all of your symptoms?
@@iosmodtester7403 did you have scarlett fever, limes disease, strep throat, etc. before your symptoms started?
I have PANDAS Too and thank you
I suspect PANS for my daughter. She’s dyslexic and loves gymnastics too:) May I ask-did you do treatment for your PANDAS? Antibiotics?
I had PANS and I was young I randomly started thinking I was choking and I thought my food and pillow and basically all stuff had leaked battery and I thought I was going to die I was in kinder to first during the time my mom took me to the doctor the said nothing was found or wrong then my mom did a lot of searching and they found pans and ya there is a lot more to say but now I have a little bit of anxiety and sometimes I like clench my fists or pull my hair but ya
This is really helpful, thank you for sharing. Did you make the second video?
Yes I did!! Just go to my page!
I have OCD and one thing I noticed is that one of my eyes gets covered alot with my hair just like how your hair is. I feel like the anxiety and ocd have contributed to that. Feels like my hair is a shield I guess. Hides me from others when I get shy. And because of this I have noticed that the one that usually covered by hair looks wider than the one that gets more sun. Please let me know if you relate :)
I also get self conscious when I put my hair up
Same, I still do this in adulthood. I've always been a little timid and felt like it was a barrier. Taking aerial dance classes really helped me come out of my shell.
all these comments make me so happy to see that there are other people with pans/pandas. it makes me feel like im not alone
I also have PANDAS
i have never heard of this
You’ve been gone so long you’re so pretty. I’m glad youre back, hope you’re okay
How did they find strep in your stomach? And thank you for this video.
i used to have pandas syndrome
Does it get better? I’m so scared, my sister has PANS.
How did they test u for it ?
Dowa anyone know if one course of anyibiotics can clear all the aymptoms or just some symptims? Andnif utbinky cleares simenif thebaymptoms can anithwrncourse of abtibiotics help?
Can we talk about the background music real quick?
Hi please respond to this , I might have pandas but no one will test me . What do I do ?
I think you should ask ur doctor about it. Or research more
Find a nearest PANDAS/PANS doctor and schedule an appointment with him/her that’s what we did and usually they’ll draw blood to see if you have a history of strep to see if it’s pandas or pans
There is also cases with pans/pandas with a non Strep infection/ like Lyme infection and trigger pandas /pans so I wonder what else is being missed when suffering from “mental illness “
ابني سامي تم تشخيصه قبل شهر بمرض الباندز بعد تحليل les aslo باكتيريا ستريبتوكوك لحد الان جربت les antibiotiques لكن لم ارى اي تحسن لان ابني لديه اعراض التوحد الحركات التكرارية و فرط الحركة المرجو ممن يعرف العلاج ان يدلني أرجوكم
What really helped you to get better?
I had pandas and know two others who had it and someone with pans so it’s not rare. And only one doctor in Kentucky knows what it is!
1 of 200? That’s it? I’m not going outside ever again.
It’s not contagious:)
Pandas, And ADHD for sure wouldn't go good with each other.
Everybody here doesn’t have pandas y’all are confusing that with autism
What is pandas??
PANDAS is an anagram for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep infection. On the TH-cam site ABC news dated July 21, 2018 two children are featured that have this.
Babbling… please get on with story😊