I have stage 4 invasive lobular carcinoma, and I've experienced it backing off until it was almost unfindable to my current metastatic (especially bones) state. I don't think I can keep you from stressing (we all know what that does for cancer), but I have had cancer for at least 15 years. Meditation helps, as do walks in the woods, visualization, and eating a ketogenic diet combined with intermittent fasting. Sending you good energy. I've been living with cancer for a long time.
It's unfortunate hat you're also part of the stage 4 club, but I appreciate your insight and good energy. Hopefully, we both continue living a long time with it ♥
Mike I am not going to say don't worry because I know I would be. However your medical team sound amazing, but having said that good luck matey, keep us in the loop.
I'll definitely keep you in the loop - the worrying is mandatory, but you're right... I have a good team around me, so it should be less scary. Thanks!
My coping technique, as silly as it sounds, is to pretend ignorant. I'm well aware of all I have going on but my only job is to go to my appointments and do everything the doctors ask me to. Their job is to worry and solve problems. Let your medical team do the heavy lifting because other than relaying information to them we unfortunately have no control over the situation. I try not to burden myself with all the details. It doesn't always work but it's better for me to keep my mind in another place.
I had a melanoma, but this isn’t about me… I did have some advice, although simple, it helped me a lot. My dad: It doesn’t do a bit of good to worry. My friend: Try not to think about it. My brother: They’ll tell you when it’s time to worry. This was all said to me in the kindest way, it truly helped. The way you are feeling is completely normal and you have a right to feel the way you need to feel. I wish you the best!!
I absolutely get it. Being in remission from breast cancer I know how scary it can be when something comes up like this. I am praying for you to have peace and comfort. Don’t stay in cancer jail very long. I remember you mentioned we make cancer jails for ourselves. Based on our fears. Let life win this weekend.
Yep - trying to avoid jail right now... but putting myself in some other form of jail briefly, which is not fun. Starting to snap out of it a bit; whatever happens happens. Cheers! ♥
It's really too bad we just can't shut out bad and scary thoughts, but our minds have other plans. I really believe all will be fine and look forward to you next post.❤ Always on your side Mike. Luv ya.
That would be ideal, right? I truly believe it'll be ok, but now it's a matter of convincing my lizard brain to let me have that. Thanks for being there; love ya man ♥
I would be so fine with wasting time, money, and energy on being wrong in this instance. I just wish I could get to that endpoint now so my brain could calm down.
You are okay until you are told otherwise. This is scary, and I hope you can destress over the weekend doing things you enjoy. I am sending you love, hugs and positive energy.❤❤
Thanks for talking it through. It really helps. I know the feeling of being terrified at every symptom that could mean a recurrence. It makes one feel crazy and isolated, and it's good to know it happens to others as well.
And I reciprocally appreciate you sharing; the more we are able to talk about this, at least the mental health side of things can feel more normal. Not necessarily great all the time, but when we understand that this is a common human experience, it gets a little easier ♥
I was diagnosed with a stage 1 melanoma on my tragus (had that entire part of my ear/surrounding face skin removed with pretty gnarly grafting). I’m coming up on 5 years clear but I still think about it daily. I never went through any intense follow up, just skin checks, no scans or anything. I constantly worry that something was missed since I had this on my head/neck and the research shows poor prognosis for any stage disease in this location. I take beta blockers to help with anxiety/heart palpitations that I think stems from constant worry. It’s hell living with the fear of it coming back. Wishing you the best and appreciate your content.
I completely understand; no matter what your experience is with cancer, it changes you. Thanks for watching and sharing, and I'm hoping the best for you :)
Talk to your therapist about coping mechanisms for managing stress. Stress is a big factor in our cancer battle. Personally I listen to music to get out of my head. Take walks, pray and also do yoga stretching.
Mike...deep breath my friend... I know easier said than actually done. The anxiety and worry is completely normal. It seems like your doctor is confident that it is o.k. which is reassuring. Plus you had some excellent scans recently which is amazing. Take it easy this weekend. Waiting is the hardest part....Try to distract yourself and know that so so many people are sending you well wishes, good vibes and prayers. I look forward to a positive update! Sending extra positivity your way.
I seem to be taking a lot of deep breaths very quickly the last few days 😂 I do believe I'll be ok, I'm just weirded out by how I'm reacting I think. Thanks for always being kind and supportive ♥
@@Linn_Laugh_Love❤This is just my outsider opinion for what it is worth...I don't think this experience is "weirding" you out in the way you think it is. The trauma and grief process that you have had to go through since your first cancer diagnosis is very real. You have been on a rollercoaster for years now...what you are feeling is I can imagine completely normal and totally understandable. I would be more concerned about your mental (and physical) health if you weren't "weirded" out. All you can do is take it one step, one moment at a time. A few years back I went through a traumatic event (not health related so different) but when I was at a low, low point the best advice I got was to just tell myself "I can get through the next 10 seconds". Only focus on that 10 seconds and then 10 more...I know it is probably cheesy but it helped me so much. I do send you my sincerest well wishes and will be thinking about your scan next week until we get an update. Be well!
I get you, i don’t have cancer but I feel this way about my heart disease sometimes. I bet you are okay but I would be out there getting every screening possible if something didn’t feel right. Love the new shirt btw! You got this!
Haha new shirt love; thanks! Yeah, I think this is hopefully one that is more mentally weird than physically concerning, but I'd rather be overcautious right now.
I feel for you, Mike. It's so hard to remain calm till you know one way or the other. I guess you'll have to concentrate on the oncologist not being concerned. I hope you can get an answer this coming week. How's the hip?
Don't be scared I feel your doctor is right I know you are so worried but I will pray for you its Christmas time which is all about miracles and I think and pray your OK plus everything was so recent and also a lymph node can be anything I'm glad your on top of everything get the new scan next week but I think it's going to be fine let us know and do something you love to do this weekend xo
I appreciate the kind thoughts - and I do tend to agree with you (and my doc) in that I think most times, this will be fine. The unknown sucks, and my brain is not handling this well, but talking about it makes it easier. Thanks :)
Your vlogs have helped me . I too being Stage 4 Melanoma in remission . I got a little bit of everything going wrong. But my melanoma in the brain comes back " All Clear ". But there are like 5 others things perhaps related , Who knows ? , Inguinal hernia , avascular necrosis of the hip , basal cell on the back , Parotid tumor has grown . I am trying to get a parotid biopsy , , About ready to do it myself LOL !!! . I think I am inundating the system trying to set up a hernia surgery and resection of the basal cell , My head is about to explode on what day I go here and for what . Phone rings and it's the Sleep Center " Least of my concerns ".. just give me a pill and not make me have to wear an aqualung to find out why I snore . LOL . My dog snores so I can get a package deal . I got paranoid about the parotid , So searched online and brought myself up to speed , Then just the way I am and figuring Murphy has been my medical assistant , That a critical nerve goes through that area and can make that side of your face lose motor functions . My mathematical probabilities says " Yep .. They'll hit it " . When I went to The Cancer Center awhile back . It wasn't 15 second after I disembarked the elevator . The power went out , Then while in my examination room being seen under the light of a I-Phone . The fire alarm sounds and everyone has to evacuate , Loading the parking lot with nurses , Drs and patients with IV's .. Surreal !! .. So I am paranoid delusional that if something bad is going to happen .. It'll be me... Cancer has made me at time Whacked Out !! . Tide comes in and goes out , ebb and flow , Happy and accepting ready to tackle whatever is thrown at me then sad , bummed and wondering if I am in a house of mirrors . They prescribed me SSRI"s' Lexapro and wouldn't take them . Read the label and if weaning is not good if I get hooked , The best medicine has been someone telling me " I love you" and laughter . and writing and responses from someone like you that is going down a similar road . Peace Stephen
Man, when it rains, it fucking pours sometimes - but on the bright side, we can make the most of the rain until it passes... or something like that. My hips are both arthritic, and I was fearful of AVN (just saw an ortho there), and I had a parotid tumor, so we're sharing a lot of the same stress. Hope you find your peace and I'm sending you lots of love at the moment, too ♥
@@Linn_Laugh_Love… This exchange between two cancer warriors is both heartbreaking and heartwarming. I feel for the both of you. I have been there as a cancer patient myself - but not as a Stage 4 - I was a Stage 3b with a 7.5cm mass in my right breast which is now gone. … I don’t go for routine scans - I was told by a trusted oncologist that the scans wouldn’t unearth anything that couldn’t already be detected by how I was feeling or that I found a lump somewhere, or I was losing weight without trying etc. so I’ve taken his advice to the bank, and never returned for any 6-monthly or yearly scans. And so far so good although I now have an unrelated issue with my paralysis but so far so good on the cancer frontier. … Even with all the stuff I’ve experienced with paralysis - cancer is still the big one. And I have the utmost respect for both of you guys. ❤️🙏… Fear has its own agenda - we can only do our best to head ‘em off at the pass - behead the monster that is fear. Become fearless. Best as you can. Best as you’re able - and you will be doing yourselves a great favour. I know it’s easier said than done, but if it’s at all do-able then I have every reason to believe you guys will win. Love ❤to you both from Toronto 🍁❤️🇨🇦 Peace ✌️
There's no rush to be stage 4, and 3b is well past the mark of anything I would ever consider gatekeeping (which I never would). We're all unique and struggle through things (and succeed at times) regardless of the diagnosis/prognosis. I really appreciate you taking the time to share, and your kind words really do help ♥
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Peace of mind is so important, anything you can do to achieve peace of mind is worth it!
I have stage 4 invasive lobular carcinoma, and I've experienced it backing off until it was almost unfindable to my current metastatic (especially bones) state. I don't think I can keep you from stressing (we all know what that does for cancer), but I have had cancer for at least 15 years. Meditation helps, as do walks in the woods, visualization, and eating a ketogenic diet combined with intermittent fasting. Sending you good energy. I've been living with cancer for a long time.
It's unfortunate hat you're also part of the stage 4 club, but I appreciate your insight and good energy. Hopefully, we both continue living a long time with it ♥
Mike I am not going to say don't worry because I know I would be. However your medical team sound amazing, but having said that good luck matey, keep us in the loop.
I'll definitely keep you in the loop - the worrying is mandatory, but you're right... I have a good team around me, so it should be less scary. Thanks!
My coping technique, as silly as it sounds, is to pretend ignorant. I'm well aware of all I have going on but my only job is to go to my appointments and do everything the doctors ask me to. Their job is to worry and solve problems. Let your medical team do the heavy lifting because other than relaying information to them we unfortunately have no control over the situation. I try not to burden myself with all the details. It doesn't always work but it's better for me to keep my mind in another place.
I had a melanoma, but this isn’t about me… I did have some advice, although simple, it helped me a lot. My dad: It doesn’t do a bit of good to worry. My friend: Try not to think about it. My brother: They’ll tell you when it’s time to worry. This was all said to me in the kindest way, it truly helped. The way you are feeling is completely normal and you have a right to feel the way you need to feel. I wish you the best!!
All of those people (and you) are right. I'm not typically a worrier, which is why this one has me so frazzled. I appreciate you sharing :)
Warm Angel hugs,and prayers. Easier said than done but think positive, no negativity.Been there🙏🏼🙏🏼💖💖
I absolutely get it. Being in remission from breast cancer I know how scary it can be when something comes up like this. I am praying for you to have peace and comfort. Don’t stay in cancer jail very long. I remember you mentioned we make cancer jails for ourselves. Based on our fears. Let life win this weekend.
Yep - trying to avoid jail right now... but putting myself in some other form of jail briefly, which is not fun. Starting to snap out of it a bit; whatever happens happens. Cheers! ♥
I hope you can have a good weekend and that lymph node cooperates and goes back to normal when you’re not paying attention!
Good thoughts and prayers...
It's really too bad we just can't shut out bad and scary thoughts, but our minds have other plans. I really believe all will be fine and look forward to you next post.❤ Always on your side Mike. Luv ya.
That would be ideal, right? I truly believe it'll be ok, but now it's a matter of convincing my lizard brain to let me have that. Thanks for being there; love ya man ♥
Wishing you the best of luck that it's not a cancer relapse. Hang in there! ❤
Appreciate it ♥
Praying for you!
Fingers crossed for you, I'm really hoping it turns out to be nothing to worry about. Stay strong! 💪🏻
Appreciate it; I'm hopeful, too 💪🏻
Waiting is always the hardest part of anything. I am glad you are pro active when you feel something is not right.
I would be so fine with wasting time, money, and energy on being wrong in this instance. I just wish I could get to that endpoint now so my brain could calm down.
You are okay until you are told otherwise. This is scary, and I hope you can destress over the weekend doing things you enjoy. I am sending you love, hugs and positive energy.❤❤
❤🙏❤🙏❤🙏♥️ big hugs.
Thanks for talking it through. It really helps. I know the feeling of being terrified at every symptom that could mean a recurrence. It makes one feel crazy and isolated, and it's good to know it happens to others as well.
And I reciprocally appreciate you sharing; the more we are able to talk about this, at least the mental health side of things can feel more normal. Not necessarily great all the time, but when we understand that this is a common human experience, it gets a little easier ♥
I was diagnosed with a stage 1 melanoma on my tragus (had that entire part of my ear/surrounding face skin removed with pretty gnarly grafting). I’m coming up on 5 years clear but I still think about it daily. I never went through any intense follow up, just skin checks, no scans or anything. I constantly worry that something was missed since I had this on my head/neck and the research shows poor prognosis for any stage disease in this location. I take beta blockers to help with anxiety/heart palpitations that I think stems from constant worry. It’s hell living with the fear of it coming back. Wishing you the best and appreciate your content.
I completely understand; no matter what your experience is with cancer, it changes you. Thanks for watching and sharing, and I'm hoping the best for you :)
Fingers crossed for you Mike. Keep the faith. ❤🙏
I always do; thanks for the help, too :)
Hope everything is ok. Praying for you.
Talk to your therapist about coping mechanisms for managing stress. Stress is a big factor in our cancer battle. Personally I listen to music to get out of my head. Take walks, pray and also do yoga stretching.
Mike...deep breath my friend... I know easier said than actually done. The anxiety and worry is completely normal. It seems like your doctor is confident that it is o.k. which is reassuring. Plus you had some excellent scans recently which is amazing. Take it easy this weekend. Waiting is the hardest part....Try to distract yourself and know that so so many people are sending you well wishes, good vibes and prayers. I look forward to a positive update! Sending extra positivity your way.
I seem to be taking a lot of deep breaths very quickly the last few days 😂 I do believe I'll be ok, I'm just weirded out by how I'm reacting I think. Thanks for always being kind and supportive ♥
@@Linn_Laugh_Love❤This is just my outsider opinion for what it is worth...I don't think this experience is "weirding" you out in the way you think it is. The trauma and grief process that you have had to go through since your first cancer diagnosis is very real. You have been on a rollercoaster for years now...what you are feeling is I can imagine completely normal and totally understandable. I would be more concerned about your mental (and physical) health if you weren't "weirded" out. All you can do is take it one step, one moment at a time. A few years back I went through a traumatic event (not health related so different) but when I was at a low, low point the best advice I got was to just tell myself "I can get through the next 10 seconds". Only focus on that 10 seconds and then 10 more...I know it is probably cheesy but it helped me so much. I do send you my sincerest well wishes and will be thinking about your scan next week until we get an update. Be well!
Good luck- hope that it is all sorted soon! 👍
I appreciate the kind words :)
I get you, i don’t have cancer but I feel this way about my heart disease sometimes. I bet you are okay but I would be out there getting every screening possible if something didn’t feel right. Love the new shirt btw! You got this!
Haha new shirt love; thanks! Yeah, I think this is hopefully one that is more mentally weird than physically concerning, but I'd rather be overcautious right now.
I feel for you, Mike. It's so hard to remain calm till you know one way or the other. I guess you'll have to concentrate on the oncologist not being concerned. I hope you can get an answer this coming week. How's the hip?
Don't be scared I feel your doctor is right I know you are so worried but I will pray for you its Christmas time which is all about miracles and I think and pray your OK plus everything was so recent and also a lymph node can be anything I'm glad your on top of everything get the new scan next week but I think it's going to be fine let us know and do something you love to do this weekend xo
I appreciate the kind thoughts - and I do tend to agree with you (and my doc) in that I think most times, this will be fine. The unknown sucks, and my brain is not handling this well, but talking about it makes it easier. Thanks :)
Your vlogs have helped me . I too being Stage 4 Melanoma in remission . I got a little bit of everything going wrong. But my melanoma in the brain comes back " All Clear ". But there are like 5 others things perhaps related , Who knows ? , Inguinal hernia , avascular necrosis of the hip , basal cell on the back , Parotid tumor has grown . I am trying to get a parotid biopsy , , About ready to do it myself LOL !!! . I think I am inundating the system trying to set up a hernia surgery and resection of the basal cell , My head is about to explode on what day I go here and for what . Phone rings and it's the Sleep Center " Least of my concerns ".. just give me a pill and not make me have to wear an aqualung to find out why I snore . LOL . My dog snores so I can get a package deal . I got paranoid about the parotid , So searched online and brought myself up to speed , Then just the way I am and figuring Murphy has been my medical assistant , That a critical nerve goes through that area and can make that side of your face lose motor functions . My mathematical probabilities says " Yep .. They'll hit it " . When I went to The Cancer Center awhile back . It wasn't 15 second after I disembarked the elevator . The power went out , Then while in my examination room being seen under the light of a I-Phone . The fire alarm sounds and everyone has to evacuate , Loading the parking lot with nurses , Drs and patients with IV's .. Surreal !! .. So I am paranoid delusional that if something bad is going to happen .. It'll be me... Cancer has made me at time Whacked Out !! . Tide comes in and goes out , ebb and flow , Happy and accepting ready to tackle whatever is thrown at me then sad , bummed and wondering if I am in a house of mirrors . They prescribed me SSRI"s' Lexapro and wouldn't take them . Read the label and if weaning is not good if I get hooked , The best medicine has been someone telling me " I love you" and laughter . and writing and responses from someone like you that is going down a similar road . Peace Stephen
Man, when it rains, it fucking pours sometimes - but on the bright side, we can make the most of the rain until it passes... or something like that. My hips are both arthritic, and I was fearful of AVN (just saw an ortho there), and I had a parotid tumor, so we're sharing a lot of the same stress. Hope you find your peace and I'm sending you lots of love at the moment, too ♥
@@Linn_Laugh_Love… This exchange between two cancer warriors is both heartbreaking and heartwarming. I feel for the both of you. I have been there as a cancer patient myself - but not as a Stage 4 - I was a Stage 3b with a 7.5cm mass in my right breast which is now gone. … I don’t go for routine scans - I was told by a trusted oncologist that the scans wouldn’t unearth anything that couldn’t already be detected by how I was feeling or that I found a lump somewhere, or I was losing weight without trying etc. so I’ve taken his advice to the bank, and never returned for any 6-monthly or yearly scans. And so far so good although I now have an unrelated issue with my paralysis but so far so good on the cancer frontier. … Even with all the stuff I’ve experienced with paralysis - cancer is still the big one. And I have the utmost respect for both of you guys. ❤️🙏… Fear has its own agenda - we can only do our best to head ‘em off at the pass - behead the monster that is fear. Become fearless. Best as you can. Best as you’re able - and you will be doing yourselves a great favour. I know it’s easier said than done, but if it’s at all do-able then I have every reason to believe you guys will win. Love ❤to you both from Toronto 🍁❤️🇨🇦 Peace ✌️
There's no rush to be stage 4, and 3b is well past the mark of anything I would ever consider gatekeeping (which I never would). We're all unique and struggle through things (and succeed at times) regardless of the diagnosis/prognosis. I really appreciate you taking the time to share, and your kind words really do help ♥
@@Linn_Laugh_Lovelots of love ❤and respect to you Mike, as always ❤
I hope it is nothing 🤞
In case you were recently vaccinated for flu / covid, that could be a cause.