Humira: My Scary Experience! (True Story)
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- เผยแพร่เมื่อ 25 ส.ค. 2024
- this is my experience with humira after using it for 9 months. I suffered severe panic attacks and anxiety . this is purely my own personal experience remember everyone is different.
Please follow me on instagram @itsahardcrohnslife
(I apologise for the banging half away through, we have building next door) 🙈
Thanks for posting. I have rheumatoid arthritis and was already taking methotrexate (which I had zero side effects on 6mths) Then my first dose of humira (which I took to manage disease pain) made me feel emergency level sick. Full-body nausea, irritation, brain fog (huge inability to communicate), completely unable to multitask. I actually felt unsafe driving. Ended up going of the methotrexate and this alleviated 70% of the symptoms of total unease. Never felt side-effects like that in my life.
I'm so glad I watched this!! I've been feeling nervous and heart palpitations. Went to the ER and everything was normal. I couldn't figure out what was going on but now I see.
Aww bless you. If you suspect it is that have a rest from it for about 2 to 3 months and see if you feel back to yourself , they way you will no. Sending all well wishes xxxx
Thank you so much for doing this video! I started on Humira for my ulcerative colitus on 5-1-19 every other week via the Humira pen. About 2 weeks ago out of nowhere I started experiencing your exact symptoms (panic attacks and anxiety). I relayed this info to my Humira Ambassador who said those side effect aren't on their list as well as my GI doctor who said it couldn't be the Humira. I decided then and there it was time for me to go online and investigate. I found other people as yourself had experienced these symptoms of panic attacks and anxiety out of nowhere. I went to my MD who also looked it up and said you are not crazy! Both side effects have been reported. He proceeded to prescribe me some meds for both the panic attacks and anxiety. This Weds I was due for my injection but decided to stop it just as you did to see if it was the Humira or not. These panic attacks and anxiety I've experienced in the last two weeks have been a living hell! Again, thank you for sharing your experience! I wish you well!
Hiya!, oh you are very welcome ,so many people would not link it to the treatment so i thought I would do a vid about it.. have you started to feel better now? Xx
@@ItsaHardCrohnsLife : Well it's only been two days since I stopped the injection but I'm looking forward to improving each day. Since I've never experienced anything like this before I'm betting on the treatment!
@@ItsaHardCrohnsLife : Dave from this youtube channel (AZ Life Cooking) with his wife was kind enough to answer my email to him today. Their channel shows their progression though the diet and they also provide recipes which adhere to the diet. By following The Plant Paradox diet by Dr. Steven Gundry he is now off his meds for his Crohn's. He stated in his response that he's tried all the biologics and after 6 months their side effects were as bad as the disease and he had to stop each. Hence he and wife who suffers with Arthritis searched for an alternative. I'm planning to start this diet over the weekend. Hope you decide to look into it also since maybe it will help you too!
I’m having the same thing! Omg I feel I’ve lost my mind! This is harsh! I’m stuck between Humira or Colitis.
@@tracyevans5654 : Tracy, there's hope and you're not stuck! Once I was pretty sure it was Humira I just stopped taking it on an injection day. Within 3 days I started sensing a difference. Within a week to 10 days my anxiety and panic attacks totally subsided. You just need to find a different medicine, and in the interim your doctor should be able to prescribe something like Budesonoid during the transition period. Hang in there, there is hope! I also thought I was loosing my mind when the panic attacks/anxiety started happening out of nowhere while on Humira. Today I had my first infusion of Entyvio. I'm hoping I have as good of luck on it as It's a Hard Crohn's Life! :) Tracy if I were you I would stop Humira for a few weeks to see if the symptoms subside. If they don't you can always start back on it but I doubt that will be the case! The best of luck to you and keep us informed of your progress.
I have rheumatoid arthritis and I took Humria for about a month and a half. I notice about a week in that I was extremely anxious and very nauseous as well. I’ve been off of it for about 2 weeks and my nausea is just about gone, but I’m still anxious for no reason. I hope it gets out of my system soon. I feel like I’m on fight or flight mode. Everything was fine before this medicine. I want to be my happy witty self again so bad 😔
Did your RA reduced...?
My daughter started taking Humira on the 11.3.22 after 2 doses she got extreme diarrhoea and vomiting with headaches. She would stand in front of the mirror in my bedroom and be so zoned out. She also takes methotrexate and combining the 2 has now caused her to vomit up blood, blood in the urine, low urea levels and our doctor for general medicine said get her off it and never put her back on it. She is temporarily off methotrexate and now she is completely better. Not sure if she has a ulcer, but she does now have inflammation in the bowels which she has never had before.
She is 16 with juvenile rheumatoloid arthritis and I am so desperate for support from all those people that take these medications.
She has also got more anxiety
@@jewelsjewels7472I am so sorry to hear that. I hope your daughter's condition continues to improve. I am a mom-it is beyond frustrating when our kids are hurting-physically, emotionally-or both & not sure what to do to help them. within 5 minutes of seeing a Dr., he pushed anti depressants. My kid had two friends who died (by their own hand) after taking these meds. The it comes to light that serotonin is not what they thought, which is why anti depressants, in my experience, make things worse. (I am SO thankful for legal cannabis-nature's anti-depressant).
Don't get me started on the vaxx for covid.... I do not, nor will I ever ,blindly believe something cuz someone said so. I do research, unlike every mainstream so-called news channel-brought to you by Pfizer!!! 😤
@@jewelsjewels7472Not sure where you live, because some states stopped allowing this med to be prescribed. Methadone at low doses is amazing for pain. I was on 3-10 mg pills a day. Addicts to heroin are being treated in NJ with methadone-those who have abused drugs in the first place but mow ppl with severe chronic pain issues cannot get this amazing medication. Methadone clinics give addicts 10 times of what I took in a day-everyday!!! I have heard of some getting 300 mgs a dose-daily. All I need is 30mgs a day.
in a daily dose to help curb the need for heroine. Yet NJ stopped allowing it to be prescribed to make way for the morbidly expensive crap that doesn't work worth a damn. I had taken methadone for 30 years for my back and neck. It helped me a lot-was able to take care of my child and house due to the pain relief-also gave me a bit of energy-no side effects at all! I have 6 herniated discs and bulging discs, scoliosis, arthritis, etc.... yet they refused to give me methadone and actually told me to ho to a clinic to get it!!! I would have to label myself a drug addict to get my pain medication-F that!!! When politicians think they know what is best, you gotta KNOW someone paid them a lot of money to take on the BS narrative.
Thank you for your post. I have AS and gave been trying to get on Humira for years, i got approved for it about 10mtgs ago and having fortnightly injections ever since. I have been getting lots of anxiety out of nowhere and i put it down to Covid, but it is out of proportion and things are going well for us as we are lucky during this time. Thanks again for your Video hope your well!
Hey! I've had Crohn's disease since 2014 and I haven't spoken to someone who has crohns before. It makes me feel very isolated at times. Thank you for sharing your story and being so honest. It's nice to hear someone who gets it! I'm starting Humira next month so it will be interesting to see if I experience any side effects you have had. Thank you again and I hope your current treatment is going well for you. :)
Ryan Lewis Thankyou so much for your message . I didn’t speak to anyone for years either that was in the same position as me but it really does help being able to relate to people in your situation, life changing in fact. I no so many people who are taking Humira and it’s worked wonders for them so I’m feeling quite confident that you will be fine and not get the same as me.
Keep me updated when you start it because I no it can be nerve racking. 💜 and if you have any other questions or worries just give me a shout 💪🏼
I lasted 4 months on the Humira epipen. Aloha, from Kauai! And Mahalo for sharing. At first, great on the colon! And my lupus-like flu flares stopped, as did my hives/rashes. But, my upper neck, spine, collar area swelled so badly it was chocking me. And the front and back skull pain lasted all day for 3 months. On ice packs all day suffering. Dr. Kept saying give it 5 months. I could no longer handle the head pain. And it no longer worked on the colon, I was back on miralax every night. I was diagnosed w chrons then they changed it to ulcerative colitis. But it was my rheumatologist that put me on it for poly arthritis for the TNF blocker. My colon Dr and dermatologist liked that I was on it. Well, I had my last injection 2wks ago. And I never did get energy from it nor any arthritis relief... I am 1 year in a wheelchair. I wish it had worked out. I have to say, I did not like giving myself the shot, even tho it only stung for 10 sec. And, I did have a lot of my rapid heart attacks while on it, and they did last too long and scared me. Also, my hair was falling out like crazy. I am glad it helps many, but not for me.
Hello to you!, if your getting bad effects like that, it is definitely your bodys way of rejecting it, remember you are in control of your own body so if you think it is not working tell your Dr you are no longer taking it. I feel they always seem to say stick with these drugs because its easier for them, xxx Thank you for watching, wow what a beautiful country you are from 🌺🌼🌻💐
Wow, thanks for commenting on this. I thought I had a pinched nerve in my upper back/neck area but I’m starting to think it’s the Humira.
Humira drove me to a breakdown 😔. Was on this drug for 8months and did help the Crohn’s but gave me severe nerve damage, spinal cord problems, coordination problems, muscle damage in my bowel! (( I now need daily enemas )) plus I can only walk using a crutch. Also peripheral neuropathy. It was horrific, I kept falling and had intensive tests for M.S and other conditions, lumber puncture, muscle biopsy... I lost the ability to to be independent. Things have improved slightly over 8 years but this is as good as I can expect. Am now on Entyvio and very scared but sadly have zero choice as they don’t want to operate due to steroid dependency over 27 years with crohns and lots of disease spread about. My consultant and second opinions only gave me 30percent chance of survival. It’s a cruel disease 😓
I had my choice between all the different biologic drugs and after much research i came to the conclusion that Entyvio would be my safest bet. The day of the infusion it lasted only 30 min with no reaction. I left at 11am in the morning and did great all day. Then at 3 am in the morning out of the blue it all came crashing down. I felt like an elephant was sitting on my chest with all the blood rushing to my head putting big pressure on my teeth and sinuses. I felt like i was struggling to breathe so like anyone else i panicked and called ambulance. My mouth and throat had zero moisture and parts of my face and tounge were tingling. They checked my ekg and blood oxygen levels and determined i was having anxiety attack. I admit i was anxious but it was a direct result of the feeling of not being able to breathe. Besides that who gets woken up from sleep by anxiety attack.? I insisted it had to be the entyvio cause this stuff never happens to me. So skip to 4 days later and as i was sitting on my couch happy and content BAM out of no where exact same thing happens and again they said it was anxiety but this anxiety comes on from the perception of suffocation. I will never let them put that poison in my veins again and thats a pity cause it is helping my crohns symptoms. I cant go thru life wondering when the next adverse reaction may come. These biologics are big boy dangerous drugs and more people are being killed due to their use than they are telling us. I know glen frey of the eagles died from infection from using biologics. My search goes on for treatment. I do hope these drugs help everyone just be careful.
Aw I'm sorry it hasnt worked for you, I suppose it just goes to show how different peoples bodys react to different medications, I hope you find the right one for you soon 🤞 xx
My cousin has crohns disease, he started hearing voices in his head and they hooked him up to electro shock therapy and completely fried his brain.
It's a Hard Crohn's Life: Update: After 3 days of stopping Humira I started noticing a difference and one week later all panic attacks and anxiety were gone. No more Humira for me! That was awful!! I thought I was loosing my mind! I see my GI doc on Aug 1 to see about switching to Entyvio.
Wow that's such good news that they have stopped, I'm so pleased to hear this!. I no exactly how you felt, I thought the same . Great news for entyvio, hopefully they can get you on it asap 🤞🤞 x
I'm a 34 year old male and I'm currently dealing with the same problem. Been off of Humira for 5 weeks and I'm still struggling with panic attacks and anxiety. Was on Humira for 3 months and then had the worst panic attack. It continue with almost 6 attacks per week. Now I'm just having that anxiety feeling.. I suffer from PTSD as well so I'm starting to wonder if it's become a chronic anxiety issue since it just won't seem to go away. Thank you for making this video. At least I know that I'm not the only one thats been affected this way by this drug.
Honestly dont worry that it will be like it forever, what happened to me was It gradually got better and better but not over night, it took some time but taking the evening primrose capsules helped greatly! So if you havnt got them yet definitely get them. But when you notice yourself feel like that say no to yourself and start doing something that makes you busy straight away. It takes time but you will get there it wint be like it for ever. Xx
I was treated with Humira I took it for about five months I started feeling strange I would do things that was just not me I had panic attack paranoia outburst, pushing people away yelling at them fighting with them. I jumped into a bay, which was full of mud. I almost drowned and almost myself. he was hospitalized, taking off the drugs for several weeks. I started feeling better. My doctor said I needed to start taking it again. I started taking it again. I was feeling like cobwebs were in my throat and on my tongue. I have breathing issues, but he said it wasn’t the drug come to find out Homer has latex in it and I’m highly allergic to latex products this drug has given me more problems in my life. Now that I had before I have heart issues down from it neuropathy like crazy problems. I can’t see perfect vision before they shouldn’t be allowed to put drugs on the market like this.
@It’s A Hard Crohn’s Life
Male here… with Crohn’s since diagnosed in 1991.
Was on Humira for several months and started having severe anxiety. Then I had a full blown panic attack the morning after one injection. Took me months to regain my life back and I will never take another Humira shot again. I’m on Thalomid now which has fetal toxicity risks (but I’m married and not planning on more children). I’ve had no more panic attacks or anxiety (after months of being off Humira). I also have B vitamin deficiencies due to malabsorption (and having surgical removal of 18” near the terminal ileum). For this, I take 300mg Benfotiamine (a synthetic thiamine), B12, niacin and also a B complex. Thiamine is especially important for brain health/energy production and a high carb intake (or having diabetes) can put you in a deficient state. Thiamine or Benfotiamine are cofactors in carbohydrate metabolism. In the future, I firmly believe thiamine deficiency will be linked with dementia, Alzheimer’s, and other neurological disorders. Wishing everyone with Crohn’s a better healthier life.
Just wanted to let everyone know, it's now 10 weeks after the initial dose injection that ended in psychiatric hospitalisation because of severe depression, panic attacks, sleeplessness, disorientation etc. After 10 weeks I am nearly back to normal. So far fortunately the colitis has been rather quiet too! I survived it! That was really one of the most awful, scary experiences in my life, up there with what high dose corticosteroids did to me. And next week I check in with the local university clinic to see what can be done when the next flareup gets me.
Thanks for reporting all this on youtube, gives other victims of that substance a voice!
It’s crazy how much it seems to effect some people so bad and others not at all. I’m so pleased your getting back to yourself!. Have you seen my video on Entyvio ?. It’s a guy specific medication so doesn’t effect any other part of your body and it’s been my saviour. X I have done a few videos on it including an infusion day vlog and q&a . Hope it helps you x
@@ItsaHardCrohnsLife This stuff is liquid, injectable hell. Truly a pact with the devil, gives you some worldly gain, but takes your soul and drags it to hell. Entyvio is definitely on the list of substances I can still try. I checked the side effect lists for that one and it has no mood/emotion issues listed. Taking these long lasting medications is a bit like driving into a tunnel. Once you are in, there is no stopping and turning around to get out quickly, you have to see it to the end. For that reason I would prefer something that is not that long lasting. But I'm afraid I've tried most of those and had bad effects too. Even from the supposedly harmless Mesalazin, that makes me cranky, low energy, low blood pressure, bad mood (though not to the extent of the TNF alpha blockers)
@@petrairene so true!!!. I no I totally feel you . I was the same with all the others . My nurses at my hospital have told in the years they have been giving Entyvio they have had no one with a bad reaction or even any side effects and that made me feel so much better on my first one especially xxxx
Thanks so much for making this video I'm currently going through constant anxiety and panic attacks since having my last injection 3 days ago and thought it was the medication but couldn't find anything on the list of side effects which made me feel I was going mad. I'm a 37 year old male and been on medication roughly 4-5 month's for AS
My dermatologist recommended humira for HS , but I’m not putting that poison into my body , increased risk of major infections and cancer….nahhhh
hello how it s going now? I am currently having pánico attacks and anxiety. thanx
You poor poor thing. I am so happy you are finding entyvio much more suitable. I am hoping I get approved for entyvio next week.
Ah thankyou, oh thats great i really hope it works for you like it has for me, i will keep my fingers crossed for you that it does 🤞💜
Humira is incredible and changed my life.
Hi I hope you are doing well, and hope you're baby is good too. 😊
I've missed watching you on you tube, because having crohn's diease myself I appreciate videos like the ones you make because your very honest and I have had so many different medications that either hasn't worked or I get bad side effects from, so I'm always glad that I'm not alone with this.
Hope to see you again soon, all the best love to you all xxxxx stay safe xxxx 💕
Chellie thankyou so much for such a lovely message , I have been struggling recently so you are definitely not alone but I have started to improve and it has definitely gave me the kick up the backside to do another video . I’m hoping to record very soon . Sending you lots of well wishes and thankyou again for your message . It means a lot xx
@@ItsaHardCrohnsLife
Hi I'm so glad to hear from you, thank you. So sorry your struggling to. Its such a hard time aswell at the moment.
I can't wait to see your new videos, there's no rush, look after yourself first.
Lots of love to you and your family and take care. Xxx❤️
Chellie aw thankyou , right back at you 🤗. Xx
@@ItsaHardCrohnsLife
🤗❤️ thank you xxx
I gave up all caffeine. No coffee, no tea, no soda. And after two weeks I didn't have any anxiety. I don't know how long I will be Humira.
Also there are two list for prescription drug side effects. One for the public and one just for the pharmacy with side effects not given straight away to the pateints.
34 year old Male. Been on humira about 9/10 months now and about 6 weeks ago out of nowhere I felt like I was having a panic attack. I’ve never experienced anything like it before. Had blood tests a day or two after and they were normal. Had a couple of similar episodes since and just had bloods repeated today. Since the first attack up until now I’ve felt terrible. Nausea, anxious, etc. I had been putting it down to one of the horrible illnesses associated with this treatment as a side effect. Glad to have read this now. Perhaps it’s now time to look into alternative treatments.
Garry Macleod I cant tell you how many times I hear this!. It’s crazy what a medication can do but I’m assuming it is messing with our nervous system in some way. Yes definitely come off it ASAP if there is something else you can try. It’s a dreadful feeling it really is x. Wish you better ASAP
It's a Hard Crohn's Life Thank you. I’ve noticed 3 definite panic attacks in the last 6 weeks. Heart rate is faster during these too. A general feeling of dread and quite tired most of the time. Had 2 lots of blood tests in 6 weeks. All results come back normal. No signs of infection/inflammation etc. It’s the last thing I would have blamed but having read so many horror stories and replies on here I think it’s best to review it and hopefully find something else. Hope your keeping well.
Wow i can't imagine taking this drug Humira for that long
Thank you so much for sharing this information. 👍
Hey what was your new treatment?? Did you have a video on it?? Thank you!
I hate Humira. It’s been months and I’m still on it because the doctor said I had to keep going until the 16th dose. My GERD got worse, I have bacteria infection causing UTI, my hormones went crazy, my body lost energy. I wish I had never taken it the first place. I blamed it on the doctor
I've put my prescription on hold as I'm supposed to be starting this to manage my ankylosing spondylitis but I've come across so much anicdotal evidence that a carnivore/keto diet can put many autoimmune diseases into remission. I'm 4 weeks into that and I'm noticing posative benefits that's encouraging. After a couple of weeks I'm going to get my labs done to see if what I'm experiencing reflects in my markers. If it's not showing any improvement I'll get started on the biologics. I've a history of being prone to depression and anxiety, I didnt know this could be a potential side effect and would have put it down to me if I'd had this response. So thanks for sharing this should I go onto the biologics I'll be aware.
how has it gone with the diet? do you have any updates?
I'm a 30 year old man and am going through this exact same thing now!
Horrible panic every day....
I have been on humira since September and just in the past month have been feeling this, the only thing is is this the drug? Or the coronavirus worry hysteria causing my panic???? I'm freaking out cause I dont know what to do and due to the current global issue my dr is not even available...
Greeting woke up morning to a full blown panic attack today been on the injection for 90 days
I'm so sorry you experienced this, have you had panic attacks before? Xx
I have crohns and chronic migraines I have been on humira for a year and a half it put me it put Me in remission for Crohn's but at the beginning it caused terrible axiety and migraine headaches that the days before I was supposed to take it I would fall into a depressive state have horrible panic attacks. Thank God my mentor gave me a good advice and my neurologist put me on an anxiety medication. (as it is I am a very anxious person)
Rochel Leah Ross it’s such a shame when it works for one thing but then because of the side effects you then get something else. Have you seen my video on anxiety and evening primrose capsules?. I can honestly say they literally saved me from my anxiety . Xxx
@@ItsaHardCrohnsLife I watched all your videos and then did some research. Although i would recommend primrose to one of my friends my medical history is to complicated and I cant risk kidney failure for fewer or no panic attacks.
I've just been prescribed Humira for perianal fistulating Crohn's disease and this information is very useful. Thank you and I'm sorry to learn of this side-effect, hope you're feeling better now.
Hi there! I’m watching this video because I was recently diagnosed with fistulating crohn’s as well. My current GI doctor is absolutely terrible. Has your GI doc given you any other suggestions in regards to other medications you can take?
@@kittymeowmeow3676 Hi there, sorry to hear about your GI doctor. They tend to focus on biologics and steroids here but because I was misdiagnosed 28 years ago, I have major structural damage and they want to do 'very major surgery'. I have researched extensively about treatments and people here have success with Low Dose Naltrexone LDN. I refused biologics because of the harm to the immune system and it would leave me wide open to other infections. Have you experienced intra-abdominal abscess collections because of your fistulating Crohn's?
@@kittymeowmeow3676 Can you tell me what your home country is please?
I’m glad you are off of this now and have found something else to treat your Crohn’s now. I don’t know if I’d be good on this as I sometimes suffer with anxiety so wouldn’t want it to worsen on this! Xxxx
Kate Stutter I think your consultant might not try you on it because it is a similar drug to infliximab, meh may want you to try Entyvio because it is completely different and works in a different way to the others as it’s gut specific which apparently is why less side effects . Xxx oh hun I hope you get sorted soon I can completely relate 😘😘 xxxx
It's a Hard Crohn's Life thanks hun, going to push for Entyvio I think! Will keep you posted xx
I’ve been dealing with this for over 4 years now! Omg I’m ready to check in to the psychiatrist ward! I swear I’ve told my ambassador this and she just says it shouldn’t be Humira? I’m so po ! I know that Humira saved my life! But now I’m living a double edge sword life!🤯 I’ve lived with Colitis over 25 years now and I’m male, it’s not just females. Gene pool 🎱
Come of of it, and have them find something else that works for you, it's not fair to live like that and of course It can be the humira, I have recently spoke to other men that r experienced the same, x dont live like that come off of it and see if you not an improvement, if so then it is definitely the humira xx
The ambassodor's are clueless! It is a known side effect albeit in a very low percentage of people.
@@jeffreypelosi8334 apparently not but strangely enough my nurse said that they have been reported in there patients and that's only my hospital x
@@ItsaHardCrohnsLife Honestly, I think the ambassodor's know but are just not openly admitting to it.
It's a Hard Crohn's Life I know it’s Humira! I may need to try something else, may need therapy how to live in reality after being on it so long? Seriously not cool.
I'm 41m, I've been experiencing these symptoms for a few months since starting humira. I'm going to stop taking it for a while and see if I feel better. great video!!
hello, how is going? I have anxiety and pánic atracks since 2 weeks after humira
@@futuro6401 Hi friend, sorry you're going through that. I know how terrible it can feel. I quit the Humira back when I originally posted my message and the anxiety/panic got better. I have since switched to Taltz and am doing better.
I was also on Humira for ulcerative colitis for 3-4 months and I had sudden severe panic attack with intrusive suicidal ideation, it was horrible, the most frightening period of my life! So the second day I went to a psychiatrist and put me on antidepressants, diagnosed me with severe depression and obsessive compulsive disorder-intrusive thoughts! I went after to several other psychiatrist and everyone had the conclusion that Humira was the main cause or trigger! At hospital my gastroenterologist md, said that he never heard before such thing. Yes it happens rare, but it can happen with all biologics or many other drugs, sadly. If you feel strange and not yourself, just ask for help and always ask a second, third opinion..
hello how is going now? did u stop humira? did your conditions bettered. thanks for sharing
Hello, please i ve been into humíra since oct 2022 and i ve been experiencing panic attacks and anxiaty eversince after one month of treatment. the results are 0 inflamatiin but the anxiety is under control but all the time. i ve passed throug horrible experience at the beguinging as i dindt know what was happening. now i see this incredible video I can undestand that us the drug. I have spondilartryte ankylosante. the treatment is very effective 0 illness 0 inflamation but anxiéty. i do not kmow still what to do. maybe reducing the intakes after 18 monthes taking humira
I am a male and my experience was horrible. I was doing once a week injections. Because of the once a week injection I couldn’t figure out what was happening to me. So I ended up dealing with this for almost a year. Took me years to get my life back in order. I’ve been trying to sort out what could be the factor that led up to me having such a negative effect from it. I wonder if it has to do at all with personality. Thanks for sharing your experience.
I had screaming in my ears, that's not on the list
Me too
@@agapelove9859Screaming in ears?????? Sounds like demonic possession. Better find a priest ASAP.
I have crohns week 5 since humira. Had little niggles and a flare up yesterday. Can this humira still work for me ? Is it too early or it will definitely not work ? It does say can take 2 to 12 weeks for it to work? Many thanks.
My goodness. I got it for colitis ulcerosa and the day after the first injection my mood crashed. Severely severely depressed, nothing was anjoyable anymore and tiny things got me aggressive or feeling like crying. And then in the night the panic attacks came. That was three weeks ago. It got so bad that the first week I spent a few days in the local psychiatric hospital and even benzodiazepines didn't make me sleep or stop the panic. Now about three weeks later I'm still depressed to an extent that I have suidical thoughts, I can not read a book because I can not concentrate, I feel like shivering with nervousness and fear.
The only thing that keeps me going right now is that I know when the substance is eliminated from my body this will end, too.
Unfortunately I also reacted badly with Remicade. With that I could no longer participate in traffic because my reaction time had become so bad and I experienced a weird state of no emotions at all (as opposed to mental anguish with Humira)
I’m so sorry you are going through it at the moment . But the main thing is you no that this is not forever . Just take each day as it comes. It will get better and you will be back normal in no time at all. I genuinely thought I was going crazy but now looking back I am like wow what a crazy medication that made me 🙈 xx
@@ItsaHardCrohnsLife Thanks!
After a horrible night last night, today was better. I just relaxed with a few friends, that helped.
Yeah, it's amazing what a medication can do to your state of mind. I have these problems with almost any kind of medication. High dose steroids give me dementia like loss of mental abilities and a feeling like being drunk, including balance problems. Low dose steroids give me depression, sleeplessness.
I guess the next one I will try is Entyvio. But if all do something bad to my state of mind I am ready to have the colon removed. Because I can not take this on a regular basis or long term.
Thanks again for posting your video!
@@petrairene Entyvio is literally the only medication that I’ve ever had that works for my Crohn’s and also no side effects at all. It works completely different than the others as it is only gut specific so doesn’t work or effect any other parts of the body I think that’s why I have no side effects coz if I was gonna get them it would only be in the gut and let’s face it we have enough of that haha .
@@ItsaHardCrohnsLife Hi again. It's now four weeks after the injection and today I noticed the first real improvements in my mood. Not at all back to my usual self but the first bearable day. Though I still had a meltdown at someone for a totally ridiculous tiny reason. (she knows of my meds problems so she just calmly ignored it) How long would you say did it take for you until you were back to fully normal? I have read that this substance is in your body for up to 4 months. With the Remicade it took me about four months until the weird side effects completely resolved.
@@petrairene oh that’s great news . So I would say that around the same time as your saying every day got better and better . I think things got completely better once I realised that if I had a bad day it wasn’t a set back it’s just one of them things coz you can get caught in a spiral otherwise . But yeah once 6 months had passed I realised I hadn’t had any panic attacks for a while . X
What treatment do you take now? Name of it?
Don Dada Vedolizumab/Entyvio
Been taking this med for years and now realizing mental disorders coming from this med. As well as arthritis. Seems to get a little worse from every injection
Come off of it ASAP if you are noticing this. I am now on Entyvio which has been amazing maybe give that a try
Yes I might have to. Scared to be on any biologic and scared to be off of it too. Thank you for making this video!!
How many years you have been on Humira? I am using it since 2018
@@geeteshrajkumar7443 i was on it for 9 months and came off . after 4 weeks after stopping it my anxiety was no where near as bad and went away after 5 months
I’m a 26 year old male and I started having panic attacks wirh humira too. I take it for ankylosing spondylitis, but I’m going to stop taking it now.
Make sure you don’t get unwell and if you need further medication then try and get that sorted before hand . X
It's a Hard Crohn's Life: Just watched your video on Entyvio and was wondering what your current opinion is of it? Honestly, due to this recent Humira experience I'm scared as hell of going on another biologic.
It has been an absolute life changer for me, my most recent video is an updated one of entyvio answering all questions on it. Which will hopefully give you a better understanding of it, but it works differently from the other biological drugs and only works in your gut rather than the while of your body x I hope you find it helpful xx
@@ItsaHardCrohnsLife : Thanks!
@@jeffreypelosi8334 you are very welcome, if you have any other questions that I havnt covered on there ,always ask x
Just curious, What treatment / meds are working for you at the moment? I will be starting with Humira soon for my AS and Chrons..
I am no on Vedolizumab and it’s worked amazing I have a video talking about why I think this may be also. Hope you find it helpful x
How the humira been ?
I'm about to start my treatment with Hyrimoz after methotrexate started to impair my liver. I have psoriasis, psoriatic arthritis, ankylosing spondylitis and mild peripheral neuropathy.
Reading about Adalimumab I feel afraid to start treatment. I have a 4-month daughter. Kids get all kind of flu, infections and so on. How is going to affect my health? Also, I read that anti-tnf biologics leave us prone to fungal infections. I really like to perform oral sex on my wife (and she likes it too, I hope you people don't feel uncomfortable as I share this). Will I have to put this practice on hold!? How imunobiologics has affected your sex life? How has it affected your general day-to-day stuff?
I don’t take it but it messed me up I almost back!
What do you take now
i was on prednisone for 2 weeks and half and Accutane for 9 days for acne conglobata and hidradenitis suppurativa side effects were shit had panic anxiety attacks every hour mood swings could not handle stress could not sleep was jus out of it then my throat started swelling hard time breathing and talking had to stop. my dermatologists recommends humira but would it make me feel like i felt on prednisone Accutane ?
Are you taking humaira now and what are the results? The doctor recommended humaira for my son too
I have chrones and my doctor wants me to pick a new drug which are stelara humira entyvio or remilade I’m not sure what the heck to do
I really hope I don’t get a Panic attack I start school tomorrow
THARUKSHA SOYSA I was on it for 6 months before they started, it’s very unlikely. I have so many friends on Humira and there doing great 👍 xxx
Thanks
THARUKSHA SOYSA have the best 1st day at school! You will have have a great time xx
It's a Hard Crohn's Life 🙏
worked well for me 4 years but then I developed antibodies against it it doesn't work anymore
Aww that's a shame ,I hope you manage to find another treatment that works for you to keep it under control x
Hi what medication you are on now. I had antibiotics so I am on weekly Humira.
@@geeteshrajkumar7443 I'm on Cosentyx now.
@@donfrankmagic6442 Hi how are you finding this medication now.
@@geeteshrajkumar7443 The Cosentyx works really well for me, I've also been taking vitamins
I was on it 15 years ago…. I just started again as a man and I’m definitely crying way more and I can tell it’s from the drug
I’m 38 been dealing with this from 7 years of age
Hi all. Is anyone on here still suffering from the side effects of their humira. I’d suffered side effects around 5 months ago and came off it. My colitis then flared up around two months ago, went back on humira and now all of a sudden I feel anxious again. Feeling panicky at the slightest thing, a slight blur in left eye also. Is this anything that people can relate to on this forum?
Slight nausea aswell but not everyday.
I have since doing this video spoke to many people that experienced the same or worse side effects on this treatment. It sound like it is the treatment that is effecting your anxiety , if you felt better when you came off of it then I would say it’s the medication. If so come off and ask them to try you on something else. Ask them about Vedolizumab/Entyvio as it is a gut specific treatment so doesn’t effect round your body . It’s the only treatment that has worked on my crohns and with no side effects
@@ItsaHardCrohnsLife hi. Thank you for the reply. When you say worse side effects, what else have people suffered? I have a consultation with a GP on Monday and will push to have some blood work done as I did before. The last time the bloods came back normal.
@@garrymacleod849 the thing is it’s not listed as a side effects but 90% of people that I no that have had it before have had to come off of it because they have experienced panic attacks . When I say more side effects I mean more severe panic attacks . Blood work won’t show up how it’s effecting your mind and brain x
@@ItsaHardCrohnsLife yeah I had the blood work done before as I had no idea what was happening to me. Never put it down to medication until I seen this. I guess I would like the blood work done again just to rule anything else out. Really just don’t feel myself at all and I was fine up until about 4/5 weeks ago and the only thing that’s changed is I’ve started this medication again. Had DMARD bloods done 3 weeks ago and they came back normal.
I've been doing this bad!!!
Anyone taking it for uveitis? Or eye issues from RA
I just got prescribed it for uveitis. 🤷🏾♀️
humira be making me fat as fck but it's the only thing that's worked so far and I don't know what to do
Are you going to continue to take even if you become obese?
@@fishandchips1762 no.
Ahlalala sooooo long and not much information.
Hello there!, unfortunately this wasnt a video specified to Humira its self, it was to make people aware of myself and others frightening experience while on it as panic attacks are not listed as a side effect in the information, Sending all well wishes x