This was such a helpful presentation. Thank you. I am an American woman of British/Irish decent and this answers so many of my questions. I am 51 and experienced onset of symptoms at 38 years old.
I have been diagnosed with hsp 15 and thought I was completely alone. Has there been any advancements in this gene therapy or treatments? I am a 38 year old American but I will do anything or go anywhere if you can help! Thanks for video!
This was such a helpful presentation. Thank you. I am an American woman of British/Irish decent and this answers so many of my questions. I am 51 and experienced onset of symptoms at 38 years old.
This has been very interesting. Thank you for your research efforts. Are you aware of any similar centers in the United States?
I dont know - but these guys should: sp-foundation.org/
@@ukhsp-spasticparaplegia thanks so much!
I have been diagnosed with hsp 15 and thought I was completely alone. Has there been any advancements in this gene therapy or treatments? I am a 38 year old American but I will do anything or go anywhere if you can help! Thanks for video!