🍎 Berthold - Fabry disease - Episode 1 - The disease and the diagnosis - Germany 2023

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In the upcoming episodes:
Episode 1 - The disease and its diagnosis - What is Fabry disease? - My reason for joining a support group - My story: When and how was your Fabry disease diagnosed? - General experience / time for diagnosis.
Episode 2 - Therapy, pain, fatigue - Therapies for Fabry disease and what can the patient do? - How can one deal with pain? - How does one deal with pain and fatigue?
Episode 3 - Information search and association - Where do patients get information about the disease?
Episode 4 - In public, at work - How do I talk about my disease in public? - What happens in the workplace".
Episode 5 - The experience in everyday life - The impact on my everyday life - What can patients do: nutrition and individual measures? - Covid - My recommendations to patients