When You Have An Incurable Condition: Cost Of Our Care | On The Red Dot - Chronic - Part 3/4
ฝัง
- เผยแพร่เมื่อ 2 เม.ย. 2024
- $31,000 per dose is what 18-year-old Dominic’s Haemophilia A preventive medication costs every month. Despite some subsidies, his family is still laden with a significant financial load. Similarly, 15-year-old Jue Ming’s Haemophilia B’s medication regimen costs around $7,500 every 10 days. Even with some government financial assistance, the family's lifestyle is impacted, cutting back on the extras to make ends meet.
Meanwhile, 13-year-old Constance grapples with managing her Type 1 Diabetes, especially in maintaining a stable blood glucose level during her longer school hours. Will a new device that promises to monitor and manage her glucose levels easily be the key to help her better manage her condition?
0:00: Introduction
0:42 How Dominic's haemophilia medications work
2:57 $31,000: cost of Dominic's haemophilia medication
6:45 Managing diabetes with long school hours
9:30 Cost of Jue Ming's Haemophilia B condition
14:36 Constance's medical devices over the years
16:52 Constance is put on a new medical device
19:03 Fighting for Dominic's medical subsidies
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About On The Red Dot: CNA's weekly programme documents the stories of ordinary Singaporeans and celebrates their resilience, identity and sense of belonging.
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Jue Ming and his family's situation really breaks my heart and I'm so impressed by how brave, considerate, positive and loving Jue Ming is. It is a testament to how he was brought up and I love his spirit. His dad's make-shift air-con is inspiring! What resilience, what creativity!
Best comment ever ❤❤
How weird our medical policies are...it actually encourages you Not to Work so you can the subsidies....if you work you don't get it and the results are you pay way more than you can afford..so end up it make sense Not to Work....hope the government can look into it
So true. Without subsidies, even typical higher income earners will find it tough to handle such steep medical costs in the long run, let alone low or middle income families that are already struggling and pushed to their limits.
The HARM done by the va###ci#######ci*****ne is incalculable. Watch out for more increases in taxes & other charges adding to the increased cost of living. Ask yourselves, what has the so-called oppo esp the wayang MPs done? Nothing, if not WORSEN the problems.
Just like if your income exceeds certain amount then you can't BTO leaving you with no options of subsidized housing. If you work you're penalized, if you don't work you can't survive in this most expensive city, truly weird policies.
This makes me feel lucky to live in Australia. In Australia Hemlibra is free to patients.
Yea, they really shouldn't be getting subsidies for the super-expensive Hemlibra since there is a alternative medication that is much cheaper. Of course, having to take an injection every 2 or 3 days compared to once a month is a big annoyance. But it is not worth the cost to the Government. At 300k annually, that is 15 million SGD over 50 years that the Government would have to pay
Yea I’m from Singapore but I live in Australia now.
Hang on parents and children your courage is admirable. Role models for how to manage chronic conditions well. Hope you get all the support you need.
jue ming is so positive and funny!
Being a CURRENT patient, my advice to Dominic is this: prior to injection please wash your hands b4 wiping with alcohol @ location of injection; prepare 1/2 ball of cotton ball & the plaster. After administration of the medicine, immediately cover injection site with the cotton ball, press the cotton ball for a minute or so & then put the plaster on. Get plenty of sunshine but not over exposure as too much exposure would cause skin cancer. Best wishes..............same applies to all other patient requiring similar treatment. I'd just like to remind readers that I had during a dialogue session with then MOH Minister Khaw Boon Wan in late Jan 2008, that Govt should spend more on welfare from returns from our reserves.
Guess the locals in Singapore need to ask themselves..."Who they voted for?"
Dun tok like a snake oil peddler lah NONE of the so-called oppo can even match the weakest PAPie in Parliament.@@kengleetan63
@@kengleetan63Sorry I dun think sinkies, including those who had voted for the so-called oppo know the ROOT CAUSES & problems the country and its people face. Take the issue of the epic mismanagement of the COVID-19 pandemic costing thousands of lives & significant -ve impact on the econ, which necessitates govt spending more than 100 BILLIONS (& still counting) .........the total losses eg. FTX of US$275 million (PLUS the paper losses on StanChart; Bayer etc).........all these losses could have prevented govt from increasing GST & a slew of other charges leading to rise in cost of living (& of course HEALTH expenditure due to the harmful effects of the mandated v.....###....ci*****ne, which has proven INEFFECTIVE in the transmission & spread of the vi****r######us. And what has the so-called oppo done? Absolutely nothing but abetting.
Another great docu yo! Great job well done guys
Not easy for the families, both financially and mentally. Parents will be getting old as well
These children have good fortitude in overcoming the difficulties brought on by their medical issues. I believe with the coming of AI, there will be new gadgets that will be able to help patients inject their medication automatically instead of having to do manual injections throughout the day. Hope that that day comes soon.
Aside from the initial R&D costs, the cost of these drugs are extremely low. It's the greed of big pharmas in charging exorbitant prices that causes many to struggle to afford them sadly.
Surely there is more the government can do to regulate the prices and help the sandwich class?
So, how will the R&D be funded then? Magic?
@@John_Smith_86 You do know big pharmas spend billions more on stockholders and executive bonuses than the actual r&d right? Start cutting from there maybe
they dont. money talks. money has power.
@@John_Smith_86 U do know that big pharmas spend billions more on their stockholders and executive bonuses than on R&D? Start cutting from there perhaps
John: u do know that big pharmas spend billions more on their stockholders and executive bonuses than on R&D? Start cutting from there, perhaps.
Hope donation and new research will help this people cure their medical conditions first, and start a new life.
No wonder. Hemlibra is a "mab" type medication. I'm also on a "mab" type medication but a bit less costly than hemlibra.
I have no subsidies so I pay the full price. I can say it is painful at the least to pay for the meds. While my peers are buying big tickets items and going on fancy trips I have to scrimp and save to even afford the meds. I can only hope the cost of the meds fall once the patent runs out
patent is 99 years no?
@@lifeisgood2542 Patent for my meds is 10 years. So left with 7 years. I mean if each user pays 4-5k a month for 10 years I bet you they definitely got their money back by the time the patent ends
For those who are afflicted with a catastrophic illness, their savings are often wiped out because of high medical bills.”
Unless they're lucky enough to live in a country with a Universal healthcare!
Where did Venetia go
Since her parents refused to support her emotionally & only have been paying for her medical bills, I doubt they would want to reveal their faces to the public to talk about the $$ 😂
At 6’30s the friend was so aghast when his racket hit his face
Don’t get why they need to do yearly review for subsidies it’s not as if the chronic illness goes away
chronic illness does not go away but income increases. subsidies are based on income and not based on the duration of the illness
We never know what others are going through
Hi guys, are there any venue where I can donate to Jue Ming's family? Do let me know, thanks!
It proposes a single-payer, national insurance system when the state assumes the major portion of the country’s healthcare expenditure.
Ohh. No wonder he can be so adventurous in the previous episodes. Cuz of hemlibra 😮
“Singapore is one of the few remaining countries where the healthcare system is not universal. Because of this, many in the poorer segment of society do not receive adequate medical care.
" here you dropped this.
There is a silver lining though. Once we understand that our bodies are never meant to be totally invincible and invulnerable against sickness and disease in life and some even already come into this world with pre existing deformity and sickeness right out of the gate all of us will understand that this is how all of us will go under natural circumstances short of suicides and accidents. Just a matter of whether sooner or later and whether people can accept it thats all.
We are never meant to survive forever and nor are the things we want to do are important to this world at all as we cant take any of it with us when we die. We are just here to come into contact with those we are fated to meet and either collect a debt from them or repay our debts to other instead thats all. Once this is done everyone is basically waiting for death to descend thats all.
They added that the move to increase contributions to Medisave contrasts with the SDP’s plan, an 87-page alternative proposal, which shifts the onus of paying for the country’s healthcare expenses onto the government, a practice in line with other comparable European and Asian economies.
@martinbrock 713 No, we are not preventing competition. What we are preventing is DUDS getting into Parliament and Govt. Any person of quality, we welcome them but we don't want Chee Soon Juan and JB Jeyaretnam. They are not going to build the country. LKY
Where are the other videos in this series? I've looked in the video listing and cannot find them.
The full series is on me watch, Episode1,2,and 3 is on TH-cam and Episode 4 will be airing tonight
What about the Health insurance? Having a very good health insurance doesn’t help getting Hemlibra (Factor VIII) ?
Actually using A/C doesn't use much electricity only our water heater especially those big round tank ones, that's why no matter how cold the weather is i shower cold water and actually you sleep well after a cold shower.
Singapore has one of the lowest budget for medical care among developed countries. Singapore has probably only 3.5 million citizens. Our tax rate is not low and we have 9% GST. You go figure why our high medical costs are increasing every year and the government solution is to force you to buy more insurance and it’s so difficult and cumbersome to get subsidies for families who really need help.
Omg please. Our tax rate is low compared to every developed country. In fact our tax rate is why foreigners are working here. Our health insurance is also super cheap. Do you have any idea what Europe and America pays for health insurance? Singaporeans have no basis for comparison and literally expect the impossible
Complain so much for what. Not happy come to Canada la and 40-50% of your salary goes to tax jeez 井底之蛙
Lolz. What complete bullshit. Our tax rate is one of the lowest on entire planet.
Not happy? Come to Canada and pay 40% of your salary to tax. Wait in the emergency room for 24 hours before getting seen, wait a few years before surgeries la
your tax rate is ultra low. is that a joke?
hopefully advances in gene therapy will be able to restore the deficient parts, all the conditions described in this video involves the inability to properly express the gene for synthesizing the essential hormone/factors .
🙏🏻🙏🏻🙏🏻
The SDP proposal calls for a reform of the existing healthcare financing system to one that is universal, affordable and sustainable
healthcare is NEVER affordable. that's why pharma is for profit.
If you have 4 grandkids, 1 will be sick cronically
i get that chronic conditions can be troublesome, but the way he communicates sorta portrays a sort of passive mindset where parents getting a pay raise is somehow a problem now, and seriously - getting worried about a shuttlecock hitting you even with medication?
I kind of agree as well. Despite his chronic condition, his family seems to be doing well. Furthermore, if he's so worried about getting hit by shuttlecock, he could've chose a lower impact sport like yoga. As for Jue Ming, he's already old enough to take care of himself now. The father can actually return to work.. & what's the big deal about having air conditioners? Not many homes have the luxury of having aircon as well. The way this is portrayed seemed like they're playing victims & wanting to gain some sympathy from the public.
Scary look, maybe if clot of blood is what he meant? He looks like a dying person so wonder if facewearer or not. Wonder what he do to his middle of eyes or it's natural? My theory of longer age is massage to middle of eyes from left and right at the same time then release. But it's Mr Lau/tan/Koh that read first right?
Middle of forehead*
Yea, they really shouldn't be getting subsidies for the super-expensive Hemlibra since there is a alternative medication that is much cheaper. Of course, having to take an injection every 2 or 3 days compared to once a month is a big annoyance. But it is not worth the cost to the Government. At 300k annually, that is 15 million SGD over 50 years that the Government would have to pay
I will pray for u.The Lord Jesus Christ will always respond to my prayer.FyiNow I pray for u to recover fully. Amen
Amen
Thanks for your prayers, we have a perfect world now.
@@Jack-hl2ys Good to hear.