This video was so helpful and validating, in our case. My husband started showing behavioral changes about 3-4 years ago, with it becoming more severe about 1.5 years ago (some really awful things happened). He met ALL of the red flag criteria, yet we were told he had Bipolar I , depression, anxiety disorder, NPD, APD, HPD, paranoia and a turbulent personality, all diagnosed at 54 years old. I had read that a late onset Bipolar diagnosis was cause for further investigation into a possible neurodegenerative disease, and I am glad I pushed (and pushed and pushed) for an MRI scan. Low and behold, it showed mild atrophy to the frontal and parietal lobes and now he is getting a workup for FTD! People, you know your loved ones best and you must be their advocate if you think this is going on...especially, if you think this is going on, as they are likely not to be aware of the changes in themselves as much as you are. And don't let doctors that spend 5 minutes with you and your loved ones tell you they know best. Trust your instincts! Keep pursing until they PROVE to you it isn't!
Hi Insha! If you have any specific questions or need guidance, don't hesitate to reach out to AFTD's HelpLine. We have a team of trained social workers ready to assist you. You can contact them via email at Info@theaftd.org or by calling 1-866-507-7222. They're here to support you!
Wow. A great presentation which helps explain a disease that has been running in my family.
This video was so helpful and validating, in our case. My husband started showing behavioral changes about 3-4 years ago, with it becoming more severe about 1.5 years ago (some really awful things happened). He met ALL of the red flag criteria, yet we were told he had Bipolar I , depression, anxiety disorder, NPD, APD, HPD, paranoia and a turbulent personality, all diagnosed at 54 years old. I had read that a late onset Bipolar diagnosis was cause for further investigation into a possible neurodegenerative disease, and I am glad I pushed (and pushed and pushed) for an MRI scan. Low and behold, it showed mild atrophy to the frontal and parietal lobes and now he is getting a workup for FTD! People, you know your loved ones best and you must be their advocate if you think this is going on...especially, if you think this is going on, as they are likely not to be aware of the changes in themselves as much as you are. And don't let doctors that spend 5 minutes with you and your loved ones tell you they know best. Trust your instincts! Keep pursing until they PROVE to you it isn't!
Excellent explanation of bvftd. Thank you.
Fantastic video! very well explained.
Do BVftd patients feel & know their symptoms on early onset? Please answer😊
Hi Insha! If you have any specific questions or need guidance, don't hesitate to reach out to AFTD's HelpLine. We have a team of trained social workers ready to assist you. You can contact them via email at Info@theaftd.org or by calling 1-866-507-7222. They're here to support you!
Thank you, very useful information.